RE: [QUAD-L] Blood pressure

[carrie pinter]

I know my situation is different than all of yours, but maybe you can take away 
something from this.

 

Don’t know about  you guys, but I’ve been injured 26 years. My low blood 
pressure used to be low like yours, but not so dangerously fluctuating, except 
while in the hospital. I’ve also never been medicated for it (besides salt 
pills). But I’ve figured out that constant hydration is a major factor. In 
addition to breakfast, I’d always eat a little something sweet or drink sugary 
drinks, thinking that was the way to raise bp, but not anymore. Now I drink up 
to 8oz. of water first thing in the morning, eat breakfast, and then drink a 
good cup or two more throughout the morning before I sit up (doesn’t have to be 
strictly water). It is the solution for me. Drinking a couple cups of water, 
and eating carbs the night before (and enough calories overall) is my winning 
combo. If I don’t follow this pattern and I practically black out after 
transferring, I then immediately drink a good cup or two of agua—works every 
time. Works faster and is easier than chomping skittles in a dizzy state, 
though not as tasty, I hear ya L 

All this fluid chugging used to cause me bladder spasms, but not anymore. I 
think my body is used to it now. 

Also, even for non-diabetics like myself, sugary drinks spike the insulin 
level, which then plummets, then the body struggles again to raise, and 
stabilize, it. All this can affect bp. Though when I do drink something yummy 
and sugary, I try always to drink water afterwards. Don’t know this for 
certain, but I think this helps to reduce the spike in insulin.

Try this method. Took me a lot of years to get it down pat. It works for my bp, 
plus I feel so much better all day when I drink plenty of water in the morning.

Hope this helps.

Carrie

 

 

Carrie

 

From: greg [mailto:g...@eskimo.com] 
Sent: Saturday, October 15, 2016 7:37 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Blood pressure

 

I can get super dizzy after eating. And maybe 10% of the time the nurses can't 
hear/find my blood pressure.

Not sure if related, but think it could be, about 10% of the time they can't 
find a vain to draw blood. When it's that bad, even the light machine can't 
find a vain.

Greg

 

 

> I have problems with this occasionally, especially after I eat or

> first get seated in the chair. It's definitely not good to have

> this low. It's hard on your heart and your kidneys, not to mention

> all of the other internal organs.

> 

> Just FYI, if you can't get a reading sitting up, try tilting back

> as far as you can in the wheelchair or in bed and see if you get

> one. If it's low, then you might need to talk to a physician about

> whether it's beneficial to take medication to raise it. They have

> me taking medication part of the day, but when I get into bed I

> have pain issues which elevates my blood pressure. So it's a bit of

> a seesaw as well as a balancing act.

> 

> Quadius

> 

> 

> On Fri, Oct 14, 2016 at 11:45 AM, Danny Hearn

>  wrote:

> 

>> Yes, most quads range very low in blood pressure.mine is the

>> same as you guys and have had times they can't even get a reading

>> also.  Dan H***

>> 

>> 

>> On Thursday, October 13, 2016 10:43 PM, "jume9...@comcast.net"

>>  wrote:

>> 

>> 

>> My blood pressure is very like yours Bobbie all the time. They

>> sometimes can't even get a reading. 

>> 

>> 

>> Meredith

>> Sent from my LG Mobile

Re: [QUAD-L] Blood pressure

[Quadius]

Greg,
There is no doubt in my mind that you have a similar problem. They tell me
it's orthostatic hypotension. It can come from eating as well as standing
or sitting up too quickly.

When they have trouble getting your blood pressure, try tilting back as far
as you can. I have to tilt back when I eat, because my blood pressure drops
too drastically. That is why I end up taking midodrine every time I eat
when I haven't consumed food in four or five hours.

I usually take my blood pressure just prior to eating in order to determine
whether one-half midodrine will do the trick.

Quadius
PS take this seriously. I was put in the hospital twice for low blood
pressure in the cardiologist and renal doctors were adamant that I needed
to keep my blood pressure higher than 80/50. Even if I went a little too by
for a while. They would prefer my blood pressure to be higher rather than
lower.
I have seen mine dipped down to the mid-50s over 30 something. That's not
healthy.

On Sat, Oct 15, 2016 at 8:36 PM, greg  wrote:

> I can get super dizzy after eating. And maybe 10% of the time the nurses
> can't hear/find my blood pressure.
> Not sure if related, but think it could be, about 10% of the time they
> can't find a vain to draw blood. When it's that bad, even the light machine
> can't find a vain.
> Greg
>
>
>
> > I have problems with this occasionally, especially after I eat or
> > first get seated in the chair. It's definitely not good to have
> > this low. It's hard on your heart and your kidneys, not to mention
> > all of the other internal organs.
> >
> > Just FYI, if you can't get a reading sitting up, try tilting back
> > as far as you can in the wheelchair or in bed and see if you get
> > one. If it's low, then you might need to talk to a physician about
> > whether it's beneficial to take medication to raise it. They have
> > me taking medication part of the day, but when I get into bed I
> > have pain issues which elevates my blood pressure. So it's a bit of
> > a seesaw as well as a balancing act.
> >
> > Quadius
> >
> >
> > On Fri, Oct 14, 2016 at 11:45 AM, Danny Hearn
> >  wrote:
> >
> >> Yes, most quads range very low in blood pressure.mine is the
> >> same as you guys and have had times they can't even get a reading
> >> also.  Dan H***
> >>
> >>
> >> On Thursday, October 13, 2016 10:43 PM, "jume9...@comcast.net"
> >>  wrote:
> >>
> >>
> >> My blood pressure is very like yours Bobbie all the time. They
> >> sometimes can't even get a reading.
> >>
> >>
> >> Meredith
> >> Sent from my LG Mobile
>

Re: [QUAD-L] Blood pressure

[greg]

I can get super dizzy after eating. And maybe 10% of the time the nurses can't hear/find my blood pressure.
Not sure if related, but think it could be, about 10% of the time they can't find a vain to draw blood. When it's that bad, even the light machine can't find a vain.
Greg
 

> I have problems with this occasionally, especially after I eat or
> first get seated in the chair. It's definitely not good to have
> this low. It's hard on your heart and your kidneys, not to mention
> all of the other internal organs.
>
> Just FYI, if you can't get a reading sitting up, try tilting back
> as far as you can in the wheelchair or in bed and see if you get
> one. If it's low, then you might need to talk to a physician about
> whether it's beneficial to take medication to raise it. They have
> me taking medication part of the day, but when I get into bed I
> have pain issues which elevates my blood pressure. So it's a bit of
> a seesaw as well as a balancing act.
>
> Quadius
>
>
> On Fri, Oct 14, 2016 at 11:45 AM, Danny Hearn
>  wrote:
>
>> Yes, most quads range very low in blood pressure.mine is the
>> same as you guys and have had times they can't even get a reading
>> also.  Dan H***
>>
>>
>> On Thursday, October 13, 2016 10:43 PM, "jume9...@comcast.net"
>>  wrote:
>>
>>
>> My blood pressure is very like yours Bobbie all the time. They
>> sometimes can't even get a reading. 
>>
>>
>> Meredith
>> Sent from my LG Mobile

Re: [QUAD-L] Blood pressure

[Quadius]

I have problems with this occasionally, especially after I eat or first get
seated in the chair. It's definitely not good to have this low. It's hard
on your heart and your kidneys, not to mention all of the other internal
organs.

Just FYI, if you can't get a reading sitting up, try tilting back as far as
you can in the wheelchair or in bed and see if you get one. If it's low,
then you might need to talk to a physician about whether it's beneficial to
take medication to raise it. They have me taking medication part of the
day, but when I get into bed I have pain issues which elevates my blood
pressure. So it's a bit of a seesaw as well as a balancing act.

Quadius

On Fri, Oct 14, 2016 at 11:45 AM, Danny Hearn  wrote:

> Yes, most quads range very low in blood pressure.mine is the same as
> you guys and have had times they can't even get a reading also.  Dan H***
>
> On Thursday, October 13, 2016 10:43 PM, "jume9...@comcast.net" <
> jume9...@comcast.net> wrote:
>
>
>
> My blood pressure is very like yours Bobbie all the time. They sometimes
> can't even get a reading.
>
> Meredith
> Sent from my LG Mobile
>
>
>

Re: [QUAD-L] Blood pressure

[Danny Hearn]

 Yes, most quads range very low in blood pressure.mine is the same as you 
guys and have had times they can't even get a reading also.  Dan H***

On Thursday, October 13, 2016 10:43 PM, "jume9...@comcast.net" 
 wrote:
 

  
My blood pressure is very like yours Bobbie all the time. They sometimes can't 
even get a reading. 
MeredithSent from my LG Mobile

   

[QUAD-L] Blood pressure

[jume9999]

My blood pressure is very like yours Bobbie all the time. They sometimes can't 
even get a reading. 
MeredithSent from my LG Mobile

Re: [QUAD-L] Blood Pressure up and down,

[Dr.Ron and Sharion Austin]

my wife's BP swings(as much as 100 points) were almost always related to UTI
someone on the board recommend bardex cathers (sliver coating)
that along with all the other things people list seems so far to be working
well

On Mon, Jun 6, 2016 at 6:15 PM, DAVID LEWIS  wrote:

> It seems that my blood pressure is kinda ghigh in bed and mostly always
> low.
> Is that what you Quads get ?
> Does anyone take meds for their blood pressure?
> Thanks
>



-- 
Living in God's Grace
Ron

Re: [QUAD-L] Blood Pressure up and down,

[Eric Olson]

  
  
When you're up, blood tends to pool in your legs lowering your
  blood pressure (static hypotension).  When you get in bed, that
  blood can move back up towards your head raising blood pressure. 
  When you eat, blood moves towards and around your stomach during
  digestion.  So if your pressure is already low, eating might lower
  it even more.  


On 6/6/2016 7:36 PM, Quadius wrote:


  
try giving us
  an example of what kind of high is when you're in bed. Also
  give us a example of what it's like in your chair. If you
  would like I can go into great deal and to mine, because I
  probably take my blood pressure anywhere from 5 to 10 times a
  day depending on how much trouble I'm having. I do have high
  blood pressure in bed often, but a lot of times it's related
  to bowels or bladder, but occasionally were not sure. I also
  have a kidney stone which might be causing it to remain
  elevated when I am in bed.
  

My blood
  pressure drop significantly whenever I eat, especially when
  the blood pressure is not too elevated. I'll give you
  examples, but let's wait and see what blood pressure you're
  talking about first.
  

Take care,

Quadius

21 years post
  right now I am functioning as a C4 quadriplegic

although my
  initial injury was at the C2 vertebrae

  
  
On Mon, Jun 6, 2016 at 7:15 PM, DAVID
  LEWIS 
  wrote:
  

  
It seems that my blood pressure is kinda ghigh in
  bed and mostly always low.
Is that what you Quads get ?  
Does anyone take meds for their blood pressure?
Thanks
  

  


  


  

	

		Virus-free. www.avast.com
		
	

Re: [QUAD-L] Blood Pressure up and down,

[Quadius]

try giving us an example of what kind of high is when you're in bed. Also
give us a example of what it's like in your chair. If you would like I can
go into great deal and to mine, because I probably take my blood pressure
anywhere from 5 to 10 times a day depending on how much trouble I'm having.
I do have high blood pressure in bed often, but a lot of times it's related
to bowels or bladder, but occasionally were not sure. I also have a kidney
stone which might be causing it to remain elevated when I am in bed.

My blood pressure drop significantly whenever I eat, especially when the
blood pressure is not too elevated. I'll give you examples, but let's wait
and see what blood pressure you're talking about first.

Take care,
Quadius
21 years post right now I am functioning as a C4 quadriplegic
although my initial injury was at the C2 vertebrae

On Mon, Jun 6, 2016 at 7:15 PM, DAVID LEWIS  wrote:

> It seems that my blood pressure is kinda ghigh in bed and mostly always
> low.
> Is that what you Quads get ?
> Does anyone take meds for their blood pressure?
> Thanks
>

[QUAD-L] Blood Pressure up and down,

[DAVID LEWIS]

It seems that my blood pressure is kinda ghigh in bed and mostly always low.Is 
that what you Quads get ?  Does anyone take meds for their blood pressure?Thanks

Re: [QUAD-L] blood pressure

[Nan]

Do you sweat when this is happening?


On Monday, May 19, 2014 1:05 PM, Danny Espinoza  
wrote:
 


Sounds like autonomic dysreflexia to me...


 Original Message 
>Subject: [QUAD-L] blood pressure
>From: gah17...@aol.com
>Date: Mon, May 19, 2014 9:29 am
>To: quad-list@eskimo.com
>
>Hello all,
> 
>I am a C 5/6, almost 48 years post SCI and I have an issue that I just can't 
>figure out.
> 
>I am having a problem with high blood pressure.  My normal blood pressure is 
>120ish
>over 80ish.  Over the past three months that we have been checking most times 
>the blood pressure would be over 200/100ish.  The doctor has prescribed 
>several different meds of which none have worked.  I am normally on Lisinopril 
>and Lasix.
> 
>In the morning I will eat a breakfast sandwich and take my morning meds. 
>Approximately 1 hour later my blood pressure will be almost normal, then it 
>will either gradually go up or spike back up to where it has been staying.  
>The doctor has also put me on a medication to slow my heart beat.  My normal 
>heartbeat i
>around 50 and during the night I would wake up, check my pulse to find it was 
>over 80, one or two times exceeding 100.
> 
>Any ideas?
> 
>
> 
>
>Glenn Henry
>
>G.A.Henry Radio
>100 Mill Street
>Washington Boro, PA 17582 

Re: [QUAD-L] blood pressure

[Bob Vogel]

Hi Glenn,

As you probably know better than I, sudden spikes in high blood pressure 
in a person with SCI level above T6 is an emergency because it often is
a sign of autonomic dysreflexia. I *assume* you and your doctor have looked
 at all the "usual suspects"--urinary tract infection, checked for skin
breakdown, any unusual swelling or areas of red or discolored skin--any
stimulus (pain or irritation) below your level of injury may be setting this 
off.'

If you are unable to find out what is causing the problem, one thing you might
want to ask your doctor about is celiac disease--an autoimmune disease where
the body has an intense reaction to gluten, which is a specific protein 
molecule 
found in wheat, barley and rye.  The reason I mention this is I was diagnosed 
with
celiac disease 3 years ago--at age 51.  I'm a T10 complete para, 29 years post
injury.  My celiac symptoms were: 
*chronic constipation (it manifests in the gut two
ways--the most common is serious diarrhea, OR constipation.
*pain in my lower right abdomen--right at my line of sensation, which is just 
about
even with my navel.

Celiac disease can hit at any age and it affects 1 out of 133 people.  It is a 
long shot
and I hope you don't have it--but may be worth mentioning.

Bob V

On May 19, 2014, at 9:29 AM, gah17...@aol.com wrote:

> Hello all,
>  
> I am a C 5/6, almost 48 years post SCI and I have an issue that I just can't 
> figure out.
>  
> I am having a problem with high blood pressure.  My normal blood pressure is 
> 120ish
> over 80ish.  Over the past three months that we have been checking most times 
> the blood pressure would be over 200/100ish.  The doctor has prescribed 
> several different meds of which none have worked.  I am normally on 
> Lisinopril and Lasix.
>  
> In the morning I will eat a breakfast sandwich and take my morning meds. 
> Approximately 1 hour later my blood pressure will be almost normal, then it 
> will either gradually go up or spike back up to where it has been staying.  
> The doctor has also put me on a medication to slow my heart beat.  My normal 
> heartbeat i
> around 50 and during the night I would wake up, check my pulse to find it was 
> over 80, one or two times exceeding 100.
>  
> Any ideas?
>  
> 
>  
> 
> Glenn Henry
> 
> G.A.Henry Radio
> 100 Mill Street
> Washington Boro, PA 17582

RE: [QUAD-L] blood pressure

[Danny Espinoza]

Sounds like autonomic dysreflexia to me...


 Original Message 
Subject: [QUAD-L] blood pressure
From: gah17...@aol.com
Date: Mon, May 19, 2014 9:29 am
To: quad-list@eskimo.com

 Hello all,   I am a C 5/6, almost 48 years post SCI and I have an issue that I just can't figure out.   I am having a problem with high blood pressure.  My normal blood pressure is 120ish over 80ish.  Over the past three months that we have been checking most times the blood pressure would be over 200/100ish.  The doctor has prescribed several different meds of which none have worked.  I am normally on Lisinopril and Lasix.   In the morning I will eat a breakfast sandwich and take my morning meds. Approximately 1 hour later my blood pressure will be almost normal, then it will either gradually go up or spike back up to where it has been staying.  The doctor has also put me on a medication to slow my heart beat.  My normal heartbeat i around 50 and during the night I would wake up, check my pulse to find it was over 80, one or two times exceeding 100.   Any ideas?      Glenn HenryG.A.Henry Radio100 Mill StreetWashington Boro, PA 17582

[QUAD-L] Blood pressure

[Gah17582]

 
Hello all,
 
I am a C 5/6, almost 48 years post SCI and I have an issue that I just  
can't figure out.
 
I am having a problem with high blood pressure.  My normal blood  pressure 
is 120ish
over 80ish.  Over the past three months that we have been checking  most 
times the blood pressure would be over 200/100ish.  The doctor has  prescribed 
several different meds of which none have worked.  I am  normally on 
Lisinopril and Lasix.
 
In the morning I will eat a breakfast sandwich and take my morning  meds. 
Approximately 1 hour later my blood pressure will be almost normal, then  it 
will either gradually go up or spike back up to where it has been  staying.  
The doctor has also put me on a medication to slow my heart  beat.  My 
normal heartbeat i
around 50 and during the night I would wake up, check my pulse to find it  
was over 80, one or two times exceeding 100.
 
Any ideas?
 

Glenn Henry

[QUAD-L] blood pressure

[Gah17582]

Hello all,
 
I am a C 5/6, almost 48 years post SCI and I have an issue that I just  
can't figure out.
 
I am having a problem with high blood pressure.  My normal blood  pressure 
is 120ish
over 80ish.  Over the past three months that we have been checking  most 
times the blood pressure would be over 200/100ish.  The doctor has  prescribed 
several different meds of which none have worked.  I am  normally on 
Lisinopril and Lasix.
 
In the morning I will eat a breakfast sandwich and take my morning  meds. 
Approximately 1 hour later my blood pressure will be almost normal, then  it 
will either gradually go up or spike back up to where it has been  staying.  
The doctor has also put me on a medication to slow my heart  beat.  My 
normal heartbeat i
around 50 and during the night I would wake up, check my pulse to find it  
was over 80, one or two times exceeding 100.
 
Any ideas?
 

 

Glenn Henry

G.A.Henry  Radio
100 Mill Street
Washington Boro, PA  17582

Re: [QUAD-L] Blood pressure meds

[Quadius]

I take midodrine 5 mg as well. When I first started taking it, it cause my
heart to race, but now it is pretty much side effect free for me.

In the past I had always used caffeine drinks like Mountain Dew to raise my
blood pressure, but those are really short term and may also cause a crash
later on. I am now starting to use midodrine on a daily basis and I find
unable to function much quicker after I eat.

I tend to eat right after I get up in therefore I take the midodrine right
after I start eating. That way my blood pressure is up shortly after I
finished eating.

After being hospitalized in June because my blood pressure dropped to
really scary levels, because of a quick onset bowel infection, I am
determined not to let my blood pressure drop as low as it did before. When
your blood pressure drops too low, your organs don't function properly.
Because my blood pressure dropped to ridiculously low levels, it's a long
story, it took my body about seven or eight hours before I started
urinating once again.

Talk to your doctor about getting one of these drugs.


On Sat, Sep 7, 2013 at 12:47 AM, LJT  wrote:

> I take midodrine, 5mg.prior to getting up and prior to each meal as well
> as 1mg fludrocortisone 1x daily.
>
> *Lucinda
> C-4,5 complete
> July 31, '05*
> *Mpls., MN*
>
>
>   --
>  *From:* Danny Hearn 
> *To:* Don Price ; "quad-list@eskimo.com" <
> quad-list@eskimo.com>
> *Sent:* Friday, September 6, 2013 6:07 PM
> *Subject:* Re: [QUAD-L] Blood pressure meds
>
> when mine gets too low I take , 1mg of fludrocortisone. Dan H**
>
>*From:* Don Price 
> *To:* "quad-list@eskimo.com" 
> *Sent:* Friday, September 6, 2013 3:52 PM
> *Subject:* [QUAD-L] Blood pressure meds
>
> Does anyone take medication to increase their blood pressure?
>
> My bp is so low that sometimes the doctor can't get it to measure using
> the electronic bp cuff. Some days, recently, it takes me a few hours in the
> morning before my lightheaded feeling (due to low bp) goes away.
>
> I know there are meds to help increase blood pressure but I'm always
> hesitant to take more medications (side effects, interactions, etc.)
>
> I'd appreciate any experiences you all have had.
>
> Thank you,
> Don
> C5-6, 31 years post injury.
>
>
>
>
>

Re: [QUAD-L] Blood pressure meds

[LJT]

I take midodrine, 5mg.prior to getting up and prior to each meal as well as 1mg 
fludrocortisone 1x daily.
 
Lucinda
C-4,5 complete
July 31, '05
Mpls., MN
 



 From: Danny Hearn 
To: Don Price ; "quad-list@eskimo.com" 
 
Sent: Friday, September 6, 2013 6:07 PM
Subject: Re: [QUAD-L] Blood pressure meds
 


when mine gets too low I take , 1mg of fludrocortisone. Dan H**

From: Don Price 
To: "quad-list@eskimo.com"  
Sent: Friday, September 6, 2013 3:52 PM
Subject: [QUAD-L] Blood pressure meds
 


Does anyone take medication to increase their blood pressure?

My bp is so low that sometimes the doctor can't get it to measure using the 
electronic bp cuff. Some days, recently, it takes me a few hours in the morning 
before my lightheaded feeling (due to low bp) goes away.

I know there are meds to help increase blood pressure but I'm always hesitant 
to take more medications (side effects, interactions, etc.)

I'd appreciate any experiences you all have had.

Thank you,
Don
C5-6, 31 years post injury.

Re: [QUAD-L] Blood pressure meds

[Don Price]

Does it work?
Any side effects?
How long does it last?
How low is 'too low'?
How fast does it kick in?

Thanks,
Don.



 From: Danny Hearn 
To: Don Price ; "quad-list@eskimo.com" 
 
Sent: Friday, September 6, 2013 4:07 PM
Subject: Re: [QUAD-L] Blood pressure meds
 


when mine gets too low I take , 1mg of fludrocortisone. Dan H**

From: Don Price 
To: "quad-list@eskimo.com"  
Sent: Friday, September 6, 2013 3:52 PM
Subject: [QUAD-L] Blood pressure meds
 


Does anyone take medication to increase their blood pressure?

My bp is so low that sometimes the doctor can't get it to measure using the 
electronic bp cuff. Some days, recently, it takes me a few hours in the morning 
before my lightheaded feeling (due to low bp) goes away.

I know there are meds to help increase blood pressure but I'm always hesitant 
to take more medications (side effects, interactions, etc.)

I'd appreciate any experiences you all have had.

Thank you,
Don
C5-6, 31 years post injury.

Re: [QUAD-L] Blood pressure meds

[Danny Hearn]

when mine gets too low I take , 1mg of fludrocortisone. Dan H**

 


 From: Don Price 
To: "quad-list@eskimo.com"  
Sent: Friday, September 6, 2013 3:52 PM
Subject: [QUAD-L] Blood pressure meds
  


Does anyone take medication to increase their blood pressure?

My bp is so low that sometimes the doctor can't get it to measure using the 
electronic bp cuff. Some days, recently, it takes me a few hours in the morning 
before my lightheaded feeling (due to low bp) goes away.

I know there are meds to help increase blood pressure but I'm always hesitant 
to take more medications (side effects, interactions, etc.)

I'd appreciate any experiences you all have had.

Thank you,
Don
C5-6, 31 years post injury.

[QUAD-L] Blood pressure meds

[Don Price]

Does anyone take medication to increase their blood pressure?

My bp is so low that sometimes the doctor can't get it to measure using the 
electronic bp cuff. Some days, recently, it takes me a few hours in the morning 
before my lightheaded feeling (due to low bp) goes away.

I know there are meds to help increase blood pressure but I'm always hesitant 
to take more medications (side effects, interactions, etc.)

I'd appreciate any experiences you all have had.

Thank you,
Don
C5-6, 31 years post injury.

Re: [QUAD-L] blood pressure

[Dana Miller]

Thank you, that is very interesting!  Does it go up at night and down when 
your in your chair?
The highest my bottom number has gotten has been 100.  I guess unless it 
gets higher, I wolln't worry about it.  Now that summer is here, it has gone 
down.   take care,


Dana
[EMAIL PROTECTED]
- Original Message - 
From: <[EMAIL PROTECTED]>

To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>
Cc: 
Sent: Friday, June 10, 2005 10:12 AM
Subject: Re: [QUAD-L] blood pressure




My blood pressure has been all over the place since my accident.(29 years
post) It worries some nurses but the doctors don't feel it is any great 
threat
unless the bottom number gets above 120. That is only once or twice a 
week.
There doesn't seem to be any reason that sets it off. I notice that I'm 
more
ill tempered when it is high though. The low blood pressure thing  seems 
to be
happening less often and I have refused several heart tests. I'm  really 
not

into hospitals and it is doubtful that I could survive most invasive
procedures anymore.

john

In a message dated 6/9/2005 5:27:16 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:

Thanks.  I don't know what is making my blood pressure go up when  I lay
down, plus do not know "when" it goes up.  It may be as soon as  I am in 
bed,
it may go up gradually and be high by morning.  I do not  feel any 
different.
I seldom get dysreflexia and it only shows up as  splotches on my neck. 
As

soon as I am turned on my back--am on my  side doing BP or eating
breakfast--it goes away.

The thing that  bothers me, is that my rehab doc ignores it, but it 
"can't"
be good for my  heart in general.  I am discovering my father and his side 
of
the  family nearly all have had heart problems, especially the men.  He 
has 9


siblings.  On my mothers side its allergies and cataracts.  I  have 
already
had a bout with blood clots in my lungs and opted to stop  taking -oh what 
is

that blood thinner?--after 2 years and the big clot in  my leg was gone.
That was 7-8 years ago.  I'll get  concerned  enough one of these days and
ask for a consult for a heart doc.   Until then, I really can't do 
anything.

take  care,

Dana
[EMAIL PROTECTED]
- Original Message -
From: "David K. Kelmer" <[EMAIL PROTECTED]>
To:  "LISA GOLEM" <[EMAIL PROTECTED]>
Cc: "Quad-List"  
Sent: Wednesday, June 08, 2005 2:02  PM
Subject: Re: [QUAD-L] blood pressure



I'm forwarding this  to the Q-List.  I think it was meant to be posted
 there.

LISA GOLEM <[EMAIL PROTECTED]>  wrote:Dana,
For low bp I use pro-amatine and for high bp I use  clonidine. I'am a 
C4-5

quad for 30 yrs and have been dealing with  Autonomatic Dysreflexia for
many yrs. Let me know if you any  questions?
Sincerely,
Lisa

"David K. Kelmer"  <[EMAIL PROTECTED]> wrote:
Hi  Dana,


Antihistamines (Benadryl is a brand name) are  used to relieve or prevent
the symptoms of hay fever and other types  of allergy.  They work by
preventing the effects of a substance  called histamine, which is 
produced

by the body.  Histamine can  cause itching, sneezing, runny nose, and
watery eyes.  Also, in  some persons histamine can close up the bronchial
tubes (air passages  of the lungs) and make breathing difficult.

Some of the  antihistamines are also used to prevent motion sickness,
nausea,  vomiting, and dizziness.  In patients with Parkinson's disease,
 diphenhydramine may be used to decrease stiffness and tremors.  Also, 
the
syrup form of diphenhydramine is used to relieve the cough due to  colds 
or

hay fever.  In addition, since antihistamines may cause  drowsiness as a
side effect, some of them may be used to help people  go to sleep.


With Love,


 CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas,  USA


Dana Miller <[EMAIL PROTECTED]>  wrote:
What about benadryl--I use it as a sleeper, but take much more  than it
says
to.

Dana
 [EMAIL PROTECTED]
- Original Message - 
From:

 To: ;
Cc:
Sent: Saturday, May 28, 2005 5:05 PM
 Subject: Re: [QUAD-L] blood pressure




I  think ephedrine is the active ingredient in sudafed and actifed. It 
can

be
gotten over the counter. One of those meds you  don't want with a heart
condition.

 john

In a message dated 5/28/2005 4:53:37 P.M. Eastern  Daylight Time,
[EMAIL PROTECTED] writes:

I  have the same problem Dana. My pressure is really low in the chair
 but shoots through the roof as soon as I get in bed. That's why I 
don't

use any medications for my low pr! essure problems. I used  to take
ephedrine to help with low pressure but no pharmacies  around here will
fill prescriptions for it  anymore.

Eric

Dana Miller  wrote:


My BP has been all over the map the last  couple of years. I used to
routibnely be 90/60 give or take  even 80/50+ was normal. Since I got
home from my last skin  flap it is not unus

Re: [QUAD-L] blood pressure

[DeLiMiTeD4]

My blood pressure has been all over the place since my accident.(29 years 
post) It worries some nurses but the doctors don't feel it is any great 
threat unless the bottom number gets above 120. That is only once or twice a 
week. There doesn't seem to be any reason that sets it off. I notice that I'm 
more ill tempered when it is high though. The low blood pressure thing 
seems to be happening less often and I have refused several heart tests. I'm 
really not into hospitals and it is doubtful that I could survive most invasive 
procedures anymore.
 
john 
 
In a message dated 6/9/2005 5:27:16 P.M. Eastern Daylight Time, 
[EMAIL PROTECTED] writes:
Thanks.  I don't know what is making my blood pressure go up when 
  I lay down, plus do not know "when" it goes up.  It may be as soon as 
  I am in bed, it may go up gradually and be high by morning.  I do not 
  feel any different. I seldom get dysreflexia and it only shows up as 
  splotches on my neck.  As soon as I am turned on my back--am on my 
  side doing BP or eating breakfast--it goes away.The thing that 
  bothers me, is that my rehab doc ignores it, but it "can't" be good for my 
  heart in general.  I am discovering my father and his side of the 
  family nearly all have had heart problems, especially the men.  He has 9 
  siblings.  On my mothers side its allergies and cataracts.  I 
  have already had a bout with blood clots in my lungs and opted to stop 
  taking -oh what is that blood thinner?--after 2 years and the big clot in 
  my leg was gone. That was 7-8 years ago.  I'll get  concerned 
  enough one of these days and ask for a consult for a heart doc.  
  Until then, I really can't do anything. take 
  care,Dana[EMAIL PROTECTED]- Original Message - 
  From: "David K. Kelmer" <[EMAIL PROTECTED]>To: 
  "LISA GOLEM" <[EMAIL PROTECTED]>Cc: "Quad-List" 
  Sent: Wednesday, June 08, 2005 2:02 
  PMSubject: Re: [QUAD-L] blood pressure> I'm forwarding this 
  to the Q-List.  I think it was meant to be posted > 
  there.>> LISA GOLEM <[EMAIL PROTECTED]> 
  wrote:Dana,> For low bp I use pro-amatine and for high bp I use 
  clonidine. I'am a C4-5 > quad for 30 yrs and have been dealing with 
  Autonomatic Dysreflexia for > many yrs. Let me know if you any 
  questions?> Sincerely,> Lisa>> "David K. Kelmer" 
  <[EMAIL PROTECTED]> wrote:> Hi 
  Dana,>>> Antihistamines (Benadryl is a brand name) are 
  used to relieve or prevent > the symptoms of hay fever and other types 
  of allergy.  They work by > preventing the effects of a substance 
  called histamine, which is produced > by the body.  Histamine can 
  cause itching, sneezing, runny nose, and > watery eyes.  Also, in 
  some persons histamine can close up the bronchial > tubes (air passages 
  of the lungs) and make breathing difficult.>> Some of the 
  antihistamines are also used to prevent motion sickness, > nausea, 
  vomiting, and dizziness.  In patients with Parkinson's disease, > 
  diphenhydramine may be used to decrease stiffness and tremors.  Also, the 
  > syrup form of diphenhydramine is used to relieve the cough due to 
  colds or > hay fever.  In addition, since antihistamines may cause 
  drowsiness as a > side effect, some of them may be used to help people 
  go to sleep.>>> With Love,>>> 
  CtrlAltDel aka Dave> C4/5 Complete - 29 Years Post> Texas, 
  USA>>> Dana Miller <[EMAIL PROTECTED]> 
  wrote:> What about benadryl--I use it as a sleeper, but take much more 
  than it > says> to.>> Dana> 
  [EMAIL PROTECTED]> - Original Message - > From:> 
  To: ;> Cc:> Sent: Saturday, May 28, 2005 5:05 PM> 
  Subject: Re: [QUAD-L] blood pressure>>>>>> I 
  think ephedrine is the active ingredient in sudafed and actifed. It 
  can>> be>> gotten over the counter. One of those meds you 
  don't want with a heart>> condition.>>>> 
  john>>>> In a message dated 5/28/2005 4:53:37 P.M. Eastern 
  Daylight Time,>> [EMAIL PROTECTED] writes:>>>> I 
  have the same problem Dana. My pressure is really low in the chair>> 
  but shoots through the roof as soon as I get in bed. That's why I 
  don't>> use any medications for my low pr! essure problems. I used 
  to take>> ephedrine to help with low pressure but no pharmacies 
  around here will>> fill prescriptions for it 
  anymore.>>>> Eric>>>> Dana Miller 
  wrote:>>>>> My BP has been all over the map the last 
  couple of years. I used to>>> routibnely be 90/60 give or take 
  even 80/50+ was normal. Since I got>>> home from my last skin 
  flap it is not unusual 

Re: [QUAD-L] blood pressure

[Jkrocks]

My BP is the same.  Low in the chair and higher in bed.
 
Jim

Re: [QUAD-L] blood pressure

[Dana Miller]

Thanks.  I don't know what is making my blood pressure go up when I lay 
down, plus do not know "when" it goes up.  It may be as soon as I am in bed, 
it may go up gradually and be high by morning.  I do not feel any different. 
I seldom get dysreflexia and it only shows up as splotches on my neck.  As 
soon as I am turned on my back--am on my side doing BP or eating 
breakfast--it goes away.


The thing that bothers me, is that my rehab doc ignores it, but it "can't" 
be good for my heart in general.  I am discovering my father and his side of 
the family nearly all have had heart problems, especially the men.  He has 9 
siblings.  On my mothers side its allergies and cataracts.  I have already 
had a bout with blood clots in my lungs and opted to stop taking -oh what is 
that blood thinner?--after 2 years and the big clot in my leg was gone. 
That was 7-8 years ago.  I'll get  concerned enough one of these days and 
ask for a consult for a heart doc.  Until then, I really can't do anything. 
take care,


Dana
[EMAIL PROTECTED]
- Original Message - 
From: "David K. Kelmer" <[EMAIL PROTECTED]>

To: "LISA GOLEM" <[EMAIL PROTECTED]>
Cc: "Quad-List" 
Sent: Wednesday, June 08, 2005 2:02 PM
Subject: Re: [QUAD-L] blood pressure


I'm forwarding this to the Q-List.  I think it was meant to be posted 
there.


LISA GOLEM <[EMAIL PROTECTED]> wrote:Dana,
For low bp I use pro-amatine and for high bp I use clonidine. I'am a C4-5 
quad for 30 yrs and have been dealing with Autonomatic Dysreflexia for 
many yrs. Let me know if you any questions?

Sincerely,
Lisa

"David K. Kelmer" <[EMAIL PROTECTED]> wrote:
Hi Dana,


Antihistamines (Benadryl is a brand name) are used to relieve or prevent 
the symptoms of hay fever and other types of allergy.  They work by 
preventing the effects of a substance called histamine, which is produced 
by the body.  Histamine can cause itching, sneezing, runny nose, and 
watery eyes.  Also, in some persons histamine can close up the bronchial 
tubes (air passages of the lungs) and make breathing difficult.


Some of the antihistamines are also used to prevent motion sickness, 
nausea, vomiting, and dizziness.  In patients with Parkinson's disease, 
diphenhydramine may be used to decrease stiffness and tremors.  Also, the 
syrup form of diphenhydramine is used to relieve the cough due to colds or 
hay fever.  In addition, since antihistamines may cause drowsiness as a 
side effect, some of them may be used to help people go to sleep.



With Love,


CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA


Dana Miller <[EMAIL PROTECTED]> wrote:
What about benadryl--I use it as a sleeper, but take much more than it 
says

to.

Dana
[EMAIL PROTECTED]
- Original Message - 
From:

To: ;
Cc:
Sent: Saturday, May 28, 2005 5:05 PM
Subject: Re: [QUAD-L] blood pressure




I think ephedrine is the active ingredient in sudafed and actifed. It can
be
gotten over the counter. One of those meds you don't want with a heart
condition.

john

In a message dated 5/28/2005 4:53:37 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:

I have the same problem Dana. My pressure is really low in the chair
but shoots through the roof as soon as I get in bed. That's why I don't
use any medications for my low pr! essure problems. I used to take
ephedrine to help with low pressure but no pharmacies around here will
fill prescriptions for it anymore.

Eric

Dana Miller wrote:


My BP has been all over the map the last couple of years. I used to
routibnely be 90/60 give or take even 80/50+ was normal. Since I got
home from my last skin flap it is not unusual fot me to be 150/98,
then get in my chair and it would drop to 90/60 or there abouts.
Lately my weekly
nurse has been taking it while in my chair and this last week was
150+/98. Yet at the doc office 2 days before was (with one of those
machine type things that take your pulse etc.) 100/70+.

I took my blood pressure 3 times during my morning routine for a
week--first when my attendant got here--was always very high. Then
after breakfast and on my back--went down a little. Last about 10
minutes in my chair, and it would be "normally" low. I showed it to
my rehab doc and he did not have much to say because if he gave me
something to bring it down, I would pass out in my chair.

Now it seems to be consistantly higher for my "low" readings. This
has been going on for several years--the really high readings while in
bed, but always went back down to normal after I would get up. Lately
the 'low' readings are not as low. It has been quite a while since I
have had even a 90/60!
I am going to see and indocrinologist (sp?) in june to make sure
myblood levels and enzymes etc are all good. Got really sick last
week and had a strange rash that ran from my groin area up to my belly
button 

Re: [QUAD-L] blood pressure

[David K. Kelmer]

I'm forwarding this to the Q-List.  I think it was meant to be posted there.LISA GOLEM <[EMAIL PROTECTED]> wrote:

Dana,
For low bp I use pro-amatine and for high bp I use clonidine. I'am a C4-5 quad for 30 yrs and have been dealing with Autonomatic Dysreflexia for many yrs. Let me know if you any questions?
Sincerely, 
Lisa"David K. Kelmer" <[EMAIL PROTECTED]> wrote:

Hi Dana,
 
Antihistamines (Benadryl is a brand name) are used to relieve or prevent the symptoms of hay fever and other types of allergy.  They work by preventing the effects of a substance called histamine, which is produced by the body.  Histamine can cause itching, sneezing, runny nose, and watery eyes.  Also, in some persons histamine can close up the bronchial tubes (air passages of the lungs) and make breathing difficult. 
Some of the antihistamines are also used to prevent motion sickness, nausea, vomiting, and dizziness.  In patients with Parkinson's disease, diphenhydramine may be used to decrease stiffness and tremors.  Also, the syrup form of diphenhydramine is used to relieve the cough due to colds or hay fever.  In addition, since antihistamines may cause drowsiness as a side effect, some of them may be used to help people go to sleep. 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA
Dana Miller <[EMAIL PROTECTED]> wrote:
What about benadryl--I use it as a sleeper, but take much more than it says to.Dana[EMAIL PROTECTED]- Original Message - From: <[EMAIL PROTECTED]>To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>Cc: Sent: Saturday, May 28, 2005 5:05 PMSubject: Re: [QUAD-L] blood pressure>> I think ephedrine is the active ingredient in sudafed and actifed. It can > be> gotten over the counter. One of those meds you don't want with a heart> condition.>> john>> In a message dated 5/28/2005 4:53:37 P.M. Eastern Daylight Time,> [EMAIL PROTECTED] writes:>> I have the same problem Dana. My pressure is really low in the chair> but shoots through the roof as soon as I get in bed. That's why I don't> use any medications for my low pr!
 ! essure
 problems. I used to take> ephedrine to help with low pressure but no pharmacies around here will> fill prescriptions for it anymore.>> Eric>> Dana Miller wrote:>>> My BP has been all over the map the last couple of years. I used to>> routibnely be 90/60 give or take even 80/50+ was normal. Since I got>> home from my last skin flap it is not unusual fot me to be 150/98,>> then get in my chair and it would drop to 90/60 or there abouts.>> Lately my weekly>> nurse has been taking it while in my chair and this last week was>> 150+/98. Yet at the doc office 2 days before was (with one of those>> machine type things that take your pulse etc.) 100/70+.>>>> I took my blood pressure 3 times during my morning routine for a>> week--first when my attendant got here--was always very high. Then>> after breakfast and on my
 back--went down a little. Last about 10>> minutes in my chair, and it would be "normally" low. I showed it to>> my rehab doc and he did not have much to say because if he gave me>> something to bring it down, I would pass out in my chair.>>>> Now it seems to be consistantly higher for my "low" readings. This>> has been going on for several years--the really high readings while in>> bed, but always went back down to normal after I would get up. Lately>> the 'low' readings are not as low. It has been quite a while since I>> have had even a 90/60!>> I am going to see and indocrinologist (sp?) in june to make sure>> myblood levels and enzymes etc are all good. Got really sick last>> week and had a strange rash that ran from my groin area up to my belly>> button and up my sides about halfway. The actual sickness only lasted>> 1 day, but the !
 ! rash
 took 4-5 days to leave. At least the doc got to>> see it. Whatever it is, it was out of the realm of my rehab doc!>> --like he should know "everything"! :o)>>>> my 2 cents,>>>> Dana>> [EMAIL PROTECTED]>>>>>>>>>> 

Re: [QUAD-L] blood pressure

[David K. Kelmer]

Hi Eric,
 
Restrictions on the sale of meth precursors (products containing pseudoephedrine and ephedrine) have been an important issue since the passage of the Oklahoma law last session.  In an effort to reduce the meth problem, the state was the first to classify precursor products as Schedule V.  Now, in Oklahoma, only licensed pharmacists and pharmacy technicians are allowed to sell the drug.  All products must be kept behind the pharmacy counter and stores without pharmacies can no longer sell products containing pseudoephedrine.  Customers must show photo ID and sign a log to buy affected products.  Furthermore, sales are restricted to no more than nine grams in a 30-day period.  Several other states are considering Oklahoma-style legislation this year.  Texas is one of these states.
Pseudoephedrine (PSE) is a decongestant (reduces swelling in sinuses).  Over-the-counter drug products either contain pseudoephedrine as the sole active ingredient or in combination with other ingredients.  Single active ingredient pseudoephedrine products are most favored by meth cooks because they give them the highest yield and purity.
Product examples of single active ingredient pseudoephedrine:
• Sudafed and its generic equivalents.
• Contac 12-Hour Caplets
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA  Eric Olson <[EMAIL PROTECTED]> wrote:
That's pseudoephedrine.  [EMAIL PROTECTED] wrote:



I think ephedrine is the active ingredient in sudafed and actifed. It can be gotten over the counter. One of those meds you don't want with a heart condition.
 
john

Re: [QUAD-L] blood pressure

[David K. Kelmer]

Hi Dana,
 
Antihistamines (Benadryl is a brand name) are used to relieve or prevent the symptoms of hay fever and other types of allergy.  They work by preventing the effects of a substance called histamine, which is produced by the body.  Histamine can cause itching, sneezing, runny nose, and watery eyes.  Also, in some persons histamine can close up the bronchial tubes (air passages of the lungs) and make breathing difficult. 
Some of the antihistamines are also used to prevent motion sickness, nausea, vomiting, and dizziness.  In patients with Parkinson's disease, diphenhydramine may be used to decrease stiffness and tremors.  Also, the syrup form of diphenhydramine is used to relieve the cough due to colds or hay fever.  In addition, since antihistamines may cause drowsiness as a side effect, some of them may be used to help people go to sleep. 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA
Dana Miller <[EMAIL PROTECTED]> wrote:
What about benadryl--I use it as a sleeper, but take much more than it says to.Dana[EMAIL PROTECTED]- Original Message - From: <[EMAIL PROTECTED]>To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>Cc: Sent: Saturday, May 28, 2005 5:05 PMSubject: Re: [QUAD-L] blood pressure>> I think ephedrine is the active ingredient in sudafed and actifed. It can > be> gotten over the counter. One of those meds you don't want with a heart> condition.>> john>> In a message dated 5/28/2005 4:53:37 P.M. Eastern Daylight Time,> [EMAIL PROTECTED] writes:>> I have the same problem Dana. My pressure is really low in the chair> but shoots through the roof as soon as I get in bed. That's why I don't> use any medications for my low pr!
 essure
 problems. I used to take> ephedrine to help with low pressure but no pharmacies around here will> fill prescriptions for it anymore.>> Eric>> Dana Miller wrote:>>> My BP has been all over the map the last couple of years. I used to>> routibnely be 90/60 give or take even 80/50+ was normal. Since I got>> home from my last skin flap it is not unusual fot me to be 150/98,>> then get in my chair and it would drop to 90/60 or there abouts.>> Lately my weekly>> nurse has been taking it while in my chair and this last week was>> 150+/98. Yet at the doc office 2 days before was (with one of those>> machine type things that take your pulse etc.) 100/70+.>>>> I took my blood pressure 3 times during my morning routine for a>> week--first when my attendant got here--was always very high. Then>> after breakfast and on my
 back--went down a little. Last about 10>> minutes in my chair, and it would be "normally" low. I showed it to>> my rehab doc and he did not have much to say because if he gave me>> something to bring it down, I would pass out in my chair.>>>> Now it seems to be consistantly higher for my "low" readings. This>> has been going on for several years--the really high readings while in>> bed, but always went back down to normal after I would get up. Lately>> the 'low' readings are not as low. It has been quite a while since I>> have had even a 90/60!>> I am going to see and indocrinologist (sp?) in june to make sure>> myblood levels and enzymes etc are all good. Got really sick last>> week and had a strange rash that ran from my groin area up to my belly>> button and up my sides about halfway. The actual sickness only lasted>> 1 day, but the !
 rash took
 4-5 days to leave. At least the doc got to>> see it. Whatever it is, it was out of the realm of my rehab doc!>> --like he should know "everything"! :o)>>>> my 2 cents,>>>> Dana>> [EMAIL PROTECTED]>>>>>>>>>> 

Re: [QUAD-L] Blood pressure & Kidney artery blockage

[Dana Miller]

Hmmm, will keep that in mind.  Thanks!

Dana
[EMAIL PROTECTED]
- Original Message - 
From: "Lori Michaelson" <[EMAIL PROTECTED]>

To: "Quad" 
Sent: Sunday, May 29, 2005 1:23 PM
Subject: [QUAD-L] Blood pressure & Kidney artery blockage


My sister's BP was running all over the place.  Highs, Lows and "spikes of
highs" for no reason for
well over a year.

Her Dr put her on so many bp drugs over the course of a year or more (as in
- "here try these ... run along now").

She knew something was wrong but unsure what exactly.  And she had umpteen
tests (cardio, etc).

After getting a new Dr (after like 25 yrs!) HE suggested  kidney tests.
Anyway, she was found to
have fibromuscular dysplasia IN ONE RENAL ARTERY.  She had an angioplasty
done (balloon put
up into the renal artery to get rid of the blockage) after a RENAL angiogram
was done.

Her BP is great now.  So far.

Here's her story BEFORE she DID HAVE angioplasty.

"This was how it went:  I'll try to be brief.  I had the renal vascular
ultrasound the first part of January.  The techs told me what they saw when
they performed the test on me.  However, it took 6 weeks for the surgeon
reading the report to have a report written and sent to the cardiologist who
requested it.  When the cardiologist's office (whom I'd called about 4 or 5
times for the written result) finally said they had it, they recommended I
see a different doctor in his office for some kidney tests.  By that time I
d had it with that cardiologist.  I requested they send the result to me so
I could discuss it with my family doctor.

There was more time lost until they sent it to me, and then I had to make an
appointment with my family doctor to discuss it with him.  He recommended
that I see a surgeon at Robt. Packer.  That was more time waiting.  When I
saw the surgeon he gave me all the info and said to call him if I decided to
have the renal angiogram done.  He said it wasn't an emergency to get it
done.  I discussed it with my FMD, but again he wanted to wait for the
written report from the surgeon at Robt. Packer before he advised me.  Then
when he got the report he recommended (along with the recommendation of the
surgeon) to proceed with the angiogram.  An angiogram is the ONLY way they
can tell what is really going on in there.

I have agreed to an angiogram.  If during the angiogram they find blockage,
I want them to correct it while they are in there (angioplasty, stents,
whatever the need to do) so they don't have to go back in again later.  If
there happens to be no blockage, no corrective action is necessary."

Lori

---Original Message---

From: Dana Miller
Date: 05/28/05 16:58:36
To: quad-list@eskimo.com
Cc: quad
Subject: Re: [QUAD-L] blood pressure

Have you talked to a cardiologist about it?  It can't be good to have it
bouncing around all over the place.

Dana
[EMAIL PROTECTED]
- Original Message -
From: "Eric Olson" <[EMAIL PROTECTED]>
To: "Dana Miller" <[EMAIL PROTECTED]>
Cc: "quad" 
Sent: Saturday, May 28, 2005 3:52 PM
Subject: Re: [QUAD-L] blood pressure



I have the same problem Dana.  My pressure is really low in the chair but
shoots through the roof as soon as I get in bed.  That's why I don't use
any medications for my low pressure problems.  I used to take ephedrine to
help with low pressure but no pharmacies around here will fill
prescriptions for it anymore.
Eric

Dana Miller wrote:


My BP has been all over the map the last couple of years.  I used to
routibnely be 90/60 give or take even 80/50+ was normal.  Since I got
home from my last skin flap it is not unusual fot me to be 150/98, then
get in my chair and it would drop to 90/60 or there abouts.  Lately my
weekly
nurse has been taking it while in my chair and this last week was
150+/98. Yet at the doc office 2 days before was (with one of those
machine type things that take your pulse etc.) 100/70+.

I took my blood pressure 3 times during my morning routine for a
week--first when my attendant got here--was always very high.  Then after
breakfast and on my back--went down a little.  Last about 10 minutes in
my chair, and it would be "normally" low.  I showed it to my rehab doc
and he did not have much to say because if he gave me something to bring
it  down, I would pass out in my chair.

Now it seems to be consistantly higher for my "low" readings.  This has
been going on for several years--the really high readings while in bed,
but always went back down to normal after I would get up.  Lately the
'low' readings are not as low.  It has been quite a while since I have
had even a 90/60!
I am going to see and indocrinologist (sp?) in june to make sure myblood
levels and enzymes etc are all good.  Got really sick last week and had a
strange rash that ran from my groin area up to my belly button and u

Re: [QUAD-L] blood pressure

[Eric Olson]

That's pseudoephedrine.  

[EMAIL PROTECTED] wrote:

  
  
  
  
  I think ephedrine is the active ingredient in sudafed and
actifed. It can be gotten over the counter. One of those meds you don't
want with a heart condition.
   
  john
  
  
  

Re: [QUAD-L] blood pressure

[Eric Olson]

No it isn't good for you but what can I do?  It would be easy if your 
pressure was ALWAYS roughly the same in the chair and in bed.  But 
that's never the case.  You could take medication on some days and it 
would make things worse than if you hadn't taken it.  There are going to 
be days when your pressure doesn't follow the normal pattern.  There are 
going to be days when a medications effects last longer than usual 
{compounding the problem} or not long enough.  Then try to factor in 
things that raise your pressure {fuller bowel, wrinkled sheet, kinked 
catheter} or things that lower your pressure {eating}.  Just seems like 
it would be an awfully fine line to walk. 


Eric


Dana Miller wrote:

Have you talked to a cardiologist about it?  It can't be good to have 
it bouncing around all over the place.


Dana
[EMAIL PROTECTED]
- Original Message - From: "Eric Olson" <[EMAIL PROTECTED]>
To: "Dana Miller" <[EMAIL PROTECTED]>
Cc: "quad" 
Sent: Saturday, May 28, 2005 3:52 PM
Subject: Re: [QUAD-L] blood pressure


I have the same problem Dana.  My pressure is really low in the chair 
but shoots through the roof as soon as I get in bed.  That's why I 
don't use any medications for my low pressure problems.  I used to 
take ephedrine to help with low pressure but no pharmacies around 
here will fill prescriptions for it anymore.

Eric

[QUAD-L] Blood pressure & Kidney artery blockage

[Lori Michaelson]

My sister's BP was running all over the place.  Highs, Lows and "spikes of highs" for no reason for
well over a year.
 
Her Dr put her on so many bp drugs over the course of a year or more (as in - "here try these ... run along now").
 
She knew something was wrong but unsure what exactly.  And she had umpteen tests (cardio, etc).
 
After getting a new Dr (after like 25 yrs!) HE suggested  kidney tests.  Anyway, she was found to
have fibromuscular dysplasia IN ONE RENAL ARTERY.  She had an angioplasty done (balloon put
up into the renal artery to get rid of the blockage) after a RENAL angiogram was done.
 
Her BP is great now.  So far.
 
Here's her story BEFORE she DID HAVE angioplasty.
 
"This was how it went:  I'll try to be brief.  I had the renal vascular ultrasound the first part of January.  The techs told me what they saw when they performed the test on me.  However, it took 6 weeks for the surgeon reading the report to have a report written and sent to the cardiologist who requested it.  When the cardiologist's office (whom I'd called about 4 or 5 times for the written result) finally said they had it, they recommended I see a different doctor in his office for some kidney tests.  By that time I'd had it with that cardiologist.  I requested they send the result to me so I could discuss it with my family doctor.  
 
There was more time lost until they sent it to me, and then I had to make an appointment with my family doctor to discuss it with him.  He recommended that I see a surgeon at Robt. Packer.  That was more time waiting.  When I saw the surgeon he gave me all the info and said to call him if I decided to have the renal angiogram done.  He said it wasn't an emergency to get it done.  I discussed it with my FMD, but again he wanted to wait for the written report from the surgeon at Robt. Packer before he advised me.  Then when he got the report he recommended (along with the recommendation of the surgeon) to proceed with the angiogram.  An angiogram is the ONLY way they can tell what is really going on in there.I have agreed to an angiogram.  If during the angiogram they find blockage, I want them to correct it while they are in there (angioplasty, stents, whatever the need to do) so they don't have to go back in again later.  If there happens to be no blockage, no corrective action is necessary."Lori
 
---Original Message---
 

From: Dana Miller
Date: 05/28/05 16:58:36
To: quad-list@eskimo.com
Cc: quad
Subject: Re: [QUAD-L] blood pressure
 
Have you talked to a cardiologist about it?  It can't be good to have it
bouncing around all over the place.
 
Dana
[EMAIL PROTECTED]
- Original Message -
From: "Eric Olson" <[EMAIL PROTECTED]>
To: "Dana Miller" <[EMAIL PROTECTED]>
Cc: "quad" <quad-list@eskimo.com>
Sent: Saturday, May 28, 2005 3:52 PM
Subject: Re: [QUAD-L] blood pressure
 
 
>I have the same problem Dana.  My pressure is really low in the chair but
>shoots through the roof as soon as I get in bed.  That's why I don't use
>any medications for my low pressure problems.  I used to take ephedrine to
>help with low pressure but no pharmacies around here will fill
>prescriptions for it anymore.
> Eric
>
> Dana Miller wrote:
>
>> My BP has been all over the map the last couple of years.  I used to
>> routibnely be 90/60 give or take even 80/50+ was normal.  Since I got
>> home from my last skin flap it is not unusual fot me to be 150/98, then
>> get in my chair and it would drop to 90/60 or there abouts.  Lately my
>> weekly
>> nurse has been taking it while in my chair and this last week was
>> 150+/98. Yet at the doc office 2 days before was (with one of those
>> machine type things that take your pulse etc.) 100/70+.
>>
>> I took my blood pressure 3 times during my morning routine for a
>> week--first when my attendant got here--was always very high.  Then after
>> breakfast and on my back--went down a little.  Last about 10 minutes in
>> my chair, and it would be "normally" low.  I showed it to my rehab doc
>> and he did not have much to say because if he gave me something to bring
>> it  down, I would pass out in my chair.
>>
>> Now it seems to be consistantly higher for my "low" readings.  This has
>> been going on for several years--the really high readings while in bed,
>> but always went back down to normal after I would get up.  Lately the
>> 'low' readings are not as low.  It has been quite a while since I have
>> had even a 90/60!
>> I am going to see and indocrinologist (sp?) in june to make sure myblood
>> levels and enzymes etc are all good.  Got really sick last week and had a
>> strange rash that ran from my groin area up to my belly button and up my
>> sides about halfway.  The actual sickness only lasted 1 day, but the rash
>> took 4-5 days to leave.  At least the doc got to see it.  Whatever it is,
>> it was out of the realm of my rehab doc! --like he should know
>> "everything"! :o)
>>
>> my 2 cents,
>>
>> Dana
>> [EMAIL PROTECTED]
>>
>>
>>
>
>
 
 
 

Re: [QUAD-L] blood pressure

[Dana Miller]

I was given a bottle of some pills to take if my BP went real high.  I never 
took it altho about a year after my accident my blood pressure would go sky 
at night then low as soon as I got up.  Went to the doc and he immeadiatly 
found ingrown toenails.  Had those taken care of.  I have never had bad 
disreflexia.  I may feel very flushed and tingling, but that means I need to 
pee badly.
A couple of times I have gotten a little sweaty during bowel program, but 
that was years ago.  As far as the regular disreflxic symtoms--never have 
had them.
My rehab doc has chosen to ignore this -- says if he gave me anything for 
it, I would pass out when I got up.  I think, when I see the endocrinologist 
I will ask him for a consult.   My father had a sudden blockage to his heart 
a couple of years ago.  He was pushing 80 and was not taking "any" meds! 
The docs at his yearly physicals found it hard to believe.  His blood 
pressure soared suddenly and he began to feel bad.  I feel fine.


Dana
[EMAIL PROTECTED]
- Original Message - 
From: <[EMAIL PROTECTED]>

To: <[EMAIL PROTECTED]>; 
Sent: Saturday, May 28, 2005 8:17 PM
Subject: Re: [QUAD-L] blood pressure




There are a few reasons that your blood pressure might be shooting around.
First, do you ever test to see if your bladder has much residual urine? If 
you
have a few hundred CCs can cause your blood pressure to be high. Your 
bowels
can  have an equally upsetting effect on your blood pressure. Pain can 
also
run your  blood pressure up. If any of these are bad enough they can 
trigger
Autonomic  Disreflexia. This is where your Autonomic nervous system freaks 
out.
Blood  pressure sky rockets, becomes hard to breath, your heart races, 
headache
is  unbearable until you stroke. This is usually followed by a heart 
attack.

Sure wish I could remember the name of the blood pressure medication I use
to keep on hand? It was used in the 50's to bring down blood pressure but
rarely  prescribed because it slams the BP down fast and hard. It gives 
you about

an  hour to alleviate whatever is causing the high BP. If anyone knows Dr.
Randall  Braddom, a physiatrist, he will surely have the answer. Last I 
heard, he

was in New Jersey. He may be retired but damn, he was a smart Dr.

john

In a message dated 5/28/2005 7:58:50 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:

Have you  talked to a cardiologist about it?  It can't be good to have it
bouncing around all over the  place.

Dana
[EMAIL PROTECTED]
- Original Message -
From: "Eric Olson" <[EMAIL PROTECTED]>
To: "Dana Miller"  <[EMAIL PROTECTED]>
Cc: "quad" 
Sent:  Saturday, May 28, 2005 3:52 PM
Subject: Re: [QUAD-L] blood  pressure



I have the same problem Dana.  My pressure is  really low in the chair but
shoots through the roof as soon as I get  in bed.  That's why I don't use
any medications for my low  pressure problems.  I used to take ephedrine 
to

help with low  pressure but no pharmacies around here will fill
prescriptions for it  anymore.
Eric

Dana Miller wrote:


 My BP has been all over the map the last couple of years.  I used to
routibnely be 90/60 give or take even 80/50+ was normal.   Since I got
home from my last skin flap it is not unusual fot me  to be 150/98, then
get in my chair and it would drop to 90/60 or  there abouts.  Lately my
weekly
nurse has been  taking it while in my chair and this last week was
150+/98. Yet  at the doc office 2 days before was (with one of those
machine  type things that take your pulse etc.) 100/70+.

I took  my blood pressure 3 times during my morning routine for a
 week--first when my attendant got here--was always very high.  Then 
after



breakfast and on my back--went down a little.  Last about 10  minutes in
my chair, and it would be "normally" low.  I  showed it to my rehab doc
and he did not have much to say because  if he gave me something to 
bring

it  down, I would pass out  in my chair.

Now it seems to be consistantly higher  for my "low" readings.  This has
been going on for several  years--the really high readings while in bed,
but always went  back down to normal after I would get up.  Lately the
'low'  readings are not as low.  It has been quite a while since I have
had even a 90/60!
I am going to see and  indocrinologist (sp?) in june to make sure 
myblood
levels and  enzymes etc are all good.  Got really sick last week and had 
a


strange rash that ran from my groin area up to my belly button  and up 
my
sides about halfway.  The actual sickness only  lasted 1 day, but the 
rash
took 4-5 days to leave.  At least  the doc got to see it.  Whatever it 
is,

it was out of the  realm of my rehab doc! --like he should know
"everything"!  :o)

my 2 cents,

 Dana
 [EMAIL PROTECTED]

Re: [QUAD-L] blood pressure

[DeLiMiTeD4]

There are a few reasons that your blood pressure might be shooting around. 
First, do you ever test to see if your bladder has much residual urine? If you 
have a few hundred CCs can cause your blood pressure to be high. Your bowels can 
have an equally upsetting effect on your blood pressure. Pain can also run your 
blood pressure up. If any of these are bad enough they can trigger Autonomic 
Disreflexia. This is where your Autonomic nervous system freaks out. Blood 
pressure sky rockets, becomes hard to breath, your heart races, headache is 
unbearable until you stroke. This is usually followed by a heart attack. 
Sure wish I could remember the name of the blood pressure medication I use 
to keep on hand? It was used in the 50's to bring down blood pressure but rarely 
prescribed because it slams the BP down fast and hard. It gives you about an 
hour to alleviate whatever is causing the high BP. If anyone knows Dr. Randall 
Braddom, a physiatrist, he will surely have the answer. Last I heard, he 
was in New Jersey. He may be retired but damn, he was a smart Dr.
 
john
 
In a message dated 5/28/2005 7:58:50 P.M. Eastern Daylight Time, 
[EMAIL PROTECTED] writes:
Have you 
  talked to a cardiologist about it?  It can't be good to have it 
  bouncing around all over the 
  place.Dana[EMAIL PROTECTED]- Original Message - 
  From: "Eric Olson" <[EMAIL PROTECTED]>To: "Dana Miller" 
  <[EMAIL PROTECTED]>Cc: "quad" Sent: 
  Saturday, May 28, 2005 3:52 PMSubject: Re: [QUAD-L] blood 
  pressure>I have the same problem Dana.  My pressure is 
  really low in the chair but >shoots through the roof as soon as I get 
  in bed.  That's why I don't use >any medications for my low 
  pressure problems.  I used to take ephedrine to >help with low 
  pressure but no pharmacies around here will fill >prescriptions for it 
  anymore.> Eric>> Dana Miller wrote:>>> 
  My BP has been all over the map the last couple of years.  I used to 
  >> routibnely be 90/60 give or take even 80/50+ was normal.  
  Since I got >> home from my last skin flap it is not unusual fot me 
  to be 150/98, then >> get in my chair and it would drop to 90/60 or 
  there abouts.  Lately my >> weekly>> nurse has been 
  taking it while in my chair and this last week was >> 150+/98. Yet 
  at the doc office 2 days before was (with one of those >> machine 
  type things that take your pulse etc.) 100/70+.>>>> I took 
  my blood pressure 3 times during my morning routine for a >> 
  week--first when my attendant got here--was always very high.  Then after 
  >> breakfast and on my back--went down a little.  Last about 10 
  minutes in >> my chair, and it would be "normally" low.  I 
  showed it to my rehab doc >> and he did not have much to say because 
  if he gave me something to bring >> it  down, I would pass out 
  in my chair.>>>> Now it seems to be consistantly higher 
  for my "low" readings.  This has >> been going on for several 
  years--the really high readings while in bed, >> but always went 
  back down to normal after I would get up.  Lately the >> 'low' 
  readings are not as low.  It has been quite a while since I have 
  >> had even a 90/60!>> I am going to see and 
  indocrinologist (sp?) in june to make sure myblood >> levels and 
  enzymes etc are all good.  Got really sick last week and had a 
  >> strange rash that ran from my groin area up to my belly button 
  and up my >> sides about halfway.  The actual sickness only 
  lasted 1 day, but the rash >> took 4-5 days to leave.  At least 
  the doc got to see it.  Whatever it is, >> it was out of the 
  realm of my rehab doc! --like he should know >> "everything"! 
  :o)>>>> my 2 cents,>>>> 
  Dana>> 
  [EMAIL PROTECTED]>>>>>>>> 
  

 

Re: [QUAD-L] blood pressure

[Dana Miller]

What about benadryl--I use it as a sleeper, but take much more than it says 
to.


Dana
[EMAIL PROTECTED]
- Original Message - 
From: <[EMAIL PROTECTED]>

To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>
Cc: 
Sent: Saturday, May 28, 2005 5:05 PM
Subject: Re: [QUAD-L] blood pressure




I think ephedrine is the active ingredient in sudafed and actifed. It can 
be

gotten over the counter. One of those meds you don't want with a heart
condition.

john

In a message dated 5/28/2005 4:53:37 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:

I have  the same problem Dana.  My pressure is really low in the chair
but  shoots through the roof as soon as I get in bed.  That's why I don't
use any medications for my low pressure problems.  I used to take
ephedrine to help with low pressure but no pharmacies around here will
fill prescriptions for it anymore.

Eric

Dana Miller  wrote:


My BP has been all over the map the last couple of  years.  I used to
routibnely be 90/60 give or take even 80/50+  was normal.  Since I got
home from my last skin flap it is not  unusual fot me to be 150/98,
then get in my chair and it would drop  to 90/60 or there abouts.
Lately my weekly
nurse has  been taking it while in my chair and this last week was
150+/98. Yet  at the doc office 2 days before was (with one of those
machine type  things that take your pulse etc.) 100/70+.

I took my blood  pressure 3 times during my morning routine for a
week--first when my  attendant got here--was always very high.  Then
after breakfast  and on my back--went down a little.  Last about 10
minutes in my  chair, and it would be "normally" low.  I showed it to
my rehab  doc and he did not have much to say because if he gave me
something  to bring it  down, I would pass out in my chair.

Now it  seems to be consistantly higher for my "low" readings.  This
has  been going on for several years--the really high readings while in
 bed, but always went back down to normal after I would get up.  Lately
the 'low' readings are not as low.  It has been quite a while  since I
have had even a 90/60!
I am going to see and  indocrinologist (sp?) in june to make sure
myblood levels and enzymes  etc are all good.  Got really sick last
week and had a strange  rash that ran from my groin area up to my belly
button and up my  sides about halfway.  The actual sickness only lasted
1 day, but  the rash took 4-5 days to leave.  At least the doc got to
see  it.  Whatever it is, it was out of the realm of my rehab doc!
 --like he should know "everything"! :o)

my 2  cents,

Dana
 [EMAIL PROTECTED]

Re: [QUAD-L] blood pressure

[Dana Miller]

Have you talked to a cardiologist about it?  It can't be good to have it 
bouncing around all over the place.


Dana
[EMAIL PROTECTED]
- Original Message - 
From: "Eric Olson" <[EMAIL PROTECTED]>

To: "Dana Miller" <[EMAIL PROTECTED]>
Cc: "quad" 
Sent: Saturday, May 28, 2005 3:52 PM
Subject: Re: [QUAD-L] blood pressure


I have the same problem Dana.  My pressure is really low in the chair but 
shoots through the roof as soon as I get in bed.  That's why I don't use 
any medications for my low pressure problems.  I used to take ephedrine to 
help with low pressure but no pharmacies around here will fill 
prescriptions for it anymore.

Eric

Dana Miller wrote:

My BP has been all over the map the last couple of years.  I used to 
routibnely be 90/60 give or take even 80/50+ was normal.  Since I got 
home from my last skin flap it is not unusual fot me to be 150/98, then 
get in my chair and it would drop to 90/60 or there abouts.  Lately my 
weekly
nurse has been taking it while in my chair and this last week was 
150+/98. Yet at the doc office 2 days before was (with one of those 
machine type things that take your pulse etc.) 100/70+.


I took my blood pressure 3 times during my morning routine for a 
week--first when my attendant got here--was always very high.  Then after 
breakfast and on my back--went down a little.  Last about 10 minutes in 
my chair, and it would be "normally" low.  I showed it to my rehab doc 
and he did not have much to say because if he gave me something to bring 
it  down, I would pass out in my chair.


Now it seems to be consistantly higher for my "low" readings.  This has 
been going on for several years--the really high readings while in bed, 
but always went back down to normal after I would get up.  Lately the 
'low' readings are not as low.  It has been quite a while since I have 
had even a 90/60!
I am going to see and indocrinologist (sp?) in june to make sure myblood 
levels and enzymes etc are all good.  Got really sick last week and had a 
strange rash that ran from my groin area up to my belly button and up my 
sides about halfway.  The actual sickness only lasted 1 day, but the rash 
took 4-5 days to leave.  At least the doc got to see it.  Whatever it is, 
it was out of the realm of my rehab doc! --like he should know 
"everything"! :o)


my 2 cents,

Dana
[EMAIL PROTECTED]

Re: [QUAD-L] blood pressure

[DeLiMiTeD4]

I think ephedrine is the active ingredient in sudafed and actifed. It can 
be gotten over the counter. One of those meds you don't want with a heart 
condition.
 
john
 
In a message dated 5/28/2005 4:53:37 P.M. Eastern Daylight Time, 
[EMAIL PROTECTED] writes:
I have 
  the same problem Dana.  My pressure is really low in the chair but 
  shoots through the roof as soon as I get in bed.  That's why I don't 
  use any medications for my low pressure problems.  I used to take 
  ephedrine to help with low pressure but no pharmacies around here will 
  fill prescriptions for it anymore. EricDana Miller 
  wrote:> My BP has been all over the map the last couple of 
  years.  I used to > routibnely be 90/60 give or take even 80/50+ 
  was normal.  Since I got > home from my last skin flap it is not 
  unusual fot me to be 150/98, > then get in my chair and it would drop 
  to 90/60 or there abouts.  > Lately my weekly> nurse has 
  been taking it while in my chair and this last week was > 150+/98. Yet 
  at the doc office 2 days before was (with one of those > machine type 
  things that take your pulse etc.) 100/70+.>> I took my blood 
  pressure 3 times during my morning routine for a > week--first when my 
  attendant got here--was always very high.  Then > after breakfast 
  and on my back--went down a little.  Last about 10 > minutes in my 
  chair, and it would be "normally" low.  I showed it to > my rehab 
  doc and he did not have much to say because if he gave me > something 
  to bring it  down, I would pass out in my chair.>> Now it 
  seems to be consistantly higher for my "low" readings.  This > has 
  been going on for several years--the really high readings while in > 
  bed, but always went back down to normal after I would get up.  Lately 
  > the 'low' readings are not as low.  It has been quite a while 
  since I > have had even a 90/60!> I am going to see and 
  indocrinologist (sp?) in june to make sure > myblood levels and enzymes 
  etc are all good.  Got really sick last > week and had a strange 
  rash that ran from my groin area up to my belly > button and up my 
  sides about halfway.  The actual sickness only lasted > 1 day, but 
  the rash took 4-5 days to leave.  At least the doc got to > see 
  it.  Whatever it is, it was out of the realm of my rehab doc! > 
  --like he should know "everything"! :o)>> my 2 
  cents,>> Dana> 
  [EMAIL PROTECTED]>>>

 

Re: [QUAD-L] blood pressure

[Eric Olson]

I have the same problem Dana.  My pressure is really low in the chair 
but shoots through the roof as soon as I get in bed.  That's why I don't 
use any medications for my low pressure problems.  I used to take 
ephedrine to help with low pressure but no pharmacies around here will 
fill prescriptions for it anymore. 


Eric

Dana Miller wrote:

My BP has been all over the map the last couple of years.  I used to 
routibnely be 90/60 give or take even 80/50+ was normal.  Since I got 
home from my last skin flap it is not unusual fot me to be 150/98, 
then get in my chair and it would drop to 90/60 or there abouts.  
Lately my weekly
nurse has been taking it while in my chair and this last week was 
150+/98. Yet at the doc office 2 days before was (with one of those 
machine type things that take your pulse etc.) 100/70+.


I took my blood pressure 3 times during my morning routine for a 
week--first when my attendant got here--was always very high.  Then 
after breakfast and on my back--went down a little.  Last about 10 
minutes in my chair, and it would be "normally" low.  I showed it to 
my rehab doc and he did not have much to say because if he gave me 
something to bring it  down, I would pass out in my chair.


Now it seems to be consistantly higher for my "low" readings.  This 
has been going on for several years--the really high readings while in 
bed, but always went back down to normal after I would get up.  Lately 
the 'low' readings are not as low.  It has been quite a while since I 
have had even a 90/60!
I am going to see and indocrinologist (sp?) in june to make sure 
myblood levels and enzymes etc are all good.  Got really sick last 
week and had a strange rash that ran from my groin area up to my belly 
button and up my sides about halfway.  The actual sickness only lasted 
1 day, but the rash took 4-5 days to leave.  At least the doc got to 
see it.  Whatever it is, it was out of the realm of my rehab doc! 
--like he should know "everything"! :o)


my 2 cents,

Dana
[EMAIL PROTECTED]

[QUAD-L] blood pressure

[Dana Miller]

My BP has been all over the map the last couple of years.  I used to 
routibnely be 90/60 give or take even 80/50+ was normal.  Since I got home 
from my last skin flap it is not unusual fot me to be 150/98, then get in my 
chair and it would drop to 90/60 or there abouts.  Lately my weekly
nurse has been taking it while in my chair and this last week was 150+/98. 
Yet at the doc office 2 days before was (with one of those machine type 
things that take your pulse etc.) 100/70+.


I took my blood pressure 3 times during my morning routine for a week--first 
when my attendant got here--was always very high.  Then after breakfast and 
on my back--went down a little.  Last about 10 minutes in my chair, and it 
would be "normally" low.  I showed it to my rehab doc and he did not have 
much to say because if he gave me something to bring it  down, I would pass 
out in my chair.


Now it seems to be consistantly higher for my "low" readings.  This has been 
going on for several years--the really high readings while in bed, but 
always went back down to normal after I would get up.  Lately the 'low' 
readings are not as low.  It has been quite a while since I have had even a 
90/60!
I am going to see and indocrinologist (sp?) in june to make sure myblood 
levels and enzymes etc are all good.  Got really sick last week and had a 
strange rash that ran from my groin area up to my belly button and up my 
sides about halfway.  The actual sickness only lasted 1 day, but the rash 
took 4-5 days to leave.  At least the doc got to see it.  Whatever it is, it 
was out of the realm of my rehab doc! --like he should know "everything"! 
:o)


my 2 cents,

Dana
[EMAIL PROTECTED] 

Re: [QUAD-L] Blood Pressure - med

[Silas Shelburne]

Midodrine.  You can get it in 5milagrams or 10 
milagrams.  I take 2 a day morning and noon, then I don't have trouble the 
rest of the day.  
Silas 

  - Original Message - 
  From: 
  ~LittleQuad~ 
  To: Quad-list post 
  Sent: Monday, May 23, 2005 10:05 AM
  Subject: [QUAD-L] Blood Pressure - 
  med
  
  what is the name of the med? mine is so low that i pass out 2-3 times a 
  day sometimes... my doc put me on a high sodium, 3 ounces of dark chocolate a 
  day and as much protein as i can cram down. most days it works, but the ones 
  it doesn't are hard.and scare everyone!
  thanks..[EMAIL PROTECTED] wrote:
  

  

In a message dated 5/22/2005 4:04:43 P.M. Eastern Daylight Time, 
[EMAIL PROTECTED] writes:

  I have to take medidrum to keep my pressure up, it gets 
  real low when I first get up in the chair.  Also wear compresion 
  socks and a binder.  Its got a lot better, maybe some day it will 
  equal out.  
  Silas 

My spinal cord Dr. said it's normal for quads to have low blood 
pressure. When I have a u.t.i., one of the symptoms are low, 70/40. My 
norm is 100/80.
Diane
  
  
  http://fly.to/littlequad Yahoo ID - 
  littlequad 

[QUAD-L] Blood Pressure - med

[wheelchair]

A lil exercise to do daily, or several times a day is lift your hand high 
over your head, if possible, for about 10 seconds.  Also applies to when laying 
in bed before rising.
Raise your hand and arm as high as you can for as long as you can.  
(its also a good exercise)
W

In a message dated 5/23/05 12:06:15 PM, [EMAIL PROTECTED] writes:

<< what is the name of the med? mine is so low that i pass out 2-3 times a 
day sometimes... my doc put me on a high sodium, 3 ounces of dark chocolate a 
day and as much protein as i can cram down. most days it works, but the ones it 
doesn't are hard.and scare everyone!
thanks.. >>

Re: [QUAD-L] Blood Pressure - med

[QuadPirate]

Amye I used to do the same thing and my doc told me I was dehydrated and to force myself to drink more and it definitely worked for me.
 
Mark 
 
---Original Message---
 

From: ~LittleQuad~
Date: 05/23/05 12:05:58
To: Quad-list post
Subject: [QUAD-L] Blood Pressure - med
 
what is the name of the med? mine is so low that i pass out 2-3 times a day sometimes... my doc put me on a high sodium, 3 ounces of dark chocolate a day and as much protein as i can cram down. most days it works, but the ones it doesn't are hard.and scare everyone!
thanks..[EMAIL PROTECTED] wrote:


  

In a message dated 5/22/2005 4:04:43 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes:

I have to take medidrum to keep my pressure up, it gets real low when I first get up in the chair.  Also wear compresion socks and a binder.  Its got a lot better, maybe some day it will equal out.  
Silas 

My spinal cord Dr. said it's normal for quads to have low blood pressure. When I have a u.t.i., one of the symptoms are low, 70/40. My norm is 100/80.
Diane


http://fly.to/littlequad Yahoo ID - littlequad 
 

Re: [QUAD-L] Blood Pressure - med

[Martin T Brown]

  <> Make sure you're well-hydrated. If your body fluid levels are low,
then your blood pressure may be on the low side. Make sure you drink at
least 3 litres of fluid a day, including plenty in the evenings. Make
sure you have a healthy evening meal with plenty of carbohydrate
to provide sustained energy release throughout the night. Waking up
with
a low blood sugar can aggravate hypotension, and may be the actual
cause
of your blackouts so keep a dark block of chocolate for the night.
  
  

Fludrocortisone (Florinef) forces more salt into the
bloodstream, 0.1 mg daily starting dose, but this can cause Hypokalemia (low potassium), and hypomagnesemia (low
magnesem) over time but normal supplements will correct that.


  
  <>
QuadMedic


~LittleQuad~ wrote:

  what is the name of the med? mine is so low that i pass out 2-3
times a day sometimes... my doc put me on a high sodium, 3 ounces of
dark chocolate a day and as much protein as i can cram down. most days
it works, but the ones it doesn't are hard.and scare everyone!
  thanks..
  
  [EMAIL PROTECTED] wrote:
  


 

In a message dated 5/22/2005 4:04:43 P.M. Eastern Daylight
Time, [EMAIL PROTECTED] writes:

  I have to take medidrum to keep my pressure
up, it gets real low when I first get up in the chair.  Also wear
compresion socks and a binder.  Its got a lot better, maybe some day it
will equal out.  
  Silas 
  

My spinal cord Dr. said it's normal for quads to have low
blood pressure. When I have a u.t.i., one of the symptoms are low,
70/40. My norm is 100/80.
Diane


  
  
  
  
  http://fly.to/littlequad 
Yahoo ID - littlequad 
  
  
  

[QUAD-L] Blood Pressure - med

[~LittleQuad~]

what is the name of the med? mine is so low that i pass out 2-3 times a day sometimes... my doc put me on a high sodium, 3 ounces of dark chocolate a day and as much protein as i can cram down. most days it works, but the ones it doesn't are hard.and scare everyone!
thanks..[EMAIL PROTECTED] wrote:


  

In a message dated 5/22/2005 4:04:43 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes:

I have to take medidrum to keep my pressure up, it gets real low when I first get up in the chair.  Also wear compresion socks and a binder.  Its got a lot better, maybe some day it will equal out.  
Silas 

My spinal cord Dr. said it's normal for quads to have low blood pressure. When I have a u.t.i., one of the symptoms are low, 70/40. My norm is 100/80.
Diane

http://fly.to/littlequad Yahoo ID - littlequad 

[QUAD-L] Blood Pressure

[DiannaL767]

  

In a message dated 5/22/2005 4:04:43 P.M. Eastern Daylight Time, 
[EMAIL PROTECTED] writes:

  I have to take medidrum to keep my pressure up, it gets real 
  low when I first get up in the chair.  Also wear compresion socks and a 
  binder.  Its got a lot better, maybe some day it will equal out.  
  
  Silas 

My spinal cord Dr. said it's normal for quads to have low blood pressure. 
When I have a u.t.i., one of the symptoms are low, 70/40. My norm is 
100/80.
Diane