RE: [TMIC] leg and foot comfort in bed
I, TOO, AM FORTUNATE THAT I DON'T HAVE ANY SKIN SENSITIVITY. I ALSO DON'T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASN'T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DON'T SUFFER MANY OF THE PROBLEMS A LOT OF TM'ERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about.If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA _ Great deals on Dell s most popular laptops http://pr.atwola.com/promoclk/100126575x1220631252x1201390195/aol?redir=htt p:%2F%2Fad.doubleclick.net%2Fclk%3B213968550%3B35701427%3Bh Starting at $479 _ Why pay full price? Check out this month's http://shopping.aol.com/?ncid=emlweinstor0002 deals on the new AOL Shopping.
[TMIC] transverse myelitis
I'm a new subscriber to the TM internet club and find the messages interesting. I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77. Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much discomfort from the banding, especially in my torso and neck. I walk well with a walker, but need my eyes to tell me where my feet ( and seat) are. Without the walker , balance is a problem. Anybody have problems similiar to those ? I live in a retirement home where I'm able to walk and to exercise 5 days a week, and I know this helps. There is no support group in the area Betty in Oregon
RE: [TMIC] leg and foot comfort in bed
I just remembered that when I first came home and lay in bed I had the sensation that my legs were both in mid air, about a foot off of the bed. Now, 4 years later, my right leg feels like the leg is bent and only the knee is up. Isn't that strange or another normal/abnormal for us TMer's?? Jeanne ---Original Message--- From: Patricia Cooley Date: 4/19/2009 10:50:57 AM To: 'Janice'; tmic-list@eskimo.com; balmat...@aol.com Subject: RE: [TMIC] leg and foot comfort in bed I, TOO, AM FORTUNATE THAT I DONT HAVE ANY SKIN SENSITIVITY. I ALSO DONT HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASNT SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DONT SUFFER MANY OF THE PROBLEMS A LOT OF TMERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about.If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn t it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on
Re: [TMIC] transverse myelitis
Welcome, Betty and you have come to a wonderful group of people who will soon become friends! Just keep reading and you will soon learn all sorts of different things about TM from physical to emotional and everything in between. The banding you talk about is a real issue to some of us. Mine is right at the exact same area where my bra is and is really painful a good part of the time but meds truly do help. Everyone has to find their own med solution' and that's a whole new area to talk about!!! Again, welcome, and you are blessed for having found this good group! Jeanne in Dayton, WA ---Original Message--- From: Betty Shaffer Date: 4/19/2009 11:07:03 AM To: tmic-list@eskimo.com Subject: [TMIC] transverse myelitis I'm a new subscriber to the TM internet club and find the messages interesting. I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77. Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much discomfort from the banding, especially in my torso and neck. I walk well with a walker, but need my eyes to tell me where my feet ( and seat) are. Without the walker , balance is a problem. Anybody have problems similiar to those ? I live in a retirement home where I'm able to walk and to exercise 5 days a week, and I know this helps. There is no support group in the area Betty in Oregon SuperStock_1196-107.jpg
FW: [TMIC] leg and foot comfort in bed
From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Sunday, April 19, 2009 12:09 PM To: patticoo...@wi.rr.com Subject: Fwd: [TMIC] leg and foot comfort in bed Pattie, Please forward this string to the List as I must have a wrong addy for it and I keep getting my mail back. Thanks, Jude _ From: Heyjude48458 To: patticoo...@wi.rr.com, www.tmic-l...@eskimo.com Sent: 4/19/2009 12:19:43 P.M. Eastern Daylight Time Subj: Re: [TMIC] leg and foot comfort in bed I too, believe that much of the power of this group is in the fact that there are such a diverse type of symptoms and problems endured by the people who make up this site. It makes my own aches and pains seem less important than they really are and gives me something to focus on besides myself. I don't have a lot of the symptoms that others do, for example, the problem of fabric touching skin that has been the latest topic of conversation on the List. It doesn't take long for TM to make one humble, especially when exposed to others with it and reading how they suffer with different symptoms than I. There is no way I would want to suffer with some of the difficulties that others describe and without a doubt, it is this fabulously giving group of people, who, in their suffering, take the time to give support, knowledge and love to people seeking help for the terrors of the initial fears of TM. God help us all... Jude In a message dated 4/19/2009 11:48:35 A.M. Eastern Daylight Time, patticoo...@wi.rr.com writes: I, TOO, AM FORTUNATE THAT I DON’T HAVE ANY SKIN SENSITIVITY. I ALSO DON’T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASN’T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DON’T SUFFER MANY OF THE PROBLEMS A LOT OF TM’ERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about.If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst
[TMIC] quadraplegia
I was wondering if anyone else on here is a c6 quad that is in a wheelchair and not much use of their hands who lives independently. I am sooo frustrated that i have to depend so much on my family and friends, although I am blessed to have them, I want to be my independent self again. I want to be able to at least be able to handle my own self at home. I need someone to talk to for some advice if anyone has any.
[TMIC] quadraplegia
I was wondering if there is anyone here who is a c6 quad with very little use of their hands and no use of their legs that lives independently. I am needing to talk to someone who can offer some advice on how I can do some things. From: tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com To: tmic-dig...@eskimo.com Sent: Sunday, April 19, 2009 10:48:07 AM Subject: tmic-digest Digest V2009 #291 -Inline Message Follows- tmic-digest Digest Volume 2009 : Issue 291 Today's Topics: Re: [TMIC] leg and foot comfort in b [ Janice jan...@centurytel.net ] Re: [TMIC] leg and foot comfort in b [ Janice jan...@centurytel.net ] -Inline Message Follows- I am s fortunate that I don't have the skin sensitivity that so many of you talk about. If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 Why pay full price? Check out this month's deals on the new AOL Shopping. -Inline Message Follows- Just thought I'd let you know that I am completely opposite. I can not sleep on my back. I really spasm around my middle section trying to get in that position and trying to get back up is a nitemare. I stick to sleeping on my side with a pillow between my legs to lessen spasms. Also take baclofen for spasms - helps a lot. I also have developed a thing of needing to have air movement when I go to bed. I have the ceiling fan going on no matter what the room temperature is. I just need air movement. This has really been an adventure/nitemare. Love the support of family and friends - and other TM'ers! - Original Message - From: Gillian Clark To: TM list Sent: Thursday, April 16, 2009 10:04 PM Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I
Re: [TMIC] transverse myelitis
Betty, Welcome to the group. My lesion was C-5-7 and my symptoms seem very much the same as yours as far as numbness and banding. I like how you put that you need your eyes to see where your feet (and seat) are. How true! It is always a bit amusing to lose a slipper while walking through the house and not even know it! Putting shoes on in the dark is a bad idea--I've put them on the wrong feet a couple of times and got out in public before I noticed. It was nice to hear from you. Gary in Michigan - Original Message - From: Betty Shaffer To: tmic-list@eskimo.com Sent: Sunday, April 19, 2009 12:03 PM Subject: [TMIC] transverse myelitis I'm a new subscriber to the TM internet club and find the messages interesting. I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77. Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much discomfort from the banding, especially in my torso and neck. I walk well with a walker, but need my eyes to tell me where my feet ( and seat) are. Without the walker , balance is a problem. Anybody have problems similiar to those ? I live in a retirement home where I'm able to walk and to exercise 5 days a week, and I know this helps. There is no support group in the area Betty in Oregon
[TMIC] List
Jude, Here's the address tmic-list@eskimo.com or try resuscribing as you may have been kicked off, it happen! for what reason, only the goblins know!! The info is on TMA website.sorry I don't remember how to subscribeBarbara Harper knows how.. jharper33#aol.com Hope that helps, jan
Re: [TMIC] transverse myelitis
Jeanne,
My banding was at my bra line, too..I always said
it was the bra God paying me back for hating bras!!
The banding is rare now, after 13 years the 29th of
this month.but it does raise its head once in a
while just to prove 'he' can still wreak havoc
jan
p.s. Welcome, Betty..please know that laughter
is a must in the world of tm!!
--- On Sun, 4/19/09, jrushton jrush...@columbiaenergyllc.com wrote:
#yiv1956273918 v\:* {
}
#yiv1956273918 v\:* {
}
Welcome, Betty and you have come to a wonderful group of people who will soon
become friends! Just keep reading and you will soon learn all sorts of
different things about TM from physical to emotional and everything in
between. The banding you talk about is a real issue to some of us. Mine is
right at the exact same area where my bra is and is really painful a good part
of the time but meds truly do help. Everyone has to find their own med
'solution' and that's a whole new area to talk about!!! Again, welcome, and
you are blessed for having found this good group! Jeanne in Dayton, WA
---Original Message---
From: Betty Shaffer
Date: 4/19/2009 11:07:03 AM
To: tmic-list@eskimo.com
Subject: [TMIC] transverse myelitis
I'm a new subscriber to the TM internet club and find the messages interesting.
I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77.
Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much
discomfort from the banding, especially in my torso and neck. I walk well with
a walker, but need my eyes to tell me where my feet ( and seat) are. Without
the walker , balance is a problem.
Anybody have problems similiar to those ? I live in a retirement home where
I'm able to walk and to exercise 5 days a week, and I know this helps.
There is no support group in the area
Betty in Oregon
Re: [TMIC] transverse myelitis
Welcome Betty, One symptom I'd say we all have is definitely the banding yet other symptoms do vary. I'm a paraplegic since 9/2000, lesion T6-10. I don't have the numbness but a buzzing feeling that is uncomfortable without meds. Ask us anything you wish and you will get an answer. Have you talked with anyone since 2004 with TM? You have a group of friends here. Ella in Ohio **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220814852x1201410738/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26 hmpgID%3D62%26bcd%3DAprilfooter419NO62)
RE: [TMIC] transverse myelitis
I don't have the banding. I did at the onset of TM but not any longer. From: alle...@aol.com [mailto:alle...@aol.com] Sent: April-19-09 1:58 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] transverse myelitis Welcome Betty, One symptom I'd say we all have is definitely the banding yet other symptoms do vary. I'm a paraplegic since 9/2000, lesion T6-10. I don't have the numbness but a buzzing feeling that is uncomfortable without meds. Ask us anything you wish and you will get an answer. Have you talked with anyone since 2004 with TM? You have a group of friends here. Ella in Ohio _ A Good Credit Score is 700 or Above. See http://pr.atwola.com/promoclk/100126575x1220814852x1201410738/aol?redir=htt p:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID% 3D62%26bcd%3DAprilfooter419NO62 yours in just 2 easy steps!
Re: [TMIC] transverse myelitis
Hi Betty Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at C4-C6. I also have balance problems and just gave in to using a walker during a short vacation. I was surprised that I was able to walk and enjoy looking at something besides my feet. I hadn't thought about the seat problem, however, your right - I look and touch before I sit. I think we TMers have trust issues. We just don't trust much of anything that has to do with where we are or where we're going to be in the next few seconds! Patti - Michigan Betty Shaffer vasso...@gmail.com wrote: I'm a new subscriber to the TM internet club and find the messages interesting. I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77. Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much discomfort from the banding, especially in my torso and neck. I walk well with a walker, but need my eyes to tell me where my feet ( and seat) are. Without the walker , balance is a problem. Anybody have problems similiar to those ? I live in a retirement home where I'm able to walk and to exercise 5 days a week, and I know this helps. There is no support group in the area Betty in Oregon
Re: [TMIC] transverse myelitis
Well, talking about feet. I guess I should say that I don't always watch my feet. Tonight would have been a good time to watch my feet but don't think it would have helped my situation. We drove into our driveway after being at the grandsons first birthday party. Husband lets me out on the driveway as we park two cars in the garage. I got out. My right foot (which is my weak foot) goes out first, followed by me turning my body, putting my left foot out and hoisting myself with my cane etc. I stood up (or tried to, like I usually do). Howevermy right foot remained firmly (and I mean firmly) planted. I moved. My right foot didn't. I was enough out of the car that I shut the car door. Then BAM...down I went. Onto my right hip, side etc. Hubby (thank goodness) couldn't figure out where I moved to so fast. (do any TMer's move fast?) Fortunately he realized that I 'moved too fast'. He got out of the car and there I was. Flat on my side. On the driveway. with my cane and purse with me. Glad he didn't try and drive into the garage. Not sure how much of me was near the car. So..not too sure if looking at my feet would have helped. Haven't had that happen for a while, that my right foot doesn't want to go when I want to. It used to happen quite often. So Pieter had to help me stand up. That is my story and I'm sticking to it. Now I just have to wait and see if I end up with a big bruise on my right hip and see if my right foot will be swollen tomorrow. Hope everyone else had a good weekend. The wee grandson had a good birthday and ate his first taste of chocolate cake. Too cute. Heather in Calgary - Original Message - From: pjv1...@chartermi.net To: tmic-list@eskimo.com; Betty Shaffer vasso...@gmail.com Sent: Sunday, April 19, 2009 6:33 PM Subject: Re: [TMIC] transverse myelitis Hi Betty Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at C4-C6. I also have balance problems and just gave in to using a walker during a short vacation. I was surprised that I was able to walk and enjoy looking at something besides my feet. I hadn't thought about the seat problem, however, your right - I look and touch before I sit. I think we TMers have trust issues. We just don't trust much of anything that has to do with where we are or where we're going to be in the next few seconds! Patti - Michigan Betty Shaffer vasso...@gmail.com wrote: I'm a new subscriber to the TM internet club and find the messages interesting. I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77. Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much discomfort from the banding, especially in my torso and neck. I walk well with a walker, but need my eyes to tell me where my feet ( and seat) are. Without the walker , balance is a problem. Anybody have problems similiar to those ? I live in a retirement home where I'm able to walk and to exercise 5 days a week, and I know this helps. There is no support group in the area Betty in Oregon
Re: [TMIC] leg and foot comfort in bed
You reminded me of my old hospital days where I could not turn over without help, or slide up in the bed. When you can look back and see where your body has actually gotten stronger - even with the problems TM has left us - you realize how fortunate we are. I am comparing us to 2 people I know that are dying of cancer. Parts of our lives are the pits, but we know we have our lives to live and in most cases, improvement to look forward to. Jance - Original Message - From: Patricia Cooley To: 'Janice' ; tmic-list@eskimo.com ; balmat...@aol.com Sent: Sunday, April 19, 2009 10:47 AM Subject: RE: [TMIC] leg and foot comfort in bed I, TOO, AM FORTUNATE THAT I DON'T HAVE ANY SKIN SENSITIVITY. I ALSO DON'T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASN'T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DON'T SUFFER MANY OF THE PROBLEMS A LOT OF TM'ERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about.If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any
[TMIC] New Member
I was diagnosed in 2002 C 4-C 6 I am having problems with balance . My hands and feet have started back to being extremely cold and sometimes hot. Any suggestions from anyone. I had surgery in 2007 to remove the disc. They were pressing on the spine. It was very successful,however it seems as if I am going backward with a lot of muscle weakness, bladder and bowel problems. What Can I do? for 7 years I have been doing very well. I have never really had pain except when I would pull a muscle in my back. Almost pain free from the time I contracted the disease. I stayed in rehab and hospitals where I lost all muscle strength. With therapy on a daily basis I overcame until this sudden backward spiral. I was taken off neurontin for a couple of month to try something different have to take an EMG on next month. I am trusting God to touch, heal, and deliver me from this terrible disease There is none so amazing as God Peggy Wilson **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [TMIC] New Member
Hi, Peggy! Welcome to this wonderful group of people who will be here for you through everything! I constantly have the ice cold then hot feet. I have just learned to live with it. When I wake each morning, my feet are always warm??? Don't know why. Just keep reading what all of the TMer's say and you will learn so much and realize how you are not alone at all with this. We are all so blessed to have found this site..Jeanne in Dayton ---Original Message--- From: pwi1991...@aol.com Date: 4/19/2009 10:43:23 PM To: tmic-list@eskimo.com Subject: [TMIC] New Member I was diagnosed in 2002 C 4-C 6 I am having problems with balance . My hands and feet have started back to being extremely cold and sometimes hot. Any suggestions from anyone. I had surgery in 2007 to remove the disc. They were pressing on the spine. It was very successful,however it seems as if I am going backward with a lot of muscle weakness, bladder and bowel problems. What Can I do? for 7 years I have been doing very well. I have never really had pain except when I would pull a muscle in my back. Almost pain free from the time I contracted the disease. I stayed in rehab and hospitals where I lost all muscle strength. With therapy on a daily basis I overcame until this sudden backward spiral. I was taken off neurontin for a couple of month to try something different have to take an EMG on next month. I am trusting God to touch, heal, and deliver me from this terrible disease There is none so amazing as God Peggy Wilson Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! SuperStock_1196-107.jpg
Re: [TMIC] transverse myelitis
Ouch, Heather!! I'm glad it wasn't any worse, but I imagine you'll feel pretty sore. It's strange how parts of our bodies don't turn or move how we're expecting them to sometimes. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 4/19/2009 11:21:18 P.M. Eastern Daylight Time, pieterheat...@shaw.ca writes: Well, talking about feet. I guess I should say that I don't always watch my feet. Tonight would have been a good time to watch my feet but don't think it would have helped my situation. We drove into our driveway after being at the grandsons first birthday party. Husband lets me out on the driveway as we park two cars in the garage. I got out. My right foot (which is my weak foot) goes out first, followed by me turning my body, putting my left foot out and hoisting myself with my cane etc. I stood up (or tried to, like I usually do). Howevermy right foot remained firmly (and I mean firmly) planted. I moved. My right foot didn't. I was enough out of the car that I shut the car door. Then BAM...down I went. Onto my right hip, side etc. Hubby (thank goodness) couldn't figure out where I moved to so fast. (do any TMer's move fast?) Fortunately he realized that I 'moved too fast'. He got out of the car and there I was. Flat on my side. On the driveway. with my cane and purse with me. Glad he didn't try and drive into the garage. Not sure how much of me was near the car. So..not too sure if looking at my feet would have helped. Haven't had that happen for a while, that my right foot doesn't want to go when I want to. It used to happen quite often. So Pieter had to help me stand up. That is my story and I'm sticking to it. Now I just have to wait and see if I end up with a big bruise on my right hip and see if my right foot will be swollen tomorrow. Hope everyone else had a good weekend. The wee grandson had a good birthday and ate his first taste of chocolate cake. Too cute. Heather in Calgary - Original Message - From: pjv1...@chartermi.net To: tmic-list@eskimo.com; Betty Shaffer vasso...@gmail.com Sent: Sunday, April 19, 2009 6:33 PM Subject: Re: [TMIC] transverse myelitis Hi Betty Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at C4-C6. I also have balance problems and just gave in to using a walker during a short vacation. I was surprised that I was able to walk and enjoy looking at something besides my feet. I hadn't thought about the seat problem, however, your right - I look and touch before I sit. I think we TMers have trust issues. We just don't trust much of anything that has to do with where we are or where we're going to be in the next few seconds! Patti - Michigan Betty Shaffer vasso...@gmail.com wrote: I'm a new subscriber to the TM internet club and find the messages interesting. I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77. Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much discomfort from the banding, especially in my torso and neck. I walk well with a walker, but need my eyes to tell me where my feet ( and seat) are. Without the walker , balance is a problem. Anybody have problems similiar to those ? I live in a retirement home where I'm able to walk and to exercise 5 days a week, and I know this helps. There is no support group in the area Betty in Oregon **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [TMIC] transverse myelitis
It is great to have a new member to the best support group around! Actually, you sound as though you are doing quite well. I think balance is a problem for most of us. The more exercise in building strength, the better the balance issue will be. Keep in touch with us and our conversations and I am sure you will see your problems written out by someone else - many times with solutions.Glad you have joined us.Janice - Original Message - From: jrushton To: Betty Shaffer ; tmic Sent: Sunday, April 19, 2009 9:15 AM Subject: Re: [TMIC] transverse myelitis Welcome, Betty and you have come to a wonderful group of people who will soon become friends! Just keep reading and you will soon learn all sorts of different things about TM from physical to emotional and everything in between. The banding you talk about is a real issue to some of us. Mine is right at the exact same area where my bra is and is really painful a good part of the time but meds truly do help. Everyone has to find their own med 'solution' and that's a whole new area to talk about!!! Again, welcome, and you are blessed for having found this good group! Jeanne in Dayton, WA ---Original Message--- From: Betty Shaffer Date: 4/19/2009 11:07:03 AM To: tmic-list@eskimo.com Subject: [TMIC] transverse myelitis I'm a new subscriber to the TM internet club and find the messages interesting. I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77. Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much discomfort from the banding, especially in my torso and neck. I walk well with a walker, but need my eyes to tell me where my feet ( and seat) are. Without the walker , balance is a problem. Anybody have problems similiar to those ? I live in a retirement home where I'm able to walk and to exercise 5 days a week, and I know this helps. There is no support group in the area Betty in Oregon SuperStock_1196-107.jpg
Re: [TMIC] New Member
Yes, it certainly is!! ::)) ---Original Message--- From: pwi1991...@aol.com Date: 4/19/2009 11:13:32 PM To: jrush...@columbiaenergyllc.com Subject: Re: [TMIC] New Member Thank you, just to talk with someone is a blessing straight from God. There is none so amazing as God Peggy Wilson In a message dated 4/19/2009 8:49:56 P.M. US Mountain Standard Time, jrush...@columbiaenergyllc.com writes: Hi, Peggy! Welcome to this wonderful group of people who will be here for you through everything! I constantly have the ice cold then hot feet. I have just learned to live with it. When I wake each morning, my feet are always warm??? Don't know why. Just keep reading what all of the TMer's say and you will learn so much and realize how you are not alone at all with this. We are all so blessed to have found this site..Jeanne in Dayton ---Original Message--- From: pwi1991...@aol.com Date: 4/19/2009 10:43:23 PM To: tmic-list@eskimo.com Subject: [TMIC] New Member I was diagnosed in 2002 C 4-C 6 I am having problems with balance . My hands and feet have started back to being extremely cold and sometimes hot. Any suggestions from anyone. I had surgery in 2007 to remove the disc. They were pressing on the spine. It was very successful,however it seems as if I am going backward with a lot of muscle weakness, bladder and bowel problems. What Can I do? for 7 years I have been doing very well. I have never really had pain except when I would pull a muscle in my back. Almost pain free from the time I contracted the disease. I stayed in rehab and hospitals where I lost all muscle strength. With therapy on a daily basis I overcame until this sudden backward spiral. I was taken off neurontin for a couple of month to try something different have to take an EMG on next month. I am trusting God to touch, heal, and deliver me from this terrible disease There is none so amazing as God Peggy Wilson Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!tile12.jpg
Re: [TMIC] leg and foot comfort in bed
Any you know what Barb? It took me so damn long to learn about the wrinkles!! - Original Message - From: balmat...@aol.com To: mingalett...@activ8.net.au ; tmic-list@eskimo.com Sent: Friday, April 17, 2009 1:41 PM Subject: Re: [TMIC] leg and foot comfort in bed Gilly, I know what you mean about the wrinkles in the bed. It actually causes pain with the wrinkles, like something is stabbing you. Using the knit sheets makes them warmer, and it's so hard for me to imagine you with the pillow on your feet. I cannot stand much weight on me at all, especially my feet. I love my down blanket, nice and lightweight, yet warm. The warmer weather brings less clothes, no blankets, and a happier me! Come on summer! Warm hugs you Gilly, and all, Barbara A -Original Message- From: Gillian Clark mingalett...@activ8.net.au To: TM list tmic-list@eskimo.com Sent: Thu, 16 Apr 2009 8:04 pm Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position. I can't sleep with them bent up though Barb, that causes huge spasms. Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to. Not only what you wear but where you are walking, avoiding anything that will brush on you. Shopping is a nightmare when someone brushes past etc. Since I was born being unconventional a lot of things came easily for me. If you were not born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the normal people are doing. I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. hugs all Gilly - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA --
Re: [TMIC] leg and foot comfort in bed
Janice, I am now able to move enough to get on my side but the pain is intolerable in that position and I can't do the pillow between the legs thing. I think it might be because they are too short and far too fat! hugs Gilly - Original Message - From: Janice To: Gillian Clark ; TM list Sent: Sunday, April 19, 2009 2:27 PM Subject: Re: [TMIC] leg and foot comfort in bed Just thought I'd let you know that I am completely opposite. I can not sleep on my back. I really spasm around my middle section trying to get in that position and trying to get back up is a nitemare. I stick to sleeping on my side with a pillow between my legs to lessen spasms. Also take baclofen for spasms - helps a lot. I also have developed a thing of needing to have air movement when I go to bed. I have the ceiling fan going on no matter what the room temperature is. I just need air movement. This has really been an adventure/nitemare. Love the support of family and friends - and other TM'ers! - Original Message - From: Gillian Clark To: TM list Sent: Thursday, April 16, 2009 10:04 PM Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position. I can't sleep with them bent up though Barb, that causes huge spasms. Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to. Not only what you wear but where you are walking, avoiding anything that will brush on you. Shopping is a nightmare when someone brushes past etc. Since I was born being unconventional a lot of things came easily for me. If you were not born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the normal people are doing. I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. hugs all Gilly - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been
