Re: [QUAD-L] flap surgery
Hi Dana This sore I'm dealing with has been chronic, it started several years ago when a jay gel cushion got hard on one side. Over the years we've maintained it with the help of a very good wound nurse when needed. In Jan. of 2012 I got ostyomiolius (spelling) I spent some time in the hospital had vinomiacyn and pretty much been through the mill. It's getting better slowly. I go to the Kaiser wound clinic once a month to get it checked, then I have an agency nurse that comes once a week for measurements. I few weeks ago I got a new agency nurse that seems to know more about wound care then the one I had. She's already talking to the clinic (which I don't really have much faith in sometimes) when the patient knows more then them about wound care. The charge nurse has just passed her test for her wound care cert. and the rest of them just know how to measure, document and take a pic the redress it the same way it was unless it looks worse or you get on them and ask for a refurral to an outside wound clinic for a second opinion then they decide to try something different. I'm not going to let it kill me, old age well do that. I hope everone else is in good health or at least close to it. Don c5/6 incomp 24 years post. From: daa...@aol.com daa...@aol.com To: scamper2...@att.net; g...@eskimo.com; quad-list@eskimo.com Sent: Friday, July 5, 2013 4:04 PM Subject: Re: [QUAD-L] flap surgery Thank you Don for the information that you will give us through the new mobility. I don't get that magazine for a number of years. Please keep us posted. I know how hard it is to stay in bed I had a similar sort that to six months to heal and I had to go to the wound center every two weeks for care of it. I'm glad you can access your TV in bed. Period. Thank you Don, I'll be thinking of you and praying for you and Greg. Always, Dana In a message dated 7/5/2013 1:19:06 P.M. Central Daylight Time, scamper2...@att.net writes: I'm dealing with an isheal sore and I started using whey isolate protein supplement. It has no or very few carbs and no suger but good protein, I get the chocolate flavor and mix with water, it's not bad but not cheap. I spend 5 or 6 days in bed. between the computer and TV I do OK. There's also an artical I just read in Aprils New Mobility news letter about wound care. I well forward it to you. Don From: greg g...@eskimo.com To: quad-list quad-list@eskimo.com Sent: Thursday, July 4, 2013 3:01 PM Subject: [QUAD-L] flap surgery I talked to my doctor about flap surgery. He said my sore would heal faster if I got it, but I would have to stay in bed 4 to 6 weeks. I am in bed now, but I get up for a couple hours every day. He said it is the twisting and sliding that is the worst for your but after surgery. I worry about doing my B – program, I would have to do it in bed while laying on the wrong side. I don't know if that really makes that much of a difference. But getting cleaned up and changing sheets could be a real problem. But after 4 to 6 weeks I would assume you can't just get up and stay up, you would have to start out slowly and add time each day or week? As for the long-term would it be better for my butt to just let it heal or get the surgery? I know a lot of people here have had flap surgery, would you recommend it? I'm in bed most of the time anyway, it's too darn hot here to go outside anyway. At least for very long. 115° and that's down from a few days ago. One of my main concerns is what if the outside of the wound heals up good, but the inside doesn't connect or heal up. It would be like having bad tunneling going on. At least just letting it heal you can see it heal from the bottom up. I just had a checkup and outside the wound got smaller around, but it was just as deep. Now it is 1.4 cm wide and the tunneling is 1.2 deep. but I don't know if that 1.2 cm is added on to the depth of the wound, or if that is a total. I'll have to ask next time. Greg
Re: [QUAD-L] flap surgery
I had posted the link to the newsletter, hoping it work, and those who don't get it would have a chance to see it and maybe subscribe. Don From: Bob Vogel rhvsh...@pacbell.net To: scamper2...@att.net; g...@eskimo.com; quad-list@eskimo.com; daa...@aol.com Sent: Sunday, July 7, 2013 9:07 AM Subject: Re: [QUAD-L] flap surgery Here is the link to New Mobility's article on wound care from the April issue. http://www.newmobility.com/articleView.cfm?id=12343srch=Pressure%20sore The magazine (I am one of the writers) now offers online subscriptions for $14.95 a year. Bob Vogel --- On Fri, 7/5/13, daa...@aol.com daa...@aol.com wrote: From: daa...@aol.com daa...@aol.com Subject: Re: [QUAD-L] flap surgery To: scamper2...@att.net, g...@eskimo.com, quad-list@eskimo.com Date: Friday, July 5, 2013, 4:04 PM Thank you Don for the information that you will give us through the new mobility. I don't get that magazine for a number of years. Please keep us posted. I know how hard it is to stay in bed I had a similar sort that to six months to heal and I had to go to the wound center every two weeks for care of it. I'm glad you can access your TV in bed. Period. Thank you Don, I'll be thinking of you and praying for you and Greg. Always, Dana In a message dated 7/5/2013 1:19:06 P.M. Central Daylight Time, scamper2...@att.net writes: I'm dealing with an isheal sore and I started using whey isolate protein supplement. It has no or very few carbs and no suger but good protein, I get the chocolate flavor and mix with water, it's not bad but not cheap. I spend 5 or 6 days in bed. between the computer and TV I do OK. There's also an artical I just read in Aprils New Mobility news letter about wound care. I well forward it to you. Don From: greg g...@eskimo.com To: quad-list quad-list@eskimo.com Sent: Thursday, July 4, 2013 3:01 PM Subject: [QUAD-L] flap surgery I talked to my doctor about flap surgery. He said my sore would heal faster if I got it, but I would have to stay in bed 4 to 6 weeks. I am in bed now, but I get up for a couple hours every day. He said it is the twisting and sliding that is the worst for your but after surgery. I worry about doing my B – program, I would have to do it in bed while laying on the wrong side. I don't know if that really makes that much of a difference. But getting cleaned up and changing sheets could be a real problem. But after 4 to 6 weeks I would assume you can't just get up and stay up, you would have to start out slowly and add time each day or week? As for the long-term would it be better for my butt to just let it heal or get the surgery? I know a lot of people here have had flap surgery, would you recommend it? I'm in bed most of the time anyway, it's too darn hot here to go outside anyway. At least for very long. 115° and that's down from a few days ago. One of my main concerns is what if the outside of the wound heals up good, but the inside doesn't connect or heal up. It would be like having bad tunneling going on. At least just letting it heal you can see it heal from the bottom up. I just had a checkup and outside the wound got smaller around, but it was just as deep. Now it is 1.4 cm wide and the tunneling is 1.2 deep. but I don't know if that 1.2 cm is added on to the depth of the wound, or if that is a total. I'll have to ask next time. Greg
Re: [QUAD-L] flap surgery
Here is the link to New Mobility's article on wound care from the April issue. http://www.newmobility.com/articleView.cfm?id=12343srch=Pressure%20sore The magazine (I am one of the writers) now offers online subscriptions for $14.95 a year. Bob Vogel --- On Fri, 7/5/13, daa...@aol.com daa...@aol.com wrote: From: daa...@aol.com daa...@aol.com Subject: Re: [QUAD-L] flap surgery To: scamper2...@att.net, g...@eskimo.com, quad-list@eskimo.com Date: Friday, July 5, 2013, 4:04 PM Thank you Don for the information that you will give us through the new mobility. I don't get that magazine for a number of years. Please keep us posted. I know how hard it is to stay in bed I had a similar sort that to six months to heal and I had to go to the wound center every two weeks for care of it. I'm glad you can access your TV in bed. Period. Thank you Don, I'll be thinking of you and praying for you and Greg. Always, Dana In a message dated 7/5/2013 1:19:06 P.M. Central Daylight Time, scamper2...@att.net writes: I'm dealing with an isheal sore and I started using whey isolate protein supplement. It has no or very few carbs and no suger but good protein, I get the chocolate flavor and mix with water, it's not bad but not cheap. I spend 5 or 6 days in bed. between the computer and TV I do OK. There's also an artical I just read in Aprils New Mobility news letter about wound care. I well forward it to you. Don From: greg g...@eskimo.com To: quad-list quad-list@eskimo.com Sent: Thursday, July 4, 2013 3:01 PM Subject: [QUAD-L] flap surgery I talked to my doctor about flap surgery. He said my sore would heal faster if I got it, but I would have to stay in bed 4 to 6 weeks. I am in bed now, but I get up for a couple hours every day. He said it is the twisting and sliding that is the worst for your but after surgery. I worry about doing my B – program, I would have to do it in bed while laying on the wrong side. I don't know if that really makes that much of a difference. But getting cleaned up and changing sheets could be a real problem. But after 4 to 6 weeks I would assume you can't just get up and stay up, you would have to start out slowly and add time each day or week? As for the long-term would it be better for my butt to just let it heal or get the surgery? I know a lot of people here have had flap surgery, would you recommend it? I'm in bed most of the time anyway, it's too darn hot here to go outside anyway. At least for very long. 115° and that's down from a few days ago. One of my main concerns is what if the outside of the wound heals up good, but the inside doesn't connect or heal up. It would be like having bad tunneling going on. At least just letting it heal you can see it heal from the bottom up. I just had a checkup and outside the wound got smaller around, but it was just as deep. Now it is 1.4 cm wide and the tunneling is 1.2 deep. but I don't know if that 1.2 cm is added on to the depth of the wound, or if that is a total. I'll have to ask next time. Greg
Re: [QUAD-L] flap surgery
Having had flap surgery twice, my recommendation is to wait. Each time I had the flap done the tunneling was to the bone. With depths from 7 to 9 cm. What is your current regiment? On Jul 4, 2013 5:01 PM, greg g...@eskimo.com wrote: I talked to my doctor about flap surgery. He said my sore would heal faster if I got it, but I would have to stay in bed 4 to 6 weeks. I am in bed now, but I get up for a couple hours every day. He said it is the twisting and sliding that is the worst for your but after surgery. I worry about doing my B – program, I would have to do it in bed while laying on the wrong side. I don't know if that really makes that much of a difference. But getting cleaned up and changing sheets could be a real problem. But after 4 to 6 weeks I would assume you can't just get up and stay up, you would have to start out slowly and add time each day or week? As for the long-term would it be better for my butt to just let it heal or get the surgery? I know a lot of people here have had flap surgery, would you recommend it? I'm in bed most of the time anyway, it's too darn hot here to go outside anyway. At least for very long. 115° and that's down from a few days ago. One of my main concerns is what if the outside of the wound heals up good, but the inside doesn't connect or heal up. It would be like having bad tunneling going on. At least just letting it heal you can see it heal from the bottom up. I just had a checkup and outside the wound got smaller around, but it was just as deep. Now it is 1.4 cm wide and the tunneling is 1.2 deep. but I don't know if that 1.2 cm is added on to the depth of the wound, or if that is a total. I'll have to ask next time. Greg
Re: [QUAD-L] flap surgery
Dana, You can go online to read old issues Best Wishes In a message dated 7/5/2013 6:14:10 P.M. Central Daylight Time, daa...@aol.com writes: Thank you Don for the information that you will give us through the new mobility. I don't get that magazine for a number of years. Please keep us posted. I know how hard it is to stay in bed I had a similar sort that to six months to heal and I had to go to the wound center every two weeks for care of it. I'm glad you can access your TV in bed. Period. Thank you Don, I'll be thinking of you and praying for you and Greg. Always, Dana In a message dated 7/5/2013 1:19:06 P.M. Central Daylight Time, scamper2...@att.net writes: I'm dealing with an isheal sore and I started using whey isolate protein supplement. It has no or very few carbs and no suger but good protein, I get the chocolate flavor and mix with water, it's not bad but not cheap. I spend 5 or 6 days in bed. between the computer and TV I do OK. There's also an artical I just read in Aprils New Mobility news letter about wound care. I well forward it to you. Don From: greg g...@eskimo.com To: quad-list quad-list@eskimo.com Sent: Thursday, July 4, 2013 3:01 PM Subject: [QUAD-L] flap surgery I talked to my doctor about flap surgery. He said my sore would heal faster if I got it, but I would have to stay in bed 4 to 6 weeks. I am in bed now, but I get up for a couple hours every day. He said it is the twisting and sliding that is the worst for your but after surgery. I worry about doing my B – program, I would have to do it in bed while laying on the wrong side. I don't know if that really makes that much of a difference. But getting cleaned up and changing sheets could be a real problem. But after 4 to 6 weeks I would assume you can't just get up and stay up, you would have to start out slowly and add time each day or week? As for the long-term would it be better for my butt to just let it heal or get the surgery? I know a lot of people here have had flap surgery, would you recommend it? I'm in bed most of the time anyway, it's too darn hot here to go outside anyway. At least for very long. 115° and that's down from a few days ago. One of my main concerns is what if the outside of the wound heals up good, but the inside doesn't connect or heal up. It would be like having bad tunneling going on. At least just letting it heal you can see it heal from the bottom up. I just had a checkup and outside the wound got smaller around, but it was just as deep. Now it is 1.4 cm wide and the tunneling is 1.2 deep. but I don't know if that 1.2 cm is added on to the depth of the wound, or if that is a total. I'll have to ask next time. Greg
Re: [QUAD-L] Flap surgery 2morrow
surgery went well on my side writing you'll now so bored From: Mark BB m...@jamtanker.co.uk To: Veranda Escobar vaescob...@yahoo.com Sent: Fri, October 16, 2009 9:55:08 AM Subject: Re: [QUAD-L] Flap surgery 2morrow no pressure sore in groin... just wouldn't heal now keeping better Regards, Mark On 15 Oct 2009, at 20:19, Veranda Escobar wrote: 3 MONTHS O'my gosh was that after surgery. I am already lwop at wk if he takes that long i'm sure i wont have my job been there 14 yrs but they only give u so much time 2 be out. :( From: Mark BB m...@jamtanker.co.uk To: Veranda Escobar vaescob...@yahoo.com Sent: Thu, October 15, 2009 2:06:57 PM Subject: Re: [QUAD-L] Flap surgery 2morrow All the best... just try to think a few months the op will be all over with.. try to keep strong. Was on bed rest for 3 months ..about 6 years ago ...and still here All the best Regards, Mark Age 45 C3/4 Complete since 1986 On 15 Oct 2009, at 19:12, Veranda Escobar wrote: I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed. w
Re: [QUAD-L] Flap surgery 2morrow
Congrats! Now that's a side of you we haven't seen/ Best Wishes In a message dated 10/21/2009 8:19:47 P.M. Central Daylight Time, vaescob...@yahoo.com writes: surgery went well on my side writing you'll now so bored From: Mark BB m...@jamtanker.co.uk To: Veranda Escobar vaescob...@yahoo.com Sent: Fri, October 16, 2009 9:55:08 AM Subject: Re: [QUAD-L] Flap surgery 2morrow no pressure sore in groin... just wouldn't heal now keeping better Regards, Mark On 15 Oct 2009, at 20:19, Veranda Escobar wrote: 3 MONTHS O'my gosh was that after surgery. I am already lwop at wk if he takes that long i'm sure i wont have my job been there 14 yrs but they only give u so much time 2 be out. :( From: Mark BB _m...@jamtanker.co.uk_ (mailto:m...@jamtanker.co.uk) To: Veranda Escobar _vaescob...@yahoo.com_ (mailto:vaescob...@yahoo.com) Sent: Thu, October 15, 2009 2:06:57 PM Subject: Re: [QUAD-L] Flap surgery 2morrow All the best... just try to think a few months the op will be all over with.. try to keep strong. Was on bed rest for 3 months ..about 6 years ago ...and still here All the best Regards, Mark Age 45 C3/4 Complete since 1986 On 15 Oct 2009, at 19:12, Veranda Escobar wrote: I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed. w
Re: [QUAD-L] Flap surgery 2morrow
thx everyone for listening to me lately i finally see a light at end of tunnel. i love u guys and don't even know you'll. But u'll sure have gotten me thru some ruff days, u From: wheelch...@aol.com wheelch...@aol.com To: vaescob...@yahoo.com; m...@jamtanker.co.uk Cc: quad-list@eskimo.com Sent: Wed, October 21, 2009 8:24:06 PM Subject: Re: [QUAD-L] Flap surgery 2morrow Congrats! Now that's a side of you we haven't seen/ Best Wishes In a message dated 10/21/2009 8:19:47 P.M. Central Daylight Time, vaescob...@yahoo.com writes: surgery went well on my side writing you'll now so bored From: Mark BB m...@jamtanker.co.uk To: Veranda Escobar vaescob...@yahoo.com Sent: Fri, October 16, 2009 9:55:08 AM Subject: Re: [QUAD-L] Flap surgery 2morrow no pressure sore in groin... just wouldn't heal now keeping better Regards, Mark On 15 Oct 2009, at 20:19, Veranda Escobar wrote: 3 MONTHS O'my gosh was that after surgery. I am already lwop at wk if he takes that long i'm sure i wont have my job been there 14 yrs but they only give u so much time 2 be out. :( From: Mark BB m...@jamtanker.co.uk To: Veranda Escobar vaescob...@yahoo.com Sent: Thu, October 15, 2009 2:06:57 PM Subject: Re: [QUAD-L] Flap surgery 2morrow All the best... just try to think a few months the op will be all over with.. try to keep strong. Was on bed rest for 3 months ..about 6 years ago ...and still here All the best Regards, Mark Age 45 C3/4 Complete since 1986 On 15 Oct 2009, at 19:12, Veranda Escobar wrote: I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed. w __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Flap surgery 2morrow
all for one and one for all. Dan At 09:35 PM 10/21/2009, Veranda Escobar said something that elicited my response: thx everyone for listening to me lately i finally see a light at end of tunnel. i love u guys and don't even know you'll. But u'll sure have gotten me thru some ruff days, u From: wheelch...@aol.com wheelch...@aol.com To: vaescob...@yahoo.com; m...@jamtanker.co.uk Cc: quad-list@eskimo.com Sent: Wed, October 21, 2009 8:24:06 PM Subject: Re: [QUAD-L] Flap surgery 2morrow Congrats! Now that's a side of you we haven't seen/ Best Wishes In a message dated 10/21/2009 8:19:47 P.M. Central Daylight Time, vaescob...@yahoo.com writes: surgery went well on my side writing you'll now so bored From: Mark BB m...@jamtanker.co.uk To: Veranda Escobar vaescob...@yahoo.com Sent: Fri, October 16, 2009 9:55:08 AM Subject: Re: [QUAD-L] Flap surgery 2morrow no pressure sore in groin... just wouldn't heal now keeping better Regards, Mark On 15 Oct 2009, at 20:19, Veranda Escobar wrote: 3 MONTHS O'my gosh was that after surgery. I am already lwop at wk if he takes that long i'm sure i wont have my job been there 14 yrs but they only give u so much time 2 be out. :( From: Mark BB mailto:m...@jamtanker.co.ukm...@jamtanker.co.uk To: Veranda Escobar mailto:vaescob...@yahoo.comvaescob...@yahoo.com Sent: Thu, October 15, 2009 2:06:57 PM Subject: Re: [QUAD-L] Flap surgery 2morrow All the best... just try to think a few months the op will be all over with.. try to keep strong. Was on bed rest for 3 months ..about 6 years ago ...and still here All the best Regards, Mark Age 45 C3/4 Complete since 1986 On 15 Oct 2009, at 19:12, Veranda Escobar wrote: I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed. w __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Flap surgery 2morrow
You have every right to be disappointed and depressed. I can understand the frustration of thinking that you wasted an entire summer for what? And its your body too. I hope that your surgery tomorrow will close the wound and resolve any further issues regarding your tissues. Most flap procedures heal the area and allow for a normal life once properly healed. May You Do Well! Best Wishes In a message dated 10/15/2009 1:13:11 P.M. Central Daylight Time, vaescob...@yahoo.com writes: I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed.
Re: [QUAD-L] Flap surgery 2morrow
Good luck with your surgery Veranda.I had a wound 'down there' that took 2 surgeries to close. It was a long, trying time from start to finish. I hope yours goes better.AZDAVE -Original Message- From: Veranda Escobar vaescob...@yahoo.com To: quad-list@eskimo.com Sent: Thu, Oct 15, 2009 11:12 am Subject: [QUAD-L] Flap surgery 2morrow I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed.
Re: [QUAD-L] Flap surgery 2morrow
Good luck with your surgery Veranda.I had a wound 'down there' that took 2 surgeries to close. It was a long, trying time from start to finish. I hope yours goes better.AZDAVE -Original Message- From: Veranda Escobar vaescob...@yahoo.com To: quad-list@eskimo.com Sent: Thu, Oct 15, 2009 11:12 am Subject: [QUAD-L] Flap surgery 2morrow I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed.
Re: [QUAD-L] Flap surgery 2morrow
3 MONTHS O'my gosh was that after surgery. I am already lwop at wk if he takes that long i'm sure i wont have my job been there 14 yrs but they only give u so much time 2 be out. :( From: Mark BB m...@jamtanker.co.uk To: Veranda Escobar vaescob...@yahoo.com Sent: Thu, October 15, 2009 2:06:57 PM Subject: Re: [QUAD-L] Flap surgery 2morrow All the best... just try to think a few months the op will be all over with.. try to keep strong. Was on bed rest for 3 months ..about 6 years ago ...and still here All the best Regards, Mark Age 45 C3/4 Complete since 1986 On 15 Oct 2009, at 19:12, Veranda Escobar wrote: I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed. w
Re: [QUAD-L] Flap surgery 2morrow
it looks like all of u who have had flap surgery are saying u where down awhile after surgery too gosh did anyone heal fast? From: hellodav...@aol.com hellodav...@aol.com To: quad-list@eskimo.com Sent: Thu, October 15, 2009 2:02:43 PM Subject: Re: [QUAD-L] Flap surgery 2morrow Good luck with your surgery Veranda. I had a wound 'down there' that took 2 surgeries to close. It was a long, trying time from start to finish. I hope yours goes better. AZDAVE -Original Message- From: Veranda Escobar vaescob...@yahoo.com To: quad-list@eskimo.com Sent: Thu, Oct 15, 2009 11:12 am Subject: [QUAD-L] Flap surgery 2morrow I have my first flap surgery tomorrow and I am so upset i've been on a wound vac since 8-28 thinking it would be close by now. they almost called surgery off monday cause outside looked good until they looked at the inside side and said it needed 2 still be closed. they say i will be in hospital 2 wks then a ltac unit for 2 more wks. i have cried everyday since i found out i'd have to be down more time then i have already. So depressed.
Re: [QUAD-L] Flap surgery 2morrow
I had a minor flap surgery in july and spent two weeks at Northwestern then two
weeks at RIC. I as amazed at how much strength that I had lost. My 'up' time
was severely restricted. I used to be 'up' 12-16 hrs a day-no problem. I'm now
at 6hrs then 1 hr off then back up. I'm using a Roho where I was just using a
foam cushion before. I just finished my
outpatient PT/OT today. Now i have to put what they did into a new daily
routine. I'm c6/7, 39 years post injury. The flap was the first for me. Best of
Luck. listen to the dr., nurse, aides, anyone who soundslike they're giving you
good advise.
Tom
--- On Thu, 10/15/09, hellodav...@aol.com hellodav...@aol.com wrote:
From: hellodav...@aol.com hellodav...@aol.com
Subject: Re: [QUAD-L] Flap surgery 2morrow
To: quad-list@eskimo.com
Date: Thursday, October 15, 2009, 2:02 PM
Good luck with your surgery Veranda. I had a wound 'down there' that took 2
surgeries to close. It was a long, trying time from start to finish. I hope
yours goes better.
AZDAVE
-Original Message-
From: Veranda Escobar vaescob...@yahoo.com
To: quad-list@eskimo.com
Sent: Thu, Oct 15, 2009 11:12 am
Subject: [QUAD-L] Flap surgery 2morrow
#yiv565103820 #AOLMsgPart_2_5e7f9a61-78f0-4aa5-bd25-eb610b69977a DIV
{margin:0px;}
I have my first flap surgery tomorrow and I am so upset i've been on a wound
vac since 8-28 thinking it would be close by now. they almost called surgery
off monday cause outside looked good until they looked at the inside side and
said it needed 2 still be closed. they say i will be in hospital 2 wks then a
ltac unit for 2 more wks. i have cried everyday since i found out i'd have to
be down more time then i have already. So depressed.
Re: [QUAD-L] Flap surgery and Picc line
Hi flo--- l don't know much about the flap, but as far as the pic line...i was sent home with one last April- they sent out a nurse to show us how to do it, plus leave instructions and a call number if you need any help or have questions, we were worried but my wife caught on to how to do it and it was not to hard for her. good luck and hope all goes well. Dan H. --- On Mon, 12/8/08, floreen [EMAIL PROTECTED] wrote: From: floreen [EMAIL PROTECTED] Subject: [QUAD-L] Flap surgery and Picc line To: quad-list@eskimo.com Date: Monday, December 8, 2008, 6:06 PM My husband recently had a flap surgery and is set to come home on Thursday. He just got his picc line he will be coming home with...I am his caregiver and will be in charge of giving his antibiotics through the picc line...has anyone else had to do a picc line before, any tips? Thanks in advance, Floreen Wife and caregiver to Jason c5-6 incomplete diving accident 2004
Re: [QUAD-L] Flap surgery and Picc line
just make sure u flush it, as they'll probably tell ya, can't rember but think mine was flushed twice a day. Eric W Rudd [EMAIL PROTECTED] - Original Message - From: floreen To: quad-list@eskimo.com Sent: Monday, December 08, 2008 6:06 PM Subject: [QUAD-L] Flap surgery and Picc line My husband recently had a flap surgery and is set to come home on Thursday. He just got his picc line he will be coming home with...I am his caregiver and will be in charge of giving his antibiotics through the picc line...has anyone else had to do a picc line before, any tips? Thanks in advance, Floreen Wife and caregiver to Jason c5-6 incomplete diving accident 2004
Re: [QUAD-L] Flap surgery and Picc line
Mine was Dr ordered for a home health nurse *to do* *it*. I've had a PICC line in at home twice in the last 4 years. The less my husband has to do (and he is doing 99+% of my daily care) the better. Are you the same Floreen as on the SCIC list? Lori On Mon, Dec 8, 2008 at 5:06 PM, floreen [EMAIL PROTECTED] wrote: My husband recently had a flap surgery and is set to come home on Thursday. He just got his picc line he will be coming home with...I am his caregiver and will be in charge of giving his antibiotics through the picc line...has anyone else had to do a picc line before, any tips? Thanks in advance, Floreen Wife and caregiver to Jason c5-6 incomplete diving accident 2004 -- Lori C4/5 complete quad, 27 years post Tucson, AZ
Re: [QUAD-L] Flap surgery and Picc line
I actually just got finished with long term antibiotics and cared for my own pic line. I would just do what the nurse tells you to. She should set it up, give him his first dose and show you how to do it. I hope it all goes well for you, Stacy From: floreen [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, December 8, 2008 7:06:11 PM Subject: [QUAD-L] Flap surgery and Picc line My husband recently had a flap surgery and is set to come home on Thursday. He just got his picc line he will be coming home with...I am his caregiver and will be in charge of giving his antibiotics through the picc line...has anyone else had to do a picc line before, any tips? Thanks in advance, Floreen Wife and caregiver to Jason c5-6 incomplete diving accident 2004
Re: [QUAD-L] Flap surgery and Picc line
They have you flush it after each dose. Make sure you follow those instructions because the pic could get a blood clot then you will really have problems. Mine wasn't properly flushed in the hospital and then they had to call the iv team to my room to get it unclogged. From: Eric W Rudd [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, December 8, 2008 7:30:04 PM Subject: Re: [QUAD-L] Flap surgery and Picc line just make sure u flush it, as they'll probably tell ya, can't rember but think mine was flushed twice a day. Eric W Rudd [EMAIL PROTECTED] - Original Message - From: floreen To: quad-list@eskimo.com Sent: Monday, December 08, 2008 6:06 PM Subject: [QUAD-L] Flap surgery and Picc line My husband recently had a flap surgery and is set to come home on Thursday. He just got his picc line he will be coming home with...I am his caregiver and will be in charge of giving his antibiotics through the picc line...has anyone else had to do a picc line before, any tips? Thanks in advance, Floreen Wife and caregiver to Jason c5-6 incomplete diving accident 2004
Re: [QUAD-L] flap surgery
Hi Dave, How deep and big was your sore. Mine is not very big as it is deep. They are definatly going to be doing some muscle reconstruction in there. I have to admit I'm nervous. I'm scared about going into a rehab hospital around here. The care I hear is a lot worse than when I was there and then it was terrible. The thing that benefited me was that I was eventually able to get up on my own towards the end but when I couldnt dress myself or transfer, I was consistantly late to rehab. Because I was more work than anyone else I was saved for last. I wasnt getting turned or woken up to turn for the first month or so when I was there. It scares me to think that I have to be bed bound for such an amount of time and have that terrible care. My friend and I sat and thought about all the nursing homes and rehabvcenters in the area and it is quite ugly to even think about it. The last thing I want are some complications because the nurses aren't good or they are overworked. I'm thinking of asking to get a prescription for a certain type of bed and stay home and have my neighbor help look after me and maybe look into meals on wheels. I have a whole list of questions for my doctors. Stacy - Original Message - From: David K. Kelmer To: Stacy Harim ; Quad-List Sent: Monday, December 19, 2005 2:23 PM Subject: Re: [QUAD-L] flap surgery Hi Stacy, It's nice to hear from you! I am sorry that the wound vac didn't help much, and hope they are able to either get the wound to start healing from the bottom up so they cando the flap surgery. Your down-time with the flap surgery will depend onthe size of the flap. I was on my face about 6 monthsafter I had mine done, and had to ease back onto my bottom, but it was worth it. I hope you are able to get it so you are able to start the road to getting out and start feeling better. You have been in my thoughts and prayers. Stay strong. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Stacy Harim [EMAIL PROTECTED] wrote: Hey guys, I haven't been around because my computer broke down of me. I finally did get a lap top. I have a guy from the health dept. that can get funding for me if I need to get rent or something paid for and he got the money for the lap top which is great because of all the time I am spending in bed. Unfortunatly the wound vac didn't help me at all. The sore is healing from the sides but not the depth of the sore. They just opened a wound care center here so I went because the plastic surgeon that opened up the tunnel isn't doing anything about the fact that the sore is not filling from the bottom. They are saying could be osteomyelitis but I don't think so. There are no symptoms of an infection but I am seeing the infectious doctor there anyway to make sure. The plastic surgeon is saying that he wants to do the flap surgery. They did do a test and I think they are going to start the hyperbarrick chamber and see where that goes but I am very curious about the flap just to get it closed up. What can I expect with this as far as healing time, how much longer am I going to stay in bed? Im gaining weight because I'm not getting any exercise in here and it's getting very depressing. I live alone and don't have many friends left since I got sick. The ones that I do have are married and busy with their families so I cant blame them. I just want to get healed. Is the flap the best way to go at this point? Your advice is greatly appreciated. Stacy
Re: [QUAD-L] flap surgery
Stacey, A klinitron bed is what I was on for 6 weeks. Would it be possible for you to be home on one of them w/round the clock care? Mare - Original Message - From: Stacy Harim To: Quad-List ; David K. Kelmer Sent: Tuesday, December 20, 2005 10:48 AM Subject: Re: [QUAD-L] flap surgery Hi Dave, How deep and big was your sore. Mine is not very big as it is deep. They are definatly going to be doing some muscle reconstruction in there. I have to admit I'm nervous. I'm scared about going into a rehab hospital around here. The care I hear is a lot worse than when I was there and then it was terrible. The thing that benefited me was that I was eventually able to get up on my own towards the end but when I couldnt dress myself or transfer, I was consistantly late to rehab. Because I was more work than anyone else I was saved for last. I wasnt getting turned or woken up to turn for the first month or so when I was there. It scares me to think that I have to be bed bound for such an amount of time and have that terrible care. My friend and I sat and thought about all the nursing homes and rehabvcenters in the area and it is quite ugly to even think about it. The last thing I want are some complications because the nurses aren't good or they are overworked. I'm thinking of asking to get a prescription for a certain type of bed and stay home and have my neighbor help look after me and maybe look into meals on wheels. I have a whole list of questions for my doctors. Stacy - Original Message - From: David K. Kelmer To: Stacy Harim ; Quad-List Sent: Monday, December 19, 2005 2:23 PM Subject: Re: [QUAD-L] flap surgery Hi Stacy, It's nice to hear from you! I am sorry that the wound vac didn't help much, and hope they are able to either get the wound to start healing from the bottom up so they cando the flap surgery. Your down-time with the flap surgery will depend onthe size of the flap. I was on my face about 6 monthsafter I had mine done, and had to ease back onto my bottom, but it was worth it. I hope you are able to get it so you are able to start the road to getting out and start feeling better. You have been in my thoughts and prayers. Stay strong. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Stacy Harim [EMAIL PROTECTED] wrote: Hey guys, I haven't been around because my computer broke down of me. I finally did get a lap top. I have a guy from the health dept. that can get funding for me if I need to get rent or something paid for and he got the money for the lap top which is great because of all the time I am spending in bed. Unfortunatly the wound vac didn't help me at all. The sore is healing from the sides but not the depth of the sore. They just opened a wound care center here so I went because the plastic surgeon that opened up the tunnel isn't doing anything about the fact that the sore is not filling from the bottom. They are saying could be osteomyelitis but I don't think so. There are no symptoms of an infection but I am seeing the infectious doctor there anyway to make sure. The plastic surgeon is saying that he wants to do the flap surgery. They did do a test and I think they are going to start the hyperbarrick chamber and see where that goes but I am very curious about the flap just to get it closed up. What can I expect with this as far as healing time, how much longer am I going to stay in bed? Im gaining weight because I'm not getting any exercise in here and it's getting very depressing. I live alone and don't have many friends left since I got sick. The ones that I do have are married and busy with their families so I cant blame them. I just want to get healed. Is the flap the best way to go at this point? Your advice is greatly appreciated. Stacy
Re: [QUAD-L] flap surgery
Hi Stacy,Mine was pretty deep Stage IV. They did do some muscle reconstruction and a lot of tissue debreeding. I was taking classes at Glendale Community Collage in AZand kept putting off going in and having it treated. I didn't want to lose my 4.0 GPA that I was carrying so I waited until the end of the semester. The bad news was the sore was worse, and the good news was I kept my 4.0 GPA!My advice would be toget your wound treated and get the rehab over with. The longer you wait, the worse it will be when you do get started. Once that is done youwill have a better idea about what your goals for the future will be. You're in my prayers. Good luck and stay strong. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Stacy Harim [EMAIL PROTECTED] wrote:Hi Dave,How deep and big was your sore. Mine is not very big as it is deep. They are definatly going to be doing some muscle reconstruction in there. I have to admit I'm nervous. I'm scared about going into a rehab hospital around here. The care I hear is a lot worse than when I was there and then it was terrible. The thing that benefited me was that I was eventually able to get up on my own towards the end but when I couldnt dress myself or transfer, I was consistantly late to rehab. Because I was more work than anyone else I was saved for last. I wasnt getting turned or woken up to turn! for the first month or so when I was there. It scares me to think that I have to be bed bound for such an amount of time and have that terrible care. My friend and I sat and thought about all the nursing homes and rehabvcenters in the area and it is quite ugly to even think about it. The last thing I want are some complications because the nurses aren't good or they are overworked. I'm thinking of asking to get a prescription for a certain type of bed and stay home and have my neighbor help look after me and maybe look into meals on wheels. I have a whole list of questions for my doctors.Stacy- Original Message - From: David K. Kelmer To: Stacy Harim ; Quad-List Sent: Monday, December 19, 2005 2:23 PM Subject: Re: [QUAD-L] flap surgery Hi Stacy,It's nice to hear from you! I am sorry that the wound vac didn't help much, and hope they are able to either get the wound to start healing from the bottom up so they cando the flap surgery. Your down-time with the flap surgery will depend onthe size of the flap. I was on my face about 6 monthsafter I had mine done, and had to ease back onto my bottom, but it was worth it. I hope you are! able to get it so you are able to start the road to getting out and start feeling better. You have been in my thoughts and prayers. Stay strong.With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Stacy Harim [EMAIL PROTECTED] wrote: Hey guys,I haven't been around because my computer broke down of me. I finally did get a lap top. I have a guy from the health dept. that can get funding for me if I need to get rent or something paid for and he got the money for the lap top which is great because of all the time I am spending in b! ed. Unfortunatly the wound vac didn't help me at all. The sore is healing from the sides but not the depth of the sore. They just opened a wound care center here so I went because the plastic surgeon that opened up the tunnel isn't doing anything about the fact that the sore is not filling from the bottom. They are saying could be osteomyelitis but I don't think so. There are no symptoms of an infection but I am seeing the infectious doctor there anyway to make sure. The plastic surgeon is saying that he wants to do the flap surgery. They did do a test and I think they are going to start the hyperbarrick chamber and see where that goes but I am very curious about the flap just to get it closed up. What can I expect with this as far as healing time, how much longer am I going to stay in bed? Im gaining weight because I'm not getting any exercise in here and it's getting very depressing. I live alone and don't have many friends lef! t since I got sick. The ones that I do have are married and busy with their families so I cant blame them. I just want to get healed. Is the flap the best way to go at this point? Your advice is greatly appreciated.Stacy
Re: [QUAD-L] flap surgery
I'm in Maryland and have medicare and medicaid. I also am on the medicaid waiver. I'm approved for 6 hours a day. I don't use them but they are there. I took advantage of more hours while I was having my down time these last couple of months but still didn't use that many hours. I don't need a baby sitter. Shes my friend and lives next door so would come for a little bit in early afternoon and evenings for meals and I have plenty of snacks stashed and a small cooler with drinks. I am also in a pretty rural area but the care here still isn't any good. Stacy - Original Message - From: S. Dial To: Stacy Harim ; quad-list@eskimo.com Sent: Tuesday, December 20, 2005 3:25 PM Subject: Re: [QUAD-L] flap surgery Stacy, What state do you live in? I live in a nursing home myself in Floridaand get really good care it is a rural area and most of the staff are caring, down-home people that have a lot of compassion and heart. I have been very blessed in finding this place. Also, I sleep on a prescription air mattress which eliminates the turning need - have you ever considered this? Are you on Medicare/Medicaid? They should provide HHA care workers for you if you qualify. I hope everything works out for you, Stacy, best of luck. Steph c3-c4 quad 19 yrs post
