RE: [TMIC] Unidentified subject!
I agree. Go to a nursing home spend a little time with some of those folks. Talk with the staff. Most of them have family, they just never go visit. Out of sight, out of mind! Date: Thu, 6 Mar 2008 23:38:14 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Unidentified subject! I agree with you Larry. Stress does kill but not only the stress, I think any major illness also makes others, not only strangers but also love ones nearest you, look at themselves and realize how vulnerable they and their own lifes' are to the unknown and it really scares them! Whenever faced with adversity of any kind comes the fight or flight response. Sorry to say, I think most people choose the flight response - our society is known as the throw away society. - Original Message -From: Larry Throne [EMAIL PROTECTED]To: [EMAIL PROTECTED], TM tmic-list@eskimo.comSent: Thursday, March 6, 2008 9:07:51 PM (GMT-0600) America/ChicagoSubject: RE: [TMIC] Unidentified subject! Steve, Sorry to hear that you've experienced marital problems. With TM or any other life altering event there is a lot of stress. Stress kills. It kills people, marriages, hope, understanding and love. Your right that being a good father is the important thing. But you've got to remember that requires taking care of your self. Have you thought about seeking help? Seeing a therapist? Is there a single parents group in your area? Your church? Many years ago I was writing a paper on persons with spinal cord injury and relationships. I don't remember the exact numbers but I was surprised to find out that when it is the male that is injured, the relationship usually ends within the first 18 months. Something like 70% of the time. But when it is the female, only about 8% of the relationships end during the same time frame. Hmm I know that doesn't help much but it does show that it may not have been you. It was the TM. Get out, find someone that cares. Your the captain of your boat. Larry in Oklahoma who is so thankful it didn't snow! From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Fri, 7 Mar 2008 00:13:02 +Subject: [TMIC] Unidentified subject! Just wondering if due to TM if anybody has had problems in there marriage. Because I got a divorce a year ago. And today my kids told me that mommy has a boyfriend. And it hurts really bad, But there's nothing I can do about it! I know i'm feeling sorry for myself. I've gottin good at that over the past years! But as long as my kids are happy and i'm a good father that is the important part. Right? Steve Jabs from Pa
[TMIC] Part 4 of Acceptance is tough
The Emory backbone specialist said. I see a few problems with your back but none of which would cause the symptoms you have explained to me. You should not be Here, you should go see a neurologist. I'm not a specialist in that field but you might have some thing viral in your spinal cord. So get you an appointment with a neurologist. There is nothing I need to do for you. Now here we go back home and make an appointment with a neurologist. Of course that is another 2-3 weeks to get in his office. By this time I'm starting to show Some improvements with my balance and occasionally only use 1 cane to walk with at times. I have my visit with the neurologist which was very young like just out of medical school. He checks me out and pokes me with a needle all over finding out that I was totally numb and I remember being very surprised my self and even questioned him on the fact are you sure your using a sharp needle? He just smiled and said Yes. Thank goodness I guess that I could feel the vibration from the tuning fork on my big toes. The doctor looks at my MRI's and says I need you to go get another MRI. I'm like isn't the three you have now good enough? He said not really cause this one needs to be done with Contrast. So Now that takes another week. I remember telling my wife ok this is it, this is my last MRI, I'm not having another one I have never been so tired of being shoved in a tube in all my life. I was asked to have a nerve test done on my next scheduled visit after the Contrast MRI and Wow oh Yeah that was fun. Having the living day lights shocked out of you for 45 minutes straight uh huh yeah fun time there! Ok now I'm laying on the table with smoke rising from my charred body from the voltage testlol and the doctor comes in says I'm going to have a listen to your muscles,Ok, He proceeds to jab me with a needle and said hmmm you have the thickest skin I've ever seen, Let me get a longer probe So I get to listen to my own muscle move on Loud speaker in the office. Interesting. He finishes up , leaves, comes back sits down beside me and says You have Transverse Myelitis. Rather than him going into great detail (which now I know would have taken him forever to fully try and explain the illness) he said do you have internet access? I said yes and he wrote down the name of my illness and said look it up on the internet and you will be able to read a lot of information about it. And boy he was right, the info. is vast on the subject. Of course the doctor told me their was no cure for the illness and he could perscribe me Neurontin for my nerve burning pain. On my next visit with him I told him the Neurontin was causing me horrible nightmares, all of which I had never experienced before , and I mean horrible nightmares. He then switched me to Lyrica and although it does not make the constant burning and needle feelings go away. Lyrica does help to lower the intenseness. I now am able to walk without a cane and do physical labor work to some degree. I get fatigued a lot quicker these days and still feel very uneasy on ladders and depending on how hard I'm pushing myself sometimes the burning effects start hitting me hard. When I talked to the doctor about this he said for me to rest more in between my work so my spinal cord want over heat so bad. He is right, sometimes I can feel the heat inside my back from my spinal cord. My body still has a lot of numbness and I still cannot feel hot or cold on most of my body, but some sensations have come back on my hands and the tops of my arms. The doctor told me that it will take 2 years for me to know how much recovery I will have. He said most likely ever how you are 2 years after having TM that is how you will most likely stay. He also told me that 1/3 of the people that get TM are paralyzed for life. 1/3 have certain problems from TM and just have to live with it after 2 years. And the other 1/3 heal after 2 years and never even know they had TM with no symptoms at all. I can only hope that one day their will be a pill to take and make this illness go away. Gaylon, in Georgia **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301)
[TMIC] Gaylon's story
Gaylon Thankyou for sharing your story us. I'm glad you finally found a neuro who diagnosed you and treated you instead of sending you away. It's funny that you mentioned the nightmares while on Neurontin because I've been having stressful dreams that I'm sure must be due to one of my meds and I blame it on my switch from Neurontin too Lyrica and Cymbalta. Patti - Michigan
[TMIC] OT - info on Bernie
Preliminary report on dad is that everything was wrong in there. He is in immense pain right now, it will take a few days to get it back to what is normal; but he is a tough old bird and one hell of a fighter to stay here on this planet: and a man with a heart of gold. He is in a very bad palce, but all he thinks of is how are others doing. Anyhow, they had to replace all of the components, he will be better able to explain it to you when he gets home hopefully Monday. He sends his love and thanks to all of you. Laurie - oldest daughter begin:vcard fn:I would rather live in a world where my life is surrounded by mystery than live in a world so small that my mind could comprehend it. adr;dom:Apt. #203;;1941 Gaston Place Drive;Austin;Texas;78723 email;internet:[EMAIL PROTECTED] tel;home:512-926-5475 note:Thomas Jefferson said it best,--Those that trade freedom for security deserve neither freedom nor security x-mozilla-html:TRUE version:2.1 end:vcard
[TMIC] Jude
I talked to the Administrator at Judes Nursing Home, Heartland Healthcare Center, a Ms. Kimberley Lemaster. She stated to me that Jude is encouraged to try and turn herslf, which I agree with being in a Nursing Home myself at onset, but that wasn't the issue. The issue I brought up was, the night attendant being disrespectful and negligent via the Patients Bill of Rights. Ms. Lemaster suggested to me that she will place a tablet in Jude's room, and it will be signed by any attendant who is assigned to Jude, dates and times of attentive care. Ms. Lemaster also stated she will make a surprise visit on Sunday to check the status of same. Then she will call to keep me apprised of what is happening. I in turn will let all interested parties know that status of our conversation. Till then remeMber, your power lies in your refusal to be powerless. GUNNY **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301)
Re: [TMIC] Jude
*You're an angel, Gunny. Thank you.* *Gracie*
[TMIC] Fwd: (no subject)
**It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301) ---BeginMessage--- Hi All, I just wanted to share this with you. I just wanted to share this experience with you. I went to an Iridologist yesterday. That is someone who studies your eye and can tell where problems are. I was floored. I did not tell her of my TM because I did not want to give her any clues. She did not say I had MS or TM obviously, but she said I may have some type of neuropathy. She said I was having ear pain at night. Holy Cow!! How could she know that. She also told me I suffer from muscle cramps in my legs. I could go on and on, but she was so right on. She did not ask if I had any of these problems, she just told me. That was an awesome experience. Linda in Pa **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301) ---End Message---
Re: [TMIC] Fwd: (no subject)
Hi Linda, Did she have any suggestions on how to help with the problems?? Jenna - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: tmic-list@eskimo.com; [EMAIL PROTECTED] Sent: Friday, March 7, 2008 6:16:42 PM Subject: [TMIC] Fwd: (no subject) It's Tax Time! Get tips, forms and advice on AOL Money Finance. -Inline Message Follows- Hi All, I just wanted to share this with you. I just wanted to share this experience with you. I went to an Iridologist yesterday. That is someone who studies your eye and can tell where problems are. I was floored. I did not tell her of my TM because I did not want to give her any clues. She did not say I had MS or TM obviously, but she said I may have some type of neuropathy. She said I was having ear pain at night. Holy Cow!! How could she know that. She also told me I suffer from muscle cramps in my legs. I could go on and on, but she was so right on. She did not ask if I had any of these problems, she just told me. That was an awesome experience. Linda in Pa It's Tax Time! Get tips, forms and advice on AOL Money Finance. Hi All, I just wanted to share this with you. I just wanted to share this experience with you. I went to an Iridologist yesterday. That is someone who studies your eye and can tell where problems are. I was floored. I did not tell her of my TM because I did not want to give her any clues. She did not say I had MS or TM obviously, but she said I may have some type of neuropathy. She said I was having ear pain at night. Holy Cow!! How could she know that. She also told me I suffer from muscle cramps in my legs. I could go on and on, but she was so right on. She did not ask if I had any of these problems, she just told me. That was an awesome experience. Linda in Pa It's Tax Time! Get tips, forms and advice on AOL Money Finance. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
[TMIC] I hope this can help
Transverse Myelitis Overview Transverse myelitis (TM) is a neurological condition produced by abnormal inflammation in the spinal cord, resulting in block of the nerve impulses and neurologic symptoms. TM is a rare disease, with a frequency estimated to be five new cases for every one million people. TM can affect anybody, regardless of age, gender, or race. Symptoms Typical symptoms of TM include: * Back or neck pain * Weakness in the arms or legs * Muscle spasms * Numbness or tingling * Loss of bladder or bowel control The distribution of symptoms depends on the location of the inflammation. Inflammation in the neck produces symptoms from the neck down. Inflammation in the mid-spine produces symptoms from the waist down. The severity of TM depends upon the severity and extent of the inflammation. Symptoms usually develop over a period of several hours up to several weeks. Over this time, the symptoms become more severe, they may spread, and new symptoms may accumulate. Symptoms typically persist for weeks to months then improve over months. Recovery can range from minimal to complete. TM can be monophasic (occurring only once) or recurrent (with repeated episodes). Cause There are many potential causes of TM, including: * Idiopathic. Much of the time, a specific cause of TM is not identified * Multiple sclerosis: TM can develop as one type of MS attack (relapse), including the first MS attack. In general, TM in MS tends to be a less severe form. * Devic’s Neuromyelitis Optica, is a disorder related to MS that produces severe recurrent TM and optic neuritis (inflammation in the optic nerve that connects the eye to the brain). * Systemic inflammatory diseases. Diseases such as Systemic Lupus Erythematosus, Sjogren’s syndrome, or sarcoidosis can cause TM. * Infections. TM can develop in association with a variety of infections, both viruses (for example, herpes simplex, Epstein-Barr, influenza, and HIV) and bacteria (for example tuberculosis, syphilis, and Lyme). Diagnosis The first step to making the diagnosis of TM is for a physician to review the medical history and perform a physical examination. If this review suggests a spinal cord problem, making the diagnosis of TM involves 1) eliminating the possibility that a process other than inflammation is affecting the spinal cord, for example a tumor, a herniated disc, or abscess compressing the spinal cord, 2) confirming the presence of abnormal inflammation within the spinal cord, and 3) trying to identify the cause for the abnormal inflammation. The initial test usually is an MRI scan of the spine to confirm the presence of inflammation in the cord and rule out some other cause of a spinal cord problem. If the MRI scan shows lesions (spots) in the spinal cord with the appearance of TM, a lumbar puncture often is performed to confirm inflammation and to help determine its cause, for example looking for MS or infection. An MRI scan of the brain may be performed looking for other lesions suggestive of MS. Finally, blood tests can also help identify the cause. Treatment Treatment of TM is aimed at relieving the abnormal inflammation with the goal of accelerating recovery, limiting tissue damage, and improving recovery. TM is treated most often with high-dose corticosteroids. Corticosteroids work by reducing inflammation and by reducing the activity of the immune system. If corticosteroids are ineffective, plasma exchange, intravenous gamma globulin, or other immune suppressing drugs sometimes are used. Management of the symptoms of TM, for example, pain, spasms, bladder or bowel problems also is an important aspect of management. Recovery from TM is highly variable among individuals. Approximately one-third of people with TM experience good to complete recovery, another third experience fair recovery, and the remaining third have poor recovery. Most improvement occurs within the first three to six months, although some gradual improvement can continue for up to several years. For patients experiencing sequelae of TM, some daily activities can become challenging. Physical therapy, occupational therapy, and other rehabilitation approaches can help improve function. For further information Like most disorders, knowledge is an important tool to help manage TM and its complications. The following organizations can provide more information about TM: The Transverse Myelitis Association 1787 Sutter Parkway Powell, OH 43065-8806 (614) 766-1806 www.myelitis.org National MS Society 733 Third Avenue New York, NY 10017-3288 www.nationalmssociety.org National Institute of Neurological Disorders and Stroke P.O. Box 5801 Bethesda, MD 20824 Phone: (800) 352-9424 www.ninds.nih.gov ©Copyright 1995-2008 Cleveland Clinic. All rights reserved. Can't find the health
Re: [TMIC] Jude
Thank you so much Gunny for everything you have done for Jude. You are a very special person. Linda (ID) - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: Tmic-list@eskimo.commailto:Tmic-list@eskimo.com Sent: Friday, March 07, 2008 1:22 PM Subject: [TMIC] Jude I talked to the Administrator at Judes Nursing Home, Heartland Healthcare Center, a Ms. Kimberley Lemaster. She stated to me that Jude is encouraged to try and turn herslf, which I agree with being in a Nursing Home myself at onset, but that wasn't the issue. The issue I brought up was, the night attendant being disrespectful and negligent via the Patients Bill of Rights. Ms. Lemaster suggested to me that she will place a tablet in Jude's room, and it will be signed by any attendant who is assigned to Jude, dates and times of attentive care. Ms. Lemaster also stated she will make a surprise visit on Sunday to check the status of same. Then she will call to keep me apprised of what is happening. I in turn will let all interested parties know that status of our conversation. Till then remeMber, your power lies in your refusal to be powerless. GUNNY -- It's Tax Time! Get tips, forms and advice on AOL Money Finance.http://money.aol.com/tax?NCID=aolprf000301
Re: [TMIC] Part 4 of Acceptance is tough
Gaylon, I'm really sorry that you have had to go through so darn much. Thank you for taking the time to share your experiences with us. It took almost 3 months before I was diagnosed with TM, and unfortunately I was sent to a neurologist who just dropped the ball. When he finally told me that I have TM, I had no clue what he was talking about. He just told me this is as good as it's going to get - Even though I didn't understand what I had, I am not a quitter and I told him I chose not to believe that and left his office - and never went back. But I did go on the internet, found the Transverse Myelitis Assoc and this very warm and welcoming group and a wealth of information. I am so thankful. Linda in Idaho - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Friday, March 07, 2008 8:28 AM Subject: [TMIC] Part 4 of Acceptance is tough The Emory backbone specialist said. I see a few problems with your back but none of which would cause the symptoms you have explained to me. You should not be Here, you should go see a neurologist. I'm not a specialist in that field but you might have some thing viral in your spinal cord. So get you an appointment with a neurologist. There is nothing I need to do for you. Now here we go back home and make an appointment with a neurologist. Of course that is another 2-3 weeks to get in his office. By this time I'm starting to show Some improvements with my balance and occasionally only use 1 cane to walk with at times. I have my visit with the neurologist which was very young like just out of medical school. He checks me out and pokes me with a needle all over finding out that I was totally numb and I remember being very surprised my self and even questioned him on the fact are you sure your using a sharp needle? He just smiled and said Yes. Thank goodness I guess that I could feel the vibration from the tuning fork on my big toes. The doctor looks at my MRI's and says I need you to go get another MRI. I'm like isn't the three you have now good enough? He said not really cause this one needs to be done with Contrast. So Now that takes another week. I remember telling my wife ok this is it, this is my last MRI, I'm not having another one I have never been so tired of being shoved in a tube in all my life. I was asked to have a nerve test done on my next scheduled visit after the Contrast MRI and Wow oh Yeah that was fun. Having the living day lights shocked out of you for 45 minutes straight uh huh yeah fun time there! Ok now I'm laying on the table with smoke rising from my charred body from the voltage testlol and the doctor comes in says I'm going to have a listen to your muscles,Ok, He proceeds to jab me with a needle and said hmmm you have the thickest skin I've ever seen, Let me get a longer probe So I get to listen to my own muscle move on Loud speaker in the office. Interesting. He finishes up , leaves, comes back sits down beside me and says You have Transverse Myelitis. Rather than him going into great detail (which now I know would have taken him forever to fully try and explain the illness) he said do you have internet access? I said yes and he wrote down the name of my illness and said look it up on the internet and you will be able to read a lot of information about it. And boy he was right, the info. is vast on the subject. Of course the doctor told me their was no cure for the illness and he could perscribe me Neurontin for my nerve burning pain. On my next visit with him I told him the Neurontin was causing me horrible nightmares, all of which I had never experienced before , and I mean horrible nightmares. He then switched me to Lyrica and although it does not make the constant burning and needle feelings go away. Lyrica does help to lower the intenseness. I now am able to walk without a cane and do physical labor work to some degree. I get fatigued a lot quicker these days and still feel very uneasy on ladders and depending on how hard I'm pushing myself sometimes the burning effects start hitting me hard. When I talked to the doctor about this he said for me to rest more in between my work so my spinal cord want over heat so bad. He is right, sometimes I can feel the heat inside my back from my spinal cord. My body still has a lot of numbness and I still cannot feel hot or cold on most of my body, but some sensations have come back on my hands and the tops of my arms. The doctor told me that it will take 2 years for me to know how much recovery I will have. He said most likely ever how you are 2 years after having TM that is how you will most likely stay. He also told me that 1/3 of the people that get TM are paralyzed for life. 1/3 have certain problems from TM and just have to live with it after 2 years. And the other 1/3
Re: [TMIC] March Birthdays
HAPPY BIRTHDAY TO ALL THE MARCH BABIES! WHAT A GREAT TIME TO BE BORN - SPRING!!! - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Friday, February 29, 2008 10:03 PM Subject: [TMIC] March Birthdays Happy Birthday to the March babies! I love that spring comes this month! And an early Easter this year, too. Hope you all have a great birthday. As always, send any corrections or additions to tmic-list@eskimo.commailto:tmic-list@eskimo.com. 3-3 Marsha Scholes ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 03.05 Bettie Imus ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 3-6 Robert Lovette [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] 3-7 Sue Mattis ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 3-15 Sandra Melville ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 3-17 Joy S. ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 3/24 Rachel ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 3/24 john h (JOHNLOVESKARAOKE) 3/30 Gary ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 3-31 Jan H ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) -- Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/2050827?NCID=aolcmp0030002598Emoticon74.gifEmoticon30.gifEmoticon29.gif
