RE: [QUAD-L] Diverting Colonoscopy
thanks you for the information - did a colo-rectal surgeon do yours or general surgeon? Nicki From: greg [mailto:g...@eskimo.com] Sent: Wednesday, February 05, 2014 1:25 PM To: nichole rohling Subject: RE: [QUAD-L] Diverting Colonoscopy I just had a colostomy a few months ago. I was sweating so bad every time I did my bowel routine and it often took two hours. Also it made me bleed a lot. Plus I have been in bed with a pressure sore. I have been thinking about getting a colostomy for many years. So I thought this would be a good time to get one. I am glad I did. And I do wish I had gotten one years ago. I can't say they are perfect. Although most problems are caused from attaching it incorrectly. A few times a corner has come loose and there was a slight odor, but I could notice it before anyone else. The only other issue that would concern others noticing is sometimes gas can be a little louder. There are a lot of options and the manufacturers do a good job of sending stuff for free until you find the right product for you. It is so nice not having to schedule everything around my B routine. It takes at most 10 minutes to change the whole thing, once every 3 to 5 days. In just two or three minutes you can change the bag. And Medicare lets you get two bags per day. I only need to change once a day at most. Though I don't go out much since I got my pressure sore. I might want to change to a new one just before I went out, just so there is no little bulge. and it is reversible. Greg
Re: [QUAD-L] Diverting Colonoscopy
The best thing would probally be a temporary colonoscopy to allow your anus to heal from all the digital stimulation. I almost had to get a colonoscopy when my appendix burst back in 11. People with certain forms of cancer get temporary colonoscopys also. Ive heard both sides of the spectrum on quads and colonoscopys. Some tell of the crazy nights where the bag bursts and it takes 4 hours to clean up. Then Ive heard the other side where it allows more independence and avoids 2 hour bowell routines which would be good. Once I get about 50 and my dad is dead Im going to consider it. If I could change the bag alone it would be a great benefit. I would like to hear real life experiences of living with a bag. Ron From: nichole rohling To: 'Patricia Brown-Tulee' ; quad-list@eskimo.com Sent: Sunday, February 2, 2014 4:36 PM Subject: RE: [QUAD-L] Diverting Colonoscopy My blood pressure went down fairly soon after we quit pushing on my “butt nugget” LOL I did have a caregiver take a pic about a year ago and I about croaked! OMG – I can’t imagine what it looks like now. My gynecologist described mine as cauliflower but he saw it hours after it retreated JHe did not advise surgery at that time as he said it would just come back. What comes out now is blood red and raw – I know,TMI! I don’t get dysreflexic often but this is 2nd time in 8 months that once I do………my body is hypersensitive and just getting in bed last night made me have a pounding headache. How long after surgery was it before you were able to do bowel program and sit on a shower chair? From:Patricia Brown-Tulee [mailto:pl...@yahoo.com] Sent: Sunday, February 02, 2014 4:18 PM To: nichole rohling Subject: Re: [QUAD-L] Diverting Colonoscopy I had my "butt nugget" [we call it] removed over 5 yrs ago & it came back, turning into a "cauliflower" which my husband thinks I need to have it removed again & I don't want to. Hopefully, yours is different. I had no problem w/ recovery. They did have to clean me out more before, which had me postpone surgery & kept me in hospital for a few days. I never had blood pressure problems that stayed high because of it, so we are different there & might possibly be talking about something different. The "diagnosing doctor" did think it was worse than the surgeon for I was told I needed some part of my intestine removed, which the surgeon did not. Then again, maybe that's why it came back. (I'ld compare pictures of our butts, but that'ld be weird). Oh, & I never did a colostomy. Patricia pl...@yahoo.com while adding years to your life, add life to your years On Sunday, February 2, 2014 11:58 AM, nichole rohling wrote: I remember someone posting not too long ago (few months) about getting a colostomy and said they'd never go back. I have been putting off going to a rectal surgeon for 2 years. My rear is prolapsing and after sitting on my shower chair for at least an hour doing bowel program and even just to take a shower my caregivers just push it back where it belongs and this has worked for a long time UNTIL YESTERDAY. My blood pressure shot up while pushing it back in. By the time we could get batteries in my blood pressure cuff my headache was not nearly as bad and my bp was 191/123. I did the same thing today. I am scared about recovery from fixing my rear and would guess at least a temporary colostomy would be done. Would love any advice and would love to hear personal experience regarding it. Nicki -Original Message- From: gentr...@yahoo.com [mailto:gentr...@yahoo.com] Sent: Saturday, February 01, 2014 9:17 PM To: Gmail Cc: Aaron Mann; quad-list Subject: Re: [QUAD-L] Diverting Colonoscopy My bf quad since 1992. Got a colostomy in 2009. Went to hospital via ambulance for severe pain and AD while doing BM. Had no choice but to get colostomy. They told him it could be reversed after he healed. But after he healed, it has been a blessing. He can empty it himself. And we only have to change the bag every 3 days. Yes, we there has been accidents but no more or less than without the colostomy. And NO bowel program to do! Sent from my iPhone > On Feb 1, 2014, at 9:09 PM, Gmail wrote: > > Aaron, > Sorry to hear you need another skin flap. I don't have a colonoscopy but did go through urinary diversion surgery. Let me be completely honest with you. The surgery for the urostomy was the hardest surgery I ever experienced in my entire life. The recovery was insane! I spent 10 long hard days in the hospital then eight weeks at home barely moving. Now that I do have it I love it, I would recommend having a Urostomy but not going through the surgery if you know what I mean. > We Quads go through so very much that it is insane! You could never, ever describe what we go through physically, mentally and emotio
RE: [QUAD-L] Diverting Colonoscopy
My blood pressure went down fairly soon after we quit pushing on my "butt nugget" LOL I did have a caregiver take a pic about a year ago and I about croaked! OMG - I can't imagine what it looks like now. My gynecologist described mine as cauliflower but he saw it hours after it retreated J He did not advise surgery at that time as he said it would just come back. What comes out now is blood red and raw - I know,TMI! I don't get dysreflexic often but this is 2nd time in 8 months that once I do...my body is hypersensitive and just getting in bed last night made me have a pounding headache. How long after surgery was it before you were able to do bowel program and sit on a shower chair? From: Patricia Brown-Tulee [mailto:pl...@yahoo.com] Sent: Sunday, February 02, 2014 4:18 PM To: nichole rohling Subject: Re: [QUAD-L] Diverting Colonoscopy I had my "butt nugget" [we call it] removed over 5 yrs ago & it came back, turning into a "cauliflower" which my husband thinks I need to have it removed again & I don't want to. Hopefully, yours is different. I had no problem w/ recovery. They did have to clean me out more before, which had me postpone surgery & kept me in hospital for a few days. I never had blood pressure problems that stayed high because of it, so we are different there & might possibly be talking about something different. The "diagnosing doctor" did think it was worse than the surgeon for I was told I needed some part of my intestine removed, which the surgeon did not. Then again, maybe that's why it came back. (I'ld compare pictures of our butts, but that'ld be weird). Oh, & I never did a colostomy. Patricia pl...@yahoo.com while adding years to your life, add life to your years On Sunday, February 2, 2014 11:58 AM, nichole rohling wrote: I remember someone posting not too long ago (few months) about getting a colostomy and said they'd never go back. I have been putting off going to a rectal surgeon for 2 years. My rear is prolapsing and after sitting on my shower chair for at least an hour doing bowel program and even just to take a shower my caregivers just push it back where it belongs and this has worked for a long time UNTIL YESTERDAY. My blood pressure shot up while pushing it back in. By the time we could get batteries in my blood pressure cuff my headache was not nearly as bad and my bp was 191/123. I did the same thing today. I am scared about recovery from fixing my rear and would guess at least a temporary colostomy would be done. Would love any advice and would love to hear personal experience regarding it. Nicki -Original Message- From: gentr...@yahoo.com [mailto:gentr...@yahoo.com] Sent: Saturday, February 01, 2014 9:17 PM To: Gmail Cc: Aaron Mann; quad-list Subject: Re: [QUAD-L] Diverting Colonoscopy My bf quad since 1992. Got a colostomy in 2009. Went to hospital via ambulance for severe pain and AD while doing BM. Had no choice but to get colostomy. They told him it could be reversed after he healed. But after he healed, it has been a blessing. He can empty it himself. And we only have to change the bag every 3 days. Yes, we there has been accidents but no more or less than without the colostomy. And NO bowel program to do! Sent from my iPhone > On Feb 1, 2014, at 9:09 PM, Gmail wrote: > > Aaron, >Sorry to hear you need another skin flap. I don't have a colonoscopy but did go through urinary diversion surgery. Let me be completely honest with you. The surgery for the urostomy was the hardest surgery I ever experienced in my entire life. The recovery was insane! I spent 10 long hard days in the hospital then eight weeks at home barely moving. Now that I do have it I love it, I would recommend having a Urostomy but not going through the surgery if you know what I mean. > We Quads go through so very much that it is insane! You could never, ever describe what we go through physically, mentally and emotionally. I personally would say do not go through the colonoscopy. I just feel that this test in particular is just being prescribed like aspirin. > I am not a person that likes to go "disease hunting" or have procedures done to look for trouble, as it were. > It's your body, you decide. > Bobbie > >> On Feb 1, 2014, at 9:40 PM, Aaron Mann wrote: >> >> I'm about to have flap surgery for the third time on my butt in 25 years. (Surgery is required due to an infection on the bone.) The plastic surgeon I'm seeing says that he HIGHLY recommends getting a diverting colonoscopy at the same time. I mean he's REALLY pushing to get this done. His reasons seem valid: more control over BP, no chance of mess getting on any future wounds. But, this is a big deal to me. I've always been told "Never go under the knife unless necessary". I'
RE: [QUAD-L] Diverting Colonoscopy
I remember someone posting not too long ago (few months) about getting a colostomy and said they'd never go back. I have been putting off going to a rectal surgeon for 2 years. My rear is prolapsing and after sitting on my shower chair for at least an hour doing bowel program and even just to take a shower my caregivers just push it back where it belongs and this has worked for a long time UNTIL YESTERDAY. My blood pressure shot up while pushing it back in. By the time we could get batteries in my blood pressure cuff my headache was not nearly as bad and my bp was 191/123. I did the same thing today. I am scared about recovery from fixing my rear and would guess at least a temporary colostomy would be done. Would love any advice and would love to hear personal experience regarding it. Nicki -Original Message- From: gentr...@yahoo.com [mailto:gentr...@yahoo.com] Sent: Saturday, February 01, 2014 9:17 PM To: Gmail Cc: Aaron Mann; quad-list Subject: Re: [QUAD-L] Diverting Colonoscopy My bf quad since 1992. Got a colostomy in 2009. Went to hospital via ambulance for severe pain and AD while doing BM. Had no choice but to get colostomy. They told him it could be reversed after he healed. But after he healed, it has been a blessing. He can empty it himself. And we only have to change the bag every 3 days. Yes, we there has been accidents but no more or less than without the colostomy. And NO bowel program to do! Sent from my iPhone > On Feb 1, 2014, at 9:09 PM, Gmail wrote: > > Aaron, >Sorry to hear you need another skin flap. I don't have a colonoscopy but did go through urinary diversion surgery. Let me be completely honest with you. The surgery for the urostomy was the hardest surgery I ever experienced in my entire life. The recovery was insane! I spent 10 long hard days in the hospital then eight weeks at home barely moving. Now that I do have it I love it, I would recommend having a Urostomy but not going through the surgery if you know what I mean. > We Quads go through so very much that it is insane! You could never, ever describe what we go through physically, mentally and emotionally. I personally would say do not go through the colonoscopy. I just feel that this test in particular is just being prescribed like aspirin. > I am not a person that likes to go "disease hunting" or have procedures done to look for trouble, as it were. > It's your body, you decide. > Bobbie > >> On Feb 1, 2014, at 9:40 PM, Aaron Mann wrote: >> >> I'm about to have flap surgery for the third time on my butt in 25 years. (Surgery is required due to an infection on the bone.) The plastic surgeon I'm seeing says that he HIGHLY recommends getting a diverting colonoscopy at the same time. I mean he's REALLY pushing to get this done. His reasons seem valid: more control over BP, no chance of mess getting on any future wounds. But, this is a big deal to me. I've always been told "Never go under the knife unless necessary". I'm not having issues bowel-wise, so... >> >> Have any of you experienced this opinion or currently have a diverted colon that can speak on the wisdom of voluntarily having this done. >> >> Aaron Mann >
Re: [QUAD-L] Diverting Colonoscopy
What level of injury was your bf? What did they find wrong with him to made them want to do a colostomy? Ron From: "gentr...@yahoo.com" To: Gmail Cc: Aaron Mann ; quad-list Sent: Saturday, February 1, 2014 9:17 PM Subject: Re: [QUAD-L] Diverting Colonoscopy My bf quad since 1992. Got a colostomy in 2009. Went to hospital via ambulance for severe pain and AD while doing BM. Had no choice but to get colostomy. They told him it could be reversed after he healed. But after he healed, it has been a blessing. He can empty it himself. And we only have to change the bag every 3 days. Yes, we there has been accidents but no more or less than without the colostomy. And NO bowel program to do! Sent from my iPhone > On Feb 1, 2014, at 9:09 PM, Gmail wrote: > > Aaron, > Sorry to hear you need another skin flap. I don't have a colonoscopy >but did go through urinary diversion surgery. Let me be completely honest with >you. The surgery for the urostomy was the hardest surgery I ever experienced >in my entire life. The recovery was insane! I spent 10 long hard days in the >hospital then eight weeks at home barely moving. Now that I do have it I love >it, I would recommend having a Urostomy but not going through the surgery if >you know what I mean. > We Quads go through so very much that it is insane! You could never, ever > describe what we go through physically, mentally and emotionally. I > personally would say do not go through the colonoscopy. I just feel that this > test in particular is just being prescribed like aspirin. > I am not a person that likes to go "disease hunting" or have procedures done > to look for trouble, as it were. > It's your body, you decide. > Bobbie > >> On Feb 1, 2014, at 9:40 PM, Aaron Mann wrote: >> >> I'm about to have flap surgery for the third time on my butt in 25 years. >> (Surgery is required due to an infection on the bone.) The plastic surgeon >> I'm seeing says that he HIGHLY recommends getting a diverting colonoscopy at >> the same time. I mean he's REALLY pushing to get this done. His reasons >> seem valid: more control over BP, no chance of mess getting on any future >> wounds. But, this is a big deal to me. I've always been told "Never go >> under the knife unless necessary". I'm not having issues bowel-wise, so... >> >> Have any of you experienced this opinion or currently have a diverted colon >> that can speak on the wisdom of voluntarily having this done. >> >> Aaron Mann >
Re: [QUAD-L] Diverting Colonoscopy
My bf quad since 1992. Got a colostomy in 2009. Went to hospital via ambulance for severe pain and AD while doing BM. Had no choice but to get colostomy. They told him it could be reversed after he healed. But after he healed, it has been a blessing. He can empty it himself. And we only have to change the bag every 3 days. Yes, we there has been accidents but no more or less than without the colostomy. And NO bowel program to do! Sent from my iPhone > On Feb 1, 2014, at 9:09 PM, Gmail wrote: > > Aaron, >Sorry to hear you need another skin flap. I don't have a colonoscopy > but did go through urinary diversion surgery. Let me be completely honest > with you. The surgery for the urostomy was the hardest surgery I ever > experienced in my entire life. The recovery was insane! I spent 10 long hard > days in the hospital then eight weeks at home barely moving. Now that I do > have it I love it, I would recommend having a Urostomy but not going through > the surgery if you know what I mean. > We Quads go through so very much that it is insane! You could never, ever > describe what we go through physically, mentally and emotionally. I > personally would say do not go through the colonoscopy. I just feel that this > test in particular is just being prescribed like aspirin. > I am not a person that likes to go "disease hunting" or have procedures done > to look for trouble, as it were. > It's your body, you decide. > Bobbie > >> On Feb 1, 2014, at 9:40 PM, Aaron Mann wrote: >> >> I'm about to have flap surgery for the third time on my butt in 25 years. >> (Surgery is required due to an infection on the bone.) The plastic surgeon >> I'm seeing says that he HIGHLY recommends getting a diverting colonoscopy at >> the same time. I mean he's REALLY pushing to get this done. His reasons >> seem valid: more control over BP, no chance of mess getting on any future >> wounds. But, this is a big deal to me. I've always been told "Never go >> under the knife unless necessary". I'm not having issues bowel-wise, so... >> >> Have any of you experienced this opinion or currently have a diverted colon >> that can speak on the wisdom of voluntarily having this done. >> >> Aaron Mann >
Re: [QUAD-L] Diverting Colonoscopy
Aaron, Sorry to hear you need another skin flap. I don't have a colonoscopy but did go through urinary diversion surgery. Let me be completely honest with you. The surgery for the urostomy was the hardest surgery I ever experienced in my entire life. The recovery was insane! I spent 10 long hard days in the hospital then eight weeks at home barely moving. Now that I do have it I love it, I would recommend having a Urostomy but not going through the surgery if you know what I mean. We Quads go through so very much that it is insane! You could never, ever describe what we go through physically, mentally and emotionally. I personally would say do not go through the colonoscopy. I just feel that this test in particular is just being prescribed like aspirin. I am not a person that likes to go "disease hunting" or have procedures done to look for trouble, as it were. It's your body, you decide. Bobbie > On Feb 1, 2014, at 9:40 PM, Aaron Mann wrote: > > I'm about to have flap surgery for the third time on my butt in 25 years. > (Surgery is required due to an infection on the bone.) The plastic surgeon > I'm seeing says that he HIGHLY recommends getting a diverting colonoscopy at > the same time. I mean he's REALLY pushing to get this done. His reasons > seem valid: more control over BP, no chance of mess getting on any future > wounds. But, this is a big deal to me. I've always been told "Never go > under the knife unless necessary". I'm not having issues bowel-wise, so... > > Have any of you experienced this opinion or currently have a diverted colon > that can speak on the wisdom of voluntarily having this done. > > Aaron Mann
[QUAD-L] Diverting Colonoscopy
I'm about to have flap surgery for the third time on my butt in 25 years. (Surgery is required due to an infection on the bone.) The plastic surgeon I'm seeing says that he HIGHLY recommends getting a diverting colonoscopy at the same time. I mean he's REALLY pushing to get this done. His reasons seem valid: more control over BP, no chance of mess getting on any future wounds. But, this is a big deal to me. I've always been told "Never go under the knife unless necessary". I'm not having issues bowel-wise, so... Have any of you experienced this opinion or currently have a diverted colon that can speak on the wisdom of voluntarily having this done. Aaron Mann
