Yes Patti,
TM drastically changed my life. A life a I havent won back but an fighting day
and night too. I have been living with this monster for just over 17 years. So
almost half my life. It seems like only yesterday I was able to run down the
soccer field and my life was thriving!! Little did I know that the soccer
injury that nearly cost me my career was nothing. Something bigger was brewing
inside me. Its seems day in and day its the same Journey, different day, with
occasional speed bumps and storms. But I chug ahead,weather through it, and
just keep going a day at a time! Always thankful and feeling blessed for what I
have. <3
CC: tmic-list@eskimo.com
From: pjv1...@chartermi.net
Subject: Re: [TMIC] Re: Transverse Myelitis
Date: Thu, 23 May 2013 20:54:09 -0400
To: mic...@hotmail.com
Hi Amy,Thanks for sharing your TM story. It's stories like yours that make me
furious with how TM so drastically changes lives. I like your last line. You
rock!
Patti - Michigan
On May 23, 2013, at 8:40 PM, amy shultz <mic...@hotmail.com> wrote:
My TM story began in March of 96. I was 19 yrs old and had graduated from High
School and had a soccer scholarship to Notre Dame. While having an MRI on my
jaw for TMJ the doctors said I had an "unrelated" seizure. After waking up in
the hospital my arms were really heavy and had horrible pain around my mid
section, and couldnt move my legs. By the next morning I couldnt move my arms
or legs, couldnt talk. Couldnt breathe. I endured test after test after test.
They kept thinking MS as my mom has MS but they couldnt confirm it.I was in a
rehab hospital and a nursing home for a total of 14 weeks. After many weeks I
was finally diagnosed after a second MRI showed lesions on my spinal cord at C
4-5. Due to it being so long since I had had the initial attack and doctors not
familiar with TM, I was not treated with any steroids or any other treatment.
After intense therapy and many prayers after about 8 months I got use of my
arms. Not 100% but some. My arms came back very slowly. I was in therapy for
months and months. I have yet to show any improvement with my legs and am
ventilator dependent. I had a neurogenic bladder and bowels. I had my bladder
removed in 03. I havent show much improvement after the one year mark. I hold
on to hope that one day there will be treatment for us, or others like us. I
deal with horrible pain and spasms daily. Something I wouldnt wish on anyone. I
have been unable to return to school. It seems I am in and out of the hospital
so much it makes doing anything nearly impossible. Last year alone I was
inpatient 13 times. Not counting ER visits. I am on over 30 medications a day.
I get exhausted very easily and nap alot. But I still enjoy having fun and
hanging with family and friends and this TM will NEVER stop me from being me.
Amy Shultz
Columbus Ohio
From: heyjude48...@aol.com
Date: Fri, 26 Apr 2013 23:09:12 -0400
To: tmic-list@eskimo.com
Subject: [TMIC] Re: Transverse Myelitis
Hi Everyone!
It's Jude Hoops. I was just
reading the quad list and they are talking about their injuries at what level
they are injured, how it happened and when it happened. Do you think that
that would be something we could do too?
I think it might be interesting to
know how we were all injured or got sick and how long ago it was. We've
all been on this list for a long time now and I was wondering whether any of us
had gotten any better over the years.
Let me know what you think.
Just write a small paragraph about how you came to have TM, what level your
injury is at and if you have seen any improvement over the years.
I love you all so much and have
been thinking of you.
Hugs,
Jude
(TIAD)
