[QUAD-L] Seeing my spine Doctor
Wednesday I'm going to see my spine/rehab Doctor. After sitting for 42 years I'm going to ask her to prescribe a few X-Rays to determine if I (officially) have vertebral compression fractures, arthritis in my neck and spine, spinal stenosis. Can anybody suggest anything else I should be checked for? I already know I have osteoporosis, Syringomyelia and scoliosis. I believe that being properly diagnose leads to proper treatment. My foot droop seams to be getting worse, so I need to get some state of the art foot drop boots. Also, when I'm in my chair and in bed I have a terrible time getting comfortable and feeling straight. My hips seam to be out of whack or something. I'll let you know what comes out From my appointment. Bobbie Smile Everyday
RE: Fwd: [QUAD-L] My big 40th Quad-living anniversary soon.
Anxiety is common with quads. I also have a lot of trouble with arthritis in many joints. Often it is the source of AD for me. I'll be 40 years post in September. I hope that you do better than I have in tolerating it. I use Valium for anxiety and ibuprofen to oxycontin for the arthritis pain. While I don't feel much of the pain my body does. Explaining it to doctors gets old. Best wishes, John s. div Original message /divdivFrom: Larry Willis lwillis82...@gmail.com /divdivDate:01/24/2015 1:25 PM (GMT-05:00) /divdivTo: quad-list@eskimo.com /divdivCc: /divdivSubject: Fwd: [QUAD-L] My big 40th Quad-living anniversary soon. /divdiv /divI wonder how many of us on here suffer from anxiety. I had a terrible problem with it a few years ago. Xanax helped a lot. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Danny Hearn ddh...@sbcglobal.net Date: January 23, 2015 at 6:14:29 PM EST To: Quadius quad...@gmail.com, quad-list quad-list@eskimo.com Subject: Re: [QUAD-L] My big 40th Quad-living anniversary soon. Reply-To: Danny Hearn ddh...@sbcglobal.net Yep..I think you'll come through it Quadius, I used to have anxiety attacks years agonever have them anymore, thank God. And yes don't read much of those dark novelsthere are so many that are inspirational and lift ones spirit and helps bring out positive thoughts ! Dan H** On Friday, January 23, 2015 4:51 PM, Quadius quad...@gmail.com wrote: It's fantastic to hear a positive report and optimism at such a large milestone. I myself am about three months away from 20 years and while the last year has been kind of a bummer and I have been battling a bad shoulder/neck injury over the last four weeks, I am positive I will overcome this and get back to my old self. I know, sometimes I have never ending sentences. I guess that's just what stream of thought does. Been dealing with some anxiety problems, which I haven't had in more than 19 years. Had to modify some of my television/movie viewing and the books I'm reading. It wasn't until I started having difficulty with anxiety/depression over the last couple of weeks that I realized how many really dark novels and books I read. Yikes! Getting ready to switch to something with a little more levity. Take care and great to hear about 40 years. Quadius On Fri, Jan 23, 2015 at 2:47 PM, DAVID LEWIS curlyle...@verizon.net wrote: Got hurt 1976 from an auto accident being a passenger in back seat of a car that hit a fire hydrate and lipped over. Friend who was a passenger died in front seat. Can't believe its been that long. Except for few bouts of kidney stones an pneumonia or two no real health issues. Life has been fine. Come and go as i pleased.Had girlfriend and few women time to time. Blessed with great friends and family. Hope to keep on keeping on. Johnny
Re: [QUAD-L] Bed Toppers
On Jan 24, 2015, at 3:36 PM, William Lang III blan...@icloud.com wrote: A few years ago I used a 3 inch memory foam mattress cover, Figuring it might help with being turned. Found out that this type of mattress cover actually helped in destroying my lumbar region. The orthopedic doctor flatly stated that memory foam was the worst possible alternative for people with compromised bone structures. Prior to that I had used nothing but a 2 inch egg crate cover. The drawback of the egg crate is that it stains easily, retains water and moisture (from accidents) and breaks down. I only got about a year out of any of them, but they do the job. I just moved to a king size bed with an adjustable mattress. The mattress lifts so I can actually “sit in bed. I’ve gotten to the point where I can stay on one side (my right) for 10 hour stretch. Like you Danny if I get congested I really need to have my head raised so I don’t choke. IIn Jan 24, 2015, at 9:32 AM, Fragile swl...@gmail.com mailto:swl...@gmail.com wrote: Danny, for a few years I put a memory foam overlay on top of a mattress, and a sheepskin topper over the top of the memory foam. It worked pretty well. Also tried an air alternating pressure overlay, unfortunately they spring a leak after a few weeks. I came across an Invacare alternating pressure/low air loss mattress replacement on eBay that was going for about 1/4 of what they usually cost, purchased it and have been pretty happy with it so far. On Fri, Jan 23, 2015 at 5:56 PM, Danny Hearn ddh...@sbcglobal.net mailto:ddh...@sbcglobal.net wrote: Hi all...I was wondering if any of you use any type of bed mattress Toppers? I been sleeping for years in a queen bed with my wife and she turns me at night but I have so much trouble breathing laying flat ( choke much of night coughing up mucus ) that we got a hospital bed we are going to try and see if lifting the head of bed some may help me. The hospital bed mattress seems hard, and We wondered if any of you use any kind of bed toppers or have any suggestions on that?? there are so many--foam/ gel/foam-egg crate type air and so on that i'm not sure what to try. I do well during the day when up in my chair but nights are getting worse...I guess it may be my Syrinx and bronchitis type lung problems I get bad in the winter months. I use a pro air inhailer but I may need to see a lung doctor I'm not sure, but I guess with lung breathing trouble A lung doctor may know ??? Any Idea's are appreciated ! thanks ahead of time ! Dan H** 17 years post--car wreck, st. Louis,Mo. Area.
Fwd: [QUAD-L] My big 40th Quad-living anniversary soon.
I have arthritis in both shoulders and my right hip. The pain is worse at night. My hip is on fire as I write this. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Fragile swl...@gmail.com Date: January 24, 2015 at 9:39:05 AM EST To: DAVID LEWIS curlyle...@verizon.net, quad-list quad-list@eskimo.com Subject: Re: [QUAD-L] My big 40th Quad-living anniversary soon. This coming February 6 will mark 21 years for me. It seems like yesterday. Recently developed quite a bit of pain in my hips, knees, ankles. Tests show they are pretty much Bone on bone, arthritis. I suspect that is what's causing my autonomic dysreflexia. After 40 years, have you developed arthritis as well? On Fri, Jan 23, 2015 at 12:47 PM, DAVID LEWIS curlyle...@verizon.net wrote: Got hurt 1976 from an auto accident being a passenger in back seat of a car that hit a fire hydrate and lipped over. Friend who was a passenger died in front seat. Can't believe its been that long. Except for few bouts of kidney stones an pneumonia or two no real health issues. Life has been fine. Come and go as i pleased.Had girlfriend and few women time to time. Blessed with great friends and family. Hope to keep on keeping on. Johnny
Re: [QUAD-L] Bed Toppers
I've used a 3 Rhoh mattress for well over 22 years. It only comes in single size, I put a filler egg create mattress folded in half on the other half of my full size hospital bed. The Roho mattress comes in 3 sections that snap together and you inflate it the same way you would a seat cushion. I can stay in any position for over 10 hours without any redness on my skin. Bobbie Smile Everyday On Jan 24, 2015, at 3:39 PM, William Lang III blan...@icloud.com wrote: On Jan 24, 2015, at 3:36 PM, William Lang III blan...@icloud.com wrote: A few years ago I used a 3 inch memory foam mattress cover, Figuring it might help with being turned. Found out that this type of mattress cover actually helped in destroying my lumbar region. The orthopedic doctor flatly stated that memory foam was the worst possible alternative for people with compromised bone structures. Prior to that I had used nothing but a 2 inch egg crate cover. The drawback of the egg crate is that it stains easily, retains water and moisture (from accidents) and breaks down. I only got about a year out of any of them, but they do the job. I just moved to a king size bed with an adjustable mattress. The mattress lifts so I can actually “sit in bed. I’ve gotten to the point where I can stay on one side (my right) for 10 hour stretch. Like you Danny if I get congested I really need to have my head raised so I don’t choke. IIn Jan 24, 2015, at 9:32 AM, Fragile swl...@gmail.com wrote: Danny, for a few years I put a memory foam overlay on top of a mattress, and a sheepskin topper over the top of the memory foam. It worked pretty well. Also tried an air alternating pressure overlay, unfortunately they spring a leak after a few weeks. I came across an Invacare alternating pressure/low air loss mattress replacement on eBay that was going for about 1/4 of what they usually cost, purchased it and have been pretty happy with it so far. On Fri, Jan 23, 2015 at 5:56 PM, Danny Hearn ddh...@sbcglobal.net wrote: Hi all...I was wondering if any of you use any type of bed mattress Toppers? I been sleeping for years in a queen bed with my wife and she turns me at night but I have so much trouble breathing laying flat ( choke much of night coughing up mucus ) that we got a hospital bed we are going to try and see if lifting the head of bed some may help me. The hospital bed mattress seems hard, and We wondered if any of you use any kind of bed toppers or have any suggestions on that?? there are so many--foam/ gel/foam-egg crate type air and so on that i'm not sure what to try. I do well during the day when up in my chair but nights are getting worse...I guess it may be my Syrinx and bronchitis type lung problems I get bad in the winter months. I use a pro air inhailer but I may need to see a lung doctor I'm not sure, but I guess with lung breathing trouble A lung doctor may know ??? Any Idea's are appreciated ! thanks ahead of time ! Dan H** 17 years post--car wreck, st. Louis,Mo. Area.
RE: [QUAD-L] My big 40th Quad-living anniversary soon.
I call my youngest granddaughter my insurance policy, because I want to see her become a snotty teenager LOL. She is five and well on her way with the quick answers. She was asked to help pick up toys after just arriving at day care and said that she didn’t make a mess, so why should she clean it up? Miss Tiffany patiently explained that we all work together etc. etc. Et cetera. The five year old then states “sucks to be you” she apologized profusely after her time out, and then proceeded to tell her older brothers and sisters (4) that was not the thing to do! Her poor mom and dad. Joan From: Ed Tessier [mailto:e...@teamjeved.com] Sent: Friday, January 23, 2015 1:00 PM To: Danny Hearn Cc: DAVID LEWIS; Quad-list Post Subject: Re: [QUAD-L] My big 40th Quad-living anniversary soon. Congratulations on the milestone! I'm looking up to guys like you to stick around long enough and see my kids all graduate, high school at least? I passed 30 years post injury last year – – injured at 17, currently 48. Wife and kids 11, nine, eight, five. I really need another 13 years :-) On Fri, Jan 23, 2015 at 12:30 PM, Danny Hearn ddh...@sbcglobal.net wrote: Glad to hear the positive report ! Were you young at time of injury in 1976? I got hurt in august 1997...was 40 years old at the time, overall life has been pretty good for me too. Dan H** On Friday, January 23, 2015 1:47 PM, DAVID LEWIS curlyle...@verizon.net wrote: Got hurt 1976 from an auto accident being a passenger in back seat of a car that hit a fire hydrate and lipped over. Friend who was a passenger died in front seat. Can't believe its been that long. Except for few bouts of kidney stones an pneumonia or two no real health issues. Life has been fine. Come and go as i pleased.Had girlfriend and few women time to time. Blessed with great friends and family. Hope to keep on keeping on. Johnny
RE: [QUAD-L] My big 40th Quad-living anniversary soon.
We had some extremely stressing problems the end of last summer and I for the first time had some anxiety attacks, but did not realize what they were. Talk to my Dr. Who also gave me Xanax and it got me over the hump and able to deal better with the situation. I took them for about six weeks, and haven’t needed them since. Sometimes we all need a little help. Joan From: Larry Willis [mailto:lwillis82...@gmail.com] Sent: Saturday, January 24, 2015 10:25 AM To: quad-list@eskimo.com Subject: Fwd: [QUAD-L] My big 40th Quad-living anniversary soon. I wonder how many of us on here suffer from anxiety. I had a terrible problem with it a few years ago. Xanax helped a lot. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Danny Hearn ddh...@sbcglobal.net Date: January 23, 2015 at 6:14:29 PM EST To: Quadius quad...@gmail.com, quad-list quad-list@eskimo.com Subject: Re: [QUAD-L] My big 40th Quad-living anniversary soon. Reply-To: Danny Hearn ddh...@sbcglobal.net Yep..I think you'll come through it Quadius, I used to have anxiety attacks years agonever have them anymore, thank God. And yes don't read much of those dark novelsthere are so many that are inspirational and lift ones spirit and helps bring out positive thoughts ! Dan H** On Friday, January 23, 2015 4:51 PM, Quadius quad...@gmail.com wrote: It's fantastic to hear a positive report and optimism at such a large milestone. I myself am about three months away from 20 years and while the last year has been kind of a bummer and I have been battling a bad shoulder/neck injury over the last four weeks, I am positive I will overcome this and get back to my old self. I know, sometimes I have never ending sentences. I guess that's just what stream of thought does. Been dealing with some anxiety problems, which I haven't had in more than 19 years. Had to modify some of my television/movie viewing and the books I'm reading. It wasn't until I started having difficulty with anxiety/depression over the last couple of weeks that I realized how many really dark novels and books I read. Yikes! Getting ready to switch to something with a little more levity. Take care and great to hear about 40 years. Quadius On Fri, Jan 23, 2015 at 2:47 PM, DAVID LEWIS curlyle...@verizon.net wrote: Got hurt 1976 from an auto accident being a passenger in back seat of a car that hit a fire hydrate and lipped over. Friend who was a passenger died in front seat. Can't believe its been that long. Except for few bouts of kidney stones an pneumonia or two no real health issues. Life has been fine. Come and go as i pleased.Had girlfriend and few women time to time. Blessed with great friends and family. Hope to keep on keeping on. Johnny
RE: [QUAD-L] My big 40th Quad-living anniversary soon.
Congratulations David What level are you? I am also lucky and have few medical issues and so far none that are SCI related exclusively. I had arthritis before I broke my neck at age 51, but it really hasn’t spread much more. My left shoulder is bone on bone and it sometimes flares up, but I have been able to control it with over the counter pills. Not surprisingly at almost 76 I have osteoporosis, but with Fosamax we have held it at a relatively low level. I am lucky enough to have an outstanding general practitioner and works with me to keep prescription medications at a very low level. Staying busy and interested in the outside activities available helps to keep my optimism up. Keep on trucking, good for you. Joan C4 complete October 1990 From: DAVID LEWIS [mailto:curlyle...@verizon.net] Sent: Friday, January 23, 2015 11:48 AM To: Quad-list Post Subject: [QUAD-L] My big 40th Quad-living anniversary soon. Got hurt 1976 from an auto accident being a passenger in back seat of a car that hit a fire hydrate and lipped over. Friend who was a passenger died in front seat. Can't believe its been that long. Except for few bouts of kidney stones an pneumonia or two no real health issues. Life has been fine. Come and go as i pleased.Had girlfriend and few women time to time. Blessed with great friends and family. Hope to keep on keeping on. Johnny
Fwd: [QUAD-L] My big 40th Quad-living anniversary soon.
Anxiety doesn't have a specific cause. It is a feeling of uneasiness, fear, panic, difficulty breathing. You feel like you are going to explode. It is irrational and some say it feels like a heart attack. I have had two panic attacks in my life and I honestly thought I was dying. I do not wish to have a third. I don't have a clue what caused them. Sent from my iPad Begin forwarded message: From: DAVID LEWIS curlyle...@verizon.net Date: January 24, 2015 at 1:55:53 PM EST To: Larry Willis lwillis82...@gmail.com Subject: Re: Fwd: [QUAD-L] My big 40th Quad-living anniversary soon. Reply-To: DAVID LEWIS curlyle...@verizon.net my i ask what you get really anxiety about?/ On Saturday, January 24, 2015 1:25 PM, Larry Willis lwillis82...@gmail.com wrote: I wonder how many of us on here suffer from anxiety. I had a terrible problem with it a few years ago. Xanax helped a lot. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Danny Hearn ddh...@sbcglobal.net Date: January 23, 2015 at 6:14:29 PM EST To: Quadius quad...@gmail.com, quad-list quad-list@eskimo.com Subject: Re: [QUAD-L] My big 40th Quad-living anniversary soon. Reply-To: Danny Hearn ddh...@sbcglobal.net Yep..I think you'll come through it Quadius, I used to have anxiety attacks years agonever have them anymore, thank God. And yes don't read much of those dark novelsthere are so many that are inspirational and lift ones spirit and helps bring out positive thoughts ! Dan H** On Friday, January 23, 2015 4:51 PM, Quadius quad...@gmail.com wrote: It's fantastic to hear a positive report and optimism at such a large milestone. I myself am about three months away from 20 years and while the last year has been kind of a bummer and I have been battling a bad shoulder/neck injury over the last four weeks, I am positive I will overcome this and get back to my old self. I know, sometimes I have never ending sentences. I guess that's just what stream of thought does. Been dealing with some anxiety problems, which I haven't had in more than 19 years. Had to modify some of my television/movie viewing and the books I'm reading. It wasn't until I started having difficulty with anxiety/depression over the last couple of weeks that I realized how many really dark novels and books I read. Yikes! Getting ready to switch to something with a little more levity. Take care and great to hear about 40 years. Quadius On Fri, Jan 23, 2015 at 2:47 PM, DAVID LEWIS curlyle...@verizon.net wrote: Got hurt 1976 from an auto accident being a passenger in back seat of a car that hit a fire hydrate and lipped over. Friend who was a passenger died in front seat. Can't believe its been that long. Except for few bouts of kidney stones an pneumonia or two no real health issues. Life has been fine. Come and go as i pleased.Had girlfriend and few women time to time. Blessed with great friends and family. Hope to keep on keeping on. Johnny
[QUAD-L] Quad life and stress
I'm a meditation instructor and can Guarantee that's it will reduce your stress by, at least, 90% or more. Here is a prime example of how stress directly effects your breathing. * Close your eyes and just breath as you would normally. * Notice how the air goes in and out of your nose. * Now, think of something that made you EXTREMLY angry, just furious. * Notice how your breathing becomes shallow and your face and body tense up. * Now, I want you to think of something that made you the happiest you've ever been. Or made you laugh till you cried. * Now notice how more air (and oxygen) comes into your body and your body relaxes. Try this exercise and let me know what you think. Bobbie Smile Everyday
Re: [QUAD-L] Bed Toppers
Danny, for a few years I put a memory foam overlay on top of a mattress, and a sheepskin topper over the top of the memory foam. It worked pretty well. Also tried an air alternating pressure overlay, unfortunately they spring a leak after a few weeks. I came across an Invacare alternating pressure/low air loss mattress replacement on eBay that was going for about 1/4 of what they usually cost, purchased it and have been pretty happy with it so far. On Fri, Jan 23, 2015 at 5:56 PM, Danny Hearn ddh...@sbcglobal.net wrote: Hi all...I was wondering if any of you use any type of bed mattress Toppers? I been sleeping for years in a queen bed with my wife and she turns me at night but I have so much trouble breathing laying flat ( choke much of night coughing up mucus ) that we got a hospital bed we are going to try and see if lifting the head of bed some may help me. The hospital bed mattress seems hard, and We wondered if any of you use any kind of bed toppers or have any suggestions on that?? there are so many--foam/ gel/foam-egg crate type air and so on that i'm not sure what to try. I do well during the day when up in my chair but nights are getting worse...I guess it may be my Syrinx and bronchitis type lung problems I get bad in the winter months. I use a pro air inhailer but I may need to see a lung doctor I'm not sure, but I guess with lung breathing trouble A lung doctor may know ??? Any Idea's are appreciated ! thanks ahead of time ! Dan H** 17 years post--car wreck, st. Louis,Mo. Area.
Re: [QUAD-L] My big 40th Quad-living anniversary soon.
This coming February 6 will mark 21 years for me. It seems like yesterday. Recently developed quite a bit of pain in my hips, knees, ankles. Tests show they are pretty much Bone on bone, arthritis. I suspect that is what's causing my autonomic dysreflexia. After 40 years, have you developed arthritis as well? On Fri, Jan 23, 2015 at 12:47 PM, DAVID LEWIS curlyle...@verizon.net wrote: Got hurt 1976 from an auto accident being a passenger in back seat of a car that hit a fire hydrate and lipped over. Friend who was a passenger died in front seat. Can't believe its been that long. Except for few bouts of kidney stones an pneumonia or two no real health issues. Life has been fine. Come and go as i pleased.Had girlfriend and few women time to time. Blessed with great friends and family. Hope to keep on keeping on. Johnny
Fwd: [QUAD-L] My big 40th Quad-living anniversary soon.
I wonder how many of us on here suffer from anxiety. I had a terrible problem with it a few years ago. Xanax helped a lot. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Danny Hearn ddh...@sbcglobal.net Date: January 23, 2015 at 6:14:29 PM EST To: Quadius quad...@gmail.com, quad-list quad-list@eskimo.com Subject: Re: [QUAD-L] My big 40th Quad-living anniversary soon. Reply-To: Danny Hearn ddh...@sbcglobal.net Yep..I think you'll come through it Quadius, I used to have anxiety attacks years agonever have them anymore, thank God. And yes don't read much of those dark novelsthere are so many that are inspirational and lift ones spirit and helps bring out positive thoughts ! Dan H** On Friday, January 23, 2015 4:51 PM, Quadius quad...@gmail.com wrote: It's fantastic to hear a positive report and optimism at such a large milestone. I myself am about three months away from 20 years and while the last year has been kind of a bummer and I have been battling a bad shoulder/neck injury over the last four weeks, I am positive I will overcome this and get back to my old self. I know, sometimes I have never ending sentences. I guess that's just what stream of thought does. Been dealing with some anxiety problems, which I haven't had in more than 19 years. Had to modify some of my television/movie viewing and the books I'm reading. It wasn't until I started having difficulty with anxiety/depression over the last couple of weeks that I realized how many really dark novels and books I read. Yikes! Getting ready to switch to something with a little more levity. Take care and great to hear about 40 years. Quadius On Fri, Jan 23, 2015 at 2:47 PM, DAVID LEWIS curlyle...@verizon.net wrote: Got hurt 1976 from an auto accident being a passenger in back seat of a car that hit a fire hydrate and lipped over. Friend who was a passenger died in front seat. Can't believe its been that long. Except for few bouts of kidney stones an pneumonia or two no real health issues. Life has been fine. Come and go as i pleased.Had girlfriend and few women time to time. Blessed with great friends and family. Hope to keep on keeping on. Johnny
