Re: [QUAD-L] About life and length of time as a quad
Bobbie, it's not important how you became a quad, The important part is what you do afterward. You know I respect you. john In a message dated 6/6/2006 7:31:09 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: My Mom told her boss at work what happened to me and she had the nerve to say that some people just bring things upon themselves. What the hell did I do? She doesn't even know me. My Mom just asked her what does she think I did to deserve what I've been through. When I tell people who ask me "how did you have your accident"? "that I was on a motorcycle learning to do jumps" they say things like "Well you asked for it" I think that even quads among us have a "thing" for people who become a quad by their own doing and other's who had a "true" accident. Do you know what I mean everybody? Bobbie
Re: [QUAD-L] About life and length of time as a quad
Well, I wasn't one of them. I got sick and we don't know why. Unfortunately a spinal injury was the result. Anyone that would say that I brought that upon myself is just hateful. Stacy - Original Message --W--- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Tuesday, June 06, 2006 7:15 PM Subject: Re: [QUAD-L] About life and length of time as a quad My Mom told her boss at work what happened to me and she had the nerve to say that some people just bring things upon themselves. What the hell did I do? She doesn't even know me. My Mom just asked her what does she think I did to deserve what I've been through. When I tell people who ask me "how did you have your accident"? "that I was on a motorcycle learning to do jumps" they say things like "Well you asked for it" I think that even quads among us have a "thing" for people who become a quad by their own doing and other's who had a "true" accident. Do you know what I mean everybody? Bobbie
Re: [QUAD-L] I'm kinda new here
Barb, You already got some great advice here so I'll try not to duplicate. I found that I was pretty lost for about the 1st 5 years but then my wants and desires took over and I got really 'into' my current life situation. I finished my college degree and got certified to teach high school. I taught for a year then substituted for 3 more before Honeywell called. I had put my name in EVERYWHERE here in Phoenix and finally the phone rang. The 1st week there somebody retired with 30 years and I almost crapped. I couldn't imagine doing anything for 30 years. I just finished 25 with Honeywell before they pushed me out - now I'm raising grand kids - 2 more coming in August-October. Just keep doing what you have to do to make it through each day - some of us are still doing that now even as we wait for something neat (like grand kids ) to happen. Best of luck to you... Dave In a message dated 6/6/2006 4:30:37 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Hi, I don't know if this is right but I need to ask a question about living, or should I say existing, as a quad? I'm a bit intimidated about how long some of you have been quads. I was in a car accident July 4 2005 and I'm c 5 & 19 yrs old. I don't think I want to live 10, 20, 30 or 40 years like this? How do you guys do it? I'm so overwhelmed and scared. What am I sopo to do with my life like this? Are any of you guys married or have children? Barbara Dave www.daveoconnell.com c3-inc-1967
Re: [QUAD-L] I'm kinda new here
Begitee, I became a c3 quad in 1986 at 18 yrs old and like you, I felt scared and uncertain about how my life would play out. I've spent most of the last 20 years hiding away from society and myself and let depression and insecurity rule my life. I have been living in a nursing home for the last 4 years and will probably do so until my life ends, and for what? I'm not sure. I had opportunities to get my education and become a vital member of society but I squandered them due to foolishness regarding my disability. I have disabled friends who went on to get their degrees, good jobs and many are married with children and have homes and independence that I can only dream of -- don't be like me! Pursue all avenues available to you, in Vocational Rehabilitation, college grants or scholarships. Whatever you do don't let any opportunities for a positive independent life pass you by - you're young and most likely will live MANY more years - make them the best they can be for you! Best of luck, Stephanie
FW: [QUAD-L] Completely Severed Spinal Cords
Well, mine is incomplete and I have a bit of feeling, just enough to hurt like hell. However, I never regained a diddly-ass bit of movement. From: "Lori Michaelson" <[EMAIL PROTECTED]> Reply-To: "Lori Michaelson" <[EMAIL PROTECTED]> To: "Quad" Subject: [QUAD-L] Completely Severed Spinal Cords Date: Tue, 6 Jun 2006 15:59:43 -0700 COMPLETE severed 26 1/2 years Lori ---Original Message--- From: River Wolfe Date: 06/06/06 13:23:56 To: Stacy Harim Cc: [EMAIL PROTECTED]; quad-list@eskimo.com; Danny Hearn Subject: Re: [QUAD-L] About life and length of time as a quad How about a count of all Complete injuries. My cord, like Dan's was also completely severed. River That is no exception W I have read books and stories of many INCOMPLETES getting partially to totally well again. BUT NEVER read of any COMPLETES-- I am a complete, my spine and spinal cord were completely SEVERED at c-6 Dan H.
FW: Re: [QUAD-L] I'm kinda new here
Hey Barbara. I was injured c5 in 1971 when I was 19 -- just like you. For a long time I felt exactly as you do, wondering daily if it was worth it. Then some wonderful people got me directed toward college. I graduated in 1976 with a teaching certificate, started teaching high school English, and just finished my 27th year. Along the way I got married and had two kids. To answer your question, YES YES YES a quality life is still possible. The key is to find a purpose, a reason for getting out of bed. It is so easy to simply sit and dwell on your loss and think about all the might-have-beens. That simply leads to despair. Find something to work toward, something to dedicate yourself to, something that will rebuild your self esteem and give you a reason to go forward. God bless you, be strong, and hang in there. Larry Willis From: Mack Johnson <[EMAIL PROTECTED]> To: [EMAIL PROTECTED] CC: quad-list@eskimo.com Subject: Re: [QUAD-L] I'm kinda new here Date: Tue, 6 Jun 2006 17:24:40 -0700 Hi Barbara, I have been a C-4 quad since 1983. For me the physical part really hasn't really got any better, after 3 years i got back as much movement as i was going to get back. Now that I look back at my quad-life, I should have paid more at what was going on at the moment instead of dwelling on my past or even future. Taking care of your body is going to be a choir, but if you do this well then the load of stress , depression and all the crap we live with would be lighter. If your body feels good them your spirit and mind will most likely fallow. Try not to make your life harder then it already is, keep your body well, sharpen your mind and eat lots of spirit food, take care. On Jun 6, 2006, at 4:29 PM, [EMAIL PROTECTED] wrote: Hi, I don't know if this is right but I need to ask a question about living, or should I say existing, as a quad? I'm a bit intimidated about how long some of you have been quads. I was in a car accident July 4 2005 and I'm c 5 & 19 yrs old. I don't think I want to live 10, 20, 30 or 40 years like this? How do you guys do it? I'm so overwhelmed and scared. What am I sopo to do with my life like this? Are any of you guys married or have children? Barbara Mack Johnson [EMAIL PROTECTED] http://macknezjohnson.com
Re: [QUAD-L] I'm kinda new here
Hi Barbara, I have been a C-4 quad since 1983. For me the physical part really hasn't really got any better, after 3 years i got back as much movement as i was going to get back. Now that I look back at my quad-life, I should have paid more at what was going on at the moment instead of dwelling on my past or even future. Taking care of your body is going to be a choir, but if you do this well then the load of stress , depression and all the crap we live with would be lighter. If your body feels good them your spirit and mind will most likely fallow. Try not to make your life harder then it already is, keep your body well, sharpen your mind and eat lots of spirit food, take care. On Jun 6, 2006, at 4:29 PM, [EMAIL PROTECTED] wrote: Hi, I don't know if this is right but I need to ask a question about living, or should I say existing, as a quad? I'm a bit intimidated about how long some of you have been quads. I was in a car accident July 4 2005 and I'm c 5 & 19 yrs old. I don't think I want to live 10, 20, 30 or 40 years like this? How do you guys do it? I'm so overwhelmed and scared. What am I sopo to do with my life like this? Are any of you guys married or have children? Barbara Mack Johnson [EMAIL PROTECTED] http://macknezjohnson.com
Re: [QUAD-L] About life and length of time as a quad
My Mom told her boss at work what happened to me and she had the nerve to say that some people just bring things upon themselves. What the hell did I do? She doesn't even know me. My Mom just asked her what does she think I did to deserve what I've been through. When I tell people who ask me "how did you have your accident"? "that I was on a motorcycle learning to do jumps" they say things like "Well you asked for it" I think that even quads among us have a "thing" for people who become a quad by their own doing and other's who had a "true" accident. Do you know what I mean everybody? Bobbie
Re: [QUAD-L] Re: The Bone Collector coming on tonight
Just ordered all these tapes from Library for the blind & handicapped. First 3 are by The Bone Collector author. The Cold Moon : A Lincoln Rhyme Novel (Lincoln Rhyme Novels by Jeffery Deaver The Twelfth Card (A Lincoln Rhyme Novel) -- by Jeffery Deaver The Lesson of Her Death -- by Jeffery Deaver Learning Disabilities: The Ultimate Teen Guide RC 59729 The Immortal Highlander Velocity RC 60001 KK
[QUAD-L] I'm kinda new here
Hi, I don't know if this is right but I need to ask a question about living, or should I say existing, as a quad? I'm a bit intimidated about how long some of you have been quads. I was in a car accident July 4 2005 and I'm c 5 & 19 yrs old. I don't think I want to live 10, 20, 30 or 40 years like this? How do you guys do it? I'm so overwhelmed and scared. What am I sopo to do with my life like this? Are any of you guys married or have children? Barbara
[QUAD-L] Completely Severed Spinal Cords
COMPLETE severed 26 1/2 years Lori ---Original Message--- From: River Wolfe Date: 06/06/06 13:23:56 To: Stacy Harim Cc: [EMAIL PROTECTED]; quad-list@eskimo.com; Danny Hearn Subject: Re: [QUAD-L] About life and length of time as a quad How about a count of all Complete injuries. My cord, like Dan's was also completely severed. River That is no exception W I have read books and stories of many INCOMPLETES getting partially to totally well again. BUT NEVER read of any COMPLETES-- I am a complete, my spine and spinal cord were completely SEVERED at c-6 Dan H.
[QUAD-L] Re: The Bone Collector coming on tonight
We have had this movie on DVD for years. And have watched it numerous times. It IS a great movie! Lori -- I like this story. KK The Bone Collector (1999) USA Jun 06 08:00pm Add to My Calendar Movies, 155 Mins. **+ (Rated R) A quadriplegic detective and a patrol cop try to catch a killer re-creating grisly crimes. Based on the book by Jeffery Deaver. Cast: Denzel Washington, Angelina Jolie, Queen Latifah, Michael Rooker, Mike McGlone, Luis Guzman, Leland Orser, John Benjamin Hickey, Bobby Cannavale, Ed O'Neill, Larry Day.Director(s): Phillip Noyce.Producer(s): Michael Klawitter, Dan Jinks, Michael S. Bregman, Martin Bregman, Louis A. Stroller.Writer(s): jeffrey Deaver , Jeremy Iacone.Distribution: Universal Pictures Future Airings: The Bone Collector (1999), USA Jun 07 03:30pm KK All horses are run aways.
Re: [QUAD-L] The Bone Collector coming on tonight
I've never read them but there is a whole series of detective stories about this guy.On Jun 6, 2006, at 5:54 PM, KK Batte wrote:I like this story.KKThe Bone Collector (1999)USA Jun 06 08:00pm Add to My CalendarMovies, 155 Mins.**+ (Rated R)A quadriplegic detective and a patrol cop try to catch a killer re-creating grisly crimes. Based on the book by Jeffery Deaver.Cast: Denzel Washington, Angelina Jolie, Queen Latifah, Michael Rooker, Mike McGlone, Luis Guzman, Leland Orser, John Benjamin Hickey, Bobby Cannavale, Ed O'Neill, Larry Day.Director(s): Phillip Noyce.Producer(s): Michael Klawitter, Dan Jinks, Michael S. Bregman, Martin Bregman, Louis A. Stroller.Writer(s): jeffrey Deaver , Jeremy Iacone.Distribution: Universal Pictures Future Airings:The Bone Collector (1999), USA Jun 07 03:30pmKK All horses are run aways.
[QUAD-L] The Bone Collector coming on tonight
I like this story.KKThe Bone Collector (1999)USA Jun 06 08:00pm Add to My CalendarMovies, 155 Mins.**+ (Rated R)A quadriplegic detective and a patrol cop try to catch a killer re-creating grisly crimes. Based on the book by Jeffery Deaver.Cast: Denzel Washington, Angelina Jolie, Queen Latifah, Michael Rooker, Mike McGlone, Luis Guzman, Leland Orser, John Benjamin Hickey, Bobby Cannavale, Ed O'Neill, Larry Day.Director(s): Phillip Noyce.Producer(s): Michael Klawitter, Dan Jinks, Michael S. Bregman, Martin Bregman, Louis A. Stroller.Writer(s): jeffrey Deaver , Jeremy Iacone.Distribution: Universal Pictures Future Airings:The Bone Collector (1999), USA Jun 07 03:30pmKK All horses are run aways.
Re: [QUAD-L] Suffocation
In <[EMAIL PROTECTED]>, on 06/05/06 at 09:00 PM, [EMAIL PROTECTED] said: >Steph,, Did you see a white light? i never saw a white light. Everyone >said there would be a white light. I'd meet dead relatives,, or at least >St. Peter. Honest,, it was just poof..no pain, no more hassle, nothing. >I think the dying part was almost comfortable compared to the injury >that got me there and oohhmmyy,, it hurts to be brought back! I have my >DNR filled out now. I saw nothing while I was drowning, not even right before I blacked out. Alan -- --- Posted by alanh77[at]comcast.net using MR/2 ICE Newsreader #564 Proudly using eComstation 1.21 (OEM OS/2) BBS - The Nerve Center Telnet FidoNet 261/1000 tncbbs.no-ip.com ---
Re: [QUAD-L] The Overnight Trip
I go to hotels all the time. I bring waterproof chux so I don't get the bed wet if I leak. I usually grab the headboard or the sheets/blankets which are tucked in and will usually hold while I roll from side to side. I always remember to bring my slide board and hope the bed is not too much higher or lower than my wheelchair cushion. I never bolt the door and find that room service is happy to serve me breakfast in bed and housekeeping will be happy to come in and change the thermostat, open or close the curtains or just about anything. I tip everybody everywhere and treat all with respect and kindness. Of course I did the same when I was able bodied!Best,BrienOn Jun 5, 2006, at 2:41 PM, [EMAIL PROTECTED] wrote: What do you guys do about a mattress when you make that overnight trip??
Re: [QUAD-L] pEER mENTORING
Dear Greg, I have posted before that when I was in rehab for four months I was assigned a "peer counselor". If it were not for him I am sure that I would have a much different outlook toward life than if it was not for him. He was also a quadriplegic and, at that time [1980], he had already been a quad 10 years. I was only 15 years old and he was the most upbeat, funny, and generous person that had come into my life! I was three hours away from my home and his visits were the highlights of my days. I am not sure whether he was paid to go into the rehab Hospital to do/offer peer counseling or if he was a volunteer. Myself and one other guy were the only two quadriplegics in the whole rehab hospital near Albany, New York. And for some reason he really got attached to my family and we became friends and stayed friends long, long, long after my accident. Even though he lived three hours away ... he would come down every so often to visit us because he was able to drive himself. We also kept in touch via letters and phone calls. I can't explain it but he was the best thing that could have happened to me especially with the severity of my injury and my age. There are certain people who come and go in your life and he is a definite person who will never be forgotten. He was a pivotal turning point in my outlook on life. The one thing that I always remember was that he was full of so many jokes. And he was not overbearing -- he was really funny! Along with his personality plus! So that was my experience "receiving" peer counseling help. Next . When I finally got back into the world and finished high school and college and went on to work ... my first job was at an Independent Living Center. I was not the peer counselor for the center but I did my fair share of counseling parents of children with disabilities because that was part of 'my' job. Anyway, at the time I was hired ... there were five or six of us that were all hired at the same time because of a federal grant. One of the employees title WAS "Peer Counselor." She was an individual with brittle bone disease. To sum up her responsibilities as a peer counselor ... she met with anybody with a disability who is interested in being counseled or helped or assisted by talking to somebody with a similar disability or to be part of a support group. The Independent living Center that I worked for can be seen at this web site: http://www.stic-cil.org/index.html If you click on STIC Services ... it will show you a list of what our center provided. When I worked there ... there were only 15 of us. But now that they have opened a home and community-based waiver VIA the center .. the number of employees is well over 40! Every once in awhile I will e-mail my old boss see what is up with everybody. The only thing that I disliked about my job was that I began to be in a lot of pain about six months after beginning. So it made working hell. I did not know then that it was the beginning of being diagnosed with syringomyelia. And the other thing was that I have a Bachelor of Science Degree and my position as an 'Education Advocate' only required an associate's degree. I was paid by salary but when I broke it down I was only being paid $7.50 an hour! Unskilled workers get that! But it was the only job I could find at the time and I never searched any further because of the pain that became a part of my life. Hope that helps! Lori ---Original Message--- From: Greg Date: 06/05/06 13:27:52 To: quad-list@eskimo.com Subject: [QUAD-L] pEER mENTORING I want to get more active. I just talked with a rehab nurse who is putting me on the AZ SCI Newsletter. She mentioned Peer Mentoring. Has anyone been involved with that? Either the mentor or mentored. I know I never wanted to talk with other quads when I was in rehab, but my friend really liked it. Greg
Re: [QUAD-L] About life and length of time as a quad
How about a count of all Complete injuries. My cord, like Dan's was also completely severed.RiverThat is no exception W I have read books and stories of many INCOMPLETES getting partially to totally well again. BUT NEVER read of any COMPLETES-- I am a complete, my spine and spinal cord were completely SEVERED at c-6 Dan H.
Re: Re: [QUAD-L] About life and length of time as a quad
My Mom told her boss at work what happened to me and she had the nerve to say that some people just bring things upon themselves. What the hell did I do? She doesn't even know me. My Mom just asked her what does she think I did to deserve what I've been through. - Original Message - From: William Willis To: quad-list@eskimo.com Sent: Tuesday, June 06, 2006 9:06 AM Subject: FW: Re: [QUAD-L] About life and length of time as a quad Amen. Benny Hinn and his kind are phoney as plastic money.>From: [EMAIL PROTECTED]>To: [EMAIL PROTECTED], [EMAIL PROTECTED]>CC: quad-list@eskimo.com>Subject: Re: [QUAD-L] About life and length of time as a quad>Date: Mon, 5 Jun 2006 20:51:21 EDT>>You wouldn't believe how often I'm told that God would make me walk if I>truely believed. All I have to do is have faith. Untill then, I'm just some >damn>heathen in a wheelchair taking the good parking places from all the people >who>prayed for a nice place to park. I just don't fit into these cults. I don't>know why Benny Hinn doesn't allow SCI's into his healings, but I doubt that >with>all his inside conections with god, that fool couldn't heal a mild case of>bad breath.>>john>In a message dated 6/5/2006 5:02:43 PM Eastern Daylight Time,>[EMAIL PROTECTED] writes:>Wish I had a dollar for every idiot I've met that thought I just wasn't>trying hard enough.>>Eric>>Danny Hearn wrote:>> > I am thankful for this site created by Jim L. and the other> > sci and disabled links that have helped me and others and their> > families deal with all the things that go with being paralyzed.> > Sharing info. on here has helped me a lot-covering things such as> > infections,pressure sores, medications, equipment and so on. Many> > times we have helped each other and care-givers come up with answer's> > to problems even when our doctors are not alway's sure what to do.> > Becoming a Quad in 1997 sure changed my outlook on life and of others> > with disabilities, it sure gives a person more compassion and> > understanding of others and their needs.I used to feel strong and> > invincible-like nothing serious could happen to me , man, was i wrong> > lol. I think most healthy people don't have a clue about living with> > disabilities like quad-life and etc. until it happens to them or close> > family members. I remember a quad i used to see a few times a week> > that got hurt horseback riding-- I used to think.. man why are his> > hands kinda curled in like that..now i know why ... I guess that is> > why i am amused at people and their questions like---how far can you> > walk without your wheelchair ? I had one nurses aide tell me that if> > he were paralyzed he would try with all his mind and strength and make> > his hands at least function nornal again ( he said he thought most of> > us quads don't try hard enough ) LOL DUH ! Anyway i'm rambling to> > much but at least between us all we are helping to educate some people> > a bit i hope.> >>> > god-bless you all Dan H.> >> >
Re: [QUAD-L] About life and length of time as a quad
That's great if you have the money to continue aggressive rehab. Most of us are pushed out because of insurance. When I heal from this flap, I am going to Kennedy Krieger to see Chris Reeves doctor and get him to look at my MRI's. There is damage on my cord from that encephalomyelitis, but no one can tell me what it is. My Nuero at Hopkins can't even tell me. Now that I am just about out of the hospital, I am going to send in the papers and it'll take about 6 weeks to go see him. My doctor tells me I should be up in about 2. Stacy - Original Message - From: Danny Hearn To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Tuesday, June 06, 2006 9:55 AM Subject: Re: [QUAD-L] About life and length of time as a quad That is no exception W I have read books and stories of many INCOMPLETES getting partially to totally well again. BUT NEVER read of any COMPLETES-- I am a complete, my spine and spinal cord were completely SEVERED at c-6 Dan H.[EMAIL PROTECTED] wrote: I'm incline to agree with Stacy, with a couple of exceptions. John FitzPatrick-Boston John (I think that is his name) established a foundation in Boston for those who with SCIs, who's insurance doesn't pay for equipment. John was a hockey player, that broke his neck at the C-Level and was incomplete. His did his critical care at Kessler (i think) and was sent to Sheppard in Atlanta for his 3 month rehab. He was discharged from Sheppard in a modified electric chair with modified joystick controller. John chose physical therapy twice a day and was quite aggressive in his program. 5 years, John was in the program. Today, John is not only walking, running and doing everything he did before his accident, but has been released by all of his doctors. His doctor's are all shaking their heads and re-evaluating the MRIs and exrays from day one to determine if it was their error or that John was very lucky. The last I hear, John was attending Law School and his foundation was doing well. His picture still hangs in the offices of the Boston Chapter of the Natl SCI Assoc, as a reminder. W In a message dated 6/5/2006 6:17:21 PM Central Daylight Time, [EMAIL PROTECTED] writes: Oh, I hate it when people once were paralyzed and then recovered gradually say it's because of their hard work and determination. I'm like I didn't try so I'm still in the chair? More like, how about your cord wasn't damaged like those that are still in the chair. Give me a F...in break is what I would love to tell those people. The stupid question just make me laugh. Stacy
[QUAD-L] FUNNY PART about Collective SCI years
The funny/interesting part about doing something like this is that the number is going to change somewhat exponentially very quickly. In the next week, the next month, the next couple months and so on ... everyone is going to add another year because they will reach another anniversary date. So the information is only good for a short period of time but at least it gives us a window of this information in June of 2006. And, of course, we are only a select group of quads. There are so many people who do not post but are members and there are so many other quads out there and not on the list and, the worst-case scenario is that there is probably at least one spinal cord injury in the United States alone every day. My injury anniversary date is not until October but I am sure there are a few people who will be changing the final total here just by having their anniversary date tomorrow or next week. This was a fun inquiry in that it brought a lot of people out the woodwork all at once so that we can look down the list and kind of remind ourselves "Oh yeah - I forgot about Byron and Ray and Tom, etc. etc. etc." :o) Lori C4/5 Complete, 26 yrs post Tucson, AZ AGE - 41 ---Original Message--- From: Matt Date: 06/06/06 08:15:54 To: Quad-List Subject: [Fwd: Re: [QUAD-L] Collective SCI years] Mr LESTER SMITH wrote: I add another 17 years to the list. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]] Sent: Monday, June 05, 2006 4:39 PMTo: [EMAIL PROTECTED]; quad-list@eskimo.comSubject: Re: [QUAD-L] Collective SCI years In a message dated 6/5/2006 3:11:35 PM Central Standard Time, [EMAIL PROTECTED] writes: Interesting also. Do you realize that a hundred of us will account for about 2000 collective years of SCI living? Jesus, that's a long time !!! :-) Dave [EMAIL PROTECTED] 39 Eric [EMAIL PROTECTED] 9 Michael Norville [EMAIL PROTECTED] 30 Houston [EMAIL PROTECTED] 8 Lori [EMAIL PROTECTED] 26 Byron King [EMAIL PROTECTED] 3 Ray.T [EMAIL PROTECTED] 11 Bill: [EMAIL PROTECTED] 38 river [EMAIL PROTECTED] 20 carolyn, [EMAIL PROTECTED] 43 DANNY HEARN [EMAIL PROTECTED] 9 John [EMAIL PROTECTED] 30 Tom [EMAIL PROTECTED] 8 Houston [EMAIL PROTECTED] 8 Paul [EMAIL PROTECTED] 3 Bobbie Humphreys [EMAIL PROTECTED] 33 Stephanie 20 Jim [EMAIL PROTECTED] 6 Lester [EMAIL PROTECTED] 17 Matt [EMAIL PROTECTED] 17 - Total 345+17=362+17=379 No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.8.2/356 - Release Date: 6/5/2006
[QUAD-L] Time as a Quad, and over nite mattress.
Hi been a quad 5yrs c-5 c-6 full time trach can't breath through nose or mouth do to getting shot in the throat. When we go somewhere over night I take a egg crate mattress we got at walmart cut the center out where my butt sits and put my roho cushion in works great so far. As far as not being able to breath It felt really peaceful when I first got shot, but after I got my trach it clogged once with a mucus plug and I thought I was going to suffercate and reach up and pulled the whole thing out lol that was scary. Ray in AZ c-5 c-6 Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [QUAD-L] medicaid info
I wonder if the birth certificate's that are like credit cards in your wallet will suffice as legal documentation, as that is what I have. Does anyone know that? Dana
Re: [QUAD-L] Suffocation
I have MS & yes I have seizures from a plaque on the right lobe of the brain. KK All horses are run aways.
Re: [QUAD-L] pressure relief mattresses
I paid $2,100 and I got the APM2. As you know, Insurance will not pay, but the ability to prevent a pressure sore is priceless.Best,BrienOn Jun 5, 2006, at 11:34 AM, Danny Hearn wrote:Brien, how can you find out the prices on these mattresses and what one did you get or like ? I really need one bad but our insurance does not want to help pay on mattresses or shower chairs--in time i will have to get both one way or another. thanks, Dan+Brien <[EMAIL PROTECTED]> wrote: Good morning,You folks may benefit from this if you are now or may, in the future, be looking for a pressure relief mattress. I recently acquired a Span - America mattress:http://www.spanamerica.com/index.htmlI looked at many types and none came close in quality, concept and comfort!Best,Brien
Re: [QUAD-L] Suffocation
I was taken to the hospital as "dead at the scene". I was in a coma for 4 days before awakening. I'm told that because there was nothing going on in the ER that they attempted to resusitate me to try out some new equipment. I have no idea how true that part is but I met the EMT's and they told me that they could find no vital signs. Eyes were fixed and the head injury was considered fatal. I don't remember any of it. I had several heart attacks in the next two years and was in a coma again because of a hospital mistake. A lot of doctors still greet me with, "are you still alive?". Most of the first few months don't exist for me. In fact, many memories don't. Brain damage has caused me a lot of problems where I can't tell if the spinal injury is the source or not. I appreciate all of you and what you have taught me. I still can't be certain what is caused by the brain damage and what is caused by the spinal injury. Do any of you have epilepsy from your injuries? john In a message dated 6/6/2006 9:00:38 AM Eastern Daylight Time, wheelchair writes: In a message dated 6/5/2006 8:01:35 PM Central Daylight Time, [EMAIL PROTECTED] writes: Steph,, Did you see a white light? i never saw a white light. Everyone said there would be a white light. I'd meet dead relatives,, or at least St. Peter. Honest,, it was just poof..no pain, no more hassle, nothing. I think the dying part was almost comfortable compared to the injury that got me there and oohhmmyy,, it hurts to be brought back! I have my DNR filled out now. john For most a near death experience is an event that can not be described in human words. Its a super-hyper emotional event, that doesn't have words. When anyone who truly has experienced a near death experience, trying to explain it into words adds to the frustration of the event. Those who have, know. Those who haven't, will ... someday. W
[QUAD-L] unsubscribe
unsubscribe No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.8.2/357 - Release Date: 06/06/2006
Re: [QUAD-L] Suffocation
Dying, it was actually quite peaceful. Mark ---Original Message--- From: Eric Olson Date: 06/06/06 12:22:00 To: RollinOn Cc: quad-list@eskimo.com; S. Dial Subject: Re: [QUAD-L] Suffocation Please explain. RollinOn wrote: It isn't a bad feeling but it's definitely a strange feeling, been there twice. Mark ---Original Message--- From: S. Dial Date: 06/05/06 16:45:44 To: Eric Olson; quad-list@eskimo.com Subject: [QUAD-L] Suffocation Yup, when I became stricken with TM I kept telling the nursing and respiratory staff I couldn't breathe but they refused to believe me (cuz my color was good??) until I died and they had to resusitate me then put me on a vent that I stayed on for 6 months. But, the actual dying part wasn't so bad I just got very tired of struggling and simply lost conciousness and poof I was gone. Steph
Re: [QUAD-L] Suffocation
I didn't say my experience was like an SCIs only that I knew what it was like to suffocate to death which I do, and yes, when I told them I was having difficulty breathing I was still able to breathe AT THAT POINT yet they continued to ignore me and not only let me lose conciousness from slowly suffocating but to even die - so what's your point, Eric? That I don't know what it is to suffocate? Bull. Steph
Re: [QUAD-L] vent users
I am. I have family and outside nurses. My mom, sister, and wife are all nurses. I've also trained old drinking buddies from high school in the past to care for me too. Eric Amy Davis wrote: Just curious as to who among you are vent dependant. How do you manage for full time care? Do you have nurses or family members that help you? How often do you go out to dinner or shopping or just for fun? Amy __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Suffocation
Could you elaborate? I find these things fascinating. Eric Tim Thompson wrote: Not everyone who flatlines is gone long enough for their energy to.. escape. Had a recently departed spirit pass through my body once chilling exp. Stunt On 6/5/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: Steph,, Did you see a white light? i never saw a white light. Everyone said there would be a white light. I'd meet dead relatives,, or at least St. Peter. Honest,, it was just poof..no pain, no more hassle, nothing. I think the dying part was almost comfortable compared to the injury that got me there and oohhmmyy,, it hurts to be brought back! I have my DNR filled out now. john In a message dated 6/5/2006 5:45:27 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Yup, when I became stricken with TM I kept telling the nursing and respiratory staff I couldn't breathe but they refused to believe me (cuz my color was good??) until I died and they had to resusitate me then put me on a vent that I stayed on for 6 months. But, the actual dying part wasn't so bad I just got very tired of struggling and simply lost conciousness and poof I was gone. Steph
Re: [QUAD-L] Suffocation
Please explain. RollinOn wrote: It isn't a bad feeling but it's definitely a strange feeling, been there twice. Mark ---Original Message--- From: S. Dial Date: 06/05/06 16:45:44 To: Eric Olson; quad-list@eskimo.com Subject: [QUAD-L] Suffocation Yup, when I became stricken with TM I kept telling the nursing and respiratory staff I couldn't breathe but they refused to believe me (cuz my color was good??) until I died and they had to resusitate me then put me on a vent that I stayed on for 6 months. But, the actual dying part wasn't so bad I just got very tired of struggling and simply lost conciousness and poof I was gone. Steph
Re: [QUAD-L] Suffocation
Not the same. If you were able to tell someone you couldn't breathe, you were still breathing. Your diaphragm was still able to force air up out of your lungs and across your vocal cords. Your respiratory function gradually got so poor that you weren't able to remove enough CO2 from your bloodstream to stay conscious. With a sci you go from normal breathing function to nothing instantly. S. Dial wrote: Yup, when I became stricken with TM I kept telling the nursing and respiratory staff I couldn't breathe but they refused to believe me (cuz my color was good??) until I died and they had to resusitate me then put me on a vent that I stayed on for 6 months. But, the actual dying part wasn't so bad I just got very tired of struggling and simply lost conciousness and poof I was gone. Steph
Re: [QUAD-L] The Overnight Trip
I take a memory foam. http://www.healthyfoundations.com/ Eric [EMAIL PROTECTED] wrote: What do you guys do about a mattress when you make that overnight trip??
Re: [QUAD-L] ticket to work
http://www.yourtickettowork.com/ ---Original Message--- From: [EMAIL PROTECTED] Date: 06/06/06 10:01:34 To: quad-list@eskimo.com Subject: [QUAD-L] ticket to work hey guyswill someone tell me the pros and cons of the ticket to work program? my VR brought up the subject and i told her i wanted to learn more about it first.Luke Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
[QUAD-L] medicaid info
Hi all,I thought those of you on Medicaid might want to know this information:The Deficit Reduction Act, which was signed by the President on February 8th, contains a provision that would require all citizens applying for Medicaid or renewing their coverage to produce a passport or birth certificate to prove they are U.S. citizens. There would be no exceptions for any Medicaid applicants or beneficiaries, not even individuals with severe physical or mental impairments such as Alzheimer’s disease.This new requirement, which a recent study by the Inspector General of the Department of Health and Human Services shows to be unnecessary, would almost certainly create significant enrollment barriers for millions of low-income citizens who meet all Medicaid eligibility requirements. It also would increase Medicaid administrative costs. (For a discussion of these issues, see Leighton Ku and Donna Cohen Ross, “New Medicaid Requirement Is Unnecessary and Could Impede Citizens’ Coverage and Policy Priorities,” revised January 4, 2006.)This analysis provides estimates of the number of Medicaid beneficiaries in each state who would be required to submit a passport or birth certificate between July 2006 (when the new requirement would take effect) and June 2007, and who would be cut off Medicaid if they are unable to do so.Analyses of Census data and Medicaid administrative data indicate that about 49 million native-born U.S. citizens and two million naturalized citizens were enrolled in Medicaid over the course of the year in 2003. (Fewer than 4 million legal immigrants also participated.) Thus, about 49 million people would be required to submit birth certificates or passports or lose their Medicaid coverage. (The two million beneficiaries who are naturalized citizens would be allowed to submit naturalization documents.)Once they took effect on July 1, 2006, these new requirements would apply to all applications or redeterminations of eligibility that occurred after that date, without any exceptions even for people who are extremely old or have severe physical or mental impairments, such as Alzheimer’s disease. In the following six to twelve months after July 1, 2006, states would have to check citizenship documents for more than 50 million beneficiaries. This would constitute a significant new administrative burden for state and local agencies.The New Documentation RequirementUnder Section 6037 of the conference agreement on the budget reconciliation bill, states would have to require all current and new Medicaid beneficiaries applying as citizens to provide proof of their citizenship. The primary forms of documentation acceptable would be either a passport or a birth certificate presented in conjunction with proof of identity such as a driver’s license. For people who are naturalized citizens, naturalization papers also would be accepted. (The Secretary of HHS would be permitted to specify other acceptable forms of documentation, but the only forms of documentation the Secretary could allow would be forms of documentation that are issued solely to citizens and for which proof of citizenship must be provided. This essentially means that native-born citizens would have to produce birth certificates or passports.)The documentation requirements would take effect July 1, 2006 and would be required when people apply for benefits or, for current beneficiaries, at recertification. Since certification periods typically are six months, most of this burden will fall between July and December 2006, although some certification periods last 12 months.In 16 states, the number of Medicaid beneficiaries who would be required to submit this new paperwork would exceed one million.If as little as two percent of Medicaid beneficiaries cannot readily come up with a birth certificate or passport, one million low-income Americans could lose Medicaid coverage and become uninsured or be delayed in obtaining coverage. The percentage of U.S. citizen beneficiaries who are unable to produce readily a birth certificate or passport may well be much larger than that.The Medicaid program already has extensive requirements to check the immigration status of non-citizens who apply for Medicaid. Non-citizen applicants must provide documentation of their immigration status, and state officials check computerized federal records to verify that status. The new requirement would apply only to people applying for Medicaid as U.S. citizens.Most states currently allow citizen applicants to self-attest, under penalty of perjury, that they are citizens. Most states then ask for proof of citizenship if they have any reason to question the applicant’s truthfulness. A comprehensive study issued by the HHS Office of the Inspector General (OIG) last year found no substantial evidence that illegal immigrants were claiming to be citizens and successfully enrolling in Medicaid, and OIG did not recommend requiring all applicants to provide docume
[Fwd: Re: [QUAD-L] Collective SCI years]
Mr LESTER SMITH wrote: I add another 17 years to the list. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]] Sent: Monday, June 05, 2006 4:39 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Collective SCI years In a message dated 6/5/2006 3:11:35 PM Central Standard Time, [EMAIL PROTECTED] writes: Interesting also. Do you realize that a hundred of us will account for about 2000 collective years of SCI living? Jesus, that's a long time !!! :-) Dave [EMAIL PROTECTED] 39 Eric [EMAIL PROTECTED] 9 Michael Norville [EMAIL PROTECTED] 30 Houston [EMAIL PROTECTED] 8 Lori [EMAIL PROTECTED] 26 Byron King [EMAIL PROTECTED] 3 Ray.T [EMAIL PROTECTED] 11 Bill: [EMAIL PROTECTED] 38 river [EMAIL PROTECTED] 20 carolyn, [EMAIL PROTECTED] 43 DANNY HEARN [EMAIL PROTECTED] 9 John [EMAIL PROTECTED] 30 Tom [EMAIL PROTECTED] 8 Houston [EMAIL PROTECTED] 8 Paul [EMAIL PROTECTED] 3 Bobbie Humphreys [EMAIL PROTECTED] 33 Stephanie 20 Jim [EMAIL PROTECTED] 6 Lester [EMAIL PROTECTED] 17 Matt [EMAIL PROTECTED] 17 - Total 345+17=362+17=379 No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.8.2/356 - Release Date: 6/5/2006 No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.8.2/356 - Release Date: 6/5/2006
Re: [QUAD-L] About life and length of time as a quad
That is no exception W I have read books and stories of many INCOMPLETES getting partially to totally well again. BUT NEVER read of any COMPLETES-- I am a complete, my spine and spinal cord were completely SEVERED at c-6 Dan H.[EMAIL PROTECTED] wrote:I'm incline to agree with Stacy, with a couple of exceptions. John FitzPatrick-Boston John (I think that is his name) established a foundation in Boston for those who with SCIs, who's insurance doesn't pay for equipment. John was a hockey player, that broke his neck at the C-Level and was incomplete. His did his critical care at Kessler (i think) and was sent to Sheppard in Atlanta for his 3 month rehab. He was discharged from Sheppard in a modified electric chair with modified joystick controller. John chose physical therapy twice a day and was quite aggressive in his program. 5 years, John was in the program. Today, John is not only walking, running and doing everything he did before his accident, but has been released by all of his doctors. His doctor's are all shaking their heads and re-evaluating the MRIs and exrays from day one to determine if it was their error or that John was very lucky. The last I hear, John was attending Law School and his foundation was doing well. His picture still hangs in the offices of the Boston Chapter of the Natl SCI Assoc, as a reminder. W In a message dated 6/5/2006 6:17:21 PM Central Daylight Time, [EMAIL PROTECTED] writes:Oh, I hate it when people once were paralyzed and then recovered gradually say it's because of their hard work and determination. I'm like I didn't try so I'm still in the chair? More like, how about your cord wasn't damaged like those that are still in the chair. Give me a F...in break is what I would love to tell those people. The stupid question just make me laugh. Stacy
[QUAD-L] ticket to work
hey guys will someone tell me the pros and cons of the ticket to work program? my VR brought up the subject and i told her i wanted to learn more about it first. Luke Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [QUAD-L] Collective SCI years
Mr LESTER SMITH wrote: I add another 17 years to the list. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]] Sent: Monday, June 05, 2006 4:39 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Collective SCI years In a message dated 6/5/2006 3:11:35 PM Central Standard Time, [EMAIL PROTECTED] writes: Interesting also. Do you realize that a hundred of us will account for about 2000 collective years of SCI living? Jesus, that's a long time !!! :-) Dave [EMAIL PROTECTED] 39 Eric [EMAIL PROTECTED] 9 Michael Norville [EMAIL PROTECTED] 30 Houston [EMAIL PROTECTED] 8 Lori [EMAIL PROTECTED] 26 Byron King [EMAIL PROTECTED] 3 Ray.T [EMAIL PROTECTED] 11 Bill: [EMAIL PROTECTED] 38 river [EMAIL PROTECTED] 20 carolyn, [EMAIL PROTECTED] 43 DANNY HEARN [EMAIL PROTECTED] 9 John [EMAIL PROTECTED] 30 Tom [EMAIL PROTECTED] 8 Houston [EMAIL PROTECTED] 8 Paul [EMAIL PROTECTED] 3 Bobbie Humphreys [EMAIL PROTECTED] 33 Stephanie 20 Jim [EMAIL PROTECTED] 6 Lester [EMAIL PROTECTED] 17 Matt Wermer 17 - Total 345+17=362+17=379 No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.8.2/356 - Release Date: 6/5/2006
Re: [QUAD-L] The Overnight Trip
In a message dated 6/5/2006 4:42:13 PM Central Daylight Time, [EMAIL PROTECTED] writes: What do you guys do about a mattress when you make that overnight trip?? A EHOB, personal waffle mattress is the way to go. Very portable. You can visit their website for more info. Best Wishes W
[QUAD-L] thanks John
Thanks John. I forgot to say it is an intermittent cath, so when I insert it my bladder is usually full. That is why I usually have a stream instead of a trickle. From: [EMAIL PROTECTED] To: [EMAIL PROTECTED], [EMAIL PROTECTED] CC: quad-list@eskimo.com Subject: Re: [QUAD-L] need more advice Date: Mon, 5 Jun 2006 20:40:53 EDT With an indwelling cath I don't think you go by stream, trickle, or drip. Is your output normal? It should be draining your bladder as the urine drains from your kidneys. this doesn't normally happen in streams. It, however, can happen. I would pay attention to amount of output and color as well as oder. Ideally, make a list of questions and ask your urologist. I haven't used a cath in a while and I'm going from memory. Good luck William john In a message dated 6/5/2006 4:34:42 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Are you straight cathing,supra, or foley? I can't remember. Eric William Willis wrote: > Hey guys I need more advice concernin my cath problems. I switched to > a 14 fr. cath and it went in fine. Problem solved...I thought. Now my > stream has become a trickle, even a drip at times. The 14 worked fine > for a eeknow this. I have no symptoms of infection. Anyone got a > clue? Thanks in advance. Larry Willis > >
[QUAD-L] I command you to WALK!
Maybe, just maybe... God doesn't want you to walk. Maybe he has bigger plans for you, in your extended life. Who can say. From one who has a very difficult time trying to picture Jesus, with a comb-over during his time on earth, lol W In a message dated 6/5/2006 7:52:03 PM Central Daylight Time, [EMAIL PROTECTED] writes: You wouldn't believe how often I'm told that God would make me walk if I truely believed. All I have to do is have faith. Untill then, I'm just some damn heathen in a wheelchair taking the good parking places from all the people who prayed for a nice place to park. I just don't fit into these cults. I don't know why Benny Hinn doesn't allow SCI's into his healings, but I doubt that with all his inside conections with god, that fool couldn't heal a mild case of bad breath. john
FW: Re: [QUAD-L] About life and length of time as a quad
Amen. Benny Hinn and his kind are phoney as plastic money. From: [EMAIL PROTECTED] To: [EMAIL PROTECTED], [EMAIL PROTECTED] CC: quad-list@eskimo.com Subject: Re: [QUAD-L] About life and length of time as a quad Date: Mon, 5 Jun 2006 20:51:21 EDT You wouldn't believe how often I'm told that God would make me walk if I truely believed. All I have to do is have faith. Untill then, I'm just some damn heathen in a wheelchair taking the good parking places from all the people who prayed for a nice place to park. I just don't fit into these cults. I don't know why Benny Hinn doesn't allow SCI's into his healings, but I doubt that with all his inside conections with god, that fool couldn't heal a mild case of bad breath. john In a message dated 6/5/2006 5:02:43 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Wish I had a dollar for every idiot I've met that thought I just wasn't trying hard enough. Eric Danny Hearn wrote: >I am thankful for this site created by Jim L. and the other > sci and disabled links that have helped me and others and their > families deal with all the things that go with being paralyzed. > Sharing info. on here has helped me a lot-covering things such as > infections,pressure sores, medications, equipment and so on. Many > times we have helped each other and care-givers come up with answer's > to problems even when our doctors are not alway's sure what to do. > Becoming a Quad in 1997 sure changed my outlook on life and of others > with disabilities, it sure gives a person more compassion and > understanding of others and their needs.I used to feel strong and > invincible-like nothing serious could happen to me , man, was i wrong > lol. I think most healthy people don't have a clue about living with > disabilities like quad-life and etc. until it happens to them or close > family members. I remember a quad i used to see a few times a week > that got hurt horseback riding-- I used to think.. man why are his > hands kinda curled in like that..now i know why ... I guess that is > why i am amused at people and their questions like---how far can you > walk without your wheelchair ? I had one nurses aide tell me that if > he were paralyzed he would try with all his mind and strength and make > his hands at least function nornal again ( he said he thought most of > us quads don't try hard enough ) LOL DUH !Anyway i'm rambling to > much but at least between us all we are helping to educate some people > a bit i hope. > > god-bless you all Dan H. > >
[QUAD-L] PEER MENTORING
There is always a great feeling when you know that you have made a difference in the life of someone who has experienced a SCI event. Your life experiences will help the patient, the family and those who love the person who was injured. I strongly support your decision and best wishes! W In a message dated 6/5/2006 3:27:57 PM Central Daylight Time, [EMAIL PROTECTED] writes: I want to get more active. I just talked with a rehab nurse who is putting me on the AZ SCI Newsletter. She mentioned Peer Mentoring. Has anyone been involved with that? Either the mentor or mentored. I know I never wanted to talk with other quads when I was in rehab, but my friend really liked it. Greg
FW: Re: [QUAD-L] Suffocation
Irony -- only an hour ago I heard Paul Harvey's Rest of the Story. He talked about Charles who had a near-death out-of-body experience back in 1898. (One of the first recorded) It was nearly identical to those reported today. Anyway, Charles said he did not want to return to his body but was compelled to by some unfinished sense of purpose. It changed his life and he went on to do great things. His last name was Walgreen - of drugstore fame. And now you know. From: [EMAIL PROTECTED] To: quad-list@eskimo.com Subject: Re: [QUAD-L] Suffocation Date: Mon, 5 Jun 2006 22:25:35 EDT I passed out from a kid choking me in high school. Pretty painless actually, struggling then black. No bright lights - BUT I was gone about 15 seconds. I did float up after breaking my neck. Pretty cool feeling floating around. Then my buddy shook me awake - back to reality. No real pain involved tho - just a minor stiff neck. Dave In a message dated 6/5/2006 6:01:35 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Steph,, Did you see a white light? i never saw a white light. Everyone said there would be a white light. I'd meet dead relatives,, or at least St. Peter. Honest,, it was just poof..no pain, no more hassle, nothing. I think the dying part was almost comfortable compared to the injury that got me there and oohhmmyy,, it hurts to be brought back! I have my DNR filled out now. john In a message dated 6/5/2006 5:45:27 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Yup, when I became stricken with TM I kept telling the nursing and re spiratory staff I couldn't breathe but they refused to believe me (cuz my color was good??) until I died and they had to resusitate me then put me on a vent that I stayed on for 6 months. But, the actual dying part wasn't so bad I just got very tired of struggling and simply lost conciousness and poof I was gone. Steph Dave _www.daveoconnell.com_ (http://www.daveoconnell.com/) c3-inc-1967
Re: [QUAD-L] Re: (no subject)
In a message dated 6/5/2006 4:18:15 PM Central Daylight Time, [EMAIL PROTECTED] writes: LOL. No!!! And don't won't too either! Im going back to Sheapard on the 15th to get a evaluation for a new procedure to get off this dam vent, its like the phrinc nerve but different they stimulate the muscle. Ill know more when I get back, ill keep you imformed. Silas That procedure is not new, but they are very selective on who the candidates are for the procedure. Christopher Reeve was considered a candidate just one year after his rehab and I know of a few people in Chicago that were candidates for the implant-diaphragm-stim. Best Wishes and hope you are a successful candidate! W
Re: [QUAD-L] About life and length of time as a quad
I'm incline to agree with Stacy, with a couple of exceptions. John FitzPatrick-Boston John (I think that is his name) established a foundation in Boston for those who with SCIs, who's insurance doesn't pay for equipment. John was a hockey player, that broke his neck at the C-Level and was incomplete. His did his critical care at Kessler (i think) and was sent to Sheppard in Atlanta for his 3 month rehab. He was discharged from Sheppard in a modified electric chair with modified joystick controller. John chose physical therapy twice a day and was quite aggressive in his program. 5 years, John was in the program. Today, John is not only walking, running and doing everything he did before his accident, but has been released by all of his doctors. His doctor's are all shaking their heads and re-evaluating the MRIs and exrays from day one to determine if it was their error or that John was very lucky. The last I hear, John was attending Law School and his foundation was doing well. His picture still hangs in the offices of the Boston Chapter of the Natl SCI Assoc, as a reminder. W In a message dated 6/5/2006 6:17:21 PM Central Daylight Time, [EMAIL PROTECTED] writes: Oh, I hate it when people once were paralyzed and then recovered gradually say it's because of their hard work and determination. I'm like I didn't try so I'm still in the chair? More like, how about your cord wasn't damaged like those that are still in the chair. Give me a F...in break is what I would love to tell those people. The stupid question just make me laugh. Stacy
Re: [QUAD-L] Suffocation
In a message dated 6/5/2006 8:01:35 PM Central Daylight Time, [EMAIL PROTECTED] writes: Steph,, Did you see a white light? i never saw a white light. Everyone said there would be a white light. I'd meet dead relatives,, or at least St. Peter. Honest,, it was just poof..no pain, no more hassle, nothing. I think the dying part was almost comfortable compared to the injury that got me there and oohhmmyy,, it hurts to be brought back! I have my DNR filled out now. john For most a near death experience is an event that can not be described in human words. Its a super-hyper emotional event, that doesn't have words. When anyone who truly has experienced a near death experience, trying to explain it into words adds to the frustration of the event. Those who have, know. Those who haven't, will ... someday. W
Re: [QUAD-L] remove me from sit
In a message dated 6/6/2006 1:39:04 AM Central Daylight Time, [EMAIL PROTECTED] writes: I dont know how I got all these emails. but they need to stop. just because i havent checked my mail in 4 days does not mean I should have accumilated 3000plus! - Original Message - From: Danny Hearn The Quad List generates alot of emails, but no where near 3000 plus. Maybe you won a foreign lottery. Best Wishes W
