Re: [TMIC] Medications

2010-09-10 Thread Dalton Garis
Since disability payments are based on SSA quarters reported;

Some of us, who only got good jobs later in life, will not get very much at
all if we go on disability.

Dalton





From: Barbara Alma balmat...@aol.com
Date: Thu, 09 Sep 2010 23:05:51 -0400
To: jcs...@yahoo.com, tmic-list@eskimo.com
Subject: Re: [TMIC] Medications
Resent-From: tmic-list@eskimo.com
Resent-Date: Thu, 9 Sep 2010 20:06:14 -0700

John,
 
If I could have continued working after TM I would have.  It does take a
high hit on your finances when you stop working and go on disability.  It's
great that it is there if need be, but in my mind, nothing beats working
until you are ready to stop by choice.  The doctor may however, feel that it
is taking a heavy toll on you, which if it is, then it is something to
consider.
Hugs, Barbara A in Auburn CA


-Original Message-
From: john snodgrass jcs...@yahoo.com
To: Janice Nichols jan...@centurytel.net
Cc: transverse myelitis tmic-list@eskimo.com
Sent: Thu, Sep 9, 2010 1:40 pm
Subject: Re: [TMIC] Medications

I am going to fight this thing as long as i can without stoping working.
if i go on disability i will get @ 1400 a month if i am lucky.
 
thats opposed to the @3000 i get working.
 
still paying for my home.


From: Janice Nichols jan...@centurytel.net
To: john snodgrass jcs...@yahoo.com; Janet Dunn j.d...@shaw.ca
Cc: transverse myelitis tmic-list@eskimo.com
Sent: Thu, September 9, 2010 4:09:59 PM
Subject: Re: [TMIC] Medications

I have stopped going to my neuro.   If there is a change, or something I
don't understand, I will go back. He just did not have anything new for
me - either
meds or advice. My meds now come from my family doctor - who was right
with me all the 9 weeks in the hospital calling in specialists for each
problem
that developed.   Also, my other  meds come from my Pain Management Doc who
has been very helpful.At this point, I really don't need a neuro.
 
John, why not disability? You are in pain quite a bit.   I don't know
how old you are, but I could understand doing it.
Janice

From: john snodgrass mailto:jcs...@yahoo.com
Sent: Thursday, September 09, 2010 2:57 PM
To: Janet Dunn mailto:j.d...@shaw.ca
Cc: transverse myelitis mailto:tmic-list@eskimo.com
Subject: Re: [TMIC] Medications

it really bothers me to hear of these instances of people not getting to the
Dr or having to travel vast distances and wait times when I can go to my
family Dr on a whim and my neurologist works at the same place as my
sister-n-law and is always asking about me and making sure i have
appointments every 3 months.
however,,going to the Dr doesnt make me any better than i would be if i
didnt go at all now.
I just get my scripts on time and they watch for other things i reckon.
(depression talking)
 
as for working,my boss and superintendant allow me to work but keep
suggesting that i go on disability.
so does my Dr's.
one of my Dr's is a senator in this state and told me today that should i
ever not be able to go on that he would go to bat for me.
thought that was interesting.
 
I still dont understand why a dr is a senator or why is a senator is a
Dr.
 
His name is Ron D Stollings
 
as for hydrocodonei read on one of the med-sites that if you take 2
tylenol with the hydrocodone that it will do better than either one of them
by themselves.So I did,and it does.
 
then you have the extended use of acetaminophen effect that might eat your
liver or something.
Pill time,,,bye bye.

From: Janet Dunn j.d...@shaw.ca
To: transverse myelitis tmic-list@eskimo.com
Sent: Thu, September 9, 2010 10:59:59 AM
Subject: [TMIC] Medications

Hello to all
 
I find it very interesting the number of us that are on or have taken
hydrocodone, especially when it is ³said² that opoids do not help with the
pain of TM
 
For me personally, I wouldn¹t make it if I didn¹t have a member or two of
the hydrocodone family in my drug repertoire.   I take 20mg  or 40mg of long
acting  HCL in the morning, depending on the legs, and have perocdan as a
filler for the day.  I also take Lyrica, Effexor, Wellbutrin and baclofen.
Even today, after 2 days of working 8 hours, and moving around and doing
housework, I hurt.  I want to lay in bed.  But . . . just like the rest of
us . . . duty and life are calling.
 
I really appreciate the medication information simply because I live so far
away from the nearest neurologist, and the wait time is up to a year, if we
can get in at all.  Then we must travel either 400 miles out of province, or
850 miles to Vancouver.  So the information on here is absolutely priceless.
However, you cannot have my MasterCard!  ;)
 
Janet
 
From: john snodgrass [mailto:]
Sent: September 8, 2010 2:09 PM
To: Rev. Craig Crossman
Cc: transverse myelitis
Subject: Re: [TMIC] Neurologist visit
 
I have been taking gabapentin 400mg  for the last 2 years 3 times a day.
some people say that they can take 1 and it knocks them out. i have never
experienced that. perhaps because of the 

[TMIC] Unidentified subject!

2010-09-10 Thread jackduv
My right leg seemed to suffer more then left. I was wondering... I got tm in 
07. Over last months intense pain and can't sleep on right side my right leg 
seems to be getting shorter. Has this happened to anyone ? Is this from TM ? 
Sent via BlackBerry by ATT



Fw: [TMIC] Unidentified subject!

2010-09-10 Thread jackduv

--Original Message--
From: Jackie Duval
To: TMIC
ReplyTo: Jackie Duval
Subject: [TMIC] Unidentified subject!
Sent: Sep 10, 2010 8:57 AM

My right leg seemed to suffer more then left. I was wondering... I got tm in 
07. Over last months intense pain and can't sleep on right side my right leg 
seems to be getting shorter. Has this happened to anyone ? Is this from TM ?
Sent via BlackBerry by ATT



Sent via BlackBerry by ATT



Re: [TMIC] TRANSVERSE MYELITIS

2010-09-10 Thread Janice Nichols
I agree, Janice


From: Beeclark 
Sent: Friday, September 10, 2010 12:22 AM
To: tmic-list@eskimo.com 
Subject: Re: [TMIC] TRANSVERSE MYELITIS


Not really... but as I told Greg on his Facebook, it really brought me back to 
the day I contracted it. His experience was so very close to mine. He regained 
slightly more function than I, but I think it's wonderful to have something 
visual for others to see what we - and our families have gone through. Greg and 
his parents re-enact exactly what occurred as the virus began to affect him and 
what it took for him to get to the point he's at now, two years later. I also 
think it shows how important it is to find a doctor who, if they're not already 
familiar with TM, is willing to explore all avenues to find out how to treat 
you.
Betty 



In a message dated 09/09/10 20:07:35 Pacific Daylight Time, 
jan...@centurytel.net writes:
  Betty, did you learn anything different from watching - meds, exercising, 
etc.?
  Janice


  From: Beeclark 
  Sent: Thursday, September 09, 2010 5:51 PM
  To: tmic-list@eskimo.com 
  Subject: Re: [TMIC] TRANSVERSE MYELITIS


  My mistake... the episode is titled The Toddler Who Stopped Walking and it 
originally aired last Sunday night. I watched it and it was GREAT! It would be 
wonderful if all the physicians who are not familiar with TM would watch!

  Betty 



  In a message dated 09/09/10 15:42:43 Pacific Daylight Time, Beeclark writes:

The story is about Greg Sapp who lives in Statesboro, GA. The show 
originally aired this last Monday and will repeat next week. Here's a link 
about the show. Unfortunately, those who don't have cable and don't get this 
particular station won't be able to see it... and for those who can get it, be 
aware, if you try to program your DVR to record - I believe the show is be 
labeled The Girl Who Stopped Walking - Greg's part of the show is in the 
second story being highlighted:

Mystery Diagnosis on Discovery Health Channel (Monday) will be about a man 
with TM. 
http://savannahnow.com/news/2010-09-05/local-man-featured-mystery-diagnosis

Betty 
(in Northern California)

In a message dated 09/09/10 13:27:49 Pacific Daylight Time, 
jan...@centurytel.net writes:
  My sister, who lives in Savannah, told me about a Transverse Myelitis 
patient that lives near there.   He will be on the
  2nd half of Discovery Health channel.   Dates are:

   Saturday, Sept. 11 at 5:00pm  and

   Monday, Sept. 13 at 3:00pm

  Should be interesting and am glad that TM is getting some recognition.

  Janice





Re: [TMIC] Medications

2010-09-10 Thread Janice Nichols
Re: [TMIC] MedicationsRemember you can work up to the amount you need.   If you 
start with the zomby-business, cut back and see if that will work for you.
Or, just take it
a little before bedtime.   That is what I do.
Janice


From: Dalton Garis 
Sent: Friday, September 10, 2010 5:31 AM
To: Janice Nichols ; j.d...@shaw.ca ; tmic-list@eskimo.com ; Barbara Alma 
Subject: Re: [TMIC] Medications


OK;

I'll suggest it to my neuro.  He has been steering me away from the heavy-duty 
meds because I already take 40 mg of Prozac (have for 20 years) and he is 
afraid it will zomby-ize me.

Dalton





From: Janice Nichols jan...@centurytel.net
Date: Thu, 9 Sep 2010 22:22:34 -0500
To: j.d...@shaw.ca, tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] Medications
Resent-From: tmic-list@eskimo.com
Resent-Date: Thu, 9 Sep 2010 20:22:23 -0700

There's that word again  -  spasms.I swear by baclofen.Had to change 
the number taken and the times of the day when to take them, but once that
was figured out, I could sleep.Sorry to sound like a broken record and I 
realize that we are all different too.Sure wish it would work on you guys 
the
way it works for me.
Janice

 
From: Barbara Alma mailto:balmat...@aol.com  
Sent: Thursday, September 09, 2010 10:16 PM
To: j.d...@shaw.ca ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Medications

Hydrocodone: I personally do not get any relief from my nerve pain, 
burning/freezing or hyper sensitivity.  I take it for other pain, and I also 
take it to sleep occassionally.  Before anyone states that it isn't a sleep 
aid, I know it, but it allows my other aches and pains to stop hurting enough 
for me to go to sleep.  It does not work on the really bad nights when my 
nerves or spasms do not settle down though.  I may as well have not even 
bothered.

Hugs, Barbara A in Auburn CA


-Original Message-
From: Janet Dunn j.d...@shaw.ca
To: 'transverse myelitis' tmic-list@eskimo.com
Sent: Thu, Sep 9, 2010 7:59 am
Subject: [TMIC] Medications

Hello to all

I find it very interesting the number of us that are on or have taken 
hydrocodone, especially when it is said that opoids do not help with the pain 
of TM

For me personally, I wouldn't make it if I didn't have a member or two of the 
hydrocodone family in my drug repertoire.   I take 20mg  or 40mg of long acting 
 HCL in the morning, depending on the legs, and have perocdan as a filler for 
the day.  I also take Lyrica, Effexor, Wellbutrin and baclofen.Even today, 
after 2 days of working 8 hours, and moving around and doing housework, I hurt. 
 I want to lay in bed.  But . . . just like the rest of us . . . duty and life 
are calling.

I really appreciate the medication information simply because I live so far 
away from the nearest neurologist, and the wait time is up to a year, if we can 
get in at all.  Then we must travel either 400 miles out of province, or 850 
miles to Vancouver.  So the information on here is absolutely priceless.  
However, you cannot have my MasterCard!  ;)

Janet

From: john snodgrass [mailto:] 
Sent: September 8, 2010 2:09 PM
To: Rev. Craig Crossman
Cc: transverse myelitis
Subject: Re: [TMIC] Neurologist visit

I have been taking gabapentin 400mg  for the last 2 years 3 times a day. some 
people say that they can take 1 and it knocks them out. i have never 
experienced that. perhaps because of the extreem pain.
I also take hydrocodone,baclofen, and lorazepam.
  







= 



Re: [TMIC] Unidentified subject!

2010-09-10 Thread Janice Nichols
My right leg was/is weaker than my left also.   I have had TM for over 3 
years now and I know what you are saying when you feel
one leg is shorter than the other.I don't think that is happening, but I 
catch myself feeling that way and then I really straighten up
tall and the feeling goes away.   I think we tend to lean one way or the 
other according to weaknesses.I try to always stand as
straight as I can - especially when noticing the lean toward the right. 
Also, pain and weakness can be coming from the hamstring

on the right side.   Lots of stretching helps that.  Hope I helped.
Janice

--
From: jack...@att.blackberry.net
Sent: Friday, September 10, 2010 9:57 AM
To: TMIC tmic-list@eskimo.com
Subject: [TMIC] Unidentified subject!

My right leg seemed to suffer more then left. I was wondering... I got tm 
in 07. Over last months intense pain and can't sleep on right side my 
right leg seems to be getting shorter. Has this happened to anyone ? Is 
this from TM ?

Sent via BlackBerry by ATT






Re: [TMIC] Medications

2010-09-10 Thread Jan Hargrove
I applied when I was +/- 55 and when I finally got it, I was given the amount I 
would get at full retirement...and this was before tm, for another immune 
problem.
My 2¢  janh




From: Dalton Garis malugss...@gmail.com
To: Barbara Alma balmat...@aol.com; jcs...@yahoo.com; tmic-list@eskimo.com
Sent: Fri, September 10, 2010 5:28:21 AM
Subject: Re: [TMIC] Medications

Since disability payments are based on SSA quarters reported;

Some of us, who only got good jobs later in life, will not get very much at all 
if we go on disability.

Dalton





From: Barbara Alma balmat...@aol.com
Date: Thu, 09 Sep 2010 23:05:51 -0400
To: jcs...@yahoo.com, tmic-list@eskimo.com
Subject: Re: [TMIC] Medications
Resent-From: tmic-list@eskimo.com
Resent-Date: Thu, 9 Sep 2010 20:06:14 -0700

John,

If I could have continued working after TM I would have.  It does take a high 
hit on your finances when you stop working and go on disability.  It's great 
that it is there if need be, but in my mind, nothing beats working until you 
are 
ready to stop by choice.  The doctor may however, feel that it is taking a 
heavy 
toll on you, which if it is, then it is something to consider.
Hugs, Barbara A in Auburn CA


-Original Message-
From: john snodgrass jcs...@yahoo.com
To: Janice Nichols jan...@centurytel.net
Cc: transverse myelitis tmic-list@eskimo.com
Sent: Thu, Sep 9, 2010 1:40 pm
Subject: Re: [TMIC] Medications

I am going to fight this thing as long as i can without stoping working.
if i go on disability i will get @ 1400 a month if i am lucky.
 
thats opposed to the @3000 i get working.
 
still paying for my home.



From:Janice Nichols jan...@centurytel.net
To: john snodgrass jcs...@yahoo.com; Janet Dunn j.d...@shaw.ca
Cc: transverse myelitis tmic-list@eskimo.com
Sent: Thu, September 9, 2010 4:09:59 PM
Subject: Re: [TMIC] Medications

I have stopped going to my neuro.   If there is a change, or something I don't 
understand, I will go back. He just did not have anything new for me - 
either
meds or advice. My meds now come from my family doctor - who was right with 
me all the 9 weeks in the hospital calling in specialists for each problem
that developed.   Also, my other  meds come from my Pain Management Doc who has 
been very helpful.    At this point, I really don't need a neuro.

John, why not disability? You are in pain quite a bit.   I don't know how 
old you are, but I could understand doing it.
Janice

From: john snodgrass mailto:jcs...@yahoo.com  
Sent: Thursday, September 09, 2010 2:57 PM
To: Janet Dunn mailto:j.d...@shaw.ca  
Cc: transverse myelitis mailto:tmic-list@eskimo.com  
Subject: Re: [TMIC] Medications

it really bothers me to hear of these instances of people not getting to the Dr 
or having to travel vast distances and wait times when I can go to my family Dr 
on a whim and my neurologist works at the same place as my sister-n-law and is 
always asking about me and making sure i have appointments every 3 months.
however,,going to the Dr doesnt make me any better than i would be if i 
didnt go at all now.
I just get my scripts on time and they watch for other things i reckon.
(depression talking)
 
as for working,my boss and superintendant allow me to work but keep suggesting 
that i go on disability.
so does my Dr's.
one of my Dr's is a senator in this state and told me today that should i ever 
not be able to go on that he would go to bat for me.
thought that was interesting.
 
I still dont understand why a dr is a senator or why is a senator is a Dr.
 
His name is Ron D Stollings
 
as for hydrocodonei read on one of the med-sites that if you take 2 tylenol 
with the hydrocodone that it will do better than either one of them by 
themselves.So I did,and it does.
 
then you have the extended use of acetaminophen effect that might eat your 
liver 
or something.
Pill time,,,bye bye.


From:Janet Dunn j.d...@shaw.ca
To: transverse myelitis tmic-list@eskimo.com
Sent: Thu, September 9, 2010 10:59:59 AM
Subject: [TMIC] Medications

Hello to all

I find it very interesting the number of us that are on or have taken 
hydrocodone, especially when it is “said” that opoids do not help with the pain 
of TM

For me personally, I wouldn’t make it if I didn’t have a member or two of the 
hydrocodone family in my drug repertoire.   I take 20mg  or 40mg of long acting 
 HCL in the morning, depending on the legs, and have perocdan as a filler for 
the day.  I also take Lyrica, Effexor, Wellbutrin and baclofen.    Even today, 
after 2 days of working 8 hours, and moving around and doing housework, I hurt. 
 I want to lay in bed.  But . . . just like the rest of us . . . duty and life 
are calling.

I really appreciate the medication information simply because I live so far 
away 
from the nearest neurologist, and the wait time is up to a year, if we can get 
in at 

RE: [TMIC] Unidentified subject!

2010-09-10 Thread Janet Dunn
Yes, I used to feel that way, I really did.  However, I took about 3 years
of Rolfing and or Massage Therapy treatments - and some of them were very
painful.  That really helped my legs feel and work better.  In fact, I
attribute my current ability to walk very well most days to all of the
treatments I took.  

It did cost a bundle, and it did hurt a ton.  However, now I don't have that
feeling, I can walk quite well, and my right side seems to feel better.
Although it has been 6 months since my last massage, and I can feel the
thing in my body starting to reach it's tendrils out again and begin to
strangle my leg and torso.  Time to get going again on the massage thing.
We have lost our best rolfer in town, and I am hesitant to try to find
another - simply because the treatment is very intense and personal.

Try massage, or as has been suggested already - stretching exercises;  if
you don't use it, somehow, you will lose it.

Janet 



-Original Message-
From: jack...@att.blackberry.net [mailto:jack...@att.blackberry.net] 
Sent: September 10, 2010 7:57 AM
To: TMIC
Subject: [TMIC] Unidentified subject!

My right leg seemed to suffer more then left. I was wondering... I got tm in
07. Over last months intense pain and can't sleep on right side my right leg
seems to be getting shorter. Has this happened to anyone ? Is this from TM ?

Sent via BlackBerry by ATT



Re: [TMIC] Medications

2010-09-10 Thread Dalton Garis
Does it work for seizures??

Dalton




From: Janice Nichols jan...@centurytel.net
Date: Fri, 10 Sep 2010 10:20:03 -0500
To: Dalton Garis malugss...@gmail.com, j.d...@shaw.ca,
tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] Medications

Remember you can work up to the amount you need.   If you start with the
zomby-business, cut back and see if that will work for you.Or, just take
it
a little before bedtime.   That is what I do.
Janice

From: Dalton Garis mailto:malugss...@gmail.com
Sent: Friday, September 10, 2010 5:31 AM
To: Janice Nichols mailto:jan...@centurytel.net  ; j.d...@shaw.ca ;
tmic-list@eskimo.com ; Barbara Alma mailto:balmat...@aol.com
Subject: Re: [TMIC] Medications

OK;

I¹ll suggest it to my neuro.  He has been steering me away from the
heavy-duty meds because I already take 40 mg of Prozac (have for 20 years)
and he is afraid it will zomby-ize me.

Dalton




From: Janice Nichols jan...@centurytel.net
Date: Thu, 9 Sep 2010 22:22:34 -0500
To: j.d...@shaw.ca, tmic-list@eskimo.com, Barbara Alma
balmat...@aol.com
Subject: Re: [TMIC] Medications
Resent-From: tmic-list@eskimo.com
Resent-Date: Thu, 9 Sep 2010 20:22:23 -0700

There's that word again  -  spasms.I swear by baclofen.Had to change
the number taken and the times of the day when to take them, but once that
was figured out, I could sleep.Sorry to sound like a broken record and I
realize that we are all different too.Sure wish it would work on you
guys the
way it works for me.
Janice

 
From: Barbara Alma mailto:balmat...@aol.com
Sent: Thursday, September 09, 2010 10:16 PM
To: j.d...@shaw.ca ; tmic-list@eskimo.com
Subject: Re: [TMIC] Medications

Hydrocodone: I personally do not get any relief from my nerve pain,
burning/freezing or hyper sensitivity.  I take it for other pain, and I also
take it to sleep occassionally.  Before anyone states that it isn't a sleep
aid, I know it, but it allows my other aches and pains to stop hurting
enough for me to go to sleep.  It does not work on the really bad nights
when my nerves or spasms do not settle down though.  I may as well have not
even bothered.

Hugs, Barbara A in Auburn CA


-Original Message-
From: Janet Dunn j.d...@shaw.ca
To: 'transverse myelitis' tmic-list@eskimo.com
Sent: Thu, Sep 9, 2010 7:59 am
Subject: [TMIC] Medications

Hello to all

I find it very interesting the number of us that are on or have taken
hydrocodone, especially when it is ³said² that opoids do not help with the
pain of TM

For me personally, I wouldn¹t make it if I didn¹t have a member or two of
the hydrocodone family in my drug repertoire.   I take 20mg  or 40mg of long
acting  HCL in the morning, depending on the legs, and have perocdan as a
filler for the day.  I also take Lyrica, Effexor, Wellbutrin and baclofen.
Even today, after 2 days of working 8 hours, and moving around and doing
housework, I hurt.  I want to lay in bed.  But . . . just like the rest of
us . . . duty and life are calling.

I really appreciate the medication information simply because I live so far
away from the nearest neurologist, and the wait time is up to a year, if we
can get in at all.  Then we must travel either 400 miles out of province, or
850 miles to Vancouver.  So the information on here is absolutely priceless.
However, you cannot have my MasterCard!  ;)

Janet

From: john snodgrass [mailto:]
Sent: September 8, 2010 2:09 PM
To: Rev. Craig Crossman
Cc: transverse myelitis
Subject: Re: [TMIC] Neurologist visit

I have been taking gabapentin 400mg  for the last 2 years 3 times a day.
some people say that they can take 1 and it knocks them out. i have never
experienced that. perhaps because of the extreem pain.
I also take hydrocodone,baclofen, and lorazepam.
  




= 




Re: [TMIC] Medications

2010-09-10 Thread frank

Doesn't help those of us who are not connected!




I drive 250 miles to Montreal, 250 miles back to Freeport,ME


I pay $640 every three months


Am I connected?? I think Not 11


F




[TMIC] TMIC-unidentified subject

2010-09-10 Thread rn11...@yahoo.com
Hi,
   My right leg is shorter since tm.
   It seems that while in rehab,I locked my left knee by hyperextending it. 
This caused it to stretch out the tendon and my left leg is now about 1 inch 
longer than the right. If they had given me a brace,this would not have 
happened.
   My left is the weaker leg,although if I'm walking it's the right one that 
gives.
 Cheryl in Easthampton,MA.


  

Re: [TMIC] Medications

2010-09-10 Thread john snodgrass
perhaps i should talk to the HR person where I work and see what can be done?



- Original Message 
From: Roger  Terese Pratt r.c.pr...@frontier.com
To: john snodgrass jcs...@yahoo.com
Sent: Thu, September 9, 2010 10:15:57 PM
Subject: Re: [TMIC] Medications

John,  I am on disability and collect both from my employer's disability 
program 
and from Social Security Disability.  It adds up to about 60% of what I was 
making.  It wouldn't hurt to talk to someone and find out.  I've been on 
disability for about 16 years.  My wife works, which helps alot.

- Roger in Kennewick, WA

- Original Message -
From: john snodgrass jcs...@yahoo.com
To: Janice Nichols jan...@centurytel.net
Cc: transverse myelitis tmic-list@eskimo.com
Sent: Thursday, September 9, 2010 1:40:47 PM
Subject: Re: [TMIC] Medications



I am going to fight this thing as long as i can without stoping working. 
if i go on disability i will get @ 1400 a month if i am lucky. 
  
thats opposed to the @3000 i get working. 
  
still paying for my home. 




From: Janice Nichols jan...@centurytel.net 
To: john snodgrass jcs...@yahoo.com; Janet Dunn j.d...@shaw.ca 
Cc: transverse myelitis tmic-list@eskimo.com 
Sent: Thu, September 9, 2010 4:09:59 PM 
Subject: Re: [TMIC] Medications 


I have stopped going to my neuro.   If there is a change, or something I don't 
understand, I will go back. He just did not have anything new for me - 
either 

meds or advice. My meds now come from my family doctor - who was right with 
me all the 9 weeks in the hospital calling in specialists for each problem 

that developed.   Also, my other  meds come from my Pain Management Doc who has 
been very helpful.    At this point, I really don't need a neuro. 

  
John, why not disability? You are in pain quite a bit.   I don't know how 
old you are, but I could understand doing it. 

Janice 




From: john snodgrass 
Sent: Thursday, September 09, 2010 2:57 PM 
To: Janet Dunn 
Cc: transverse myelitis 
Subject: Re: [TMIC] Medications 



it really bothers me to hear of these instances of people not getting to the Dr 
or having to travel vast distances and wait times when I can go to my family Dr 
on a whim and my neurologist works at the same place as my sister-n-law and is 
always asking about me and making sure i have appointments every 3 months. 

however,,going to the Dr doesnt make me any better than i would be if i 
didnt go at all now. 

I just get my scripts on time and they watch for other things i reckon. 
(depression talking) 
  
as for working,my boss and superintendant allow me to work but keep suggesting 
that i go on disability. 

so does my Dr's. 
one of my Dr's is a senator in this state and told me today that should i ever 
not be able to go on that he would go to bat for me. 

thought that was interesting. 
  
I still dont understand why a dr is a senator or why is a senator is a Dr. 
  
His name is Ron D Stollings 
  
as for hydrocodonei read on one of the med-sites that if you take 2 tylenol 
with the hydrocodone that it will do better than either one of them by 
themselves.So I did,and it does. 

  
then you have the extended use of acetaminophen effect that might eat your 
liver 
or something. 


Pill time,,,bye bye. 


From: Janet Dunn j.d...@shaw.ca 
To: transverse myelitis tmic-list@eskimo.com 
Sent: Thu, September 9, 2010 10:59:59 AM 
Subject: [TMIC] Medications 




Hello to all 

  

I find it very interesting the number of us that are on or have taken 
hydrocodone, especially when it is “said” that opoids do not help with the pain 
of TM 


  

For me personally, I wouldn’t make it if I didn’t have a member or two of the 
hydrocodone family in my drug repertoire.   I take 20mg  or 40mg of long acting 
 HCL in the morning, depending on the legs, and have perocdan as a filler for 
the day.  I also take Lyrica, Effexor, Wellbutrin and baclofen.    Even today, 
after 2 days of working 8 hours, and moving around and doing housework, I 
hurt.  
I want to lay in bed.  But . . . just like the rest of us . . . duty and life 
are calling. 


  

I really appreciate the medication information simply because I live so far 
away 
from the nearest neurologist, and the wait time is up to a year, if we can get 
in at all.  Then we must travel either 400 miles out of province, or 850 miles 
to Vancouver.  So the information on here is absolutely priceless.  However, 
you 
cannot have my MasterCard!  ;) 


  

Janet 

  



From: john snodgrass [mailto:] 
Sent: September 8, 2010 2:09 PM 
To: Rev. Craig Crossman 
Cc: transverse myelitis 
Subject: Re: [TMIC] Neurologist visit 

  



I have been taking gabapentin 400mg  for the last 2 years 3 times a day. some 
people say that they can take 1 and it knocks them out. i have never 
experienced 
that. perhaps because of the extreem pain. 



I also take hydrocodone,baclofen, and lorazepam. 






Re: [TMIC] TMIC-unidentified subject

2010-09-10 Thread Janice Nichols
Ain't life just great.
Janice


From: rn11...@yahoo.com 
Sent: Friday, September 10, 2010 3:29 PM
To: jack...@att.blackberry.net 
Cc: tmic-list@eskimo.com 
Subject: [TMIC] TMIC-unidentified subject


  Hi,
 My right leg is shorter since tm.
 It seems that while in rehab,I locked my left knee by hyperextending 
it. This caused it to stretch out the tendon and my left leg is now about 1 
inch longer than the right. If they had given me a brace,this would not have 
happened.
 My left is the weaker leg,although if I'm walking it's the right one 
that gives.
   Cheryl in Easthampton,MA.