Marty....You and I were diagnosed in the same year. I had my sisters tested but there wasn't a good match. I then decided that I'd take the 5 years that they gave me rather then hunt for a match....I also was reaching the age where they wouldn't do a transplant, so it was a choice I made. They started giving me shots of Interferon and I thought I'd die on that. It got so bad that at times I had to have the nurse come out of the clinic to give me my shot in my car because I couldn't make it in. In PA they wouldn't let me give the shots to myself and so for 5 days a week I got the shots. On Monday, Tues. and Wed. I wish I were dead. I ran high fevers and couldn't get out of bed most days with the exception of going to the clinic for my shot. By Thurs. I was feeling better and then Friday thru Sunday were okay. Monday it started all over again because they wouldn't give me the shots on the weekends...No one was there that could do it. After wishing for death...and I'm not exaggerating...They put me on a medication I believe was called Hydroxeria, but that would never put me into remission. Gleevec came a little later and I never got into remission with that either. After that stopped working, they put me on Tasigna. I've been on that for 6 years and it did put me into remission. It has always been a struggle of some sort, and now the liver issue, but I'm still alive, and still here. I did tell everyone that he is putting me on a liver transplant list...so we shall see. I never give up...I'm just happy that I've had the time I've had. Much longer then the 5 years they gave me in the beginning. I can't imagine being in a small bubble for 7 mo. I am sure that you had to fight to adjust to that. You are such a strong person, and that probably helped you towards being one.
I am not giving in to this thing and will live as long as I can as I have many things to accomplish. Many hugs and 18's, Millie -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
