I dealt with this, but not to this extreme. If actual narcotics are not working, that is a serious problem. I had some relief from A drug called Pyridium. It turns your urine orange, but I had pretty good success with it numbing bladder. It cannot, unfortunately, be taken more than a few days at a time. It can cause damage to the liver.
I really think you need to see if you can find a urologist to specializes in spinal cord injuries. Although that may not solve all of your problems. I had an ileostomy (not the exact procedure) done about a year and a half ago and have had pretty good results, but I'm still having some problems. In fact, I had some A.D. problems on Monday and I am now scheduled a scan next week. I had some serious problems whenever I used a silicone catheter. As he tried using latex? The majority of people are not allergic to silicone, but we discovered that I was and a lot of the problems I had are similar to what you are describing here. Once I took the catheter out and put a latex in the pain diminished significantly within a few minutes. Hopefully something works for you. Quadius On Mon, Feb 24, 2014 at 5:21 PM, <[email protected]> wrote: > Anyone here first start to experience on relenting burning pain in their > bladder after getting an indwelling catheter? He solutions? My husband has > had a suprapubic catheter since 2008. The pain is intense and is 24 seven. > We can tell you everything that it isn't and everything that doesn't work > to eliminate it. He is literally ready to die. And, he is well on his way. > He is now down to 95 pounds in 6 foot three. The pain is too great and does > not allow him to eat. It all got worse after a nerve block in December 2012. > > He takes gabapentin, alprazolam, oxycodone, marijuana, and baclofen for > it. This is a man who never touched a drug in his life prior to all of this. > > Sent from my iPhone > > Please excuse any typos or brevity of tone as this was typed using an > iPhone (and possibly Siri, in an effort to be as safe as possible while en > route.) > > > My best, > >
