Re: [TMIC] thanks for your input - tell me more about meiners
Randy, I have the same bee stinging feelings from head to toe, especially at night. I am a para from T3 on down with no sensation or movement. I wake up every two hours at night with the stinging sensation. My right hand has it and I also have the back stinging. I wear a Fentanyl 100mcg pain patch and it is sufficient to take the edge off the worst of it. For breakthrough pain, I take Vicodan 5.5mg. Maybe one of your doctors or specialists will prescribe one of these meds for you. If so, I sincerely hope that you have good luck with them. You might want to email Barbara in California. She can't even stand the feeling of light sheets next to her skin because of the sensitivity. Best of everything to you...I will send positive thoughts of you to the Spirit in the Sky. Jude In a message dated 11/9/2008 5:25:28 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: - but i still get a different pain - my face and neck feels like i had been stung by bees - burning sensations in my head - numbness in my hands - pain in my right hand like i wasp sting - and since yesterday, pain in my lower back/gluts but i have those a lot anyway **AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/10075x1212792382x1200798498/aol?redir=http://searchblog.aol.com/2008/11/04/happy-holidays-from -aol-search/?ncid=emlcntussear0001)
[TMIC] Osteomyelitis
Hello All, This is just an update to explain why I may not be writing to the List for a while. I got out of the hospital...again...on Friday after being treated for the infections in my pressure ulcers, urinary tract, blood and now in my bones. I am also severely malnutritioned and can't tell why. I am still on IV Vancomyecin as well as oral antibiotics every six hours. I once again had a barrage of tests and my arms are black and blue from all of the pokes I got in order to fill the blood-quota every day. For some reason my pic-line won't give up blood so I have to endure the pokes. And, the vampires have never heard of a butterfly. I spoke with a plastic surgeon and surgery is my only hope for a cure of the ischeal ulcers. It will take years for them to close on their own...if they ever would. It is a long surgery and with a person in my condition, rather dangerous. Since I have sepsis, and now osteomyelitis and colonizations of MRSA in my intestines nothing can be done until I am free of disease. My blood pressure goes from 90/60 to 189/60 and varies from minute to minute. I don't know what the docs are going to do about that. The fluctuation is why I went into the hospital this time. It makes me feel awful. Anyway, I also want to share with you that this is not a pity party. I have a feeling that I am not going to be around for a real long time and just want to keep you all appraised of my condition in case something does happen. I believe that those of you who are special to me, know it. There are so many persons on the List who have given me hope over the years. And that even includes a couple of the newbies. Thank you. I am not one of those people who believes in taking my own life, so don't worry about that although I certainly understand those of us that desperately need freedom from the constant pain and depression. If I am online, I am most likely doing research and will update you when there is something to add. My love to you, Jude... Now and then it is good to pause in our pursuit of happiness and just simply be happy. **AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/10075x1212792382x1200798498/aol?redir=http://searchblog.aol.com/2008/11/04/happy-holidays-from -aol-search/?ncid=emlcntussear0001)
Re: [TMIC] i think i'm starting to get answers to the TM and the present problem ... stress/virus ... feedback???
Randy,What a nightmare! I am so, so sorry. My husband has Menier's disease, an inner ear autoimmune disease, and when it was at its worst he was so very sick! That too they think is caused by a virus. Don't know if you have time for it but they say that practicing deep breathing exercises and meditation can help in calming down the body at times. And do not let the bitches of this world get to you. Anyway hang in there and know we're thinking about you! Take care Trudy On Sat, Nov 8, 2008 at 1:40 AM, L T CHERPESKI [EMAIL PROTECTED] wrote: Randy, sweetie, I'm thinking we need a group hug!!! Seldom am I left speechless, but I seriously cannot believe what you have been going through. I'm not sure if you saw Frank's post, but he had a bit of advice for you. Sorry I have no advice to offer, but you know we all want you to get better - and soon! Big hug for ya Linda - Original Message - *From:* randy rankin [EMAIL PROTECTED] *To:* Betty [EMAIL PROTECTED] ; TM Group tmic-list@eskimo.com ; Kim[EMAIL PROTECTED]; Martha [EMAIL PROTECTED] *Sent:* Friday, November 07, 2008 5:50 PM *Subject:* [TMIC] i think i'm starting to get answers to the TM and the present problem ... stress/virus ... feedback??? I went to my chiro doc today and he has hired a lady who works on trigger points and muscles. She found that my neck(front/back) muscles were very tight and worked on them. she found trigger points all over the place and after she finished working on them i was so much better - the face was soft and I could open/close my mouth without problem; therefore, it CAN'T be a TMJ problem. BUT the pain in/near my ear never stopped. I am under the gabapentin so it keeps it all calm; however, when I got home, the electric shock feeling back (in/near) my ear but this time it also shot down my face/neck and into my shoulder. She thinks, and I do too, that this is the shingle virus attack my nerves. Dr.Hormes, the first neuro that I ever worked with, said that he felt that my TM was caused by a virus. I mentioned this to the new neuro and he also agreed. I see/hear/read that the shingles virus is often associated with TM. THe fact that shingles can also attack the inner ear and the fact that the neuro SAW somethings in my ear very clearly makes me believe that the cause of all my problems is the virus that causes shingles. Each time that i have a MAJOR stress in my life, I get hit with something big like this. 1993 - I graduated from school and was jobless -I was having to work crazy jobs with convicts and rough type people - it was a scary experience and I was just a kid. 2005 - I worked for a bitch from hell who makes the devil look like a good guy. she treated me like fill in the blank and i got hit with TM the same year that i worked for here 2006 - my house was demolished by a tornado - less than a week later my bladder stopped working and the dr. said it was TM related Recently, I got audited by the IRS and had to pay 4500. I'm working on my doctorate and i have one class with another bitch from hell as an instructor. during our Saturday classes she sits up behind her desk and asks us condescending questions. as soon as we try to answer, she cuts us off and embarrasses us in front of the class (except for her favorite students) - she obviously doesn't like me. others in the class notice the same thing. i have had to restart my stupid project times because she didn't like it - the class cost 2500 and you have to have a 85 to pass the class. not long after i started this class my first recent symptoms appeared. So i am now more than ever thinking that this might by a virus that's being triggered by stress. what do you all think??
[TMIC] thanks for your input - tell me more about meiners
tx - i'm kinda wondering what exactly is going on. someone told me that they had a relative with meniers and that my symptoms were similiar. - first was a pain in my ear like a piece of glass and someone pushing on the glass - next dizziness followed by vertigo which has persisted - this is the one symptom that has NEVER left - next pain in front of the ear on the face on the C5 nerve - next numbness across the face and upper lips which still comes and goes often - next pain in the next followed by along the jaw line - next pain in cheeks and next to nose soon followed by above the eye - i went to ER they gave me gabepentin which solved the pain - but i still get a different pain - my face and neck feels like i had been stung by bees - burning sensations in my head - numbness in my hands - pain in my right hand like i wasp sting - and since yesterday, pain in my lower back/gluts but i have those a lot anyway
