Re: [QUAD-L] strange pains
Well Dan, I wouuld suspect the syrinx as the possible cause. Most spinal injuries have some tingling sensations but they dont start 11 yrs post. When you get your bladder situation straight I would get that syrinx checked with a closed mri and looked at by at least one neuro. You might have to investigate getting to craig hospital if you find the syrinx has grown consideribly. ron c7 --- On Thu, 4/16/09, Danny Hearn ddh...@sbcglobal.net wrote: From: Danny Hearn ddh...@sbcglobal.net Subject: [QUAD-L] strange pains To: quad-list@eskimo.com Date: Thursday, April 16, 2009, 11:11 AM HELLO GANG, I HAVE BEEN GETTING INCREASING PAINS-IT HAPPENS A LOT WHEN I SLEEP OR WHEN I'M UP IN MY CHAIR-ESPECIALLY IF I'M SLEEPY OR TRY TO DOZE OFF IN MY CHAIR--- TO DESCRIBE IT IS LIKE THIS..MY HANDS FEET LEGS , BACK BECOME VERY PAINFULL AND TINGELY( SUCH AS WHEN A PERSONS HANDS OR FEET USED TO FALL ASLEEP, WHEN LAYING ON THRM WRONG, BEFORE INJURY OR PARALASIS. ) IT IS HAPPENING TO ME MORE OFTEN THESE DAYS..IT IS VERY PAINFULL AND CAUSES ME TO SPASM MORE THAN USUAL. IT SEEMS MY ONLY RELIEF IS BY TAKING PAIN MEDS SUCH AS VICODEN. I KNOW THAT I HAVE A SYRINX...SUCH AS MANY OF YOU ALSO,, AND HAVE HAD BLADDER UTI PROBLEM MUCH OF THIS YEAR, BUT DOC'S QUIT TREATING IT DUE TO FEAR OF MUTATION OR WORSE NON TREATABLE UTI FORMING. HAVE ANY OF YOU EVER EXPERIENCED THIS KIND OF PAINS??? THANKS, DAN H. 11.6 YEARS POST ST. LOUIS, MO. AREA.
RE: [QUAD-L] strange pains
Craig is great! :D I miss my doctors and everyone there, if you go I recommend trying lunch at Swedish Medical Center just down the underground tunnel from there. Craig's food isn't bad, but there's is awesome LOL Danny Espinoza 26/m/California Occupation before accident Network engineer / SR. Network security engineer What happened: Broke c2,c6,c7 with doner bone at c2 Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My myspace address - http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] Sent: Thursday, April 16, 2009 11:12 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] strange pains Well Dan, I wouuld suspect the syrinx as the possible cause. Most spinal injuries have some tingling sensations but they dont start 11 yrs post. When you get your bladder situation straight I would get that syrinx checked with a closed mri and looked at by at least one neuro. You might have to investigate getting to craig hospital if you find the syrinx has grown consideribly. ron c7 --- On Thu, 4/16/09, Danny Hearn ddh...@sbcglobal.net wrote: From: Danny Hearn ddh...@sbcglobal.net Subject: [QUAD-L] strange pains To: quad-list@eskimo.com Date: Thursday, April 16, 2009, 11:11 AM HELLO GANG, I HAVE BEEN GETTING INCREASING PAINS-IT HAPPENS A LOT WHEN I SLEEP OR WHEN I'M UP IN MY CHAIR-ESPECIALLY IF I'M SLEEPY OR TRY TO DOZE OFF IN MY CHAIR--- TO DESCRIBE IT IS LIKE THIS..MY HANDS FEET LEGS , BACK BECOME VERY PAINFULL AND TINGELY( SUCH AS WHEN A PERSONS HANDS OR FEET USED TO FALL ASLEEP, WHEN LAYING ON THRM WRONG, BEFORE INJURY OR PARALASIS. ) IT IS HAPPENING TO ME MORE OFTEN THESE DAYS..IT IS VERY PAINFULL AND CAUSES ME TO SPASM MORE THAN USUAL. IT SEEMS MY ONLY RELIEF IS BY TAKING PAIN MEDS SUCH AS VICODEN. I KNOW THAT I HAVE A SYRINX...SUCH AS MANY OF YOU ALSO,, AND HAVE HAD BLADDER UTI PROBLEM MUCH OF THIS YEAR, BUT DOC'S QUIT TREATING IT DUE TO FEAR OF MUTATION OR WORSE NON TREATABLE UTI FORMING. HAVE ANY OF YOU EVER EXPERIENCED THIS KIND OF PAINS??? THANKS, DAN H. 11.6 YEARS POST ST. LOUIS, MO. AREA.
RE: [QUAD-L] TRAINED BLADDER- Thumping
Like I said- it may not work for everyone; and look at the side effects of your meds and how alcohol may effect them. I take fludrocortisone and midodrine for low blood pressure; I am told by my doctor (and pharmacists) that a couple of beers will not effect me and my low blood pressure meds. However- I do take diazepam PRN for sever spasms; or for a good nights rest, however, diazepam (all narcotics) and alcohol do not mix. Tim c5-c6 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 4/16/09, Danny Espinoza static...@roadrunner.com wrote: From: Danny Espinoza static...@roadrunner.com Subject: RE: [QUAD-L] TRAINED BLADDER- Thumping To: onemofor...@yahoo.com, alcibiat...@yahoo.com, QUAD-LIST@eskimo.com, wheelch...@aol.com Date: Thursday, April 16, 2009, 12:41 PM Interesting.. I personally don't like most beers, but I will have to keep that in mind and maybe try it one day Danny Espinoza 26/m/California Occupation before accident Network engineer / SR. Network security engineer What happened: Broke c2,c6,c7 with doner bone at c2 Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My myspace address - http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ From: t crook [mailto:onemofor...@yahoo.com] Sent: Thursday, April 16, 2009 8:51 AM To: alcibiat...@yahoo.com; QUAD-LIST@eskimo.com; wheelch...@aol.com Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping Back in ’88 they were teaching the tap and credae method; and it was not working for me, until I started drinking beer on home visits. After several tall cans of barley-pop; I felt this strange sensation near my anus, the flood gates opened and the urine process was so forceful it blew my condom cath clean off of me. When I returned to the hospital I told my rehab doc about the beer making me void on my own; and he prescribed me 3 beers a day (my rehab doc was a marathon running non-drinker), now I just have a couple of beers every other day. I have been cathed about 5 or 6 times in over 20 years (due to a full bowel and the few bladder infections I have had), I’ve only had about three bladder infections. I void about 300 to 500 cc’s each time I void and always have residual; but I’ve been told that my mass amounts of water that I drink doesn’t give bacteria a chance to grow. I recently had an abdominal/pelvic CT w/contrast done, and it showed that my kidneys and everything looked good, my BUN and Creatinine levels have always been good as well. This way of voiding may not be for everyone; but any invasive anything puts you at risk for infection. Nearly 21 years later I still void on my own (I use the Freedom Active condom cath and a leg bag) if I am going in somewhere for a long period of time, I will tap whatever I can out. Tim c5-c6, 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 4/9/09, wheelch...@aol.com wheelch...@aol.com wrote: From: wheelch...@aol.com wheelch...@aol.com Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping To: alcibiat...@yahoo.com, QUAD-LIST@eskimo.com Date: Thursday, April 9, 2009, 4:07 PM Bladder Thumping, must be a guy thang, lol. I've never known a woman to try it. Rare is thumping advised because it does not completely empty the bladder, but does well it voiding a full bladder. So you are always voiding about 80% of your bladder and allowing the rest of the urine to populate bacteria. Urologist like when the bladder is completely emptied. I know of some old men who are walking with impaired bladders that don't empty with each void. They too are prone to bladder infections and UTIs. Remember that at no time should you void more then 800 cc or urine without stopping for 3-10 minutes, to allow the bladder to contract and prevent a possible stroke. But John, I'm sure that you heard that too. Best Wishes W In a message dated 4/9/2009 3:27:12 P.M. Central Daylight Time, alcibiat...@yahoo.com writes: For the last 12 years, I've only been catheterized to see what residual is left in my bladder. I'm usually between 30 to 50 CC's. My bladder control is based on me stimulating my bladder by a series of taps on my abdomen. If I lay in bed, an external catherter is a must, it seems to flow in 250CC increments. after about 5 hours in the chair, I can use a urinal and get about 500CC's. Very few, (actually none)have mentioned this method. Is it no longer in vogue at rehab centers? I realize it takes 3 to 6 months to train the bladder, but is it even attempted? I remember several people in the 80's using electrodes to train their bladder to empty fully. I haven't heard any of the younger quads that have any idea what I'm talking about. It seems like everyone goes right to an SP. then they experience chronic infections that diminish the efficasy of anti-biotics when they get other infections. The
RE: [QUAD-L] TRAINED BLADDER- Thumping
TIM, DO YOU TAKE FLUDROCORTISONE EVERY DAY FOR LOW BLOOD PRESSURE MY DOCTOR PUT ME ON THIS ABOUT A WEEK AGO AND SAID TAKE ONE EACH DAYSO FAR I ONLY TAKE IT WHEN MY BLOOD PRESSURE HAS BEEN REAL LOW. DAN*** --- On Fri, 4/17/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: RE: [QUAD-L] TRAINED BLADDER- Thumping To: QUAD-LIST@eskimo.com, Danny Espinoza static...@roadrunner.com Date: Friday, April 17, 2009, 7:54 AM Like I said- it may not work for everyone; and look at the side effects of your meds and how alcohol may effect them. I take fludrocortisone and midodrine for low blood pressure; I am told by my doctor (and pharmacists) that a couple of beers will not effect me and my low blood pressure meds. However- I do take diazepam PRN for sever spasms; or for a good nights rest, however, diazepam (all narcotics) and alcohol do not mix. Tim c5-c6 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 4/16/09, Danny Espinoza static...@roadrunner.com wrote: From: Danny Espinoza static...@roadrunner.com Subject: RE: [QUAD-L] TRAINED BLADDER- Thumping To: onemofor...@yahoo.com, alcibiat...@yahoo.com, QUAD-LIST@eskimo.com, wheelch...@aol.com Date: Thursday, April 16, 2009, 12:41 PM Interesting.. I personally don't like most beers, but I will have to keep that in mind and maybe try it one day Danny Espinoza 26/m/California Occupation before accident Network engineer / SR. Network security engineer What happened: Broke c2,c6,c7 with doner bone at c2 Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My myspace address - http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ From: t crook [mailto:onemofor...@yahoo.com] Sent: Thursday, April 16, 2009 8:51 AM To: alcibiat...@yahoo.com; QUAD-LIST@eskimo.com; wheelch...@aol.com Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping Back in ’88 they were teaching the tap and credae method; and it was not working for me, until I started drinking beer on home visits. After several tall cans of barley-pop; I felt this strange sensation near my anus, the flood gates opened and the urine process was so forceful it blew my condom cath clean off of me. When I returned to the hospital I told my rehab doc about the beer making me void on my own; and he prescribed me 3 beers a day (my rehab doc was a marathon running non-drinker), now I just have a couple of beers every other day. I have been cathed about 5 or 6 times in over 20 years (due to a full bowel and the few bladder infections I have had), I’ve only had about three bladder infections. I void about 300 to 500 cc’s each time I void and always have residual; but I’ve been told that my mass amounts of water that I drink doesn’t give bacteria a chance to grow. I recently had an abdominal/pelvic CT w/contrast done, and it showed that my kidneys and everything looked good, my BUN and Creatinine levels have always been good as well. This way of voiding may not be for everyone; but any invasive anything puts you at risk for infection. Nearly 21 years later I still void on my own (I use the Freedom Active condom cath and a leg bag) if I am going in somewhere for a long period of time, I will tap whatever I can out. Tim c5-c6, 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 4/9/09, wheelch...@aol.com wheelch...@aol.com wrote: From: wheelch...@aol.com wheelch...@aol.com Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping To: alcibiat...@yahoo.com, QUAD-LIST@eskimo.com Date: Thursday, April 9, 2009, 4:07 PM Bladder Thumping, must be a guy thang, lol. I've never known a woman to try it. Rare is thumping advised because it does not completely empty the bladder, but does well it voiding a full bladder. So you are always voiding about 80% of your bladder and allowing the rest of the urine to populate bacteria. Urologist like when the bladder is completely emptied. I know of some old men who are walking with impaired bladders that don't empty with each void. They too are prone to bladder infections and UTIs. Remember that at no time should you void more then 800 cc or urine without stopping for 3-10 minutes, to allow the bladder to contract and prevent a possible stroke. But John, I'm sure that you heard that too. Best Wishes W In a message dated 4/9/2009 3:27:12 P.M. Central Daylight Time, alcibiat...@yahoo.com writes: For the last 12 years, I've only been catheterized to see what residual is left in my bladder. I'm usually between 30 to 50 CC's. My bladder control is based on me stimulating my bladder by a series of taps on my abdomen. If I lay in bed, an external catherter is a must, it seems to flow in 250CC increments. after about 5 hours in the chair, I can use a urinal and get about 500CC's. Very few, (actually
[QUAD-L] 37th Annivarsary
So, I have survived 37 years as a quad - I guess I'm lucky? Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [QUAD-L] strange pains
After 33 years, I have almost constant pain. No tingling or pins and needles. It is sharp pains that shoot through my back and a constant crushing pain. You may not have developed a syrinx until the past few years. Virtually all quads seem to have a syrinx. It creates pain by disrupting the flow of spinal fluid. If the syrinx moves, it causes increased pain. If you start to loose more function, the syrinx may be expanding upward on your spinal cord and that is when you need to check it. Someone put Mandelamine in a pill with vitamin C and it is marketed as UTI CLEAR? Why didn't I think of that? I'm surprized it doesn't include probiotics to fight infections that are driven by anti-biotic overkill of good bacteria. A lkot of pain meds destroy good bacteria as well. I just use Bifordopholus and acidopholus, but more complex bacteria can be purchased at health food stores. The good bacteria will not only stop you from getting constipated or diarrhea, but it becomes the dominant colony and keeps bad bacteria in check. It never occured to me that people would take Mandelamine and not vitamin C. The C creates an acidic environment and causes mandelamine to turn into formaldehyde. It makes it very difficult for bacteria to survive in the bladder. If you keep testing the Ph level of the urine, you can keep it working very well. john From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Friday, April 17, 2009 2:12:09 AM Subject: Re: [QUAD-L] strange pains Well Dan, I wouuld suspect the syrinx as the possible cause. Most spinal injuries have some tingling sensations but they dont start 11 yrs post. When you get your bladder situation straight I would get that syrinx checked with a closed mri and looked at by at least one neuro. You might have to investigate getting to craig hospital if you find the syrinx has grown consideribly. ron c7 --- On Thu, 4/16/09, Danny Hearn ddh...@sbcglobal.net wrote: From: Danny Hearn ddh...@sbcglobal.net Subject: [QUAD-L] strange pains To: quad-list@eskimo.com Date: Thursday, April 16, 2009, 11:11 AM HELLO GANG, I HAVE BEEN GETTING INCREASING PAINS-IT HAPPENS A LOT WHEN I SLEEP OR WHEN I'M UP IN MY CHAIR-ESPECIALLY IF I'M SLEEPY OR TRY TO DOZE OFF IN MY CHAIR--- TO DESCRIBE IT IS LIKE THIS..MY HANDS FEET LEGS , BACK BECOME VERY PAINFULL AND TINGELY( SUCH AS WHEN A PERSONS HANDS OR FEET USED TO FALL ASLEEP, WHEN LAYING ON THRM WRONG, BEFORE INJURY OR PARALASIS. ) IT IS HAPPENING TO ME MORE OFTEN THESE DAYS..IT IS VERY PAINFULL AND CAUSES ME TO SPASM MORE THAN USUAL. IT SEEMS MY ONLY RELIEF IS BY TAKING PAIN MEDS SUCH AS VICODEN. I KNOW THAT I HAVE A SYRINX...SUCH AS MANY OF YOU ALSO,, AND HAVE HAD BLADDER UTI PROBLEM MUCH OF THIS YEAR, BUT DOC'S QUIT TREATING IT DUE TO FEAR OF MUTATION OR WORSE NON TREATABLE UTI FORMING. HAVE ANY OF YOU EVER EXPERIENCED THIS KIND OF PAINS??? THANKS, DAN H. 11.6 YEARS POST ST. LOUIS, MO. AREA.
Re: [QUAD-L] 37th Annivarsary
This October will be 20 years for me, also injured at age 17. Here's to 30 more!!! On Fri, Apr 17, 2009 at 12:38 PM, bobbie...@aol.com wrote: *So, I have survived 37 years as a quad - I guess I'm lucky?* ** *Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey* -- Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbarhttp://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003 !
RE: [QUAD-L] TRAINED BLADDER- Thumping/blood pressure
Yes I take one a day; it helps the Midodrine do it's job better, thus maintaining a normal blood pressure. I have always had low blood pressure (orthostatic hypo-tension); but with my muscle atrophy over the years the vascular system just doesn't work as it should, so I had more lows. As we all should know- blood pressure high or low is bad; highs we can stroke and lows we can do damage to our organs, and both are hard on the heart. I was fatigued so much with the lows that I didn't have any energy, now I feel better than I have in years. Tim WhoopieKat.com --- On Fri, 4/17/09, Danny Hearn ddh...@sbcglobal.net wrote: From: Danny Hearn ddh...@sbcglobal.net Subject: RE: [QUAD-L] TRAINED BLADDER- Thumping To: QUAD-LIST@eskimo.com, Danny Espinoza static...@roadrunner.com, onemofor...@yahoo.com Date: Friday, April 17, 2009, 9:37 AM TIM, DO YOU TAKE FLUDROCORTISONE EVERY DAY FOR LOW BLOOD PRESSURE MY DOCTOR PUT ME ON THIS ABOUT A WEEK AGO AND SAID TAKE ONE EACH DAYSO FAR I ONLY TAKE IT WHEN MY BLOOD PRESSURE HAS BEEN REAL LOW. DAN*** --- On Fri, 4/17/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: RE: [QUAD-L] TRAINED BLADDER- Thumping To: QUAD-LIST@eskimo.com, Danny Espinoza static...@roadrunner.com Date: Friday, April 17, 2009, 7:54 AM Like I said- it may not work for everyone; and look at the side effects of your meds and how alcohol may effect them. I take fludrocortisone and midodrine for low blood pressure; I am told by my doctor (and pharmacists) that a couple of beers will not effect me and my low blood pressure meds. However- I do take diazepam PRN for sever spasms; or for a good nights rest, however, diazepam (all narcotics) and alcohol do not mix. Tim c5-c6 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 4/16/09, Danny Espinoza static...@roadrunner.com wrote: From: Danny Espinoza static...@roadrunner.com Subject: RE: [QUAD-L] TRAINED BLADDER- Thumping To: onemofor...@yahoo.com, alcibiat...@yahoo.com, QUAD-LIST@eskimo.com, wheelch...@aol.com Date: Thursday, April 16, 2009, 12:41 PM Interesting.. I personally don't like most beers, but I will have to keep that in mind and maybe try it one day Danny Espinoza 26/m/California Occupation before accident Network engineer / SR. Network security engineer What happened: Broke c2,c6,c7 with doner bone at c2 Traumatic brain injury from blood going to central cortex from spinal cord not vent dependendent anymore. :] My myspace address - http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ From: t crook [mailto:onemofor...@yahoo.com] Sent: Thursday, April 16, 2009 8:51 AM To: alcibiat...@yahoo.com; QUAD-LIST@eskimo.com; wheelch...@aol.com Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping Back in ’88 they were teaching the tap and credae method; and it was not working for me, until I started drinking beer on home visits. After several tall cans of barley-pop; I felt this strange sensation near my anus, the flood gates opened and the urine process was so forceful it blew my condom cath clean off of me. When I returned to the hospital I told my rehab doc about the beer making me void on my own; and he prescribed me 3 beers a day (my rehab doc was a marathon running non-drinker), now I just have a couple of beers every other day. I have been cathed about 5 or 6 times in over 20 years (due to a full bowel and the few bladder infections I have had), I’ve only had about three bladder infections. I void about 300 to 500 cc’s each time I void and always have residual; but I’ve been told that my mass amounts of water that I drink doesn’t give bacteria a chance to grow. I recently had an abdominal/pelvic CT w/contrast done, and it showed that my kidneys and everything looked good, my BUN and Creatinine levels have always been good as well. This way of voiding may not be for everyone; but any invasive anything puts you at risk for infection. Nearly 21 years later I still void on my own (I use the Freedom Active condom cath and a leg bag) if I am going in somewhere for a long period of time, I will tap whatever I can out. Tim c5-c6, 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 4/9/09, wheelch...@aol.com wheelch...@aol.com wrote: From: wheelch...@aol.com wheelch...@aol.com Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping To: alcibiat...@yahoo.com, QUAD-LIST@eskimo.com Date: Thursday, April 9, 2009, 4:07 PM Bladder Thumping, must be a guy thang, lol. I've never known a woman to try it. Rare is thumping advised because it does not completely empty the bladder, but does well it voiding a full bladder. So you are always voiding about 80% of your bladder and allowing the rest of the urine to populate bacteria. Urologist like when the bladder is completely emptied. I know of some old men who are walking
Re: [QUAD-L] 37th Annivarsary
Congrats on the longevity! I hope you have many happy and healthy years ahead! Something I have always wondered and have never asked. How does the body continue to grow when you are not yet full-grown, after paralysis? Tim c5-c6 20 yrs. wet behind the ears post haha! www.geocities.com/onemofortom WhoopieKat.com --- On Fri, 4/17/09, Todd Daugherty todd.daughe...@gmail.com wrote: From: Todd Daugherty todd.daughe...@gmail.com Subject: Re: [QUAD-L] 37th Annivarsary To: bobbie...@aol.com Cc: quad-list@eskimo.com Date: Friday, April 17, 2009, 12:35 PM This October will be 20 years for me, also injured at age 17. Here's to 30 more!!! On Fri, Apr 17, 2009 at 12:38 PM, bobbie...@aol.com wrote: So, I have survived 37 years as a quad - I guess I'm lucky? Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!
Re: Re [QUAD-L] Emmit
So what did happen to Emmit; how old was, his level and years post? I too remember the Simply Man; but it has been so long, I just remember much about him. Tim WhoopieKat.com --- On Thu, 4/2/09, Quadius quad...@gmail.com wrote: From: Quadius quad...@gmail.com Subject: Re: Re [QUAD-L] Emmit To: Lori Michaelson lorilivin...@gmail.com Cc: quad-list@eskimo.com Date: Thursday, April 2, 2009, 4:07 PM those of us use voice activation completely understand Lori. I also remember Emmitt. He was a wonderful human being and it is sad to know he has gone. Quadius On Sun, Mar 29, 2009 at 6:14 PM, Lori Michaelson lorilivin...@gmail.com wrote: Not I have to try again (because of typos I did not catch) but: No, I had not heard. And since he has not contributed to the list in so very long -- I must admit that I forgot about him as well as many others who say I will be back but don't. Especially those who are on their way to nursing homes, etc.. I also remember Emmett being a great, funny guy with great admissions here to the list and a great personality! I think we all have a predestined time to go and his was earlier than expected. Lori -- Forwarded message -- From: Lori Michaelson lorilivin...@gmail.com Date: Sun, Mar 29, 2009 at 3:09 PM Subject: Re: [QUAD-L] Emmit To: Dan d...@unh.edu, quad-list@eskimo.com Know, I had not heard. And since he has not contributed to the list and so very long -- I must admit that I forgot about him as well as many others who say that they will be back but don't. I also remember him being a great, funny guy with great admissions and a great personality. I think we all have a predestined time to go and use was earlier than expected. Lori On Sat, Mar 28, 2009 at 9:34 AM, Dan d...@unh.edu wrote: Did you guys know that Emmit died? Remember his sign off - a simple man? How sad. Does anyone know what happened? Dan -- Quadius C2-3 incomplete 13 years post injury
Re: [QUAD-L] TRAINED BLADDER- Thumping
Yes I have been lucky with the bladder and kidneys; but what works for some may not work for others. We as quads are like snow flakes- we are all different in some unique way. Tim WhoopieKat.com --- On Thu, 4/16/09, Candle silverstre...@sbcglobal.net wrote: From: Candle silverstre...@sbcglobal.net Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping Date: Thursday, April 16, 2009, 5:03 PM With my medication, I cannot drink any alcohol. I wasn't a drinker, so I don't miss it, but I could not imagine alcohol with my meds. The doctor explained that they combination can increase the risk of stroke and some combinations can make people fall into a coma. I think it is great that you found something that works for you, though. Candle A sad soul can kill you quicker than a germ.~John Steinbeck * From: t crook onemofor...@yahoo.com To: alcibiat...@yahoo.com; QUAD-LIST@eskimo.com; wheelch...@aol.com Sent: Thursday, April 16, 2009 10:51:25 AM Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping Back in ’88 they were teaching the tap and credae method; and it was not working for me, until I started drinking beer on home visits. After several tall cans of barley-pop; I felt this strange sensation near my anus, the flood gates opened and the urine process was so forceful it blew my condom cath clean off of me. When I returned to the hospital I told my rehab doc about the beer making me void on my own; and he prescribed me 3 beers a day (my rehab doc was a marathon running non-drinker), now I just have a couple of beers every other day. I have been cathed about 5 or 6 times in over 20 years (due to a full bowel and the few bladder infections I have had), I’ve only had about three bladder infections. I void about 300 to 500 cc’s each time I void and always have residual; but I’ve been told that my mass amounts of water that I drink doesn’t give bacteria a chance to grow. I recently had an abdominal/pelvic CT w/contrast done, and it showed that my kidneys and everything looked good, my BUN and Creatinine levels have always been good as well. This way of voiding may not be for everyone; but any invasive anything puts you at risk for infection. Nearly 21 years later I still void on my own (I use the Freedom Active condom cath and a leg bag) if I am going in somewhere for a long period of time, I will tap whatever I can out. Tim c5-c6, 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 4/9/09, wheelch...@aol.com wheelch...@aol.com wrote: From: wheelch...@aol.com wheelch...@aol.com Subject: Re: [QUAD-L] TRAINED BLADDER- Thumping To: alcibiat...@yahoo.com, QUAD-LIST@eskimo.com Date: Thursday, April 9, 2009, 4:07 PM Bladder Thumping, must be a guy thang, lol. I've never known a woman to try it. Rare is thumping advised because it does not completely empty the bladder, but does well it voiding a full bladder. So you are always voiding about 80% of your bladder and allowing the rest of the urine to populate bacteria. Urologist like when the bladder is completely emptied. I know of some old men who are walking with impaired bladders that don't empty with each void. They too are prone to bladder infections and UTIs. Remember that at no time should you void more then 800 cc or urine without stopping for 3-10 minutes, to allow the bladder to contract and prevent a possible stroke. But John, I'm sure that you heard that too. Best Wishes W In a message dated 4/9/2009 3:27:12 P.M. Central Daylight Time, alcibiat...@yahoo.com writes: For the last 12 years, I've only been catheterized to see what residual is left in my bladder. I'm usually between 30 to 50 CC's. My bladder control is based on me stimulating my bladder by a series of taps on my abdomen. If I lay in bed, an external catherter is a must, it seems to flow in 250CC increments. after about 5 hours in the chair, I can use a urinal and get about 500CC's. Very few, (actually none)have mentioned this method. Is it no longer in vogue at rehab centers? I realize it takes 3 to 6 months to train the bladder, but is it even attempted? I remember several people in the 80's using electrodes to train their bladder to empty fully. I haven't heard any of the younger quads that have any idea what I'm talking about. It seems like everyone goes right to an SP. then they experience chronic infections that diminish the efficasy of anti-biotics when they get other infections. The other thing I've noticed is so many take anti-biotics and I'm hoping they are replacing the good bacteria. A lot of the side effects of anti-biotics do not occur if you replace the good bacteria that was just wiped by the medicine. In studies, a healthy colony of good bacteria keep the bad bacteria in check by consuming the food supply the pseudomonas and staph bacteria need to grow. This includes MRSA. There is nothing new about fighting bad bacteria with
FW: [QUAD-L] strange pains
Pain has been a major topic on the list and also a concern to my doctors. I am very fortunate for their concern because for years, and for many others with a spinal injury, our pain is simply dismissed. Of topic on the Q-List is also longevity which brings me to my topic. My doctor has ordered an MRI for my spine. Apparently the spinal column is susceptible to change throughout the years after a spinal injury. Many of these changes are pain related. Perhaps my pain is of concern because by reducing it my night time AD is also controlled. Something some place is askew. Along with Percaset, I have just been given Fentanyl patches which release paim med over time transdermal. I like this. Merrill 18 years post C5 Injury _ From: John S. [mailto:alcibiat...@yahoo.com] Sent: Friday, April 17, 2009 10:17 AM To: quad-list@eskimo.com Subject: Re: [QUAD-L] strange pains After 33 years, I have almost constant pain. No tingling or pins and needles. It is sharp pains that shoot through my back and a constant crushing pain. You may not have developed a syrinx until the past few years. Virtually all quads seem to have a syrinx. It creates pain by disrupting the flow of spinal fluid. If the syrinx moves, it causes increased pain. If you start to loose more function, the syrinx may be expanding upward on your spinal cord and that is when you need to check it. Someone put Mandelamine in a pill with vitamin C and it is marketed as UTI CLEAR? Why didn't I think of that? I'm surprized it doesn't include probiotics to fight infections that are driven by anti-biotic overkill of good bacteria. A lkot of pain meds destroy good bacteria as well. I just use Bifordopholus and acidopholus, but more complex bacteria can be purchased at health food stores. The good bacteria will not only stop you from getting constipated or diarrhea, but it becomes the dominant colony and keeps bad bacteria in check. It never occured to me that people would take Mandelamine and not vitamin C. The C creates an acidic environment and causes mandelamine to turn into formaldehyde. It makes it very difficult for bacteria to survive in the bladder. If you keep testing the Ph level of the urine, you can keep it working very well. john _ From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Friday, April 17, 2009 2:12:09 AM Subject: Re: [QUAD-L] strange pains Well Dan, I wouuld suspect the syrinx as the possible cause. Most spinal injuries have some tingling sensations but they dont start 11 yrs post. When you get your bladder situation straight I would get that syrinx checked with a closed mri and looked at by at least one neuro. You might have to investigate getting to craig hospital if you find the syrinx has grown consideribly. ron c7 --- On Thu, 4/16/09, Danny Hearn ddh...@sbcglobal.net wrote: From: Danny Hearn ddh...@sbcglobal.net Subject: [QUAD-L] strange pains To: quad-list@eskimo.com Date: Thursday, April 16, 2009, 11:11 AM HELLO GANG, I HAVE BEEN GETTING INCREASING PAINS-IT HAPPENS A LOT WHEN I SLEEP OR WHEN I'M UP IN MY CHAIR-ESPECIALLY IF I'M SLEEPY OR TRY TO DOZE OFF IN MY CHAIR--- TO DESCRIBE IT IS LIKE THIS..MY HANDS FEET LEGS , BACK BECOME VERY PAINFULL AND TINGELY( SUCH AS WHEN A PERSONS HANDS OR FEET USED TO FALL ASLEEP, WHEN LAYING ON THRM WRONG, BEFORE INJURY OR PARALASIS. ) IT IS HAPPENING TO ME MORE OFTEN THESE DAYS..IT IS VERY PAINFULL AND CAUSES ME TO SPASM MORE THAN USUAL. IT SEEMS MY ONLY RELIEF IS BY TAKING PAIN MEDS SUCH AS VICODEN. I KNOW THAT I HAVE A SYRINX...SUCH AS MANY OF YOU ALSO,, AND HAVE HAD BLADDER UTI PROBLEM MUCH OF THIS YEAR, BUT DOC'S QUIT TREATING IT DUE TO FEAR OF MUTATION OR WORSE NON TREATABLE UTI FORMING. HAVE ANY OF YOU EVER EXPERIENCED THIS KIND OF PAINS??? THANKS, DAN H. 11.6 YEARS POST ST. LOUIS, MO. AREA.
[QUAD-L] Hoyer Straps
I am hoping somebody on this list will be able to help me. I am a C 3/4
quadriplegic and since I left the rehab facility 15 years ago I have been using
two straps about 6 inches wide {instead of a sling} whenever I hoyer in and out
of my wheelchair. One of them goes behind my shoulders and the other goes under
my knees. I want to replace those straps and cannot find them available
anywhere. All I can find are slings now and we are used to the straps and would
really like to stay with them. Does anybody on here have an idea where I could
purchase them or have them made? Thank you in advance for any ideas you I hope
everybody has a good weekend.
Raymond Kelly
[QUAD-L] Fw: mobility - driving your own power chair
--- On Fri, 4/17/09, Cyndi Davis momofmany0...@yahoo.com wrote: From: Cyndi Davis momofmany0...@yahoo.com Subject: mobility - driving your own power chair To: quad-list@eskimo.com Date: Friday, April 17, 2009, 7:30 PM Hi! How do you all drive your power chairs? My husband is a c5,6 quad, 1 yr. post. He has limited use of some shoulder muscles, but not enough control of his arm to work the joystick on his power chair. A friend suggested getting some kind of head control: sip puff, chin control or head control. When we had the OT do an evaluation, she said he should get enough use back to drive with his arm. She suggested a T shaped joystick. We just saw a U shaped piece on another quad's joystick (someone made his 29 yrs ago). He sets his wrist in the opening and goes where he wants to. The children and I drive my husband around for now (our 2yr. old boy loves driving his Dad's chair - but he runs into everything! so I don't allow him to. He only drives when my back is turned!). It would be nice for my husband to have some independance. Any suggestions? Thanks! momofmany0...@yahoo.com
[QUAD-L] Hoyer Straps
Hi Ray!
Hoyer, has been sold ... yet again. I talked with their chief tech
today and he advised me, the two straps you mentioned are No Longer
Available. The is a reason. Insurance underwriters, approved the product
back in
the 60's when liability laws did not apply to the product and how it was
used. As the Hoyer lift gained popularity in the enduser market, so did
customer abuse of the product. I'm sure it only takes one case before the
insurance people cast their decision to Quash that type of sling. If you
notice
today's slings with weave mesh which offers more protection and less risk
to it user and those doing the lifting. You are now more protected,
because of this.
You can always contact a manufacturer of cargo strapping to restore your
strap slings.
BTW, the same thing happened with scooter trunk lifts using cloth straps
for lifting. Today those cloth straps have been replaced by AirCraft
Quality Stainless Steel, braided wire.
The person who I talked with also expressed some concerns regarding the
possible Fatigue Factor of your lift after all these years of use. Depending
on the actual model and how much stress it has been exposed to over the
years you might consider..
Best Wishes
In a message dated 4/17/2009 2:17:10 P.M. Central Daylight Time,
kel...@hughes.net writes:
I am hoping somebody on this list will be able to help me. I am a C 3/4
quadriplegic and since I left the rehab facility 15 years ago I have been
using two straps about 6 inches wide {instead of a sling} whenever I hoyer in
and out of my wheelchair. One of them goes behind my shoulders and the other
goes under my knees. I want to replace those straps and cannot find them
available anywhere. All I can find are slings now and we are used to the
straps and would really like to stay with them. Does anybody on here have an
idea where I could purchase them or have them made? Thank you in advance
for any ideas you I hope everybody has a good weekend.Raymond Kelly
**Access 350+ FREE radio stations anytime from anywhere on the
web. Get the Radio Toolbar!
(http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [QUAD-L] Fw: mobility - driving your own power chair
Hiya Moms' Return can occur anytime during a period of 3-5 years, depending on the level of injury, medical ability, patient attitude, physical therapy, attitude, physical therapy, attitude and foods. Some joystick handles have been modified using 1/4-3/8 pvc, elbows, and tee to create a handle like a goal post which replaces the ball based handle. Some technology is more expensive then its worth, depending on any return you husband experiences. Amino Acid powders should be part of your husband diet. They are consider the body's building blocks. Weight Lifters and Body Builders use them to help heal muscles between workouts. You husband has one wheelchair and if that should break because of abuse he has nothing to fall back on. Keep the kids from running into things and causing damage. (with kindness) Startec, is a head mount system, for operating an electric chair. ALSO, get your husband on this computer! (lol) Have you jointed the SCI Group in your area? Best Wishes In a message dated 4/17/2009 2:48:38 P.M. Central Daylight Time, momofmany0...@yahoo.com writes: --- On Fri, 4/17/09, Cyndi Davis momofmany0...@yahoo.com wrote: From: Cyndi Davis momofmany0...@yahoo.com Subject: mobility - driving your own power chair To: quad-list@eskimo.com Date: Friday, April 17, 2009, 7:30 PM Hi! How do you all drive your power chairs? My husband is a c5,6 quad, 1 yr. post. He has limited use of some shoulder muscles, but not enough control of his arm to work the joystick on his power chair. A friend suggested getting some kind of head control: sip puff, chin control or head control. When we had the OT do an evaluation, she said he should get enough use back to drive with his arm. She suggested a T shaped joystick. We just saw a U shaped piece on another quad's joystick (someone made his 29 yrs ago). He sets his wrist in the opening and goes where he wants to. The children and I drive my husband around for now (our 2yr. old boy loves driving his Dad's chair - but he runs into everything! so I don't allow him to. He only drives when my back is turned!). It would be nice for my husband to have some independance. Any suggestions? Thanks! _momofmany0...@yahoo.com_ (http://us.mc434.mail.yahoo.com/mc/compose?to=momofmany0...@yahoo.com) **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [QUAD-L] Hoyer Straps
HI, I GOT MINE FROM A CANADIEN COMPANY CALLED WAVERLY GLENI LOVE MY 2 PIECE
STRAP SET-I HATE FULL BODY SLINGS. THEY USUALLY HAVE A DISTRIBUTOR IN YOUR
AREA ORDER FOR YOU..THOUGH YOU MAY BE ABLE TO ORDER IT STRAIGHT FROM THE
COMPANY. THEY WERE A BIT WORRIED ABOUT LAWSUITS IF NO BODY OR ARM CONTROLL AT
ALL--BUT I TOLD MY DISTRIBUTOR TO JUST ORDER IT FOR ME, THAT I'D HOLD
NO-ONE RESPONSIBLE AND WOULD EVEN SIGN SAYING SO--WE'LL HE JUST GOT ME
ONE BECAUSE I DON'T NEED FULL SLING , I'M A C-6 GOOD LUCK, YOU CAN FIND
WAVERLY GLEN ONLINE--IF THEY WON'T SEND DIRECT JUST ASK FOR YOUR NEAREST
LOCAL SUPPLIER THAT USES THEM.. DAN H. C-6
--- On Fri, 4/17/09, Raymond Kelly kel...@hughes.net wrote:
From: Raymond Kelly kel...@hughes.net
Subject: [QUAD-L] Hoyer Straps
To: Quad-list quad-list@eskimo.com
Date: Friday, April 17, 2009, 3:19 PM
I am hoping somebody on this list will be able to help me. I am a C 3/4
quadriplegic and since I left the rehab facility 15 years ago I have been using
two straps about 6 inches wide {instead of a sling} whenever I hoyer in and out
of my wheelchair. One of them goes behind my shoulders and the other goes under
my knees. I want to replace those straps and cannot find them available
anywhere. All I can find are slings now and we are used to the straps and would
really like to stay with them. Does anybody on here have an idea where I could
purchase them or have them made? Thank you in advance for any ideas you I hope
everybody has a good weekend.Raymond Kelly
Re: [QUAD-L] Fw: mobility - driving your own power chair
return can occur anytime. coming from a c5, 12yrs post, who remembers stories from rehab, but has gotten return. 3-5 yrs is BS, maybe that's the 'major return' but i consider being able to 'cause' a spasm then lift my leg to reposition it a major feat ;-D Eric W Rudd c5sc...@gmail.com - Original Message - From: wheelch...@aol.com To: momofmany0...@yahoo.com ; quad-list@eskimo.com Sent: Friday, April 17, 2009 3:24 PM Subject: Re: [QUAD-L] Fw: mobility - driving your own power chair Hiya Moms' Return can occur anytime during a period of 3-5 years, depending on the level of injury, medical ability, patient attitude, physical therapy, attitude, physical therapy, attitude and foods. Some joystick handles have been modified using 1/4-3/8 pvc, elbows, and tee to create a handle like a goal post which replaces the ball based handle. Some technology is more expensive then its worth, depending on any return you husband experiences. Amino Acid powders should be part of your husband diet. They are consider the body's building blocks. Weight Lifters and Body Builders use them to help heal muscles between workouts. You husband has one wheelchair and if that should break because of abuse he has nothing to fall back on. Keep the kids from running into things and causing damage. (with kindness) Startec, is a head mount system, for operating an electric chair. ALSO, get your husband on this computer! (lol) Have you jointed the SCI Group in your area? Best Wishes In a message dated 4/17/2009 2:48:38 P.M. Central Daylight Time, momofmany0...@yahoo.com writes: --- On Fri, 4/17/09, Cyndi Davis momofmany0...@yahoo.com wrote: From: Cyndi Davis momofmany0...@yahoo.com Subject: mobility - driving your own power chair To: quad-list@eskimo.com Date: Friday, April 17, 2009, 7:30 PM Hi! How do you all drive your power chairs? My husband is a c5,6 quad, 1 yr. post. He has limited use of some shoulder muscles, but not enough control of his arm to work the joystick on his power chair. A friend suggested getting some kind of head control: sip puff, chin control or head control. When we had the OT do an evaluation, she said he should get enough use back to drive with his arm. She suggested a T shaped joystick. We just saw a U shaped piece on another quad's joystick (someone made his 29 yrs ago). He sets his wrist in the opening and goes where he wants to. The children and I drive my husband around for now (our 2yr. old boy loves driving his Dad's chair - but he runs into everything! so I don't allow him to. He only drives when my back is turned!). It would be nice for my husband to have some independance. Any suggestions? Thanks! momofmany0...@yahoo.com -- Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!
