Re: [TMIC] Fund Raiser for Dr. Kerr
In a message dated 5/21/2008 3:48:49 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Just to let you know. Were raffling off a Dell Inspiron 1525 Laptop Computer, Intel Centeron 550, 2.0 GHz, 533 MHz, 1M 2L cache, Black in color. Tickets for TMIC are $1.00 per chance. Those of you that are interested, contact me direct at [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) . Thanks for your participation. Gunny Thanks for the info on the fundraiser Gunny. I just want to let all of the fine people on the List who the we're in the message are. The idea for a fund-raiser first came from our dear Pam Montz, who now must turn the majority of the work over to Gunny with all of his fine experience in this field. Pam's husband may have a medical problem causing him to quit work, sell his business and other life changing effects that will take up all of her time. Pam is going to unsubscribe from the list for some time to devote her time to her husband and wishes no email for a short period of time. She will email those she is closest to when she finds herself with spare time. She now finds herself in the difficult role as an ill caretaker Pam and I have each donated a sum of money towards the purchase of the computer that is being raffled. We initially thought that the raffle money ought to go directly to the List, but Gunny thought the dollars should go to the Coalition and to Dr. Kerr, directly for research. So, to make things absolutely clear, that is where your money will go. Please purchase as many tickets as you can sell. and then some, as much money is needed at this time when the economy is down. We will all benefit from the research strictly for Transverse Myelitis. Thank you all so much for doing what you can to help. Thank you Gunny for taking on the responsibility for the fund-raiser. Thank you Pam for being inspired for doing a series of things, beginning with a dinner dance in New O'rleans and possibly a spot, with Jim Lubin on the Oprah show, after meeting Oprah backstage at one of her concerts and speaking with her about TM. We have no idea where that will go at this date and I believe that Pam will do her best to follow through with her initial plans if at all possible. May Our Lord and Your Higher Power Bless each of you and your loved ones in this time of need. Peace and Prayers, Jude, in Michigan **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Fwd: [TMIC] Fund Raiser for Dr. Kerr
Please, all of you, read the following message from Gunny and Jude. Thank You **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302) ---BeginMessage--- In a message dated 5/21/2008 3:48:49 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Just to let you know. Were raffling off a Dell Inspiron 1525 Laptop Computer, Intel Centeron 550, 2.0 GHz, 533 MHz, 1M 2L cache, Black in color. Tickets for TMIC are $1.00 per chance. Those of you that are interested, contact me direct at [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) . Thanks for your participation. Gunny Thanks for the info on the fundraiser Gunny. I just want to let all of the fine people on the List who the we're in the message are. The idea for a fund-raiser first came from our dear Pam Montz, who now must turn the majority of the work over to Gunny with all of his fine experience in this field. Pam's husband may have a medical problem causing him to quit work, sell his business and other life changing effects that will take up all of her time. Pam is going to unsubscribe from the list for some time to devote her time to her husband and wishes no email for a short period of time. She will email those she is closest to when she finds herself with spare time. She now finds herself in the difficult role as an ill caretaker Pam and I have each donated a sum of money towards the purchase of the computer that is being raffled. We initially thought that the raffle money ought to go directly to the List, but Gunny thought the dollars should go to the Coalition and to Dr. Kerr, directly for research. So, to make things absolutely clear, that is where your money will go. Please purchase as many tickets as you can sell. and then some, as much money is needed at this time when the economy is down. We will all benefit from the research strictly for Transverse Myelitis. Thank you all so much for doing what you can to help. Thank you Gunny for taking on the responsibility for the fund-raiser. Thank you Pam for being inspired for doing a series of things, beginning with a dinner dance in New O'rleans and possibly a spot, with Jim Lubin on the Oprah show, after meeting Oprah backstage at one of her concerts and speaking with her about TM. We have no idea where that will go at this date and I believe that Pam will do her best to follow through with her initial plans if at all possible. May Our Lord and Your Higher Power Bless each of you and your loved ones in this time of need. Peace and Prayers, Jude, in Michigan **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302) ---End Message---
[TMIC] UNSUBSCRIBE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) [EMAIL PROTECTED] **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
[TMIC] am I still on list??
do you all see my posts? am I getting thru? Krissy ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~
Re: [TMIC] relapse?
I have had episodes of numbness getting worse to wear I thought I was about to have a relapse, but it never got as bad as the original onset.It just flared up from time to time. Often being tired or not getting enough sleep had a lot to do with it, but sometimes it just happened for a while and then went back down after a few hours or days. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 5/22/2008 11:17:47 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I swear it feels like I am getting worse..my right leg the past 2 or 3 days has been numb and feeling *asleep* , just like the very first day 3 years ago. My *anniversary* of getting this autoimmune disorder was yesterday.3 years nowmy leg started to feel *numb* at the foot and has progressed to right below my knee. My other foot also feels a little numb, but not too bad. I am scared. I know if I call the neuro, he will order mri's. (of which I cannot afford right nowour insurance has a huge deductible and we would almost end up paying the whole thingwhich would be $3000-$4000! )...I know sometimes you can have recurrences with TM...I guess I just didnt expert it. I'm afraid to call neuro. I'm afraid of results. I HOPE its just the weather...but I somehow I dont think so. It's not affecting my walking it just feels asleep and sorta numb. **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] relapse?
I know how you feel; I have experienced the similar symptoms.' Here is what I do AS painful as it is I force myself to walk at least 15 to 30 minuties a day. Every stept is agnoizing believe me. but I find at the end I have a somewhat relief. at nightime I experince painful spasms. But I know that if I experience pain at least I am alive. Force yourself to walk as painful as each step may be ; I was . told if not you will stop walking altogether From: [EMAIL PROTECTED] To: [EMAIL PROTECTED], tmic-list@eskimo.com Subject: Re: [TMIC] relapse? Date: Thu, 22 May 2008 12:14:08 EDT I have had episodes of numbness getting worse to wear I thought I was about to have a relapse, but it never got as bad as the original onset.It just flared up from time to time. Often being tired or not getting enough sleep had a lot to do with it, but sometimes it just happened for a while and then went back down after a few hours or days. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 5/22/2008 11:17:47 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I swear it feels like I am getting worse..my right leg the past 2 or 3 days has been numb and feeling *asleep* , just like the very first day 3 years ago. My *anniversary* of getting this autoimmune disorder was yesterday.3 years nowmy leg started to feel *numb* at the foot and has progressed to right below my knee. My other foot also feels a little numb, but not too bad. I am scared. I know if I call the neuro, he will order mri's. (of which I cannot afford right nowour insurance has a huge deductible and we would almost end up paying the whole thingwhich would be $3000-$4000! )...I know sometimes you can have recurrences with TM...I guess I just didnt expert it. I'm afraid to call neuro. I'm afraid of results. I HOPE its just the weather...but I somehow I dont think so. It's not affecting my walking it just feels asleep and sorta numb. **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
[TMIC] Here's the Laptop
(http://www.dell.com/content/products/productdetails.aspx/inspnnb_1525?c=uscs=19l=ens=dhs) **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] Here's the Laptop
http://www.dell.com/content/products/productdetails.aspx/inspnnb_1525?c=uscs=19l=ens=dhsNOTHING THERE --
RE: [TMIC] 19 year TM Anniversary - my thanks to TMIC
Tracey I'm glad your daughter didn't suffer with the mental problems that some of us experienced. I've been impressed with her grades, they are impressive for any student and more so for a teen with a disability. I was one of the poor souls who had to overcome the all the mental/mind/brain problems and it has been a humbling experience. Tell her again that we are proud of her achievements. Patti - Michigan Tracey L. Black [EMAIL PROTECTED] wrote: I guess my daughter should consider herself completely blessed. She has been back in school since a month after this happened to her when she was in 5th grade. She continued to maintain a A - B average and was actually on the distinguished honor roll this past term b/c she recd straight A's. She is now in 8th grade. I thank God, every time I read one of your emails, that he has blessed her with the ability to continue to concentrate, learn and grow and not have most of the struggles, trials and tribulations that you all have gone through! When Ashlee was first in Hershey Medical Center and TM was what they thought she had, I googled it. I was scared to death to read a whole lot about it b/c everything was so new. I made my mom promise me that she would NOT read about it until we knew for sure what she had and how they were going to treat her. After she came home, got back into school, and things settled down a bit, then I started researching it again. I don't really even remember how I found this list but I am so glad that I did! You guys have answered so many questions and I enjoy reading the emails! Kudos to Jim for starting this list!! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. From: Trudy Ogilvie [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 21, 2008 12:35 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] 19 year TM Anniversary - my thanks to TMIC Barbara, Are you wheelchair bound? My TM is from the waist down and I use a walker to get around and I believe I have recovered some of the use of my legs. At first I was completely paralyzed from the waist down? Do you ever take vicodin for the pain. My doctor has given me some and it does help but I am very careful not to over do it. I too had to quit work I just could not concentrate. This list has truly been a life saver. I also was told to stay out of the any type of list... of course this is from people who mean well but have absolutely no idea of what we have been thru. I hope you find some relief for your pain at night. Take care Trudy In Virginia where the sun has finally decided to shine! On Wed, May 21, 2008 at 6:02 AM, [EMAIL PROTECTED] wrote: Jeanne, Your comment was very nice, but I mean it from the heart. When I first got my TM my family told me to please, not to go onto the TM website for the time being. That the info on the site was not optimistic and the people on the TMIC even had some pretty poor outcomes. I made this promise, and I only did therapy and listened to my doctors. When I first came into the TMIC I lingered for a few weeks. It was hard to hear about some of the stories, as I was starting to get a decent recovery. From paralysis from waist to toes, I had begun walking with a walker, so that was looking ok for me at that point, and hopefully more to come. TMIC really made me feel a part of a community and not alone with this crappy TM. I didn't know anyone else who had TM, so this was my only contact with anyone who had my kind of limitations who could help to teach me how to deal with all of it. Mentally, I thought I was ok, but I wasn't. I didn't think I needed anti-depressants, but I did. I thought if I could get back to work all would be ok with me, so that's where my emphasis was. I pushed myself to go back to work, although there were a few on TMIC who tried to encourage me not to. I didn't have the energy to do it, and really didn't have the energy to do work and therapy, so my therapy suffered. That wasn't the brightest thing I could have done. I was a terrible employee, but my boss was so wonderful, allowing me to work when I could, at the office and at home. It took me at least 2x as long to accomplish a task as it used to, as I didn't have the concentration to handle things properly. It took me to totally crash to realize that I couldn't do my therapy and work. In order to mentally handle it, I
Re: [TMIC] relapse?
Krissy, Regarding your worsening of symptoms, I, too, have had times of worsening of symptoms, I was helped by an article from Sandy Siegel (editor's column, front page) in The Transverse Myelitis Association newsletter, December 2004. If you don't have the actual issue, it may be somewhere online--maybe someone more knowledgeable about that possiblity can help. In the article, Sandy explains how many people with TM experience exacerbation of symptoms which can be dramatic and severe, but do not appear to result from new destruction of myelin or nerve tissue. I hesitate to quote portions of this article lest I misrepresent what he is saying by not giving the complete picture he presents in the article. Sandy gives us advice to differentiate between exacerbations and an episode of recurrent TM. Hopefully someone can help out, if you do not have a copy of this newsletter, as to how it may be obtained. I hope this information is of benefit. The article helped me very much. Gary in Michigan - Original Message - From: Krissy Z To: TM List Sent: Thursday, May 22, 2008 11:17 AM Subject: [TMIC] relapse? I swear it feels like I am getting worse..my right leg the past 2 or 3 days has been numb and feeling *asleep* , just like the very first day 3 years ago. My *anniversary* of getting this autoimmune disorder was yesterday.3 years nowmy leg started to feel *numb* at the foot and has progressed to right below my knee. My other foot also feels a little numb, but not too bad. I am scared. I know if I call the neuro, he will order mri's. (of which I cannot afford right nowour insurance has a huge deductible and we would almost end up paying the whole thingwhich would be $3000-$4000! )...I know sometimes you can have recurrences with TM...I guess I just didnt expert it. I'm afraid to call neuro. I'm afraid of results. I HOPE its just the weather...but I somehow I dont think so. It's not affecting my walking it just feels asleep and sorta numb.
Re: [TMIC] Here's the Laptop
I believe that Gunny may have some ideas of his own and persons he has a working relationship with from past raffles. In my opinion, sending the people the whole website as you suggest is giving them way too much information by sending them directly to the site. I will hate to see Gunny, who is already volunteering his time, unindated by email on top of everything else he has to do. Instead of everyone sending individual email, why don't we wait and allow Gunny notify the list of what he needs help with. We all want to help...sell those tickets! Remember the old adage: Too many cooks in the kitchen spoils the food. Bless us all... Jude **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
