Re: [TMIC] difficulty eating
It sounds like you are having some kimd of esophogeal spasm or stomach spasm. Even if you are really hungry, take something like one half of a valium to relax the spasm. Don't eat for about half an hour and call us in the morning Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 INLT ** See what's free at http://www.aol.com.
[TMIC] Getting Humble...
This is a subject that I have not seen debated in the five years I have been a member of this exclusive club of amazing, diverse people brought together by a common problem...TM. I recently received an email from someone who has been on the list quite a while. This person has troubles just like the rest of us and we help one another when we can, but I only tonight found out that they are in extreme pain and at times can only sit for a few seconds at a time. Yet, they take any amount of time they can handle to use their knowledge to educate us and promote dialogue between us, in spite of being racked by pain. This person is one of the walking wounded and was, I thought, in pretty good condition. Tonight, I learned that conception has not been true...and I find myself amazed to find the depth of their disability. Now, I am wondering how important it is for us to put on a happy face and keep our infirmities to ourselves rather than getting honest and sharing our limitations with the possibility of connecting with someone else, especially new members in need of knowing that they are not crazy and other people have the same problems that they do? I believe that it is possible to maintain a positive attitude while humbling ourselves enough to show others on the List the true person we are. There are ways to share our pain, frustration, loss, etc. without sounding like a whining baby. Who believes that it is important to put our honest personage out there? Does it help others? Does it help ourselves to talk about things? Or does it serve others better to be stoic about our disease? I'd really like to know... I love you all, Jude T3 to T8, Complete para with no b or b control, and not a lot of hope of ever walking again. Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** See what's free at http://www.aol.com.
[TMIC] OT, OT...Friendship
A FRIEND FROM ABOVE I prayed for you before we met, Not knowing who you'd be. I asked the Lord to send a friend. One chosen just for me. I asked that they'd be Godly, With wisdom of His ways. A friend to help and guide me I the troubles of these days. So often in life, we need someone To listen while we talk. Someone who will not condemn or judge, But encourage us as we walk. The narrow road we choose to follow May sometimes make us stumble. But to have a friend to catch our fall, Teaches us to be humble. When I asked the Lord to send a friend, Though many came and went. He gave much more than I ever asked, For you are the friend He sent. Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** See what's free at http://www.aol.com.
Re: [TMIC] Reason for TM
Jude, Plasmapheresis, or PLEX, is a dialisis of the blood, removing plasma and replacing the plasma from a donor. PLEX, or plasmaphereis, is on the John Hopkins website http://www.hopkinsneuro.org/tm/disease_and_condition_detail.cfm?condition_id=8 Intravenous Steroids: This method is often used for patients with acute transverse myelitis. We routinely offer intravenous steroids for three to five days unless there are compelling reasons not to. The decision to offer continued steroids or add a new treatment is often based on the clinical course and MRI appearance at the end of five days of steroids. Plasma Exchange (PLEX): This is often used for those with moderate to severe TM who dont show much improvement after being treated with intravenous steroids. PLEX has been shown to be effective in adults with transverse myelitis or other inflammatory central nervous system disorders. Patients treated early (less than 20 days from the first symptom onset), men and those with a clinically incomplete lesion (i.e. with some motor function in the lower extremities, intact or brisk reflexes) tend to respond well to treatment with PLEX. Why PLEX is effective in one and not another? Perhaps it is because the lesion was incomplete? Why TM strikes some and not others? The wonders of TM! Candy K. Candis Kalley [EMAIL PROTECTED] EarthLink Revolves Around You. - Original Message - From: To: [EMAIL PROTECTED];[EMAIL PROTECTED];tmic-list@eskimo.com Sent: 5/26/2007 3:22:50 AM Subject: Re: [TMIC] Reason for TM In a message dated 5/25/2007 6:48:40 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Yes, I had plenty of steroids while in the hospital, and I also had plasmapheresis. The plasmapheresis helped me gain partial movement on the left side of my body. Right side still paralyzed At the risk of sounding ignorant, will someone please explain what plasmapheresis is, and why it works for some people. Why isn't it a mainstream mode of medicine at the onset of TM? Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 ACorinthians 4:17 NLT See what's free at AOL.com.
Re: [TMIC] Getting Humble...
I think most of us who have been with the TMIC for a long time -- at least those who have participated -- I know there are many who just read and don't write in -- have laid it all out there about our particular symptoms and issues at some time or another, but don't necessarily bring it up every week. I'm more than happy, though, to share those things when a particular subject comes up or someone asks a question that I think my experience might be helpful in relating. Something I have found, too, is that the more I think about the symptoms I struggle with -- the worse they are, the more magnified they are. Going on and thinking about something else and doing other things takes my mind off of them and thereby relives them just a little. Maybe some are reluctant to share because they are used to others not really understanding -- but that is what so many of us have discovered about the beauty of the TMIC -- that there are people who DO understand. I don't know, but I don't think there are many, if any, who don't share their particulars pains or issues because of pride. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 5/26/2007 4:37:59 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: This is a subject that I have not seen debated in the five years I have been a member of this exclusive club of amazing, diverse people brought together by a common problem...TM. I recently received an email from someone who has been on the list quite a while. This person has troubles just like the rest of us and we help one another when we can, but I only tonight found out that they are in extreme pain and at times can only sit for a few seconds at a time. Yet, they take any amount of time they can handle to use their knowledge to educate us and promote dialogue between us, in spite of being racked by pain. This person is one of the walking wounded and was, I thought, in pretty good condition. Tonight, I learned that conception has not been true...and I find myself amazed to find the depth of their disability. Now, I am wondering how important it is for us to put on a happy face and keep our infirmities to ourselves rather than getting honest and sharing our limitations with the possibility of connecting with someone else, especially new members in need of knowing that they are not crazy and other people have the same problems that they do? I believe that it is possible to maintain a positive attitude while humbling ourselves enough to show others on the List the true person we are. There are ways to share our pain, frustration, loss, etc. without sounding like a whining baby. Who believes that it is important to put our honest personage out there? Does it help others? Does it help ourselves to talk about things? Or does it serve others better to be stoic about our disease? I'd really like to know... I love you all, Jude T3 to T8, Complete para with no b or b control, and not a lot of hope of ever walking again. Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** See what's free at http://www.aol.com.
[TMIC] double vision and dancing eyes...
I'm writing this email to find out if anyone had the following symptoms as i do: my vision continuously bounces up and down and I have double vision also. It is not because of the meds because I have already cut down on the meds. It is not a lesion since I had an MRI done indicating nothing is there. It's not my muscles since the doctor said the connection of the eyes are fine. Has anyone had the same symptoms and if so can you please inform me of what I can do? Much Thanks, Sal- - Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games.
Re: [TMIC] Working With a Disability in California
Hi Todd, This would and could really mess up my LTD insurance from my employer though. Everybody needs to know how their disability insurance from their employer works if they are going to try to return to work. In my case, if I were to try to return to work, and worked for a short time, then not be able to continue, I would lose my LTD disability benefits. This is true even on a part-time basis. If I were to ever try to get another job at a later date and attempt to get LTD coverage again, I would then also have a pre-existing condition. This is true even with the same company. If I ever returned and left due to not being able to work, my same company would never hire me back. But, they'd sure love to get me off of their disability payment role. I'm costing them too much money, and will continue until I am capable of working full-time or reach age 65. This has nothing to do with SSDI or SSI, however, it is very important to know. Please review your documentation if you do not already know the ins and outs of your plan. Hugs, Barbara A ** See what's free at http://www.aol.com.
