Re: [QUAD-L] Birthdays - I'm another year older
I have unsubcrbed to this list.thank you Gloria Matthews - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Thursday, February 09, 2006 10:28 PM Subject: Re: [QUAD-L] Birthdays - I'm another year older Happy Birthday Smurffette! Love and best wishes always! john In a message dated 2/9/2006 10:10:38 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Happy belated B-day Smurfette- cheers! I will be lordy lordy lordy; never turning 40 39 and holding on the 20th. Timwww.geocities.com/onemofortom [EMAIL PROTECTED] wrote: Hey ya peeps, I wanted to share with you my birthday so hopefully, you will all have some form of a drink with me to help me celebrate?! It was my actual birthday yesterday (6th Feb) but I've been celebrating today. My first full day of being 22! It'll be awesome if you will join in with me, let's make it a huge party and celebrate all of our lives while we are there! So come on, who's up for it. (Please?!?!?! ) hehe! Love Smurf xxx
[QUAD-L] unsubcribe
unsubscribe Gloria Matthews
Re: [QUAD-L] Driving
Ohyeah...he has that.. Gloria MatthewsSwansboro, NC 28584 - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Saturday, January 14, 2006 9:28 AM Subject: Re: [QUAD-L] Driving I'm sure they were referring to "Zero Effort Steering" W In a message dated 1/13/2006 9:27:48 PM Central Standard Time, [EMAIL PROTECTED] writes: Not sure what "o power steering is"..is that that little wheel on the steering wheel? We have a friend quad who has that. A huge ole transfer truck whizzed by us causing it to "fish tail"...and of course it went right on by..yespraise God.we were both ok...in fact, had we not had the accident, his lung cancer would not have been discoveret
Re: [QUAD-L] Driving
Not sure what "o power steering is"..is that that little wheel on the steering wheel? We have a friend quad who has that. A huge ole transfer truck whizzed by us causing it to "fish tail"...and of course it went right on by..yespraise God.we were both ok...in fact, had we not had the accident, his lung cancer would not have been discoveret Gloria Matthews hubby quad for 43 yearsSwansboro, NC 28584 - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Friday, January 13, 2006 8:08 PM Subject: Re: [QUAD-L] Driving In a message dated 1/12/2006 9:51:20 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: My husband who is quad has been driving about 15 years, but lately..I am terrified to ride with him since we had a horrendous accident (he was driving and lost control of our van while pulling our travel trailer and we miraculously survived.).. That's interesting. My van has 0 effort steering and & I can't fathom towing anything with it! Is-was your husband's van regular power steering? I assume you both are ok from the accident. Diane
Re: [QUAD-L] Driving
Hilarious. Gloria Matthews hubby quad for 43 yearsSwansboro, NC 28584 - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Friday, January 13, 2006 4:24 PM Subject: Re: [QUAD-L] Driving I once insisted in giving an old woman a ride to the city and after we got there safely, I unlocked the door and her seat belt and beam'd with delight as I just knew she enjoyed the ride. Then she told me that she was only try to cross the street this day and thought I was a Boy Scout, trying to help her. I ended up taking her back to where I had first pick'd her up, then took her across the street to the mailbox, so she could catch the city bus. (go figure) lol W In a message dated 1/13/2006 11:50:49 AM Central Standard Time, [EMAIL PROTECTED] writes: You have to respect someone who makes a decision that they feel directly impacts their life. Paul c5/6 quad (will be driving in one month
[QUAD-L] Good for you......keep at it
Aaron, I am glad you are able to go and do what you do...keep doing it as long as you can. I have to help my husband get in and out of bed, get him dressed and undressed, change his urostomy bag (like a colostomy except for urine)get him on the potty chair and give him an enema...back him over the commode and see if he goes.get him in the showercut up his food,...etc etc...He requires a lot of equipment to travel.. Been doing this caregiving thing for probably more years than you are old.my body has worn slam out.. You keep on going and enjoying life... Sincerely, - Original Message - From: Aaron Mann To: Gloria Matthews ; quad-list@eskimo.com Sent: Tuesday, January 10, 2006 10:58 AM Subject: RE: [QUAD-L] Just wondering I'm just catching up with posts and saw yours. I'm a C4-5 and travel a lot. Car, plane, train, and boat are ones I've been on multiple times. I try to get away at least one weekend a month and do one or two "1 to 2 week" vacations a year. I'm not sure what level your husband is or what equipment you need, but I've been able to get all my traveling needs into one duffel bag. I do not bring my "sit" chair for weekend getaways, but do on the long trips. I use a low effort lift that folds up to be pretty compact. Unless I'm going to a semi "third world" country I don't bring anything else. (Most things can be bought in any major city) I just toss it all in my mini-van and off we go. I've found lodging pretty easy. If my chair will get through the door, it's good for me. I can do washing and bowel program in bed, then wash my hair over a sink, trash can, or bucket. So, that eliminates the need for an accessible bathroom. Also, find a travel buddy. Someone who'll go with to help. I've got 2 or 3 people who don't mind going as long as I give them food and a place to sleep. Any more questions, just ask. Be creative and determine what is needed to travel. I found I could cut out a third of what I normally bring. (I'm planning my second skiing trip this week, can't wait!) From: David K. Kelmer [mailto:[EMAIL PROTECTED] Sent: Tuesday, January 10, 2006 9:14 AMTo: Gloria Matthews; quad-list@eskimo.comSubject: Re: [QUAD-L] Just wondering Hi Gloria, I saw your post, both here and on the SCIC Group, but the only traveling I've done was cross country air-flight to a friend or family's home. I would take my chair and my 'supply bag' but no hoyer. I've seen some answers that might be helpful on the SCIC Group's posts. Good luck with your question, and stay strong. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Gloria Matthews <[EMAIL PROTECTED]> wrote: I posted a "traveling dilema" concerning the fact that me and my hubby ( quad for 43 years) can not travel anymore due to my inability any longer to load all the stuff we need and ! finding accessible lodging..just wonder if it got posted (as I am new to this) and if anyone has similar concerns or suggestions. Thanks you guys, Gloria Matthewscaregiver of hubby, 43 years postSwansboro, NC 28584
Re: [QUAD-L] Medicaid Doctor is coming to my apartment ~ Help
My husband gets a new power wheelchair every 5 years.5 years is a lot of wear and tear ...I'd say whatever it takes to get a new one, the truth usually works pretty good plus, the older you get, the more one relies on a power wheelchair..you're entitled.. Gloria MatthewsSwansboro, NC 28584 hubby quad for 43 years - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, January 10, 2006 12:29 PM Subject: [QUAD-L] Medicaid Doctor is coming to my apartment ~ Help Hi All, I ordered a brand new power chair and this morning Dr. Kay, the Medicaid Doctor, called and said she want's to come over to my apartment and meet me to discuss my new power chair order. What should I say? What shouldn't I say? The power chair I'm in now is only 5 years old BUT it malfunctions a lot, like stopping whenever it wants to. It also move's on it's own and it tip backwards very easily. In December 2005 I had an MRI that showed I have a syrinx on C 6 and osteoporosis in my neck. OH, and I've ordered a tilt for the very first time in 33 years. What would you guys do and not do to get this new power chair approved? ~ Bobbie ~
[QUAD-L] Re: TRAVEL--Us too
Hello Bettye, It is so nice to hear from you...seems you might be the only other "long time" caregiver of hubby quad too. We also only travel to doctor appts and those are within a 30 min drive. Charles is recovering still from lung cancer treatment. When we were younger and healthier (I am 55 and he is 64), we were able to just pack up and go about anywhere.that has all changed in the last 2 years mostly due to my painful back and more equipment needed now then use to. We have a hospital bed at home with electronic air flow mattress and of course trapeze bar. Also since the partial lung removal, his muscles aren't as strong as they once were. Everyone keeps telling us we should just be thankful for our blessings, that Charles is a lung cancer survivor and ALIVE and just stay home and be satisfied. This is very very hard especially when Charles keeps mentioning over and over that he would like to see the NC mountains ONE more time..go to Florida in the winter ONE more time, take ONE more cruiseon and on and on.Yet, he does not one thing to search and search for accessibility, beg someone to go with us and drive and help out with all that's needed.(course he never has...I've always done the asking, the searching, the planning...hence the frustration.) It is awfully hard when I think my husband may not be around another year and I can not grant his "last wishes." We can't even go visit our kids and grandkids who are only 3 hours away, as he can't take the 2 way travel in a day trip. They don't come visit us much and even so, we live in a mobile home and there's not a lot of room. And when they do come, they never offer to help get Dad in and out of bed, undressed, dressed, etc...they can do it and they have done it but they NEVER offer to help MOM out. We did travel the 3 hrs Christmas weekend to see our kids and stayed in a Microtel motel nearby. Our son lived near by enough to come over and help out. We have to move the bed out from the wall to set up the trapeze, use bed risers (these flower pot looking things we carry around) to make the bed high enough so I won't have to bend over so far to help him get in and out & it makes wheelchair transfers do-able) getting dressed, etc..an eggcrate mattress we duct tape to the mattressthe wheelchair battery that weighs about 10 lbs, his potty/shower chair on wheels. He has to get from bed onto potty chair, get in bathroom for an enema, back over the commode, then roll into the shower. Like I think it was Lori that said, once you get all that stuff in the van, Charles can't get out till it's all unloaded. Anyway, I just get so sad and frustrated sometimes when all our friends are going on trips and they just say, "hey, why don't you come with us?"I know they don't have a clue as to what's involved, so when I explain this to themthey still forget and sometime later will say"hey, why don't you come see us?".then I have to explain all over again... I have vented enough for this morning...I know you know where I'm coming fromI sure do need some support sometimes. Sincerely, Gloria Matthews1204-58 Cedar Pt. Blvd.Swansboro, NC hubby quad for 43 years - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Sunday, January 08, 2006 2:53 PM Subject: Re: TRAVEL Hi Gloria, No my hubby and I do not travel at all. The only traveling we do is to doctors. His health is failing and we would not be able to physically do all that it would entail. They have a lot of trips set up, there is a place in Co. I think that is actually free to disabled Vets. U will hear from me soon with the imfo. Bettye
[QUAD-L] Just wondering
I posted a "traveling dilema" concerning the fact that me and my hubby ( quad for 43 years) can not travel anymore due to my inability any longer to load all the stuff we need and finding accessible lodging..just wonder if it got posted (as I am new to this) and if anyone has similar concerns or suggestions. Thanks you guys, Gloria Matthewscaregiver of hubbySwansboro, NC 28584
[QUAD-L] first time user
Hello. This is my first time so I'm not sure if I'm doing this right or not.maybe I'm suppose to post on the site and not just "reply." Anyway, until I figure that out... My husband is quad and we're looking for the impossible...accessible vacation rental in Florida or NC or Virginia mountains.I've been searching for 25 years nowhave accessed all the sites and magazines..but maybe you guys can helpneed cottage or condo with roll in shower, roll under sink...you know, a USABLE wheelchair place...not just "accessibile"...ie...once ya get IN, one can actually DO something in there! Thanks for any help. Gloria Matthews Swansboro, NC 28584 - Original Message - From: "Brien Stocker" <[EMAIL PROTECTED]> To: Cc: Sent: Thursday, December 29, 2005 3:58 PM Subject: Re: [QUAD-L] vitamins William Willis wrote: Did someone post a vitamin regimen for presure sores a while back, or did I just dream it? If so, would you post it again? Thanks. Here is a long but possible answer to your vitamin question: I have been on Dr Perricones diet "The Perricone Weight loss Diet" for about 2 months. The number of supplements is pretty significant but the way he teaches you to eat is so healthy, will help keep you or help you attain a healthy weight and is such a good diet that your skin is more durable and less susceptible to problems. His first books were actually anti aging and improved skin and complexion books. This weight loss book embraces all the previous diet aspects. I have a 2 year old pressure sore on my outer ankle bone that is finally healing. It may be due to this diet but, the great thing about this diet is that I FEEL better mentally and physically and I am never hungry between meals. I am 44 and it is the best lifestyle I have ever encountered. I used to do Ironman Qualifiers. If I had known about this lifestyle and way of eating then, my performance WOULD definitely have been better. I know many people with SCI are looking for good, healthy and satisfying ways to eat. This book may help you: http://www.nvperriconemd.com/perricone-weight-loss-diet.htm. my best, Brien
