Re: [TMIC] Fatigue/Cycle
Warning to all; Melatonin will absolutely aggravate depression and will wash out anti depression medications. You will not notice it at first but in about a week you will have backed into a cave looking out. Dalton --Original Message-- From: Akua To: tmic-list@eskimo.com Subject: Re: [TMIC] Fatigue/Cycle Sent: Sep 5, 2010 5:32 AM O Linda! Glad you've found a solution! I'm adding melatonin to my list to investigate. Thanks for sharing that! And don't worry worry is a waste of energy. Deep breathe, envision all the fun you will have in learning more, hearing more and being in the presence of those who understand! I so wish i could sit in such caring company! I look forward to hearing about the new insights and new developments. Akua -- Dalton Garis Abu Dhabi +971-050-668-5760
Re: [TMIC] Blessings
That is great news. You never know from day to day what blessings will come your way.Very happy for you! Janice From: Rev. Craig Crossman Sent: Friday, September 03, 2010 10:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Blessings You will have to forgive me for using religious language today, but we are experiencing a real blessing. First of all, the weather has broken and the days start at 45 degrees and go to the 80's, so I am not having as many symptom problems with my TM. Then, I got a phone call from a company I have done work for before and we (my wife and I) were offered a full-time job with benefits which will be doing audits for insurance policies. The best part is that it will all be done by phone and internet from home! And the starting pay of $30K/year will be a real blessing. That plus what I earn at the church means we can now get ourselves back out of debt and start saving money again. The company has been around for 80 years so they are stable. And the work is such that it will continue even in a bad economy. Hooray! Hope you all are having a great day as well. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] overdoing it
Interesting way of coping. Janice From: fr...@franksheldon.com Sent: Saturday, September 04, 2010 4:04 PM To: john snodgrass ; Barbara Alma Cc: transverse myelitis Subject: Re: [TMIC] overdoing it Hey, I am slowly adapting to the constant pain and all of the other sequelae of this affliction. I am slowly moving into my brain, leaving my body- I am living in my mind. My body is becoming just some sort of biological device in which I exist. The pain is associated with, connected to, this biological vessel, and so is less important to me. My two cents Frank
Re: [TMIC] Fatigue/Cycle
I find that getting up around 7:30am, having my coffee and watching the Today show for about an hour and then having a fairly busy morning, fixing lunch for hubby and I, resting for a few hours, fixing dinner for us and a quiet evening then bed at 10:30pm, read for about an hour before sleep pretty well does it for me. Of course, my days get changed some by going to lunch with 2 different groups of friends and another group I go to movies with. Then, my hubby will decide I need to get out of the house and we go ride around for a while - after stopping for a blizzard from DQ - and check out new areas of town.I must say, I really am busy in the mornings with cleaning, ironing, PT exercises, laundry, etc. That pretty well does it for me. I know I am fortunate to be able to walk with a cane and be fairly independent inside of the house. Outside of the house, I use a wheelchair. Janice -- From: Akua a...@artfarm.com Sent: Saturday, September 04, 2010 2:46 PM To: tmic-list@eskimo.com Subject: [TMIC] Fatigue/Cycle If I can stay asleep until 11:30 am and not get up until 1, I am up until 4 am asleep by 5a.m. -- a 17 hour day -- and feel rested. If I have to be up at 8a.m. and dressed by 10 a.m. (I'm paralyzed, it takes time) I am exhausted by 4 p.m. in bed by 10 p.m. and unable to fall asleep until 2 am and exhausted when i have to wake up at 8 am -- a 12 hour day This may be apropos of nada, but I wonder if others find that recasting/reshaping their sleep/wake cycles, grants more energy, buys more time. --
Re: [TMIC] Fatigue/Cycle
With baclofen, I have very little problem with sleep or leg spasms. But, what is melatonin? Janice From: L T CHERPESKI Sent: Saturday, September 04, 2010 6:11 PM To: tmic-list@eskimo.com ; Akua Subject: Re: [TMIC] Fatigue/Cycle Yep, Akua, can totally relate to everything you said. Since TM, I have had such trouble with my sleep, or lack thereof, that I find myself crying at the drop of a hat - Sleeping pills don't work for me. However, many people have told me about their positive experience with Melatonin. Out of sheer desperation, I talked to my pharmacist about it. He reviewed my meds and told me it would be ok to take. After 3 days I actually slept 9 hours, then 8 hours and it's been pretty consistent since. The most I was sleeping before was 3 or 4 hours, wake up and not get back to sleep for another 2 hours and only for an hour if I was lucky - and then it wasn't even a restful sleep. I have to take a nap every day. Basically no quality of life because I was so so tired all the time from not sleeping. I'm all set to go to the Symposium in Dallas and I am already worried about the long air travel, the long days at the Symposium itself and how in the world I will be able to handle all of it. Linda - Original Message - From: Akua To: tmic-list@eskimo.com Sent: Saturday, September 04, 2010 1:46 PM Subject: [TMIC] Fatigue/Cycle If I can stay asleep until 11:30 am and not get up until 1, I am up until 4 am asleep by 5a.m. -- a 17 hour day -- and feel rested. If I have to be up at 8a.m. and dressed by 10 a.m. (I'm paralyzed, it takes time) I am exhausted by 4 p.m. in bed by 10 p.m. and unable to fall asleep until 2 am and exhausted when i have to wake up at 8 am -- a 12 hour day This may be apropos of nada, but I wonder if others find that recasting/reshaping their sleep/wake cycles, grants more energy, buys more time. --
Re: [TMIC] Pain Pump
I have. Both were Baclofen, one a replacement for the other to get new batteries. Medtronics, the manufacturer, is the authority on using both meds mixed. Alton On Sep 4, 2010, at 2:30 PM, ladyno...@aol.com wrote: had the pump removed and reinstalled?
Re: [TMIC] Fatigue/Cycle
Good to know. Janice -- From: Dalton Garis malugss...@gmail.com Sent: Sunday, September 05, 2010 3:54 AM To: Akua a...@artfarm.com; tmic-list@eskimo.com Subject: Re: [TMIC] Fatigue/Cycle Warning to all; Melatonin will absolutely aggravate depression and will wash out anti depression medications. You will not notice it at first but in about a week you will have backed into a cave looking out. Dalton --Original Message-- From: Akua To: tmic-list@eskimo.com Subject: Re: [TMIC] Fatigue/Cycle Sent: Sep 5, 2010 5:32 AM O Linda! Glad you've found a solution! I'm adding melatonin to my list to investigate. Thanks for sharing that! And don't worry worry is a waste of energy. Deep breathe, envision all the fun you will have in learning more, hearing more and being in the presence of those who understand! I so wish i could sit in such caring company! I look forward to hearing about the new insights and new developments. Akua -- Dalton Garis Abu Dhabi +971-050-668-5760
Re: [TMIC] Fatigue/Cycle
Dalton - I'm sorry this happened to you. Do you know others who have had the same reaction? I have not had any reaction and my pharmacist didn't mention it - I didn't see it mentioned when I googled Melatonin either. It's good to know that like any other med it can affect all of us differently. Thanks for the heads up Linda - Original Message - From: Dalton Garismailto:malugss...@gmail.com To: Akuamailto:a...@artfarm.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, September 05, 2010 2:54 AM Subject: Re: [TMIC] Fatigue/Cycle Warning to all; Melatonin will absolutely aggravate depression and will wash out anti depression medications. You will not notice it at first but in about a week you will have backed into a cave looking out. Dalton --Original Message-- From: Akua To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] Fatigue/Cycle Sent: Sep 5, 2010 5:32 AM O Linda! Glad you've found a solution! I'm adding melatonin to my list to investigate. Thanks for sharing that! And don't worry worry is a waste of energy. Deep breathe, envision all the fun you will have in learning more, hearing more and being in the presence of those who understand! I so wish i could sit in such caring company! I look forward to hearing about the new insights and new developments. Akua -- Dalton Garis Abu Dhabi +971-050-668-5760
[TMIC]
http://www.prd1.medxdrugx.com
Re: [TMIC] Fatigue/Cycle
It happened years ago and I learned my lesson with the melatonin. I mean, it really works, especially for older persons who have lost this sleep-regulator. But if, like me, you take meds for depression, then you should stay away from it. D. From: L T CHERPESKI cherp...@msn.com Date: Sun, 5 Sep 2010 14:37:37 -0600 To: Dalton Garis malugss...@gmail.com, Akua a...@artfarm.com, tmic-list@eskimo.com Subject: Re: [TMIC] Fatigue/Cycle Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 5 Sep 2010 13:37:21 -0700 Dalton - I'm sorry this happened to you. Do you know others who have had the same reaction? I have not had any reaction and my pharmacist didn't mention it - I didn't see it mentioned when I googled Melatonin either. It's good to know that like any other med it can affect all of us differently. Thanks for the heads up Linda - Original Message - From: Dalton Garis mailto:malugss...@gmail.com To: Akua mailto:a...@artfarm.com ; tmic-list@eskimo.com Sent: Sunday, September 05, 2010 2:54 AM Subject: Re: [TMIC] Fatigue/Cycle Warning to all; Melatonin will absolutely aggravate depression and will wash out anti depression medications. You will not notice it at first but in about a week you will have backed into a cave looking out. Dalton --Original Message-- From: Akua To: tmic-list@eskimo.com Subject: Re: [TMIC] Fatigue/Cycle Sent: Sep 5, 2010 5:32 AM O Linda! Glad you've found a solution! I'm adding melatonin to my list to investigate. Thanks for sharing that! And don't worry worry is a waste of energy. Deep breathe, envision all the fun you will have in learning more, hearing more and being in the presence of those who understand! I so wish i could sit in such caring company! I look forward to hearing about the new insights and new developments. Akua -- Dalton Garis Abu Dhabi +971-050-668-5760
Re: [TMIC] changes
Hi Linda, Actually, when I started this therapy it was when I finally (after 18 months) admitted that I was not going to be waking up one morning whole and well again in the same situation that I was prior to TM. I needed to face facts and I went into my bosses office and said that I'd finally given into my illness and was going to go out on disability. I had gotten down to working 5 hrs that week, totally drained, and didn't even have energy for my PT. She had been very patient with me and told me that as long as I wanted to work she'd work with me. I knew I'd had it. I then called my doctor's office and told them what had happened and asked for an appointment as I was finally ready for an anti-depressant. They gave me an appointment that afternoon. I then called our EAP (Employee Assistance Program) and let them know what I was doing and they wanted me to come in for an appointment as well, the next day. After seeing my own PCP that day, he then had me see a psychotherapist right after my appointment. I have an HMO and they are all in the same building. Once he evaluated me he determined which drug anti-depressant to give me and thought I could possibly benefit from a group meeting for pain management, and it was run by my therapist and one that I had used a few years prior when I was having a bit of trouble with one of my sons. The group consisted on people with migraines, fibromyalgia, etc, but nobody with any physical disability. I joined the group and it was interesting hearing people's stories and the meds they were on. The common thread was pain, not disability. I stayed with the group until I moved, so for about 2 years, once a week. The best part of the whole meeting was the meditation that we did at the end of each meeting. Sometimes I'd even be so relaxed that I'd fall asleep. Their voices were so soothing. Now, my current Neurologist runs another group, but I haven't joined that one. She told me I can come any time, but it's mostly people coming with problems with medications or wanting to change their meds and wanting to talk to others about their experiences, etc. I was talking about seeing another psychotherapist and seeing if there was a group that was similiar to my old one. It's not a one size fits all, just like this group. Not all will feel comfortable with them all, but it's worth a try with nothing to lose and plenty to gain if it makes you feel better. Hugs, Barbara A in Auburn CA -Original Message- From: L T CHERPESKI cherp...@msn.com To: wolft...@optonline.net; tmic-list@eskimo.com; Barbara Alma balmat...@aol.com Sent: Sat, Sep 4, 2010 3:24 pm Subject: Re: [TMIC] changes Hi Barbara, Great information you gave Kevin. You suggested group therapy and that you had done it yourself. Are you talking about for depression? If so I can see how that would be very beneficial to physically be with others who share the same or similar depression issues. Is this what you meant and if so how did you get involved in a group therapy? Sorry if this is obvious to everyone else except me - I just haven't heard of it. Thanks Linda - Original Message - From: Barbara Alma To: wolft...@optonline.net ; tmic-list@eskimo.com Sent: Thursday, September 02, 2010 10:34 PM Subject: Re: [TMIC] changes Hello Kevin, How have you been? It looks like you are finally getting some services and some medications. Looks like you are on the right track. I'm so thrilled to hear that you are getting physical therapy and the anti-depression meds. Who knows how much better you'd be if you would have gotten this long ago, but at least you are getting them now. It's hard work, but I hope that you will see some reward from the therapy. If you can get strong enough to get out again, a group therapy may be a good situation for you. I did that for quite some time prior to moving here and it helped me so much with my depression. I should do it again, as I find myself slipping every now and then, like several times a year, and not pulling myself out too easily. It's hard to start, but once you do, you'll find that you don't want to miss it. I found that I felt that I was helping others and in turn it felt like I was helping myself. Very much like the TMIC, but you get to do it in person, so you get that human contact that is necessary for us to thrive. Hugs, Barbara A in Auburn CA -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Wed, Sep 1, 2010 11:55 am Subject: [TMIC] changes Hi Friends, Well, we're having another heatwave here in the northeast (CT), after almost winter weather a few weeks ago, weird. I've been trying some new things to try to feel 'human' again, and pull myself out of my depression. I started on the anti-depressant Lexapro about 3 weeks ago. No noticeable change yet, but I know it can take several weeks. At least no
