Re: [TMIC] Medications
Since disability payments are based on SSA quarters reported; Some of us, who only got good jobs later in life, will not get very much at all if we go on disability. Dalton From: Barbara Alma balmat...@aol.com Date: Thu, 09 Sep 2010 23:05:51 -0400 To: jcs...@yahoo.com, tmic-list@eskimo.com Subject: Re: [TMIC] Medications Resent-From: tmic-list@eskimo.com Resent-Date: Thu, 9 Sep 2010 20:06:14 -0700 John, If I could have continued working after TM I would have. It does take a high hit on your finances when you stop working and go on disability. It's great that it is there if need be, but in my mind, nothing beats working until you are ready to stop by choice. The doctor may however, feel that it is taking a heavy toll on you, which if it is, then it is something to consider. Hugs, Barbara A in Auburn CA -Original Message- From: john snodgrass jcs...@yahoo.com To: Janice Nichols jan...@centurytel.net Cc: transverse myelitis tmic-list@eskimo.com Sent: Thu, Sep 9, 2010 1:40 pm Subject: Re: [TMIC] Medications I am going to fight this thing as long as i can without stoping working. if i go on disability i will get @ 1400 a month if i am lucky. thats opposed to the @3000 i get working. still paying for my home. From: Janice Nichols jan...@centurytel.net To: john snodgrass jcs...@yahoo.com; Janet Dunn j.d...@shaw.ca Cc: transverse myelitis tmic-list@eskimo.com Sent: Thu, September 9, 2010 4:09:59 PM Subject: Re: [TMIC] Medications I have stopped going to my neuro. If there is a change, or something I don't understand, I will go back. He just did not have anything new for me - either meds or advice. My meds now come from my family doctor - who was right with me all the 9 weeks in the hospital calling in specialists for each problem that developed. Also, my other meds come from my Pain Management Doc who has been very helpful.At this point, I really don't need a neuro. John, why not disability? You are in pain quite a bit. I don't know how old you are, but I could understand doing it. Janice From: john snodgrass mailto:jcs...@yahoo.com Sent: Thursday, September 09, 2010 2:57 PM To: Janet Dunn mailto:j.d...@shaw.ca Cc: transverse myelitis mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Medications it really bothers me to hear of these instances of people not getting to the Dr or having to travel vast distances and wait times when I can go to my family Dr on a whim and my neurologist works at the same place as my sister-n-law and is always asking about me and making sure i have appointments every 3 months. however,,going to the Dr doesnt make me any better than i would be if i didnt go at all now. I just get my scripts on time and they watch for other things i reckon. (depression talking) as for working,my boss and superintendant allow me to work but keep suggesting that i go on disability. so does my Dr's. one of my Dr's is a senator in this state and told me today that should i ever not be able to go on that he would go to bat for me. thought that was interesting. I still dont understand why a dr is a senator or why is a senator is a Dr. His name is Ron D Stollings as for hydrocodonei read on one of the med-sites that if you take 2 tylenol with the hydrocodone that it will do better than either one of them by themselves.So I did,and it does. then you have the extended use of acetaminophen effect that might eat your liver or something. Pill time,,,bye bye. From: Janet Dunn j.d...@shaw.ca To: transverse myelitis tmic-list@eskimo.com Sent: Thu, September 9, 2010 10:59:59 AM Subject: [TMIC] Medications Hello to all I find it very interesting the number of us that are on or have taken hydrocodone, especially when it is ³said² that opoids do not help with the pain of TM For me personally, I wouldn¹t make it if I didn¹t have a member or two of the hydrocodone family in my drug repertoire. I take 20mg or 40mg of long acting HCL in the morning, depending on the legs, and have perocdan as a filler for the day. I also take Lyrica, Effexor, Wellbutrin and baclofen. Even today, after 2 days of working 8 hours, and moving around and doing housework, I hurt. I want to lay in bed. But . . . just like the rest of us . . . duty and life are calling. I really appreciate the medication information simply because I live so far away from the nearest neurologist, and the wait time is up to a year, if we can get in at all. Then we must travel either 400 miles out of province, or 850 miles to Vancouver. So the information on here is absolutely priceless. However, you cannot have my MasterCard! ;) Janet From: john snodgrass [mailto:] Sent: September 8, 2010 2:09 PM To: Rev. Craig Crossman Cc: transverse myelitis Subject: Re: [TMIC] Neurologist visit I have been taking gabapentin 400mg for the last 2 years 3 times a day. some people say that they can take 1 and it knocks them out. i have never experienced that. perhaps because of the
[TMIC] Unidentified subject!
My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
Fw: [TMIC] Unidentified subject!
--Original Message-- From: Jackie Duval To: TMIC ReplyTo: Jackie Duval Subject: [TMIC] Unidentified subject! Sent: Sep 10, 2010 8:57 AM My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT Sent via BlackBerry by ATT
Re: [TMIC] TRANSVERSE MYELITIS
I agree, Janice From: Beeclark Sent: Friday, September 10, 2010 12:22 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] TRANSVERSE MYELITIS Not really... but as I told Greg on his Facebook, it really brought me back to the day I contracted it. His experience was so very close to mine. He regained slightly more function than I, but I think it's wonderful to have something visual for others to see what we - and our families have gone through. Greg and his parents re-enact exactly what occurred as the virus began to affect him and what it took for him to get to the point he's at now, two years later. I also think it shows how important it is to find a doctor who, if they're not already familiar with TM, is willing to explore all avenues to find out how to treat you. Betty In a message dated 09/09/10 20:07:35 Pacific Daylight Time, jan...@centurytel.net writes: Betty, did you learn anything different from watching - meds, exercising, etc.? Janice From: Beeclark Sent: Thursday, September 09, 2010 5:51 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] TRANSVERSE MYELITIS My mistake... the episode is titled The Toddler Who Stopped Walking and it originally aired last Sunday night. I watched it and it was GREAT! It would be wonderful if all the physicians who are not familiar with TM would watch! Betty In a message dated 09/09/10 15:42:43 Pacific Daylight Time, Beeclark writes: The story is about Greg Sapp who lives in Statesboro, GA. The show originally aired this last Monday and will repeat next week. Here's a link about the show. Unfortunately, those who don't have cable and don't get this particular station won't be able to see it... and for those who can get it, be aware, if you try to program your DVR to record - I believe the show is be labeled The Girl Who Stopped Walking - Greg's part of the show is in the second story being highlighted: Mystery Diagnosis on Discovery Health Channel (Monday) will be about a man with TM. http://savannahnow.com/news/2010-09-05/local-man-featured-mystery-diagnosis Betty (in Northern California) In a message dated 09/09/10 13:27:49 Pacific Daylight Time, jan...@centurytel.net writes: My sister, who lives in Savannah, told me about a Transverse Myelitis patient that lives near there. He will be on the 2nd half of Discovery Health channel. Dates are: Saturday, Sept. 11 at 5:00pm and Monday, Sept. 13 at 3:00pm Should be interesting and am glad that TM is getting some recognition. Janice
Re: [TMIC] Medications
Re: [TMIC] MedicationsRemember you can work up to the amount you need. If you start with the zomby-business, cut back and see if that will work for you. Or, just take it a little before bedtime. That is what I do. Janice From: Dalton Garis Sent: Friday, September 10, 2010 5:31 AM To: Janice Nichols ; j.d...@shaw.ca ; tmic-list@eskimo.com ; Barbara Alma Subject: Re: [TMIC] Medications OK; I'll suggest it to my neuro. He has been steering me away from the heavy-duty meds because I already take 40 mg of Prozac (have for 20 years) and he is afraid it will zomby-ize me. Dalton From: Janice Nichols jan...@centurytel.net Date: Thu, 9 Sep 2010 22:22:34 -0500 To: j.d...@shaw.ca, tmic-list@eskimo.com, Barbara Alma balmat...@aol.com Subject: Re: [TMIC] Medications Resent-From: tmic-list@eskimo.com Resent-Date: Thu, 9 Sep 2010 20:22:23 -0700 There's that word again - spasms.I swear by baclofen.Had to change the number taken and the times of the day when to take them, but once that was figured out, I could sleep.Sorry to sound like a broken record and I realize that we are all different too.Sure wish it would work on you guys the way it works for me. Janice From: Barbara Alma mailto:balmat...@aol.com Sent: Thursday, September 09, 2010 10:16 PM To: j.d...@shaw.ca ; tmic-list@eskimo.com Subject: Re: [TMIC] Medications Hydrocodone: I personally do not get any relief from my nerve pain, burning/freezing or hyper sensitivity. I take it for other pain, and I also take it to sleep occassionally. Before anyone states that it isn't a sleep aid, I know it, but it allows my other aches and pains to stop hurting enough for me to go to sleep. It does not work on the really bad nights when my nerves or spasms do not settle down though. I may as well have not even bothered. Hugs, Barbara A in Auburn CA -Original Message- From: Janet Dunn j.d...@shaw.ca To: 'transverse myelitis' tmic-list@eskimo.com Sent: Thu, Sep 9, 2010 7:59 am Subject: [TMIC] Medications Hello to all I find it very interesting the number of us that are on or have taken hydrocodone, especially when it is said that opoids do not help with the pain of TM For me personally, I wouldn't make it if I didn't have a member or two of the hydrocodone family in my drug repertoire. I take 20mg or 40mg of long acting HCL in the morning, depending on the legs, and have perocdan as a filler for the day. I also take Lyrica, Effexor, Wellbutrin and baclofen.Even today, after 2 days of working 8 hours, and moving around and doing housework, I hurt. I want to lay in bed. But . . . just like the rest of us . . . duty and life are calling. I really appreciate the medication information simply because I live so far away from the nearest neurologist, and the wait time is up to a year, if we can get in at all. Then we must travel either 400 miles out of province, or 850 miles to Vancouver. So the information on here is absolutely priceless. However, you cannot have my MasterCard! ;) Janet From: john snodgrass [mailto:] Sent: September 8, 2010 2:09 PM To: Rev. Craig Crossman Cc: transverse myelitis Subject: Re: [TMIC] Neurologist visit I have been taking gabapentin 400mg for the last 2 years 3 times a day. some people say that they can take 1 and it knocks them out. i have never experienced that. perhaps because of the extreem pain. I also take hydrocodone,baclofen, and lorazepam. =
Re: [TMIC] Unidentified subject!
My right leg was/is weaker than my left also. I have had TM for over 3 years now and I know what you are saying when you feel one leg is shorter than the other.I don't think that is happening, but I catch myself feeling that way and then I really straighten up tall and the feeling goes away. I think we tend to lean one way or the other according to weaknesses.I try to always stand as straight as I can - especially when noticing the lean toward the right. Also, pain and weakness can be coming from the hamstring on the right side. Lots of stretching helps that. Hope I helped. Janice -- From: jack...@att.blackberry.net Sent: Friday, September 10, 2010 9:57 AM To: TMIC tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
Re: [TMIC] Medications
I applied when I was +/- 55 and when I finally got it, I was given the amount I would get at full retirement...and this was before tm, for another immune problem. My 2¢ janh From: Dalton Garis malugss...@gmail.com To: Barbara Alma balmat...@aol.com; jcs...@yahoo.com; tmic-list@eskimo.com Sent: Fri, September 10, 2010 5:28:21 AM Subject: Re: [TMIC] Medications Since disability payments are based on SSA quarters reported; Some of us, who only got good jobs later in life, will not get very much at all if we go on disability. Dalton From: Barbara Alma balmat...@aol.com Date: Thu, 09 Sep 2010 23:05:51 -0400 To: jcs...@yahoo.com, tmic-list@eskimo.com Subject: Re: [TMIC] Medications Resent-From: tmic-list@eskimo.com Resent-Date: Thu, 9 Sep 2010 20:06:14 -0700 John, If I could have continued working after TM I would have. It does take a high hit on your finances when you stop working and go on disability. It's great that it is there if need be, but in my mind, nothing beats working until you are ready to stop by choice. The doctor may however, feel that it is taking a heavy toll on you, which if it is, then it is something to consider. Hugs, Barbara A in Auburn CA -Original Message- From: john snodgrass jcs...@yahoo.com To: Janice Nichols jan...@centurytel.net Cc: transverse myelitis tmic-list@eskimo.com Sent: Thu, Sep 9, 2010 1:40 pm Subject: Re: [TMIC] Medications I am going to fight this thing as long as i can without stoping working. if i go on disability i will get @ 1400 a month if i am lucky. thats opposed to the @3000 i get working. still paying for my home. From:Janice Nichols jan...@centurytel.net To: john snodgrass jcs...@yahoo.com; Janet Dunn j.d...@shaw.ca Cc: transverse myelitis tmic-list@eskimo.com Sent: Thu, September 9, 2010 4:09:59 PM Subject: Re: [TMIC] Medications I have stopped going to my neuro. If there is a change, or something I don't understand, I will go back. He just did not have anything new for me - either meds or advice. My meds now come from my family doctor - who was right with me all the 9 weeks in the hospital calling in specialists for each problem that developed. Also, my other meds come from my Pain Management Doc who has been very helpful. At this point, I really don't need a neuro. John, why not disability? You are in pain quite a bit. I don't know how old you are, but I could understand doing it. Janice From: john snodgrass mailto:jcs...@yahoo.com Sent: Thursday, September 09, 2010 2:57 PM To: Janet Dunn mailto:j.d...@shaw.ca Cc: transverse myelitis mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Medications it really bothers me to hear of these instances of people not getting to the Dr or having to travel vast distances and wait times when I can go to my family Dr on a whim and my neurologist works at the same place as my sister-n-law and is always asking about me and making sure i have appointments every 3 months. however,,going to the Dr doesnt make me any better than i would be if i didnt go at all now. I just get my scripts on time and they watch for other things i reckon. (depression talking) as for working,my boss and superintendant allow me to work but keep suggesting that i go on disability. so does my Dr's. one of my Dr's is a senator in this state and told me today that should i ever not be able to go on that he would go to bat for me. thought that was interesting. I still dont understand why a dr is a senator or why is a senator is a Dr. His name is Ron D Stollings as for hydrocodonei read on one of the med-sites that if you take 2 tylenol with the hydrocodone that it will do better than either one of them by themselves.So I did,and it does. then you have the extended use of acetaminophen effect that might eat your liver or something. Pill time,,,bye bye. From:Janet Dunn j.d...@shaw.ca To: transverse myelitis tmic-list@eskimo.com Sent: Thu, September 9, 2010 10:59:59 AM Subject: [TMIC] Medications Hello to all I find it very interesting the number of us that are on or have taken hydrocodone, especially when it is “said” that opoids do not help with the pain of TM For me personally, I wouldn’t make it if I didn’t have a member or two of the hydrocodone family in my drug repertoire. I take 20mg or 40mg of long acting HCL in the morning, depending on the legs, and have perocdan as a filler for the day. I also take Lyrica, Effexor, Wellbutrin and baclofen. Even today, after 2 days of working 8 hours, and moving around and doing housework, I hurt. I want to lay in bed. But . . . just like the rest of us . . . duty and life are calling. I really appreciate the medication information simply because I live so far away from the nearest neurologist, and the wait time is up to a year, if we can get in at
RE: [TMIC] Unidentified subject!
Yes, I used to feel that way, I really did. However, I took about 3 years of Rolfing and or Massage Therapy treatments - and some of them were very painful. That really helped my legs feel and work better. In fact, I attribute my current ability to walk very well most days to all of the treatments I took. It did cost a bundle, and it did hurt a ton. However, now I don't have that feeling, I can walk quite well, and my right side seems to feel better. Although it has been 6 months since my last massage, and I can feel the thing in my body starting to reach it's tendrils out again and begin to strangle my leg and torso. Time to get going again on the massage thing. We have lost our best rolfer in town, and I am hesitant to try to find another - simply because the treatment is very intense and personal. Try massage, or as has been suggested already - stretching exercises; if you don't use it, somehow, you will lose it. Janet -Original Message- From: jack...@att.blackberry.net [mailto:jack...@att.blackberry.net] Sent: September 10, 2010 7:57 AM To: TMIC Subject: [TMIC] Unidentified subject! My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
Re: [TMIC] Medications
Does it work for seizures?? Dalton From: Janice Nichols jan...@centurytel.net Date: Fri, 10 Sep 2010 10:20:03 -0500 To: Dalton Garis malugss...@gmail.com, j.d...@shaw.ca, tmic-list@eskimo.com, Barbara Alma balmat...@aol.com Subject: Re: [TMIC] Medications Remember you can work up to the amount you need. If you start with the zomby-business, cut back and see if that will work for you.Or, just take it a little before bedtime. That is what I do. Janice From: Dalton Garis mailto:malugss...@gmail.com Sent: Friday, September 10, 2010 5:31 AM To: Janice Nichols mailto:jan...@centurytel.net ; j.d...@shaw.ca ; tmic-list@eskimo.com ; Barbara Alma mailto:balmat...@aol.com Subject: Re: [TMIC] Medications OK; I¹ll suggest it to my neuro. He has been steering me away from the heavy-duty meds because I already take 40 mg of Prozac (have for 20 years) and he is afraid it will zomby-ize me. Dalton From: Janice Nichols jan...@centurytel.net Date: Thu, 9 Sep 2010 22:22:34 -0500 To: j.d...@shaw.ca, tmic-list@eskimo.com, Barbara Alma balmat...@aol.com Subject: Re: [TMIC] Medications Resent-From: tmic-list@eskimo.com Resent-Date: Thu, 9 Sep 2010 20:22:23 -0700 There's that word again - spasms.I swear by baclofen.Had to change the number taken and the times of the day when to take them, but once that was figured out, I could sleep.Sorry to sound like a broken record and I realize that we are all different too.Sure wish it would work on you guys the way it works for me. Janice From: Barbara Alma mailto:balmat...@aol.com Sent: Thursday, September 09, 2010 10:16 PM To: j.d...@shaw.ca ; tmic-list@eskimo.com Subject: Re: [TMIC] Medications Hydrocodone: I personally do not get any relief from my nerve pain, burning/freezing or hyper sensitivity. I take it for other pain, and I also take it to sleep occassionally. Before anyone states that it isn't a sleep aid, I know it, but it allows my other aches and pains to stop hurting enough for me to go to sleep. It does not work on the really bad nights when my nerves or spasms do not settle down though. I may as well have not even bothered. Hugs, Barbara A in Auburn CA -Original Message- From: Janet Dunn j.d...@shaw.ca To: 'transverse myelitis' tmic-list@eskimo.com Sent: Thu, Sep 9, 2010 7:59 am Subject: [TMIC] Medications Hello to all I find it very interesting the number of us that are on or have taken hydrocodone, especially when it is ³said² that opoids do not help with the pain of TM For me personally, I wouldn¹t make it if I didn¹t have a member or two of the hydrocodone family in my drug repertoire. I take 20mg or 40mg of long acting HCL in the morning, depending on the legs, and have perocdan as a filler for the day. I also take Lyrica, Effexor, Wellbutrin and baclofen. Even today, after 2 days of working 8 hours, and moving around and doing housework, I hurt. I want to lay in bed. But . . . just like the rest of us . . . duty and life are calling. I really appreciate the medication information simply because I live so far away from the nearest neurologist, and the wait time is up to a year, if we can get in at all. Then we must travel either 400 miles out of province, or 850 miles to Vancouver. So the information on here is absolutely priceless. However, you cannot have my MasterCard! ;) Janet From: john snodgrass [mailto:] Sent: September 8, 2010 2:09 PM To: Rev. Craig Crossman Cc: transverse myelitis Subject: Re: [TMIC] Neurologist visit I have been taking gabapentin 400mg for the last 2 years 3 times a day. some people say that they can take 1 and it knocks them out. i have never experienced that. perhaps because of the extreem pain. I also take hydrocodone,baclofen, and lorazepam. =
Re: [TMIC] Medications
Doesn't help those of us who are not connected! I drive 250 miles to Montreal, 250 miles back to Freeport,ME I pay $640 every three months Am I connected?? I think Not 11 F
[TMIC] TMIC-unidentified subject
Hi, My right leg is shorter since tm. It seems that while in rehab,I locked my left knee by hyperextending it. This caused it to stretch out the tendon and my left leg is now about 1 inch longer than the right. If they had given me a brace,this would not have happened. My left is the weaker leg,although if I'm walking it's the right one that gives. Cheryl in Easthampton,MA.
Re: [TMIC] Medications
perhaps i should talk to the HR person where I work and see what can be done? - Original Message From: Roger Terese Pratt r.c.pr...@frontier.com To: john snodgrass jcs...@yahoo.com Sent: Thu, September 9, 2010 10:15:57 PM Subject: Re: [TMIC] Medications John, I am on disability and collect both from my employer's disability program and from Social Security Disability. It adds up to about 60% of what I was making. It wouldn't hurt to talk to someone and find out. I've been on disability for about 16 years. My wife works, which helps alot. - Roger in Kennewick, WA - Original Message - From: john snodgrass jcs...@yahoo.com To: Janice Nichols jan...@centurytel.net Cc: transverse myelitis tmic-list@eskimo.com Sent: Thursday, September 9, 2010 1:40:47 PM Subject: Re: [TMIC] Medications I am going to fight this thing as long as i can without stoping working. if i go on disability i will get @ 1400 a month if i am lucky. thats opposed to the @3000 i get working. still paying for my home. From: Janice Nichols jan...@centurytel.net To: john snodgrass jcs...@yahoo.com; Janet Dunn j.d...@shaw.ca Cc: transverse myelitis tmic-list@eskimo.com Sent: Thu, September 9, 2010 4:09:59 PM Subject: Re: [TMIC] Medications I have stopped going to my neuro. If there is a change, or something I don't understand, I will go back. He just did not have anything new for me - either meds or advice. My meds now come from my family doctor - who was right with me all the 9 weeks in the hospital calling in specialists for each problem that developed. Also, my other meds come from my Pain Management Doc who has been very helpful. At this point, I really don't need a neuro. John, why not disability? You are in pain quite a bit. I don't know how old you are, but I could understand doing it. Janice From: john snodgrass Sent: Thursday, September 09, 2010 2:57 PM To: Janet Dunn Cc: transverse myelitis Subject: Re: [TMIC] Medications it really bothers me to hear of these instances of people not getting to the Dr or having to travel vast distances and wait times when I can go to my family Dr on a whim and my neurologist works at the same place as my sister-n-law and is always asking about me and making sure i have appointments every 3 months. however,,going to the Dr doesnt make me any better than i would be if i didnt go at all now. I just get my scripts on time and they watch for other things i reckon. (depression talking) as for working,my boss and superintendant allow me to work but keep suggesting that i go on disability. so does my Dr's. one of my Dr's is a senator in this state and told me today that should i ever not be able to go on that he would go to bat for me. thought that was interesting. I still dont understand why a dr is a senator or why is a senator is a Dr. His name is Ron D Stollings as for hydrocodonei read on one of the med-sites that if you take 2 tylenol with the hydrocodone that it will do better than either one of them by themselves.So I did,and it does. then you have the extended use of acetaminophen effect that might eat your liver or something. Pill time,,,bye bye. From: Janet Dunn j.d...@shaw.ca To: transverse myelitis tmic-list@eskimo.com Sent: Thu, September 9, 2010 10:59:59 AM Subject: [TMIC] Medications Hello to all I find it very interesting the number of us that are on or have taken hydrocodone, especially when it is “said” that opoids do not help with the pain of TM For me personally, I wouldn’t make it if I didn’t have a member or two of the hydrocodone family in my drug repertoire. I take 20mg or 40mg of long acting HCL in the morning, depending on the legs, and have perocdan as a filler for the day. I also take Lyrica, Effexor, Wellbutrin and baclofen. Even today, after 2 days of working 8 hours, and moving around and doing housework, I hurt. I want to lay in bed. But . . . just like the rest of us . . . duty and life are calling. I really appreciate the medication information simply because I live so far away from the nearest neurologist, and the wait time is up to a year, if we can get in at all. Then we must travel either 400 miles out of province, or 850 miles to Vancouver. So the information on here is absolutely priceless. However, you cannot have my MasterCard! ;) Janet From: john snodgrass [mailto:] Sent: September 8, 2010 2:09 PM To: Rev. Craig Crossman Cc: transverse myelitis Subject: Re: [TMIC] Neurologist visit I have been taking gabapentin 400mg for the last 2 years 3 times a day. some people say that they can take 1 and it knocks them out. i have never experienced that. perhaps because of the extreem pain. I also take hydrocodone,baclofen, and lorazepam.
Re: [TMIC] TMIC-unidentified subject
Ain't life just great. Janice From: rn11...@yahoo.com Sent: Friday, September 10, 2010 3:29 PM To: jack...@att.blackberry.net Cc: tmic-list@eskimo.com Subject: [TMIC] TMIC-unidentified subject Hi, My right leg is shorter since tm. It seems that while in rehab,I locked my left knee by hyperextending it. This caused it to stretch out the tendon and my left leg is now about 1 inch longer than the right. If they had given me a brace,this would not have happened. My left is the weaker leg,although if I'm walking it's the right one that gives. Cheryl in Easthampton,MA.