SuzieQ, Marty is right on target. I don't know how I read your post without thinking of gout. The explanation I've been given is that as the medications kill off leukemia cells the dead cells release uric acid into the bloodstream. Since it's in higher levels than the liver is equipped to eliminate the excess remains and can crystallize. The crystals can then accumulate in a joint (the big toe is the most common for some reason) causing what we call gout.Unfortunately for me I had an allergic reaction to allopurinol but luckily never had any problem with gout even without it. Patrick --- On Tue, 5/14/13, Marty Gartenberg <wa2...@gmail.com> wrote:
From: Marty Gartenberg <wa2...@gmail.com> Subject: Re: [CMLHope] Re: Arthritis ? To: cmlhope@googlegroups.com Date: Tuesday, May 14, 2013, 10:17 PM Hi Suzieq, just something to think about... When I was first diagnoised they started me on Hydroxy Urea and Allopurnial. It wasn't the hydroxy that I questioned because I knew why they were giving it to me. It was the Allopurnial. That is used for controlling the gout. I was told that having CML that was newly diagnoised could also cause some very painful gout attacks. I have been on Allopurnial ever since and no more gout attacks. Gout is a form of arthritis Maybe part of your problem could be gout??? Why not ask your doctor if this could be part of the cause. It never hurts to ask questions. 18's, Marty On Tue, May 14, 2013 at 4:58 PM, Suzieq <sheila.a.wat...@gmail.com> wrote: Jim: I had this discussion with my Chiropractor not to long ago, even carried him the drug information that Novartis sent to me about all the side effects. The reason for me showing this to him, he has treated me for some time now saying that I had arthritis that has set up really bad in both Sacroiliac Joints and now I have it in a joint right behind the second toe on the left foot, and am beginning to think it's beginning to set up some in the right hand. We think that the Gleevec helped to "expedite" the arthritis along. I will turn 60 in September, so I expected to suffer later on in life, not this early. There have been times I can't even stand up straight. I have an appointment on June 3rd with an orthopedic surgeon to get his opinion about my lower back problems. I suffer a lot from sciatica going down the back of both legs at times, and lately I've been getting around with a cane. I discussed the "arthritis" problem at my last doctor visit at the cancer center. She said that they have had some patients who have had to go through chemotherapy and noticed that their arthritis lessened while on Chemo, but as soon as they finished with the drugs, the arthritis pain came right back. I think I even asked about "Celebrex", but seems doctors are hesitant about prescribing that. Right now, my regiment is 325/5 Hydrocodone along with Advil Liquid Gels. I hate taking drugs, but the stabbing pains at night into my hip almost makes me cry, so go ahead and take it for the relief. Thanks,Suzieq -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
