Re: RE: [TMIC]

2009-06-12 Thread Margaret Monson
Hello all! 1.  I seem to always "overheat".  My first thought was menopause was hitting.  I never even thought it might be TM related!  I call them solar flares.  I have also found that I don't tolerate the heat as well as I used to.  Sitting in the hot sun used to be enjoyable, but now I find it hard to tolerate and that type of heat makes me feel weak.  Even a hot shower or a hot tub that is extremely warm will drain any energy I had.  The cold does not seem to affect me. 2.  My banding is when I run (or attempt to run).  Like when I need to catch the bus or something.  To me it feels like someone has wrapped a large and thick elastic band around my torso and is pulling both ends tight.  I am guessing that everyone may feel it differently.  For me the banding has decreased quite a bit. It does seem that someone who has TM has varying degrees of these symptoms for the most part.  Everyone is different though. Have a great day! MargaretFrom: Janice [mailto:jan...@centurytel.net] Sent: Thursday, June 11, 2009 8:41 PMTo: transverse myelitisSubject: [TMIC] This is Janice,I have 2 questions:1. With hot weather coming, do any of you have a problem with all of a sudden being really hot?  I know someof you had a problem with the cold last winter, but does your body change in summer and you get hit with being hot insteadof cold?    I really have a problem with heat - especially with humidity.  I get hot, then weak.   Not good.2.  Several of you have mentioned the tight "band" around your body.  I am not sure this band is in the same place foreveryone.    Also, has there been any change in the band with those of you who have had TM for a long time?  



RE: [TMIC] misc

2009-04-24 Thread Margaret Monson
Thank you for sharing.  And well said.

 

From: Robert Pall [mailto:rp...@neillsupply.com] 
Sent: April-24-09 12:24 PM
To: tmic
Subject: [TMIC] misc

 

I tried sending this with an attachment and it did not go thru.I am trying
it again with a cut and paste and hopefully the group will receive it!

 

I have been reading all of the many posts many of which are heartbreaking. I
can only relate to my own personal experiences. First of all living in a
large urban area where access to excellent medical facilities are in
abunbdance helped me. Within 24 hours I was taking 1000 mg per day of
prednisone (steroids) which I believe limited the damage to my spine. After
going to numerous Drs, physical therapists and even chiropractors I came to
realize that after passing the one year mark I would not get much better.
Ten years ago I started seeing Dr. Kerr and have done so once annually since
then. He gives me very little hope of a cure in the near future but he does
treat my symptoms (banding,hot/cold,numbness etc,)I therefore view my
condition as one requiring pain managemnt vs a cure. I think acceptance of
our condition is imperative...I try every day to not let TM dictate my life.
TM has not reduced my bucket list it has simply made me make some
adjustments due to what I am capable of doing physically. 

What make this group (as well as my New Jersey support group) so special is
that we are discussing our problems and limitations with people who
understand and are eager to pass on their own sucesses in order to help all
of us. 

It appears that recently this site is doing exactly what it is meant to
do...post questions,get answers and help us to all remember we are not
alone. I recently posted an essay I wrote (for no reason except I wanted to
put down on paper what I could not or would not speak aloud). The title of
the essay is normal. I am attaching it to this email for the new members
and the ones who have not previously read it. I encourage all of you to put
down on paper your feelings regarding TM...and hopefully by doing that it
helps put our head in the right direction. Life is short...do everything you
can to live it to its fullest...TM is a challenge and the ones that handle
it best I believe have acquired some acceptance. 

OK that is more than enough for one writing! 
All the best! 
Rob in New Jersey 

 

NORMAL

Normal..what a simple word! This is a word I took for granted until
one week past my 50th birthday. What did normal mean to me? Normal meant
being like everyone else..it was being  able to run, walk, exercise, climb
up stairs, play sports.basically being able to do everything that normal
people do without giving it a thought. I guess I figured as I got older I
would slow down a little.maybe replace basketball with golf. Perhaps I would
have to exercise a little longer to stay in shape.no big deal.this was
normal. Sure like all normal people I would get sick from time to time and
maybe break a bone or two..but I always knew that I would get better.and
until one week after my 50th birthday that was just how life was.normal.

Now let us go back 11 or so years where in a period of several hours
I went from normal to cripple. In a few hours I had zero feeling from my
waist down..that can't be possible.I had played  ball all  weekend.there had
to be a simple answer. Maybe a pinched nerve or something like that...the
idea that I would never be normal again never crossed my mind.I was sure it
would be just a matter of time until I was all better.and normal again .
Even after 3 MRI's and 2 Lumbar Punctures I was certain that Dr. House would
figure out the problem, give me some medicine and I would be all better.I
would be normal again.just like everybody else I knew. 

Three weeks after being crippled from the waist down I was told what
I have...Transverse Myelitis..what the heck is that.I never heard the words
before and had no idea of their meaning. The Neurologist at the top New York
City hospital explained it to me.he said he was sure I would eventually walk
again.but he could not say for sure what assistance I would need. Perhaps a
walker (how embarrassing), maybe a quad cane (better but not great) and if I
was lucky perhaps I could graduate to a straight cane (better but not
normal)

After spending 3 weeks in the hospital I was transferred to the
Kessler Rehabilitation facility in West Orange, New Jersey (same place
Christopher Reeves rehabbed in). Slowly over a period of 3 months I started
getting a little better.I went from a walker to a quad cane to upon leaving
the rehab center a straight cane..I was surely getting better. I would prove
all of the doctors wrong...oh just one little side note.while it was true
that I was learning to walk better there also came some small side effects.
When I first came down with TM I had no feeling and therefore I had no pain
or discomfort..but.as some feeling came back these feelings were so so bad.
Where previously I 

RE: [TMIC] testing

2009-04-21 Thread Margaret Monson
Yes you are!

 

From: jrushton [mailto:jrush...@columbiaenergyllc.com] 
Sent: April-21-09 11:56 AM
To: tmic
Subject: [TMIC] testing

 


Just checking to see if I'm still 'alive' on tmic???




 



RE: [TMIC] transverse myelitis

2009-04-19 Thread Margaret Monson
I don't have the banding.  I did at the onset of TM but not any longer.

 

From: alle...@aol.com [mailto:alle...@aol.com] 
Sent: April-19-09 1:58 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] transverse myelitis

 

Welcome Betty,

One symptom I'd say we all have is definitely the banding yet other symptoms
do vary. I'm a paraplegic since 9/2000, lesion T6-10. I don't have the
numbness but a buzzing feeling that is uncomfortable without meds. Ask us
anything you wish and you will get an answer. Have you talked with anyone
since 2004 with TM? You have a group of friends here.

 

Ella in Ohio

 

  _  

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RE: [TMIC] Hello Jude!

2009-04-03 Thread Margaret Monson
Thank you for your note, Patti.

 

The recover is moving along slowly.  Part of my problem is that I have so
much scar tissue from 14 previous surgeries that it is limiting my movement
quite a bit.  I am working hard on it every day and I am sure that once the
zipper (staples) are removed, it will be much easier.

 

Margaret

 

From: Patricia Cooley [mailto:patticoo...@wi.rr.com] 
Sent: April-03-09 8:39 AM
To: 'Margaret Monson'; tmic-list@eskimo.com
Subject: RE: [TMIC] Hello Jude!

 

MARGARET:

 

I WISH YOU A SPEEDY RECOVERY FROM YOUR KNEE REPLACEMENT.  MY HUSBAND HAD
BOTH KNEES REPLACED ABOUT 3 YEARS AGO.  HIS RECOVERY WAS TERRIFIC.  OF
COURSE, THERE IS A LOT OF PAIN WITH P.T., BUT IT IS TO YOUR BEST INTEREST TO
TRY AS HARD AS YOU CAN.  HE WAS VERY FAITHFULL DOING HIS PRE-SURGERY
EXERCISES WHICH I THINK HELPED HIM RECOVER SO FAST.  YOU WOULD NEVER KNOW
THAT HE HAS NEW KNEEWS.  HE CAN DO EVERYTHING, EVEN KNEEL IN HIS GARDEN.
THE ONE PLUS SIDE IS HE IS NO LONGER BOWLEGGED.  WE USE TO TEASE HIM THAT A
CAR COULD DRIVE THROUGH AND HE WOULDN'T KNOW IT.  NOW HE WISHES HE HAD DONE
IT YEARS AGO.

 

GOOD LUCK IN YOUR RECOVERY.

 

PATTI - WISCONSIN

 

 

 

From: Margaret Monson [mailto:mag...@telus.net] 
Sent: Thursday, April 02, 2009 1:31 PM
To: heyjude48...@aol.com
Cc: tmic-list@eskimo.com; tmic-digest-requ...@eskimo.com
Subject: [TMIC] Hello Jude!

 

I am glad to hear that you are home and healing.  I hope that all is going
well.  You were and are in my thoughts.

 

Although we have never personally met or talked with each other, I welcome
your emails to the list.  You always seem to have such a positive outlook on
things no matter what is thrown at you.  You always have a kind word and
offer advice based on your experience.  Jude, you are a gem.

 

I am at home recuperating from a partial knee replacement done on March 26.
I am healing well but know this will be a slow recovery.  I was amazed at
the number of doctors and people who actually think you can fully recover
from TM.  One doctor was surprised when I told him that you never fully
recover and will always have TM.  You only recover to the best that your
body can.

 

Do take care Jude and I hope you are able to post soon!  I miss your emails!

 

Margaret

Edmonton AB

Canada



RE: [TMIC] FROM JUDE

2009-04-02 Thread Margaret Monson
Thank you for posting for Jude.  She can't post but is she receiving our
emails to the site?

 

Margaret

 

From: alle...@aol.com [mailto:alle...@aol.com] 
Sent: April-02-09 11:35 AM
To: tmic-list@eskimo.com
Subject: [TMIC] FROM JUDE

 

She can't post for some reason and asked that I send this for her:

Hello there...anybody out there?  Boy, I go into the hospital for a couple
of weeks and this is what I come home to.

 

I've heard about two sites where y'all might be hanging out,  One is Yahoo
and the other is a different type of site that I know nothing about, not
even the name.

 

Are there any new people with TM waiting around for some activity?  My name
is Jude; I am a T3 paraplegic, totally paralyzed from the nipple-line on
down to my toes.  I don't begin to say that I know everything, in fact, I
know next to nothing...just like the doctors.

 

If you have any questions or simply need someone to talk to send me an email
and we will work it out.

 

Try to keep it Positive!

Jude

 

  _  

Worried about job security? Check
http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare000
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[TMIC] Hello Jude!

2009-04-02 Thread Margaret Monson
I am glad to hear that you are home and healing.  I hope that all is going
well.  You were and are in my thoughts.

 

Although we have never personally met or talked with each other, I welcome
your emails to the list.  You always seem to have such a positive outlook on
things no matter what is thrown at you.  You always have a kind word and
offer advice based on your experience.  Jude, you are a gem.

 

I am at home recuperating from a partial knee replacement done on March 26.
I am healing well but know this will be a slow recovery.  I was amazed at
the number of doctors and people who actually think you can fully recover
from TM.  One doctor was surprised when I told him that you never fully
recover and will always have TM.  You only recover to the best that your
body can.

 

Do take care Jude and I hope you are able to post soon!  I miss your emails!

 

Margaret

Edmonton AB

Canada



RE: [TMIC] blood, tissue, organ donation

2009-03-25 Thread Margaret Monson
I, too, donate blood through the Red Cross in Canada with no problems.

 

Margaret

 

From: gor...@earthlink.net [mailto:gor...@earthlink.net] 
Sent: March-25-09 6:59 PM
To: Lawrence King; tmic-list@eskimo.com
Subject: Re: [TMIC] blood, tissue, organ donation

 

 

Re:   I donate blood (4 gallons),  gave a sample to the bone marrow
registry.

 

I am interested that you give blood and bone marrow.  I was told I could no
longer donate because, although my TM was considered idiopathic (don't know
what caused it), the possibility that it was an autoimmune factor led them
to nix me as a blood donor as well as concerns about tissue and organ
donation - with the exception of the corneas I believe.  

 

I haven't explored it since then and it has been ten years.  Maybe things
have changed.  Can you enlighten me to the discussions you may have had
concerning allowed donation?  Thanks.

- Original Message - 

From: Lawrence King mailto:we4king...@verizon.net  

To: tmic-list@eskimo.com 

Cc: Lawrence mailto:we4king...@verizon.net  King 

Sent: Wednesday, March 25, 2009 8:25 PM

Subject: Re: [TMIC] stem cell (OT?)

 

Re:   I donate blood (4 gallons),  gave a sample to the bone marrow
registry.



RE: [TMIC]

2009-03-22 Thread Margaret Monson
Hello Janice!

 

I too had the hot/cold sensitivity you speak of.  I actually gave myself a
2nd degree burn without realizing.  The sense of hot and cold has returned
for me and did so after about a year.  What I find now is that I cannot
handle really hot showers and sometimes have issues with hot tubs.  The hot
water makes my skin tingle and makes me feel nauseous.

 

As to the buzzing, I think I also know what you mean but many may call it
something else.  My Neuro told me that what I was feeling was my nerves
firing.  It made sense.  Mine diminished after a few years but my body still
tingles when I push things.  It's my body's way of letting me know that it
has had enough.

 

My concern is that I have lived with the symptoms of TM for coming up 8
years that I believe I have gotten used to all the things it throws at you.
I do not know what normal is anymore.  Maybe that is a good thing?  That way
I don't know what I am missing!

 

Margaret

 

 

From: Janice [mailto:jan...@centurytel.net] 
Sent: March-21-09 3:15 PM
To: transverse myelitis
Subject: [TMIC] 

 

This is Janice - yet again with another question.   

 

It has been 2 years since the onset of TM.   From the top of my ribs to my
toes I can not tell water temperature on my skin.  I have to be very careful
with taking my showers.Do any of you have that?   I am wondering if it
is something that will eventually go away or if it is something I will live
with.

 

Also, one improvement I have just noticed lately is the constant buzzing
that I had in my legs as soon as feeling started coming back.   Did you all
have that and have any of you also lost it?

 

Thanks again, Janice



RE: [TMIC] My TM experience

2009-03-08 Thread Margaret Monson
Hello Deb,

Thank you for sharing your story.

From everything I have been told and read, there is never a full recovery.
I am estimating that I am at about 90% of what I was.  But then my TM is not
as severe as most.

Over doing it is all based on each person and their own limits.  Just as
every healthy person has limits as to how much they can do, so do we.  Our
limits are now lower than they were before.  When I over do it, my body
tells me by giving me more tingles than normal and being exhausted which
comes on quicker than it did before.

That is what I have found.  I am sure everyone with TM has their own things
to tell you about limits and recover as we are all different.

Margaret

-Original Message-
From: Deb Monteleone [mailto:aiki...@optonline.net] 
Sent: March-08-09 6:33 PM
To: tmic-list@eskimo.com
Subject: [TMIC] My TM experience


Hi, my name is Deb.

I am glad some of you are giving the history of your experience with TM.  I 
am fairly new to it and I am still trying to deal with it and figure things 
out.  I have been part of this group since about August 2008 but have not 
participated much.  I am still hopeful of making a good recovery and I 
sensed that this group is mostly, if not all, comprised of people who have 
not recovered fully.  When first joining I had asked the question, does 
anyone know what the stages of recovery are and no one answered.

My episode started June 2008, five days after my 52nd birthday.  I woke up 
one morning and noticed my feet were numb.  I tried wiggling my toes but 
nothing happened, I jumped out of bed thinking my feet would be blue from 
lack of circulation.  To my surprise, they looked fine.  I walked around and

nothing changed, so I went to work with numb feet.  In the next five days, 
the numbness progressed up to my waist.  I could still walk but I started 
using a cane.



Within the 1st two weeks (can't remember exact times anymore) I woke up in 
the middle of the night with an excruciating pain on my side.  I couldn't 
even move.  My husband (my hero) called 911; I thought maybe my appendix 
burst.  The emergency room ignored the fact that I was numb and had to walk 
with a cane, they were just focusing on the pain in my side.  They found 
nothing, next day I went to my primary care doctor; they took one look at me

and called a Neurologist, who saw me that day.  The Neurologist took one 
look at me and told me I had TM and I would be having a lifestyle change 
(boy, I had no idea what he was really referring to).  He said the pain in 
the side was a referred pain from the TM (it happened again the next 
weekend, off to the hospital for morphine).  I went on IV steroids for three

days, then oral ones for seven days.  Three days after the end of the 
steroids I couldn't walk (left leg went limp), bladder shut down as did 
bowels.  Went to hospital for 5 days of IV steroids, then off to Rehab for 2

½ weeks.  Then home to deal with my new lifestyle.

It took me about a month to accept that my life was really changing and this

was not something that would be better in a month or two.  I had the support

and help of my 75 year old mother (she moved in with us for two months) and 
my husband.  At this time I was using a walker and trying to learn how to 
walk again and get balance back.


I feel I am still making progress, although very slowly.  I now walk with a 
cane, drive with hand controls and work full time which is tiring and hard 
to concentrate with the baclofen, neurontin, cymbalta and klonopen.



I still have questions and am trying to learn how my body now reacts to 
things. I was always active and still do not really understand how you judge

what 'overdoing' it is.  One of the emails explained that paying for it 
means that the burning gets really bad.  I do have bad days with the 
burning, stinging and spasticity but I didn't think I overdid anything; this

is where I fall short of knowing my new limits.  Also, is it possible to 
build up stamina or will that never happen?

Any input on these questions would be appreciated.

Deb

Long Island, NY



RE: [TMIC]

2009-03-06 Thread Margaret Monson
And now my turn. . .

My name is Margaret and I live in Edmonton Alberta Canada.  I was 40 years old 
when I was diagnosed in April 2001.

My TM is not nearly as severe or bad as many others.  I am one of the walking 
wounded.  

I woke up on a Saturday morning and had a dull ache in my right elbow.  Carried 
on through the day only to wake up on Sunday with tingling hands.  I went to 
work at my part time job at a coffee shop and all through the day I kept 
wringing my hands to try to get the tingling to stop.  I didn't think much of 
it until my boss asked me what was wrong and I told him about the tingling.  He 
was concerned that I may be having a stroke.  I laughed it off but it stayed in 
the back of my mind.

So I went home and started searching for answers on the internet.  I read about 
TM and all my symptoms seemed to point to TM with the exception that I hadn't 
been sick or had a virus for at least the last 4 years.  My husband at the time 
told me that if it was still there on Monday, I needed to see my doctor.  

Monday morning I awoke and the tingling hands were still there and now my feet 
were tingling.  I went to work and made an appointment to see my family doctor 
that afternoon.  Off to the doctor I went.  She was totally dumbfounded and 
said she would get me in to a Neurologist.  She left the office and I figured 
Okay, I'll see the Neuro in a few months.  When my GP came in she had an 
appointment for me the next day!  

Tuesday I woke up and my hands and feet were tingling and now my legs were too. 
 I couldn't hold a pen without having a death grip on it!  I could barely write 
my name because I couldn't feel the pen.  I went to work for the morning and 
then went to the Neuro in the afternoon.  She asked many questions, did many 
coordination tests and pin prick tests and decided that I had either TM or MS.  
She was going to book me for blood tests and a MRI.  She was sure it was TM and 
told me all the nasty things that I had read . . . that TM is usually a 
precursor to MS, I would never be 100% again and it was going to get worse.  
WOW!  Un-freaking-believable!  How the heck did I get something like this???

Wednesday came and I went to work.  I was trying to come to grips with what the 
doctor told me and I think I was trying to convince myself that she was wrong 
and that it was just a pinched nerve.  All along, I am getting worse.  The 
tingles are crawling their way up my body.  When I had to run to catch the bus, 
I felt like there was this elastic band around my torso tightening itself as if 
to choke me.

Thursday, reality hit with a vengeance and I realized the severity of what I 
had contracted and what it meant to me and the rest of my life.  I spent the 
day in bed mentally and emotionally exhausted.  It really struck home when my 
husband was standing at the side of the bed and my 90 pound dog was sitting on 
me and he told her to get off me.  I told him she wasn't on me and when I 
looked I saw she was literally sitting on me and I could not feel her.  It was 
then that I realized just how bad I was.  It was also then that I realized I 
could do one of two things - I could lay there and feel sorry for myself and 
give in to this thing or I could fight it and get out of bed and try to keep 
going with all that I had.  I got out of bed.

Within six weeks it hit the worse and then slowly started to get better.  At 
it's worse, I was numb from the armpits down.  My arms were always okay but my 
hands always tingled.  My feet were numb and I had a hard time walking because 
I couldn't feel what was under them.  I had to watch my step so that I would 
catch the edge of a side walk or curb and end up twisting my ankle.

One Sunday I was making a roast and was draining the dripping into a pot when 
the pan slipped out of my hands and hit the stove.  I didn't realize it but I 
had splashed the hot liquid on my tummy and ended up with a second degree burn. 
 I didn't feel a thing and didn't have a clue what I had done until a 6 inch 
long blister developed on my tummy the next day!  Another realization!  

I eventually started to see my symptoms get better and over 3 years I healed 
the best that I could and ever would.  I still don't have all the feeling in my 
hands.  Because of that I have had to give up needlework like cross stitch.  I 
find it difficult to fasten necklaces or buttons or deal with small things.  I 
still get the tight elastic band feeling if I run or jog.  I cannot over do it 
or get stressed because then I get tired and the tingles hit with a vengeance.  
I find it hard to walk fast or for long distances without many breaks.  When I 
bend my head and then lift it up, I get the tingles and a wave of nausea.  When 
I do push it and the tingles hit, I get nauseous.

My life has changed and I have had to give up many things.  But my attitude and 
my outlook has changed for the better.  I don't sweat the small stuff any more. 
 I have more patience.  I 

RE: [TMIC] T-2 Lesions

2009-02-11 Thread Margaret Monson
I have two lesions and have TM with no signs at all of MS. 

Margaret

 

 

From: Regina Rummel [mailto:regina...@sbcglobal.net] 
Sent: February-11-09 3:15 PM
To: tmic-list@eskimo.com
Subject: [TMIC] T-2 Lesions

 

Am going over the MRI report of the brain before seeing the neurologist.
One notation in particular concerns me and  I quote The FLAIR study
demonstrates multiple bright T-2 lesions in the deep white tracts of both
cerebral hemispheres, etc...

Frank explained at one time that 1 lesion is TM, more than 1 is MS.

I'm scared.

What do you think?  Many thanks for your comments.

R

 



RE: [TMIC] Any news on Jude?

2009-01-24 Thread Margaret Monson
So happy to hear you are back home and on the mend, so to speak.

My thoughts are with you, Jude!

 

Margaret 

 

From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] 
Sent: January-24-09 12:52 AM
To: kimr1...@bellsouth.net; TMIC-LIST@eskimo.com
Subject: Re: [TMIC] Any news on Jude?

 


Yes,  I have an update on myself.  But first, thank

you all for the love and prayers sent my way.  

I am sure I could feel the warmth of all of your 

arms around me and the prayers have worked, 

because I am now home.

 

The doctors still do not know the names of the 

bacteria that has invaded my body.  They have 

sent cultures out to U of M in Ann Arbor (A2), 

but no one can figure out what kind of bacteria 

they are.  I now have several new ones and all the

docs say is that the bacteria is colonic in nature,

meaning they come from the colon, but they have 

not been seen before so no one knows how to treat 

them.  There is no problem with sending me to 

Ann Arbor, but so far it has been sufficient to 

send the labs, and I agree with that.

 

I am just a tad septic, with an attack of 

autonomicdysreflexia that caused my blood 

pressure to plummet.  I was talking to Gunny at 

the time, so it is his fault!!!   LOL...  My home nurse

had just arrived so when she got in the house, 

Gunny hung up, but he waited online for me, not 

wanting to leave me alone.  The nurse took vitals 

and my blood pressure was 85/54 and she 

immediately called 911.  I remember nothing after 

that, but woke up in the hospital later on.

 

They didn't do a whole lot for me in the hospital 

because the drugs they were giving me were 

making me feel sick.  Each time they tried a new 

med I would throw it back up at them and so they

quit that after a while.  The wounds,

(pressure sores) are what are infected and  now 

the bones in that vicinity are dx'd as being 

diseased too, so treatment it very difficult.  This 

time, before sending me home, they took deep 

biopsies and lots of blood to send to the various 

labs in the area, including A2.

 

Umm, I have not had much energy.  All blood 

levels are low, except for the ones that are 

supposed to be low...those are high!  

 

Well, folks, I am getting tired and sleepy. So 

will go for now and catch you up on the rest

later.

 

I love and appreciate you all.

 

Jude,



































RE: [TMIC] Don't Worry About Me

2009-01-10 Thread Margaret Monson
Thanx for what you have said, Jude.

 

I am one of the lucky TM'ers.  But I know that there are many many TM'ers
out there that have it much more difficult than I do.  Although I will not
say that I can understand or relate to what you are going through (because
no one can as each person is different), I will offer any support that I
possibly can.

 

I do not read all the emails nor do I reply to many.  My thoughts are that
if you feel you have something to say to a fellow TM'er, than have at it
with the understanding that you respect that person and everybody else.  If
you are concerned about getting a ton of emails, then set up a different
email account strictly for TMIC.

 

Everyone in this world need support, TM or not.  If people find that support
and some solace in chatting on line, then so be it.  It is their way of
coping and communicating.  Who knows?  You may even find a friend or two or
three while chatting.

 

To those who wish to email, I say please feel free to jam up my inbox!  To
those that do not like it . . . well you can leave the support and
friendship of the group by your choice.  But do not condemn anyone else!

 

Sorry, but just had to give you my two cents worth.

 

Margaret

 

From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] 
Sent: January-10-09 7:13 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Don't Worry About Me

 


First, let me thank those of you who have taken the time to email me and
lend me your support.

 

Those of you who have been on the List for some time know how I feel about
every one of you.  If you don't, you haven't been reading my email!

 

I am a mature woman, a lover of people and yet I have the ability to take
care of myself.  I do not go out of my way to make strife on the List and I
think that Jim knows that or he would have asked me to leave long before
this.

 

What I may be, is somewhat naive, and tend to write before I think at times.
I will do my best  not to email so often when the topics are not specific to
TM.

 

I think that having TM and being bedridden has made me rather jaded on the
subject.  I feel resigned to my fate and tend to forget that there are so
many of you with TM who walk and get around quite well on your own.

 

Why is it that there is so much diversity when it comes to managing TM by
the medical field?  There are all types of medications...none of us are on
the same drugs, are we?  There are all types of therapies available but
depending upon insurance companies many Tm'ers are unable to take advantage
of them.  

 

Since my time on the List I have read emails by some of the most uplifting
persons I know.  I have read my share of emails written by those with no
hope, only to be turned around by the List group.  And, I have had the
sobering emails about those of us who simply can't take it any more.  Those
TM'ers we will never hear from again.

 

And then there are those ungrateful people who criticize whatever is written
on this List that might not exactly fit the criteria of the Rules.  If we
belong to this List...if we have TM...then as long as we write in a
respectable manner, we ought to be able to say what we need to say as long
as it will help another person with TM.

 

HELP ANOTHER PERSON WITH TM...

 

Those are the words that are important here.  And that is what I will
continue to try to do.  As other's have done for me. (that sounds somewhat
familiar, aye?)

 

As a die-hard Beatle fan, I must say,

 

ALL WE NEED IS LOVE,  LOVE IS ALL WE NEED.

Jude

 

o





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[TMIC] November Birthday Addition

2006-11-01 Thread Margaret Monson



Margaret Monson 
- November 6, 1961

I am fairly new to the 
group but read every posting. I seem to have one of the milder cases 
compared to some of the posts I have read!

Thanx for all the info I 
have gleaned from the many posts.

Margaret