[TMIC]
Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you.I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
Re: [TMIC]
Janice, I got my TM 2 years ago. It started suddenly with sharp/severe pain at the waist that lasted for an hour. I got paralyzed waist down within half hour of the pain episode. I still have pain but it is not severe, so I don't take any medication for it. With physical therapy, I walk using a walker. The Bowel and bladder problems remain unchanged. It is life altering and depressing condition. I am still trying to adjust to the new norm. Fatimah (NJ) On Mon, Jun 24, 2013 at 10:38 AM, Janice Nichols jannic...@gmail.comwrote: Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you. I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
RE: [TMIC]
My TM started in September 2010 with numbness in my feet. I thought I had sat wrong and they had just fallen asleep. By the next day the numbness had moved up to my waist and I lost bladder control. The following day I was numb up to my arm pits and having issues with my breathing. I had severe numbness in my hands and mid-section. I never experienced any pain, just deep numbness. My lesions are at C2 C3. Diane From: Butcher, Bernie (SFS) [mailto:bernie.butc...@honeywell.com] Sent: Monday, June 24, 2013 9:58 AM To: Janice Nichols; tmic-list@eskimo.com Subject: RE: [TMIC] Hi Janice – the onset of TM (which was changed to MS) began with tingling in left arm, the whole arm. Then left leg. I still cannot lift my left leg. No banding ever BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jannic...@gmail.com] Sent: Monday, June 24, 2013 10:39 AM To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: [TMIC] Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you.I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice Confidentiality Warning: This e-mail contains information intended only for the use of the individual or entity named above. If the reader of this e-mail is not the intended recipient or the employee or agent responsible for delivering it to the intended recipient, any dissemination, publication or copying of this e-mail is strictly prohibited. The sender does not accept any responsibility for any loss, disruption or damage to your data or computer system that may occur while using data contained in, or transmitted with, this e-mail. If you have received this e-mail in error, please immediately notify us by return e-mail. Thank you.
Re: [TMIC]
Hi Janice, Mine did not start out with severe pain. It started with a hard to define, numb but not totally numb feeling in my left arm which then spread to my legs. It progressed to pretty painful banding around the affected arm, like a too-tight blood pressure cuff. That gradually went away. The only pain I have now is occasional muscle spasms in my back. Barbara H. http://barbarah.wordpress.com On Mon, Jun 24, 2013 at 10:38 AM, Janice Nichols jannic...@gmail.comwrote: Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you. I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
RE: [TMIC]
Hi Janice – the onset of TM (which was changed to MS) began with tingling in left arm, the whole arm. Then left leg. I still cannot lift my left leg. No banding ever BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jannic...@gmail.com] Sent: Monday, June 24, 2013 10:39 AM To: tmic-list@eskimo.com Subject: [TMIC] Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you.I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
Re: [TMIC]
Janice, My TM started gradually(over 1 month) with progressive numbness muscle weakness. It started in my legs progressed up to my chest. I had banding only around my chest it slowly disappeared over 4-5 months after diagnosis. Never had any real pain. I ended up with about 50% improvement of symptoms over about 1 year. Have been the same for the last 8 years. Linda E. From:Janice Nichols [mailto:jannic...@gmail.com] Sent: Monday, June 24, 2013 10:39 AM To: tmic-list@eskimo.com Subject: [TMIC] Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding. And for some, it has stayed with you. I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
Re: [TMIC]
Janice, Mine started with severe pain down neck and into shoulder - my problem was at C2. This pain came and went over the next few days as numbness and paralysis crept through my body. I think the pain disappeared after 3 days' intense steroid treatment. It was a little later, while still in hospital, that I became aware of the banding. I remember I told the neurologist it felt like bands of steel gripping me under the skin. Nothing like the original pain. Thankfully, that pain has never returned but the banding remains constant four years later. Iris UK Sent from my iPad On 24 Jun 2013, at 15:38, Janice Nichols jannic...@gmail.com wrote: Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you.I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
Re: [TMIC]
I woke up 7 years ago with a numb arm and intense neck pain. The numbness progressed over 24 hours to my right arm, toes, then my left leg along with leg spasms which prevented me from being able to fall asleep. The next afternoon, I was taken to the ER and given several tests including a spinal tap and MRI. After being diagnosed with TM and experiencing paralysis from my feet to my armpits, I was given steroid treatments for four days, then spent a month in a re-hab facility learning to walk again and take care of my personal needs. The neck pain went away, but I have chronic banding and intense pain, as well as no temperature sensation from the chest down, bladder and bowel issues, and hypersensitivity to touch and fabrics. In addition, the function on both hands was so severely compromised, it required my quitting my job of 31 years as a document specialist for Hewlett-Packard / Agilent Technologies and going on permanent disability. I now take pain and nerve medication every six hours in order to function daily. At the end of each med cycle, I am very aware of the pain and banding creeping back in. Not a day goes by without some level of pain. I am no stranger to pain having suffered severe migraines from age 15 to 50 and having 9 vertebrae fused at 19 as a result of scoliosis. (For that I spent 11 month in body casts from my head to my knees.) I have to admit the migraines were probably the worst pain I've ever suffered, but it was always temporary (every couple months). However, the constant daily pain of TM really wears on your body and soul - and getting older isn't helping! I've just turned 60 and the realization that longevity runs in the women in my family (both sides living well into their 90's), I wonder how I will be able to handle the pain another 30 years - assuming I also live that long. Betty (in Northern California) On 6/24/2013 7:38 AM, Janice Nichols wrote: Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you.I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
Re: [TMIC] are you still receiving me?
Still receiving your e-mails. I think I got something that was odd looking from your address but just deleted it. Barbara H. http://barbarah.wordpress.com On Thu, Jun 20, 2013 at 8:24 AM, Robert Pall robthe...@aol.com wrote: I was hacked and had to change my password...sorry if I caused any of you problems. Rob in NJ
Re: [TMIC]
5 years ago i woke up to a numbness from the top of my head on the right side to the bottom of my feet.left side had reversed the sensation of hot and cold, the banding was tight. since then my numbness turned to pain and the banding is there and at times like a hot iron in my side..i take pain meds also every 6 hours along with the other meds.the only recovery i have had is my gate is a little better. thats a long story shortened. John in WV From: Betty Clark xbeecla...@gmail.com To: Janice Nichols jannic...@gmail.com Cc: tmic-list@eskimo.com Sent: Monday, June 24, 2013 1:54 PM Subject: Re: [TMIC] I woke up 7 years ago with a numb arm and intense neck pain. The numbness progressed over 24 hours to my right arm, toes, then my left leg along with leg spasms which prevented me from being able to fall asleep. The next afternoon, I was taken to the ER and given several tests including a spinal tap and MRI. After being diagnosed with TM and experiencing paralysis from my feet to my armpits, I was given steroid treatments for four days, then spent a month in a re-hab facility learning to walk again and take care of my personal needs. The neck pain went away, but I have chronic banding and intense pain, as well as no temperature sensation from the chest down, bladder and bowel issues, and hypersensitivity to touch and fabrics. In addition, the function on both hands was so severely compromised, it required my quitting my job of 31 years as a document specialist for Hewlett-Packard / Agilent Technologies and going on permanent disability. I now take pain and nerve medication every six hours in order to function daily. At the end of each med cycle, I am very aware of the pain and banding creeping back in. Not a day goes by without some level of pain. I am no stranger to pain having suffered severe migraines from age 15 to 50 and having 9 vertebrae fused at 19 as a result of scoliosis. (For that I spent 11 month in body casts from my head to my knees.) I have to admit the migraines were probably the worst pain I've ever suffered, but it was always temporary (every couple months). However, the constant daily pain of TM really wears on your body and soul - and getting older isn't helping! I've just turned 60 and the realization that longevity runs in the women in my family (both sides living well into their 90's), I wonder how I will be able to handle the pain another 30 years - assuming I also live that long. Betty (in Northern California) On 6/24/2013 7:38 AM, Janice Nichols wrote: Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding. And for some, it has stayed with you. I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
Re: [TMIC] are you still receiving me?
Yeah, me too... getting weirdo stuff as well. My spaminator is catching most of them. BobbyJIm - Original Message - From: Barbara H. To: Robert Pall Cc: tmic-list@eskimo.com Sent: Monday, June 24, 2013 6:08 PM Subject: Re: [TMIC] are you still receiving me? Still receiving your e-mails. I think I got something that was odd looking from your address but just deleted it. Barbara H. http://barbarah.wordpress.com On Thu, Jun 20, 2013 at 8:24 AM, Robert Pall robthe...@aol.com wrote: I was hacked and had to change my password...sorry if I caused any of you problems. Rob in NJ
Re: [TMIC] are you still receiving me?
Barbara, just got this email and the email you sent about TM. You are loud and clear. Janice From: Barbara H. Sent: Monday, June 24, 2013 6:08 PM To: Robert Pall Cc: tmic-list@eskimo.com Subject: Re: [TMIC] are you still receiving me? Still receiving your e-mails. I think I got something that was odd looking from your address but just deleted it. Barbara H. http://barbarah.wordpress.com On Thu, Jun 20, 2013 at 8:24 AM, Robert Pall robthe...@aol.com wrote: I was hacked and had to change my password...sorry if I caused any of you problems. Rob in NJ
[TMIC]
Thanks everyone - I really appreciate the responses. Janice
Re: [TMIC] are you still receiving me?
I was responding to Rob - he was asking whether we were receiving his emails. Barbara H. Sent from my iPhone On Jun 24, 2013, at 8:01 PM, Janice Nichols jannic...@gmail.com wrote: Barbara, just got this email and the email you sent about TM. You are loud and clear. Janice From: Barbara H. Sent: Monday, June 24, 2013 6:08 PM To: Robert Pall Cc: tmic-list@eskimo.com Subject: Re: [TMIC] are you still receiving me? Still receiving your e-mails. I think I got something that was odd looking from your address but just deleted it. Barbara H. http://barbarah.wordpress.com On Thu, Jun 20, 2013 at 8:24 AM, Robert Pall robthe...@aol.com wrote: I was hacked and had to change my password...sorry if I caused any of you problems. Rob in NJ
