Re: [QUAD-L] check out this cushion
looks like my roho, but white Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years On Friday, May 16, 2014 12:11 PM, shirley bell wrote: Hi all, just talked to friend who had a hard callus type sore on his bottom for a long time. He went to wound clinics and they kept shaving it etc. saying it looked good bit it would not heal months later His friend(he had a wound heal using this cushion) gave him his cushion, "Ish Dish cushion"http://www.spanamerica.com/isch_dish.php, he said it healed within 2 weeks using it. Now he only uses this to sit on. Changed his life story. maybe it can help others. take care. Best, Shirley Bell
[QUAD-L] supra pubic begining
How many of u had baed infections w/ supra pubic at first? Do any of u take anything to keep a "healthy" bladder while having the sp? I'm currently contemplating if I want to keep it or go back to straight cath due to my probs & totally leaked from urethra last night in bed. Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years
Re: [QUAD-L] chills
my chills ended up being a bad infection. i was hospitalized over the weekend cuz i became septic. my sp has become a nightmare & i think it's due to my lack of education to it & being taken off my macrodatin Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years On Friday, May 2, 2014 3:37 PM, RONALD L PRACHT wrote: your body may adjust. more than likely you are experiencing dysreflexia in some form.getting a doctor to acknowledge or understand this is another story in itself ron From: Fragile To: Patricia Brown-Tulee ; quad-list Sent: Friday, May 2, 2014 4:55 PM Subject: Re: [QUAD-L] chills Dysreflexia? I've had a problem with dysreflexia ever since my sp was put in 16 months ago. On Fri, May 2, 2014 at 2:28 PM, Patricia Brown-Tulee wrote: I've had these annoying chills & I don't know y they're here! wondering if this is the way my body is "handling" my 3 week old supra-pub. Doc says it looks "normal" & no butt differences > >Patricia L. B >pl...@yahoo.com > >while adding years to your life, add life to your years
[QUAD-L] chills
I've had these annoying chills & I don't know y they're here! wondering if this is the way my body is "handling" my 3 week old supra-pub. Doc says it looks "normal" & no butt differences Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years
Re: [QUAD-L] Dawn, the quad girl upstairs from me
does she go out to bars or? Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years On Sunday, April 27, 2014 6:24 PM, Gmail wrote: I've talked it you all about Dawn and her troubles with her van? Well, now she is having troubles with her bed. She has a Craftmatic, like I HAD. It isn't working right. Actually it is broken in the high position. So she asked my Pete if he would help her into bed, she can get her self undressed. Actually, she can get herself into bed all the time, but not right now. She asked Pete to come up at 3:00am! Pete said the best I can do is 2:00am she rolled her eyes and said "ok, 2:00am is fine." She has NO IDEA HOW LUCKY SHE IS. Bobbie Smile Everyday
Re: [QUAD-L] transportation
forget what she "should have done". how long have u had it? & y can't it b returned? hat does case-manager say? Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years On Monday, April 28, 2014 11:16 AM, Don Smith wrote: I think voc. rehab should have been the one to handle things and they should help you replace the vehicle that your case worker purchased for you with the grant money. You didn't mention where the grant came from or who the case worker is worker is employed by, but you should have been evaluated to see what type of vehicle was needed for you before it was purchased. It sounds like your case worker may not give a care. What state are you in? From: Nadeana Halamar To: quad-list@eskimo.com Sent: Sunday, April 27, 2014 5:05 PM Subject: [QUAD-L] transportation im a 31 one year old 7 yrs a quad and single mother. I have gotten myself in trouble being my own advocate. i only have one caseworker and one homehealth agency left that will take my case. ( im a difficult case) i guess. neway they know this so i have to take their crap. i had recieved a grant for a van that i could get converted so i could get around. i trusted my caseworker with it and the vehicle she got cant be converted. im going through voc rehab for drivers training, but now i have a vehicle im paying insurance on and cant do anything with it. i dont know what to do i cant have a car payment i only make 720 a mo. anyone know who i can get in touch with
Re: [QUAD-L] feeling like a bourden
yes, just don't cry lying down ;) Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years On Saturday, April 26, 2014 3:10 PM, Nadeana Halamar wrote: does anyone feel like everyone even your own family dosent want to be around or hurry up and leave because u need help. im so alone
[QUAD-L] suprapubic
does anyone swim w/ suprapubic? how does that work? what are things one cannot do w/ suprapubic? Patricia L. B pl...@yahoo.com while adding years to your life, add life to your years
Re: [QUAD-L] Re: quad site
I've lost 3 inches on my stomach living very low carb for 6 months, patience is hard though Patricia L. pl...@yahoo.com while adding years to your life, add life to your years On Friday, January 17, 2014 11:22 AM, Nan wrote: I've had bronchitis and haven't been online. Actually, haven't done much of anything ... starting to feel human again! Thank God. On Thursday, January 16, 2014 6:58 PM, KK Batte wrote: Sorry guys but I got sick with flu type illness Christmas. Finish the antibiotics tomorrow & still not better. GRRR!! KKB Date: Thu, 16 Jan 2014 11:24:16 -0800 From: scamper2...@att.net Subject: Re: [QUAD-L] Re: quad site To: wheelch...@aol.com; gah17...@aol.com CC: quad-list@eskimo.com Their either out and about or frozen in snow with no internet or just to cold to get out of a nice warm bed From: "wheelch...@aol.com" To: gah17...@aol.com Cc: quad-list@eskimo.com Sent: Thursday, January 16, 2014 10:17 AM Subject: [QUAD-L] Re: quad site Not much happening here Glenn. I suppose that summer came early this year and everyone is out n about trying to improve their suntans. Hope you are ok. Best Wishes In a message dated 1/16/2014 12:12:28 P.M. Central Standard Time, gah17...@aol.com writes: Hey Wheels, > >Has the quad site have many posts over the past 2 weeks? > >I'm not getting anything. Isn't there a way to look at archives? > >Thanks, > >Glenn Henry >
Re: [QUAD-L] b care
anyone have loosening of rectum skin coming out from yrs of dig-stim? Patricia pl...@yahoo.com while adding years to your life, add life to your years On Saturday, November 9, 2013 1:51 PM, greg wrote: 2 weeks without going? Wow. Longest I ever went was 1 week from constipation. I used Miralax to help with that. But when I got constipated, I would spasm and sweat pretty bad. It was hard on me, so with other bowel problems, I just last month got a colostomy. So far it's been great, I lost 75% of my quad gut and no bloated feeling all the time. Good luck, Greg > what bowel care works for you? i'm almost 1 week w/out. longest > w/out has been 2-3 weeks. i've tried a lot in past 27 yrs, & > wondering what works for others. > > > Patricia L. Brown-Tulee > pl...@yahoo.com > > > while adding years to your life, add life to your years
[QUAD-L] b care
what bowel care works for you? i'm almost 1 week w/out. longest w/out has been 2-3 weeks. i've tried a lot in past 27 yrs, & wondering what works for others. Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years
Re: Fwd: [QUAD-L] quad gut
40' sitting, dana, what was dr. oz thing that worked? Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years On Monday, October 28, 2013 3:10 PM, "lwillis...@yahoo.com" wrote: When I am lying on my back in bed, my pants seem four sizes too big. When I sit up they become tight. The old flabby quad gut just rolls out there like the Pillsbury doughboy! My pants are 42 in. waistline. I'm scrawny as a stick man everywhere else. Were I standing, I would look like a pregnant tobacco stick. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com >From: Dana Wray >Date: October 28, 2013 at 4:57:30 PM EDT >To: Patricia Brown-Tulee >Cc: "lwillis...@yahoo.com" , "quad-list@eskimo.com" > >Subject: Re: [QUAD-L] quad gut > > I recently did mine was 33 1/2 inches. it's hard to know your weight when you don't know the weight of my present chair to deduct from the total. Dana Sent from my iPhone On Oct 28, 2013, at 3:49 PM, Patricia Brown-Tulee wrote: anyone measure stomach lately? > >Patricia >pl...@yahoo.com > > > >while adding years to your life, add life to your years > > > >On Sunday, October 27, 2013 6:01 PM, "lwillis...@yahoo.com" > wrote: > >Congrats guys. I sure wish I could shed my gut. It pushes up on my ribs and >downward on my bladder. Hurts like hell in both directions, especially my >bladder. It makes me cold sweat, and hurts if I eat very much. And that is not >to mention the bloating and acid. I swear, sometimes I want to throw in the >towel. > >Sent from my iPad > >Begin forwarded message: > > >Resent-From: quad-list@eskimo.com >>From: greg >>Date: October 27, 2013 at 6:01:51 PM EDT >>To: Quad-list >>Subject: [QUAD-L] quad gut >> >> >After getting an ostomy my quad gut has gone down at least 75%. I was worried >about a bulge resting on top of a bloated stomach showing a lot. But my >stomach is a lot flatter now. now I hope it just stays this way. >Greg > >
Re: Fwd: [QUAD-L] quad gut
anyone measure stomach lately? Patricia pl...@yahoo.com while adding years to your life, add life to your years On Sunday, October 27, 2013 6:01 PM, "lwillis...@yahoo.com" wrote: Congrats guys. I sure wish I could shed my gut. It pushes up on my ribs and downward on my bladder. Hurts like hell in both directions, especially my bladder. It makes me cold sweat, and hurts if I eat very much. And that is not to mention the bloating and acid. I swear, sometimes I want to throw in the towel. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com >From: greg >Date: October 27, 2013 at 6:01:51 PM EDT >To: Quad-list >Subject: [QUAD-L] quad gut > > After getting an ostomy my quad gut has gone down at least 75%. I was worried about a bulge resting on top of a bloated stomach showing a lot. But my stomach is a lot flatter now. now I hope it just stays this way. Greg
Re: [QUAD-L] Few Quad helpful things i learned for us.
wondering if I could use cripper w/ my 1 arm use Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years On Saturday, October 19, 2013 4:43 PM, RONALD L PRACHT wrote: that amazing quad chis colwell has at least 6 crippers of various lengths, even a cripper knife and he demonstrates them o you tube. i have one of those sammons preston versions..they dont hold a candle to the cripper boys.dont lose your crip!! ron !!From: Derrick Winegardner To: quad-list@eskimo.com Sent: Saturday, October 19, 2013 4:29 PM Subject: Re: [QUAD-L] Few Quad helpful things i learned for us. that is cheaper and different than the sammons-preston quad reacher that i got. amazon has one on sale for $407.. http://www.amazon.com/Quad-Reacher-Right-Medium-20-5-23cm/dp/B007GBCDLA allegromedical has the list price of $1,162.20.but on sale for $417 http://www.allegromedical.com/daily-living-aids-c519/quad-reacher-moves-by-wrist-action-p187056.html derrick On 10/19/2013 4:03 PM, Danny Hearn wrote: Yes, Bobbie-just go to quadtools.com, it was invented by John Sutherland years ago, over the years him and his son have made improvements on their tools, he has web pages and video's--it is called the quadcripper Tool., and is made of titanium. Dan H** > > >From: Gmail mailto:bobbiehumphre...@gmail.com >To: Danny Hearn mailto:ddh...@sbcglobal.net >Cc: mailto:daa...@aol.com mailto:daa...@aol.com; mailto:curlyle...@verizon.net >mailto:curlyle...@verizon.net; mailto:quad-list@eskimo.com >mailto:quad-list@eskimo.com >Sent: Saturday, October 19, 2013 2:45 PM >Subject: Re: [QUAD-L] Few Quad helpful things i learned for us. > > > >Dan, do you have a link for this gripper? Bobbie > >Smile Everyday > >On Oct 19, 2013, at 3:37 PM, Danny Hearn wrote: > > >Wow, nice idea's on other useful ways to pick up stuff, But I could not hardly >live without my QUADCRIPPER TOOL, invented by a quad... I use this tool >everyday-I can pick up newspapers, coins about anything I need plus get things >in and out of the fridge or microwave by myself..I use it to hold a wet >wipe or paper towels to clean up any spills etc. Many times my remotes are >beyond my reach on a table or bed and I can grab them with ease with my tool. >I can't use my fingers but this works off up and down wrist hand movement. >Dan H** >> >> >>From: "daa...@aol.com" >>To: curlyle...@verizon.net; quad-list@eskimo.com >>Sent: Saturday, October 19, 2013 1:45 PM >>Subject: Re: [QUAD-L] Few Quad helpful things i learned for us. >> >> >> >>Great suggestions Johnny. >>Dana >> >>In a message dated 10/19/2013 12:02:13 P.M. Central Daylight Time, >>curlyle...@verizon.net writes: >> >>> Heres a few things I learned through my quad years that may help. >>> >>> >>>If you ever drop something on the floor and want to pick it up. >>>You first have to have a handle with little hook on end. ( you can make >>>your own.] >>>Then you drop a little plastic bag that has two handles on it near the >>>droped item. [you get a bag at any store ] >>>Then you push the dropped item into the bag and hook the two or one handle >>>up towards you to retreve. >>>Also you can have a roll of masking tape on end of roll where you can even >>>pick up a quarter or even a marble. >>>Its that easy. Its funny when you pick it up and others are not around >>>they are amazed wondering how you did it. >>> >>> >>>My other item for us [always ] cold quads during cold winters is to buy a >>>little heating pad and slide it under you pillow case. >>>You can just click what feels good , low med or high. We have feeling from >>>our neck above so we can tell if it gets to hot. Also it has automatic >>>shutoff after a certain time. >>>I love it. >>> >>> >>>Take care >>>johnny lewis on facebook. >> >> > >
Re: [QUAD-L] body donation
spinal cord research is my main interest Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years On Friday, October 11, 2013 12:58 AM, RONALD L PRACHT wrote: i wouldnt donate my body because a human being deserves dignity at deatha bunch of college kids laughing at me as they cut pieces off me isnt the way i want to go outthey think they are somehow better than the people they are learning on.not for mecremation is better than that. ron From: Patricia Brown-Tulee To: "quad-list@eskimo.com" Sent: Friday, October 11, 2013 12:16 AM Subject: [QUAD-L] body donation does anyone know of a "good" research to donate body to [at death]? Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years
[QUAD-L] body donation
does anyone know of a "good" research to donate body to [at death]? Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years
[QUAD-L] bentonite
does anyone use/try Redmond Clay (has bentonite)? Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years
[QUAD-L] burns
do any of u burn themselves frequently? cuz i do. this time it's on my finger [possibly from hot dinner plate or cig ash, not sure] & am in need of burn care tips. pl Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years
[QUAD-L] weight loss in stomach
to the person who lost 45 lbs since december (I think it's DANNY) & anyone else who has lost weight, Has anyone succeeded in losing weight/inches in stomach area? anyone ever tried other methods for stomach loss? [I replied to Danny/Crystal light but never saw a response, which I think because it was spamming at time w/ eskimo) Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years
[QUAD-L] help
need help in getting out of spam i think. did his get out? reply if read Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years
[QUAD-L] diet HELP
I've read quite a few posts/emails about dieting as a quad & thinking I've been doing it wrong all these years by trying to focus on fat grams & ignoring carb intake. Yet as I read on low-carb diet/lifestyle I'm confused as all hell as what to not eat, like the majority of my food such as whole wheat bread, instant maple-brown sugar oatmeal, raspberry yogurt, apple sauce, graham-crackers, etc.. WHAT CAN I EAT? I'm beginning to understand why I've gained weight over the years & I can't even look at my stomach in the mirror! I need detailed advice from others w/this problem please. I'm a c-4-5-6 [c-4(left) c-5-6 (right)] since 1986 Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years
Re: Fwd: [QUAD-L] please help!
for my sweatings has been due to discomfit of underwear &/or pants creeping. Or potential syrinx, when on left side more. Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years From: "lwillis...@yahoo.com" To: quad-list@eskimo.com Sent: Tuesday, April 16, 2013 3:32 PM Subject: Fwd: [QUAD-L] please help! Carla, it is almost certainly dysreflexia. I think about every member of this list including myself has experienced those miserable sweats. The frustrating thing is it can have many different causes, only two of which are bladder and bowel. Absolutely anything that could generate pain can cause it. The two drugs that best calm the sweat glands are ditropan and propantheline. Most of us take one or the other, and usually they are pretty effective. Do you take either of those? If not, talk to the ol' doc. Good luck and God bless. Larry Willis, C-5, 1971 Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com >From: Carla Aarssen >Date: April 16, 2013, 6:16:27 PM EDT >To: "quad-list@eskimo.com" >Subject: [QUAD-L] please help! > > >i'm a c5 quad female, 33yrs old, 11years post injury and about a yr ago i >started sweating profusely 90% of the day, doesn't matter the temp of air, >sometimes i feel cold while sweating, i have goose flesh and sweat like i'm >running in the desert (i wish,lol) i spent a month in hospital oly to be told >i was "full of shit" pardon my french ...i'd have to change my bowel routine >from 3x a week to daily and clean outwell, it seemed to me i continued to >sweat for quite some time and it just mostly subsided but almost exactly 1yr >later it's happening again, sweat is rolling down my neck right nowthe >dr's are not taking me seriouslyi am no longer "full of shit"...what else >can it be? it's not dysreflexia..in-dwelling foley cath works fineany >ideas? anyone ever hear of propantheline bromide?
