[TMIC] Asking group experience
Hi Everyone! I have been reading ,haven't posted in a while. I hope Spring time is helping everyone. I would like 2 know what tests - blood work etc your dr's order for you during the year. I am on baclofen ,topamax. Still with pain especially at night. as well as back pain and shrinking in right leg. Am wheelchair bound for most part with exception of toddler table walking (last few months) tm in july 07. I read most know where t this or t that. I didn't know that until I started this group as I was never told the area of where my tm hit. I do know I have to take responsibility for me. What do I need to ask for. In my area and now medical coverage I am limited. I have learned a lot from you guys. Never realized that tm causes clinical depression. Anyone know or have experience with hpt5. Or natural supplements for depression. I was on effexor then prozac now nothing. Feeling DOWN and don't want to spiral down again just as spring is here. May have rambled a bit - thanks 4 being out there!! Sent via BlackBerry by ATT
[TMIC] Info on low dose naltrexone ( ldn) if interested
Crystalsmstmldn.org Sent via BlackBerry by ATT
[TMIC] Connected?
Hello Haven't been getting posts from TMIC- but have about ldn. Did group change? Its interesting and New people - I don't know how but - if group changed that's ok. If it didn't what do I need 2 do 2 get back on. Are All posts from past week only about low dose naltrexone? Thanks :) jackduv Sent via BlackBerry by ATT
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[TMIC] Happy
Sending angels out to all of my fellow tmers !! Wishing all of you with lots of love the very best of life in 2011 !!! Sent via BlackBerry by ATT
[TMIC] Gratitude
I am very grateful to belong 2 a group of people from around the world who truly understand transverse myelitis! It has been very comforting as well as educational ! I have learned more from you guys then the doctors! When I was at my darkest depression thinking - if this was life I didn't want anymore of it. I read something that kicked me back into reality out of self pity. Thank God u were there 2 read. I wish all of you a wonderful holiday time a healthy happy new year. God Bless you all Sent via BlackBerry by ATT
[TMIC] MRI
Hi John I was wondering, why do they think baclofen is making you stumble? I know side effect is dizzy/tired. For me I have not experienced dizziness but I am getting so disgusted with fatigue I have started 2 slowly cut down recently. Was taking 5 20mg. Day. Now 4 hopefully can drop more. But getting so tired of all this tm crap My insides want 2 scream out as loud as I can!!! Hang in there. Hopefully u will get relief soon. Sent via BlackBerry by ATT
[TMIC] Generic
Sometimes I push save on your messages or mark unopened - thinking ... Wow I'm going 2 save this 4 so so 2 read this is good - this is just like me . If they read this it will explain my symptoms they will see that there r others out there feeling doing the same behavior Now they will understand- they will get it now!! But then I don't show then. I just keep them. Most of you are blessed 2 have folks around that understand the pain complications associated with tm and such a life changing event. I am loved by family however just feel lazy and worthless at times when I get stuck in comparing this life 2 life b4 tm. Ok enuff of my pity party. Thank God 4 all of you who I know understand fatigue pain and all the rest of the junk that goes with tm. Hv a good night. Thanks 4 being there. JackDuv Sent via BlackBerry by ATT
[TMIC] Meds
Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
[TMIC] Omega 3
Do u know - if taking omega 3. Do I still take the other omega 3-6 along with it. Just trying vita route also :) thanks Sent via BlackBerry by ATT
[TMIC] Thank u
I bought omega 3 - will def stop melatonin. Appreciate all the help. Sent via BlackBerry by ATT
[TMIC] Blue time
Hi everyone! Wishing all of my tm family a warm, happy special Thanksgiving Day.Also- I want 2 know, I had such a bad experience with antidepressents did fine on It (effexor)until withdrawals came - when I first got diagnosed tm and then on cobra, but When ins ran out and so did my pills I got so sick from not titrating the dose down appropriately and have been afraid of getting back on them. I know I am getting more Depressed and a new dr ordered presiq .??. But am afraid of having same prob again. I know this time of year hits me hardest - pain cold wet weather exacerbates my painful symptoms. Any feedback on meds (4 depression) that seem to help without causing more fatigue or addiction feelings when u stop) Or on the new prestiq 4 depression. I know I need something. Also from reading ur emails .. Do you ALL go to RA dr's as well as nero ? I go to a nero dr in memphis tn. But he only gives baclefen 80 and topomax 100 I hurt all nite long!!! Up and down.miserable : I'm open 2 any feedback. Thanks for help Preparing for blues! Jacduv Sent via BlackBerry by ATT
[TMIC] Blue time
Hi everyone! Wishing all of my tm family a warm, happy special Thanksgiving Day.Also- I want 2 know, I had such a bad experience with antidepressents did fine on It (effexor)until withdrawals came - when I first got diagnosed tm and then on cobra, but When ins ran out and so did my pills I got so sick from not titrating the dose down appropriately and have been afraid of getting back on them. I know I am getting more Depressed and a new dr ordered presiq .??. But am afraid of having same prob again. I know this time of year hits me hardest - pain cold wet weather exacerbates my painful symptoms. Any feedback on meds (4 depression) that seem to help without causing more fatigue or addiction feelings when u stop) Or on the new prestiq 4 depression. I know I need something. Also from reading ur emails .. Do you ALL go to RA dr's as well as nero ? I go to a nero dr in memphis tn. But he only gives baclefen 80 and topomax 100 I hurt all nite long!!! Up and down.miserable : I'm open 2 any feedback. Thanks for help Preparing for blues! Jacduv Sent via BlackBerry by ATT
[TMIC] Oh joy - I think.
Hello everyone!When I applied - (reluctantly) by encouragement of my best friend-it was oct. I was approved in November. The hardest part was the 2 year wait paying the 540.00 cobra mthly which went up to 820. The last 6 mths of which I couldn't afford! Thank God I had long term disability checked on my work ins. Wishing u all the best ! Sent via BlackBerry by ATT
[TMIC] Question
What's the difference between idopathic tm and just tm ? Diagnosed with idopathic tm 2007 -memphis tn. :) Sent via BlackBerry by ATT
[TMIC] Unidentified subject!
My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT
Fw: [TMIC] Unidentified subject!
--Original Message-- From: Jackie Duval To: TMIC ReplyTo: Jackie Duval Subject: [TMIC] Unidentified subject! Sent: Sep 10, 2010 8:57 AM My right leg seemed to suffer more then left. I was wondering... I got tm in 07. Over last months intense pain and can't sleep on right side my right leg seems to be getting shorter. Has this happened to anyone ? Is this from TM ? Sent via BlackBerry by ATT Sent via BlackBerry by ATT
[TMIC] Fw: Delivery Status Notification (Failure)
Sent via BlackBerry by ATT -Original Message- From: Mail Delivery System mailer-dae...@smtp17.bis.na.blackberry.com Date: 31 Aug 2010 04:22:07 To: srs0=flihoc=qe=att.blackberry.net=jack...@srs.bis.na.blackberry.com Subject: Delivery Status Notification (Failure) The following message to listrequ...@eskimo.com was undeliverable. The reason for the problem: 5.1.0 - Unknown address error 550-'5.1.1 listrequ...@eskimo.com... User unknown' Reporting-MTA: dns; smtp17.bis.na.blackberry.com Final-Recipient: rfc822;listrequest@eskimo.com Action: failed Status: 5.0.0 (permanent failure) Remote-MTA: dns; [204.122.16.69] Diagnostic-Code: smtp; 5.1.0 - Unknown address error 550-'5.1.1 listrequest@eskimo.com... User unknown' (delivery attempts: 0) ---BeginMessage--- I am new to this site,I have been reading it and it has been helping but would like to be more a part of this group. I was diagnosed with tm in july27,2007. I am on Baclofen Topamax at this time also daily vit and D. I have been loosing energy over last year fatigue is terrible. Unable to sleep from pain. I know I need this group because my life as I knew it is gone! I used to be compared to a workaholic jokingly by my friends. I loved to work and was a therapist for a inpatient psychiatric hospital. As well individual, marital therapy and group counseling for out pt therapy. When TM hit I was forced out of my job of 20 years. I am home and well feel I'm just now getting to point that I accept changes. BUT!!! Lots to learn. Anyone have insight into Depression and TM? Not sure I'm tired or depressed! Thanks jackie Sent via BlackBerry by ATT ---End Message---
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[TMIC] Fw: Delivery Status Notification (Failure)
Sent via BlackBerry by ATT -Original Message- From: Mail Delivery System mailer-dae...@smtp17.bis.na.blackberry.com Date: 31 Aug 2010 04:22:07 To: srs0=flihoc=qe=att.blackberry.net=jack...@srs.bis.na.blackberry.com Subject: Delivery Status Notification (Failure) The following message to listrequ...@eskimo.com was undeliverable. The reason for the problem: 5.1.0 - Unknown address error 550-'5.1.1 listrequ...@eskimo.com... User unknown' Reporting-MTA: dns; smtp17.bis.na.blackberry.com Final-Recipient: rfc822;listrequest@eskimo.com Action: failed Status: 5.0.0 (permanent failure) Remote-MTA: dns; [204.122.16.69] Diagnostic-Code: smtp; 5.1.0 - Unknown address error 550-'5.1.1 listrequest@eskimo.com... User unknown' (delivery attempts: 0) ---BeginMessage--- I am new to this site,I have been reading it and it has been helping but would like to be more a part of this group. I was diagnosed with tm in july27,2007. I am on Baclofen Topamax at this time also daily vit and D. I have been loosing energy over last year fatigue is terrible. Unable to sleep from pain. I know I need this group because my life as I knew it is gone! I used to be compared to a workaholic jokingly by my friends. I loved to work and was a therapist for a inpatient psychiatric hospital. As well individual, marital therapy and group counseling for out pt therapy. When TM hit I was forced out of my job of 20 years. I am home and well feel I'm just now getting to point that I accept changes. BUT!!! Lots to learn. Anyone have insight into Depression and TM? Not sure I'm tired or depressed! Thanks jackie Sent via BlackBerry by ATT ---End Message---
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