[TMIC] Thanks for the info: Cole's Grandma Carol
Group, Thanks for the responses to my request.I got what I needed. Sue Mattis
Re: [TMIC] Lyrica/Neurontin
my oringinal lesions in 2004 were on the lower part of my spinal colomnwhitch still are there on my recent MRI.my mid section has been numb and feels like i have a tight band around me..when my neurolist told me about TM starting on my neck area i asked him if i was starting with MS but he told me no at the present time...he said further MRI's will be done to see how it is doing. - Original Message - From: Kevin Wolfthal [EMAIL PROTECTED] To: Tmic-list@eskimo.com Sent: Monday, August 20, 2007 11:56 PM Subject: Re: [TMIC] Lyrica/Neurontin Hi Robert, Glad to hear the neurontin is helping you. I still don't know why my diagnosing doctor wouldn't put me on neurontin when I asked him about it. You mention that TM may be starting in your neck area. Where was the initial lesion? I thought that if new lesions form, the diagnosis changes. Anyone? Kevin robert diehl wrote: i was put on lycaria by my pcp but my neurolgist took me off of it becuse he said it not right for me. he put me on neurontin.. take 300mg..one in the morning and one at bed time...had not had any side effects frm it at all ...for me now i feel pain freejust was in the hospital for five days then taken to a rehab hosp..was therefor almost trhee weeks til they got me walking again...in the hosp they did a MRI from the top of my head to my butt..showed sigs of TM starting in my neck area..put me on steroids for four days...will have anther MRI done shortly BOB FROM PANOW LIVING IN LAS VEGAS WITH MY DAUGHTER - Original Message - *From:* [EMAIL PROTECTED] mailto:[EMAIL PROTECTED] *To:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Sent:* Monday, August 20, 2007 8:52 PM *Subject:* [TMIC] Lyrica/Neurontin Hello Gang, After more than a year suffering through too much pain than my 5200mg/day Neurontin could handle, I have seen a new neurologist who has started me on Lyrica as a chance of getting my pain under control. She didn't want to increase my Neurontin, and I wasn't really interested in that either. She also helped me with better information about my Baclofen dosing and spasms, so that's working out much better. I've actually been getting a bit more sleep at night. I didn't really want to change anything around, as I was doing well on the Neurontin for 8 yrs. Well, that is until it just wasn't handling the pain. I was doing well without any bad side effects. I had some speech problems where I couldn't grasp my words for the entire time really, some weight gain, but not really anything else that was noticable or that I remember at the moment, lol. Heck, I've taken it for so long that I'm used to whatever state that I'm in. It takes someone on the outside to notice that I'm a bit odd or off. Can anyone out there tell me how long it took them to get over the really bad fatigue factor? So far I'm not noticing any other symptoms. I've taken for 4 days now, and am still on the same dosage of Neurontin. The doc gave me 50mg caps, and told me to take for a week before changing my regime with Neurontin. I am then to raise it and lower my Neurontin based on her instructions. Hugs to all, Barbara A Get a sneak peek of the all-new AOL.com http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982.
Re: [TMIC] Lyrica/Neurontin
You mention that TM may be starting in your neck area. Where was the initial lesion? I thought that if new lesions form, the diagnosis changes. Anyone? Kevin, you are right- two lesions means M.S. F
[TMIC] NATALIE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I WAS WONDERING IF ANYONE HOW NATALIE MADE OUT WITH HER SURGERY?IF ANYONE KNOWS PLEASE LET ME OR THE LIST KNOW. THANKS TIAD PAM ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] NATALIE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I asked Natalie to please talk to her husband about sending a message to the list, but don't know what the outcome will be. Hugs, Barbara A ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Lyrica/Neurontin
Hi Frank, I am taking Neurontin 5200mg/day and Topomax 100mg/day. I was given 50mg caps of Lyrica. I was told to take one Lyrica for a week with no change in anything. Then if successful, I can take away 400mg Neurontin and add 50 more Lyrica once per day. This is where we will start. How does this sound to you? No other pain meds, other than Vicodin when I need it, about 3x week or so. Hugs to you, Barbara A ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
[TMIC] Multiple lesions in MS and NMO.
Hi Frank, Kevin, In my case, two lesions (Both LETM's) led to a definitive diagnosis of NMO. There are several other factors to be considered whenever leaning towards MS. One is the presence/absence of oligoclonal bands in the CSF. Grace
Re: [TMIC] Superpubic
I have had a suprapubic catheter since 5/05 when I got too weak to walk again. My home health nurse changes it once a month. When I go out I can change from the big collection bag to a leg bag which hids under my dress easier. They tell my husband could be taught to change it. He should learn since he cut the line to the balloon one night while changing the bandages and we had to get the evening home health nurse to come change it. Before I had this 14 French catheter, I had something that had a tiny metal wire in my bladder but it got stopped up or plugged often and made me bleed a lot since I am on Coumadin. I do have to go to see my urologist next month so he can look inside to make sure nothing bad is happening. I remember one of the risks is that you can get cancer. I don't know if my bladder will work once I start walking again and take this out. Good luck Hildred in NC TM since 1976 ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
[TMIC] SUBSCRIBE (see below)
I get mail from the list all of the time but when I posted to the list, I got an email saying I couldn't post to the list cuz I wasn't a member. Huh? I've been here for years Hildred ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Superpubic
Hi Hildred, How has your suprapubic been as far as infections? Does it offer the optional valve feature? Two of my friends are considering this now, but were anxious to find out just how much benefit they are from someone who has/had one. The convenience that they offer sounds wonderful. Your friend, Grace
Re: [TMIC] Lyrica/Neurontin
I am taking Neurontin 5200mg/day and Topomax 100mg/day. I was given 50mg caps of Lyrica. I was told to take one Lyrica for a week with no change in anything. Then if successful, I can take away 400mg Neurontin and add 50 more Lyrica once per day. Sounnds good to me to decrease neurontin by 400 mg each week. I can't remember Lyrica dosing. F
Re: [TMIC] SUBSCRIBE (see below)
Hi Hilded, I got your mail. Did you get mine? I never see any of my initial posts online so am not always sure if they go through or not On 8/21/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: I get mail from the list all of the time but when I posted to the list, I got an email saying I couldn't post to the list cuz I wasn't a member. Huh? I've been here for years Hildred -- Get a sneak peek of the all-new AOL.comhttp://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982 .
Re: [TMIC] SUBSCRIBE (see below)
That happens to me occasionally -- I don't know why. I just resubscribe. One of the mysteries of cuber-space, I guess. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 8/21/2007 4:58:30 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I get mail from the list all of the time but when I posted to the list, I got an email saying I couldn't post to the list cuz I wasn't a member. Huh? I've been here for years Hildred ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Superpubic
Hi again Hildred, I found a very popular model that is used in the UK that has an optional valve feature which allows one to go without the bag for periods of time. Some indwelling models have that capability, but I don't know if they have been FDA approved here in the States. My two buddies are hoping to be offered that feature. That's good news about no infections!! Grace
Re: [TMIC] SUBSCRIBE (see below)
I remember this happened to a lot of us off and on for about a year a couple of years ago. It was a mystery then and appears to be one now too. As Barbara says just 'resubscribe'. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Tuesday, August 21, 2007 3:21 PM Subject: Re: [TMIC] SUBSCRIBE (see below) That happens to me occasionally -- I don't know why. I just resubscribe. One of the mysteries of cuber-space, I guess. Barbara H. http://barbarah.wordpress.com/ In a message dated 8/21/2007 4:58:30 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I get mail from the list all of the time but when I posted to the list, I got an email saying I couldn't post to the list cuz I wasn't a member. Huh? I've been here for years Hildred -- Get a sneak peek of the all-new AOL.com. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.1/965 - Release Date: 8/21/2007 4:02 PM
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