Re: Autism PSA
http://notmercury.blogspot.com/2006/05/you-dont-know-what-its-like.html Excerpt: I've learned that raising a child with autism can be extremely difficult at times, no doubt about it, but I've also come to realize that it is only as difficult as you perceive it to be. It's not the autism that is so overwhelming, it's how parents react to it. ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
http://autismdiva.blogspot.com/2006/05/alison-tepper-singer-and-rett-girls.html http://www.autismvox.com/its-just-not-autism-speaking/ http://autisticbfh.blogspot.com/2006/05/hate-speech-every-day.html Julia ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
[EMAIL PROTECTED] wrote: most snipped American Hippotherapy Association _www.americanhippotherapyassociation.org_ (http://www.americanhippotherapyassociation.org) Not a ton specific to Autism, but awareness and advocacy helps drive things... I didn't realize that therapuetic riding, with which I am somewhat familiar, is considered to be quite separate from hippotherapy. I guess that I have a problem with regarding horses as merely a technique, like using a pool program, when it is the relationship of the 'patient' to the horse that I find contributes greatly to improvement. The best therapy horses and dogs have an innate sensitivity to humans; they are nonjudgemental, patient and persistent, and seem to tailor their responses to the individual person's specific needs or abilities. Debbi who seems to be a bit peckish, despite a tasty luncheon grill-out at the office (mmm, homemade cheesecake...) __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
[EMAIL PROTECTED] wrote: (from my sister) Documentary Film on Autism Stuns Internet Viewers Autism Every Day produced for Autism Speaks. http://www.autismspeaks.org/sponsoredevents/autism_every_day.php http://www.autismvox.com/autism-every-day-the-real-story/ Julia ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
Julia Thompson wrote: [EMAIL PROTECTED] wrote: (from my sister) Documentary Film on Autism Stuns Internet Viewers Autism Every Day produced for Autism Speaks. http://www.autismspeaks.org/sponsoredevents/autism_every_day.php http://www.autismvox.com/autism-every-day-the-real-story/ Julia Sorry, should have added that you ought to read at least the first 6 comments, as well. Julia ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
http://www.autismvox.com/autism-every-day-the-real-story/ Julia Sorry, should have added that you ought to read at least the first 6 comments, as well. Julia Thanks for the link Julia. Watching the clip I was hoping there would be more discussion of a point that was barely touched on- integration/expectations of society. I figured there was only so much that could be covered in one PSA. Having completed a year of my doctorate work (and delving once again into some of the developmental/ neurological/systemic conditions that individual may have I am happy to see some educational material coming out for parents and youth regarding various conditions. Educational material is getting (slowly) researched. Some examples that come to mind are the StarBright program for youths with cystic fibrosis and the Arthritis Self-Management Program (ASMP). I am not aware of much in there literature regarding Autism, but that doesn't mean it isn't being developed. Relating to the comment about the autistic child who bikes 5 miles with his dad... this is great to hear. Emerging awareness about sporting options for children with disabilities seems to be on the verge of becoming more mainstream (although I may be optimistic considering the budget rhetoric around the country about cutting back public rec programs). I was amazed that hippotherapy programs are commonly subsidized through donations for relatively decent priced participation (and in our area/state I thought there was one program and there are more like 8 to 12). _http://www.ncpad.org/index.php_ (http://www.ncpad.org/index.php) National Center on Physical Activity and Disability American Hippotherapy Association _www.americanhippotherapyassociation.org_ (http://www.americanhippotherapyassociation.org) Not a ton specific to Autism, but awareness and advocacy helps drive things. I look at people like you an my sister and know over time things will be better for kids with Autism. Dee In ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
[EMAIL PROTECTED] wrote: http://www.autismvox.com/autism-every-day-the-real-story/ Julia Sorry, should have added that you ought to read at least the first 6 comments, as well. Julia Thanks for the link Julia. Watching the clip I was hoping there would be more discussion of a point that was barely touched on- integration/expectations of society. I figured there was only so much that could be covered in one PSA. Having completed a year of my doctorate work (and delving once again into some of the developmental/ neurological/systemic conditions that individual may have I am happy to see some educational material coming out for parents and youth regarding various conditions. Educational material is getting (slowly) researched. Some examples that come to mind are the StarBright program for youths with cystic fibrosis and the Arthritis Self-Management Program (ASMP). I am not aware of much in there literature regarding Autism, but that doesn't mean it isn't being developed. Relating to the comment about the autistic child who bikes 5 miles with his dad... this is great to hear. Emerging awareness about sporting options for children with disabilities seems to be on the verge of becoming more mainstream (although I may be optimistic considering the budget rhetoric around the country about cutting back public rec programs). I was amazed that hippotherapy programs are commonly subsidized through donations for relatively decent priced participation (and in our area/state I thought there was one program and there are more like 8 to 12). _http://www.ncpad.org/index.php_ (http://www.ncpad.org/index.php) National Center on Physical Activity and Disability American Hippotherapy Association _www.americanhippotherapyassociation.org_ (http://www.americanhippotherapyassociation.org) Not a ton specific to Autism, but awareness and advocacy helps drive things. I look at people like you an my sister and know over time things will be better for kids with Autism. Dee I have more links. I'll try to post several at a time rather than one at a time. I haven't watched the video yet, but I plan to by the end of the day tomorrow. Julia ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
http://hardwonwisdom.blogspot.com/2006/05/choice.html R.B. is a great mama. http://ballastexistenz.autistics.org/?p=105 Comments, too. I'm net-friends with the guy who left comments 16 and 17, btw. http://www.kristinachew.com/autism/2006/05/autism_every_da.html Kristina is one incredibly good mama. And you'll want to read the comment by mom-nos. http://www.autismvox.com/thanks-for-the-pity-but/ Probably more later. Julia ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
http://susansenator.com/blog/2006/05/its-life-stupid.html I'm planning to buy the book tomorrow night, BTW. Julia ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
On 17/05/2006, at 5:24 AM, Dave Land wrote: On May 16, 2006, at 8:20 AM, [EMAIL PROTECTED] wrote: Documentary Film on Autism Stuns Internet Viewers Autism Every Day produced for Autism Speaks. This is very difficult to watch: my heart is breaking for these parents and their children... I've helped with autistic kids a few times, most recently while in Albany, Western Australia where I helped at a Christmas party. I have the utmost respect for those who working with people with learning problems, social difficulties or mental and physical handicaps on a daily basis, and even more so for the parents who genuinely engage and sacrifice to make life as good as possible for their children in that situation (and not all do, by any means). I think it's impossible for me to say this without pissing somebody off -- including myself -- but watching this reminded me that there are worse things than having your child die of brain cancer. There's always something worse. But not at the time. A lot easier standing outside looking in, than living it. Charlie ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
On May 17, 2006, at 12:27 AM, Charlie Bell wrote: On 17/05/2006, at 5:24 AM, Dave Land wrote: I think it's impossible for me to say this without pissing somebody off -- including myself -- but watching this reminded me that there are worse things than having your child die of brain cancer. There's always something worse. But not at the time. A lot easier standing outside looking in, than living it. Yes. I'm all emotional tonight. I was having an IM conversation with a coworker just now, and he closed with goodnight moon (he's a new dad). I related that on Kevin's headstone is a carving of the bunny from that book. I took a digital picture of a plush bunny that Kevin especially loved and turned it into line art when we designed the headstone for him and Peggy's sister who died some 20 years or so ago. Got me all weepy thinking about it. Parents should have to put a bunny on their kid's headstone. Sunday, Peggy and her mom went up to the cemetery to visit the graves of their firstborn children on Mother's Day... Bittersweet hardly begins to describe it. The world can be mighty fucked up. Some people call it sin. Some people just say it just is, and try to mind their own isness. Goodnight Moon, Dave ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
On 17/05/2006, at 10:39 AM, Dave Land wrote: Sunday, Peggy and her mom went up to the cemetery to visit the graves of their firstborn children on Mother's Day... Bittersweet hardly begins to describe it. I hear you. The world can be mighty fucked up. That it can. Some people call it sin. If it's 'cause of other people, it's evil. But yes. Some people just say it just is, and try to mind their own isness. *wry smile* Thanks for sharing. Charlie ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
On 5/16/06, Dave Land [EMAIL PROTECTED] wrote: On May 16, 2006, at 8:20 AM, [EMAIL PROTECTED] wrote: Documentary Film on Autism Stuns Internet Viewers Autism Every Day produced for Autism Speaks. This is very difficult to watch: my heart is breaking for these parents and their children... I think it's impossible for me to say this without pissing somebody off -- including myself -- but watching this reminded me that there are worse things than having your child die of brain cancer. Dave I'm curious- where are you guys getting the file from? The linked Autism Speaks page doesn't work- nothing downloads. ~maru ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Autism PSA
(from my sister) Documentary Film on Autism Stuns Internet Viewers Autism Every Day produced for Autism Speaks. From the Autism Speaks Website: Autism Every Day is a new film produced by Lauren Thierry and Jim Watkins of October Group and Eric Solomon of Milestone Video. The film was screened at A New Decade for Autism, http://tinyurl.com/j7qsm , a fundraising event held May 9, 2006 in New York City, and subsequently broadcast by Don Imus on his show on MSNBC. http://www.autismspeaks.org/sponsoredevents/autism_every_day.php Just after the documentary Autism Every Day aired on the Don Imus show, early Wednesday, May 10, around 7 am eastern, stunned reactions from media tracking autism parents began to appear on support discussion lists on the internet. First reaction came from Bobbie Manning from A-CHAMP, who alerted the other EOHarm list members simply saying, The best PSA I have ever seen. Amazing!! Then D., another list member added I've just finished crying. I might jump on the Autism Speaks bandwagon. . . Now this was getting interesting! Another parent, an activist added, To feel the impact of this is unlike any other segment I have seen. . . so many examples in such a short time. . .so much was covered - behaviors, finances, dreams lost, worries of the future...and all from the parents and children living it, not from reporters. . .Is there a way we can get a copy of this to present to legislators, educators, therapists, etc? . . .it is a mirror reflecting our lives. I am a video guy and this is the best I have ever seen and the only thing that shows what we as parents are going though, added parent J. who had the good fortune of seeing it that day, too. From list member A.: I was in a puddle of tears and had real trouble getting myself together to get the kids off to school. I think it's excessively hard for those of us to watch our lives in that fashion but extremely necessary for the rest of the population to see. . . Shock and awe may take on a new meaning. Warning other parents who had not yet seen it, she said in a later post, You will probably break down crying hysterically. I was not expecting this reaction or I would not have watched it with my kids next to me. My girls came running to hug their incapacitated mother. My ASD son somehow realizing it was about him came to watch a small clip. Prepare yourself. By now the list was abuzz with questions, when will it air again?, will they put it on a website? Bits and pieces about the project started reaching the list. Katie Wright, the daughter of Autism Speaks Co-founder Bob Wright, was in the film (and it turns out, a lurking member of that list). Another list member, Michele Iallonardi, announced that her family too, was a part of the film. Autism Every Day was striking even closer to home than the regular members had imagined. Not until Sunday did a parent announce that the documentary was on the Autism Speaks website. http://www.autismspeaks.org/sponsoredevents/autism_every_day.php Positive reactions, an understatement, continued to pour in. OMG! . . . This is heart wrenching! I cried my eyes out. I have forwarded this to everyone in my e-mailbox. WOW, said R. Unbelievable. Someone has captured autism in 13 minutes. Someone has shown what autism is all about. I am so grateful. I am so thankful, remarked Lisa Ackerman of TACA, This is the best mothers day gift to me ever. . . Note: The SAR invites readers to send in their comments after viewing the film. [EMAIL PROTECTED] To join the Evidence of Harm list, see information listed below. -LS ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Re: Autism PSA
On May 16, 2006, at 8:20 AM, [EMAIL PROTECTED] wrote: Documentary Film on Autism Stuns Internet Viewers Autism Every Day produced for Autism Speaks. This is very difficult to watch: my heart is breaking for these parents and their children... I think it's impossible for me to say this without pissing somebody off -- including myself -- but watching this reminded me that there are worse things than having your child die of brain cancer. Dave ___ http://www.mccmedia.com/mailman/listinfo/brin-l
