5 years ago i woke up to a numbness from the top of my head on the right side
to the bottom of my feet.left side had reversed the sensation of hot and cold,
the banding was tight. since then my numbness turned to pain and the banding is
there and at times like a hot iron in my side..i take pain meds also every 6
hours along with the other meds.........the only recovery i have had is my
"gate" is a little better.
thats a long story shortened.
John in WV
________________________________
From: Betty Clark <xbeecla...@gmail.com>
To: Janice Nichols <jannic...@gmail.com>
Cc: tmic-list@eskimo.com
Sent: Monday, June 24, 2013 1:54 PM
Subject: Re: [TMIC]
I woke up 7 years ago with a numb arm and intense neck pain. The numbness
progressed over 24 hours to my right arm, toes, then my left leg along with leg
spasms which prevented me from being able to fall asleep. The next afternoon, I
was taken to the ER and given several tests including a spinal tap and MRI.
After being diagnosed with TM and experiencing paralysis from my feet to my
armpits, I was given steroid treatments for four days, then spent a month in a
re-hab facility learning to walk again and take care of my personal needs.
The neck pain went away, but I have chronic banding and intense
pain, as well as no temperature sensation from the chest down,
bladder and bowel issues, and hypersensitivity to touch and
fabrics. In addition, the function on both hands was so severely
compromised, it required my quitting my job of 31 years as a
document specialist for Hewlett-Packard / Agilent Technologies and
going on permanent disability.
I now take pain and nerve medication every six hours in order to
function daily. At the end of each med cycle, I am very aware of
the pain and banding creeping back in. Not a day goes by without
some level of pain. I am no stranger to pain having suffered
severe migraines from age 15 to 50 and having 9 vertebrae fused at
19 as a result of scoliosis. (For that I spent 11 month in body
casts from my head to my knees.) I have to admit the migraines
were probably the worst pain I've ever suffered, but it was always
temporary (every couple months). However, the constant daily pain
of TM really wears on your body and soul - and getting older isn't
helping! I've just turned 60 and the realization that longevity
runs in the women in my family (both sides living well into their
90's), I wonder how I will be able to handle the pain another 30
years - assuming I also live that long.
Betty
(in Northern California)
On 6/24/2013 7:38 AM, Janice Nichols wrote:
Hello!
>
>When I have read the stories of how TM first attacked you all, some/many have
>said that you had a severe pain around the
>middle of your body – banding. And for some, it has stayed with you. I
>would like a response from all of you as to whether
>or not your TM started with the severe pain or not. Also, is it still with
>you today or did it get better with time/meds.
>I would like to be able to give my doc some kind of percentage of how TM has
>hit myself and others. Would really appreciate
>responses.
>
>Thanks,
>
>Janice
