Re: [QUAD-L] Anniversary
Congrats! From: gah17...@aol.com gah17...@aol.com To: quad-list@eskimo.com Sent: Wednesday, July 10, 2013 1:13 PM Subject: [QUAD-L] Anniversary Today is my 47 anniversary (whoopie) of my accident.\ Did I miss out on things in life, yes! Were doors opened for me that would not have opened if my accident had not occurred, definitely! I have had a good life and hope to post 48. But there are days life sucks Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582
Re: [QUAD-L] Bad Quad feet
Totally Agree! From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com quad-list@eskimo.com Sent: Monday, June 24, 2013 11:21 PM Subject: Re: [QUAD-L] Bad Quad feet Bobbie, When i was in the hospital with my initial injury in 98 i had a hole in the side of my knee to the bone and they wanted to amputate. There is never a reason to immediately amputate a limb unless the infection has set in and its beyond hope and going to kill you . Many doctors and people in general think if your paralyzed, you dont need the limbs anyway, so why mess with itjust amputate. If Britney Spears, Rihanna or the doctors mother had curled feet they would never even bring up amputation. This quad girl needs to go to another doctor or two or three until she finds one willing to direct her to the rehab personnel that can deal with this. Totally rediculous. Imagine how many old folks and disabled have had limbs cut off simply because its the easy way to go. god help this woman find help. ron c7 From: Gmail bobbiehumphre...@gmail.com To: quad-list@eskimo.com Sent: Monday, June 24, 2013 9:45 PM Subject: [QUAD-L] Bad Quad feet Hi All, I was talking to a neighbor friend of mine, who is a C7 quadriplegic female 38 18 years post. She just got back from the podiatrist who told her that he may need to amputate her right foot because her rose have Severely curled under. She was injured at age 17 and never wore shoes right from the beginning because she wears size 11 And could never find shoes to fit. I told her to get a second and third opinion before she did any drastic. Has anybody ever had issues like this before? Bobbie Sent from my iPad
Re: [QUAD-L] 15 YEARS
Congrats! From: Gmail bobbiehumphre...@gmail.com To: Dana Wray daa...@aol.com Cc: wheelch...@aol.com wheelch...@aol.com; quad...@gmail.com quad...@gmail.com; zoocr...@windstream.net zoocr...@windstream.net; quad-list@eskimo.com quad-list@eskimo.com Sent: Monday, July 1, 2013 1:56 PM Subject: Re: [QUAD-L] 15 YEARS OFF THE VENT IS A VERY BIG ACCOMPLISHMENT!!! Good for you! Bobbie Sent from my iPad On Jul 1, 2013, at 12:17 AM, Dana Wray daa...@aol.com wrote: Congratulations Quadis 18 years off The ventilator, I great accomplishment. Dana Sent from my iPhone On Jun 30, 2013, at 8:39 PM, wheelch...@aol.com wrote: Congrats Quadius! Any Reason Is A Good Reason To Celebrate! Best Wishes In a message dated 6/30/2013 8:19:27 P.M. Central Daylight Time, quad...@gmail.com writes: Congratulations. I'm celebrating 18 years of being off the ventilator in about four weeks. I choose to accentuate the positive rather than the date of my actual injury. Take care, On Thu, Jun 27, 2013 at 8:13 PM, nichole rohling zoocr...@windstream.net wrote: My best friend since junior high came to visit and we went to lunch J Nice to have the distraction. It usually doesn’t bother me but for some reason I’ve been thinking about this one. I can’t imagine 25 more years! Nicki c5/6 diving accident “feet first always” From:Gmail [mailto:bobbiehumphre...@gmail.com] Sent: Thursday, June 27, 2013 6:40 PM To: nichole rohling Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] 15 YEARS Congrats on Dealing with adversityDo you celebrate in any fashion? I just celebrated my 40th anniversary and I am having my third party on 7 July. I'm just getting together with some people that I haven't seen in a long time at a restaurant, sitting, talking, eating, laughing, enjoying life. Bobbie Sent from my iPad On Jun 27, 2013, at 6:31 PM, nichole rohling zoocr...@windstream.net wrote: Can’t believe today is 15 years since my accident……….CrAzY! Nicki
Re: [QUAD-L] website
Thanks! From: wheelch...@aol.com wheelch...@aol.com To: ppac...@comcast.net; quad-list@eskimo.com Sent: Friday, June 14, 2013 11:44 PM Subject: Re: [QUAD-L] website thanks Paul Best Wishes In a message dated 6/14/2013 12:14:43 P.M. Central Daylight Time, ppac...@comcast.net writes: Hi everyone, Do you all know the CareCure Community website? It is a very informative website and has a wealth of subjects to talk about.Check it out. Thank you! Paul
[QUAD-L] Cleaning Glasses!
I've been wearing glasses off and on for several years, now I'm wearing my new glasses full time. When I clean them it leaves a film on the lens. Does anybody here have any tips on how a quad can clean his glasses without having to call on someone else?
Re: [QUAD-L] 45th Anniversary!
Congrats!!! From: Nan nlg52...@yahoo.com To: quad-list@eskimo.com quad-list@eskimo.com Sent: Friday, June 7, 2013 11:14 PM Subject: [QUAD-L] 45th Anniversary! First, congrats to those of you who have made it longer than I. It's a real accomplishment! I was going to write earlier but got knee deep in filling out entry forms copying documents for the next horse show. I did celebrate with a big bowl of soft chocolate ice cream! Then a mandatory tilt for a couple of hours, and now on to you all. All I can say is... Hooray! I made it another year! Nan 45 years post C5/6 Complete Trampoline/Pool slide accident 6/7/68
Re: [QUAD-L] carolyn DAndrea
Congrats Carolyn! May you have many more and healthy years! From: Carolyn DAndrea carolyndeand...@comcast.net To: quad-list@eskimo.com Sent: Monday, April 29, 2013 4:04 PM Subject: [QUAD-L] carolyn DAndrea Carolynn DAndrea C3/4 car accident in bpt ct..this sunday will be my 50th year as a quad..wow...living now in Tamarac, Fl..age 68
Re: [QUAD-L] test
All good here! From: Danny Espinoza da...@immortaldesigns.co To: wheelch...@aol.com; quad-list@eskimo.com Sent: Monday, June 3, 2013 1:10 PM Subject: RE: [QUAD-L] test Cool it’s not blocking me anymore then :D My messages would never make it to the quad list before and I would get an email from the server saying it had been blocked. From:wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Monday, June 03, 2013 9:59 AM To: da...@immortaldesigns.co; quad-list@eskimo.com Subject: Re: [QUAD-L] test I don't think so, but I got it via the Quad-List Best Wishes In a message dated 6/3/2013 11:27:00 A.M. Central Daylight Time, da...@immortaldesigns.co writes: Does this work yet?
Re: [QUAD-L] Reminder: quad-list on facebook
Ditto! From: Jim Lubin jlu...@eskimo.com To: quad-list@eskimo.com Sent: Thursday, May 30, 2013 1:24 PM Subject: [QUAD-L] Reminder: quad-list on facebook https://www.facebook.com/quadlist You can post photos here.
Re: [QUAD-L] Van Stopped Working
Laptop HD replace: http://www.apricorn.com/products/notebook-hard-drive-upgrade-kits/ez-upgrade-universal-hard-drive-upgrade-kit.html From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Friday, May 17, 2013 6:27 PM Subject: [QUAD-L] Van Stopped Working Coming home from the doctor and my van died, just turned off. Tried starting it, but it would not start back up, just sounded like it was out of gas. I know it had a 1/4 tank and it was not over heating. I was 4 miles from home, thinking of driving home in my chair, but it was over 100 outside. My mother was driving, and she could not walk that far. Of all days I did not bring my phone. We were still part in the street, in a bike lane. We saw a garage of some kind around the corner so I was about to get out when a cop pulled up. She was going to call my insurance road side service when a 2nd cop pulled up. They thought maybe after the tow truck took my van, thy could drive my mother and follow me. There is a wheelchair taxi around here, but often long wait times. Then the 2nd cop says, I can just push you home. Luckily it was a mostly a straight road home. So the first cop got in my van to steer and the 2nd cop pushed my van from his car (He had a nice padded push bar on the front of his car.) Bad week, earlier this week the #%$#@# cat peed on top of my laptop and it fried it up. Totally dead. Do you know if I can take out the hard drive and get something to plug it into a USB of a new computer? Thanks, Greg
Re: [QUAD-L] Van Stopped Working
You may find something here: http://www.apricorn.com/products/notebook-hard-drive-upgrade-kits.html From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Friday, May 17, 2013 6:27 PM Subject: [QUAD-L] Van Stopped Working Coming home from the doctor and my van died, just turned off. Tried starting it, but it would not start back up, just sounded like it was out of gas. I know it had a 1/4 tank and it was not over heating. I was 4 miles from home, thinking of driving home in my chair, but it was over 100 outside. My mother was driving, and she could not walk that far. Of all days I did not bring my phone. We were still part in the street, in a bike lane. We saw a garage of some kind around the corner so I was about to get out when a cop pulled up. She was going to call my insurance road side service when a 2nd cop pulled up. They thought maybe after the tow truck took my van, thy could drive my mother and follow me. There is a wheelchair taxi around here, but often long wait times. Then the 2nd cop says, I can just push you home. Luckily it was a mostly a straight road home. So the first cop got in my van to steer and the 2nd cop pushed my van from his car (He had a nice padded push bar on the front of his car.) Bad week, earlier this week the #%$#@# cat peed on top of my laptop and it fried it up. Totally dead. Do you know if I can take out the hard drive and get something to plug it into a USB of a new computer? Thanks, Greg
Re: [QUAD-L] not really new
Welcome back Cullen! From: jume9...@comcast.net jume9...@comcast.net To: Cullen c3q...@gmail.com; quad-list quad-list@eskimo.com Sent: Friday, May 3, 2013 9:37 AM Subject: Re: [QUAD-L] not really new Welcome back! Meredith From: Cullen c3q...@gmail.com To: quad-list quad-list@eskimo.com Sent: Thursday, May 2, 2013 11:39:38 PM Subject: [QUAD-L] not really new My is Cullen and I live in Az. Ihave been on list before and have been gone awhile. Iam a c2c3 quad vent dependent. I have no feeling or movement from mid-neck down. I got alot from the group before and hope to this time. Cullen
Re: [QUAD-L] The List
Mike Mills- C6/7 - Driver/Automotive Accident - 1979, GA. From: Dana Wray daa...@aol.com To: Patrick Kenneally ber...@sbcglobal.net Cc: jume9...@comcast.net jume9...@comcast.net; quadlist quad-list@eskimo.com; Don Price donpric...@yahoo.com Sent: Saturday, April 27, 2013 12:06 AM Subject: Re: [QUAD-L] The List C 4-5 quad complete from Prairie Village Kansas, 39 years in July 27. Passenger in a motor vehicle accident at age of 20. Dana Sent from my iPhone On Apr 26, 2013, at 6:27 PM, Patrick Kenneally ber...@sbcglobal.net wrote: Pat C6/7 diving accident, 1991 Grass Valley, California --- On Fri, 4/26/13, Don Price donpric...@yahoo.com wrote: From: Don Price donpric...@yahoo.com Subject: Re: [QUAD-L] The List To: jume9...@comcast.net jume9...@comcast.net, list, quad quad-list@eskimo.com Date: Friday, April 26, 2013, 12:54 PM Don c5/6, diving accident, 1982. Tempe, Arizona, USA From: jume9...@comcast.net jume9...@comcast.net To: list, quad quad-list@eskimo.com Sent: Friday, April 26, 2013 12:50 PM Subject: [QUAD-L] The List Meredith C5/6, diving accident 1981 Northern Cailfornia From: bobbie...@aol.com To: sbell...@cox.net, daa...@aol.com Cc: list, quad quad-list@eskimo.com Sent: Friday, April 26, 2013 12:40:18 PM Subject: Re: [QUAD-L] going to PT for crooked body Would all of you (if you want to) tell me, and other's on the list who are new, your name, level of injury, how injury happened, year of injury and what state you live in. Like below. Bobbie Humphreys - C-4,5,6,7 Motorcycle, 1973 New Jersey Smile Everyday -Original Message- From: shirley bell sbell...@cox.net To: Dana Wray daa...@aol.com Cc: quad-list quad-list@eskimo.com Sent: Thu, Apr 25, 2013 11:45 am Subject: Re: [QUAD-L] going to PT for crooked body Hi all, I am c/5/6 37 yrs. Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: Dana Wray To: jume9...@comcast.net Cc: quad-list Sent: Wednesday, April 24, 2013 8:47 PM Subject: Re: [QUAD-L] going to PT for crooked body Hi Shirley, I don't remember Your level and how many years post your injury. Think we all feel like we have crooked back. I'll look forward to hearing about what can be done. Thank You, Dana Sent from my iPhone On Apr 24, 2013, at 2:32 PM, jume9...@comcast.net wrote: I didn't know they could do that, please let us know. Meredith From: Nan lt;nlg52...@yahoo.comgt; To: shirley bell lt;sbell...@cox.netgt;, quad-list@eskimo.com Sent: Wednesday, April 24, 2013 11:46:58 AM Subject: Re: [QUAD-L] going to PT for crooked body Please keep us posted, Shirley. I'm crooked too! Nan From: shirley bell lt;sbell...@cox.netgt; To: quad-list@eskimo.com Sent: Wednesday, April 24, 2013 12:17 PM Subject: [QUAD-L] going to PT for crooked body To all my fellow crooked comrades, I am going to be getting some body work done by and advanced PT person. My first appointment is may 30 for eval. I will let you all know what happens and if it helps. Best, Shirley Bell www.ShirleyBellDesigns.com
Re: [QUAD-L] kidney stone
Welcome Mikey Miller, no stones here. From: linda...@comcast.net linda...@comcast.net To: Mikey Miller mm...@onemain.com Cc: quad-list@eskimo.com Sent: Wednesday, April 24, 2013 5:04 PM Subject: Re: [QUAD-L] kidney stone Welcome to the quadlist! Lindaf From: Mikey Miller mm...@onemain.com To: quad-list@eskimo.com Sent: Wednesday, April 24, 2013 10:14:38 AM Subject: [QUAD-L] kidney stone Hi everyone, This is my first post after joining a month or so ago. I had a fall 10/27/1986 and had a fusion of c5/c6. I am closing on 27 years, was 20 when I fell. I have a kidney stone in my left kidney, it is 6cmx7cm and have an appointment scheduled to have it blasted on May 6th, I was inquiring if anyone has had it done and what concerns I should have like do I need to be put under during the procedure being that not having feeling in the area. Thanks, Mike
Re: Fwd: [QUAD-L] Today the 17th is my 40th Anniversary!
Congrats Bobbie! Coming up on 34yrs. myself, have a great time! From: lwillis...@yahoo.com lwillis...@yahoo.com To: quad-list@eskimo.com Sent: Wednesday, April 17, 2013 9:41 AM Subject: Fwd: [QUAD-L] Today the 17th is my 40th Anniversary! Congrats Bobbie. I know it has taken an enormous amount of courage and perseverance to reach this milestone. Here's hoping you have another 40 filled with health and happiness. God's blessing to you and Sweet Pete.:) Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: bobbie...@aol.com Date: April 16, 2013, 10:41:19 PM EDT To: Quad-list@eskimo.com Subject: [QUAD-L] Today the 17th is my 40th Anniversary! Hello FriendsEmail to my family to Ashia Saturday May 4th 4:30 Hello my friends, Well, I made it to 40 years! Can NOT believe it. I'm going out with family and friends to dinner to celebrate enduring coping against adversity not going completely insane, not dying twice and living to see 2 nieces born, 4 nephews born, 1 great niece and 3 great nephews. Experiencing some unbelievably hysterical situations or experiences for instance; within 2 years post my chair ad 2 fiats, so my sister still got me dressed on a gorgeous summer day and put me in a wheel barrel. She put a folded blanket on the bottom, sat me facing the handles and as a C,5,6,7 was able to stay safely balanced as we proceeded through the day which included going to a local bar where .… everybody knows your name. Needless to say we needed not pay for one drink. Went to my senior high school prom with a eye candy hunk of a man 5 years my senior whom I met on my 1 year anniversary. Lost my virginity that night, laughing the whole night long … which is a story in and of it's self. Went to college, lived on campus 4 years post. At 9 years post I met Pete, we just celebrated 30 years together. He is the love of my life AND my soul caretaker 24/7/365 (not recommended). I've learned to do needle point, crewel work, calligraphy, painting, write and pioneered the peer counseling program at Kessler. Camped cross country, 10,000 mile's in 1980 in my first van with my sister for 8 weeks. Bobbie - sill hanging in there
Re: [QUAD-L] Another anniversary
Congrats Quadius! From: wheelch...@aol.com wheelch...@aol.com To: quad...@gmail.com; quad-list@eskimo.com Sent: Friday, April 5, 2013 7:22 PM Subject: Re: [QUAD-L] Another anniversary Congrats Quadius! And May You Have 1000 More ! Best Wishes In a message dated 4/5/2013 6:20:22 P.M. Central Daylight Time, quad...@gmail.com writes: I haven't been on here much lately, but I have seen several people commenting about their SCI injury date. Well, today, April 5, is my SCI injury anniversary. I used to dread this day, but now it really doesn't matter anymore. I choose to celebrate the good things in my life and therefore I usually go out to dinner and celebrate August 6, the first day I was able to breathe on my own without the aid of the ventilator. It's been 18 years now and while I am grayer, a little older looking (actually I look quite a bit older), I still look fondly on that day as if it was yesterday. I'll try to be on here more, but I can't make guarantees. Take care everyone, Quadius
Re: [QUAD-L] Movie's featuring Quadriplegics
Thanks Jim! From: Jim Lubin jlu...@eskimo.com To: quad-list@eskimo.com Sent: Saturday, March 23, 2013 9:57 PM Subject: [QUAD-L] Movie's featuring Quadriplegics I started a list on IMDB at http://www.imdb.com/list/2OTqiWRR9R8/
Re: [QUAD-L] AD
Not sure, I'll ask at my next visit. From: wheelch...@aol.com wheelch...@aol.com To: blackwood4...@yahoo.com; quad-list@eskimo.com Sent: Wednesday, March 13, 2013 8:42 PM Subject: Re: [QUAD-L] AD Ok, Understood. That is what I thought but wanted to make sure. Removing that muscle, leaves the bladder wide open and the Texas Cath Kit. It sounds like your urethra collaped or scar'ed, requiring your present indwelling Foley. Do they use Zylocaine? Best Wishes In a message dated 3/13/2013 4:45:31 P.M. Central Daylight Time, blackwood4...@yahoo.com writes: My sphincter is completely removed. I wore a external condom for over 30yrs, but could no longer void my bladder. This led to hydronephrosis, which almost caused my kidneys to shut down. I started intermittent cath. 4 times a day, but this caused numerous infections. Dr recommended a sphincterotomy, unfortunately I still could not void enough, so came the foley. From: wheelch...@aol.com wheelch...@aol.com To: quad-list@eskimo.com Sent: Tuesday, March 12, 2013 6:49 PM Subject: Re: [QUAD-L] AD Interesting challenge Blackwood. What is the condition of your sphincter? Is it intact and does it flex or rigid? Best Wishes In a message dated 3/12/2013 5:42:15 P.M. Central Daylight Time, blackwood4...@yahoo.com writes: Once every 4 weeks. Started about a year ago. From: nichole rohling zoocr...@windstream.net To: 'Mike Mills' blackwood4...@yahoo.com; Quad-List@Eskimo. Com quad-list@eskimo.com Sent: Tuesday, March 12, 2013 3:01 PM Subject: RE: [QUAD-L] AD Mike, How often do you have to change your catheter? Nicki From:Mike Mills [mailto:blackwood4...@yahoo.com] Sent: Tuesday, March 12, 2013 8:14 AM To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo. Com Subject: Re: [QUAD-L] AD If I ever get to the point were my Foley needs removing, I would need to see my Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some type of blockage (stricture). In order to replace Foley; a metal rod is inserted into Foley, then slide into bladder with some force and a twist, leaving me bleeding and stinging. Its not as bad as it sounds, but something else will need to be done. From:nichole rohling zoocr...@windstream.net To: lwillis...@yahoo.com; Quad-List@Eskimo. Com quad-list@eskimo.com Sent: Monday, March 11, 2013 7:08 PM Subject: RE: [QUAD-L] AD I’m tellin’ you, I really was thinking I was going to stroke out! I would get severe AD in the first year and the it just has always been mild. I still have a bit of a headache and it’s been over 5 ½ hours ago. Wouldn’t wish it on my worst enemy! Nicki From:lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] Sent: Monday, March 11, 2013 5:51 PM To: quad-list@eskimo.com Subject: Fwd: [QUAD-L] AD Whew! I can feel your misery, Nikki. There is nothing else in the world like it. Take care of yourself. Our old puny bodies can't take much of that. Sent from my iPad Begin forwarded message: Resent-From:quad-list@eskimo.com From: nichole rohling zoocr...@windstream.net Date: March 11, 2013, 3:28:18 PM EDT To: Quad-List@Eskimo. Com quad-list@eskimo.com Subject: [QUAD-L] AD Wow! Nothing like a big dose of AD to start my week off. My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a bladder stone). He ordered CT scan and I’ve had to reschedule it 3 times in 6 weeks because of weather, getting it done tomorrow (thank God). My home health nurse told me not long ago that when my cath stops up have someone remove it until she gets here and urine will flow out. Normally, (over the course of the last almost 15 yrs) urine spasms out around cath so I have never done that. UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and neck were fire engine red, my head was POUNDING. I thought “here we go, I’m gonna have a stroke” before she gets here! Then I remembered, get the catheter out! My mom was able to get it out and sure enough, urine leaked out. Hated to pee in my pants but when AD is that bad……….it really didn’t matter! Just wanted to share that if no urine is leaking out remove the catheter because it’s stopping up the body’s natural route for urine to come out! May have saved me from stroking out today!! Nicki c5/6
Re: [QUAD-L] AD
My sphincter is completely removed. I wore a external condom for over 30yrs, but could no longer void my bladder. This led to hydronephrosis, which almost caused my kidneys to shut down. I started intermittent cath. 4 times a day, but this caused numerous infections. Dr recommended a sphincterotomy, unfortunately I still could not void enough, so came the foley. From: wheelch...@aol.com wheelch...@aol.com To: quad-list@eskimo.com Sent: Tuesday, March 12, 2013 6:49 PM Subject: Re: [QUAD-L] AD Interesting challenge Blackwood. What is the condition of your sphincter? Is it intact and does it flex or rigid? Best Wishes In a message dated 3/12/2013 5:42:15 P.M. Central Daylight Time, blackwood4...@yahoo.com writes: Once every 4 weeks. Started about a year ago. From: nichole rohling zoocr...@windstream.net To: 'Mike Mills' blackwood4...@yahoo.com; Quad-List@Eskimo. Com quad-list@eskimo.com Sent: Tuesday, March 12, 2013 3:01 PM Subject: RE: [QUAD-L] AD Mike, How often do you have to change your catheter? Nicki From:Mike Mills [mailto:blackwood4...@yahoo.com] Sent: Tuesday, March 12, 2013 8:14 AM To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo. Com Subject: Re: [QUAD-L] AD If I ever get to the point were my Foley needs removing, I would need to see my Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some type of blockage (stricture). In order to replace Foley; a metal rod is inserted into Foley, then slide into bladder with some force and a twist, leaving me bleeding and stinging. Its not as bad as it sounds, but something else will need to be done. From:nichole rohling zoocr...@windstream.net To: lwillis...@yahoo.com; Quad-List@Eskimo. Com quad-list@eskimo.com Sent: Monday, March 11, 2013 7:08 PM Subject: RE: [QUAD-L] AD I’m tellin’ you, I really was thinking I was going to stroke out! I would get severe AD in the first year and the it just has always been mild. I still have a bit of a headache and it’s been over 5 ½ hours ago. Wouldn’t wish it on my worst enemy! Nicki From:lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] Sent: Monday, March 11, 2013 5:51 PM To: quad-list@eskimo.com Subject: Fwd: [QUAD-L] AD Whew! I can feel your misery, Nikki. There is nothing else in the world like it. Take care of yourself. Our old puny bodies can't take much of that. Sent from my iPad Begin forwarded message: Resent-From:quad-list@eskimo.com From: nichole rohling zoocr...@windstream.net Date: March 11, 2013, 3:28:18 PM EDT To: Quad-List@Eskimo. Com quad-list@eskimo.com Subject: [QUAD-L] AD Wow! Nothing like a big dose of AD to start my week off. My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a bladder stone). He ordered CT scan and I’ve had to reschedule it 3 times in 6 weeks because of weather, getting it done tomorrow (thank God). My home health nurse told me not long ago that when my cath stops up have someone remove it until she gets here and urine will flow out. Normally, (over the course of the last almost 15 yrs) urine spasms out around cath so I have never done that. UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and neck were fire engine red, my head was POUNDING. I thought “here we go, I’m gonna have a stroke” before she gets here! Then I remembered, get the catheter out! My mom was able to get it out and sure enough, urine leaked out. Hated to pee in my pants but when AD is that bad……….it really didn’t matter! Just wanted to share that if no urine is leaking out remove the catheter because it’s stopping up the body’s natural route for urine to come out! May have saved me from stroking out today!! Nicki c5/6
Re: [QUAD-L] AD
If I ever get to the point were my Foley needs removing, I would need to see my Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some type of blockage (stricture). In order to replace Foley; a metal rod is inserted into Foley, then slide into bladder with some force and a twist, leaving me bleeding and stinging. Its not as bad as it sounds, but something else will need to be done. From: nichole rohling zoocr...@windstream.net To: lwillis...@yahoo.com; Quad-List@Eskimo. Com quad-list@eskimo.com Sent: Monday, March 11, 2013 7:08 PM Subject: RE: [QUAD-L] AD I’m tellin’ you, I really was thinking I was going to stroke out! I would get severe AD in the first year and the it just has always been mild. I still have a bit of a headache and it’s been over 5 ½ hours ago. Wouldn’t wish it on my worst enemy! Nicki From:lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] Sent: Monday, March 11, 2013 5:51 PM To: quad-list@eskimo.com Subject: Fwd: [QUAD-L] AD Whew! I can feel your misery, Nikki. There is nothing else in the world like it. Take care of yourself. Our old puny bodies can't take much of that. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: nichole rohling zoocr...@windstream.net Date: March 11, 2013, 3:28:18 PM EDT To: Quad-List@Eskimo. Com quad-list@eskimo.com Subject: [QUAD-L] AD Wow! Nothing like a big dose of AD to start my week off. My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a bladder stone). He ordered CT scan and I’ve had to reschedule it 3 times in 6 weeks because of weather, getting it done tomorrow (thank God). My home health nurse told me not long ago that when my cath stops up have someone remove it until she gets here and urine will flow out. Normally, (over the course of the last almost 15 yrs) urine spasms out around cath so I have never done that. UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and neck were fire engine red, my head was POUNDING. I thought “here we go, I’m gonna have a stroke” before she gets here! Then I remembered, get the catheter out! My mom was able to get it out and sure enough, urine leaked out. Hated to pee in my pants but when AD is that bad……….it really didn’t matter! Just wanted to share that if no urine is leaking out remove the catheter because it’s stopping up the body’s natural route for urine to come out! May have saved me from stroking out today!! Nicki c5/6
Re: [QUAD-L] AD
Once every 4 weeks. Started about a year ago. From: nichole rohling zoocr...@windstream.net To: 'Mike Mills' blackwood4...@yahoo.com; Quad-List@Eskimo. Com quad-list@eskimo.com Sent: Tuesday, March 12, 2013 3:01 PM Subject: RE: [QUAD-L] AD Mike, How often do you have to change your catheter? Nicki From:Mike Mills [mailto:blackwood4...@yahoo.com] Sent: Tuesday, March 12, 2013 8:14 AM To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo. Com Subject: Re: [QUAD-L] AD If I ever get to the point were my Foley needs removing, I would need to see my Uro. in order to replace it. Due to Urethral Sphincterotomy, I now have some type of blockage (stricture). In order to replace Foley; a metal rod is inserted into Foley, then slide into bladder with some force and a twist, leaving me bleeding and stinging. Its not as bad as it sounds, but something else will need to be done. From:nichole rohling zoocr...@windstream.net To: lwillis...@yahoo.com; Quad-List@Eskimo. Com quad-list@eskimo.com Sent: Monday, March 11, 2013 7:08 PM Subject: RE: [QUAD-L] AD I’m tellin’ you, I really was thinking I was going to stroke out! I would get severe AD in the first year and the it just has always been mild. I still have a bit of a headache and it’s been over 5 ½ hours ago. Wouldn’t wish it on my worst enemy! Nicki From:lwillis...@yahoo.com [mailto:lwillis...@yahoo.com] Sent: Monday, March 11, 2013 5:51 PM To: quad-list@eskimo.com Subject: Fwd: [QUAD-L] AD Whew! I can feel your misery, Nikki. There is nothing else in the world like it. Take care of yourself. Our old puny bodies can't take much of that. Sent from my iPad Begin forwarded message: Resent-From:quad-list@eskimo.com From: nichole rohling zoocr...@windstream.net Date: March 11, 2013, 3:28:18 PM EDT To: Quad-List@Eskimo. Com quad-list@eskimo.com Subject: [QUAD-L] AD Wow! Nothing like a big dose of AD to start my week off. My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have a bladder stone). He ordered CT scan and I’ve had to reschedule it 3 times in 6 weeks because of weather, getting it done tomorrow (thank God). My home health nurse told me not long ago that when my cath stops up have someone remove it until she gets here and urine will flow out. Normally, (over the course of the last almost 15 yrs) urine spasms out around cath so I have never done that. UNTIL TODAY! Urine wasn’t leaking out, I was having spasms in my back, face and neck were fire engine red, my head was POUNDING. I thought “here we go, I’m gonna have a stroke” before she gets here! Then I remembered, get the catheter out! My mom was able to get it out and sure enough, urine leaked out. Hated to pee in my pants but when AD is that bad……….it really didn’t matter! Just wanted to share that if no urine is leaking out remove the catheter because it’s stopping up the body’s natural route for urine to come out! May have saved me from stroking out today!! Nicki c5/6
Re: [QUAD-L] 7 years today...
Congrats! 33yrs here, it's been a hell of a roller-coaster ride but hang tough! From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list@eskimo.com Sent: Tuesday, March 5, 2013 4:35 PM Subject: Re: [QUAD-L] 7 years today... they go by fast, but you become wiser and tougher as they go byim 15 into minecongrats dan on making it 7 successful years. ron c7 From: Danny Espinoza da...@immortaldesigns.co To: quad-list@eskimo.com Sent: Tue, March 5, 2013 2:53:29 PM Subject: [QUAD-L] 7 years today... It’s hard to believe I’ve been paralyzed for seven years already
[QUAD-L] Mattress
I've had one for about 4yrs now and its been great, but it is starting to cave-in (Soften up or sponge) I expect to use it for another 4yrs. I paid 1500.00 for it and a 100.00 for water proof cover. I have a full size adjustable bed so there was very little for me to chose from. Yes, I do recommend it, along with the water proof cover.
Re: [QUAD-L] Colonoscopy!
Thanks Bob Vogel! From: Nan nlg52...@yahoo.com To: Bob Vogel rhvsh...@pacbell.net; Mike Mills blackwood4...@yahoo.com; QUAD-L list quad-list@eskimo.com Sent: Wednesday, February 27, 2013 12:26 AM Subject: Re: [QUAD-L] Colonoscopy! Thanks for sharing, Bob! Nan From: Bob Vogel rhvsh...@pacbell.net To: Mike Mills blackwood4...@yahoo.com; QUAD-L list quad-list@eskimo.com Sent: Tuesday, February 26, 2013 12:58 PM Subject: Re: [QUAD-L] Colonoscopy! Hi Quad List folks, I wrote a column--Para/Medic for New Mobility on SCI and Colonoscopy including SCI options to make it more tolerable. Here is the link: http://www.newmobility.com/articleView.cfm?id=12212srch=colonoscopy Bob Vogel --- On Mon, 2/25/13, Mike Mills blackwood4...@yahoo.com wrote: From: Mike Mills blackwood4...@yahoo.com Subject: Re: [QUAD-L] Colonoscopy! To: Mike Mills blackwood4...@yahoo.com, QUAD-L list quad-list@eskimo.com Date: Monday, February 25, 2013, 2:25 PM EDIT: It was 2009 From: Mike Mills blackwood4...@yahoo.com To: quad-list@eskimo.com quad-list@eskimo.com Sent: Sunday, February 24, 2013 5:43 PM Subject: [QUAD-L] Colonoscopy! In '99 I had a colonoscopy. 1st day I drink a bottle of Magnesium Citrate, and waited for a bowel movement. After that I performed digital stimulation to empty out the rest. 2nd day I saw my Dr. and he checked me into the hospital under emergency situation (That's the only way Medicare will pay). There I drink a gallon of solution to cleanse my bowels. The 3rd day that morning he performed a colonoscopy and endoscope. Went home after I slept off the sedative medication received before my procedure.
Re: [QUAD-L] Foley blocking
Ditto wheelch...@aol.com! From: wheelch...@aol.com wheelch...@aol.com To: gah17...@aol.com; quad-list@eskimo.com Sent: Wednesday, February 27, 2013 2:35 PM Subject: Re: [QUAD-L] Foley blocking The Foley should be back flushed and irrigated, as the kidney is sending this to the bladder, or the walls of the bladder lining is braking down. Actually, it doesn't matter the cause, the Foley should be back flushed and irrigated, with sterile waters. a tad bit of vinegar might help. The person's URO should also be made aware of this and make medical recommendations and orders. Perhaps the French should be enlarged. Best Wishes In a message dated 2/27/2013 11:30:20 A.M. Central Standard Time, gah17...@aol.com writes: Hi All, I have a friend with an indwelling Foley that blocks with long stringy mucus. No infection. Any ideas? GA
Re: [QUAD-L] Colonoscopy!
EDIT: It was 2009 From: Mike Mills blackwood4...@yahoo.com To: quad-list@eskimo.com quad-list@eskimo.com Sent: Sunday, February 24, 2013 5:43 PM Subject: [QUAD-L] Colonoscopy! In '99 I had a colonoscopy. 1st day I drink a bottle of Magnesium Citrate, and waited for a bowel movement. After that I performed digital stimulation to empty out the rest. 2nd day I saw my Dr. and he checked me into the hospital under emergency situation (That's the only way Medicare will pay). There I drink a gallon of solution to cleanse my bowels. The 3rd day that morning he performed a colonoscopy and endoscope. Went home after I slept off the sedative medication received before my procedure.
Re: [QUAD-L] BP
In '99 I had a colonoscopy. 1st day I drink a bottle of Magnesium Citrate, and waited for a bowel movement. After that I performed digital stimulation to empty out the rest. 2nd day I saw my Dr. and he checked me into the hospital under emergency situation (That's the only way Medicare will pay). There I drink a gallon of solution to cleanse my bowels. The 3rd day that morning he performed a colonoscopy and endoscope. Went home after I slept off the sedative medication received before my procedure. From: Quadius quad...@gmail.com To: jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Friday, February 22, 2013 5:45 PM Subject: Re: [QUAD-L] BP Meredith, In my experience when I am getting blocked up I get a liquefied stool without any hard stool. It's different than diarrhea. I don't know why you can't take a colonoscopy. It's difficult for quadriplegics, but it can definitely be done. The protocol here is really intensive and requires hospitalization. Quadius On Tue, Feb 19, 2013 at 7:53 PM, jume9...@comcast.net wrote: Just wondering, what tests are taken to see if one is blocked up? I'm not really able to do a colonoscopy according to the Doc I spoke to. Meredith From: Billy Lang blan...@verizon.net To: jume9...@comcast.net Cc: quadriple...@cox.net, quad-list quad-list@eskimo.com Sent: Tuesday, February 19, 2013 3:15:23 PM Subject: Re: [QUAD-L] BP See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. Pill form up to 4,8 or 24 mcg. I take monstrous amounts of opiates and the pills along with fiber keep me regular. You will need to experiment with dosages to find the right balance for you. Sent from Billy Lang's iPad On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote: Try 2 sennakots or milk of magnesia, eat fruit and lots of it, if you continue in pain go see the doctor. From: quadriple...@cox.net To: quad-list@eskimo.com Sent: Monday, February 18, 2013 1:27:16 PM Subject: [QUAD-L] BP The last 2 weeks I've had such stomach pains. I've been pooping rocks and nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too much, that hurts just as much. I keep using it more often, but I've never had to drink Miralax more than 2 times in a week. Then I can go months without it. I'm on my like 6th dose in 2 weeks. I want to double over in pain. G
[QUAD-L] Colonoscopy!
In '99 I had a colonoscopy. 1st day I drink a bottle of Magnesium Citrate, and waited for a bowel movement. After that I performed digital stimulation to empty out the rest. 2nd day I saw my Dr. and he checked me into the hospital under emergency situation (That's the only way Medicare will pay). There I drink a gallon of solution to cleanse my bowels. The 3rd day that morning he performed a colonoscopy and endoscope. Went home after I slept off the sedative medication received before my procedure.
Re: [QUAD-L] My San Francisco Trip
Indeed! From: lwillis...@yahoo.com lwillis...@yahoo.com To: quad-list@eskimo.com Sent: Saturday, February 23, 2013 10:20 AM Subject: [QUAD-L] My San Francisco Trip What a story! I can feel that icy wind hitting my sweaty neck. Likewise, the neck/shoulder lockdown and clenched teeth. Only a quad could appreciate the misery. I can't wait to read the next installment! Sent from my iPad
Re: [QUAD-L] BP
Try a Fleet Enema or situated magnesium. Once you get a bowel movement, take a 1/4 to a 3rd of a dose of MiraLAX daily. Use to always have those little hard balls until I started doing this. From: Quadius quad...@gmail.com To: quadriple...@cox.net Cc: quad-list@eskimo.com Sent: Monday, February 18, 2013 4:41 PM Subject: Re: [QUAD-L] BP Whenever I have problems like this, the first thing I do is double up on the MiraLAX. Basically take a double dose. If that doesn't work, then I take the MiraLAX and use about one third of a bottle of magnesium citrate (I believe that's how you spell it). This happens occasionally. Normally I have the other problem. Lately I've been taking anti-diarrhea medication. This is where I can run in the problems getting constipated, but I need to do it to be able to function right now. On Mon, Feb 18, 2013 at 4:27 PM, quadriple...@cox.net wrote: The last 2 weeks I've had such stomach pains. I've been pooping rocks and nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too much, that hurts just as much. I keep using it more often, but I've never had to drink Miralax more than 2 times in a week. Then I can go months without it. I'm on my like 6th dose in 2 weeks. I want to double over in pain. G
Re: [QUAD-L] national spinal cord injury webinar on Thursday 3-430 p.m. EST
Thanks Dana! From: daa...@aol.com daa...@aol.com To: quad-list@eskimo.com Sent: Sunday, February 17, 2013 4:53 AM Subject: [QUAD-L] national spinal cord injury webinar on Thursday 3-430 p.m. EST Do any of you ever go to this website to watch videos. They are having a webinar on sexuality and disability on Thursday from 3-430 p.m. EST I just got the notice, but I won't be able to listen. I believe you can watch it later from the archive. Just thought someone might be interested. Dana http://www.spinalcord.org/resource-center/askus/index.php?pg=kb.pageid=1728
Re: [QUAD-L] sad day
R.I.P. Mr. Ralph Braun! From: wheelch...@aol.com wheelch...@aol.com To: quad-list@eskimo.com Sent: Wednesday, February 13, 2013 6:48 PM Subject: Re: [QUAD-L] sad day To those who have never heard the name, Ralph Braun, is the Founder and Owner of Braun Mobility Corp in Winemac, IN. Ralph Braun, was a pioneer in the mobility industry, since he was 15 years old in building his own electric scooter, chair lift (in an old milk truck). Braun Corp is the largest employer in Winemac and builds custom personal vans, para-transist systems. He was so much more. He was a Husband, A Father and a generous man. For those who are still interested, Google or Wiki the name Ralph Braun. Best Wishes In a message dated 2/9/2013 3:34:55 P.M. Central Standard Time, daa...@aol.com writes: Please tell us about him. Dana In a message dated 2/9/2013 3:30:09 P.M. Central Standard Time, tecn...@sbcglobal.net writes: I was jus informed that Rlph Braun hs passe away. I dont know the particulars but please say a prayer for arealgreat guy. tom cusack
Re: [QUAD-L] Wound Care
Great advice by all. Thanks! From: Billy Lang blan...@verizon.net To: donald scott rollingl...@yahoo.com Cc: gah17...@aol.com gah17...@aol.com; quad-list@eskimo.com quad-list@eskimo.com Sent: Wednesday, February 13, 2013 5:55 PM Subject: Re: [QUAD-L] Wound Care Thanks Don, Glen and everyone for the positive feedback. I can always count on u quads for the best advice based in fact and experience. Sent from Billy Lang's iPad cell: 732-245-6424 On Feb 12, 2013, at 15:07, donald scott rollingl...@yahoo.com wrote: I forgot to mention that once the wound is closed to stop using the cream and just use the patch. The cream will actually dry the wound too much after it's closed. Donald From: gah17...@aol.com gah17...@aol.com To: blan...@verizon.net Cc: quad-list@eskimo.com Sent: Tuesday, February 12, 2013 11:58 AM Subject: Re: [QUAD-L] Wound Care I am blessed to have a friend who is charge nurse in a wound clinic and deals with the latest technology in wound healing. On a previous sore, she recommended using a new dressing with Safetac technology. ( http://www.molnlycke.com/us/Wound-Care-Products/US/Safetac-Technology/ ). The dressing is called Mepilex Border dressing, ( http://molnlycke.com/Global/Wound_Care_Products/UK/Product%20Sheets/Advanced/Mepilex%20Border.pdf ) similar to what I have known as mini island dressing. The difference between the two dressings is the Border Dressing uses a tape that is silicon based and does not damage the skin when removed or when you shift weight. The border dressing has a telfa style center but is very thin. A normal dressing would have bunched in this area and the border dressing does bunch to some extent, but less than the island dressing and is much less a problem. Everyone is aware of the white skin that surrounds a wound as well as whiteness in the center of the wound. The whitish film that is in the center of the wound is called bioberden A product called acticoat, was placed on the area then covered it with the border dressing. Although manufacturer states that it can remain on seven days she recommends only three or four days. The acticoat contains silver which helps to remove the white area and keep the area free of bacteria. After the wound is clearer of bioberden, we discontinued using acticoat and started to use another product Puracol AG+ which also has silver in the product. The Puracol was covered with the Border dressing and remained on three or four days. Puracol is a collagen product ( http://www.allegromedical.com/wound-care-c541/puracol-plus-ag-wound-dressing-with-silver-p557629.html ) the collagen is absorbed into the wound and promotes healing. As I started to search the Internet to purchase the border dressing and Puracol AG+, IMPORTANT MUST BE AG+(with silver), I found some prices ridiculous. One vendor had the border dressings at a price of $75 but with a little searching I found them for $25. The same was true for the Puracol. In addition we will be using the silicone tape ( http://www.molnlycke.com/us/Wound-Care-Products/Product-Selector---Wound-division/Tabs/Products/Mepitac/ ) instead of the Medfix tape. Works for me! Glenn Glenn Henry G.A.Henry Radio 100 Mill Street Washington Boro, PA 17582 In a message dated 2/12/2013 2:03:51 P.M. Eastern Standard Time, blan...@verizon.net writes: Got a pressure sore the size of a quarter on my ass. My pharmacy informed me that Regranex is not be manufactured anymore, And I have $100 co-pay for it. I'm using Hydrogel, but the wound needs something more effective before it starts Tunneling. Any suggestions? I heard natural bee honey works, anyone have experience with it? Me Bum is causing lousy spasms. Thanks. Sent from Billy Lang's iPad
Re: [QUAD-L] I'm moving
Congrats!!! From: jume9...@comcast.net jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Tuesday, February 12, 2013 11:58 AM Subject: Re: [QUAD-L] I'm moving Wow, that is super nice. Congrats!! Meredith From: KK kkba...@yahoo.com To: Lainie Batte lainieba...@yahoo.com, susan mccarstle smccars...@bellsouth.net, Ann Cyr tro...@megalink.net, MS Quads ms-qu...@yahoogroups.com, quad-list@eskimo.com Sent: Monday, February 11, 2013 12:55:29 PM Subject: [QUAD-L] I'm moving I got approved to move to a wheelchair accessible apartment. I will be able to take a bath wash my hair inside the bath tub. Bake a cake - yeah no way! But I could do it in my accessible kitchen. I will have a dressing area a separate bath room. The bed room isn't big, just enough room for the bed. The living room kitchen area is huge. Everyone I have met there is happy and they are able to leave their apt and sit in the common area visit. There is no management on site. There is a social worker there. Here is what the apt is going to look like http://www.accessiblespace.org/housing/Pages/housingdetails.aspx?housingid=115 I am so excited. KK
[QUAD-L] Old Age!
Thanks ☺!
[QUAD-L] Ojd Age!
Just turned 54 back in Jan. 17. Been a quad (6/7) since 1979. So far I'm doing pretty good all-things considering.
Re: [QUAD-L] Fwd: bowel program..how many times a week?
Once a day here, for about 20 min. Digital stimulation. --- On Thu, 1/27/11, quadm...@cox.net quadm...@cox.net wrote: From: quadm...@cox.net quadm...@cox.net Subject: Re: [QUAD-L] Fwd: bowel program..how many times a week? To: quad-list@eskimo.com Date: Thursday, January 27, 2011, 2:59 PM Waiting to make sure the mucus is out is one reason mine takes 2+ hours also. Though that is one reason I don't mind waiting a bit longer for. I tried using the commode chair, but it only made it worse. Extra sweating from sitting too long and helper can't reach the dig-stim as well. I've tried every other day, Mon-Wen-Fri, and Mon-Thur. I know your body needs a schedule, so I did it for a long time. I noticed no real difference. I don't eat a lot, mainly a few snakes and dinner. That might be 1 issue, but I do eat healthy foods mostly. I settled for Mon-Thur just for convenience. Unfortunately my bowel program has turned into a marathon match lately. Often it's almost 3 hours long, but I think a lot of this is because we spend the last hour trying to make sure that we have all of the mucus out of my system. That way I don't have a mucus attack the next morning when I get up.
