[CMLHope] posting my blood panel results today
WBC 6.2 range 3.8-10.8 thousand/ul RBC 4.33 range 3.80-5.10 milliion/ul Hemoglobin 13.5 range 11.7-15.5 g/dl Hematocrit 41.4 range 35.0-45.0% MCV 95.5 range 80.0-100.0 fl MCH 31.2 range 27.0-33.0 pg MCHC 32.c range 32.0-36.0 g/dl RDW 13.7 range 11.0-15.0% Platelet Count 257 range 140-400 thousand/ul Absolute Neutrophils 3360 range 1500-7600 cells/ul Absolute Lymphocytes 2362 range 850-3900/cells/ul Absolute Monocytes 316 range 200-950 cells/ul Absolute Eosinophils 130 range 15-5-- cells/ul Absolute Basophils 31 range 0-200 cells/ul Cholesterol was real high Sugar was 119 a little high Creatinine was a little high 0.99 range 0.60-0.93 mg/dl Everything else was normal Great report best I've had in a long time Blessings Jeanie<3 In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time, cinem...@yahoo.com writes: your lucky you get the gleevec for $35. a month larry,good luck in keeping that as low as you can. i pay $3232. a month with mvp...rob.rhggoodrich@ yahoo.com From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Saturday, May 4, 2013 11:53 AM Subject: Re: [CMLHope] insurance coverage Hi Larry, call the company right away and ask if they cover it. Most are very helpful. Jeanie<3 In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight Time, la...@taper.com writes: Hello group I have a question . my current insurance is united health care it cost 35.00 a month for gleevec . my company is thinking of switching to anthem blue cross , I know there are different plans but is anyone on gleevec using anthem , does it cover the gleevec ??? just trying to be prepared . Larry Lex , ky God bless all the warriors . -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googl egroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] posting my blood panel results today
Hi Jeanie, your test results have me beat by a mile and I started Gleevec on Jan. 9th 2000 at 300 mg. each day. Here are some of my results. WBC 5.9 RBC 3.71 L Hemoglobin 12.5 L Hematocrit 37.3 L MCV 33.7 MCHC 33.5 Platelets 176 RDW 13.5 Absolute Neutrophils 3.4 Absolute Lymphocytes 1.8 Glucose 95 Blood Urea Nitrogen 18 Calcium 8.7 Protein Total 6.9 Albumin 4.2 ALT 31 AST 39 H this the 3rd time that it's been this high in over 13 years. It was 51 a few months ago but the Doctor told me not to worry about it. Sodium 140 Chloride 105 Potassium 3.9 Creatinine 1.44 H it's been between 1.1 to 1.4 going back to 1997 before I found out I had CML. I found out that I had CML two weeks before Christmas 1998. I would like to get my RBC higher but my Doctor keeps telling me to just leave it be. Like they say if it's not broken don't try to fix it. They was a time that when I first started taking Gleevec my WBC dropped to 2.6 and told me not to worry. Dam it's hard not to worry when things like this happen. They see these results on other people but we don't so it's hard to compare what is good and what's back. Anyway your tests look good so keep what ever your doing and don't change anything. Take Care, Greenie In a message dated 5/14/2013 8:11:40 A.M. Eastern Daylight Time, icandoall...@aol.com writes: WBC 6.2 range 3.8-10.8 thousand/ul RBC 4.33 range 3.80-5.10 milliion/ul Hemoglobin 13.5 range 11.7-15.5 g/dl Hematocrit 41.4 range 35.0-45.0% MCV 95.5 range 80.0-100.0 fl MCH 31.2 range 27.0-33.0 pg MCHC 32.c range 32.0-36.0 g/dl RDW 13.7 range 11.0-15.0% Platelet Count 257 range 140-400 thousand/ul Absolute Neutrophils 3360 range 1500-7600 cells/ul Absolute Lymphocytes 2362 range 850-3900/cells/ul Absolute Monocytes 316 range 200-950 cells/ul Absolute Eosinophils 130 range 15-5-- cells/ul Absolute Basophils 31 range 0-200 cells/ul Cholesterol was real high Sugar was 119 a little high Creatinine was a little high 0.99 range 0.60-0.93 mg/dl Everything else was normal Great report best I've had in a long time Blessings Jeanie<3 In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time, cinem...@yahoo.com writes: your lucky you get the gleevec for $35. a month larry,good luck in keeping that as low as you can. i pay $3232. a month with mvp...rob.rhggoodrich@ yahoo.com From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Saturday, May 4, 2013 11:53 AM Subject: Re: [CMLHope] insurance coverage Hi Larry, call the company right away and ask if they cover it. Most are very helpful. Jeanie<3 In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight Time, la...@taper.com writes: Hello group I have a question . my current insurance is united health care it cost 35.00 a month for gleevec . my company is thinking of switching to anthem blue cross , I know there are different plans but is anyone on gleevec using anthem , does it cover the gleevec ??? just trying to be prepared . Larry Lex , ky God bless all the warriors . -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/gr
Re: [CMLHope] posting my blood panel results today
Hi Jeannie, All I can say is WOW!!! You sure that you have Leukemia? With counts like that it sure doesn't show. Don't worry about your sugar counts just try and eat more sensibly, and that includes your Cholesterol As Far as your Creatinine, it is fine don't worry about it. Your doing remarkably Great! I now present you with the "{{Robes of The Survivor}}" Wear them proudly. I also now share my Number 1 rating in The Zavie's Zero Club with you. Do you know what that is? If not then just let me know and I will explain it to you. By the way, you have proven exactly what the menaing of 18's really are. 18's, Marty On Tue, May 14, 2013 at 8:11 AM, wrote: > ** > WBC 6.2 range 3.8-10.8 thousand/ul > RBC 4.33 range 3.80-5.10 milliion/ul > Hemoglobin 13.5 range 11.7-15.5 g/dl > Hematocrit 41.4 range 35.0-45.0% > MCV 95.5 range 80.0-100.0 fl > MCH 31.2 range 27.0-33.0 pg > MCHC 32.c range 32.0-36.0 g/dl > RDW 13.7 range 11.0-15.0% > Platelet Count 257 range 140-400 thousand/ul > Absolute Neutrophils 3360 range 1500-7600 cells/ul > Absolute Lymphocytes 2362 range 850-3900/cells/ul > Absolute Monocytes 316 range 200-950 cells/ul > Absolute Eosinophils 130 range 15-5-- cells/ul > Absolute Basophils 31 range 0-200 cells/ul > Cholesterol was real high > Sugar was 119 a little high > Creatinine was a little high 0.99 range 0.60-0.93 mg/dl > Everything else was normal > Great report best I've had in a long time > Blessings > Jeanie<3 > > In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time, > cinem...@yahoo.com writes: > > your lucky you get the gleevec for $35. a month larry,good luck in > keeping that as low as you can. > i pay $3232. a month with mvp...rob.rhggoodrich@ yahoo.com > > *From:* "icandoall...@aol.com" > *To:* cmlhope@googlegroups.com > *Sent:* Saturday, May 4, 2013 11:53 AM > *Subject:* Re: [CMLHope] insurance coverage > > Hi Larry, call the company right away and ask if they cover it. Most > are very helpful. > Jeanie<3 > > In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight Time, > la...@taper.com writes: > > Hello group I have a question . my current insurance is united health > care it cost 35.00 a month for gleevec . my company is thinking of > switching to anthem blue cross , I know there are different plans but is > anyone on gleevec using anthem , does it cover the gleevec ??? just > trying to be prepared . > > Larry > Lex , ky > > God bless all the warriors . > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe fr
Re: [CMLHope] posting my blood panel results today
I am so happy for you Jeannie! Good blood work make sme smile!Beth :) -Original Message- From: Marty Gartenberg To: cmlhope Sent: Tue, May 14, 2013 10:24 am Subject: Re: [CMLHope] posting my blood panel results today Hi Jeannie, All I can say is WOW!!! You sure that you have Leukemia? With counts like that it sure doesn't show. Don't worry about your sugar counts just try and eat more sensibly, and that includes your Cholesterol As Far as your Creatinine, it is fine don't worry about it. Your doing remarkably Great! I now present you with the "{{Robes of The Survivor}}" Wear them proudly. I also now share my Number 1 rating in The Zavie's Zero Club with you. Do you know what that is? If not then just let me know and I will explain it to you. By the way, you have proven exactly what the menaing of 18's really are. 18's, Marty On Tue, May 14, 2013 at 8:11 AM, wrote: WBC 6.2 range 3.8-10.8 thousand/ul RBC 4.33 range 3.80-5.10 milliion/ul Hemoglobin 13.5 range 11.7-15.5 g/dl Hematocrit 41.4 range 35.0-45.0% MCV 95.5 range 80.0-100.0 fl MCH 31.2 range 27.0-33.0 pg MCHC 32.c range 32.0-36.0 g/dl RDW 13.7 range 11.0-15.0% Platelet Count 257 range 140-400 thousand/ul Absolute Neutrophils 3360 range 1500-7600 cells/ul Absolute Lymphocytes 2362 range 850-3900/cells/ul Absolute Monocytes 316 range 200-950 cells/ul Absolute Eosinophils 130 range 15-5-- cells/ul Absolute Basophils 31 range 0-200 cells/ul Cholesterol was real high Sugar was 119 a little high Creatinine was a little high 0.99 range 0.60-0.93 mg/dl Everything else was normal Great report best I've had in a long time Blessings Jeanie<3 In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time, cinem...@yahoo.com writes: your lucky you get the gleevec for $35. a month larry,good luck in keeping that as low as you can. i pay $3232. a month with mvp...rob.rhggoodrich@ yahoo.com From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Saturday, May 4, 2013 11:53 AM Subject: Re: [CMLHope] insurance coverage Hi Larry, call the company right away and ask if they cover it. Most are very helpful. Jeanie<3 In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight Time, la...@taper.com writes: Hello group I have a question . my current insurance is united health care it cost 35.00 a month for gleevec . my company is thinking of switching to anthem blue cross , I know there are different plans but is anyone on gleevec using anthem , does it cover the gleevec ??? just trying to be prepared . Larry Lex , ky God bless all the warriors . -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To po
[CMLHope] Re: insurance coverage
> > Larry: I have Blue Cross Anthem and have for several years. My co-pay is > 25$ a month for my Gleevec. They have been real good about covering my > tests and drugs. Course we have a high deductible and I think my husband > said my insurance costs &1100 a month now even with a high deductible. We > own a small business and my husband starts negotiations each September for > the next year's insurance. He has tried looking into United Health Care > and some of the other insurances, but they refuse to pay for the Gleevec. > And, with ObamaCare coming into play soon, I see in the news that Cancer > Drugs such as Gleevec are going up and some insurances are requiring you to > put up 30% of the cost of the drug each month (differing in each state). I > told my husband that expect to get a letter one day in the future saying I > was going to be expected to pay a certain amount a month for my Gleevec > instead of just the $25 co-pay. One other thing, they require me to > order it through their mail order pharmacy and I have had no problems with > receiving it this way. The Pharmacy always gives me a reminder call every > 3 weeks letting me know it's close to my time to order my meds. > God Bless, Suzieq > > > > God bless all the warriors . > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Re: posting my blood panel results today
Jeanie: So glad to hear these test results. Just awesome. I remember your past struggles. I go tomorrow for my sixth month Doctor visit. Am curious to see if mine are still stable being on 200mgs instead of the 400. Will be hoping for these good blood counts as yours. :) God Bless, Suzieq -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: posting my blood panel results today
HI Suzieq, I went to Chicago on May 1st to see my Doctor, get my blood work and pickup my med's. My son and is wife and my 7 month old grandson picked me up at Midway. Doctor told me that I need not come back for (1) year only to pickup same. She said if I want to I could see a cancer Doctor here in Fort Myers once a year that way I would be getting my month work every 6 months instead of every 3 months. It's up to me. So that's good news and they put me into another study with 2 other people plus some in other countries. Good to here your doing O. K. Greenie In a message dated 5/14/2013 4:43:53 P.M. Eastern Daylight Time, sheila.a.wat...@gmail.com writes: Jeanie: So glad to hear these test results. Just awesome. I remember your past struggles. I go tomorrow for my sixth month Doctor visit. Am curious to see if mine are still stable being on 200mgs instead of the 400. Will be hoping for these good blood counts as yours. :) God Bless, Suzieq -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Re: Arthritis ?
Jim: I had this discussion with my Chiropractor not to long ago, even carried him the drug information that Novartis sent to me about all the side effects. The reason for me showing this to him, he has treated me for some time now saying that I had arthritis that has set up really bad in both Sacroiliac Joints and now I have it in a joint right behind the second toe on the left foot, and am beginning to think it's beginning to set up some in the right hand. We think that the Gleevec helped to "expedite" the arthritis along. I will turn 60 in September, so I expected to suffer later on in life, not this early. There have been times I can't even stand up straight. I have an appointment on June 3rd with an orthopedic surgeon to get his opinion about my lower back problems. I suffer a lot from sciatica going down the back of both legs at times, and lately I've been getting around with a cane. I discussed the "arthritis" problem at my last doctor visit at the cancer center. She said that they have had some patients who have had to go through chemotherapy and noticed that their arthritis lessened while on Chemo, but as soon as they finished with the drugs, the arthritis pain came right back. I think I even asked about "Celebrex", but seems doctors are hesitant about prescribing that. Right now, my regiment is 325/5 Hydrocodone along with Advil Liquid Gels. I hate taking drugs, but the stabbing pains at night into my hip almost makes me cry, so go ahead and take it for the relief. Thanks, Suzieq -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: posting my blood panel results today
GReenie, glad your cml is doing so well. What new study are you in? Beth -Original Message- From: Myvety2k To: cmlhope Sent: Tue, May 14, 2013 3:56 pm Subject: Re: [CMLHope] Re: posting my blood panel results today HI Suzieq, I went to Chicago on May 1st to see my Doctor, get my blood work and pickup my med's. My son and is wife and my 7 month old grandson picked me up at Midway. Doctor told me that I need not come back for (1) year only to pickup same. She said if I want to I could see a cancer Doctor here in Fort Myers once a year that way I would be getting my month work every 6 months instead of every 3 months. It's up to me. So that's good news and they put me into another study with 2 other people plus some in other countries. Good to here your doing O. K. Greenie In a message dated 5/14/2013 4:43:53 P.M. Eastern Daylight Time, sheila.a.wat...@gmail.com writes: Jeanie: So glad to hear these test results. Just awesome. I remember your past struggles. I go tomorrow for my sixth month Doctor visit. Am curious to see if mine are still stable being on 200mgs instead of the 400. Will be hoping for these good blood counts as yours. :) God Bless, Suzieq -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: posting my blood panel results today
Good luck suzie Q. I will send god thoughts. I so appreciate that my cml warrior friends are staying close to one another throught the ups and downs. It's beautiful here today, sunny and almost 90 in Chicago! Take care, Beth -Original Message- From: Suzieq To: cmlhope Sent: Tue, May 14, 2013 3:43 pm Subject: [CMLHope] Re: posting my blood panel results today Jeanie: So glad to hear these test results. Just awesome. I remember your past struggles. I go tomorrow for my sixth month Doctor visit. Am curious to see if mine are still stable being on 200mgs instead of the 400. Will be hoping for these good blood counts as yours. :) God Bless, Suzieq -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: posting my blood panel results today
Hi Suzieq, I hope everything is great for you also. It's been a long time since I had that good of a blood result. Blessings, Jeanie<3 In a message dated 5/14/2013 4:43:49 P.M. Eastern Daylight Time, sheila.a.wat...@gmail.com writes: Jeanie: So glad to hear these test results. Just awesome. I remember your past struggles. I go tomorrow for my sixth month Doctor visit. Am curious to see if mine are still stable being on 200mgs instead of the 400. Will be hoping for these good blood counts as yours. :) God Bless, Suzieq -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] posting my blood panel results today
Thanks Marty, My son asks me that all the time. I have had some awful battles but they seem to be behind me now, however I know from experience that CML can rear it's ugly head when you least expect it. I will wear the robes of the Survivor and will share in Zavie's club, yes I knew Zavie and we lost a great warrior. Blessing, Jeanie<3 In a message dated 5/14/2013 11:24:21 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Jeannie, All I can say is WOW!!! You sure that you have Leukemia? With counts like that it sure doesn't show. Don't worry about your sugar counts just try and eat more sensibly, and that includes your Cholesterol As Far as your Creatinine, it is fine don't worry about it. Your doing remarkably Great! I now present you with the "{{Robes of The Survivor}}" Wear them proudly. I also now share my Number 1 rating in The Zavie's Zero Club with you. Do you know what that is? If not then just let me know and I will explain it to you. By the way, you have proven exactly what the menaing of 18's really are. 18's, Marty On Tue, May 14, 2013 at 8:11 AM, <_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com) > wrote: WBC 6.2 range 3.8-10.8 thousand/ul RBC 4.33 range 3.80-5.10 milliion/ul Hemoglobin 13.5 range 11.7-15.5 g/dl Hematocrit 41.4 range 35.0-45.0% MCV 95.5 range 80.0-100.0 fl MCH 31.2 range 27.0-33.0 pg MCHC 32.c range 32.0-36.0 g/dl RDW 13.7 range 11.0-15.0% Platelet Count 257 range 140-400 thousand/ul Absolute Neutrophils 3360 range 1500-7600 cells/ul Absolute Lymphocytes 2362 range 850-3900/cells/ul Absolute Monocytes 316 range 200-950 cells/ul Absolute Eosinophils 130 range 15-5-- cells/ul Absolute Basophils 31 range 0-200 cells/ul Cholesterol was real high Sugar was 119 a little high Creatinine was a little high 0.99 range 0.60-0.93 mg/dl Everything else was normal Great report best I've had in a long time Blessings Jeanie<3 In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time, _cinemax8@yahoo.com_ (mailto:cinem...@yahoo.com) writes: your lucky you get the gleevec for $35. a month larry,good luck in keeping that as low as you can. i pay $3232. a month with mvp...rob.rhggoodrich@ _yahoo.com_ (http://yahoo.com/) From: "_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com) " <_ICAND OALLTTC@aol.com_ (mailto:icandoall...@aol.com) > To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Saturday, May 4, 2013 11:53 AM Subject: Re: [CMLHope] insurance coverage Hi Larry, call the company right away and ask if they cover it. Most are very helpful. Jeanie<3 In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight Time, _larry@taper.com_ (mailto:la...@taper.com) writes: Hello group I have a question . my current insurance is united health care it cost 35.00 a month for gleevec . my company is thinking of switching to anthem blue cross , I know there are different plans but is anyone on gleevec using anthem , does it cover the gleevec ??? just trying to be prepared . Larry Lex , ky God bless all the warriors . -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ---
Re: [CMLHope] posting my blood panel results today
Hi Greenie and thanks so much for sharing. I have had the counts go up and down just like yours. I like yogurt and honey; need to cut down on the honey hehe. I like the raw honey on toast and in yogurt. I don't buy the sweet kind of yogurt; just plain. I eat healthy and walk daily; just easy walking nothing hard. I love to go on cruises and go about 3 times a year thanks to my daughters. Blessings, Jeanie<3 In a message dated 5/14/2013 9:12:55 A.M. Eastern Daylight Time, myvet...@aol.com writes: Hi Jeanie, your test results have me beat by a mile and I started Gleevec on Jan. 9th 2000 at 300 mg. each day. Here are some of my results. WBC 5.9 RBC 3.71 L Hemoglobin 12.5 L Hematocrit 37.3 L MCV 33.7 MCHC 33.5 Platelets 176 RDW 13.5 Absolute Neutrophils 3.4 Absolute Lymphocytes 1.8 Glucose 95 Blood Urea Nitrogen 18 Calcium 8.7 Protein Total 6.9 Albumin 4.2 ALT 31 AST 39 H this the 3rd time that it's been this high in over 13 years. It was 51 a few months ago but the Doctor told me not to worry about it. Sodium 140 Chloride 105 Potassium 3.9 Creatinine 1.44 H it's been between 1.1 to 1.4 going back to 1997 before I found out I had CML. I found out that I had CML two weeks before Christmas 1998. I would like to get my RBC higher but my Doctor keeps telling me to just leave it be. Like they say if it's not broken don't try to fix it. They was a time that when I first started taking Gleevec my WBC dropped to 2.6 and told me not to worry. Dam it's hard not to worry when things like this happen. They see these results on other people but we don't so it's hard to compare what is good and what's back. Anyway your tests look good so keep what ever your doing and don't change anything. Take Care, Greenie In a message dated 5/14/2013 8:11:40 A.M. Eastern Daylight Time, icandoall...@aol.com writes: WBC 6.2 range 3.8-10.8 thousand/ul RBC 4.33 range 3.80-5.10 milliion/ul Hemoglobin 13.5 range 11.7-15.5 g/dl Hematocrit 41.4 range 35.0-45.0% MCV 95.5 range 80.0-100.0 fl MCH 31.2 range 27.0-33.0 pg MCHC 32.c range 32.0-36.0 g/dl RDW 13.7 range 11.0-15.0% Platelet Count 257 range 140-400 thousand/ul Absolute Neutrophils 3360 range 1500-7600 cells/ul Absolute Lymphocytes 2362 range 850-3900/cells/ul Absolute Monocytes 316 range 200-950 cells/ul Absolute Eosinophils 130 range 15-5-- cells/ul Absolute Basophils 31 range 0-200 cells/ul Cholesterol was real high Sugar was 119 a little high Creatinine was a little high 0.99 range 0.60-0.93 mg/dl Everything else was normal Great report best I've had in a long time Blessings Jeanie<3 In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time, cinem...@yahoo.com writes: your lucky you get the gleevec for $35. a month larry,good luck in keeping that as low as you can. i pay $3232. a month with mvp...rob.rhggoodrich@ yahoo.com From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Saturday, May 4, 2013 11:53 AM Subject: Re: [CMLHope] insurance coverage Hi Larry, call the company right away and ask if they cover it. Most are very helpful. Jeanie<3 In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight Time, la...@taper.com writes: Hello group I have a question . my current insurance is united health care it cost 35.00 a month for gleevec . my company is thinking of switching to anthem blue cross , I know there are different plans but is anyone on gleevec using anthem , does it cover the gleevec ??? just trying to be prepared . Larry Lex , ky God bless all the warriors . -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups
Re: [CMLHope] Re: posting my blood panel results today
Hi Beth, Northwestern University and it's supported by Novartis. Greenie In a message dated 5/14/2013 6:15:54 P.M. Eastern Daylight Time, bkbar...@aol.com writes: GReenie, glad your cml is doing so well. What new study are you in? Beth -Original Message- From: Myvety2k To: cmlhope Sent: Tue, May 14, 2013 3:56 pm Subject: Re: [CMLHope] Re: posting my blood panel results today HI Suzieq, I went to Chicago on May 1st to see my Doctor, get my blood work and pickup my med's. My son and is wife and my 7 month old grandson picked me up at Midway. Doctor told me that I need not come back for (1) year only to pickup same. She said if I want to I could see a cancer Doctor here in Fort Myers once a year that way I would be getting my month work every 6 months instead of every 3 months. It's up to me. So that's good news and they put me into another study with 2 other people plus some in other countries. Good to here your doing O. K. Greenie In a message dated 5/14/2013 4:43:53 P.M. Eastern Daylight Time, _sheila.a.watson@gmail.com_ (mailto:sheila.a.wat...@gmail.com) writes: Jeanie: So glad to hear these test results. Just awesome. I remember your past struggles. I go tomorrow for my sixth month Doctor visit. Am curious to see if mine are still stable being on 200mgs instead of the 400. Will be hoping for these good blood counts as yours. :) God Bless, Suzieq -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] posting my blood panel results today
Hi Jeanie, I was born in Chicago Southshore Hosp. my family moved to Hobart, IN. 2 years later and I lived in the area most of my life except 4 years in Springfield, MO. Moved back to Porter, IN. two miles from Lake Michigan but the winter was hard on me so we moved again to South Fort Myers, FL. a little over 2 years ago. My much, much, older brother lives in Naples, FL. I miss my son and his family but I just can't take the cold weather. I was in a study at Northwestern back in 2000 with 200 people nation way before Gleevec was approved by the FDA. Their was 8 of us I was the only one from Indiana and the others were from the Chicago area. So I was a very lucky person to get picked back then. Gleevec was called STI571 back then, It saved my life. You take care of yourself, Greenie In a message dated 5/14/2013 6:37:06 P.M. Eastern Daylight Time, icandoall...@aol.com writes: Hi Greenie and thanks so much for sharing. I have had the counts go up and down just like yours. I like yogurt and honey; need to cut down on the honey hehe. I like the raw honey on toast and in yogurt. I don't buy the sweet kind of yogurt; just plain. I eat healthy and walk daily; just easy walking nothing hard. I love to go on cruises and go about 3 times a year thanks to my daughters. Blessings, Jeanie<3 In a message dated 5/14/2013 9:12:55 A.M. Eastern Daylight Time, myvet...@aol.com writes: Hi Jeanie, your test results have me beat by a mile and I started Gleevec on Jan. 9th 2000 at 300 mg. each day. Here are some of my results. WBC 5.9 RBC 3.71 L Hemoglobin 12.5 L Hematocrit 37.3 L MCV 33.7 MCHC 33.5 Platelets 176 RDW 13.5 Absolute Neutrophils 3.4 Absolute Lymphocytes 1.8 Glucose 95 Blood Urea Nitrogen 18 Calcium 8.7 Protein Total 6.9 Albumin 4.2 ALT 31 AST 39 H this the 3rd time that it's been this high in over 13 years. It was 51 a few months ago but the Doctor told me not to worry about it. Sodium 140 Chloride 105 Potassium 3.9 Creatinine 1.44 H it's been between 1.1 to 1.4 going back to 1997 before I found out I had CML. I found out that I had CML two weeks before Christmas 1998. I would like to get my RBC higher but my Doctor keeps telling me to just leave it be. Like they say if it's not broken don't try to fix it. They was a time that when I first started taking Gleevec my WBC dropped to 2.6 and told me not to worry. Dam it's hard not to worry when things like this happen. They see these results on other people but we don't so it's hard to compare what is good and what's back. Anyway your tests look good so keep what ever your doing and don't change anything. Take Care, Greenie In a message dated 5/14/2013 8:11:40 A.M. Eastern Daylight Time, icandoall...@aol.com writes: WBC 6.2 range 3.8-10.8 thousand/ul RBC 4.33 range 3.80-5.10 milliion/ul Hemoglobin 13.5 range 11.7-15.5 g/dl Hematocrit 41.4 range 35.0-45.0% MCV 95.5 range 80.0-100.0 fl MCH 31.2 range 27.0-33.0 pg MCHC 32.c range 32.0-36.0 g/dl RDW 13.7 range 11.0-15.0% Platelet Count 257 range 140-400 thousand/ul Absolute Neutrophils 3360 range 1500-7600 cells/ul Absolute Lymphocytes 2362 range 850-3900/cells/ul Absolute Monocytes 316 range 200-950 cells/ul Absolute Eosinophils 130 range 15-5-- cells/ul Absolute Basophils 31 range 0-200 cells/ul Cholesterol was real high Sugar was 119 a little high Creatinine was a little high 0.99 range 0.60-0.93 mg/dl Everything else was normal Great report best I've had in a long time Blessings Jeanie<3 In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time, cinem...@yahoo.com writes: your lucky you get the gleevec for $35. a month larry,good luck in keeping that as low as you can. i pay $3232. a month with mvp...rob.rhggoodrich@ yahoo.com From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Saturday, May 4, 2013 11:53 AM Subject: Re: [CMLHope] insurance coverage Hi Larry, call the company right away and ask if they cover it. Most are very helpful. Jeanie<3 In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight Time, la...@taper.com writes: Hello group I have a question . my current insurance is united health care it cost 35.00 a month for gleevec . my company is thinking of switching to anthem blue cross , I know there are different plans but is anyone on gleevec using anthem , does it cover the gleevec ??? just trying to be prepared . Larry Lex , ky God bless all the warriors . -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You
Re: [CMLHope] Re: Arthritis ?
Hi Suzieq, just something to think about... When I was first diagnoised they started me on Hydroxy Urea and Allopurnial. It wasn't the hydroxy that I questioned because I knew why they were giving it to me. It was the Allopurnial. That is used for controlling the gout. I was told that having CML that was newly diagnoised could also cause some very painful gout attacks. I have been on Allopurnial ever since and no more gout attacks. Gout is a form of arthritis Maybe part of your problem could be gout??? Why not ask your doctor if this could be part of the cause. It never hurts to ask questions. 18's, Marty On Tue, May 14, 2013 at 4:58 PM, Suzieq wrote: > Jim: I had this discussion with my Chiropractor not to long ago, even > carried him the drug information that Novartis sent to me about all the > side effects. The reason for me showing this to him, he has treated me for > some time now saying that I had arthritis that has set up really bad in > both Sacroiliac Joints and now I have it in a joint right behind the second > toe on the left foot, and am beginning to think it's beginning to set up > some in the right hand. We think that the Gleevec helped to "expedite" the > arthritis along. I will turn 60 in September, so I expected to suffer > later on in life, not this early. There have been times I can't even > stand up straight. I have an appointment on June 3rd with an orthopedic > surgeon to get his opinion about my lower back problems. I suffer a lot > from sciatica going down the back of both legs at times, and lately I've > been getting around with a cane. > > I discussed the "arthritis" problem at my last doctor visit at the cancer > center. She said that they have had some patients who have had to go > through chemotherapy and noticed that their arthritis lessened while on > Chemo, but as soon as they finished with the drugs, the arthritis pain > came right back. > I think I even asked about "Celebrex", but seems doctors are hesitant > about prescribing that. Right now, my regiment is 325/5 Hydrocodone along > with Advil Liquid Gels. I hate taking drugs, but the stabbing pains at > night into my hip almost makes me cry, so go ahead and take it for the > relief. > > Thanks, > Suzieq > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Arthritis ?
SuzieQ, Marty is right on target. I don't know how I read your post without thinking of gout. The explanation I've been given is that as the medications kill off leukemia cells the dead cells release uric acid into the bloodstream. Since it's in higher levels than the liver is equipped to eliminate the excess remains and can crystallize. The crystals can then accumulate in a joint (the big toe is the most common for some reason) causing what we call gout.Unfortunately for me I had an allergic reaction to allopurinol but luckily never had any problem with gout even without it. Patrick --- On Tue, 5/14/13, Marty Gartenberg wrote: From: Marty Gartenberg Subject: Re: [CMLHope] Re: Arthritis ? To: cmlhope@googlegroups.com Date: Tuesday, May 14, 2013, 10:17 PM Hi Suzieq, just something to think about... When I was first diagnoised they started me on Hydroxy Urea and Allopurnial. It wasn't the hydroxy that I questioned because I knew why they were giving it to me. It was the Allopurnial. That is used for controlling the gout. I was told that having CML that was newly diagnoised could also cause some very painful gout attacks. I have been on Allopurnial ever since and no more gout attacks. Gout is a form of arthritis Maybe part of your problem could be gout??? Why not ask your doctor if this could be part of the cause. It never hurts to ask questions. 18's, Marty On Tue, May 14, 2013 at 4:58 PM, Suzieq wrote: Jim: I had this discussion with my Chiropractor not to long ago, even carried him the drug information that Novartis sent to me about all the side effects. The reason for me showing this to him, he has treated me for some time now saying that I had arthritis that has set up really bad in both Sacroiliac Joints and now I have it in a joint right behind the second toe on the left foot, and am beginning to think it's beginning to set up some in the right hand. We think that the Gleevec helped to "expedite" the arthritis along. I will turn 60 in September, so I expected to suffer later on in life, not this early. There have been times I can't even stand up straight. I have an appointment on June 3rd with an orthopedic surgeon to get his opinion about my lower back problems. I suffer a lot from sciatica going down the back of both legs at times, and lately I've been getting around with a cane. I discussed the "arthritis" problem at my last doctor visit at the cancer center. She said that they have had some patients who have had to go through chemotherapy and noticed that their arthritis lessened while on Chemo, but as soon as they finished with the drugs, the arthritis pain came right back. I think I even asked about "Celebrex", but seems doctors are hesitant about prescribing that. Right now, my regiment is 325/5 Hydrocodone along with Advil Liquid Gels. I hate taking drugs, but the stabbing pains at night into my hip almost makes me cry, so go ahead and take it for the relief. Thanks,Suzieq -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To uns