Re: [TMIC] I need you guys....
Oh Jeron . . . just know that we are here, for you. Janet - Original Message - From: Jeron Rampersad To: tmic-list@eskimo.com Sent: Friday, June 17, 2011 1:24 PM Subject: [TMIC] I need you guys Hi guys, Sorry I have been away for so long. I've been through hell since January 1st this year with my complications with TM. I started having really bad spasms then and I just thought they were normal, but here was our little friend TM acting up again through an infection I managed to pick up in Brazil. I was treated and got better and my wife and I were relocated to the Caribbean, where we are from, by her company just after that. We moved and things settled nicely for a while, but with TM a while is all you have. I got another attack. I've been hospitalised on 7 separate occasions since then just to deal with pain, because sadly neurology is not a practised science in the caribbean. My wife endured all the while at my side. At least she did for a while. She finally got fed up of it all, seeing me spasm out of control in loads of pain must have been hard. She left me in mid April and I have been trying to cope since, but it's really hard. I love my wife and hate that I put her through so much, but I never thought she would have left. We haven't spoken in a month now and I have medical bills piling up and it's getting scary now. I just need to catch a break. It's more challenging now than when I was first hit by TM, because for the first time in my life I'm truly alone. I know my faith is being tested; I wish I knew what God wanted from me. I need you guys. Jeron
Re: [TMIC] I need you guys....
Jeron,
perhaps the subject is quiet on here in the social list,perhaps you have been
getting private emails,hope so,
My mind just goes blank to think about it.
we are survivors or we wouldnt have lasted this long!
I trust that you will find ways and means to get by another day then another
then another.
you have my prayers,and Im not just saying that.
God knows we dont have the answers for these things but we do have each
other,friends to lean on,to vent on.
Im not gonna spew about me,,this is about you,and you are special.
wish I was close enough to punch you in the shoulder and say,,hang in there.
when you have opportunity think right thoughts.
you will have to force it,we all do with one thing or another.
things will change,,they always do.
Love in Christ.
John the red-neck transverse myelitis mangled Baptist in WV
--- On
Sat, 6/18/11, j.d...@shaw.ca j.d...@shaw.ca wrote:
From: j.d...@shaw.ca j.d...@shaw.ca
Subject: Re: [TMIC] I need you guys
To: Jeron Rampersad rumc...@hotmail.com, tmic-list@eskimo.com
Date: Saturday, June 18, 2011, 2:45 AM
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Oh Jeron
. . . just know that
we are here, for you.
Janet
- Original Message -
From:
Jeron
Rampersad
To: tmic-list@eskimo.com
Sent: Friday, June 17, 2011 1:24 PM
Subject: [TMIC] I need you guys
Hi guys,
Sorry I have been away for so long. I've been through hell since
January 1st this year with my complications with TM. I started having really
bad spasms then and I just thought they were normal, but here was our little
friend TM acting up again through an infection I managed to pick up in
Brazil.
I was treated and got better and my wife and I were relocated to the
Caribbean, where we are from, by her company just after that. We moved and
things settled nicely for a while, but with TM a while is all you have. I got
another attack. I've been hospitalised on 7 separate occasions since then
just
to deal with pain, because sadly neurology is not a practised science in the
caribbean. My wife endured all the while at my side. At least she did for a
while.
She finally got fed up of it all, seeing me spasm out of control
in loads of pain must have been hard. She left me in mid April and I have
been
trying to cope since, but it's really hard. I love my wife and hate that I
put
her through so much, but I never thought she would have left. We haven't
spoken in a month now and I have medical bills piling up and it's getting
scary now. I just need to catch a break. It's more challenging now than when
I
was first hit by TM, because for the first time in my life I'm truly alone. I
know my faith is being tested; I wish I knew what God wanted from me. I need
you guys.
Jeron
Re: [TMIC] I am back in New York
YAY! I called and left a message. Say hello to my hometown for me! I miss it mightily! I spent the second half of my childhoood in Springfield Gardens, Queens. Akua Well family, I am back in New York; I have lost my job as associate professor in a small college in the Middle East. I could not lecture anymore, it was just too exhausting and I got sick a lot. I was let go with three months' notice. Now, as for most of us who have chronic diseases, I face financial oblivion, and I don't like the prospects. But that is our lot in the US, the only industrialized economy not offering government managed single pay medical coverage for all citizens as a right. Since coming home and being with my dear wife once again, I have not suffered even one attack of agonist and antagonist muscle contractions, that used to send me to the floor and unable to control my limbs and torso for hours. My condition is very sensitive to stress loads, as the lesions were in the brainstem, the switching station for the body. We are in Queens now, awaiting the news from the bank that will allow us to take possession of a new-construction condominium. For now, we live in a basement apartment. Anyway, for those friends living nearby, I would love to hear from them. My number here is (917) 459-9733, a local call in New York City. Take care, Dalton --
Re: [TMIC] OFF TOPIC;FRUSTRATION
Does your insurance company have case managers? Or can you get one through the public health system? When i had insurance (pre Medicare) a person at the insurance told me about a health prof. case manager who would coordinate these things. (then i got ssdisability and lost the insurance). Hi, Why do insurance companies make you send in referrals for every separate thing? You'd think they would include recommended tests,surgery,etc all under the main referral. Plus,there is no local orthopedic oncologist for me to see. I just realized late last night I need my PCP to refer me for the shoulder biopsy,and for a pathologist to read the results. Good thing I thought of it,or I'd be paying out of pocket (and my pockets are pretty empty!). Called my PCP's office and I need the doctor's name address phone # and diagnosis before they can send it to Boston. Just added stress I don't need. I'm taking deep breaths and trying to relax. On top of everything,I have pinkeye in both eyes.An itchy, gunky mess. Things have got to get better! Cheryl --
RE: [TMIC] I need you guys....
Thanks, I guess I just need to catch a break. I wish I wasn't so alone right now though. It's really tough having no one there for you in a time of need. All I truly have is my pain. Jeron Date: Sat, 18 Jun 2011 17:47:56 -0700 From: jcs...@yahoo.com Subject: Re: [TMIC] I need you guys To: rumc...@hotmail.com; tmic-list@eskimo.com; j.d...@shaw.ca Jeron, perhaps the subject is quiet on here in the social list,perhaps you have been getting private emails,hope so, My mind just goes blank to think about it. we are survivors or we wouldnt have lasted this long! I trust that you will find ways and means to get by another day then another then another. you have my prayers,and Im not just saying that. God knows we dont have the answers for these things but we do have each other,friends to lean on,to vent on. Im not gonna spew about me,,this is about you,and you are special. wish I was close enough to punch you in the shoulder and say,,hang in there. when you have opportunity think right thoughts. you will have to force it,we all do with one thing or another. things will change,,they always do. Love in Christ. John the red-neck transverse myelitis mangled Baptist in WV --- On Sat, 6/18/11, j.d...@shaw.ca j.d...@shaw.ca wrote: From: j.d...@shaw.ca j.d...@shaw.ca Subject: Re: [TMIC] I need you guys To: Jeron Rampersad rumc...@hotmail.com, tmic-list@eskimo.com Date: Saturday, June 18, 2011, 2:45 AM Oh Jeron . . . just know that we are here, for you. Janet - Original Message - From: Jeron Rampersad To: tmic-list@eskimo.com Sent: Friday, June 17, 2011 1:24 PM Subject: [TMIC] I need you guys Hi guys, Sorry I have been away for so long. I've been through hell since January 1st this year with my complications with TM. I started having really bad spasms then and I just thought they were normal, but here was our little friend TM acting up again through an infection I managed to pick up in Brazil. I was treated and got better and my wife and I were relocated to the Caribbean, where we are from, by her company just after that. We moved and things settled nicely for a while, but with TM a while is all you have. I got another attack. I've been hospitalised on 7 separate occasions since then just to deal with pain, because sadly neurology is not a practised science in the caribbean. My wife endured all the while at my side. At least she did for a while. She finally got fed up of it all, seeing me spasm out of control in loads of pain must have been hard. She left me in mid April and I have been trying to cope since, but it's really hard. I love my wife and hate that I put her through so much, but I never thought she would have left. We haven't spoken in a month now and I have medical bills piling up and it's getting scary now. I just need to catch a break. It's more challenging now than when I was first hit by TM, because for the first time in my life I'm truly alone. I know my faith is being tested; I wish I knew what God wanted from me. I need you guys. Jeron
Re: [TMIC] I need you guys....
Jeron, It sounds like the only way you can go is “up”. You have been through hell. Check into what your insurance will do for you and also check into organizations that can help a situation like yours – I know there are some out there. I really feel for you and your situation and hope for the very best. You need to also turn to your church and let them help you in any way they can. They can be a tremendous help. Keep us up on what you are doing and how you are feeling. We care. Janice From: Jeron Rampersad Sent: Friday, June 17, 2011 3:24 PM To: tmic-list@eskimo.com Subject: [TMIC] I need you guys Hi guys, Sorry I have been away for so long. I've been through hell since January 1st this year with my complications with TM. I started having really bad spasms then and I just thought they were normal, but here was our little friend TM acting up again through an infection I managed to pick up in Brazil. I was treated and got better and my wife and I were relocated to the Caribbean, where we are from, by her company just after that. We moved and things settled nicely for a while, but with TM a while is all you have. I got another attack. I've been hospitalised on 7 separate occasions since then just to deal with pain, because sadly neurology is not a practised science in the caribbean. My wife endured all the while at my side. At least she did for a while. She finally got fed up of it all, seeing me spasm out of control in loads of pain must have been hard. She left me in mid April and I have been trying to cope since, but it's really hard. I love my wife and hate that I put her through so much, but I never thought she would have left. We haven't spoken in a month now and I have medical bills piling up and it's getting scary now. I just need to catch a break. It's more challenging now than when I was first hit by TM, because for the first time in my life I'm truly alone. I know my faith is being tested; I wish I knew what God wanted from me. I need you guys. Jeron
Re: [TMIC] OFF TOPIC;FRUSTRATION
Cheryl, You are really being tested!It sounds like you are still our spunky Cheryl though and I give you lots of credit for it. We are here and want to know how things continue with you.Keep posting in – but try to make it happier news (we hope). Good luck and things will get better. Janice From: rn11...@yahoo.com Sent: Friday, June 17, 2011 9:43 AM To: tmic Subject: [TMIC] OFF TOPIC;FRUSTRATION Hi, Why do insurance companies make you send in referrals for every separate thing? You'd think they would include recommended tests,surgery,etc all under the main referral. Plus,there is no local orthopedic oncologist for me to see. I just realized late last night I need my PCP to refer me for the shoulder biopsy,and for a pathologist to read the results. Good thing I thought of it,or I'd be paying out of pocket (and my pockets are pretty empty!). Called my PCP's office and I need the doctor's name address phone # and diagnosis before they can send it to Boston. Just added stress I don't need. I'm taking deep breaths and trying to relax. On top of everything,I have pinkeye in both eyes.An itchy, gunky mess. Things have got to get better! Cheryl wlEmoticon-sadsmile[1].png
