Re: [TMIC] tmic-list group
I am on FB too and hardly see much activity here anymore. I wouldn't think its worth it, but that my opinion. So glad to hear from you Jim. Hope you are doing well and staying healthy!!! But Im not going anywhere, I rarely go to the FR pages anymore and infact Ive unjoined a few. Keep us informed!! Thanks Jim!! Sent from Windows Mail From: Jan Nichols Sent: Monday, July 6, 2015 7:37 PM To: Gillian Clark, Tmic Great place to be where - on Facebook or the old address (Eskimo) Jan From: Gillian Clark Sent: Monday, July 06, 2015 2:40 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group Jan, hurry over, it’s a great place to be and you might be surprised just how many of us are there and just how many tm groups there are! Gilly, member since 2001 From: Jan Nichols Sent: Monday, July 06, 2015 10:22 AM To: Robert Hijar ; Gillian Clark ; tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group If we can get it for free, I am all for it! Janice From: Robert Hijar Sent: Sunday, July 05, 2015 7:51 PM To: Gillian Clark ; tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group So, do tell how many of you out there are NOT on Facebook..and why not.??? As for your privacy, YOU are in charge of what you post on your timeline, and on the info sections. Nobody is asking you to post anything personal you wanna keep to your selves. So let's all move to Facebook so Jim can save a few bucks. Bobberino, a member since 1997. -Original Message- From: Gillian Clark Sent: Jul 5, 2015 5:10 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group This is the first activity I’ve seen for a long time Jim, I think most of us are on facebook, I’m in several groups. Whatever happens, I’m so grateful to you for setting this group up. It was my saviour in the beginning of this shitty journey and I’ve made friendships that have lasted for almost 14 years. It’s free Jim and everyone is there. I’ll follow you wherever you go. Love you mate, Gilly From: Jim Lubin Sent: Sunday, July 05, 2015 4:18 PM To: tmic-list@eskimo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group wondering if it is worth continuing to pay for it. $42 every 6 months. everyone seems to have moved to other groups. I might be able to move all the subscribed email addresses to another, free system using google groups, but the address would change to tmic-l...@myelitis.org. On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote: Hi Jim, There was a little bit of activity a few months ago between a few of us. I am on Face Book also. It was good to see your name today, because I was thinking about you this morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM and thank you for its availability. Patti - Michigan On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote: is anyone still using the tmic-list@eskimo.com?
Fwd: [TMIC] Hey everybody,
I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer up till Oct 31st when I almost died. The doctors said my body took a big hit. I had severe sepsis and septic shock. Since my hair is falling out really bad and nails are splitting and peeling and breaking. Real fragile. I even take 6000mcg of Biotin a day and have for a couple years. So IDK what's going on. Amy Shultz Ohio Sent from my Verizon Wireless 4G LTE smartphone Original message From: suerdlagpu...@gmail.com Date:01/21/2015 9:47 AM (GMT-05:00) To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went to ER walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed nothing new had happened and I recovered fine. My doctors and I were stumped. In December 2014, I woke up one morning feeling my TM normal with the start of a cold. I went thru my routine of meds, reading, and coffee. I had difficulty standing up, my walking was bad and felt drunk when I started for another cup of coffee. I again wondered if I was having a TM relapse. I sat and compared the two relapses. I didn't want to go thru another 36 hour observation in ER. I felt and walked and talked as if drunk both times. I had the start of a cold both times. I had taken cough syrup both times, but the bottle was almost empty so it couldn't be that. I didn't have a relapse at all. I had a reaction to taking a full dose of cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty stomach. What a relief! I saw my PCP yesterday for my RX renewals and I think she was as relieved as I was. That means no TM relapses in 11 years. Praise the Lord! Patti - Michigan. On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote: Me too. On a trip but will be responding. ! So glad someone is still out there in our tm group Sent from my iPhone On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote: I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get. I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments. It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone
RE: [TMIC] End of birthday lists
I completely understand Barbara. It seems this has gotten very very quite here. Although I am feeling more and more of an alien amongst the other TM groups this one has been okay. I appreciate ALL you have done to keep them coming. Hopefully 2014 will be a bigger and brighter AND healthier year for us all. I am struggling day in and day out each and every day and am really run down!! I hope EVERYONE of you has a VERY Happy New Year and that all your dreams come true!! I will remain here for any messages but do offer my best to each and everyone of you!!! Amy SHultz Columbus Ohio CC: tmic-list@eskimo.com From: p...@voorheissigns.com Subject: Re: [TMIC] End of birthday lists Date: Tue, 31 Dec 2013 15:03:09 -0500 To: barbara...@gmail.com Thanks Barbara. You are correct in all your reasons. I'm still here on TMIC as well as on FBk and that's where I try to remember to send birthday greetings. Patti - Michigan On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote: Hello all, Some of you may remember how the birthday lists started many years ago. Someone found an online site that would send e-cards to others as a support for a charity, so many of us sent in our names and birthdays so as to use the site to raise funds for the TMA. Not surprisingly, the site died after a while. A girl on the TMIC named Carrie and I had accumulated the birthday names and lists, and after she left the list, I continued to send them out once a month. I've decided to stop doing so, for a number of reasons. 1) Not many people are here any more. Many are on Facebook and it is easy to send birthday greetings there. 2) I don't think many (if any) people use the birthday list to send individual greetings to anyone on it. (A few of you have faithfully sent happy birthdays on TMIC to those celebrating each month as a whole, and I have appreciated that.) 3) Since all mail that goes through the TMIC is archived online, I have wondered if it is a problem to have lists of names and e-mails there, if that increases anyone's spam content. 4) I have been sending out individual birthday greetings to everyone on the list, and more and more of them are returned to me because the address is no longer active. 5) For those who are no longer on the TMIC, I don't know if they welcome the birthday greetings or if they don't want me to bug them any more. So for all of those reasons, plus the amount of time involved, I have decided to stop sending the birthday lists out each month. I've just finished updating it with the latest information I have - if anyone else wants to take it over, I'll be happy to send you the list. I'm still here on the TMIC and plan to continue to be. I wish all of you a very happy and healthy 2014. Love, Barbara H.
RE: [TMIC] Additional July Birthday
Thank you everyone for the Birthday wishes, I had a very nice special day. Everyone I came across who know it was my special day showed how much they cared. Starting with a simple cupcake balloon with a candle on it from my doctors appointment. I was up all wonderful, spent time with just my parents, went out a goofed around and had fun, then a good friend of mine (we have been friends since I was 7 years old) came over with her little boy whos 2, and another friend came over too. We ordered in spaghetti and meatball, salad and bread. Liam who is the 3 yr ols picked me out a Sully and Mike Birthday Care from Monsors University. Thats his fav and he want me to have the best ;) I ended the night in some quit and kinda got some more sleep then normal. Thanks again all and have a wonderful $th of July to all My States friends!!! Amy Shultz In Ohio Date: Mon, 1 Jul 2013 07:02:22 -0700 Subject: Re: [TMIC] Additional July Birthday From: malugss...@gmail.com To: mic...@hotmail.com Happy Birthday, Amy. Hope the weather cooperates and you have a great day with people you love and who love you. Dalton Dalton GarisFlushing, QueensNew York, USA From: amy shultz mic...@hotmail.com Date: Mon, 1 Jul 2013 10:59:50 + To: TM group tmic-list@eskimo.com Subject: [TMIC] Additional July Birthday Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 1 Jul 2013 03:59:51 -0700 (PDT) Amy Shultz July 1st Birthday
[TMIC] Additional July Birthday
Amy Shultz July 1st Birthday
RE: [TMIC] Fwd: Baclofin Pump
Rob I wish you all the best with your upcoming surgery and I pray that you are pleased with the results. Please do keep us all updated on how it goes. I hope its everything you hoped it would be plus more!! Amy in Ohio After months of deliberations and concerns I am finally going to have the Baclofin Pump put in my body. After going thru the trial and seeing the results I felt I had to give it a try. I am going for the Pre certification tomorrow and having the surgery on the 27th. My main concern is that I am one of the walking wounded. I can walk (short distances), drive and have very little pain. That being said the banding (tightness in my legs have been the worst part of my condition for more than 15 years! I will keep mall of you up to date on my progress. My neuro said that the Baclofin Pump could be used so much more often than it presently isI will let you know in a few weeks if it was worth the effort and the risk. All the best! Rob Pall in New Jersey
[TMIC] June Birthdays
Happy Birthday to ALL the June babies!! I hope everyone of you have a wonderful special day!!! Amy in Ohio
RE: [TMIC] Re: Attention -The TMIC List
Yes, I am here, just slow in reading e-mails. LOL Amy SHultz Columbus Ohio To: jan...@centurytel.net; heyjude48...@aol.com; tmic-list@eskimo.com Subject: Re: [TMIC] Re: Attention -The TMIC List From: robthe...@aol.com Date: Fri, 3 May 2013 09:37:43 -0400 I have never left! Rob in New Jersey -Original Message- From: Janice Nichols jan...@centurytel.net To: Heyjude48458 heyjude48...@aol.com; tmic-list tmic-list@eskimo.com Sent: Thu, May 2, 2013 4:46 pm Subject: Re: [TMIC] Re: Attention -The TMIC List Sorry I am late to respond.Maybe we could ask all who read/respond to our website to let us know by just stating a “yes” or “no” to whether or not they are still a part of us. We do need to have some idea who is still getting our emails. Would you all please do so? Janice From: heyjude48...@aol.com Sent: Tuesday, April 30, 2013 8:38 PM To: tmic-list@eskimo.com Subject: [TMIC] Re: Attention -The TMIC List Hi Everyone, How are you doing tonight? It's Jude Hoops and I am writing to let you know that eskimo.com may be having a problem with our emails. It seems that some of the people who don't want to receive mail are telling AOL that our mail is Spam instead of just unsubscribing to the list. It is because of their negligence that we may not get any more emails. This list has been around for at least 12 years and I don't know how long before I signed on that it had been up and running. I know the Quad list is going to another site, but I haven't heard anything about us. Does anyone else know anything about this? If you do will you please let me know. I'm very worried about it. I know that the list doesn't function the way that it used to but it is still important to me that we all stay in touch. Oh, do any of you have the list of May Birthdays? It usually comes around before the 1st and I haven't seen it yet for this month. What do you think we should do? (Again, I don't know if it applies to us too, or just the Quad list) And one other thing, do any of you mind if I use Pam's sign off of TIAD? I just can't seem to help myself, it just keeps her alive in my heart. TIAD, Jude Hoops Michigan
RE: [TMIC] Re: May Birthdays
Sorry I am so late but hey May isnt over yet :) Happy Happy Birthday to all those with May Birthdays!! Amy Columbus Ohio From: barbara...@gmail.com Date: Wed, 1 May 2013 05:10:10 -0400 To: tmic-list@eskimo.com Subject: [TMIC] Re: May Birthdays So I realized after I went to bed that it wasn't May yet and I wasn't late after all - I don't usually send these out til the first of the month. Barbara H. Sent from my iPhone On Apr 30, 2013, at 11:06 PM, Barbara H. barbara...@gmail.com wrote: I apologize for being late with these - my husband had a detached retina yesterday, and we've been spending time at different doctors offices, then he had surgery today. It's been a whirlwind. It didn't even click that this was May 1 til I saw Jude's note. But thankfully we didn't miss anyone since no one's birthday was on the 1st. Happy Birthday to all the May kids! Please send any additions or corrections to tmic-list@eskimo.com. We also remember this month Jim Belz, May 11, who has passed away. 5/5 Linda Garrett (limoga43...@yahoo.com) 5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com) 5-11 Lynn (roseofr...@aol.com) 5- 19 Maureen Wroblewski Hallagan (walterhalla...@msn.com) 5/31 Wendy Wood (ww...@optonline.net)
RE: [TMIC] Re: Transverse Myelitis
My TM story began in March of 96. I was 19 yrs old and had graduated from High School and had a soccer scholarship to Notre Dame. While having an MRI on my jaw for TMJ the doctors said I had an unrelated seizure. After waking up in the hospital my arms were really heavy and had horrible pain around my mid section, and couldnt move my legs. By the next morning I couldnt move my arms or legs, couldnt talk. Couldnt breathe. I endured test after test after test. They kept thinking MS as my mom has MS but they couldnt confirm it.I was in a rehab hospital and a nursing home for a total of 14 weeks. After many weeks I was finally diagnosed after a second MRI showed lesions on my spinal cord at C 4-5. Due to it being so long since I had had the initial attack and doctors not familiar with TM, I was not treated with any steroids or any other treatment. After intense therapy and many prayers after about 8 months I got use of my arms. Not 100% but some. My arms came back very slowly. I was in therapy for months and months. I have yet to show any improvement with my legs and am ventilator dependent. I had a neurogenic bladder and bowels. I had my bladder removed in 03. I havent show much improvement after the one year mark. I hold on to hope that one day there will be treatment for us, or others like us. I deal with horrible pain and spasms daily. Something I wouldnt wish on anyone. I have been unable to return to school. It seems I am in and out of the hospital so much it makes doing anything nearly impossible. Last year alone I was inpatient 13 times. Not counting ER visits. I am on over 30 medications a day. I get exhausted very easily and nap alot. But I still enjoy having fun and hanging with family and friends and this TM will NEVER stop me from being me. Amy Shultz Columbus Ohio From: heyjude48...@aol.com Date: Fri, 26 Apr 2013 23:09:12 -0400 To: tmic-list@eskimo.com Subject: [TMIC] Re: Transverse Myelitis Hi Everyone! It's Jude Hoops. I was just reading the quad list and they are talking about their injuries at what level they are injured, how it happened and when it happened. Do you think that that would be something we could do too? I think it might be interesting to know how we were all injured or got sick and how long ago it was. We've all been on this list for a long time now and I was wondering whether any of us had gotten any better over the years. Let me know what you think. Just write a small paragraph about how you came to have TM, what level your injury is at and if you have seen any improvement over the years. I love you all so much and have been thinking of you. Hugs, Jude (TIAD)
RE: [TMIC] Re: Transverse Myelitis
Yes Patti, TM drastically changed my life. A life a I havent won back but an fighting day and night too. I have been living with this monster for just over 17 years. So almost half my life. It seems like only yesterday I was able to run down the soccer field and my life was thriving!! Little did I know that the soccer injury that nearly cost me my career was nothing. Something bigger was brewing inside me. Its seems day in and day its the same Journey, different day, with occasional speed bumps and storms. But I chug ahead,weather through it, and just keep going a day at a time! Always thankful and feeling blessed for what I have. 3 CC: tmic-list@eskimo.com From: pjv1...@chartermi.net Subject: Re: [TMIC] Re: Transverse Myelitis Date: Thu, 23 May 2013 20:54:09 -0400 To: mic...@hotmail.com Hi Amy,Thanks for sharing your TM story. It's stories like yours that make me furious with how TM so drastically changes lives. I like your last line. You rock! Patti - Michigan On May 23, 2013, at 8:40 PM, amy shultz mic...@hotmail.com wrote: My TM story began in March of 96. I was 19 yrs old and had graduated from High School and had a soccer scholarship to Notre Dame. While having an MRI on my jaw for TMJ the doctors said I had an unrelated seizure. After waking up in the hospital my arms were really heavy and had horrible pain around my mid section, and couldnt move my legs. By the next morning I couldnt move my arms or legs, couldnt talk. Couldnt breathe. I endured test after test after test. They kept thinking MS as my mom has MS but they couldnt confirm it.I was in a rehab hospital and a nursing home for a total of 14 weeks. After many weeks I was finally diagnosed after a second MRI showed lesions on my spinal cord at C 4-5. Due to it being so long since I had had the initial attack and doctors not familiar with TM, I was not treated with any steroids or any other treatment. After intense therapy and many prayers after about 8 months I got use of my arms. Not 100% but some. My arms came back very slowly. I was in therapy for months and months. I have yet to show any improvement with my legs and am ventilator dependent. I had a neurogenic bladder and bowels. I had my bladder removed in 03. I havent show much improvement after the one year mark. I hold on to hope that one day there will be treatment for us, or others like us. I deal with horrible pain and spasms daily. Something I wouldnt wish on anyone. I have been unable to return to school. It seems I am in and out of the hospital so much it makes doing anything nearly impossible. Last year alone I was inpatient 13 times. Not counting ER visits. I am on over 30 medications a day. I get exhausted very easily and nap alot. But I still enjoy having fun and hanging with family and friends and this TM will NEVER stop me from being me. Amy Shultz Columbus Ohio From: heyjude48...@aol.com Date: Fri, 26 Apr 2013 23:09:12 -0400 To: tmic-list@eskimo.com Subject: [TMIC] Re: Transverse Myelitis Hi Everyone! It's Jude Hoops. I was just reading the quad list and they are talking about their injuries at what level they are injured, how it happened and when it happened. Do you think that that would be something we could do too? I think it might be interesting to know how we were all injured or got sick and how long ago it was. We've all been on this list for a long time now and I was wondering whether any of us had gotten any better over the years. Let me know what you think. Just write a small paragraph about how you came to have TM, what level your injury is at and if you have seen any improvement over the years. I love you all so much and have been thinking of you. Hugs, Jude (TIAD)
RE: [TMIC] Baclofen pump
OMG Lynn!! How often must you get it filled? I would pray to God that wasnt every month. I think my doctor said like maybe every 3 months but IDK, I couldnt afford that. Rob I hope you can get it and NOT have that cost involved!! Again best of luck!! Amy Shultz in Ohio Date: Fri, 22 Feb 2013 16:36:52 -0800 From: lynnemye...@yahoo.com Subject: Re: [TMIC] Baclofen pump To: robthe...@aol.com; tmic-list@eskimo.com Rob I have had a pump for quite a few years now, I use it to control clonus in my legs. The only down side I have found is the cost involved with getting the pump filled. Even with insurance my co-pay is over $600 every time I have to go in. From: Robert Pall robthe...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, February 12, 2013 11:31 AM Subject: [TMIC] Baclofen pump I have just seen a new neuro who recommended the baclofen pump. He had me do a trial where he inserted a needle into my spine and injected a small dose of baclofen. Almost immediately I felt the banding in my legs improve and my walking was much better as well. I guess I am just worried about the downside if any of the pump. I would love to hear from people presently using the pump and hear their side of the story. Please keep in mind that I presently walk unassisted and drive (and swim). Ju7st want to make sure the upside is far better than the downside! All the best! Rob in New Jersey
RE: [TMIC] Baclofen Pump
Doesnt sound like a bad decision to me, I am thrilled for you. I was to have a baclofen/dilaudid pump placed but due to constant infections I have to be re evaluated and reconsidered. Best of luck Rob!! So glad you had really good results with it!! Amy in Ohio To: tmic-list@eskimo.com From: robthe...@aol.com Date: Sat, 16 Feb 2013 19:25:45 -0500 Subject: [TMIC] Baclofen Pump After doing the trial last week and having really good results, I have decided to go ahead with the Baclofen Pump. I have scheduled an appointment with the surgeon in 2 weeks. Now that I have made the decisioncan anybody tell me why it might be the wrong one? Thanks Rob in New Jersey
RE: [TMIC] Re: Lyrica, Psychiatric Evaluations
I take 900 mg of Gabapentin at 7am and 1pm and 1200mg gabapentin at 9pm. I have not tried Lyrica but have tried Cymbalta without success. I am having trouble with doctors wanting/willing to prescribe my pain medicine as well. I was told by the pain/pallitive doctor We will NEVER prescribe opiates for you again!! This was do to them saying I have a Mast Cell Reaction to them. Seeming they werent giving me anything for pain other the Naprosen I started taking my Dilaudid again on my own. I had just had it filled for 900 tablets right before they stopped them. I took them withOUT any problems or reactions. I think the doctors over reacted and seeming they dont like to prescribe them it gave them an easy way out. I refused to settle for it and being in constant pain at high levels I continued taking it. I was always up front and honest with them about taking it. Surprisingly they never really told me to not take it. As for the Psychiatric Evaluation its just a routine test they do. To make sure of where your head is and family history I think. I am sure they will ask lots of questions and perhaps have you fill out alot of paper work as well. I am sure its not that they have any concerns its just routine. Please don't be nervous. Look at the prize in the end...Better pain relief...better quality of living Best wishes Jude Amy In Ohio CC: tmic-list@eskimo.com From: malugss...@me.com Subject: Re: [TMIC] Re: Lyrica, Psychiatric Evaluations Date: Sun, 17 Feb 2013 07:45:55 -0500 To: xbeecla...@gmail.com I'm ok with 300 Gabapentin and 150 Lyrica (Pregabelin) 2x/day with an additional dose of Lyrica for breakthrough pain. With the Prozac and Dilantin also added in 2x/day that brings my medication bill down to just $161.30/month. When I took just Lyrica and before I had substituted Gabapentin I was paying almost double that per month. Dg Dalton GarisNew York, New York On Feb 16, 2013, at 11:18 PM, Betty Clark xbeecla...@gmail.com wrote: Hi Dalton, I've always taken Gabapentin (or Neurontin) at two 300 mg capsules every six hours with an additional 7.5 - 325 Hydrocodone-Acetaminaphine to calm nerves and relieve pain. I have been tempted to request from my doctor trying Lyrica, as I've been experiencing break-through pain and nerve reactions around the last hour of my cycle, but am hesitant to try something different and not have it work. I've also contemplated staggering my meds so I'm taking one of them every 12-6-12-6 o'clock and the other every 9-3-9-3 o'clock. What dosage of Gabapentin and Lyrica have you taken, and what is the difference in the amount of time they are effective? Thanks, Betty On 2/16/2013 9:53 AM, Dalton Garis wrote: I found that Lyrica and Gabapentin do different things; Gaba is better for calming nerves and allows me to drink more caffeine without blowing up. But it is not as effective on pain as is Lyrica. When I just took Lyrica no pain but couldn't drink much coffee; but when I took less Lyrica and added some Gabapentin then the pain was still down—most of the time—and I could tolerate a lot more coffee drinking. Funny thing. Lyrica just killed the burning and needles and voltages, just flattened it. Perfect is good enough, right? Dg Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Janet Dunn j.d...@shaw.ca Date: Saturday, 16 January 2013 1:44 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Lyrica, Psychiatric Evaluations Resent-From: tmic-list@eskimo.com Resent-Date: Fri, 15 Feb 2013 22:44:42 -0800 II was on Lyrica for many years - and it works great. I cold turkey quit taking it in November. Since then I have been getting by on Oxycontin, or Oxycodone, sometimes both. However - when the burning pain and the numbness and whatnot gets too great, I will still take a dose or two of the Lyrica as it really does help. I may eventually go back on it full time - depending on how the next few months pan out. I prefer the Lyrica over gabapentin because I can take less of it with greater results. Oxy is getting very difficult if not impossible to get in my town. Janet
