Re: [CMLHope] Does anyone remember Zavie and Ida Miller or Lottie?
I remember dear Zavie! We were going to Ottawa once and I asked him if he would join us for lunch. He was a guide at the art gallery in Ottawa and took us through. He was such a nice fellow. He was the first one I contacted when I went into remission. I am not sure, but I think I was #68 or 69 in the Zero list. Rest in Peace, Zavie...Angie From: Marty Gartenberg To: CMLHope@googlegroups.com Sent: Wednesday, March 2, 2016 3:46 PM Subject: [CMLHope] Does anyone remember Zavie and Ida Miller or Lottie? Well, I was looking through some of my things and ran across my Zavie Zero hat. He and Ida his wife actually came to my home in Florida and they presented me with the very first hat #1 I surely do miss my friends Zavie, Ida and as I would call her, Mommy Lottie and her husband Jimmy. Probably some of the new commers may not remember them but they were the backbones of the CML sites. 18's Marty -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hey, what happened to everyone?
Hi all, Hi, Sherri, Jeanie and everyone else that may need some advice about *leg vein ablation. There are so many things that are available on the internet so you may scan through some of them. I wouldn't even know where to begin.* *Now Jeanie, sorry to hear about your sister but she seems to be doing better. That Pace maker just may be in line for me depending on what tomorrow finds. I have an appointment at the Cleveland Clinic in the morning to speak with a cardiologist so I will find out more about it.* *18's,* *Marty* On Wed, Mar 2, 2016 at 11:21 AM, 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> wrote: > > *Hi all. * > *My sisters legs and feet swell really bad. She takes 2 diuretics. She > has never been on any tkis. * > *She recently chose to have leg vein ablation. She says this has really > helped. Maybe you could look into it. She had to have a heart pacer put > in also. * > > *Good luck. *My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Mar 2, 2016, at 4:20 AM, sherri swanson > wrote: > > Hi Marty, > > My doctor put me on Furosemide 20mg & potassium as I have low potassium to > begin with, and at 20mg it did nothing. SO of course, he increased it to > 40mg and still nothing. He switched me to a different drug Spironalactone, > generic for Aldactone and still no trips to the bathroom and the swelling > did not abate. My legs are just stubborn. So that is when all the testing > started and current I am not on any diuretic as none of them have produced > a result. Strange huh? Leave it to me to be difficult. But with all the > other medical issues I have some not so common, the doctors are doing a > bunch of tests with the hopes of find the culprit. > > I have to tell ya, I would welcome a run for the bathroom about now. LOL😁 > Anything to get rid of this excess water. > > As always, your input is most welcome. > > Cheers, > > Sherri > > > On Tue, Mar 1, 2016 at 10:12 PM, 'judy' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Hello This is Judy I forgot my password s I ave to wait till some one >> writes all is good t this end we got about a foot of snow and its >> beautiful Just love it. Have been off Gleevec for a few years and >> stillgoing Good Keeping up with blood tests because of other things buT >> all is Good with the counts. Take care and if you want some snow come and >> get it HAha JUDY >> >> >> On Monday, February 29, 2016 10:00 AM, Marty Gartenberg >> wrote: >> >> >> Why the silence? I miss everyone. >> >> 18's, >> >> Marty >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support
Re: [CMLHope] Hey, what happened to everyone?
Hi Sherri! Glad to hear from you. I hope they get to the bottom of the swelling for you...Lymphedema clinic might be a good idea...they can even teach you some home massage things to do to try and reduce the swelling..but finding the source first seems like the best idea..hang in there...I will keep you in my thoughts and prayers that the swelling abates soon! Warm regards, !8's Beth -Original Message- From: Marty Gartenberg To: cmlhope Sent: Wed, Mar 2, 2016 10:11 am Subject: Re: [CMLHope] Hey, what happened to everyone? Hi Sherri, That's very strange that none of those diuretics haven't worked, who knows maybe your a "late bloomer" so how long were you on them? And are you elevating your legs when you sleep? How about your salt intake? I also drink some seltzer water during the day and it seems to help me. No soda or anything that has any sugar or salt, even if it says that it is sugar free. I also have these diabetic socks that really help but you mentioned that your legs were very swollen so that probably won't work. Have you tried a lymphedemas clinic? One of my friends uses one and they usually wrap your legs in special pressure bandages and even though it may be an ongoing problem at least it works. You may also want to try some Ace bandages when you go to sleep but at first try not to make then to tight. I hope that some of these suggestions may free you into helping you along. Good luck, 18's Marty On Wed, Mar 2, 2016 at 4:20 AM, sherri swanson wrote: Hi Marty, My doctor put me on Furosemide 20mg & potassium as I have low potassium to begin with, and at 20mg it did nothing. SO of course, he increased it to 40mg and still nothing. He switched me to a different drug Spironalactone, generic for Aldactone and still no trips to the bathroom and the swelling did not abate. My legs are just stubborn. So that is when all the testing started and current I am not on any diuretic as none of them have produced a result. Strange huh? Leave it to me to be difficult. But with all the other medical issues I have some not so common, the doctors are doing a bunch of tests with the hopes of find the culprit. I have to tell ya, I would welcome a run for the bathroom about now. LOL😁 Anything to get rid of this excess water. As always, your input is most welcome. Cheers, Sherri On Tue, Mar 1, 2016 at 10:12 PM, 'judy' via CMLHope wrote: Hello This is Judy I forgot my password s I ave to wait till some one writes all is good t this end we got about a foot of snow and its beautiful Just love it. Have been off Gleevec for a few years and stillgoing Good Keeping up with blood tests because of other things buT all is Good with the counts. Take care and if you want some snow come and get it HAha JUDY On Monday, February 29, 2016 10:00 AM, Marty Gartenberg wrote: Why the silence? I miss everyone. 18's, Marty -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, s
Re: [CMLHope] Re: Hey, what happened to everyone?
Norm, it is so nice to hear from you and get caught up! I am so glad to hear that you are still holding your own with ...Tasigna..that is great news Elevel years So sorry about the death of your cousin. sounds so hard and sad... and that your Hans is sick...that is a heart breaker as wellglad he is being spoiled rotten by his parents Happy you got to go cruising!!! Sounds wonderful...do keep in touch with us here!!! I miss Millie and Zavie too... Take good care, love and care, 18's Beth. -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Wed, Mar 2, 2016 10:30 am Subject: Re: [CMLHope] Re: Hey, what happened to everyone? Hi Norm and so happy to hear from you. I miss our Tasigna group. I lost my remission last year and am now on Ponatinib. It has my blood doing good with few side effect. That foot problem can hurt!!! Rub a lot of castor oil on it and soak in Epsom salts. I had the heel probably a few years ago and it lasted for 2 years. Put a castor oil pack on at night. I haven't been able to cruise lately and miss it. We are planning a Christmas cruise if my health holds up. Do you hear from our Tasigna group?? Sounds like you are doing great!!! I'm glad your eyes are better. Stay in touch and yes, I sure miss Millie Love My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 1, 2016, at 8:16 AM, Norm wrote: I am still alive and kicking but one of my kickers is giving me fits. I think it is plantar fasciitis. I haven't posted in awhile and miss Millie may she rest in peace. Jeanie is my cruise mentor and my wife and I along with a few other friends just got back a couple of weeks ago from a 7 day cruise to Jamaica, Cayman, and Cozumel. We were busy with one of my cousin staying here quite often while he was being treated for stage 4 Melanoma, he passed and is walking with Jesus now. Way too young and such a very good person. My beloved dachshund, Hans, turned 12 yesterday. About a month ago we were given the devastating news that he has lymphoma. I never knew it would be so difficult to have to deal with the knowledge that one day, much sooner than expected, I would have to ease his way to a comfortable ending. I dread this as he was my buddy and comfort while I was recovering from my relapse of CML. He is being spoiled even more than ever now and will be until that time comes. Millie would understand. April 1st will mark 13 years since my diagnosis and the start of Gleevec. As some know, I relapsed and Gleevec no longer worked. I was fortunate enough to get in the clinical trial for AMN107 during the phase 1 study. As you can tell, it worked but not before I entered blast and was one very sick puppy. I believe that one night the angel of death came for me and for some reason let me stay. All I know is Dr Kantarjian tells me to thank God and I do. My son has finished his tour of duty with the USMC and has been discharged as a Sargent with the Achievement medal. We are extremely proud of our son, and our daughter who is still teaching photography to high schoolers. I have been training my replacements at work so I can eventually retire. I am ready but they are not.lol.. My macular degeneration is stable and I have not had any shots in my eye for almost 6 months. Still legally blind and that will not change during my lifetime I suppose. I have been playing a lot of golf with my younger brother and we are having a great time together. He is a good brother that will come and pick me up and take me golfing even if it means spending the whole day with me. Life is good. This past December marked 11 years that I have been on Tasigna. I have never been undetectable but it is generally only a few cells in 10 thousand. I will try to check in more often but life has been keeping me so busy. Blessings to all Norm On Monday, February 29, 2016 at 9:00:33 AM UTC-6, wa2yyx wrote: Why the silence? I miss everyone. 18's, Marty -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You
Re: [CMLHope] Hey, what happened to everyone?
Hi Beth and thanks for asking. The side pain is ongoing and they can't find out what is causing it. I had a chest X-ray but it revealed all is good. I feel it's to do with gallbladder surgery I had years ago. Back is on the mend so I'm fighting on. Blessing and love My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Feb 29, 2016, at 8:02 PM, bkbarney via CMLHope > wrote: > > Sounds like overall pretty good news Jeanie. How is the side pain? > > 18's and hugs, Beth > > > -Original Message- > From: Marty Gartenberg > To: cmlhope > Sent: Mon, Feb 29, 2016 6:35 pm > Subject: Re: [CMLHope] Hey, what happened to everyone? > > Hi Jeanie, > > Good to hear that your counts were good, and don't worry about your platelets > or WBC. It all works out in the wash. > > My WBC was two weeks ago 1.8 and last week it was 2.1 So like I said it all > works out in the wash. > > As far as faith and pills go, yes the faith always works out but which one of > the pills that I take about 63 of them a week can I count on for bringing me > the combination of both faith and those pills? > > Well I do have to say that without most of them my new kidney would shrivel > up and reject, so I guess that your absolutely right. > > You see Jeanie I learned a valuable lesson from you😃 > > 18's > > Marty > >> On Mon, Feb 29, 2016 at 7:32 PM, Marty Gartenberg wrote: >> Hi Jeanie, >> >> Good to hear that your counts were good, and don't worry about your >> platelets or WBC. It all works out in the wash. >> >> My WBC was two weeks ago 1.8 and last week it was 2.1 So like I said it all >> works out in the wash. >> >> As far as faith and pills go, yes the faith always works out but which one >> of the pills that I take about 63 of them a week can I count on for bringing >> me the combination of both faith and those pills? >> >> Well I do have to say that without most of them my new kidney would shrivel >> up and reject, so I guess that your absolutely right. >> >> You see Jeanie I learned a valuable lesson from you😃 >> >> 18's >> >> Marty >> >>> On Mon, Feb 29, 2016 at 5:53 PM, 'Icandoallttc' via CMLHope >>> wrote: >>> Hi Marty and everyone, >>> I hope everyone is good. My blood was good last check up. Platelets were a >>> little lower than I like: 177. WBC was higher than I like: 9. However I am >>> thankful for Ponatinib for putting me in remission once more. Faith and >>> pills. God bless >>> >>> My Motto: Faith and Pills❤️ >>> With 💗Jeanie 🐟🐟18,s Chi >>> Dx 1/2004. CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >>> >>> On Feb 29, 2016, at 10:00 AM, Marty Gartenberg wrote: >>> >>> Why the silence? I miss everyone. >>> >>> 18's, >>> >>> Marty >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/
Re: [CMLHope] Re: Hey, what happened to everyone?
Hi Richard. So glad to hear you are well. Warm in fl but we had a few cold days. Fruit trees are full of blooms and I think the danger of frost is over. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 1, 2016, at 12:09 AM, Richard H wrote: > > Sorry about the silence. Everything is OK here. We have had some lovely > early spring weather here and I am enjoying the refreshing of Mother Earth. > Lots of wild fire danger for lack if moisture, but we may have something wet > (rain, snow) by tomorrow night. > > All counts remain in range with my program and we are building to the high > side of Hemoglobin so all is good. > > Richard H. > >> On Monday, February 29, 2016 at 9:00:33 AM UTC-6, wa2yyx wrote: >> Why the silence? I miss everyone. >> >> 18's, >> >> Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: Hey, what happened to everyone?
So sorry about your faithful friend. I pray he has a peaceful end. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 1, 2016, at 8:16 AM, Norm wrote: > > I am still alive and kicking but one of my kickers is giving me fits. I think > it is plantar fasciitis. > > I haven't posted in awhile and miss Millie may she rest in peace. > Jeanie is my cruise mentor and my wife and I along with a few other friends > just got back a couple of weeks ago from a 7 day cruise to Jamaica, Cayman, > and Cozumel. > > We were busy with one of my cousin staying here quite often while he was > being treated for stage 4 Melanoma, he passed and is walking with Jesus now. > Way too young and such a very good person. > > My beloved dachshund, Hans, turned 12 yesterday. About a month ago we were > given the devastating news that he has lymphoma. I never knew it would be so > difficult to have to deal with the knowledge that one day, much sooner than > expected, I would have to ease his way to a comfortable ending. > I dread this as he was my buddy and comfort while I was recovering from my > relapse of CML. > He is being spoiled even more than ever now and will be until that time > comes. Millie would understand. > > April 1st will mark 13 years since my diagnosis and the start of Gleevec. > As some know, I relapsed and Gleevec no longer worked. > I was fortunate enough to get in the clinical trial for AMN107 during the > phase 1 study. > As you can tell, it worked but not before I entered blast and was one very > sick puppy. I believe that one night the angel of death came for me and for > some reason let me stay. > All I know is Dr Kantarjian tells me to thank God and I do. > > My son has finished his tour of duty with the USMC and has been discharged as > a Sargent with the Achievement medal. We are extremely proud of our son, and > our daughter who is still teaching photography to high schoolers. > > I have been training my replacements at work so I can eventually retire. I am > ready but they are not.lol.. > > My macular degeneration is stable and I have not had any shots in my eye for > almost 6 months. Still legally blind and that will not change during my > lifetime I suppose. > > I have been playing a lot of golf with my younger brother and we are having a > great time together. He is a good brother that will come and pick me up and > take me golfing even if it means spending the whole day with me. Life is good. > > This past December marked 11 years that I have been on Tasigna. I have never > been undetectable but it is generally only a few cells in 10 thousand. > > I will try to check in more often but life has been keeping me so busy. > > Blessings to all > Norm > >> On Monday, February 29, 2016 at 9:00:33 AM UTC-6, wa2yyx wrote: >> Why the silence? I miss everyone. >> >> 18's, >> >> Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: Hey, what happened to everyone?
Hi Norm and so happy to hear from you. I miss our Tasigna group. I lost my remission last year and am now on Ponatinib. It has my blood doing good with few side effect. That foot problem can hurt!!! Rub a lot of castor oil on it and soak in Epsom salts. I had the heel probably a few years ago and it lasted for 2 years. Put a castor oil pack on at night. I haven't been able to cruise lately and miss it. We are planning a Christmas cruise if my health holds up. Do you hear from our Tasigna group?? Sounds like you are doing great!!! I'm glad your eyes are better. Stay in touch and yes, I sure miss Millie Love My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 1, 2016, at 8:16 AM, Norm wrote: > > I am still alive and kicking but one of my kickers is giving me fits. I think > it is plantar fasciitis. > > I haven't posted in awhile and miss Millie may she rest in peace. > Jeanie is my cruise mentor and my wife and I along with a few other friends > just got back a couple of weeks ago from a 7 day cruise to Jamaica, Cayman, > and Cozumel. > > We were busy with one of my cousin staying here quite often while he was > being treated for stage 4 Melanoma, he passed and is walking with Jesus now. > Way too young and such a very good person. > > My beloved dachshund, Hans, turned 12 yesterday. About a month ago we were > given the devastating news that he has lymphoma. I never knew it would be so > difficult to have to deal with the knowledge that one day, much sooner than > expected, I would have to ease his way to a comfortable ending. > I dread this as he was my buddy and comfort while I was recovering from my > relapse of CML. > He is being spoiled even more than ever now and will be until that time > comes. Millie would understand. > > April 1st will mark 13 years since my diagnosis and the start of Gleevec. > As some know, I relapsed and Gleevec no longer worked. > I was fortunate enough to get in the clinical trial for AMN107 during the > phase 1 study. > As you can tell, it worked but not before I entered blast and was one very > sick puppy. I believe that one night the angel of death came for me and for > some reason let me stay. > All I know is Dr Kantarjian tells me to thank God and I do. > > My son has finished his tour of duty with the USMC and has been discharged as > a Sargent with the Achievement medal. We are extremely proud of our son, and > our daughter who is still teaching photography to high schoolers. > > I have been training my replacements at work so I can eventually retire. I am > ready but they are not.lol.. > > My macular degeneration is stable and I have not had any shots in my eye for > almost 6 months. Still legally blind and that will not change during my > lifetime I suppose. > > I have been playing a lot of golf with my younger brother and we are having a > great time together. He is a good brother that will come and pick me up and > take me golfing even if it means spending the whole day with me. Life is good. > > This past December marked 11 years that I have been on Tasigna. I have never > been undetectable but it is generally only a few cells in 10 thousand. > > I will try to check in more often but life has been keeping me so busy. > > Blessings to all > Norm > >> On Monday, February 29, 2016 at 9:00:33 AM UTC-6, wa2yyx wrote: >> Why the silence? I miss everyone. >> >> 18's, >> >> Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com.
Re: [CMLHope] Hey, what happened to everyone?
Hi all. My sisters legs and feet swell really bad. She takes 2 diuretics. She has never been on any tkis. She recently chose to have leg vein ablation. She says this has really helped. Maybe you could look into it. She had to have a heart pacer put in also. Good luck. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 2, 2016, at 4:20 AM, sherri swanson > wrote: > > Hi Marty, > > My doctor put me on Furosemide 20mg & potassium as I have low potassium to > begin with, and at 20mg it did nothing. SO of course, he increased it to 40mg > and still nothing. He switched me to a different drug Spironalactone, generic > for Aldactone and still no trips to the bathroom and the swelling did not > abate. My legs are just stubborn. So that is when all the testing started and > current I am not on any diuretic as none of them have produced a result. > Strange huh? Leave it to me to be difficult. But with all the other medical > issues I have some not so common, the doctors are doing a bunch of tests with > the hopes of find the culprit. > > I have to tell ya, I would welcome a run for the bathroom about now. LOL😁 > Anything to get rid of this excess water. > > As always, your input is most welcome. > > Cheers, > > Sherri > > >> On Tue, Mar 1, 2016 at 10:12 PM, 'judy' via CMLHope >> wrote: >> Hello This is Judy I forgot my password s I ave to wait till some one >> writes all is good t this end we got about a foot of snow and its beautiful >> Just love it. Have been off Gleevec for a few years and stillgoing Good >> Keeping up with blood tests because of other things buT all is Good with the >> counts. Take care and if you want some snow come and get it HAha JUDY >> >> >> On Monday, February 29, 2016 10:00 AM, Marty Gartenberg >> wrote: >> >> >> Why the silence? I miss everyone. >> >> 18's, >> >> Marty >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.goog
Re: [CMLHope] Hey, what happened to everyone?
Hi Sherri, That's very strange that none of those diuretics haven't worked, who knows maybe your a "late bloomer" so how long were you on them? And are you elevating your legs when you sleep? How about your salt intake? I also drink some seltzer water during the day and it seems to help me. No soda or anything that has any sugar or salt, even if it says that it is sugar free. I also have these diabetic socks that really help but you mentioned that your legs were very swollen so that probably won't work. Have you tried a lymphedemas clinic? One of my friends uses one and they usually wrap your legs in special pressure bandages and even though it may be an ongoing problem at least it works. You may also want to try some Ace bandages when you go to sleep but at first try not to make then to tight. I hope that some of these suggestions may free you into helping you along. Good luck, 18's Marty On Wed, Mar 2, 2016 at 4:20 AM, sherri swanson wrote: > Hi Marty, > > My doctor put me on Furosemide 20mg & potassium as I have low potassium to > begin with, and at 20mg it did nothing. SO of course, he increased it to > 40mg and still nothing. He switched me to a different drug Spironalactone, > generic for Aldactone and still no trips to the bathroom and the swelling > did not abate. My legs are just stubborn. So that is when all the testing > started and current I am not on any diuretic as none of them have produced > a result. Strange huh? Leave it to me to be difficult. But with all the > other medical issues I have some not so common, the doctors are doing a > bunch of tests with the hopes of find the culprit. > > I have to tell ya, I would welcome a run for the bathroom about now. LOL😁 > Anything to get rid of this excess water. > > As always, your input is most welcome. > > Cheers, > > Sherri > > > On Tue, Mar 1, 2016 at 10:12 PM, 'judy' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Hello This is Judy I forgot my password s I ave to wait till some one >> writes all is good t this end we got about a foot of snow and its >> beautiful Just love it. Have been off Gleevec for a few years and >> stillgoing Good Keeping up with blood tests because of other things buT >> all is Good with the counts. Take care and if you want some snow come and >> get it HAha JUDY >> >> >> On Monday, February 29, 2016 10:00 AM, Marty Gartenberg >> wrote: >> >> >> Why the silence? I miss everyone. >> >> 18's, >> >> Marty >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this g
Re: [CMLHope] Hey, what happened to everyone?
Hi Judy, If your waiting to get your password by getting an email from someone it won't help. However you can get your password by going into "forget your password" and put in your user name. It will let you know that you will be able to get a new password of your choosing. Been there done that many times already. If you need any help then just let me know and I will talk you through it. They will usually ask you a security question like which high school did you attend or maybe your pet's name or something that you put down when you first opened your account. Good luck and I hope that your doing well 18's, "symbol for life" Marty On Tue, Mar 1, 2016 at 11:12 PM, 'judy' via CMLHope < cmlhope@googlegroups.com> wrote: > Hello This is Judy I forgot my password s I ave to wait till some one > writes all is good t this end we got about a foot of snow and its > beautiful Just love it. Have been off Gleevec for a few years and > stillgoing Good Keeping up with blood tests because of other things buT > all is Good with the counts. Take care and if you want some snow come and > get it HAha JUDY > > > On Monday, February 29, 2016 10:00 AM, Marty Gartenberg > wrote: > > > Why the silence? I miss everyone. > > 18's, > > Marty > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 11 updates in 1 topic
?Peripheral Neuropathy. Any indication of Diabetes? Sent from my iPad > On Mar 2, 2016, at 4:30 AM, cmlhope@googlegroups.com wrote: > > > cmlhope@googlegroups.com Google Groups > Topic digest > View all topics > Hey, what happened to everyone? - 11 Updates > Hey, what happened to everyone? > Norm : Mar 01 05:16AM -0800 > > I am still alive and kicking but one of my kickers is giving me fits. I > think it is plantar fasciitis. > > I haven't posted in awhile and miss Millie may she rest in peace. > Jeanie is my cruise mentor and my wife and I along with a few other friends > just got back a couple of weeks ago from a 7 day cruise to Jamaica, Cayman, > and Cozumel. > > We were busy with one of my cousin staying here quite often while he was > being treated for stage 4 Melanoma, he passed and is walking with Jesus > now. Way too young and such a very good person. > > My beloved dachshund, Hans, turned 12 yesterday. About a month ago we were > given the devastating news that he has lymphoma. I never knew it would be > so difficult to have to deal with the knowledge that one day, much sooner > than expected, I would have to ease his way to a comfortable ending. > I dread this as he was my buddy and comfort while I was recovering from my > relapse of CML. > He is being spoiled even more than ever now and will be until that time > comes. Millie would understand. > > April 1st will mark 13 years since my diagnosis and the start of Gleevec. > As some know, I relapsed and Gleevec no longer worked. > I was fortunate enough to get in the clinical trial for AMN107 during the > phase 1 study. > As you can tell, it worked but not before I entered blast and was one very > sick puppy. I believe that one night the angel of death came for me and for > some reason let me stay. > All I know is Dr Kantarjian tells me to thank God and I do. > > My son has finished his tour of duty with the USMC and has been discharged > as a Sargent with the Achievement medal. We are extremely proud of our son, > and our daughter who is still teaching photography to high schoolers. > > I have been training my replacements at work so I can eventually retire. I > am ready but they are not.lol.. > > My macular degeneration is stable and I have not had any shots in my eye > for almost 6 months. Still legally blind and that will not change during > my lifetime I suppose. > > I have been playing a lot of golf with my younger brother and we are having > a great time together. He is a good brother that will come and pick me up > and take me golfing even if it means spending the whole day with me. Life > is good. > > This past December marked 11 years that I have been on Tasigna. I have > never been undetectable but it is generally only a few cells in 10 thousand. > > I will try to check in more often but life has been keeping me so busy. > > Blessings to all > Norm > > On Monday, February 29, 2016 at 9:00:33 AM UTC-6, wa2yyx wrote: > sherri swanson : Mar 01 08:18AM -0600 > > Hi Everyone. > > Sorry to have been so quite but I've been dealing with a lot of crazy > health issues. I've been on Gleevec for 13 years and have had every side > effect it can throw at me and have dealt with it. At the beginning of 2015 > I began having some edema in my legs and I told my GP about and he said it > was my Gleevec. I said okay I talk to my oncologist. I had had swelling > before with the Gleevec but never in my legs and never like this. SO off to > the oncologist and he said I should talk to my kidney doctor as I have > Stage 3 kidney disease. Off to the kidney doctor I went and he said it was > the Gleevec. I said I didn't think it was and told him about all the side > effects I had in the past. Well, that was the end of all the conversations. > I would see the doctors and every time they would tell me how swollen my > legs and feet were but each would point to the other and then to the > Gleevec. > > Finally in December 2015, I could no longer stand the pain and my calves > were now 24 inches around so I called my GP and got in to see him right > away. I was sent to a cardiologist and he told me the swelling was not > caused by medications. After a bunch of very expensive tests, he told me it > was the Gleevec and I had to stop it right away. I looked at him like he > was nuts and called my oncologist and told him was said. We agreed that I > would stop the Gleevec for 2 weeks and if the swelling did not improve I > would go back on it. > > After 2 weeks the swelling did not improve I actually got worse and the > oncologist would not put me back on the Gleevec as he believed that it was > now the the medication masking something that was causing the issue. He > sent me to Northwestern to see Dr. Altman. > > After meeting with her and having a tremendous amount of blood drawn and > making appointments with other specialists at Northwestern including a > cardiac oncolog
Re: [CMLHope] Hey, what happened to everyone?
Hi Angie, Thanks for the good wishes. I haven't heard of anyone with the edema issues I have that are on Gleevec. I am on a rather high dose at 600mg, and have been since I started. In my case the doctors blame Gleevec for everything. I had a toe nail that was falling off from fungus and he told me it was the Gleevec. Sometimes it is really comical the things I hear that Gleevec causes. Stay well, Sherri On Wed, Mar 2, 2016 at 3:20 AM, sherri swanson wrote: > Hi Marty, > > My doctor put me on Furosemide 20mg & potassium as I have low potassium to > begin with, and at 20mg it did nothing. SO of course, he increased it to > 40mg and still nothing. He switched me to a different drug Spironalactone, > generic for Aldactone and still no trips to the bathroom and the swelling > did not abate. My legs are just stubborn. So that is when all the testing > started and current I am not on any diuretic as none of them have produced > a result. Strange huh? Leave it to me to be difficult. But with all the > other medical issues I have some not so common, the doctors are doing a > bunch of tests with the hopes of find the culprit. > > I have to tell ya, I would welcome a run for the bathroom about now. LOL😁 > Anything to get rid of this excess water. > > As always, your input is most welcome. > > Cheers, > > Sherri > > > On Tue, Mar 1, 2016 at 10:12 PM, 'judy' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Hello This is Judy I forgot my password s I ave to wait till some one >> writes all is good t this end we got about a foot of snow and its >> beautiful Just love it. Have been off Gleevec for a few years and >> stillgoing Good Keeping up with blood tests because of other things buT >> all is Good with the counts. Take care and if you want some snow come and >> get it HAha JUDY >> >> >> On Monday, February 29, 2016 10:00 AM, Marty Gartenberg >> wrote: >> >> >> Why the silence? I miss everyone. >> >> 18's, >> >> Marty >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hey, what happened to everyone?
Hi Marty, My doctor put me on Furosemide 20mg & potassium as I have low potassium to begin with, and at 20mg it did nothing. SO of course, he increased it to 40mg and still nothing. He switched me to a different drug Spironalactone, generic for Aldactone and still no trips to the bathroom and the swelling did not abate. My legs are just stubborn. So that is when all the testing started and current I am not on any diuretic as none of them have produced a result. Strange huh? Leave it to me to be difficult. But with all the other medical issues I have some not so common, the doctors are doing a bunch of tests with the hopes of find the culprit. I have to tell ya, I would welcome a run for the bathroom about now. LOL😁 Anything to get rid of this excess water. As always, your input is most welcome. Cheers, Sherri On Tue, Mar 1, 2016 at 10:12 PM, 'judy' via CMLHope < cmlhope@googlegroups.com> wrote: > Hello This is Judy I forgot my password s I ave to wait till some one > writes all is good t this end we got about a foot of snow and its > beautiful Just love it. Have been off Gleevec for a few years and > stillgoing Good Keeping up with blood tests because of other things buT > all is Good with the counts. Take care and if you want some snow come and > get it HAha JUDY > > > On Monday, February 29, 2016 10:00 AM, Marty Gartenberg > wrote: > > > Why the silence? I miss everyone. > > 18's, > > Marty > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
