[TMIC] FW: FW: W O W !!! Israeli Exoskeleton Suit Enables Paralyzed People...
Very interesting and perhaps a breakthrough for some in the group. Rob in New Jersey From: ronnis...@aol.com [mailto:ronnis...@aol.com] Sent: Monday, March 29, 2010 10:10 PM Subject: Re: FW: W O W !!! Israeli Exoskeleton Suit Enables Paralyzed People... : Israeli Exoskeleton Suit Enables Paralysed People To walk Click here: Israel News - Israeli Exoskeleton Suit Enables Paralyzed People To Walk | Infolive.tv http://www.infolive.tv/en/infolive.tv-28159-israelnews-israeli-exoskele ton-suit-enables-paralyzed-people-walk
[TMIC] Fwd: Check out The Chicken!
---BeginMessage--- _Click here: The Chicken!_ (http://www.terrisfp1.com/holidays/chick.html) ---End Message---
Re: [TMIC] Weather
WeatherI live in Missouri.Plenty of humidity and rain so far. For some reason, I don't seem to be able to make sense out of when I will be hurting more - dry weather or wet weather.I also have a pretty fair amount of arthritis which irritates the myelitis and I still can not make heads or tails of when to expect more pain.So far, over doing daily tasks seems to be the culprit. Hope this helps. Janice From: Robert Pall Sent: Tuesday, March 30, 2010 8:29 AM To: Transverse Myelytis Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times .but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal.as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
Re: [TMIC] Weather
WeatherJanet, I also have trouble riding in the car.It seems to help to sit on a thick pillow.But, as you say, it is miserable. A few weeks ago, we went to Savannah, Georgia. On the way there I was fairly comfortable.On the way back, I got pretty uncomfortable. Your guess is as good as mine. Janice From: Janet Dunn Sent: Tuesday, March 30, 2010 8:41 AM To: 'Robert Pall' ; 'Transverse Myelytis' Subject: RE: [TMIC] Weather Hi Rob, and TM Family Oh, yes, the weather gets me every time. I live in northeaster BC. Our elevation is 2274 feet. I can tell the weather is changing 3 days before hand! The actual day of the weather change is the worst for me. Banding, pain, pins and needles, and it usually lasts about 24 hours after the storm hits. It is not only the rain that gets me - it is the snow storms. OMG. I don't care what the weather forecast is, I count on my legs If the storm is severe enough, it knocks me down for a day. Ah, the joys. And I don't know about everyone else, but walking through snow is very difficult for me. The snow is heavy, the boots are heavy, if I wear runners, they are heavy. Oy Vey, the joys of life. On the same topic - sort of - does anyone have difficulties riding in vehicles? If I sit in the back seat of a car or the front seat of a pickup truck, the bumps and rattling just does a number on me. The banding and the burning and the pins and needles - it all just makes me want to cry - and I load up on painkillers. Yesterday we got back from a whirlwind trip to Sherwood Park AB (near Edmonton) - roughly a 650 km ride one way. Yikes. But, we went to see Bill Anderson - so it was worth it, but today is a bit different! Janet From: Robert Pall [mailto:rp...@neillsupply.com] Sent: March 30, 2010 6:30 AM To: Transverse Myelytis Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times .but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal.as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
Re: [TMIC] Weather
WeatherKevin, I am right with you with the head-sweating with humidity - absolutely hate it!!!I have some hot spells in the winter (and we keep our house cool), but late spring to end of fall is miserable.They have a name for this problem, but I can't remember it.I know of one lady who moved from Missouri to Montana to have cooler weather with lower humidity because of this problem. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:06 AM To: Robert Pall ; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the normal ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: Transverse Myelytis tmic-list@eskimo.com Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times …but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal…as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
Re: [TMIC] Weather
WeatherKevin, Alamogordo sounds wonderful!I didn't know they had places like that. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:42 AM To: Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather One other thing too, I notice that you are in NJ Rob, and as you can see I'm in Ohio. Many of us are in the cold part of the country and have these issues. I am, as soon as I possibly can, going to move back to the southwest. I lived in a town called Alamogordo New Mexico back in the 80's and it had the most ideal weather of anywhere I've ever seen and I've lived in a lot of places after spending 20 years in the Air Force. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus, I love southwest style cooking. As much as Ohio and PA are home to me because this is the part of the country where I was born and raised and where my family is, they can keep it. I'm tired of cold, snow and all the rest of the mess that goes with it. Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: kevin weilacher hwyfli...@yahoo.com Sent: Tue, March 30, 2010 9:08:11 AM Subject: RE: [TMIC] Weather Thanks Kevin...just one more lousy side effect of TM! Rob From: kevin weilacher [mailto:hwyfli...@yahoo.com] Sent: Tuesday, March 30, 2010 10:06 AM To: Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the normal ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: Transverse Myelytis tmic-list@eskimo.com Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times …but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal…as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
Re: [TMIC] Weather
Does a chiropractor really help with this disease?I thought the pain came from just the nerves, not any where else.Course, I don't know much about chiropractors, but this struck me as odd. If he can help, that is great. Janice From: Todd Tarno Sent: Tuesday, March 30, 2010 12:05 PM To: Transverse Myelytis Subject: Re: [TMIC] Weather My chiropractor can tell when a cold front is coming in, because my adjustment is very much hard for him to do. And that he doesn't need to go to the gym on that day. lol Todd in CC, TX --- On Tue, 3/30/10, Robert Pall rp...@neillsupply.com wrote: From: Robert Pall rp...@neillsupply.com Subject: [TMIC] Weather To: Transverse Myelytis tmic-list@eskimo.com Date: Tuesday, March 30, 2010, 8:29 AM We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times …but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal…as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
RE: [TMIC] Chiro
Janice, I am not sure that he helps so much with the disease itself, but if the rest of your body is in alignment it helps you move better, properly, and takes a lot of pressure and pain away that otherwise would be there. I actually see my chiropractor very rarely, because for me, I find that the massage therapist – the kind that work you over – not the “relaxing” massage – actually works better for me. She gets the knots out of my legs and shoulders which then helps me walk better, taking strain off the hips and back, meaning less trips to the chiro, and more to her! And now she is moving L I think it is a decision that each makes for themselves – but I use them both, as my mobility is key to my mental health. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: March 31, 2010 8:17 AM To: Todd Tarno; Transverse Myelytis Subject: Re: [TMIC] Weather Does a chiropractor really help with this disease?I thought the pain came from just the nerves, not any where else.Course, I don't know much about chiropractors, but this struck me as odd. If he can help, that is great. Janice From: Todd mailto:toddtm2...@sbcglobal.net Tarno Sent: Tuesday, March 30, 2010 12:05 PM To: Transverse Myelytis mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Weather My chiropractor can tell when a cold front is coming in, because my adjustment is very much hard for him to do. And that he doesn't need to go to the gym on that day. lol Todd in CC, TX
RE: [TMIC] Weather
OK, then, all you “sweat ers” out there. Especially you women – how do you handle the hot flashes with menopause and peri menopause. I find that they are not flashes, but freakin tropical heat waves. I cannot sweat below the waist, so the heat does not go throughout the body, but is trapped in the upper body. It has been a cold winter and spring here, and I am going around in tank tops with a blanket wrapped around my legs – half of me is HOT and the other half is not. Geesh, I always wanted to be a HOT woman, I just didn’t expect it to be when I was 47, very fluffy, and with a disability! J lol Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: March 31, 2010 8:11 AM To: kevin weilacher; Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Kevin, I am right with you with the head-sweating with humidity - absolutely hate it!!!I have some hot spells in the winter (and we keep our house cool), but late spring to end of fall is miserable.They have a name for this problem, but I can't remember it.I know of one lady who moved from Missouri to Montana to have cooler weather with lower humidity because of this problem. Janice From: kevin weilacher mailto:hwyfli...@yahoo.com Sent: Tuesday, March 30, 2010 9:06 AM To: Robert Pall mailto:rp...@neillsupply.com ; Transverse mailto:tmic-list@eskimo.com Myelytis Subject: Re: [TMIC] Weather
Re: [TMIC] Chiro
Whatever gets us through this disease, we need to do! I have my implant to help cover nerve pain and shots also.Like I said, whatever works!! From: Janet Dunn Sent: Wednesday, March 31, 2010 10:25 AM To: 'Janice Nichols' ; 'Transverse Myelytis' Subject: RE: [TMIC] Chiro Janice, I am not sure that he helps so much with the disease itself, but if the rest of your body is in alignment it helps you move better, properly, and takes a lot of pressure and pain away that otherwise would be there. I actually see my chiropractor very rarely, because for me, I find that the massage therapist – the kind that work you over – not the “relaxing” massage – actually works better for me. She gets the knots out of my legs and shoulders which then helps me walk better, taking strain off the hips and back, meaning less trips to the chiro, and more to her! And now she is moving L I think it is a decision that each makes for themselves – but I use them both, as my mobility is key to my mental health. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: March 31, 2010 8:17 AM To: Todd Tarno; Transverse Myelytis Subject: Re: [TMIC] Weather Does a chiropractor really help with this disease?I thought the pain came from just the nerves, not any where else.Course, I don't know much about chiropractors, but this struck me as odd. If he can help, that is great. Janice From: Todd Tarno Sent: Tuesday, March 30, 2010 12:05 PM To: Transverse Myelytis Subject: Re: [TMIC] Weather My chiropractor can tell when a cold front is coming in, because my adjustment is very much hard for him to do. And that he doesn't need to go to the gym on that day. lol Todd in CC, TX Emoticon1.gif
Re: [TMIC] Weather
WeatherMy problem is less in the winter and I also don't wear my heavy sweaters anymore. In the summer, I stay in a lot when it gets humid or too warm outside and dress in very cool clothing. I am past hot flashes - complete hysterectomy when I was 40, am now 63. But, it feels like hot flashes when it hits.I really dread summer coming. I do have to touch my legs with my hand to feel if they are cold are not, then cover with afghan, etc. Such a strange sensation. Janice From: Janet Dunn Sent: Wednesday, March 31, 2010 10:28 AM To: 'Janice Nichols' ; 'Transverse Myelytis' Subject: RE: [TMIC] Weather OK, then, all you “sweat ers” out there. Especially you women – how do you handle the hot flashes with menopause and peri menopause. I find that they are not flashes, but freakin tropical heat waves. I cannot sweat below the waist, so the heat does not go throughout the body, but is trapped in the upper body. It has been a cold winter and spring here, and I am going around in tank tops with a blanket wrapped around my legs – half of me is HOT and the other half is not. Geesh, I always wanted to be a HOT woman, I just didn’t expect it to be when I was 47, very fluffy, and with a disability! J lol Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: March 31, 2010 8:11 AM To: kevin weilacher; Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Kevin, I am right with you with the head-sweating with humidity - absolutely hate it!!!I have some hot spells in the winter (and we keep our house cool), but late spring to end of fall is miserable.They have a name for this problem, but I can't remember it.I know of one lady who moved from Missouri to Montana to have cooler weather with lower humidity because of this problem. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:06 AM To: Robert Pall ; Transverse Myelytis Subject: Re: [TMIC] Weather
Re: [TMIC] Weather
Janice, To me, it is an ideal place and as I said, I WILL be moving there someday. It is the desert, so you have to like the desert, which means that there isn't as much greenery for those that are used to it and of course the change of seasons isn't as evident. If you can get past those kinds of things...it's a pretty great placemy opinion of course.. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com; Robert Pall rp...@neillsupply.com; tmic-list@eskimo.com Sent: Wed, March 31, 2010 10:12:59 AM Subject: Re: [TMIC] Weather Weather Kevin, Alamogordo sounds wonderful!I didn't know they had places like that. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:42 AM To: Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather One other thing too, I notice that you are in NJ Rob, and as you can see I'm in Ohio. Many of us are in the cold part of the country and have these issues. I am, as soon as I possibly can, going to move back to the southwest. I lived in a town called Alamogordo New Mexico back in the 80's and it had the most ideal weather of anywhere I've ever seen and I've lived in a lot of places after spending 20 years in the Air Force. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus, I love southwest style cooking. As much as Ohio and PA are home to me because this is the part of the country where I was born and raised and where my family is, they can keep it. I'm tired of cold, snow and all the rest of the mess that goes with it. Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: kevin weilacher hwyfli...@yahoo.com Sent: Tue, March 30, 2010 9:08:11 AM Subject: RE: [TMIC] Weather Thanks Kevin...just one more lousy side effect of TM! Rob From: kevin weilacher [mailto:hwyfli...@yahoo.com] Sent: Tuesday, March 30, 2010 10:06 AM To: Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the normal ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: Transverse Myelytis tmic-list@eskimo.com Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times …but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal…as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
Re: [TMIC] Weather
WeatherI am used to definite changes of seasons, but I could really be tempted by a place that I would find comfortable physically. Hope you get there soon. Janice From: kevin weilacher Sent: Wednesday, March 31, 2010 11:36 AM To: Janice Nichols ; Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather Janice, To me, it is an ideal place and as I said, I WILL be moving there someday. It is the desert, so you have to like the desert, which means that there isn't as much greenery for those that are used to it and of course the change of seasons isn't as evident. If you can get past those kinds of things...it's a pretty great placemy opinion of course.. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com; Robert Pall rp...@neillsupply.com; tmic-list@eskimo.com Sent: Wed, March 31, 2010 10:12:59 AM Subject: Re: [TMIC] Weather Kevin, Alamogordo sounds wonderful!I didn't know they had places like that. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:42 AM To: Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather One other thing too, I notice that you are in NJ Rob, and as you can see I'm in Ohio. Many of us are in the cold part of the country and have these issues. I am, as soon as I possibly can, going to move back to the southwest. I lived in a town called Alamogordo New Mexico back in the 80's and it had the most ideal weather of anywhere I've ever seen and I've lived in a lot of places after spending 20 years in the Air Force. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus, I love southwest style cooking. As much as Ohio and PA are home to me because this is the part of the country where I was born and raised and where my family is, they can keep it. I'm tired of cold, snow and all the rest of the mess that goes with it. Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: kevin weilacher hwyfli...@yahoo.com Sent: Tue, March 30, 2010 9:08:11 AM Subject: RE: [TMIC] Weather Thanks Kevin...just one more lousy side effect of TM! Rob From: kevin weilacher [mailto:hwyfli...@yahoo.com] Sent: Tuesday, March 30, 2010 10:06 AM To: Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the normal ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: Transverse Myelytis tmic-list@eskimo.com Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed
[TMIC] Still in the Hospital
Hey guys, It's 10 days now and I'm still stuck in an ICU. It's confirmed that it is recurrent TM. Right now they are just treating pain and trying to manage symptoms. So say a prayer for me, or keep me in your thouhgts. Yours, Jeron From: jan...@centurytel.net To: hwyfli...@yahoo.com; rp...@neillsupply.com; tmic-list@eskimo.com Subject: Re: [TMIC] Weather Date: Wed, 31 Mar 2010 11:44:40 -0500 Weather I am used to definite changes of seasons, but I could really be tempted by a place that I would find comfortable physically. Hope you get there soon. Janice From: kevin weilacher Sent: Wednesday, March 31, 2010 11:36 AM To: Janice Nichols ; Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather Janice, To me, it is an ideal place and as I said, I WILL be moving there someday. It is the desert, so you have to like the desert, which means that there isn't as much greenery for those that are used to it and of course the change of seasons isn't as evident. If you can get past those kinds of things...it's a pretty great placemy opinion of course.. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com; Robert Pall rp...@neillsupply.com; tmic-list@eskimo.com Sent: Wed, March 31, 2010 10:12:59 AM Subject: Re: [TMIC] Weather Kevin, Alamogordo sounds wonderful!I didn't know they had places like that. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:42 AM To: Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather One other thing too, I notice that you are in NJ Rob, and as you can see I'm in Ohio. Many of us are in the cold part of the country and have these issues. I am, as soon as I possibly can, going to move back to the southwest. I lived in a town called Alamogordo New Mexico back in the 80's and it had the most ideal weather of anywhere I've ever seen and I've lived in a lot of places after spending 20 years in the Air Force. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus, I love southwest style cooking. As much as Ohio and PA are home to me because this is the part of the country where I was born and raised and where my family is, they can keep it. I'm tired of cold, snow and all the rest of the mess that goes with it. Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: kevin weilacher hwyfli...@yahoo.com Sent: Tue, March 30, 2010 9:08:11 AM Subject: RE: [TMIC] Weather Thanks Kevin...just one more lousy side effect of TM! Rob From: kevin weilacher [mailto:hwyfli...@yahoo.com] Sent: Tuesday, March 30, 2010 10:06 AM To: Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the normal ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: Transverse Myelytis tmic-list@eskimo.com Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather We are getting a huge
Re: [TMIC] Still in the Hospital
WeatherYou got it! Janice From: j ra Sent: Wednesday, March 31, 2010 12:51 PM To: jan...@centurytel.net ; hwyfli...@yahoo.com ; rp...@neillsupply.com ; Transverse Myelytis Subject: [TMIC] Still in the Hospital Hey guys, It's 10 days now and I'm still stuck in an ICU. It's confirmed that it is recurrent TM. Right now they are just treating pain and trying to manage symptoms. So say a prayer for me, or keep me in your thouhgts. Yours, Jeron From: jan...@centurytel.net To: hwyfli...@yahoo.com; rp...@neillsupply.com; tmic-list@eskimo.com Subject: Re: [TMIC] Weather Date: Wed, 31 Mar 2010 11:44:40 -0500 I am used to definite changes of seasons, but I could really be tempted by a place that I would find comfortable physically. Hope you get there soon. Janice From: kevin weilacher Sent: Wednesday, March 31, 2010 11:36 AM To: Janice Nichols ; Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather Janice, To me, it is an ideal place and as I said, I WILL be moving there someday. It is the desert, so you have to like the desert, which means that there isn't as much greenery for those that are used to it and of course the change of seasons isn't as evident. If you can get past those kinds of things...it's a pretty great placemy opinion of course.. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com; Robert Pall rp...@neillsupply.com; tmic-list@eskimo.com Sent: Wed, March 31, 2010 10:12:59 AM Subject: Re: [TMIC] Weather Kevin, Alamogordo sounds wonderful!I didn't know they had places like that. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:42 AM To: Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather One other thing too, I notice that you are in NJ Rob, and as you can see I'm in Ohio. Many of us are in the cold part of the country and have these issues. I am, as soon as I possibly can, going to move back to the southwest. I lived in a town called Alamogordo New Mexico back in the 80's and it had the most ideal weather of anywhere I've ever seen and I've lived in a lot of places after spending 20 years in the Air Force. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus, I love southwest style cooking. As much as Ohio and PA are home to me because this is the part of the country where I was born and raised and where my family is, they can keep it. I'm tired of cold, snow and all the rest of the mess that goes with it. Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall rp...@neillsupply.com To: kevin weilacher hwyfli...@yahoo.com Sent: Tue, March 30, 2010 9:08:11 AM Subject: RE: [TMIC] Weather Thanks Kevin...just one more lousy side effect of TM! Rob From: kevin weilacher [mailto:hwyfli...@yahoo.com] Sent: Tuesday, March 30, 2010 10:06 AM To: Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than
[TMIC] April Birthdays
Happy Birthday to the April kids! It is a short list this month -- but that just means you get more cake. :-) Please send any additions or corrections to tmic-l...@eskimo.com. 4-1 Ken (kenoliver...@hotmail.com) 4-14 Kris (rizahdo...@aol.com) 4/18 Bernard Butcher (bernie.butc...@honeywell.com) 4/20 Dianna ( carg...@cs.com) 4/20 Todd Tarno (toddtm2...@sbcglobal.net) 4/21 Robert Diehl (sawmil...@verizon.net) 4-25 Shelia ( sc...@aol.com)
