[TMIC] FW: Qtherapeutics: volunteers
I received this feedback after contacting the company doing Q Therapeutics. I thought the group might find this interesting..I did considering that Dr. Kerr Is my main Neuro! Rob in New Jersey -Original Message- From: Borst, Steve [mailto:[EMAIL PROTECTED] Sent: Monday, April 14, 2008 7:56 PM To: Robert Pall Subject: RE: Qtherapeutics: volunteers Hello Robert Thank you for your email. Q Therapeutics, Inc. is a development stage company initially focused on treating demyelinating conditions of the brain and spine. At the present time none of our products have progressed beyond the pre-clinical stage. Thus, we are not able to offer any products for human therapeutic uses. We hope that our plans for a first clinical trial in Transverse Myelitis will be approved next year by the FDA. Should that happen, we would begin a small trial in TM at Johns Hopkins University. While they have not yet finalized the inclusion criteria for the TM trial, you may wish to make yourself known to Doug Kerr who will be running the TM trial at Johns Hopkins. You can learn more about him at http://www.hopkinsneuro.org/tm/ We welcome your following our progress and appreciate your interest in and support for our work. Best regards, Steve -Original Message- From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 09, 2008 10:08 AM To: info Subject: Qtherapeutics: volunteers This is an enquiry e-mail via http://www.qthera.com from: Robert Pall [EMAIL PROTECTED] I have had TM for more tha 10 years. How does one get into the program? Are human tests currently being done?
Re: [TMIC] FW: Qtherapeutics: volunteers
Rob, thanks for sending this! Have a good day! Jenna - Original Message From: Robert Pall [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Tuesday, April 15, 2008 7:47:43 AM Subject: [TMIC] FW: Qtherapeutics: volunteers I received this feedback after contacting the company doing Q Therapeutics. I thought the group might find this interesting..I did considering that Dr. Kerr Is my main Neuro! Rob in New Jersey -Original Message- From: Borst, Steve [mailto:[EMAIL PROTECTED] Sent: Monday, April 14, 2008 7:56 PM To: Robert Pall Subject: RE: Qtherapeutics: volunteers Hello Robert Thank you for your email. Q Therapeutics, Inc. is a development stage company initially focused on treating demyelinating conditions of the brain and spine. At the present time none of our products have progressed beyond the pre-clinical stage. Thus, we are not able to offer any products for human therapeutic uses. We hope that our plans for a first clinical trial in Transverse Myelitis will be approved next year by the FDA. Should that happen, we would begin a small trial in TM at Johns Hopkins University. While they have not yet finalized the inclusion criteria for the TM trial, you may wish to make yourself known to Doug Kerr who will be running the TM trial at Johns Hopkins. You can learn more about him at http://www.hopkinsneuro.org/tm/ We welcome your following our progress and appreciate your interest in and support for our work. Best regards, Steve -Original Message- From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 09, 2008 10:08 AM To: info Subject: Qtherapeutics: volunteers This is an enquiry e-mail via http://www.qthera.com from: Robert Pall [EMAIL PROTECTED] I have had TM for more tha 10 years. How does one get into the program? Are human tests currently being done? Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [TMIC] sores
Thanks for the update. Let us know how she does with it. Have a good day! Jenna - Original Message From: Tracey L. Black [EMAIL PROTECTED] To: [EMAIL PROTECTED]; Akua [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Tuesday, April 15, 2008 9:37:31 AM Subject: RE: [TMIC] sores I called the Dr. office yesterday and they called in an antibiotic ointment to be applied 2 times a day. I looked a little better this morning. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, April 14, 2008 5:47 PM To: Akua; Tracey L. Black; tmic-list@eskimo.com Subject: RE: [TMIC] sores Neosporin would be my first choice. Ouch! Can the orthotist pad the area so this doesn't happen again? Maybe there is too much slipage in the brace. Has she lost weight since it was originally fitted? Akua [EMAIL PROTECTED] wrote: I use a range of different things depending on the type of irritation Hydrocortisone 1% AD ointment Shea butter Neosporin Baby creme Zinc Oxide It sounds like you need to stop the abrasion as well as heal the irritation . ( I don't think of what you described as a sore in the same sense as pressure sores) Best, Akua ok, I have a question now. My daughter was at Hershey park this past Saturday, walking around all day. When she came home she took off her leg brace and realized that she had a huge sore on the side of her foot where the footplate rests against her foot. It is about the size of a quarter. Her bone there protrudes some so I guess that is what really made that area more susceptible to getting a sore. What should I be putting on it to get it healed quickly? Tracey L. Black -- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
RE: [TMIC] sores
I called the Dr. office yesterday and they called in an antibiotic ointment to be applied 2 times a day. I looked a little better this morning. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, April 14, 2008 5:47 PM To: Akua; Tracey L. Black; tmic-list@eskimo.com Subject: RE: [TMIC] sores Neosporin would be my first choice. Ouch! Can the orthotist pad the area so this doesn't happen again? Maybe there is too much slipage in the brace. Has she lost weight since it was originally fitted? Akua [EMAIL PROTECTED] wrote: I use a range of different things depending on the type of irritation Hydrocortisone 1% AD ointment Shea butter Neosporin Baby creme Zinc Oxide It sounds like you need to stop the abrasion as well as heal the irritation . ( I don't think of what you described as a sore in the same sense as pressure sores) Best, Akua ok, I have a question now. My daughter was at Hershey park this past Saturday, walking around all day. When she came home she took off her leg brace and realized that she had a huge sore on the side of her foot where the footplate rests against her foot. It is about the size of a quarter. Her bone there protrudes some so I guess that is what really made that area more susceptible to getting a sore. What should I be putting on it to get it healed quickly? Tracey L. Black --
Re: [TMIC] FW: Qtherapeutics: volunteers
Thanks Rob! I'll write Dr. Kerr, again. Akua I received this feedback after contacting the company doing Q Therapeutics. I thought the group might find this interesting..I did considering that Dr. Kerr Is my main Neuro! Rob in New Jersey -Original Message- From: Borst, Steve [mailto:[EMAIL PROTECTED] Sent: Monday, April 14, 2008 7:56 PM To: Robert Pall Subject: RE: Qtherapeutics: volunteers Hello Robert .. While they have not yet finalized the inclusion criteria for the TM trial, you may wish to make yourself known to Doug Kerr who will be running the TM trial at Johns Hopkins. You can learn more about him at http://www.hopkinsneuro.org/tm/ We welcome your following our progress and appreciate your interest in and support for our work. Best regards, Steve --
[TMIC] Thanks to the list.
I would just like to thank all of the people on the list who responded to me in the past few weeks. It helped me thru a difficult time! I have been married for 38+ years and my wife has no idea what I go through on a daily basisnor do my children, my relatives and my friends. Only the people on the list truly understand what it is like to get sick and never get better! Only the people on the list relate to terms such as banding, pins needles, freezing/burning etc. Only the people who have TM can truly relate to TM and how (in my case) in just a few hours my life changed for the worse. I am sorry I and all of you have TM...but I am extremely grateful for the people on the list who always find the time to help! THANK YOU ALL! Rob in New Jersey
RE: [TMIC] sores
Wish her the best with this! Akua I called the Dr. office yesterday and they called in an antibiotic ointment to be applied 2 times a day. I looked a little better this morning. Tracey L. Black --
RE: [TMIC] Thanks to the list.
Has anyone ever figured out how to make non TM'rs understand what we go thru 24/7. If so plase sare the secret! Rob From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 15, 2008 3:30 PM To: Robert Pall Subject: Re: [TMIC] Thanks to the list. Rob, That's the best thing about this list.Everyone knows how it feels to have tm;it's not something that a regular person understands. Cheryl in Easthampton,Mass. Robert Pall [EMAIL PROTECTED] wrote: I would just like to thank all of the people on the list who responded to me in the past few weeks. It helped me thru a difficult time! I have been married for 38+ years and my wife has no idea what I go through on a daily basisnor do my children, my relatives and my friends. Only the people on the list truly understand what it is like to get sick and never get better! Only the people on the list relate to terms such as banding, pins needles, freezing/burning etc. Only the people who have TM can truly relate to TM and how (in my case) in just a few hours my life changed for the worse. I am sorry I and all of you have TM...but I am extremely grateful for the people on the list who always find the time to help! THANK YOU ALL! Rob in New Jersey between -00-00 and -99-99
Re: [TMIC] Thanks to the list/understanding TM
I don't have TM, my husband does, (8 years now). Therefore, I will try to speak from the standpoint of understanding. However, I don't FEEL his pain, but I SYMPATHIZE with his pain. I sympathize with; his daily issues, his paralysis, his complaints, his clonus, his feeling of inadequacies, his feelings of frustration and pain over sexual dysfunction and bladder dysfunction, his loss of his past life and of OUR past lives. I LISTEN to him. I AM THERE FOR HIM. I encourage him, I apologize for his pain and anything that will make him understand that I UNDERSTAND to a degree. But, I don't think anyone can FULLY understand unless they have TM. He knows I understand more about TM than many. But, as they say, unless you can walk the walk.. I, more than likely, will never walk that walk. I love him, I am committed to him and I will continue to do my best to understand TM thru his eyes. He is very detail oriented about it - so that in itself, helps me understand better. Anyone with a disease such as TM, needs someone to listen to them with compassion in their heart. I will always do my best to be that person. Sandy Parker Has anyone ever figured out how to make non TM'rs understand what we go thru 24/7. If so plase sare the secret! -Original Message- From: Robert Pall [EMAIL PROTECTED] To: [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Tue, 15 Apr 2008 12:36 pm Subject: RE: [TMIC] Thanks to the list. Has anyone ever figured out how to make non TM'rs understand what we go thru 24/7. If so plase sare the secret! Rob From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 15, 2008 3:30 PM To: Robert Pall Subject: Re: [TMIC] Thanks to the list. Rob, That's the best thing about this list.Everyone knows how it feels to have tm;it's not something that a regular person understands. Cheryl in Easthampton,Mass. Robert Pall [EMAIL PROTECTED] wrote: I would just like to thank all of the people on the list who responded to me in the past few weeks. It helped me thru a difficult time! I have been married for 38+ years and my wife has no idea what I go through on a daily basis….nor do my children, my relatives and my friends. Only the people on the list truly understand what it is like to get sick and never get better! Only the people on the list relate to terms such as banding, pins needles, freezing/burning etc. Only the people who have TM can truly relate to TM and how (in my case) in just a few hours my life changed for the worse. I am sorry I and all of you have TM…but I am extremely grateful for the people on the list who always find the time to help! THANK YOU ALL! Rob in New Jersey between -00-00 and -99-99
[TMIC] Thanks to the list/understanding TM
Sandy, As usual, you've done a grand job of explaining about what youall've experienced these last few years! you speak as you help and love TerryI'm certain that not all of us have a caretaker like you, or my Frank!! thank goodness we have each other on the list! janh I don't have TM, my husband does, (8 years now). Therefore, I will try to speak from the standpoint of understanding. However, I don't FEEL his pain, but I SYMPATHIZE with his pain. I sympathize with; his daily issues, his paralysis, his complaints, his clonus, his feeling of inadequacies, his feelings of frustration and pain over sexual dysfunction and bladder dysfunction, his loss of his past life and of OUR past lives. I LISTEN to him. I AM THERE FOR HIM. I encourage him, I apologize for his pain and anything that will make him understand that I UNDERSTAND to a degree. But, I don't think anyone can FULLY understand unless they have TM. He knows I understand more about TM than many. But, as they say, unless you can walk the walk.. I, more than likely, will never walk that walk. I love him, I am committed to him and I will continue to do my best to understand TM thru his eyes. He is very detail oriented about it - so that in itself, helps me understand better. Anyone with a disease such as TM, needs someone to listen to them with compassion in their heart. I will always do my best to be that person. Sandy Parker Has anyone ever figured out how to make non TM'rs understand what we go thru 24/7. If so plase sare the secret! Has anyone ever figured out how to make non TM'rs understand what we go thru 24/7. If so plase sare the secret! Rob [TMIC] Thanks to the list. Rob, That's the best thing about this list.Everyone knows how it feels to have tm;it's not something that a regular person understands. Cheryl in Easthampton,Mass. I would just like to thank all of the people on the list who responded to me in the past few weeks. It helped me thru a difficult time! I have been married for 38+ years and my wife has no idea what I go through on a daily basis, nor do my children, my relatives and my friends. Only the people on the list truly understand what it is like to get sick and never get better! Only the people on the list relate to terms such as banding, pins needles, freezing/burning etc. Only the people who have TM can truly relate to TM and how (in my case) in just a few hours my life changed for the worse. I am sorry I and all of you have TM but I am extremely grateful for the people on the list who always find the time to help! THANK YOU ALL! Rob in New Jersey between -00-00 and -99-99 - Get the MapQuest Toolbar, Maps, Traffic, Directions More!
[TMIC] Magnetic Therapy
Has anyone worked with ferrite magnets? If so, what gauss were the magnets? Did you pay attention to polarity (north vs south)? Where did you get your magnets? Thanks, Akua -- http://www.akuadesigns.etsy.com http://www.artfarm.com
Re: [TMIC] FW: Qtherapeutics: volunteers
Rob It would be great if you were choosen for the trial. You've offered, you know Dr Kerr and you would have all of us praying, hoping, and cheering for you! Patti - Michigan Robert Pall [EMAIL PROTECTED] wrote: I received this feedback after contacting the company doing Q Therapeutics. I thought the group might find this interesting..I did considering that Dr. Kerr Is my main Neuro! Rob in New Jersey -Original Message- From: Borst, Steve [mailto:[EMAIL PROTECTED] Sent: Monday, April 14, 2008 7:56 PM To: Robert Pall Subject: RE: Qtherapeutics: volunteers Hello Robert Thank you for your email. Q Therapeutics, Inc. is a development stage company initially focused on treating demyelinating conditions of the brain and spine. At the present time none of our products have progressed beyond the pre-clinical stage. Thus, we are not able to offer any products for human therapeutic uses. We hope that our plans for a first clinical trial in Transverse Myelitis will be approved next year by the FDA. Should that happen, we would begin a small trial in TM at Johns Hopkins University. While they have not yet finalized the inclusion criteria for the TM trial, you may wish to make yourself known to Doug Kerr who will be running the TM trial at Johns Hopkins. You can learn more about him at http://www.hopkinsneuro.org/tm/ We welcome your following our progress and appreciate your interest in and support for our work. Best regards, Steve -Original Message- From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 09, 2008 10:08 AM To: info Subject: Qtherapeutics: volunteers This is an enquiry e-mail via http://www.qthera.com from: Robert Pall [EMAIL PROTECTED] I have had TM for more tha 10 years. How does one get into the program? Are human tests currently being done?
Re: [TMIC] Thanks to the list/understanding TM
Sandy, I have been amazed that you have kept up with all of us as if you were the one with TM. I know you care about us and keep up with our struggles and acomplishments so I can only imagine how supportive you have been for Terry. You're fortunate to have each other. Patti - Michigan [EMAIL PROTECTED] wrote: I don't have TM, my husband does, (8 years now). Therefore, I will try to speak from the standpoint of understanding. However, I don't FEEL his pain, but I SYMPATHIZE with his pain. I sympathize with; his daily issues, his paralysis, his complaints, his clonus, his feeling of inadequacies, his feelings of frustration and pain over sexual dysfunction and bladder dysfunction, his loss of his past life and of OUR past lives. I LISTEN to him. I AM THERE FOR HIM. I encourage him, I apologize for his pain and anything that will make him understand that I UNDERSTAND to a degree. But, I don't think anyone can FULLY understand unless they have TM. He knows I understand more about TM than many. But, as they say, unless you can walk the walk.. I, more than likely, will never walk that walk. I love him, I am committed to him and I will continue to do my best to understand TM thru his eyes. He is very detail oriented about it - so that in itself, helps me understand better. Anyone with a disease such as TM, needs someone to listen to them with compassion in their heart. I will always do my best to be that person. Sandy Parker Has anyone ever figured out how to make non TM'rs understand what we go thru 24/7. If so plase sare the secret! -Original Message- From: Robert Pall [EMAIL PROTECTED] To: [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Tue, 15 Apr 2008 12:36 pm Subject: RE: [TMIC] Thanks to the list. Has anyone ever figured out how to make non TM'rs understand what we go thru 24/7. If so plase sare the secret! Rob From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 15, 2008 3:30 PM To: Robert Pall Subject: Re: [TMIC] Thanks to the list. Rob, That's the best thing about this list.Everyone knows how it feels to have tm;it's not something that a regular person understands. Cheryl in Easthampton,Mass. Robert Pall [EMAIL PROTECTED] wrote: I would just like to thank all of the people on the list who responded to me in the past few weeks. It helped me thru a difficult time! I have been married for 38+ years and my wife has no idea what I go through on a daily basis….nor do my children, my relatives and my friends. Only the people on the list truly understand what it is like to get sick and never get better! Only the people on the list relate to terms such as banding, pins needles, freezing/burning etc. Only the people who have TM can truly relate to TM and how (in my case) in just a few hours my life changed for the worse. I am sorry I and all of you have TM…but I am extremely grateful for the people on the list who always find the time to help! THANK YOU ALL! Rob in New Jersey between -00-00 and -99-99
RE: [TMIC] Thanks to the list.
I think a person will only understand as much as they want to put into the trying. They can research and learn, ask questions and wait for the answers, be sympathetic, remove obstacles, and soften our fall, but they have to want to or we're going to end up spending our own energy trying to teach them. We all get tired of TM and TM makes us all tired! However, it's Spring in Michigan and today that's enough for me! Patti - Robert Pall [EMAIL PROTECTED] wrote: Has anyone ever figured out how to make non TM'rs understand what we go thru 24/7. If so plase sare the secret! Rob From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 15, 2008 3:30 PM To: Robert Pall Subject: Re: [TMIC] Thanks to the list. Rob, That's the best thing about this list.Everyone knows how it feels to have tm;it's not something that a regular person understands. Cheryl in Easthampton,Mass. Robert Pall [EMAIL PROTECTED] wrote: I would just like to thank all of the people on the list who responded to me in the past few weeks. It helped me thru a difficult time! I have been married for 38+ years and my wife has no idea what I go through on a daily basisnor do my children, my relatives and my friends. Only the people on the list truly understand what it is like to get sick and never get better! Only the people on the list relate to terms such as banding, pins needles, freezing/burning etc. Only the people who have TM can truly relate to TM and how (in my case) in just a few hours my life changed for the worse. I am sorry I and all of you have TM...but I am extremely grateful for the people on the list who always find the time to help! THANK YOU ALL! Rob in New Jersey between -00-00 and -99-99
Re: [TMIC] Thanks to the list/understanding TM
My Dear Friend Sandy, I think that you are a wonderful partner for Terry. One of the things that makes you this great partner is that you have gotten involved in being a part this group to learn about all the aspects that we TM'ers deal with on a daily basis. That has given you a great deal of insight and I would think has made it easier for you to relate to his issues as a normal part of this. Even though we are all different, in so many ways, we have so many common complaints/problems/residuals, etc. This doesn't in any way mean that you weren't committed to your marriage and wouldn't have done the same thing that you are already doing to make your lives as good as you can now. I think it just means that you have more understanding of what kind of things are going on and that you can also give him feedback from the group. I certainly wish I could get my husband Pete to read some of the messages. He won't, so I stopped pushing. I think it's like therapy, it is for me anyway. I think there is a lot of good information on this site for caretakers. Hugs to you and Terry, Barbara **It's Tax Time! Get tips, forms and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolcmp0030002850)
