[TMIC] just wondering
im sure some on the list may find this offensive and to you i appologise,but i think it is a legitimate question,can somone with paraplegia still be able to achieve an erection or be able to experience ejaculation,again im not trying to offened anyone,but im looking for answers. DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
Re: [TMIC] My Son
Janet, I'm so sorry.It must be awful to hear the diagnosis for your son. You would think they would have looked at tm sooner since you have it. Do you know why they took so long to get the diagnosis? Just know that all on the list are thinking of you and your son. Cheryl in Easthampton,Mass. --- On Thu, 5/6/10, Janet Dunn j.d...@shaw.ca wrote: From: Janet Dunn j.d...@shaw.ca Subject: [TMIC] My Son To: 'Transverse Myelytis' tmic-list@eskimo.com Date: Thursday, May 6, 2010, 12:30 PM Hello all you fellow TM’rs. It is with such a heavy heart, and with tears rolling down my face that I write this. My 15 year old son, who has struggled with his legs for a year now, undiagnosed, has finally been diagnosed. While it is not life threatening, it is TM. I am so sad. I do not know what to think. When I was diagnosed he is the only child of my four that asked if it was hereditary, and I said no. He replied “Good, then I won’t get it.” Now they strongly think he has it. I am so sad. So hurt – probably angry if I allow that emotion. I worry about his future. I know he can be productive, but really – two people in the same family having this beast of a disease? What are the chances? The only common denominator, other than the gene pool, is that he was in the same vehicle accident that I was in 8 years ago. And he was on the same side of the truck that I was on, in the back seat. Why so long to manifest? I don’t know. He has seen me and my trials, so he knows what is ahead. Does anyone know if this beastly condition can be hereditary? He is already talking about not having children in case it is. I am so sad, so discouraged. I know that he is lucky – he can walk with a cane – for that I am thankful. He has not gone to school for a year because of the pain, and the exhaustion. I know that Tracy out there has an eleven year old daughter with it. I am just wondering if anyone else has two family members afflicted with this thing? I simply cannot stop the tears. It is one thing for me, at 47, to face life with this, but to have my son have it too, at 15 is almost too much. Thanks for listening. Janet
Re: [TMIC] just wondering
Hi Jeff, I'm not sure, but I think that if the impulses to the pudendal nerve are intact, that it is possible. Grace
Re: [TMIC] My Son
I've got many wild ideas about causes, but heredity is not one of them. What he shares with you is the environment and perhaps, and only perhaps sensitivity to certain insults/assaults. It was strange to me that this didn't manifest til i went to Rochester where there were people who knew what it was. I remember awhile back we tried anecdotally to see if there were regional/location clusters. As mine is idiopathic and the months i spent in the hospital were mainly about endless painful tests that yeiled not one clue, I urge you not to give into the idea that it is somehow you. There is a lot wrong with our air, our water, our food, our medication, our environment. I am sorry to hear such sad news. I wish you both healing and strength. Akua --
Re: [TMIC] My Son
Janet,
My heart goes out to your son, yourself and your family.
I wonder why it has taken a whole year to diagnose him.
I don't know if TM is hereditary. However I figure that there is a big
connection with autoimmune conditions in a family. I have TM (I'm 65 this
year) TM since 2003, my sister 3 years younger has MS, diagnosed in 1991, my
sister 7 years younger has Ulcerative Colitis, diagnosed in 1972, my father had
Rheumatoid Arthritis. These are all autoimmune conditions.
My daughter purchased some extra health insurance sor hereself this past year.
She had to declare any conditions in the immediate family, parents, siblings
etc. Since I have TM they would not insure her health against MS. So that
tells me that the insurance people also figure there is a connection.
You have every right to feel all your emotions of sad, hurt and angry. Now
that they have diagnosed him I do hope that the doctors will be able to help
him with medications to relieve some of his pain and fatigue if he is not
already on meds for these issues.
Please keep posting and use us as one of your sounding boards. Perhaps seeing
a professional to help you and your son deal with the psycological effects that
this disability takes on us could help as well.
{{{Hugs}}} to you and your son and family
Heather in Calgary
- Original Message -
From: Janet Dunn
To: 'Transverse Myelytis'
Sent: Thursday, May 06, 2010 10:30 AM
Subject: [TMIC] My Son
Hello all you fellow TM'rs.
It is with such a heavy heart, and with tears rolling down my face that I
write this.
My 15 year old son, who has struggled with his legs for a year now,
undiagnosed, has finally been diagnosed. While it is not life threatening, it
is TM.
I am so sad. I do not know what to think. When I was diagnosed he is the
only child of my four that asked if it was hereditary, and I said no. He
replied Good, then I won't get it.
Now they strongly think he has it. I am so sad. So hurt - probably angry if
I allow that emotion. I worry about his future. I know he can be productive,
but really - two people in the same family having this beast of a disease?
What are the chances?
The only common denominator, other than the gene pool, is that he was in the
same vehicle accident that I was in 8 years ago. And he was on the same side
of the truck that I was on, in the back seat. Why so long to manifest? I
don't know. He has seen me and my trials, so he knows what is ahead.
Does anyone know if this beastly condition can be hereditary? He is already
talking about not having children in case it is.
I am so sad, so discouraged. I know that he is lucky - he can walk with a
cane - for that I am thankful. He has not gone to school for a year because of
the pain, and the exhaustion. I know that Tracy out there has an eleven year
old daughter with it. I am just wondering if anyone else has two family
members afflicted with this thing?
I simply cannot stop the tears. It is one thing for me, at 47, to face life
with this, but to have my son have it too, at 15 is almost too much.
Thanks for listening.
Janet
Re: [TMIC] just wondering
Jeff, This issue is addressed in some of the areas on the Transverse Myelitis Association Forum. From some of the information there I know that some have been able to use medications ie: Viagara etc. There is a man named Rick Hansen here in Canada. He is known as The Man in Motion. He is a paraplegic and about 25 years or so ago he wheelchaired around the world. I know that he also married and had a family. So I'm sure that there is help for men with these questions and issues. Have you discussed these questions with your doctor? Heather in Calgary - Original Message - From: jeff bernier To: msersl...@yahoogroups.com ; tmic-list@eskimo.com Sent: Thursday, May 06, 2010 4:12 PM Subject: [TMIC] just wondering im sure some on the list may find this offensive and to you i appologise,but i think it is a legitimate question,can somone with paraplegia still be able to achieve an erection or be able to experience ejaculation,again im not trying to offened anyone,but im looking for answers. DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
Re: [TMIC] just wondering
Your question is not offensive, but I am not able to help you. I am sure the guys can help you. Janice From: jeff bernier Sent: Thursday, May 06, 2010 5:12 PM To: msersl...@yahoogroups.com ; tmic-list@eskimo.com Subject: [TMIC] just wondering im sure some on the list may find this offensive and to you i appologise,but i think it is a legitimate question,can somone with paraplegia still be able to achieve an erection or be able to experience ejaculation,again im not trying to offened anyone,but im looking for answers. DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
[TMIC] TM
After the awful news Janet Dunn has given us, I am wondering if where we live in the US has any relevance. I realize that there are those in our group that are from other countries and I am asking them along with our US citizens to just send me your name and the city and state you were living in when TM attacked you. I hope you don't mind my asking you to do this, but I think it would be very interesting if we found a certain area that was heavy with TM or very light with TM. Thank you, Janice
RE: [TMIC] My Son
Hi Cheryl That is the really odd thing. I said that it was TM right away when it happened, but they poo pooed me, as they know best and said it wasn’t. Even the specialists in BC Children’s hospital said no. He had a bad headache from the lumbar puncture that they gave him, and they concentrated on that. They put it down to a psyche case, since he could walk without the cane sometimes. We had to go through a psych evaluation and everything, so when the year was up, then they revisited it. We actually took him to Alberta to get the diagnosis. The neurologist there at least has some experience with TM. I am hanging in, and he, of course, is being tough. Thanks for the email. Janet From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: May 6, 2010 4:25 PM To: Janet Dunn Cc: tmic-list@eskimo.com Subject: Re: [TMIC] My Son Janet, I'm so sorry.It must be awful to hear the diagnosis for your son. You would think they would have looked at tm sooner since you have it. Do you know why they took so long to get the diagnosis? Just know that all on the list are thinking of you and your son. Cheryl in Easthampton,Mass. --- On Thu, 5/6/10, Janet Dunn j.d...@shaw.ca wrote:
Re: [TMIC] TM
I don't think that where we lived when TM struck is the only underlying factor. I was watching CNN and the doctor, Dr. Grupa?, said that they have studied the cord blood of newborns and they have found that the cord blood contained over 200 chemicals, not body chemials but harmful chemicals - contaminated newborns is what they called the newborns . The Dr. also said that there are thousands of chemicals that are in our food, air, clothing, cleaning supplies, etc. that have NOT been studied to make sure that they are not harmful. A Congressman has submitted a bill that will not allow any chemical to be used until the chemical is proven not harmful - as it stands now, a chemical is put into use and used until it is proven to be harmful! So we are all guinea pigs for the industries. For myself I believe that I had the bad genes for my auoimmune sstem but also just 75 days before TM struc me, I had a botched surgery then a follow-up successful surgery 30 days later. I n between the surgeries, I had an allergy reaction to the meds that they gave me. After the successful sugery, I went back to work early - due to deadlines which resulted in stress! Added to that were the holidays stress - Thanksgiving and Christmas. I think another factor was that the hospital where I had the botched successful surgery was under major remodeling - the surgery rooms where right next to a major area being remodeled. I grew up in Indianapolis, IN. I can rememer the different smells in the air - just to name a couple, a creasol pole coating factory, a couple of slaughter houses, meat processing, medical processing, bakeries (Wonder bread and others). I lived there for over 20 years. My daughter was born there and as a baby she had so many attacks of broncitis (sp?) BUT as soon as we moved here in SW FL when she was 2, the attacks stopped. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Thursday, May 6, 2010 10:55:00 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] TM After the awful news Janet Dunn has given us, I am wondering if where we live in the US has any relevance. I realize that there are those in our group that are from other countries and I am asking them along with our US citizens to just send me your name and the city and state you were living in when TM attacked you. I hope you don't mind my asking you to do this, but I think it would be very interesting if we found a certain area that was heavy with TM or very light with TM. Thank you, Janice
Re: [TMIC] just wondering
According to my booklet from the Reed foundation, it is well within the realm of possibility. It seems to depend on the level and type/span of your injury. You should contact the Reed foundation and get that booklet-- it was incredibly helpful to me while i was in the nursing home being mistreated. And I shared it with the other oppressed prisoners-- a couple of guys who told me it was VERY helpful. --
