Re: [CMLHope] My annual appreciation day
Jeanie, You asked if I had been hurting. I have had a few gallbladder attacks which only lasted a couple hours and I did have pain from time to time with my hiatal hernia which I had for years. But the last gallbladder attack didn’t go away and I had to go to the ER. That’s when they did a CAT scan and found that my hiatal hernia was twisted which requires surgery to correct before it twists enough to block blood flow. So I really didn’t have much of a choice. I am so glad that it is all behind me now. I have quit taking the tamoxiphen which caused the blood clots but I don’t know how long that remains in my body. Just trusting in God to take care of me at this point. I sure wish you could get rid of that pain you have been living with for so long. I do have a cancer center. I go to the Siteman Cancer Center in St Louis, MO. I have been very happy with them so I understand when you say it is hard to change doctors when you have to, especially if you liked the previous ones. My husband goes twice a year to see Dr Talpaz at the University of Michigan Cancer Center. That is quite an expense but he has saved his life at least twice. We have no CML specialists in our area. God bless and keep you! Joyce in Southern Illinois > On Feb 22, 2018, at 6:12 AM, 'Jeanie' via CMLHope > wrote: > > Oh no Joyce, > I am so sorry. Had you been hurting? I have been in pain now for a long time > and many years later they have found nothing. I think I'm scared because many > years ago my brother who was in his late 50s went in for exploratory surgery > and they found a tumors cancer. He died not long after. > When I went in the hospital in May they still did test but found nothing. > The nurse would come in the evening and give me a shot in tummy. She said it > was to keep blood from clotting. And you got clots anyway. > That was a lot of surgery for one time. You sure are strong. So happy for > you. > Do you go to a cancer center? I've been thinking about changing since my dr > retired. It's hard to change when you've been with someone so long. > They gave me morphine in my Iv tube every 4 hours. It helped some but > nothing has really taken this pain away. > When they took my gall bladder out years ago the dr said my appendix was > setting right on top of everything so he took it out too. All this happened > when I was in late 40s. My dad has his out too at that age. I think it's > amazing how our bodies have some of the same traits as our parents. My mom > died at 87 but I don't think I'll make it as she never had any deadly > diseases. > More later > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extramine > 0 CBL. ABL > > On Feb 18, 2018, at 10:38 PM, bkbarney via CMLHope <mailto:cmlhope@googlegroups.com>> wrote: > >> Dear Joyce, Oh my gosh!!! You have been through so much!! You are amazing! . >> I am so glad you came through your surgery and complications and get to be >> back home with your hubbie...glad that your daughters were able to help out >> as well!! Glad you are back here...take good care and keep on healing >> 18s and care, >> Beth >> >> >> -Original Message- >> From: Joyce Mesnarich mailto:joy...@htc.net>> >> To: cmlhope mailto:cmlhope@googlegroups.com>> >> Sent: Fri, Feb 16, 2018 11:09 pm >> Subject: Re: [CMLHope] My annual appreciation day >> >> Beautiful slideshow, Marty. Thank you. >> Have not been on this site for 3 weeks. Went to ER with gallbladder attack >> and they did a CAT scan and noticed that my old hiatal hernia that has been >> bugging me for some 20 years had twisted, and evidently that is a very bad >> thing, because they put me in an ambulance and sent me from our local >> hospital to BarnesJewish in St Louis and said I would have emergency surgery >> as soon as I got there. That didn’t happen but I was in the hospital for 3 >> days as they did test upon test. I went home for 3 days and had surgery on >> Monday the next week. Had gallbladder removed and hiatal hernia was >> repaired. I was doing very well and planned to go home on Wednesday when my >> oxygen levels went down. Long story short: I had blood clots in both lungs >> and one in my right calf. Was in hospital for 8 days and came home using >> belly shots of Lovenox to bridge to warfarin. Am doing better and gaining >> strength. Had to eat pureed food for 2 weeks. Now on soft diet. It was a >> t
Re: [CMLHope] My annual appreciation day
Oh no Joyce, I am so sorry. Had you been hurting? I have been in pain now for a long time and many years later they have found nothing. I think I'm scared because many years ago my brother who was in his late 50s went in for exploratory surgery and they found a tumors cancer. He died not long after. When I went in the hospital in May they still did test but found nothing. The nurse would come in the evening and give me a shot in tummy. She said it was to keep blood from clotting. And you got clots anyway. That was a lot of surgery for one time. You sure are strong. So happy for you. Do you go to a cancer center? I've been thinking about changing since my dr retired. It's hard to change when you've been with someone so long. They gave me morphine in my Iv tube every 4 hours. It helped some but nothing has really taken this pain away. When they took my gall bladder out years ago the dr said my appendix was setting right on top of everything so he took it out too. All this happened when I was in late 40s. My dad has his out too at that age. I think it's amazing how our bodies have some of the same traits as our parents. My mom died at 87 but I don't think I'll make it as she never had any deadly diseases. More later My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 18, 2018, at 10:38 PM, bkbarney via CMLHope > wrote: > > Dear Joyce, Oh my gosh!!! You have been through so much!! You are amazing! . > I am so glad you came through your surgery and complications and get to be > back home with your hubbie...glad that your daughters were able to help out > as well!! Glad you are back here...take good care and keep on healing > 18s and care, > Beth > > > -Original Message- > From: Joyce Mesnarich > To: cmlhope > Sent: Fri, Feb 16, 2018 11:09 pm > Subject: Re: [CMLHope] My annual appreciation day > > Beautiful slideshow, Marty. Thank you. > Have not been on this site for 3 weeks. Went to ER with gallbladder attack > and they did a CAT scan and noticed that my old hiatal hernia that has been > bugging me for some 20 years had twisted, and evidently that is a very bad > thing, because they put me in an ambulance and sent me from our local > hospital to BarnesJewish in St Louis and said I would have emergency surgery > as soon as I got there. That didn’t happen but I was in the hospital for 3 > days as they did test upon test. I went home for 3 days and had surgery on > Monday the next week. Had gallbladder removed and hiatal hernia was repaired. > I was doing very well and planned to go home on Wednesday when my oxygen > levels went down. Long story short: I had blood clots in both lungs and one > in my right calf. Was in hospital for 8 days and came home using belly shots > of Lovenox to bridge to warfarin. Am doing better and gaining strength. Had > to eat pureed food for 2 weeks. Now on soft diet. It was a trying time > because I am the caregiver for my husband who has CML and is also legally > blind. But we pulled through with the help of our two daughters. I’ll have to > get caught up on what went on while I was out of commission. > Joyce in Southern Illinois > > > > On Feb 16, 2018, at 10:36 AM, Marty Gartenberg wrote: > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you ar
Re: [CMLHope] My annual appreciation day
Dear Joyce, Oh my gosh!!! You have been through so much!! You are amazing! . I am so glad you came through your surgery and complications and get to be back home with your hubbie...glad that your daughters were able to help out as well!! Glad you are back here...take good care and keep on healing 18s and care, Beth -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Fri, Feb 16, 2018 11:09 pm Subject: Re: [CMLHope] My annual appreciation day Beautiful slideshow, Marty. Thank you. Have not been on this site for 3 weeks. Went to ER with gallbladder attack and they did a CAT scan and noticed that my old hiatal hernia that has been bugging me for some 20 years had twisted, and evidently that is a very bad thing, because they put me in an ambulance and sent me from our local hospital to BarnesJewish in St Louis and said I would have emergency surgery as soon as I got there. That didn’t happen but I was in the hospital for 3 days as they did test upon test. I went home for 3 days and had surgery on Monday the next week. Had gallbladder removed and hiatal hernia was repaired. I was doing very well and planned to go home on Wednesday when my oxygen levels went down. Long story short: I had blood clots in both lungs and one in my right calf. Was in hospital for 8 days and came home using belly shots of Lovenox to bridge to warfarin. Am doing better and gaining strength. Had to eat pureed food for 2 weeks. Now on soft diet. It was a trying time because I am the caregiver for my husband who has CML and is also legally blind. But we pulled through with the help of our two daughters. I’ll have to get caught up on what went on while I was out of commission. Joyce in Southern Illinois > On Feb 16, 2018, at 10:36 AM, Marty Gartenberg wrote: > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] My annual appreciation day
Hi Jeanie, Sorry to hear about the pain your having. Hmm it sounds to me like a case of gout but i could be wrong, for instance the gout usually starts in the lower feet particularly in the big toe but can also manifest it self in any joint of your body. It did for me and i suffered all kinds of terrible pain. That was right after my diagnoses when i was put on Allopurinal and Hydrea. About two weeks later my gout was gone and so was my very white cell count. So what this meant is it usually takes about two weeks to distinguishes the gout. It's to bad however that my white blood count was going up until i got my BMT, but at least it "cured the gout". >From then on no more gout but every once in a while it's ugly head "craps"😖 up on me if i eat anything containing purines like red meat, mushrooms etc which is my favorite especially smothered in mushrooms. Now there is more... Once i received my BMT and my Kidney transplant i had to be put on Prednisone which will eliminate with in 30 minutes or so even when you have an active attack. I have been taking Allopurinal for over 30 years and Prednisone for the last 7 years. Yes i have no gout or very little gout for all of there years, however there is both good and bad... I have already described the good but the bad is that it increased my blood sugar level... Jeanie, i am not a doctor but to answer your question, yes i would go see a doctor because it is you that should have your questions answered. And maybe i am wrong about the gout, who knows, but something to talk about with your doctor? Okay now Jeanie i have to answer a comment that you made. It is a really good to hear that you began your post to me. I even copied and pasted it "Thanks Sweetheart" i liked that and thought it was cute and i am passing this onto you 🌷 By the way as you probably know that i live in Florida, in West Palm Beach in a town called Boynton Beach right near the Florida Turnpike. Where do you live? You have a great day. 18's, Marty On Sun, Feb 18, 2018 at 7:51 AM, 'Jeanie' via CMLHope < cmlhope@googlegroups.com> wrote: > Thanks Sweetheart > Those were beautiful. You always brighten our day. > I have been in so much pain lately and don't know if I should go to a dr > or not. It started in my little right finger and then creeped on up my > arm. Now my heel and sometimes ankles are killing me. The pain usually > wakes me up nightly. I get up and massage it good. Do any of my warriors > suggest another dr? > Anyway I loved the video and appreciation day is a wonderful idea. My > blood work show no leukemia. My pain is probably old age and the answer > more pills. Do any of you have this. It clears up during the day most of > the time. > My new dr seems to be kk. I haven't met with her that much yet. I guess > the next step would be to try and get off pills. There are trials for that. > Have a wonderful day everyone. > Love you so very much > Jeanie from Fl > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extramine > 0 CBL. ABL > > On Feb 16, 2018, at 11:36 AM, Marty Gartenberg wrote: > > So that you know my annual appreciation day could be on any day and could > happen on any other day. It was set on my actual birthday May 21st which > is also on the day of my bone marrow transplant. > > So just to let you know how much all of you mean to me i am including this > to every one of you. > Please turn the volume up, sit back and relax, and enjoy this. I sincerely > hope that it will put everything in prospective to you. > > 18's, > > Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsub
Re: [CMLHope] My annual appreciation day
Thanks Sweetheart Those were beautiful. You always brighten our day. I have been in so much pain lately and don't know if I should go to a dr or not. It started in my little right finger and then creeped on up my arm. Now my heel and sometimes ankles are killing me. The pain usually wakes me up nightly. I get up and massage it good. Do any of my warriors suggest another dr? Anyway I loved the video and appreciation day is a wonderful idea. My blood work show no leukemia. My pain is probably old age and the answer more pills. Do any of you have this. It clears up during the day most of the time. My new dr seems to be kk. I haven't met with her that much yet. I guess the next step would be to try and get off pills. There are trials for that. Have a wonderful day everyone. Love you so very much Jeanie from Fl My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 16, 2018, at 11:36 AM, Marty Gartenberg wrote: > > So that you know my annual appreciation day could be on any day and could > happen on any other day. It was set on my actual birthday May 21st which is > also on the day of my bone marrow transplant. > > So just to let you know how much all of you mean to me i am including this to > every one of you. > Please turn the volume up, sit back and relax, and enjoy this. I sincerely > hope that it will put everything in prospective to you. > > 18's, > > Marty > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] My annual appreciation day
You see Joyce that slideshow actually did it's thing for you, not to mention about why i always add my 18's. You and your husband have gone through a lot, but both of you keep on bouncing back. And i can honestly vouch for that. When your feeling lousy why don't you watch that slide show again? You know that everyone also has their own set of problems but it is in the way that they handle them. Glad that your both feeling better. This is for you... 🌷 18's, Marty On Sat, Feb 17, 2018 at 12:09 AM, Joyce Mesnarich wrote: > Beautiful slideshow, Marty. Thank you. > Have not been on this site for 3 weeks. Went to ER with gallbladder > attack and they did a CAT scan and noticed that my old hiatal hernia that > has been bugging me for some 20 years had twisted, and evidently that is a > very bad thing, because they put me in an ambulance and sent me from our > local hospital to BarnesJewish in St Louis and said I would have emergency > surgery as soon as I got there. That didn’t happen but I was in the > hospital for 3 days as they did test upon test. I went home for 3 days and > had surgery on Monday the next week. Had gallbladder removed and hiatal > hernia was repaired. I was doing very well and planned to go home on > Wednesday when my oxygen levels went down. Long story short: I had blood > clots in both lungs and one in my right calf. Was in hospital for 8 days > and came home using belly shots of Lovenox to bridge to warfarin. Am doing > better and gaining strength. Had to eat pureed food for 2 weeks. Now on > soft diet. It was a trying time because I am the caregiver for my husband > who has CML and is also legally blind. But we pulled through with the > help of our two daughters. I’ll have to get caught up on what went on > while I was out of commission. > Joyce in Southern Illinois > > > > On Feb 16, 2018, at 10:36 AM, Marty Gartenberg wrote: > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] My annual appreciation day
Beautiful slideshow, Marty. Thank you. Have not been on this site for 3 weeks. Went to ER with gallbladder attack and they did a CAT scan and noticed that my old hiatal hernia that has been bugging me for some 20 years had twisted, and evidently that is a very bad thing, because they put me in an ambulance and sent me from our local hospital to BarnesJewish in St Louis and said I would have emergency surgery as soon as I got there. That didn’t happen but I was in the hospital for 3 days as they did test upon test. I went home for 3 days and had surgery on Monday the next week. Had gallbladder removed and hiatal hernia was repaired. I was doing very well and planned to go home on Wednesday when my oxygen levels went down. Long story short: I had blood clots in both lungs and one in my right calf. Was in hospital for 8 days and came home using belly shots of Lovenox to bridge to warfarin. Am doing better and gaining strength. Had to eat pureed food for 2 weeks. Now on soft diet. It was a trying time because I am the caregiver for my husband who has CML and is also legally blind. But we pulled through with the help of our two daughters. I’ll have to get caught up on what went on while I was out of commission. Joyce in Southern Illinois > On Feb 16, 2018, at 10:36 AM, Marty Gartenberg wrote: > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
