Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Marwan Abdeh]

Dear friend
My son is badly in need of Gleevec. Pls help in any way you can. tks rgds
Marwan Abdeh

On 26 February 2012 23:55, Martin Gartenberg  wrote:
> Hey Skip, where have you been hiding. I have really missed you. Glad to be
> hearing from you again.
>
> I have been going through some difficult times with the hemodialysis and am
> starting a new kind called peritneal that can be done at home but that will
> take about a month before I can do that.
>
> You are the longest CML person that is still kicking that I know of. I don't
> know if I hold second place going on 23 years this May 21st which was the
> day I received my bone marrow transplant. May 21st was the actual day that I
> was born and on May 21st was my bone marrow transplant forty five years
> later.
>
> Been looking for you on Echolink and Skype. Don't be a stranger.
>
> Take care and 18's along with 73's my friend
>
> Marty
>
> On Sat, Feb 25, 2012 at 7:25 PM, Skip Duffie  wrote:
>>
>> Hello Victoria and Marty
>> Guess I am one who is  just resting, There are, in the CML community,
>> people
>> that say, "living so close to people who have CML, one becomes burnt out".
>> Not sure if this is the case here.  Some others are fighting health
>> problems
>> on many fronts, I do read all the posts but as you say "they are few and
>> far
>> between".  In my case I have had CML for over 35 years, whenever I
>> see a new case on here, I feel for them but let them know it is treatable.
>> Be safe all
>> SkipD
>>
>>
>> ____________
>> From: Martin Gartenberg 
>> To: cmlhope@googlegroups.com
>> Sent: Saturday, February 25, 2012 4:26:33 PM
>>
>> Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in
>> 2 Topics
>>
>> Hi Victoria,
>>
>> Sometimes some among us just decides to take a break. Sometimes others
>> become depressed at what they are reading about others. There could be a
>> host of reasons that people are not posting as they once did.
>>
>> If your talking about the "pioneers" then that is probably what I am. I
>> had CML more then 22 years ago. This May it will be my 23rd year. I had a
>> bone marrow transplant 22 years ago when the procedure was relatively new
>> and there wasn't a lot of information about it. At that time there were no
>> TKI's available so I had no other choice of getting onto a blind trial of
>> Alpha Interferon or the transplant.
>>
>> If I were to go into that trial basis I could not be guaranteed if I would
>> be receiving it or just a placebo. Since my white blood count was over
>> 486,000 at the time and I was about to go into blast chrises I opted for the
>> transplant because I had a suitable donor, my sister.
>>
>> So, there you have it, and just try to remember that sometimes people just
>> like to keep to themselves unless that are comfortable about discussing
>> their own problems with others, many of which are strangers to them.
>>
>> I always end any of my posts with the numbers 18. Those numbers 18
>> symbolizes life.
>>
>> 18's to you,
>>
>> Marty
>>
>> On Sat, Feb 25, 2012 at 9:58 AM, Victoria Reiter 
>> wrote:
>>
>> It IS strange that no one, or very few, CMLers are posting.  Have we
>> become fatigued with focusing on our chronic condition and its
>> side-effects?  How many of us have decided just to get on with our lives
>> and to live as fully as we can, trusting that Gleevec or the other
>> inhibitors will keep us going?  I think we may have forgotten how dismayed
>> (euphemism) each of us was when we were first diagnosed and how glad we were
>> to find this website and the information and support we received from it.
>> Perhaps there are other, newer CML websites meant to provide information
>> without demanding any personal, emotional involvement on the part of the
>> reader.  No doubt pioneers eventually get tired.  Maybe that's what's at
>> work here.
>>
>> On Sat, Feb 25, 2012 at 5:50 AM,  wrote:
>>
>>   Today's Topic Summary
>> Group: http://groups.google.com/group/cmlhope/topics
>>
>> FINALLY RELIEF FROM CRAMPS [1 Update]
>> No posts [1 Update]
>>
>>  FINALLY RELIEF FROM CRAMPS
>>  No posts
>> You received this message because you are subscribed to the Google Group
>> cmlhope.
>> You can post via email.
>> To unsubscribe from this group, send an empty message.
>> For more options, visit this group.
>> --
>> [CMLHope]
>

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Martin Gartenberg]

Hey Skip, where have you been hiding. I have really missed you. Glad to be
hearing from you again.

I have been going through some difficult times with the hemodialysis and am
starting a new kind called peritneal that can be done at home but that will
take about a month before I can do that.

You are the longest CML person that is still kicking that I know of. I
don't know if I hold second place going on 23 years this May 21st which was
the day I received my bone marrow transplant. May 21st was the actual day
that I was born and on May 21st was my bone marrow transplant forty five
years later.

Been looking for you on Echolink and Skype. Don't be a stranger.

Take care and 18's along with 73's my friend

Marty

On Sat, Feb 25, 2012 at 7:25 PM, Skip Duffie  wrote:

> Hello Victoria and Marty
> Guess I am one who is  just resting, There are, in the CML community,
> people
> that say, "living so close to people who have CML, one becomes burnt out".
> Not sure if this is the case here.  Some others are fighting health
> problems
> on many fronts, I do read all the posts but as you say "they are few and
> far
> between".  In my case I have had CML for over 35 years, whenever I
> see a new case on here, I feel for them but let them know it is treatable.
> Be safe all
> SkipD
>
>
>   --
> *From:* Martin Gartenberg 
> *To:* cmlhope@googlegroups.com
> *Sent:* Saturday, February 25, 2012 4:26:33 PM
>
> *Subject:* Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages
> in 2 Topics
>
> Hi Victoria,
>
> Sometimes some among us just decides to take a break. Sometimes others
> become depressed at what they are reading about others. There could be a
> host of reasons that people are not posting as they once did.
>
> If your talking about the "pioneers" then that is probably what I am. I
> had CML more then 22 years ago. This May it will be my 23rd year. I had a
> bone marrow transplant 22 years ago when the procedure was relatively new
> and there wasn't a lot of information about it. At that time there were no
> TKI's available so I had no other choice of getting onto a blind trial of
> Alpha Interferon or the transplant.
>
> If I were to go into that trial basis I could not be guaranteed if I would
> be receiving it or just a placebo. Since my white blood count was over
> 486,000 at the time and I was about to go into blast chrises I opted for
> the transplant because I had a suitable donor, my sister.
>
> So, there you have it, and just try to remember that sometimes people just
> like to keep to themselves unless that are comfortable about discussing
> their own problems with others, many of which are strangers to them.
>
> I always end any of my posts with the numbers 18. Those numbers 18
> symbolizes life.
>
> 18's to you,
>
> Marty
>
> On Sat, Feb 25, 2012 at 9:58 AM, Victoria Reiter wrote:
>
> It IS strange that no one, or very few, CMLers are posting.  Have we
> become fatigued with focusing on our chronic condition and its
> side-effects?  How many of us have decided just to get on with our lives
> and to live as fully as we can, trusting that Gleevec or the other
> inhibitors will keep us going?  I think we may have forgotten how dismayed
> (euphemism) each of us was when we were first diagnosed and how glad we
> were to find this website and the information and support we received from
> it.  Perhaps there are other, newer CML websites meant to provide
> information without demanding any personal, emotional involvement on the
> part of the reader.  No doubt pioneers eventually get tired.  Maybe that's
> what's at work here.
>
> On Sat, Feb 25, 2012 at 5:50 AM,  wrote:
>
>   Today's Topic Summary
> Group: http://groups.google.com/group/cmlhope/topics
>
>- FINALLY RELIEF FROM 
> CRAMPS<https://mail.google.com/mail/html/compose/static_files/blank_quirks.html#135b42244878824f_group_thread_0>[1
>  Update]
>- No 
> posts<https://mail.google.com/mail/html/compose/static_files/blank_quirks.html#135b42244878824f_group_thread_1>[1
>  Update]
>
>  FINALLY RELIEF FROM 
> CRAMPS<http://groups.google.com/group/cmlhope/t/538b0e9d8515a9e8>
>   No posts <http://groups.google.com/group/cmlhope/t/dbc4f55a359a3eaa>
>  You received this message because you are subscribed to the Google Group
> cmlhope.
> You can post via email .
> To unsubscribe from this group, sendan 
> empty message.
> For more options, visit <http://groups.google.com/group/cmlhope/topics>this 
> group.
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
&g

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Skip Duffie]

Hello Victoria and Marty
Guess I am one who is  just resting, There are, in the CML community, people
that say, "living so close to people who have CML, one becomes burnt out".
Not sure if this is the case here.  Some others are fighting health problems 
on many fronts, I do read all the posts but as you say "they are few and far
between".  In my case I have had CML for over 35 years, whenever I 
see a new case on here, I feel for them but let them know it is treatable.
Be safe all 
SkipD




 From: Martin Gartenberg 
To: cmlhope@googlegroups.com 
Sent: Saturday, February 25, 2012 4:26:33 PM
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 
Topics
 

Hi Victoria,
 
Sometimes some among us just decides to take a break. Sometimes others become 
depressed at what they are reading about others. There could be a host of 
reasons that people are not posting as they once did. 
 
If your talking about the "pioneers" then that is probably what I am. I had CML 
more then 22 years ago. This May it will be my 23rd year. I had a bone marrow 
transplant 22 years ago when the procedure was relatively new and there wasn't 
a lot of information about it. At that time there were no TKI's available so I 
had no other choice of getting onto a blind trial of Alpha Interferon or the 
transplant. 
 
If I were to go into that trial basis I could not be guaranteed if I would be 
receiving it or just a placebo. Since my white blood count was over 486,000 at 
the time and I was about to go into blast chrises I opted for the transplant 
because I had a suitable donor, my sister.
 
So, there you have it, and just try to remember that sometimes people just like 
to keep to themselves unless that are comfortable about discussing their own 
problems with others, many of which are strangers to them.
 
I always end any of my posts with the numbers 18. Those numbers 18 symbolizes 
life.
 
18's to you,
 
Marty


On Sat, Feb 25, 2012 at 9:58 AM, Victoria Reiter  wrote:

It IS strange that no one, or very few, CMLers are posting.  Have we become 
fatigued with focusing on our chronic condition and its side-effects?  How many 
of us have decided just to get on with our lives and to live as fully as we 
can, trusting that Gleevec or the other inhibitors will keep us going?  I think 
we may have forgotten how dismayed (euphemism) each of us was when we were 
first diagnosed and how glad we were to find this website and the information 
and support we received from it.  Perhaps there are other, newer CML websites 
meant to provide information without demanding any personal, emotional 
involvement on the part of the reader.  No doubt pioneers eventually get 
tired.  Maybe that's what's at work here.   
>
>
>On Sat, Feb 25, 2012 at 5:50 AM,  wrote:
>
>  Today's Topic Summary
>>Group: http://groups.google.com/group/cmlhope/topics
>>  * FINALLY RELIEF FROM CRAMPS [1 Update]
>>  * No posts [1 Update] 
>> FINALLY RELIEF FROM CRAMPS 
>> No posts
>>You received this message because you are subscribed to the Google Group 
>>cmlhope.
>>You can post via email.
>>To unsubscribe from this group, send an empty message.
>>For more options, visit this group.
>>-- 
>>[CMLHope]
>>A support group of http://cmlhope.com
>>-
>> 
>>You received this message because you are subscribed to the Google Groups 
>>"CMLHope" group.
>>To post to this group, send email to CMLHope@googlegroups.com
>>To unsubscribe from this group, send email to 
>>cmlhope-unsubscr...@googlegroups.com
>>For more options, visit this group at http://groups.google.com/group/CMLHope
>
-- 
>[CMLHope]
>A support group of http://cmlhope.com
>-
> 
>You received this message because you are subscribed to the Google Groups 
>"CMLHope" group.
>To post to this group, send email to CMLHope@googlegroups.com
>To unsubscribe from this group, send email to 
>cmlhope-unsubscr...@googlegroups.com
>For more options, visit this group at http://groups.google.com/group/CMLHope

-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
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To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
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A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Martin Gartenberg]

Hi Victoria,

Sometimes some among us just decides to take a break. Sometimes others
become depressed at what they are reading about others. There could be a
host of reasons that people are not posting as they once did.

If your talking about the "pioneers" then that is probably what I am. I had
CML more then 22 years ago. This May it will be my 23rd year. I had a bone
marrow transplant 22 years ago when the procedure was relatively new and
there wasn't a lot of information about it. At that time there were no
TKI's available so I had no other choice of getting onto a blind trial of
Alpha Interferon or the transplant.

If I were to go into that trial basis I could not be guaranteed if I would
be receiving it or just a placebo. Since my white blood count was over
486,000 at the time and I was about to go into blast chrises I opted for
the transplant because I had a suitable donor, my sister.

So, there you have it, and just try to remember that sometimes people just
like to keep to themselves unless that are comfortable about discussing
their own problems with others, many of which are strangers to them.

I always end any of my posts with the numbers 18. Those numbers 18
symbolizes life.

18's to you,

Marty

On Sat, Feb 25, 2012 at 9:58 AM, Victoria Reiter  wrote:

> It IS strange that no one, or very few, CMLers are posting.  Have we
> become fatigued with focusing on our chronic condition and its
> side-effects?  How many of us have decided just to get on with our lives
> and to live as fully as we can, trusting that Gleevec or the other
> inhibitors will keep us going?  I think we may have forgotten how dismayed
> (euphemism) each of us was when we were first diagnosed and how glad we
> were to find this website and the information and support we received from
> it.  Perhaps there are other, newer CML websites meant to provide
> information without demanding any personal, emotional involvement on the
> part of the reader.  No doubt pioneers eventually get tired.  Maybe that's
> what's at work here.
>
> On Sat, Feb 25, 2012 at 5:50 AM,  wrote:
>
>>   Today's Topic Summary
>>
>> Group: http://groups.google.com/group/cmlhope/topics
>>
>>- FINALLY RELIEF FROM 
>> CRAMPS[1
>>  Update]
>>- No 
>> posts[1
>>  Update]
>>
>>  FINALLY RELIEF FROM 
>> CRAMPS
>>
>>dstuede...@aol.com Feb 24 05:05PM -0500
>>
>>My husband found an ointment that really eliminates the excruciating
>>leg
>>cramps (a side effect of Gleevec). It is called Pain Gon. It reacts
>>fast
>>when applied to the affected area. For more information call Heather
>>Duncan
>>(Quad City Physical Therapy) at 563-359-3799.
>>
>>
>>
>>  No posts 
>>
>>myvet...@aol.com Feb 24 08:33AM -0500
>>
>>I'm receiving posts. Seems that no one is sending out emails. greenie
>>
>>
>>In a message dated 2/24/2012 12:46:29 A.M. Eastern Standard Time,
>>joy...@htc.net writes:
>>
>>Where did everybody go??? Have not received a post for many days now.
>>Checked my email settings and quarantine box. Everything looks good.
>>Can't
>>believe no one is posting. Anybody else having problems, other than
>>Richard and I?
>>Joyce in IL
>>
>>--
>>[CMLHope]
>>A support group of http://cmlhope.com
>>-
>>
>>You received this message because you are subscribed to the Google
>>Groups
>>"CMLHope" group.
>>To post to this group, send email to CMLHope@googlegroups.com
>>To unsubscribe from this group, send email to
>>cmlhope-unsubscr...@googlegroups.com
>>For more options, visit this group at
>>http://groups.google.com/group/CMLHope
>>
>>
>>
>>  You received this message because you are subscribed to the Google
>> Group cmlhope.
>> You can post via email .
>> To unsubscribe from this group, sendan 
>> empty message.
>> For more options, visit this 
>> group.
>>
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at
>> http://groups.google.com/group/CMLHope
>>
>
>  --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to 

RE: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Pat Elliott]

Not sure why people are not posting here, but they are definitely out there
posting, and  in multiple groups. The public visibility of posts may be a
key factor for this group, especially  in the US where healthcare is
dependent on an employer in so many cases. People still have questions and
need answers –one extreme example I saw was a person in a group for cats
with feline leukemia, who got nonsense answers back, an indicator of  how
desperate people can be to find resources and what they may encounter. 

 

Our population is growing, which is a good thing from the standpoint of the
growth coming from survival. The need for accurate information is growing
too with the expansion of treatment options and the new clinical trials
focused on side effect support and cures. It does seem like people are the
most engaged in the first two years. The drug company literature is focused
on the first two years as is the content of many of the educational programs
they fund for patients. We all know that is inadequate. 

 

Many of us are working hard, around the world, to change this and developing
new support services for the long run. In the US, patients are now able to
meet others face to face through the CML Connection support groups which are
growing in number and need experienced, educated leaders to serve as
facilitators. In some countries people whose only choice in the past was to
use translation services to participate in English language groups now have
educational materials and groups online in their native language for
support. There’s a lot going on, and many positive developments, with more
to come. 

 

Pat Elliott

Phoenix, Arizona 

 

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf
Of Victoria Reiter
Sent: Saturday, February 25, 2012 7:58 AM
To: cmlhope@googlegroups.com
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2
Topics

 

It IS strange that no one, or very few, CMLers are posting.  Have we become
fatigued with focusing on our chronic condition and its side-effects?  How
many of us have decided just to get on with our lives and to live as fully
as we can, trusting that Gleevec or the other inhibitors will keep us going?
I think we may have forgotten how dismayed (euphemism) each of us was when
we were first diagnosed and how glad we were to find this website and the
information and support we received from it.  Perhaps there are other, newer
CML websites meant to provide information without demanding any personal,
emotional involvement on the part of the reader.  No doubt pioneers
eventually get tired.  Maybe that's what's at work here.   

On Sat, Feb 25, 2012 at 5:50 AM,  wrote:

  Today's Topic Summary

Group:  <http://groups.google.com/group/cmlhope/topics>
http://groups.google.com/group/cmlhope/topics

§
<https://mail.google.com/mail/html/compose/static_files/blank_quirks.html#13
5b42244878824f_group_thread_0> FINALLY RELIEF FROM CRAMPS [1 Update]

§
<https://mail.google.com/mail/html/compose/static_files/blank_quirks.html#13
5b42244878824f_group_thread_1> No posts [1 Update]

  <http://groups.google.com/group/cmlhope/t/538b0e9d8515a9e8> FINALLY RELIEF
FROM CRAMPS

dstuede...@aol.com Feb 24 05:05PM -0500  

My husband found an ointment that really eliminates the excruciating leg 
cramps (a side effect of Gleevec). It is called Pain Gon. It reacts fast 
when applied to the affected area. For more information call Heather Duncan 
(Quad City Physical Therapy) at 563-359-3799.

 

  <http://groups.google.com/group/cmlhope/t/dbc4f55a359a3eaa> No posts

myvet...@aol.com Feb 24 08:33AM -0500  

I'm receiving posts. Seems that no one is sending out emails. greenie


In a message dated 2/24/2012 12:46:29 A.M. Eastern Standard Time, 
joy...@htc.net writes:
 
Where did everybody go??? Have not received a post for many days now. 
Checked my email settings and quarantine box. Everything looks good. Can't 
believe no one is posting. Anybody else having problems, other than 
Richard and I?
Joyce in IL
 
-- 
[CMLHope]
A support group of http://cmlhope.com <http://cmlhope.com/> 
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at 
http://groups.google.com/group/CMLHope

 

You received this message because you are subscribed to the Google Group
cmlhope.
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To unsubscribe from this group,
<mailto:cmlhope+unsubscr...@googlegroups.com> send an empty message.
For more options,  <http://groups.google.com/group/cmlhope/topics> visit
this group.

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[CMLHope]
A support group of http://cmlhope.com <http://cmlhope.com/> 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[lrc lrc]

Actually why many stopped posting was because the posters names are showing
up on the internet and many do not want their employer, clients etc to know
they have CML.  Just Google cmlhope and you get the link to ever post on
this thread
On Feb 25, 2012 9:58 AM, "Victoria Reiter"  wrote:

> It IS strange that no one, or very few, CMLers are posting.  Have we
> become fatigued with focusing on our chronic condition and its
> side-effects?  How many of us have decided just to get on with our lives
> and to live as fully as we can, trusting that Gleevec or the other
> inhibitors will keep us going?  I think we may have forgotten how dismayed
> (euphemism) each of us was when we were first diagnosed and how glad we
> were to find this website and the information and support we received from
> it.  Perhaps there are other, newer CML websites meant to provide
> information without demanding any personal, emotional involvement on the
> part of the reader.  No doubt pioneers eventually get tired.  Maybe that's
> what's at work here.
>
> On Sat, Feb 25, 2012 at 5:50 AM,  wrote:
>
>>   Today's Topic Summary
>>
>> Group: http://groups.google.com/group/cmlhope/topics
>>
>>- FINALLY RELIEF FROM 
>> CRAMPS[1
>>  Update]
>>- No 
>> posts[1
>>  Update]
>>
>>  FINALLY RELIEF FROM 
>> CRAMPS
>>
>>dstuede...@aol.com Feb 24 05:05PM -0500
>>
>>My husband found an ointment that really eliminates the excruciating
>>leg
>>cramps (a side effect of Gleevec). It is called Pain Gon. It reacts
>>fast
>>when applied to the affected area. For more information call Heather
>>Duncan
>>(Quad City Physical Therapy) at 563-359-3799.
>>
>>
>>
>>  No posts 
>>
>>myvet...@aol.com Feb 24 08:33AM -0500
>>
>>I'm receiving posts. Seems that no one is sending out emails. greenie
>>
>>
>>In a message dated 2/24/2012 12:46:29 A.M. Eastern Standard Time,
>>joy...@htc.net writes:
>>
>>Where did everybody go??? Have not received a post for many days now.
>>Checked my email settings and quarantine box. Everything looks good.
>>Can't
>>believe no one is posting. Anybody else having problems, other than
>>Richard and I?
>>Joyce in IL
>>
>>--
>>[CMLHope]
>>A support group of http://cmlhope.com
>>-
>>
>>You received this message because you are subscribed to the Google
>>Groups
>>"CMLHope" group.
>>To post to this group, send email to CMLHope@googlegroups.com
>>To unsubscribe from this group, send email to
>>cmlhope-unsubscr...@googlegroups.com
>>For more options, visit this group at
>>http://groups.google.com/group/CMLHope
>>
>>
>>
>>  You received this message because you are subscribed to the Google
>> Group cmlhope.
>> You can post via email .
>> To unsubscribe from this group, sendan 
>> empty message.
>> For more options, visit this 
>> group.
>>
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
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>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at
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>
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> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
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> To post to this group, send email to CMLHope@googlegroups.com
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-- 
[CMLHope]
A support group of http://cmlhope.com
-

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Victoria Reiter]

It IS strange that no one, or very few, CMLers are posting.  Have we become
fatigued with focusing on our chronic condition and its side-effects?  How
many of us have decided just to get on with our lives and to live as fully
as we can, trusting that Gleevec or the other inhibitors will keep us
going?  I think we may have forgotten how dismayed (euphemism) each of us
was when we were first diagnosed and how glad we were to find this website
and the information and support we received from it.  Perhaps there are
other, newer CML websites meant to provide information without demanding
any personal, emotional involvement on the part of the reader.  No doubt
pioneers eventually get tired.  Maybe that's what's at work here.

On Sat, Feb 25, 2012 at 5:50 AM,  wrote:

>   Today's Topic Summary
>
> Group: http://groups.google.com/group/cmlhope/topics
>
>- FINALLY RELIEF FROM 
> CRAMPS[1
>  Update]
>- No 
> posts[1
>  Update]
>
>  FINALLY RELIEF FROM 
> CRAMPS
>
>dstuede...@aol.com Feb 24 05:05PM -0500
>
>My husband found an ointment that really eliminates the excruciating
>leg
>cramps (a side effect of Gleevec). It is called Pain Gon. It reacts
>fast
>when applied to the affected area. For more information call Heather
>Duncan
>(Quad City Physical Therapy) at 563-359-3799.
>
>
>
>  No posts 
>
>myvet...@aol.com Feb 24 08:33AM -0500
>
>I'm receiving posts. Seems that no one is sending out emails. greenie
>
>
>In a message dated 2/24/2012 12:46:29 A.M. Eastern Standard Time,
>joy...@htc.net writes:
>
>Where did everybody go??? Have not received a post for many days now.
>Checked my email settings and quarantine box. Everything looks good.
>Can't
>believe no one is posting. Anybody else having problems, other than
>Richard and I?
>Joyce in IL
>
>--
>[CMLHope]
>A support group of http://cmlhope.com
>-
>
>You received this message because you are subscribed to the Google
>Groups
>"CMLHope" group.
>To post to this group, send email to CMLHope@googlegroups.com
>To unsubscribe from this group, send email to
>cmlhope-unsubscr...@googlegroups.com
>For more options, visit this group at
>http://groups.google.com/group/CMLHope
>
>
>
>  You received this message because you are subscribed to the Google Group
> cmlhope.
> You can post via email .
> To unsubscribe from this group, sendan 
> empty message.
> For more options, visit this 
> group.
>
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
>

-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
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For more options, visit this group at http://groups.google.com/group/CMLHope

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[rszim0...@aol.com]

About the nosebleedsyes I had them very infrequently while on gleevec for 2 
1/2 yrs. Maybe two times.   I ended up with more eye bleeds than nosebleeds.  
Those were very frequent.  Then I had a brain bleed and quit the gleevec.  Now 
on nothing for the last 4 1/2 yrs.  Still in cellular remission and praying to 
stay that way.  I am so thankful with my fingers crossedlol

Susan F. Zimmerman
 


"Look among the nations and watch; be utterly astounded!  For I will work a 
work in your days which you would not believe, though it were told you."  Hab. 
1:5

 

 

-Original Message-
From: Cakrek 
To: cmlhope 
Sent: Fri, Sep 30, 2011 7:45 am
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 
Topics


I was taken off Gleevec in March due to acute kidney failure. Started Sprycel 
one week later. I am doing much better  on Sprycel than Gleevec. i had very 
serious side effects for 10 years, The cramps are gone, I have stopped throwing 
up, my hemoglobin has climbed from 9 to 11, my white count is up to normal, and 
my kidneys are slowly recovering. I am on 100mg daily. The only 2 side effects 
I am having now is bone pain in my legs and a rash. Overall, I feel so much 
better. I am also a Michigan resident. Where do you treat at? I see Dr Shurafa 
at Great lakes Cancer Management in Grosse Point.  I started with him when he 
was at Henry ford in Detroit. wonderful man.  Carol kalat
 

In a message dated 9/30/2011 6:35:21 A.M. Eastern Daylight Time, 
cmlhope@googlegroups.com writes:
  
Today's Topic Summary
  
Group: http://groups.google.com/group/cmlhope/topics
  

Just got the bad news, Gleevec out after 7 years! [1 Update] 
Problems with Food and Gleevec [1 Update] 
  
 Topic:   Just got the bad news, Gleevec out after 7 years!
  
teepee...@aol.com Sep 29 10:18PM -0400 ^

 
Could anyone give me info about nose bleeds and Gleevec
Teepee


In a message dated 3/29/2011 8:58:13 A.M. Eastern Daylight Time, 
kneesrb...@gmail.com writes:
 
Thannk you for the information. 
 
On Wed, Mar 23, 2011 at 4:38 PM, John Kuptz <_jkuptz@milwpc.com_ 
(mailto:jku...@milwpc.com) > wrote:
 
I was diagnosed in 11-05 and started on Gleevec but within 2 months had 
developed liver function failure. Was started on Sprycel 70mg bid and that 
just about wiped out my platlets. Waited for bone marrow to recover and was 
put on only 20 mg bid. I have been on that ever since. My pcr tests 
comes back UNDECTABLE almost every time they do it every three months. Once 
in 
a great while a very smalll amount is detected. Onocologist said that is
 
the name of the game. I do have joint pain and have put on 30 lbs but 
basically that is the only side effect in 4 years. Best of luck to you.
Carolyn
- Original Message - From: "kneesrbad2" <_kneesrbad2@gmail.com_ 
(mailto:kneesrb...@gmail.com) >
To: "CMLHope" <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) 

 
Sent: Tuesday, March 22, 2011 10:59 PM 
 
Subject: [CMLHope] Just got the bad news, Gleevec out after 7 years!
 
 
 
 
 

I don't know what went wrong but my abnormal cells increased 3 fold on
my last BMA. Now going onto Sprycel! I need everyone who is on
Sprycel to give me your quick stories of what to expect with the new
round of side affects from Sprycel. On Gleevec, here is MY list of
side affects, Diarehea, fatique, eye bleeds, water retention, thin
skin, pale skin (burn easily), cramps, sinus operation, pumpkin face,
joint pains, insomnia, etc etc etc.
 
What am I faced with for side affects on Sprycel? Suppose to start
it next week.
 
I am a 55 year old, male, Michigan resident, DX'd on my Wedding
anniversary in 2004, in full blast stage with a spleen they were going
to take out immediately and when I say immediately, I mean 3:30 am
with a full siren ambulance to a major hospital but they saved it!! I
was tested for a full Bone Marrow Transplant with my brothers and I
have a 100% match from my younger brother if I need it. I just want
to hear the good, the bad and the ugly from those on Sprycel,
please.
 
Also, and almost as important to our CML family for one reason or
another I have a few extra bottles of Gleevec 400 mg bottles still
with the seal on it if anyone is interested in talking with me in
private. I would like to help someone who may have a huge co pay on
their Gleevec payments. This will be handled away from this site and
all parties will get to know who the other parties are. I just don't
want these expensive drugs to go to waste because my body decides, the
heck with you, drug change.
 
Please reply and let me know! Thanks
 
-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
-

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[LearnToBallroomDanceOnline.com]

Hi group,

Can't compare Sprycel with Gleevec, because I have only taken Sprycel, but I
have found that taking it at night helps.
Here is a bunch of info on my experiences with leukemia, the drug, doctors,
etc.
http://www.leukemiasurvivor.co/2011/07/sprycel-dasatinib-at-night-seems-to.html

Hope you all have a great day!

On Fri, Sep 30, 2011 at 4:52 AM, lrc lrc  wrote:

> U of M Dr Talpaz one of the discovering doctors for all cml drugs.  Your
> doctor probably confers with Dr Talpaz.
> On Sep 30, 2011 7:45 AM,  wrote:
> > I was taken off Gleevec in March due to acute kidney failure. Started
> > Sprycel one week later. I am doing much better on Sprycel than Gleevec. i
> had
> > very serious side effects for 10 years, The cramps are gone, I have
> stopped
> > throwing up, my hemoglobin has climbed from 9 to 11, my white count is up
>
> > to normal, and my kidneys are slowly recovering. I am on 100mg daily. The
>
> > only 2 side effects I am having now is bone pain in my legs and a rash.
> > Overall, I feel so much better. I am also a Michigan resident. Where do
> you
> > treat at? I see Dr Shurafa at Great lakes Cancer Management in Grosse
> Point. I
> > started with him when he was at Henry ford in Detroit. wonderful man.
> > Carol kalat
> >
> >
> > In a message dated 9/30/2011 6:35:21 A.M. Eastern Daylight Time,
> > cmlhope@googlegroups.com writes:
> >
> > Today's Topic Summary
> > Group: _http://groups.google.com/group/cmlhope/topics_
> > (http://groups.google.com/group/cmlhope/topics)
> > * _Just got the bad news, Gleevec out after 7 years!_
> > (mip://09e06990/default.html#group_thread_0) [1 Update]
> > * _Problems with Food and Gleevec_
> > (mip://09e06990/default.html#group_thread_1) [1 Update]
> > Topic: _Just got the bad news, Gleevec out after 7 years!_
> > (http://groups.google.com/group/cmlhope/t/d1cf240f129f33ff)
> > teepee...@aol.com Sep 29 10:18PM -0400 _^_
> > (mip://09e06990/default.html#digest_top)
> >
> >
> > Could anyone give me info about nose bleeds and Gleevec
> > Teepee
> >
> >
> > In a message dated 3/29/2011 8:58:13 A.M. Eastern Daylight Time,
> > kneesrb...@gmail.com writes:
> >
> > Thannk you for the information.
> >
> > On Wed, Mar 23, 2011 at 4:38 PM, John Kuptz <_jkuptz@milwpc.com_
> > (mailto:jku...@milwpc.com) > wrote:
> >
> > I was diagnosed in 11-05 and started on Gleevec but within 2 months had
> > developed liver function failure. Was started on Sprycel 70mg bid and
> that
> > just about wiped out my platlets. Waited for bone marrow to recover and
> > was
> > put on only 20 mg bid. I have been on that ever since. My pcr tests
> > comes back UNDECTABLE almost every time they do it every three months.
> > Once in
> > a great while a very smalll amount is detected. Onocologist said that is
> > the name of the game. I do have joint pain and have put on 30 lbs but
> > basically that is the only side effect in 4 years. Best of luck to you.
> > Carolyn
> > - Original Message - From: "kneesrbad2" <_kneesrbad2@gmail.com_
> > (mailto:kneesrb...@gmail.com) >
> > To: "CMLHope" <_cmlhope@googlegroups.com_
> > (mailto:cmlhope@googlegroups.com)
> >
> > Sent: Tuesday, March 22, 2011 10:59 PM
> >
> > Subject: [CMLHope] Just got the bad news, Gleevec out after 7 years!
> >
> >
> >
> >
> >
> >
> > I don't know what went wrong but my abnormal cells increased 3 fold on
> > my last BMA. Now going onto Sprycel! I need everyone who is on
> > Sprycel to give me your quick stories of what to expect with the new
> > round of side affects from Sprycel. On Gleevec, here is MY list of
> > side affects, Diarehea, fatique, eye bleeds, water retention, thin
> > skin, pale skin (burn easily), cramps, sinus operation, pumpkin face,
> > joint pains, insomnia, etc etc etc.
> >
> > What am I faced with for side affects on Sprycel? Suppose to start
> > it next week.
> >
> > I am a 55 year old, male, Michigan resident, DX'd on my Wedding
> > anniversary in 2004, in full blast stage with a spleen they were going
> > to take out immediately and when I say immediately, I mean 3:30 am
> > with a full siren ambulance to a major hospital but they saved it!! I
> > was tested for a full Bone Marrow Transplant with my brothers and I
> > have a 100% match from my younger brother if I need it. I just want
> > to hear the good, the bad and the ugly from those on Sprycel,
> > please.
> >
> > Also, and almost as important to our CML family for one reason or
> > another I have a few extra bottles of Gleevec 400 mg bottles still
> > with the seal on it if anyone is interested in talking with me in
> > private. I would like to help someone who may have a huge co pay on
> > their Gleevec payments. This will be handled away from this site and
> > all parties will get to know who the other parties are. I just don't
> > want these expensive drugs to go to waste because my body decides, the
> > heck with you, drug change.
> >
> > Please reply and let me know! Thanks
> >
> > --
> > [CMLHope]
> > A support group of __http://

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[lrc lrc]

U of M Dr Talpaz one of the discovering doctors for all cml drugs.  Your
doctor probably confers with Dr Talpaz.
On Sep 30, 2011 7:45 AM,  wrote:
> I was taken off Gleevec in March due to acute kidney failure. Started
> Sprycel one week later. I am doing much better on Sprycel than Gleevec. i
had
> very serious side effects for 10 years, The cramps are gone, I have
stopped
> throwing up, my hemoglobin has climbed from 9 to 11, my white count is up
> to normal, and my kidneys are slowly recovering. I am on 100mg daily. The
> only 2 side effects I am having now is bone pain in my legs and a rash.
> Overall, I feel so much better. I am also a Michigan resident. Where do
you
> treat at? I see Dr Shurafa at Great lakes Cancer Management in Grosse
Point. I
> started with him when he was at Henry ford in Detroit. wonderful man.
> Carol kalat
>
>
> In a message dated 9/30/2011 6:35:21 A.M. Eastern Daylight Time,
> cmlhope@googlegroups.com writes:
>
> Today's Topic Summary
> Group: _http://groups.google.com/group/cmlhope/topics_
> (http://groups.google.com/group/cmlhope/topics)
> * _Just got the bad news, Gleevec out after 7 years!_
> (mip://09e06990/default.html#group_thread_0) [1 Update]
> * _Problems with Food and Gleevec_
> (mip://09e06990/default.html#group_thread_1) [1 Update]
> Topic: _Just got the bad news, Gleevec out after 7 years!_
> (http://groups.google.com/group/cmlhope/t/d1cf240f129f33ff)
> teepee...@aol.com Sep 29 10:18PM -0400 _^_
> (mip://09e06990/default.html#digest_top)
>
>
> Could anyone give me info about nose bleeds and Gleevec
> Teepee
>
>
> In a message dated 3/29/2011 8:58:13 A.M. Eastern Daylight Time,
> kneesrb...@gmail.com writes:
>
> Thannk you for the information.
>
> On Wed, Mar 23, 2011 at 4:38 PM, John Kuptz <_jkuptz@milwpc.com_
> (mailto:jku...@milwpc.com) > wrote:
>
> I was diagnosed in 11-05 and started on Gleevec but within 2 months had
> developed liver function failure. Was started on Sprycel 70mg bid and that

> just about wiped out my platlets. Waited for bone marrow to recover and
> was
> put on only 20 mg bid. I have been on that ever since. My pcr tests
> comes back UNDECTABLE almost every time they do it every three months.
> Once in
> a great while a very smalll amount is detected. Onocologist said that is
> the name of the game. I do have joint pain and have put on 30 lbs but
> basically that is the only side effect in 4 years. Best of luck to you.
> Carolyn
> - Original Message - From: "kneesrbad2" <_kneesrbad2@gmail.com_
> (mailto:kneesrb...@gmail.com) >
> To: "CMLHope" <_cmlhope@googlegroups.com_
> (mailto:cmlhope@googlegroups.com)
>
> Sent: Tuesday, March 22, 2011 10:59 PM
>
> Subject: [CMLHope] Just got the bad news, Gleevec out after 7 years!
>
>
>
>
>
>
> I don't know what went wrong but my abnormal cells increased 3 fold on
> my last BMA. Now going onto Sprycel! I need everyone who is on
> Sprycel to give me your quick stories of what to expect with the new
> round of side affects from Sprycel. On Gleevec, here is MY list of
> side affects, Diarehea, fatique, eye bleeds, water retention, thin
> skin, pale skin (burn easily), cramps, sinus operation, pumpkin face,
> joint pains, insomnia, etc etc etc.
>
> What am I faced with for side affects on Sprycel? Suppose to start
> it next week.
>
> I am a 55 year old, male, Michigan resident, DX'd on my Wedding
> anniversary in 2004, in full blast stage with a spleen they were going
> to take out immediately and when I say immediately, I mean 3:30 am
> with a full siren ambulance to a major hospital but they saved it!! I
> was tested for a full Bone Marrow Transplant with my brothers and I
> have a 100% match from my younger brother if I need it. I just want
> to hear the good, the bad and the ugly from those on Sprycel,
> please.
>
> Also, and almost as important to our CML family for one reason or
> another I have a few extra bottles of Gleevec 400 mg bottles still
> with the seal on it if anyone is interested in talking with me in
> private. I would like to help someone who may have a huge co pay on
> their Gleevec payments. This will be handled away from this site and
> all parties will get to know who the other parties are. I just don't
> want these expensive drugs to go to waste because my body decides, the
> heck with you, drug change.
>
> Please reply and let me know! Thanks
>
> --
> [CMLHope]
> A support group of __http://cmlhope.com__ (http://cmlhope.com_/)
> (_http://cmlhope.com/_ (http://cmlhope.com/) )
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to _CMLHope@googlegroups.com_
> (mailto:CMLHope@googlegroups.com)
> To unsubscribe from this group, send email to
> _CMLHope-unsubscribe@googlegroups.com_
> (mailto:cmlhope-unsubscr...@googlegroups.com)
> For more options, visit this group at
> __http://groups.google.com/group/CMLHope__
> (http://groups.google.com/grou

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Cakrek]

I was taken off Gleevec in March due to acute kidney failure. Started  
Sprycel one week later. I am doing much better  on Sprycel than Gleevec. i  had 
very serious side effects for 10 years, The cramps are gone, I have stopped  
throwing up, my hemoglobin has climbed from 9 to 11, my white count is up 
to  normal, and my kidneys are slowly recovering. I am on 100mg daily. The 
only 2  side effects I am having now is bone pain in my legs and a rash. 
Overall, I feel  so much better. I am also a Michigan resident. Where do you 
treat at? I see Dr  Shurafa at Great lakes Cancer Management in Grosse Point.  
I 
started with  him when he was at Henry ford in Detroit. wonderful man.  
Carol kalat
 
 
In a message dated 9/30/2011 6:35:21 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

   Today's Topic Summary
Group: _http://groups.google.com/group/cmlhope/topics_ 
(http://groups.google.com/group/cmlhope/topics)  
*   _Just got the bad news,  Gleevec out after 7 years!_ 
(mip://09e06990/default.html#group_thread_0)  [1 Update]  
*   _Problems with Food and  Gleevec_ 
(mip://09e06990/default.html#group_thread_1)  [1 Update] 
 Topic:  _Just got the bad news, Gleevec out after 7 years!_ 
(http://groups.google.com/group/cmlhope/t/d1cf240f129f33ff) 
teepee...@aol.com Sep 29 10:18PM  -0400 _^_ 
(mip://09e06990/default.html#digest_top) 


Could anyone give  me info about nose bleeds and Gleevec
Teepee


In a message  dated 3/29/2011 8:58:13 A.M. Eastern Daylight Time, 
kneesrb...@gmail.com  writes:

Thannk you for the information. 

On Wed,  Mar 23, 2011 at 4:38 PM, John Kuptz <_jkuptz@milwpc.com_  
(mailto:jku...@milwpc.com) > wrote:

I was diagnosed in  11-05 and started on Gleevec but within 2 months had 
developed liver  function failure. Was started on Sprycel 70mg bid and that 
just about  wiped out my platlets. Waited for bone marrow to recover and 
was 
put on  only 20 mg bid. I have been on that ever since. My pcr tests 
comes back  UNDECTABLE almost every time they do it every three months. 
Once in 
a  great while a very smalll amount is detected. Onocologist said that is  
the name of the game. I do have joint pain and have put on 30 lbs but  
basically that is the only side effect in 4 years. Best of luck to  you.
Carolyn
- Original Message - From: "kneesrbad2"  <_kneesrbad2@gmail.com_ 
(mailto:kneesrb...@gmail.com) >
To:  "CMLHope" <_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com)  

Sent: Tuesday, March 22, 2011 10:59 PM 

Subject:  [CMLHope] Just got the bad news, Gleevec out after 7  years!






I don't know  what went wrong but my abnormal cells increased 3 fold on
my last BMA.  Now going onto Sprycel! I need everyone who is on
Sprycel to give me your  quick stories of what to expect with the new
round of side affects from  Sprycel. On Gleevec, here is MY list of
side affects, Diarehea, fatique,  eye bleeds, water retention, thin
skin, pale skin (burn easily), cramps,  sinus operation, pumpkin face,
joint pains, insomnia, etc etc  etc.

What am I faced with for side affects on Sprycel? Suppose  to start
it next week.

I am a 55 year old, male, Michigan  resident, DX'd on my Wedding
anniversary in 2004, in full blast stage  with a spleen they were going
to take out immediately and when I say  immediately, I mean 3:30 am
with a full siren ambulance to a major  hospital but they saved it!! I
was tested for a full Bone Marrow  Transplant with my brothers and I
have a 100% match from my younger  brother if I need it. I just want
to hear the good, the bad and the ugly  from those on Sprycel,
please.

Also, and almost as important  to our CML family for one reason or
another I have a few extra bottles of  Gleevec 400 mg bottles still
with the seal on it if anyone is interested  in talking with me in
private. I would like to help someone who may have  a huge co pay on
their Gleevec payments. This will be handled away from  this site and
all parties will get to know who the other parties are. I  just don't
want these expensive drugs to go to waste because my body  decides, the
heck with you, drug change.

Please reply and  let me know! Thanks

-- 
[CMLHope]
A support group of __http://cmlhope.com__ (http://cmlhope.com_/)  
(_http://cmlhope.com/_ (http://cmlhope.com/) )  
-

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to  _CMLHope@googlegroups.com_ 
(mailto:CMLHope@googlegroups.com) 
To  unsubscribe from this group, send email to  
_CMLHope-unsubscribe@googlegroups.com_  
(mailto:cmlhope-unsubscr...@googlegroups.com) 
For more options, visit  this group at 
__http://groups.google.com/group/CMLHope__ 
(http://groups.google.com/group/CMLHope_)   
(_http://groups.google.com/group/CMLHope_ 
(http://groups.google.com/group/CMLHope) )  




-- 
[CMLHope]
A support  group of __http://cmlhope.com__ (http://cmlhope.com_/)  
(_http://cmlhope.com/

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Peter Capel]

Please stop sending these messages - Peter Capel died in August 2010.  They 
serve no purpose except to cause distrress to his widow.
  - Original Message - 
  From: cmlhope+nore...@googlegroups.com 
  To: Digest Recipients 
  Sent: Tuesday, December 21, 2010 10:15 AM
  Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 
Topics


Today's Topic Summary
  Group: http://groups.google.com/group/cmlhope/topics

a.. Merry Christmas [1 Update] 
b.. HAPPY WINTER SOLSTICE - 
http://www.youtube.com/watch?v=jwStDK2_qpw&feature=related [1 Update] 
   Topic: Merry Christmas
"C.M. Houtz"  Dec 20 10:35PM -0500 ^

 
Wishing everyone a wonderful Holiday Season. I hope this finds you all 
doing well. I know that it's a fight at times, but aren't we lucky to be 
celebrating another year with our family and friends. You're all in my thoughts 
and prayers. Please enjoy your life and loved ones.Millie
Merry Christmas and a Happy New Year!! 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


 
No virus found in this message.
Checked by AVG - www.avg.com
Version: 10.0.1170 / Virus Database: 426/3327 - Release Date: 12/20/10



   Topic: HAPPY WINTER SOLSTICE - 
http://www.youtube.com/watch?v=jwStDK2_qpw&feature=related
Zavie Miller  Dec 20 05:32PM -0500 ^

 
Wishing you, your family and friends a Happy Winter Solstice.
 

 
It's a day early because I'd also like to remind you of the Lunar Eclipse
that happens tonight. It is best seen in North America.
 

 
I love the Winter Solstice because it marks the date when the days start
getting longer.
 

 
Best wishes for a Happy Holiday Season,
 

 
Zavie and Ida Miller
 

 
http://www.youtube.com/watch?v=jwStDK2_qpw&feature=related




  -- 
  [CMLHope]
  A support group of http://cmlhope.com
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Victoria Reiter]

Wishing everyone a happy holiday season, a Happy New Year and good health
and continuation to all.  Also, an appreciation of the Winter Solstice Total
Lunar Eclipse...here in NYC the moon was red for quite a while before the
eclipse...fascinating to watch.  Victoria

On Tue, Dec 21, 2010 at 5:15 AM,

> wrote:

>   Today's Topic Summary
>
> Group: http://groups.google.com/group/cmlhope/topics
>
>- Merry 
> Christmas[1
>  Update]
>- HAPPY WINTER SOLSTICE -
>
> http://www.youtube.com/watch?v=jwStDK2_qpw&feature=related[1
>  Update]
>
>  Topic: Merry 
> Christmas
>
>"C.M. Houtz"  Dec 20 10:35PM -0500 
> ^
>
>Wishing everyone a wonderful Holiday Season. I hope this finds you all
>doing well. I know that it's a fight at times, but aren't we lucky to be
>celebrating another year with our family and friends. You're all in my
>thoughts and prayers. Please enjoy your life and loved ones.Millie
>Merry Christmas and a Happy New Year!!
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> 
>
>No virus found in this message.
>Checked by AVG - www.avg.com
>Version: 10.0.1170 / Virus Database: 426/3327 - Release Date: 12/20/10
>
>
>
>  Topic: HAPPY WINTER SOLSTICE -
> http://www.youtube.com/watch?v=jwStDK2_qpw&feature=related
>
>Zavie Miller  Dec 20 05:32PM -0500 
> ^
>
>Wishing you, your family and friends a Happy Winter Solstice.
>
>
>
>It's a day early because I'd also like to remind you of the Lunar
>Eclipse
>that happens tonight. It is best seen in North America.
>
>
>
>I love the Winter Solstice because it marks the date when the days
>start
>getting longer.
>
>
>
>Best wishes for a Happy Holiday Season,
>
>
>
>Zavie and Ida Miller
>
>
>
>http://www.youtube.com/watch?v=jwStDK2_qpw&feature=related
>
>
>
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at
> http://groups.google.com/group/CMLHope

-- 
[CMLHope]
A support group of http://cmlhope.com
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 Messages in 2 Topics

[Victoria Reiter]

Novartis has agreed to allow people on the STS-571 Trial have an ABL-PCR
test only three times a year rather than the former four.


On Sat, Nov 6, 2010 at 6:22 AM,

> wrote:

>   Today's Topic Summary
>
> Group: http://groups.google.com/group/cmlhope/topics
>
>- Still on Gleevec 
> Vacation[1
>  Update]
>- AARP Medicare RX Saver Drug plan just dropped me need to 
> ge...[1
>  Update]
>
>  Topic: Still on Gleevec 
> Vacation
>
>Richard H  Nov 05 08:20AM -0700 
> ^
>
>I find it interesting that we are in a group that is using some of the
>latest discoveries in medicine and to treat some things with things we
>were taught by our forefathers. It is a wonderful mix we have
>created. I sometimes thing we should Google everything we call "home
>remedies" to see what we have forgotten. I had forgotten that vinegar
>worked on bee stings and bug bites and know for a fact it works on
>cramps.
>
>Richard H.
>
>
>
>
>  Topic: AARP Medicare RX Saver Drug plan just dropped me need to 
> ge...
>
>peg  Nov 05 04:31AM -0700 
> ^
>
>Hey Jeanie,
>
>If you are not happy getting only a 30 day supply remember that your
>"extra help" coverage allows you to change Medicare Part D plans any
>time you want. You are not restricted to the "enrollment" period,
>although right now we are all still in the open enrollment period.
>Just go online or call Medicare back and switch to any other plan you
>want. The AARP Medicare RX Preferred Plan will put you back with the
>same prescription coverage you were used to with the AARP Saver plan.
>30 day coverage is not the end of the world but is certainly not as
>convenient at 90 day and leaves you at greater risk to run out of
>Sprycel if something goes haywired. For me Prescription Solutions,
>the specialty pharmacy for AARP, will provide 90 days by mail and a
>refill can be ordered 61 days after they fill it, so I am never in
>danger of running out. One less thing to worry about.
>
>Peg
>
>
>
>
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
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-- 
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