Re: [QUAD-L] Psuedamonas UTI

2007-10-09 Thread Quadius
I have been out with my own UTI for some time and am just getting a chance
to respond to some of the e-mails.
I hope you're able to get over this UTI pretty quickly.  I agree with Lori
that you need to look for another position ASAP.  A doctor that waits that
long to respond to something as serious as what you have is either
incompetent or seriously negligent.

Take care and hopefully you will be able to go on your vacation.
Quadius


On 10/3/07, Danny Hearn [EMAIL PROTECTED] wrote:

 HI, LorI,   Yes we have had a lot of uti problems last few years. While
 you were off the list or unable to respond---I wrote about how I also had
 my 1st bladder stone removed just this past Febuary, it was large about a
 golf ball size, So I don't know what is causing my infections now...I was
 hoping after that things would go well for a long time. The Lab my insurance
 uses is INCOMPETENT !  always throwing my culture out saying ( more than 1
 organism ) So last week I made them write MUST TEST FOR ALL
 ORGANISMS...because I have a supra pubic catheter and ALWAYS have more than
 1 .  This time they did it correct and found out yesterday it is
 Pseudamonas..I called 1st thing this morn but still have not heard from
 my Urologist as to what to do?  The other 2 times in years past he told me
 wait and see what happens, and  both times I was  rushed to the emergency
 with Autonomic Dysreflexia feeling like I was gonna die...Also my
 bloodstream was infected and my white blood cells were almost gone, I was so
 weak I could hardly sit up.  I'm so confused NOW--I don't know if I should
 wait or if It can possibly get better OR will the past repeat.?  We changed
 my catheter today and flushed with acetic acid..my wife stayed home from
 work to help do all this. To tpo it all off---We had a vacation to Branson
 Mo, planned with family members for 4 day's the 20th to 24th of this month!
 My wife and other family had this scheduled for a year...I sure hope I don't
 cause it to be messed up. Oh well such is life...I hope this will work out
 soon.   Take care and thanks for all the advice from all you on the
 list.!Dan H.

 *Lori Michaelson [EMAIL PROTECTED]* wrote:


 Hi Danny,

 You and I have been talking (around 2 years now?) about the chronic UTIs
 that we both have
 been plagued with.  But it seems like you have not had very good luck with
 competent doctors.
 *Neither have I *but I finally found out that the culprit were those
 very big, big bladder stones
 that had been sitting in growing in my bladder *for years and kept
 growing.*
  Anyway, you said that you have had a bad UTI for a month now!  If it is
 bad then I must assume
 it has gone systemic and you have been running a fever with severe chills
 for a whole month?
 Something does not sound right.  Not to mention being extremely
 dangerous!!!  In other words...
 what the F***? have you or the doctors than waiting on/for?  After a whole
 month... you just
 got urine culture results today which only take three days (on the
 outside)?

 Just before, and after, having my bladder stones removed a year ago this
 past May...
 the bug that came after me twice in 2 months was Pseudomonas.  It is one
 of the worst ones and both times
 I had to be treated with IV antibiotics via a PICC line at home.
 Again, you and I have discussed these ongoing UTIs both on list and off
 list.  There must
 be some source, or culprit, causing your chronic infections.  Mine was
 bladder stones
 but it has to be a process of elimination kind of deal.  And only you know
 your body best!
 You already know that I have had repeated serious UTIs such as
 Pseudomonas.
 Yes, it is very depressing not to mention life-threatening.  And going
 through an entire month
 ... how in the world did you let it go that long if it WAS so BAD?  My
 fevers that bad really quick
 and I thought I would die before ibuprofen in some sort of antibiotic
 began kicking in.
 Then finding out that Pseudomonas has been growing in there the whole
 time?  I would
 began to think that your urologist OR even your regular physician... sits
 around reading
 comic books rather than trying to help you!
 As far as how many times one can use the IV drugs before the bug gets
 resistant to them
 it is really academic if you NEED them anyway.  My greatest fear with all
 my troubles ALSO
 was the fear that the bugs were growing more and more resistant.  After
 all...
 when you have to resort to IV antibiotics... that is scary enough!  There
 is nothing left to resort to.
 This is what leads me to think that your position does not give a rat's
 ass about your well-being.
 How you describe it... this is dead serious and something not to just
 brush off again and again.

 Also, like I have told you so many times... you might need to travel to
 get a better urologist
 and one really cares about your well-being!  This quack that you keep
 going to has not
 been very helpful... has he?  Therefore, because these 

Re: [QUAD-L] Psuedamonas UTI

2007-10-09 Thread Quadius
I know Lori I'm really late responding to this, but I am just getting back
on my feet again (so to speak).

I have been suffering from a UTI which has had me pretty much paralyzed (get
it?  Paralyzed!  Is everyone laughing? sadly probably not.)  For much of the
last week.  Last year I suffered from three UTIs myself and I found that be
multiple stones I had a my bladder were causing the repeated infections.
This is the first UTI I have had in quite some time that I wasn't able to
get under control myself.  It really threw me for a loop and I am just
thankful I didn't require IV medications to get this thing under control.
However, I'm not totally out of the woods yet.  I'm still pretty weak,
beginning stronger.

Everyone has written on here about how to get the pH balance down, so I
won't go into that again, but I have noticed since I have been able to get
mine down I have had virtually no sediment in my urine and therefore have
required less frequent catheter changes.  Although, my doctor just told me I
definitely shouldn't be going a month without changing the catheter.  I had
always heard it was common in most cases to go a month without changing a SP
catheter.

Stacy,
I am so sorry you're going through all of these trials and tribulations.  I
have been having difficulty with my bowels since I took an antibiotic in
June.  I occasionally get everything under control with the use of
probiotics and dieting, but seems like any little thing would throw me off.
Ironically my bowels have been feeling wonderful since I started taking
Cipro for this UTI.  I am now starting to suspect that I probably had some
sort of bad bacteria in my bowels which were causing a lot of the
irritation.

It's good to be back.  I'll talk to you all later.
Quadius


On 10/2/07, Lori Michaelson [EMAIL PROTECTED] wrote:


 Hi Danny,

 You and I have been talking (around 2 years now?) about the chronic UTIs
 that we both have
 been plagued with.  But it seems like you have not had very good luck with
 competent doctors.
 *Neither have I *but I finally found out that the culprit were those
 very big, big bladder stones
 that had been sitting in growing in my bladder *for years and kept
 growing.*

 Anyway, you said that you have had a bad UTI for a month now!  If it is
 bad then I must assume
 it has gone systemic and you have been running a fever with severe chills
 for a whole month?
 Something does not sound right.  Not to mention being extremely
 dangerous!!!  In other words...

 what the F***? have you or the doctors than waiting on/for?  After a whole
 month... you just
 got urine culture results today which only take three days (on the
 outside)?

 Just before, and after, having my bladder stones removed a year ago this
 past May...
 the bug that came after me twice in 2 months was Pseudomonas.  It is one
 of the worst ones and both times
 I had to be treated with IV antibiotics via a PICC line at home.

 Again, you and I have discussed these ongoing UTIs both on list and off
 list.  There must
 be some source, or culprit, causing your chronic infections.  Mine was
 bladder stones
 but it has to be a process of elimination kind of deal.  And only you know
 your body best!

 You already know that I have had repeated serious UTIs such as
 Pseudomonas.
 Yes, it is very depressing not to mention life-threatening.  And going
 through an entire month
 ... how in the world did you let it go that long if it WAS so BAD?  My
 fevers that bad really quick
 and I thought I would die before ibuprofen in some sort of antibiotic
 began kicking in.

 Then finding out that Pseudomonas has been growing in there the whole
 time?  I would
 began to think that your urologist OR even your regular physician... sits
 around reading
 comic books rather than trying to help you!

 As far as how many times one can use the IV drugs before the bug gets
 resistant to them
 it is really academic if you NEED them anyway.  My greatest fear with all
 my troubles ALSO
 was the fear that the bugs were growing more and more resistant.  After
 all...
 when you have to resort to IV antibiotics... that is scary enough!  There
 is nothing left to resort to.
 This is what leads me to think that your position does not give a rat's
 ass about your well-being.
 How you describe it... this is dead serious and something not to just
 brush off again and again.

 Also, like I have told you so many times... you might need to travel to
 get a better urologist
 and one really cares about your well-being!  This quack that you keep
 going to has not
 been very helpful... has he?  Therefore, because these things can get
 quite serious...
 you better get real proactive real fast.  If I sound like I am yelling at
 you or preaching
 to you... maybe it is because that I care more about you than your doctor
 does!  Tough love
 if you want to call it that. :-)

 I was so upset when I got a Pseudomonas infection AFTER having my bladder
 stones out
 and my doctor was not happy either.  *I* 

Re: [QUAD-L] Psuedamonas UTI

2007-10-09 Thread SCIQuad96
 
Clip Ironically my bowels have been feeling wonderful since I  started 
taking Cipro for this UTI. Clip
 
This happens to me as well. Crazy isn't it?
 
Keith/34/C4-5/NJ-11yrsPost


 



** See what's new at http://www.aol.com


Re: [QUAD-L] Psuedamonas UTI

2007-10-03 Thread Danny Hearn
HI, LorI,   Yes we have had a lot of uti problems last few years. While you 
were off the list or unable to respond---I wrote about how I also had  my 1st 
bladder stone removed just this past Febuary, it was large about a golf ball 
size, So I don't know what is causing my infections now...I was hoping after 
that things would go well for a long time. The Lab my insurance uses is 
INCOMPETENT !  always throwing my culture out saying ( more than 1 organism ) 
So last week I made them write MUST TEST FOR ALL ORGANISMS...because I have a 
supra pubic catheter and ALWAYS have more than 1 .  This time they did it 
correct and found out yesterday it is Pseudamonas..I called 1st thing this 
morn but still have not heard from my Urologist as to what to do?  The other 2 
times in years past he told me wait and see what happens, and  both times I was 
 rushed to the emergency with Autonomic Dysreflexia feeling like I was gonna 
die...Also my bloodstream was infected and my white blood
 cells were almost gone, I was so weak I could hardly sit up.  I'm so confused 
NOW--I don't know if I should wait or if It can possibly get better OR will the 
past repeat.?  We changed my catheter today and flushed with acetic 
acid..my wife stayed home from work to help do all this. To tpo it all 
off---We had a vacation to Branson Mo, planned with family members for 4 day's 
the 20th to 24th of this month! My wife and other family had this scheduled for 
a year...I sure hope I don't cause it to be messed up. Oh well such is life...I 
hope this will work out soon.   Take care and thanks for all the advice 
from all you on the list.!Dan H. 

Lori Michaelson [EMAIL PROTECTED] wrote: 
  Hi Danny,
  
You and I have been talking (around 2 years now?) about the chronic UTIs that 
we both have
been plagued with.  But it seems like you have not had very good luck with 
competent doctors.
Neither have I but I finally found out that the culprit were those very big, 
big bladder stones
that had been sitting in growing in my bladder for years and kept growing.
Anyway, you said that you have had a bad UTI for a month now!  If it is 
bad then I must assume
it has gone systemic and you have been running a fever with severe chills for a 
whole month?
Something does not sound right.  Not to mention being extremely dangerous!!!  
In other words... 
  what the F***? have you or the doctors than waiting on/for?  After a whole 
month... you just
got urine culture results today which only take three days (on the outside)?

  Just before, and after, having my bladder stones removed a year ago this past 
May...
the bug that came after me twice in 2 months was Pseudomonas.  It is one of the 
worst ones and both times
I had to be treated with IV antibiotics via a PICC line at home. 
  Again, you and I have discussed these ongoing UTIs both on list and off list. 
 There must
be some source, or culprit, causing your chronic infections.  Mine was bladder 
stones
but it has to be a process of elimination kind of deal.  And only you know your 
body best! 
  You already know that I have had repeated serious UTIs such as Pseudomonas.
Yes, it is very depressing not to mention life-threatening.  And going through 
an entire month
... how in the world did you let it go that long if it WAS so BAD?  My fevers 
that bad really quick 
and I thought I would die before ibuprofen in some sort of antibiotic began 
kicking in.
  Then finding out that Pseudomonas has been growing in there the whole time?  
I would
began to think that your urologist OR even your regular physician... sits 
around reading
comic books rather than trying to help you! 
  As far as how many times one can use the IV drugs before the bug gets 
resistant to them
it is really academic if you NEED them anyway.  My greatest fear with all my 
troubles ALSO
was the fear that the bugs were growing more and more resistant.  After all... 
when you have to resort to IV antibiotics... that is scary enough!  There is 
nothing left to resort to.
This is what leads me to think that your position does not give a rat's ass 
about your well-being.
How you describe it... this is dead serious and something not to just brush off 
again and again. 

  Also, like I have told you so many times... you might need to travel to get a 
better urologist
and one really cares about your well-being!  This quack that you keep going to 
has not
been very helpful... has he?  Therefore, because these things can get quite 
serious... 
you better get real proactive real fast.  If I sound like I am yelling at you 
or preaching
to you... maybe it is because that I care more about you than your doctor does! 
 Tough love
if you want to call it that. :-)  
  I was so upset when I got a Pseudomonas infection AFTER having my bladder 
stones out
and my doctor was not happy either.  *I* finally found the answer on the 
Internet.  To be brief...
I found out that by me eating a banana a day... that amount 

Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Stacy Harim
I've had uti's and have had to take iv drugs bc the only med by mouth would 
interfere with my current meds.  I just do them at home.  I have another uti bc 
of the accidents from the antibiotic I'm on.  I tried the acidophilus and it 
isn't helping.  I even took extra pills and still didnt help. I'm sick of the 
repeated accidents and infections bc of them.  One would think it would 
counteract itself since it is a powerful broad spectrum antibiotic but nope.

I hope things getting better for you,
Stacy


- Original Message 
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Tuesday, October 2, 2007 1:56:21 PM
Subject: [QUAD-L] Psuedamonas UTI


Hi all...I have had a bad UTI for a month now, I just got the results of a 
Urine Culture today, and they told me I have psuedamonas bacteria infection and 
are going to contact my Urologist because only I.V. drugs can fight it. Since 
i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd ) time 
i've had this type bacteria, that will probably require I.V. drugs once again. 
It is very depressing, Has anyone else had repeated serious UTI's such as 
Psuedamonas??? We are wondering how many times one can use the I.V. drugs for 
this before getting resistant to them...I don't know what options there 
are..I will ask my Uro Doctor but he seems to not know a lot on the subject.
  Thanks,  Dan H.


   

Got a little couch potato? 
Check out fun summer activities for kids.
http://search.yahoo.com/search?fr=oni_on_mailp=summer+activities+for+kidscs=bz
 

RE: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Elizabeth Treston
Try and look at www.sciwire.com as the nurse maybe able to answer your
question,

  _  

From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, October 02, 2007 1:56 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Psuedamonas UTI


Hi all...I have had a bad UTI for a month now, I just got the results of
a Urine Culture today, and they told me I have psuedamonas bacteria
infection and are going to contact my Urologist because only I.V. drugs can
fight it. Since i've had a supra-pubic catheter put in 7 years ago --- this
is the ( 3rd ) time i've had this type bacteria, that will probably require
I.V. drugs once again. It is very depressing, Has anyone else had repeated
serious UTI's such as Psuedamonas??? We are wondering how many times one can
use the I.V. drugs for this before getting resistant to them...I don't
know what options there are..I will ask my Uro Doctor but he seems to not
know a lot on the subject.  Thanks,  Dan H.


Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread KK
Stacy, acidophilus will do nothing for the infection.  It is to replace the good
bacteria that the antibiotics is killing off along with the bad bacteria.


KK

Remember: life is like a roll of toilet paper. 
The closer it gets to the end, the faster it goes...



Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Danny Hearn
Hope you get better soon  also Stacy,  this quad life can get us down at times, 
but all we can do if fight and take it one day at a time and hope to get thru 
our current struggles and back to better days.
Dan H.

Stacy Harim [EMAIL PROTECTED] wrote:  I've had uti's and have had to 
take iv drugs bc the only med by mouth would interfere with my current meds.  I 
just do them at home.  I have another uti bc of the accidents from the 
antibiotic I'm on.  I tried the acidophilus and it isn't helping.  I even took 
extra pills and still didnt help. I'm sick of the repeated accidents and 
infections bc of them.  One would think it would counteract itself since it is 
a powerful broad spectrum antibiotic but nope.
   
  I hope things getting better for you,
  Stacy


  - Original Message 
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Tuesday, October 2, 2007 1:56:21 PM
Subject: [QUAD-L] Psuedamonas UTI

  Hi all...I have had a bad UTI for a month now, I just got the results of 
a Urine Culture today, and they told me I have psuedamonas bacteria infection 
and are going to contact my Urologist because only I.V. drugs can fight it. 
Since i've had a supra-pubic catheter put in 7 years ago --- this is the ( 3rd 
) time i've had this type bacteria, that will probably require I.V. drugs once 
again. It is very depressing, Has anyone else had repeated serious UTI's such 
as Psuedamonas??? We are wondering how many times one can use the I.V. drugs 
for this before getting resistant to them...I don't know what options there 
are..I will ask my Uro Doctor but he seems to not know a lot on the subject.
  Thanks,  Dan H.

  



  
-
  Need a vacation? Get great deals to amazing places on Yahoo! Travel. 


Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Lori Michaelson
Hi Danny,

You and I have been talking (around 2 years now?) about the chronic UTIs
that we both have
been plagued with.  But it seems like you have not had very good luck with
competent doctors.
*Neither have I* but I finally found out that the culprit were those very
big, big bladder stones
that had been sitting in growing in my bladder *for years and kept growing.*

Anyway, you said that you have had a bad UTI for a month now!  If it is
bad then I must assume
it has gone systemic and you have been running a fever with severe chills
for a whole month?
Something does not sound right.  Not to mention being extremely
dangerous!!!  In other words...

what the F***? have you or the doctors than waiting on/for?  After a whole
month... you just
got urine culture results today which only take three days (on the outside)?

Just before, and after, having my bladder stones removed a year ago this
past May...
the bug that came after me twice in 2 months was Pseudomonas.  It is one of
the worst ones and both times
I had to be treated with IV antibiotics via a PICC line at home.

Again, you and I have discussed these ongoing UTIs both on list and off
list.  There must
be some source, or culprit, causing your chronic infections.  Mine was
bladder stones
but it has to be a process of elimination kind of deal.  And only you know
your body best!

You already know that I have had repeated serious UTIs such as Pseudomonas.
Yes, it is very depressing not to mention life-threatening.  And going
through an entire month
... how in the world did you let it go that long if it WAS so BAD?  My
fevers that bad really quick
and I thought I would die before ibuprofen in some sort of antibiotic began
kicking in.

Then finding out that Pseudomonas has been growing in there the whole time?
I would
began to think that your urologist OR even your regular physician... sits
around reading
comic books rather than trying to help you!

As far as how many times one can use the IV drugs before the bug gets
resistant to them
it is really academic if you NEED them anyway.  My greatest fear with all my
troubles ALSO
was the fear that the bugs were growing more and more resistant.  After
all...
when you have to resort to IV antibiotics... that is scary enough!  There is
nothing left to resort to.
This is what leads me to think that your position does not give a rat's ass
about your well-being.
How you describe it... this is dead serious and something not to just brush
off again and again.

Also, like I have told you so many times... you might need to travel to get
a better urologist
and one really cares about your well-being!  This quack that you keep going
to has not
been very helpful... has he?  Therefore, because these things can get quite
serious...
you better get real proactive real fast.  If I sound like I am yelling at
you or preaching
to you... maybe it is because that I care more about you than your doctor
does!  Tough love
if you want to call it that. :-)

I was so upset when I got a Pseudomonas infection AFTER having my bladder
stones out
and my doctor was not happy either.  *I* finally found the answer on the
Internet.  To be brief...
I found out that by me eating a banana a day... that amount of potassium was
severely
altering the pH of my urine.  It was staying too alkaline (7.5 or more) when
it should be
much more acidic to keep the bugs away (ideally a pH of 6).

After I stopped eating bananas... wala!  I have not had an infection since!
Who would have
ever thought?  My doctor was unsure why we could not get my pH number lower
even by
taking cranberry capsules, drinking cranberry juice and other acidic juices.

She (my Urologist) was pretty impressed that I was able to find out the
information that I did.  My body
was not going to be able to take many more infections and the bugs were just
getting stronger
and stronger and that would ultimately lead to my demise.

That is the second time the Internet information has saved my life.

Anyway, Danny... please heed my advice to go get a damn new doctor!  Also,
have your
pH checked if you have not already.  If your urologist is competent, as well
as the
medical technicians who tested your urine, they should be able to provide
you
with what your last pH was during the culture.  Just call and ask because it
is usually part of the lab report.

If not... insist on finding out even if you have to give them a new specimen
and ask for that specifically.

Good luck buddy!

Lori Michaelson
C4/5 complete quad, 27 years post
Tucson, AZ



On 10/2/07, Danny Hearn [EMAIL PROTECTED] wrote:

 *Hi all...I have had a bad UTI for a month now, I just got the results
 of a Urine Culture today, and they told me I have psuedamonas bacteria
 infection and are going to contact my Urologist because only I.V. drugs
 can fight it. Since i've had a supra-pubic catheter put in 7 years ago ---
 this is the ( 3rd ) time i've had this type bacteria, that will probably
 require I.V. drugs once again. It is very 

Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Lori Michaelson
In my previous email... there were a bunch of Dragon typos/errors I hope you
can tread through.  I shoulda proofread but was in a hurry.  It typed
position instead of physician and in instead of and, etc, etc.

I apologize for my haste.

Lor  :-)


On 10/2/07, Danny Hearn [EMAIL PROTECTED] wrote:

 *Hi all...I have had a bad UTI for a month now, I just got the results
 of a Urine Culture today, and they told me I have psuedamonas bacteria
 infection and are going to contact my Urologist because only I.V. drugs
 can fight it. Since i've had a supra-pubic catheter put in 7 years ago ---
 this is the ( 3rd ) time i've had this type bacteria, that will probably
 require I.V. drugs once again. It is very depressing, Has anyone else had
 repeated serious UTI's such as Psuedamonas??? We are wondering how many
 times one can use the I.V. drugs for this before getting resistant to
 them...I don't know what options there are..I will ask my Uro Doctor but
 he seems to not know a lot on the subject.  Thanks,  Dan H.*



Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Oconnelldb
 
 
You are a pretty good detective Lori,  I salute your  efforts and successes.  
I had about 6 utis last year, 3 of them requiring  hospitalization and fancy 
new (to me) drugs Zosyn and _Vancomyosin_ 
(http://www.jci.org/cgi/reprint/114/9/1181.pdf)  , and  finally in November I 
told the doc to remove what I 
thought was the offending  part.  I had been using a condom catheter since 1967 
and 
figured it was  doing me just fine even tho it allowed me to retain about 300 
cc in my  bladder.  I was sure foleys were a much bigger possibility for 
introducing  utis into my system.  Now since my _orchiectomy_ 
(http://www.beavercleaver.net/orchiectomy_slides.htm)  and  the use of a foley 
(a bunch of them 
actually) since 11-2007, I have had only 1  or 2 minor utis. I now seem to be 
noticing cleaner output since using collidal  silver, alka seltzer, and vinegar 
some great home remedies for _Bladder  Infections_ 
(http://www.otan.dni.us/webfarm/emailproject/bladder.htm)  .
Dave
 
 
 
In a message dated 10/2/2007 12:52:42 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
Hi Danny,

You and I have been talking (around 2 years now?) about the chronic  UTIs 
that we both have
been plagued with.  But it seems like you have  not had very good luck with 
competent doctors.
Neither have I  but I finally found out that the culprit were those very 
big,  big bladder stones
that had been sitting in growing in my bladder  for years and kept growing.
 
Anyway, you said that you have had a bad UTI for a month now!  If it  is 
bad then I must assume
it has gone systemic and you have been running  a fever with severe chills 
for a whole month?
Something does not sound  right.  Not to mention being extremely dangerous!!! 
 In other  words...  
what the F***? have you or the doctors than waiting on/for?  After a  whole 
month... you just
got urine culture results today which only take  three days (on the outside)?
Just before, and after, having my bladder stones removed a year ago this  
past May...
the bug that came after me twice in 2 months was  Pseudomonas.  It is one of 
the worst ones and both times
I had to be  treated with IV antibiotics via a PICC line at home.  
Again, you and I have discussed these ongoing UTIs both on list and off  
list.  There must
be some source, or culprit, causing your chronic  infections.  Mine was 
bladder stones
but it has to be a process of  elimination kind of deal.  And only you know 
your body best!  
You already know that I have had repeated serious UTIs such as  Pseudomonas.
Yes, it is very depressing not to mention  life-threatening.  And going 
through an entire month
... how in the  world did you let it go that long if it WAS so BAD?  My 
fevers that  bad really quick 
and I thought I would die before ibuprofen in some sort  of antibiotic began 
kicking in. 
Then finding out that Pseudomonas has been growing in there the whole  time?  
I would
began to think that your urologist OR even your  regular physician... sits 
around reading
comic books rather than trying to  help you!  
As far as how many times one can use the IV drugs before the bug gets  
resistant to them
it is really academic if you NEED them anyway.  My  greatest fear with all my 
troubles ALSO
was the fear that the bugs were  growing more and more resistant.  After 
all... 
when you have to  resort to IV antibiotics... that is scary enough!  There is 
nothing left  to resort to.
This is what leads me to think that your position does not  give a rat's ass 
about your well-being.
How you describe it... this is dead  serious and something not to just brush 
off again and again. 
Also, like I have told you so many times... you might need to travel to get  
a better urologist
and one really cares about your well-being!  This  quack that you keep going 
to has not
been very helpful... has he?   Therefore, because these things can get quite 
serious... 
you better get  real proactive real fast.  If I sound like I am yelling at 
you or  preaching
to you... maybe it is because that I care more about you than  your doctor 
does!  Tough love
if you want to call it that. :-)
I was so upset when I got a Pseudomonas infection AFTER having my bladder  
stones out
and my doctor was not happy either.  *I* finally found the  answer on the 
Internet.  To be brief...
I found out that by me eating  a banana a day... that amount of potassium was 
severely 
altering the pH of  my urine.  It was staying too alkaline (7.5 or more) when 
it should  be
much more acidic to keep the bugs away (ideally a pH of 6). 
After I stopped eating bananas... wala!  I have not had an infection  since!  
Who would have
ever thought?  My doctor was unsure why we  could not get my pH number lower 
even by
taking cranberry capsules,  drinking cranberry juice and other acidic juices. 
 
She (my Urologist) was pretty impressed that I was able to find out  the 
information that I did.  My body
was not going to be able to take  many more 

Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Lori Michaelson
I always hesitate to write a long e-mail and diatribe but is sometimes to
get all the information
across... it has to be done that way.

Yes... the one IV antibiotic that was used on me for was Zosyn as well.  I
think for Proteus.
Vancomycin has been around for approximately 10 years.

So many doctors as well as the spinal cord injured population hold by their
statements
that indwelling Foley catheters are more opportunistic for bacteria.  But I
have to disagree.
For the first 20 years of my injury within indwelling catheter... I only had
about four or five
UTIs.  The doctors were always so surprised.

It wasn't until I had boulders in my bladder that I began to have problems.

In the near future I will write about lab technicians and lazy ones and how
we can suffer from their
laziness.  It occurs so frequently that if patients really knew what was
going on in the laboratories
they surely would not be paying for doctors or medical anything!

Lori Michaelson
C4/5 complete quad, 27 years post
Tucson, AZ


On 10/2/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:

   You are a pretty good detective Lori,  I salute your efforts and
 successes.  I had about 6 utis last year, 3 of them requiring
 hospitalization and fancy new (to me) drugs *Zosyn* and 
 Vancomyosinhttp://www.jci.org/cgi/reprint/114/9/1181.pdf, and finally in 
 November I told the doc to remove what I thought was the
 offending part.  I had been using a condom catheter since 1967 and figured
 it was doing me just fine even tho it allowed me to retain about 300 cc in
 my bladder.  I was sure foleys were a much bigger possibility for
 introducing utis into my system.  Now since my 
 orchiectomyhttp://www.beavercleaver.net/orchiectomy_slides.htmand the use 
 of a foley (a bunch of them actually) since 11-2007, I have had
 only 1 or 2 minor utis. I now seem to be noticing cleaner output since using
 collidal silver, alka seltzer, and vinegar some great home remedies for 
 Bladder
 Infections http://www.otan.dni.us/webfarm/emailproject/bladder.htm .
 Dave




Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Bill Jenkins
Quoting the website:
No Scalpel Vasectomy

by Beaver Cleaver D.C.

  Bilateral Orchiectomy Procedure

This procedure has the potential of adding 14 years to the average male life 
expectancy by significantly reducing the risk for prostate cancer and totally 
reducing the risk of testicular cancers.  (however professional body builders 
using this technique in conjunction with steroid therapy for the purpose of 
body sculpting, are at somewhat greater risk to develop prostate cancers 
because of the increased hormone levels being introduced).

No scalpel?  What were the 2cm incisions made with.

Beaver Cleaver D.C.?  You're putting me on!

Bill
C6 Incomplete since 7/20/68
Age 57
Leesburg, FL
Red ship crashes into blue ship - sailors marooned.
  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Tuesday, October 02, 2007 5:24 PM
  Subject: Re: [QUAD-L] Psuedamonas UTI


  You are a pretty good detective Lori,  I salute your efforts and successes.  
I had about 6 utis last year, 3 of them requiring hospitalization and fancy new 
(to me) drugs Zosyn and Vancomyosin , and finally in November I told the doc to 
remove what I thought was the offending part.  I had been using a condom 
catheter since 1967 and figured it was doing me just fine even tho it allowed 
me to retain about 300 cc in my bladder.  I was sure foleys were a much bigger 
possibility for introducing utis into my system.  Now since my orchiectomy and 
the use of a foley (a bunch of them actually) since 11-2007, I have had only 1 
or 2 minor utis. I now seem to be noticing cleaner output since using collidal 
silver, alka seltzer, and vinegar some great home remedies for Bladder 
Infections .
  Dave



  In a message dated 10/2/2007 12:52:42 P.M. US Mountain Standard Time, [EMAIL 
PROTECTED] writes:

Hi Danny,

You and I have been talking (around 2 years now?) about the chronic UTIs 
that we both have
been plagued with.  But it seems like you have not had very good luck with 
competent doctors.
Neither have I but I finally found out that the culprit were those very 
big, big bladder stones
that had been sitting in growing in my bladder for years and kept growing.
Anyway, you said that you have had a bad UTI for a month now!  If it is 
bad then I must assume
it has gone systemic and you have been running a fever with severe chills 
for a whole month?
Something does not sound right.  Not to mention being extremely 
dangerous!!!  In other words... 

what the F***? have you or the doctors than waiting on/for?  After a whole 
month... you just
got urine culture results today which only take three days (on the outside)?


Just before, and after, having my bladder stones removed a year ago this 
past May...
the bug that came after me twice in 2 months was Pseudomonas.  It is one of 
the worst ones and both times
I had to be treated with IV antibiotics via a PICC line at home. 

Again, you and I have discussed these ongoing UTIs both on list and off 
list.  There must
be some source, or culprit, causing your chronic infections.  Mine was 
bladder stones
but it has to be a process of elimination kind of deal.  And only you know 
your body best! 

You already know that I have had repeated serious UTIs such as Pseudomonas.
Yes, it is very depressing not to mention life-threatening.  And going 
through an entire month
... how in the world did you let it go that long if it WAS so BAD?  My 
fevers that bad really quick 
and I thought I would die before ibuprofen in some sort of antibiotic began 
kicking in.

Then finding out that Pseudomonas has been growing in there the whole time? 
 I would
began to think that your urologist OR even your regular physician... sits 
around reading
comic books rather than trying to help you! 

As far as how many times one can use the IV drugs before the bug gets 
resistant to them
it is really academic if you NEED them anyway.  My greatest fear with all 
my troubles ALSO
was the fear that the bugs were growing more and more resistant.  After 
all... 
when you have to resort to IV antibiotics... that is scary enough!  There 
is nothing left to resort to.
This is what leads me to think that your position does not give a rat's ass 
about your well-being.
How you describe it... this is dead serious and something not to just brush 
off again and again. 


Also, like I have told you so many times... you might need to travel to get 
a better urologist
and one really cares about your well-being!  This quack that you keep going 
to has not
been very helpful... has he?  Therefore, because these things can get quite 
serious... 
you better get real proactive real fast.  If I sound like I am yelling at 
you or preaching
to you... maybe it is because that I care more about you than your doctor 
does!  Tough love
if you want to call it that. :-)  

I was so

Re: [QUAD-L] Psuedamonas UTI

2007-10-02 Thread Oconnelldb
 
 
I included the link only because it had an explanation and  pictures.  In my 
case i think they actually used a brick and a large  hammer.
Dave
 
In a message dated 10/2/2007 3:29:41 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

Quoting the  website:
No Scalpel  Vasectomy
 
by Beaver Cleaver  D.C.
 
  Bilateral  Orchiectomy Procedure
 
This procedure has the  potential of adding 14 years to the average male life 
expectancy by  significantly reducing the risk for prostate cancer and 
totally reducing the  risk of testicular cancers.  (however professional body 
builders using  this technique in conjunction with steroid therapy for the 
purpose 
of body  sculpting, are at somewhat greater risk to develop prostate cancers 
because of  the increased hormone levels being introduced).
 
No scalpel?  What  were the 2cm incisions made with.
 
Beaver Cleaver  D.C.?  You're putting me on!
 
Bill
C6 Incomplete  since 7/20/68
Age 57
Leesburg, FL
Red ship crashes into blue ship -  sailors marooned.

- Original Message - 
From:  [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED])  
To: [EMAIL PROTECTED] (mailto:quad-list@eskimo.com)  
Sent: Tuesday, October 02, 2007 5:24  PM
Subject: Re: [QUAD-L] Psuedamonas  UTI



 
You are a pretty good detective Lori,  I salute your  efforts and successes.  
I had about 6 utis last year, 3 of them  requiring hospitalization and fancy 
new (to me) drugs Zosyn and _Vancomyosin_ 
(http://www.jci.org/cgi/reprint/114/9/1181.pdf)  , and  finally in November I 
told the doc to remove what I 
thought was the  offending part.  I had been using a condom catheter since 1967 
and  
figured it was doing me just fine even tho it allowed me to retain about 300  
cc in my bladder.  I was sure foleys were a much bigger possibility for  
introducing utis into my system.  Now since my _orchiectomy_ 
(http://www.beavercleaver.net/orchiectomy_slides.htm)   and the use of a foley 
(a bunch of them 
actually) since 11-2007, I have had  only 1 or 2 minor utis. I now seem to be 
noticing cleaner output since using  collidal silver, alka seltzer, and vinegar 
some great home remedies for  _Bladder  Infections_ 
(http://www.otan.dni.us/webfarm/emailproject/bladder.htm)  .
Dave
 
 
 
In a message dated 10/2/2007 12:52:42 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
Hi Danny,

You and I have been talking (around 2 years now?) about the  chronic UTIs 
that we both have
been plagued with.  But it seems  like you have not had very good luck with 
competent  doctors.
Neither have I but I finally found out  that the culprit were those very 
big, big bladder stones
that had  been sitting in growing in my bladder for years and kept  growing.
 
Anyway, you said that you have had a bad UTI for a month now!  If  it is 
bad then I must assume
it has gone systemic and you have been  running a fever with severe chills 
for a whole month?
Something does  not sound right.  Not to mention being extremely dangerous!!! 
  In other words...  
what the F***? have you or the doctors than waiting on/for?  After  a whole 
month... you just
got urine culture results today which only  take three days (on the outside)?
Just before, and after, having my bladder stones removed a year ago  this 
past May...
the bug that came after me twice in 2 months was  Pseudomonas.  It is one of 
the worst ones and both times
I had to  be treated with IV antibiotics via a PICC line at home.  
Again, you and I have discussed these ongoing UTIs both on list and off  
list.  There must
be some source, or culprit, causing your chronic  infections.  Mine was 
bladder stones
but it has to be a process of  elimination kind of deal.  And only you know 
your body best!  
You already know that I have had repeated serious UTIs such as  Pseudomonas.
Yes, it is very depressing not to mention  life-threatening.  And going 
through an entire month
... how in  the world did you let it go that long if it WAS so BAD?  My  
fevers that bad really quick 
and I thought I would die before  ibuprofen in some sort of antibiotic began 
kicking in. 
Then finding out that Pseudomonas has been growing in there the whole  time?  
I would
began to think that your urologist OR even  your regular physician... sits 
around reading
comic books rather than  trying to help you!  
As far as how many times one can use the IV drugs before the bug gets  
resistant to them
it is really academic if you NEED them anyway.   My greatest fear with all my 
troubles ALSO
was the fear that the bugs  were growing more and more resistant.  After 
all... 
when you have  to resort to IV antibiotics... that is scary enough!  There is 
 nothing left to resort to.
This is what leads me to think that your  position does not give a rat's ass 
about your well-being.
How you  describe it... this is dead serious and something not to just brush 
off  again and again. 
Also, like I have told you so many times... you might need to travel to  get 
a better urologist
and one