Re: [CMLHope]
Susan, did you make any progress today? My personal email address is contained in the one I posted to Millie. Fellow warriors, we need to stick together and help out our friends. Susan, please email me directly so we can catch up following our conversation last night. Love, prayers and 18s to everyone. Marcie Sent from my iPad On Jul 16, 2013, at 10:10 PM, Susan Zimmerman wrote: > Dear Millie, > > I am so sorry to hear the news about the liver. But good news that they can > possibly do a transplant! As we all do, keep hanging in there. Please know > prayers are going up for you for sure!!! Habukkuk 1:5 below is just for you! > > Blessings, > Susan F. Zimmerman > "Look among the nations and watch; be utterly astounded! For I will work a > work in your days which you would not believe, though it were told you." > Hab. 1:5 > > > -Original Message- > From: Marcie Goodman > To: cmlhope > Cc: > Sent: Tue, Jul 16, 2013 10:04 pm > Subject: Re: [CMLHope] > > Hi Millie: > > How are you doing? I wish I had better words but all I can think is crap, > you've been through so much that it is time for you to just be well. I'm sure > I speak for many on this site when I say you will be in so many devout > prayers. What can we do as a group to support you? Is there a safe way to > get your address? My email is margoo...@aol.com. > > Much love and please know you are in my thoughts. > > Marcie > > Sent from my iPad > > On Jul 16, 2013, at 8:27 PM, "C.M. Houtz" wrote: > >> MartyYou and I were diagnosed in the same year. I had my sisters tested >> but there wasn't a good match. I then decided that I'd take the 5 years >> that they gave me rather then hunt for a matchI also was reaching the >> age where they wouldn't do a transplant, so it was a choice I made. They >> started giving me shots of Interferon and I thought I'd die on that. It got >> so bad that at times I had to have the nurse come out of the clinic to give >> me my shot in my car because I couldn't make it in. In PA they wouldn't let >> me give the shots to myself and so for 5 days a week I got the shots. On >> Monday, Tues. and Wed. I wish I were dead. I ran high fevers and couldn't >> get out of bed most days with the exception of going to the clinic for my >> shot. By Thurs. I was feeling better and then Friday thru Sunday were okay. >> Monday it started all over again because they wouldn't give me the shots on >> the weekends...No one was there that could do it. After wishing for >> death...and I'm not exaggerating...They put me on a medication I believe was >> called Hydroxeria, but that would never put me into remission. Gleevec came >> a little later and I never got into remission with that either. After that >> stopped working, they put me on Tasigna. I've been on that for 6 years and >> it did put me into remission. It has always been a struggle of some sort, >> and now the liver issue, but I'm still alive, and still here. I did tell >> everyone that he is putting me on a liver transplant list...so we shall see. >> I never give up...I'm just happy that I've had the time I've had. Much >> longer then the 5 years they gave me in the beginning. I can't imagine >> being in a small bubble for 7 mo. I am sure that you had to fight to adjust >> to that. You are such a strong person, and that probably helped you towards >> being one. >> >> I am not giving in to this thing and will live as long as I can as I have >> many things to accomplish. >> >> Many hugs and 18's, >> Millie >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/groups/opt_out. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email
Re: [CMLHope]
Dear Millie, I am so sorry to hear the news about the liver. But good news that they can possibly do a transplant! As we all do, keep hanging in there. Please know prayers are going up for you for sure!!! Habukkuk 1:5 below is just for you! Blessings, Susan F. Zimmerman "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -Original Message- From: Marcie Goodman To: cmlhope Cc: Sent: Tue, Jul 16, 2013 10:04 pm Subject: Re: [CMLHope] Hi Millie: How are you doing? I wish I had better words but all I can think is crap, you've been through so much that it is time for you to just be well. I'm sure I speak for many on this site when I say you will be in so many devout prayers. What can we do as a group to support you? Is there a safe way to get your address? My email is margoo...@aol.com. Much love and please know you are in my thoughts. Marcie Sent from my iPad On Jul 16, 2013, at 8:27 PM, "C.M. Houtz" wrote: MartyYou and I were diagnosed in the same year. I had my sisters tested but there wasn't a good match. I then decided that I'd take the 5 years that they gave me rather then hunt for a matchI also was reaching the age where they wouldn't do a transplant, so it was a choice I made. They started giving me shots of Interferon and I thought I'd die on that. It got so bad that at times I had to have the nurse come out of the clinic to give me my shot in my car because I couldn't make it in. In PA they wouldn't let me give the shots to myself and so for 5 days a week I got the shots. On Monday, Tues. and Wed. I wish I were dead. I ran high fevers and couldn't get out of bed most days with the exception of going to the clinic for my shot. By Thurs. I was feeling better and then Friday thru Sunday were okay. Monday it started all over again because they wouldn't give me the shots on the weekends...No one was there that could do it. After wishing for death...and I'm not exaggerating...They put me on a medication I believe was called Hydroxeria, but that would never put me into remission. Gleevec came a little later and I never got into remission with that either. After that stopped working, they put me on Tasigna. I've been on that for 6 years and it did put me into remission. It has always been a struggle of some sort, and now the liver issue, but I'm still alive, and still here. I did tell everyone that he is putting me on a liver transplant list...so we shall see. I never give up...I'm just happy that I've had the time I've had. Much longer then the 5 years they gave me in the beginning. I can't imagine being in a small bubble for 7 mo. I am sure that you had to fight to adjust to that. You are such a strong person, and that probably helped you towards being one. I am not giving in to this thing and will live as long as I can as I have many things to accomplish. Many hugs and 18's, Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. T
Re: [CMLHope]
Dear Millie, I am so sorry to hear the news about the liver. But good news that they can possibly do a transplant! As we all do, keep hanging in there. Please know prayers are going up for you for sure!!! Habukkuk 1:5 below is just for you! Blessings, Susan F. Zimmerman "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -Original Message- From: Marcie Goodman To: cmlhope Cc: Sent: Tue, Jul 16, 2013 10:04 pm Subject: Re: [CMLHope] Hi Millie: How are you doing? I wish I had better words but all I can think is crap, you've been through so much that it is time for you to just be well. I'm sure I speak for many on this site when I say you will be in so many devout prayers. What can we do as a group to support you? Is there a safe way to get your address? My email is margoo...@aol.com. Much love and please know you are in my thoughts. Marcie Sent from my iPad On Jul 16, 2013, at 8:27 PM, "C.M. Houtz" wrote: MartyYou and I were diagnosed in the same year. I had my sisters tested but there wasn't a good match. I then decided that I'd take the 5 years that they gave me rather then hunt for a matchI also was reaching the age where they wouldn't do a transplant, so it was a choice I made. They started giving me shots of Interferon and I thought I'd die on that. It got so bad that at times I had to have the nurse come out of the clinic to give me my shot in my car because I couldn't make it in. In PA they wouldn't let me give the shots to myself and so for 5 days a week I got the shots. On Monday, Tues. and Wed. I wish I were dead. I ran high fevers and couldn't get out of bed most days with the exception of going to the clinic for my shot. By Thurs. I was feeling better and then Friday thru Sunday were okay. Monday it started all over again because they wouldn't give me the shots on the weekends...No one was there that could do it. After wishing for death...and I'm not exaggerating...They put me on a medication I believe was called Hydroxeria, but that would never put me into remission. Gleevec came a little later and I never got into remission with that either. After that stopped working, they put me on Tasigna. I've been on that for 6 years and it did put me into remission. It has always been a struggle of some sort, and now the liver issue, but I'm still alive, and still here. I did tell everyone that he is putting me on a liver transplant list...so we shall see. I never give up...I'm just happy that I've had the time I've had. Much longer then the 5 years they gave me in the beginning. I can't imagine being in a small bubble for 7 mo. I am sure that you had to fight to adjust to that. You are such a strong person, and that probably helped you towards being one. I am not giving in to this thing and will live as long as I can as I have many things to accomplish. Many hugs and 18's, Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. T
Re: [CMLHope]
Hi Millie: How are you doing? I wish I had better words but all I can think is crap, you've been through so much that it is time for you to just be well. I'm sure I speak for many on this site when I say you will be in so many devout prayers. What can we do as a group to support you? Is there a safe way to get your address? My email is margoo...@aol.com. Much love and please know you are in my thoughts. Marcie Sent from my iPad On Jul 16, 2013, at 8:27 PM, "C.M. Houtz" wrote: > MartyYou and I were diagnosed in the same year. I had my sisters tested > but there wasn't a good match. I then decided that I'd take the 5 years that > they gave me rather then hunt for a matchI also was reaching the age > where they wouldn't do a transplant, so it was a choice I made. They started > giving me shots of Interferon and I thought I'd die on that. It got so bad > that at times I had to have the nurse come out of the clinic to give me my > shot in my car because I couldn't make it in. In PA they wouldn't let me > give the shots to myself and so for 5 days a week I got the shots. On > Monday, Tues. and Wed. I wish I were dead. I ran high fevers and couldn't > get out of bed most days with the exception of going to the clinic for my > shot. By Thurs. I was feeling better and then Friday thru Sunday were okay. > Monday it started all over again because they wouldn't give me the shots on > the weekends...No one was there that could do it. After wishing for > death...and I'm not exaggerating...They put me on a medication I believe was > called Hydroxeria, but that would never put me into remission. Gleevec came > a little later and I never got into remission with that either. After that > stopped working, they put me on Tasigna. I've been on that for 6 years and > it did put me into remission. It has always been a struggle of some sort, > and now the liver issue, but I'm still alive, and still here. I did tell > everyone that he is putting me on a liver transplant list...so we shall see. > I never give up...I'm just happy that I've had the time I've had. Much > longer then the 5 years they gave me in the beginning. I can't imagine being > in a small bubble for 7 mo. I am sure that you had to fight to adjust to > that. You are such a strong person, and that probably helped you towards > being one. > > I am not giving in to this thing and will live as long as I can as I have > many things to accomplish. > > Many hugs and 18's, > Millie > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Hi
Millie, Sorry to hear about your liver problems. Yes they do transpalnts even if you have CML. Just so you know the liver would probably come from a cadaver also you can get part of a living persons liver so if you know anyone that has the same blood type as you do and they are willing to donate to you then you should have them tested. Unlike a bone marrow transplant which basically doesn't require a blood type match, a solid organ does. I am in the same position as you are but for a kidney transplant I may have a donor back in Florida. I will be going back there in the middle of September and I should know more once I return. I wish you the very best of luck 18's times 18's for you Marty On Tue, Jul 16, 2013 at 10:59 AM, C.M. Houtz wrote: > ** > *Hello to everyone. I didn't get on here yesterday as I was sick to my > stomach (from what I don't know), and still have it a little today, but not > as bad. I did see my Oncologist and he was able to get the results of my > biopsy. Well, it is cirrhosis of the liver and so we have to deal with > it. Since I've been on Tasigna for 6 years he is confused as this would > normally happen during the first year on the drug, so we have to find out > how to deal with it. He's going to call the people that make the drug and > see what they can find out. Meanwhile, I'm off of the Tasigna until > further notice. He did blood work, so he'll call me with the results when > he gets them. He is also going to put me on the list for a liver > transplant. I didn't think they would consider that at my age, and with my > other health issues, but he says that they will. He works for Geisinger > Hospital, which is huge in this area and they do lots of advanced things, > so we shall see. I went to their new cancer clinic in Pottsville, and it > was nice and brand new, so it was a pleasant experience. * > ** > *Your prayers, etc. will be appreciated. I just have to deal with what > is. That's what we all do, so nothing new..! * > ** > *Talk to you soon.* > *Many hugs,* > *Millie* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope]
MartyYou and I were diagnosed in the same year. I had my sisters tested but there wasn't a good match. I then decided that I'd take the 5 years that they gave me rather then hunt for a matchI also was reaching the age where they wouldn't do a transplant, so it was a choice I made. They started giving me shots of Interferon and I thought I'd die on that. It got so bad that at times I had to have the nurse come out of the clinic to give me my shot in my car because I couldn't make it in. In PA they wouldn't let me give the shots to myself and so for 5 days a week I got the shots. On Monday, Tues. and Wed. I wish I were dead. I ran high fevers and couldn't get out of bed most days with the exception of going to the clinic for my shot. By Thurs. I was feeling better and then Friday thru Sunday were okay. Monday it started all over again because they wouldn't give me the shots on the weekends...No one was there that could do it. After wishing for death...and I'm not exaggerating...They put me on a medication I believe was called Hydroxeria, but that would never put me into remission. Gleevec came a little later and I never got into remission with that either. After that stopped working, they put me on Tasigna. I've been on that for 6 years and it did put me into remission. It has always been a struggle of some sort, and now the liver issue, but I'm still alive, and still here. I did tell everyone that he is putting me on a liver transplant list...so we shall see. I never give up...I'm just happy that I've had the time I've had. Much longer then the 5 years they gave me in the beginning. I can't imagine being in a small bubble for 7 mo. I am sure that you had to fight to adjust to that. You are such a strong person, and that probably helped you towards being one. I am not giving in to this thing and will live as long as I can as I have many things to accomplish. Many hugs and 18's, Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope]
Can you tell me if 0,07 is 2 or 3 log reduction? Enviado desde Samsung tabletbkbar...@aol.com escribió:Thank you Pat!!! Very helpful! Beth -Original Message- From: Pat Elliott To: cmlhope Sent: Mon, Jul 15, 2013 7:44 pm Subject: RE: [CMLHope] Hi all – The International Scale (IS) is preferred, but there are still many places that are not using it. The move to the International scale is due to the need for uniformity, the availability of more sensitive testing and the belief that one day patients may not have to take these drugs for life, but will instead be able to be stop treatment on the basis of how deep the patient’s response is to treatment. In the past, the ultimate patient goal was a complete molecular response, which was known as “PCRU.” The use of “PCRU” is going away, in favor of a new, much more specific MR (Molecular Response) scale. (In labs that are not using the IS, the equipment is only able to detect up to a 3.5 log reduction.) 0.1% BCR-ABL = MR 3 (3 log reduction from 100% - IRIS) 0.01% BCR-ABL = MR 4 0.0032% BCR-ABL = MR 4.5 0.001% BCR-ABL = MR 5 Getting to this level is the ideal, but not all patients get there. Higher levels, known as MMR or Major Molecular Response, indicate low levels of BCR-ABL and many patients remain in that status for years. Hope this helps, and please share with others who can benefit. Pat FAQ on International Scale (IS) PCR by Dr. Michael Mauro The International Scale (IS) PCR specific Frequently Asked Questions (FAQs) was created by Dr. Michael Mauro, a professor and leading expert in the field of chronic myeloid leukemia (CML). In this FAQ, Dr. Mauro explains the importance of International Scale (IS) for PCR, a scale for standardizing PCR testing across laboratories. 1. What is the IS? 2. Why is it important to standardize PCR labs? 3. What happens if my PCR is not standardized? 4. What should I ask of my doctor with regards to IS PCR? What is the IS? The ‘IS’ stands for ‘International Scale’. International Scale is a means for standardizing and validating a patient’s PCR test results. It refers to a reference range developed for reporting of quantitative PCR results for Bcr-Abl for patients with Ph+ (Bcr-Abl+) leukemias. The International Scale (IS) was developed as a result of the landmark IRIS trial. In this trial, untreated blood samples of 30 patients were shared between three precise and experienced PCR laboratories (Seattle, London, Adelaide), using the same control gene (BCR) to establish a typical starting point (untreated level) as well as a point which represented a 1000-fold reduction (3-log reduction) from the starting point. The mean untreated level was defined as 100% and a ‘major molecular response’, or MMR, was defined at 0.1% in these labs. MMR, a further improvement over complete cytogenetic response (CCyR), is an important landmark for patients. >From this starting point, other labs using different systems could normalize >their results so the scale used around the world would be the same: at >diagnosis a CML patient’s PCR value would be in the range of 100% (+/-) and a >major molecular response would come in at 0.1%. Back to the top Why is it important to standardize PCR labs? It is important to standardize PCR labs so that physicians in different medical centers or offices can all ‘speak the same language’ and ‘use the same tool to measure’. Results can be compared between labs and centers and response milestones understood and confirmed. Without standardization of PCR for Bcr-Abl it is hard to know how to interpret changes in Bcr-Abl levels- for example, does the change represent loss of a treatment milestone? Is the change the result of variations in the instrument used to run the PCR test? PCR monitoring of Bcr-Abl is a crucial part of monitoring response to treatment for Chronic Myeloid Leukemia (CML). Guidelines describing the best way to navigate treatment options, especially early in treatment, are based on PCR results reported on the International Scale. For example, the first milestone in updated guidelines for management of CML treatment suggest PCR testing at three months of treatment looking for a reduction in Bcr-Abl to less than 10% in the ‘IS’. Without IS standardization, deciding if milestones are met or not, or lost, are challenging if not impossible! Back to the top What happens if my PCR is not standardized? Indeed many quality medical centers and CML experts do not have access yet to ‘IS PCR’. In the absence of results reported using this scale, treating physicians can inquire for key details about the way the test was run and the parameters of the assay to accurately quantify response and potentially estimate depth of response as is done with IS reporting. It is somewhat unreliable and challenging, however, to make such estimations and this can often lead to under- or over-estimation of response; thus caution is recommended for any extrapolation. At
[CMLHope] Hi
Hello to everyone. I didn't get on here yesterday as I was sick to my stomach (from what I don't know), and still have it a little today, but not as bad. I did see my Oncologist and he was able to get the results of my biopsy. Well, it is cirrhosis of the liver and so we have to deal with it. Since I've been on Tasigna for 6 years he is confused as this would normally happen during the first year on the drug, so we have to find out how to deal with it. He's going to call the people that make the drug and see what they can find out. Meanwhile, I'm off of the Tasigna until further notice. He did blood work, so he'll call me with the results when he gets them. He is also going to put me on the list for a liver transplant. I didn't think they would consider that at my age, and with my other health issues, but he says that they will. He works for Geisinger Hospital, which is huge in this area and they do lots of advanced things, so we shall see. I went to their new cancer clinic in Pottsville, and it was nice and brand new, so it was a pleasant experience. Your prayers, etc. will be appreciated. I just have to deal with what is. That's what we all do, so nothing new..! Talk to you soon. Many hugs, Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
