[TMIC] Re: tmic-digest Digest V2008 #178
I have question, are there anyone out there on Lyrica? Is it better than Neurontin? or can someone explain it to me. Hp - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Saturday, April 19, 2008 6:12 PM Subject: tmic-digest Digest V2008 #178
RE: [TMIC] Re: tmic-digest Digest V2008 #178
I have been on Lyrica for more than 2 years. Itake 450 mg per day and have not found negative side effects. It has proven helpful to me in lessening the banding and pins and needles sensations! Rob in New Jersey -Original Message- From: harold [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 22, 2008 8:28 AM To: tmic-list@eskimo.com Subject: [TMIC] Re: tmic-digest Digest V2008 #178 I have question, are there anyone out there on Lyrica? Is it better than Neurontin? or can someone explain it to me. Hp - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Saturday, April 19, 2008 6:12 PM Subject: tmic-digest Digest V2008 #178
Re: [TMIC] Re: tmic-digest Digest V2008 #178
Good morning. I'm on 450 mg/day of Lyrica. I still have a great deal of pain but the Lyrica takes the edge off. I was on Gabapentin for a while but it wasn't helping at all. I have never taken Neurontin so I can't compare. Diane in Canada - Original Message - From: harold [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Tuesday, April 22, 2008 8:27 AM Subject: [TMIC] Re: tmic-digest Digest V2008 #178 I have question, are there anyone out there on Lyrica? Is it better than Neurontin? or can someone explain it to me. Hp - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Saturday, April 19, 2008 6:12 PM Subject: tmic-digest Digest V2008 #178
Re: [TMIC] Re: tmic-digest Digest V2008 #178
I've been on Lyrica for quite some time and have never tried Neurontin so I can't help you...sorry! Jeanne in Dayton ---Original Message--- From: harold Date: 4/22/2008 7:28:41 AM To: tmic-list@eskimo.com Subject: [TMIC] Re: tmic-digest Digest V2008 #178 I have question, are there anyone out there on Lyrica? Is it better than Neurontin? or can someone explain it to me. Hp - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Saturday, April 19, 2008 6:12 PM Subject: tmic-digest Digest V2008 #178
Re: [TMIC] Seattle Symposium Hotel Reservation Number Change
Just to clarify the discount group rates, $199 for Wed. and Thurs. and then $139 for Fri. And Sat, which averages out to $169 per night for 4 nights. At 11:56 AM 4/21/2008, Jim Lubin wrote: The symposium will be held at the Redmond Marriott Town Center. You can begin making your reservations at the hotel today! To receive our special rate, please ask for the Rare Disorders Symposium rate when you call (approximately $170 without taxes). To make your reservation at the special group rate, you need to contact Katina Alley, 425-498-4024, she works from 8am-4pm Monday- Friday PDT. Email address if that is easier for the international attendees [EMAIL PROTECTED] We cannot guarantee you either a room in the Marriott or the group rate, if you make your reservations after June 1, 2008. The program will begin on Wednesday evening, July 16th and will be completed with the dinner banquet on Saturday evening, July 19th. See this web site for symposium Agenda, hotel information and registration: http://www.myelitis.org/2008SeattleSymposiumhttp://www.myelitis.org/2008SeattleSymposium
Re: [TMIC] Re: tmic-digest Digest V2008 #178
Harold I've had TM since '02 and was on neurontin for years. I was up to 2400mg a day. Then Lyrica appeared on the market. When I asked my neuro he just said it was the newest drug on the market for neuropathic pain, seemed to have less side effects. Now as we know we are all very unique and so is TM. Many tried to switch from Neurontin to Lyrica but were not able to tolerate it. I take 150mg. twice a day. Tho now after reading that some are on 450mg. a day I might ask about increasing it. I have quite a bit of pain. I also take 60mg. of cymbalta (this drug is used for depression but was found to help many with neuropathic pain.) Two birds with one stone! I hope this has been helpful. Trudy Ogilvie Worrying does not empty tomorrow of its troubles; *It empties today of its strengths.* On Tue, Apr 22, 2008 at 8:27 AM, harold [EMAIL PROTECTED] wrote: I have question, are there anyone out there on Lyrica? Is it better than Neurontin? or can someone explain it to me. Hp - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Saturday, April 19, 2008 6:12 PM Subject: tmic-digest Digest V2008 #178
Re: [TMIC] Re: tmic-digest Digest V2008 #178
I was given Neurontin in the early days of my illness. It made me very lethargic, and I was unable to tolerate it. My doctor then prescribed Lyrica. I take 400 mg twice a day. I also take 60 mg of Cymbalta, Vicodin three times a day, and also use a 50 mg Fentanyl patch. I still have pain, but I cannot imagine what it would be like if I were not taking these medications. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
[TMIC] again Lyrica
Please before you bring up a subject, please check the archives. Ofcourse things will change in time, but some discussions are still fresh. By checking the archives on subjects you only can find a answer to your questions, but can also get a better few in the case you are interested in and come up with questions no one had thought about. Not that I will say that any question have to be checked, but a lot of medication is already discussed. Wim from Holland _ Check je Hotmail nu ook op je mobiel! http://windowslivemobile.msn.com/BrowserServiceHotmail.aspx?lang=nl-nl
[TMIC] Re: Drugs for pain
Harold, I was frightened by the drugs used to control TM pain... especially by the ramp up and adjustment I had read about. I now only use naltrexone and take an aspirin daily. I'm so grateful I learned about low dose naltrexone on this list. Akua --
Re: [TMIC] Re: Drugs for pain
It's always so interesting to read the different messages on the meds and see what our providers have us on. With the TM it certainly comes down to treating the symptoms and often times the symptoms are different from day to day. I truly appreciate reading all of your different e-mails and thank you all. Jeanne in Dayton ---Original Message--- From: Akua Date: 4/22/2008 6:45:31 PM To: tmic-list@eskimo.com Subject: [TMIC] Re: Drugs for pain Harold, I was frightened by the drugs used to control TM pain... especially by the ramp up and adjustment I had read about. I now only use naltrexone and take an aspirin daily. I'm so grateful I learned about low dose naltrexone on this list. Akua --
Re: [TMIC] again Lyrica
Wim, (and all of you who have been with TMIC longer) please forgive my ignorance but why do we have both this site plus the archives? I just went into the archives (thank you!) and notice the same 'type' of conversations but they are divided into 'subject' and it is helpful to see that some are pretty current. I tried to find the answer before even sending this message. Thank you ALL for all of your input. I do so appreciate it! Jeanne in Dayton ---Original Message--- From: wim from holland Date: 4/22/2008 6:24:22 PM To: TMIC Subject: [TMIC] again Lyrica Please before you bring up a subject, please check the archives. Ofcourse things will change in time, but some discussions are still fresh. By checking the archives on subjects you only can find a answer to your questions, but can also get a better few in the case you are interested in and come up with questions no one had thought about. Not that I will say that any question have to be checked, but a lot of medication is already discussed. Wim from Holland Het beste van Windows, nu ook online. Deel jouw wereld met Windows Live. Download nu.
Re: [TMIC] again Lyrica
The archives are just previous messages that have come through the TMIC. If it is in the archives that just means it has been discussed before, but that doesn't mean it can't be discussed again for those who weren't here then. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 4/22/2008 8:56:34 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Wim, (and all of you who have been with TMIC longer) please forgive my ignorance but why do we have both this site plus the archives? I just went into the archives (thank you!) and notice the same 'type' of conversations but they are divided into 'subject' and it is helpful to see that some are pretty current. I tried to find the answer before even sending this message. Thank you ALL for all of your input. I do so appreciate it! Jeanne in Dayton **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [TMIC] again Lyrica
To Jeanne and all the new comers, yiou guys can post whatever you guys want because whats in the archives can be old and someone may have a new development. There is no rule about posting the same question or subject twice. I may want to ask a question again that i already just to see if anyone has gheard something new on it. take care SaL [EMAIL PROTECTED] wrote: The archives are just previous messages that have come through the TMIC. If it is in the archives that just means it has been discussed before, but that doesn't mean it can't be discussed again for those who weren't here then. Barbara H. http://barbarah.wordpress.com/ In a message dated 4/22/2008 8:56:34 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Wim, (and all of you who have been with TMIC longer) please forgive my ignorance but why do we have both this site plus the archives? I just went into the archives (thank you!) and notice the same 'type' of conversations but they are divided into 'subject' and it is helpful to see that some are pretty current. I tried to find the answer before even sending this message. Thank you ALL for all of your input. I do so appreciate it! Jeanne in Dayton - Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [TMIC] again Lyrica
Thanks, Sal...I can't tell you how much this site has meant to me. Before I signed up for it, I was all alone with the TM and had so many questions. Since I found all of you, I can't wait to look at my e-mail each day to see what is happening and to 'talk' to you. I don't care if it is something we ve already talked about. Each time there seems to be something 'different' or new. The biggest thing is that this is so easy and fast and if the subject is something that doesn't pertain to me, I still like reading it. I don't want to lose our own TMIC... And HEY!!! I signed up for the Seattle Symposium and just made reservations in that big fancy hotel $$$ so I'm hoping to see some of you!! This is going to be a wonderful vacation for Jack and I and from what I hear, it is going to be really helpful for all of us who go! Jeanne in Dayton ---Original Message--- From: sal r Date: 4/23/2008 12:01:08 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] again Lyrica To Jeanne and all the new comers, yiou guys can post whatever you guys want because whats in the archives can be old and someone may have a new development. There is no rule about posting the same question or subject twice. I may want to ask a question again that i already just to see if anyone has gheard something new on it. take care SaL [EMAIL PROTECTED] wrote: The archives are just previous messages that have come through the TMIC. If it is in the archives that just means it has been discussed before, but that doesn't mean it can't be discussed again for those who weren't here then. Barbara H. http://barbarah.wordpress.com/ In a message dated 4/22/2008 8:56:34 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Wim, (and all of you who have been with TMIC longer) please forgive my ignorance but why do we have both this site plus the archives? I just went into the archives (thank you!) and notice the same 'type' of conversations but they are divided into 'subject' and it is helpful to see that some are pretty current. I tried to find the answer before even sending this message. Thank you ALL for all of your input. I do so appreciate it! Jeanne in Dayton Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
