Re: [TMIC] Another unidentified becomes identified!
Hi Rita I'm a little north of you - in Mid Michigan. TM also struck me in the C4-C6 region. The cause is completely unknown - except for the stress I was under while down-sizing a bank branch. I was the type to never show an ounce of stress so I think I fizzled internally. My neuro didn't think it was stress related, however, other than that disagreement I think he is great. The cold weather is hard on me and causes a lot of pain. I'm looking forward to summer - I'm not comfortable unless it is at least 72 degrees. I often sit with my right hand wraped in a heating pad to keep it comfortable. I experience pain in my back, torso and entire left leg and foot. My movement impairments are on my right side. The last two snow storms missed us by a few miles - it was odd to watch it on the news yet look out the window to clear skies. Patti - Michigan [EMAIL PROTECTED] wrote: My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
Re: [TMIC] Another unidentified becomes identified!
Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland) Rita: welcome, welcome, Come right in and sit down at the (virtual) kitchen table! We are a very special buncha folks. You are in great company. I was paralyzed from about my bellybutton down. The area that was hit first was the backs of my thighs/buttocks. But the burning is on my left lower leg, about sock-top high, on the outside. I could not walk and though it seems insignificant when listening to some of the others, I was only in rehab about 3 weeks, released with an indwelling catheter, wheelchair, walker, etc... After a year or so becoming wise via this group, I made an appointment to see Dr. Kerr at Johns Hopkins in Baltimore. On that initial appointment, he came to the conclusion that my TM was actually demyelination caused by B-12 deficiency. So, no viruses, and that was why they never found any lesions or other markers in my spinal fluid. I have about 5 years. Someone said my body just doesn't feel right That about sums it up. Some lose hot/cold sensation, some cannot feel sharp, while they can feel a light touch. Some are unable to sweat in the affected areas. Those who have TM from a virus have a balancing act to maintain: don't boost the immune system so much that you activate it to attack nerves again!--but keep it intact and active so it protects you. Cora in Oklahoma
RE: [TMIC] Another unidentified becomes identified!
Rita: WELCOME!!! I personally have not been inflicted with TM, but my daughter has. She was 11 at the time and is now 14. She had her anniversary on 2/1 (3 years). I think she is probably the youngest person that we talk about on this site. I basically stay involved on this site b/c I want her and the rest of our family to know what her future might bring. She has been very lucky, she doesn't have any where near the issues that most on here do and I believe that is due to her young age. Don't feel embarrassed to ask ANY type of question on here. Everyone on here is very knowledgeable and will answer whatever questions you have. Again, Welcome! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, March 08, 2008 4:25 PM To: tmic-list Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
Re: [TMIC] Another unidentified becomes identified!
My son Cole has TM. He was 6 months old, it will be 7 yeasr for him on the 15 of march. Cole is paralyzed from the chest down. He has autonomic dysreflexia and osteoporosis all because of TM. I kinds stay in the background.If you have any questions please ask. Wendy - Original Message - From: Tracey L. Black [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Monday, March 10, 2008 10:19 AM Subject: RE: [TMIC] Another unidentified becomes identified! Rita: WELCOME!!! I personally have not been inflicted with TM, but my daughter has. She was 11 at the time and is now 14. She had her anniversary on 2/1 (3 years). I think she is probably the youngest person that we talk about on this site. I basically stay involved on this site b/c I want her and the rest of our family to know what her future might bring. She has been very lucky, she doesn't have any where near the issues that most on here do and I believe that is due to her young age. Don't feel embarrassed to ask ANY type of question on here. Everyone on here is very knowledgeable and will answer whatever questions you have. Again, Welcome! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, March 08, 2008 4:25 PM To: tmic-list Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
RE: [TMIC] Another unidentified becomes identified!
For a week before getting hit by TM I felt like I was fighting a cold or the flu. I told that to my doctor but way back then they didn't even have a clue about TM. I also had a blister on the palm of my hand that was some what infected. One of the doctors indicated he thought that could have been a pathway to the imune system going hay wire. So over the years I got to thinking see, a little hard work does hurt ya! Larry in Oklahoma who is waiting for spring to spring! Date: Mon, 10 Mar 2008 08:57:28 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [TMIC] Another unidentified becomes identified!Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that?There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)Rita: welcome, welcome, Come right in and sit down at the (virtual) kitchen table! We are a very special buncha folks. You are in great company.I was paralyzed from about my bellybutton down. The area that was hit first was the backs of my thighs/buttocks. But the burning is on my left lower leg, about sock-top high, on the outside. I could not walk and though it seems insignificant when listening to some of the others, I was only in rehab about 3 weeks, released with an indwelling catheter, wheelchair, walker, etc... After a year or so becoming wise via this group, I made an appointment to see Dr. Kerr at Johns Hopkins in Baltimore. On that initial appointment, he came to the conclusion that my TM was actually demyelination caused by B-12 deficiency. So, no viruses, and that was why they never found any lesions or other markers in my spinal fluid. I have about 5 years. Someone said my body just doesn't feel right That about sums it up. Some lose hot/cold sensation, some cannot feel sharp, while they can feel a light touch. Some are unable to sweat in the affected areas. Those who have TM from a virus have a balancing act to maintain: don't boost the immune system so much that you activate it to attack nerves again!--but keep it intact and active so it protects you.Cora in Oklahoma
Re: [TMIC] Another unidentified becomes identified!
Rita, I'm glad you got the BIG TIME snow and it missed us--this time--here in SW Michigan. Welcome to the TM club -many of your symptoms are familiar to me since my onset four years ago. About the virus subject you asked about. I was told that maybe a virus brought my TM but I sure never had any symptoms of a virus before TM. I was healthy and never took a sick day for years. I had several oral surgeries, though, in the year or so prior toTM and wonder if that messed up my immune system. I'll never know, I guess. It was good to have you write. Gary in Michigan - Original Message - From: [EMAIL PROTECTED] To: tmic-list tmic-list@eskimo.com Sent: Saturday, March 08, 2008 5:25 PM Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
Re: [TMIC] Another unidentified becomes identified!
Rita, I,too, have c4-c5 trouble caused by demyelination on the right side of my spinal cord following a summer viral episode. My symptoms came on slowly over two weeks. I have severe central pain from my shoulders down, left foot drop...I could go on. I'm so happy that I still get around with a cane, or on my hands and knees. good luck Frank
Re: [TMIC] Another unidentified becomes identified!
Hi Rita and welcome to the TM Family. This is a great place to be - to share information and let's not forget about sharing feelings, too. I think most of us suffer from the cold burning feelings, neuropathic pain, and I too have Lhermittes - not fun. My lesions are right about where yours are - C 4, 5 6. I am just celebrating (nice word) my 6th TM anniversary. My yard doesn't see as many flowers as it did years ago either. I get so excited every spring and always have great expectations that I'm going to have bright flowers everywhere - like I used to. I'm thinking positive this year that I will have lots of flowers. I hope you will be able to experience the joy and satisfaction of a bright sunny yard this year! Linda in Eagle, ID (springtime here!) - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: tmic-listmailto:tmic-list@eskimo.com Sent: Saturday, March 08, 2008 3:25 PM Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
[TMIC] Another unidentified becomes identified!
My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
Re: [TMIC] Another unidentified becomes identified!
Hello Rita, Glad to meet you even though none of us really like being here. :) You didn't mention if you are on any meds. Are you taking Neurontin/Gabapentin for the pain and to ease the burning hot/cold prickly sensations? Baclofen or Zanaflex or both are usually tried first for the muscle spasms? Do you take either of these? You asked about Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking.. I have found as have many others here on the TMIC and on the TM Forum that the weather has a tremendous amount to our residual effects of the TM. Cold weather makes my legs stiffen up right away when I am out and trying to walk. I don't walk much in the cold except from the car to a store or restaurant etc. My legs just don't want to move then much at all. We get lots of cold weather here in Calgary too but right now it is like spring, sunny and warm. So going for a walk with my walker is okay right now. Hot weather is better and the muscles seem much better then. I find though that the hot weather can be draining at times too. Glad you have been lurking and have now introduced yourself. Write to us about anything at all as most have experienced all your residual effects, some more or less. There is lots of good information found from everyone here. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: tmic-list tmic-list@eskimo.com Sent: Saturday, March 08, 2008 2:25 PM Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland) -- No virus found in this incoming message. Checked by AVG. Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM
Re: [TMIC] Another unidentified becomes identified!
Welcome Rita to this exclusive club. So sorry that the initiation is so high but we all are VERY special people. My TM wasn't happy with just one visit but decided it needed to make another just 3 days after my first release from the hospital. My 2nd anniversary was on Jan. 5 and Jan. 31 for the 2nd go around. The first go around only affected me from the bra line down leaving me paralyzed. I fought back and went home walking with a walker and a wheelchair for distances. On my 2nd TM visit, I was completely paralyzed from the neck down. I was affected at C4 - T1 and T10 - T12. After 7 PLEX in the hospital and 4 more as outpatient, plus 6 months of PT and OT, I can walk with a cane short distances, a walker for less than 100 ft. and use a scooter for longer outings. I live by myself, doing all the basics for myself but need help with heavy tasks, cleaning, laundry, yard work and such. I usually can only work or stand at max for 15 to 20 min. before my body completely gives out. I am always fatigued and constantly in pain especially the back. I spasms in my R leg and hands whenever I'm stressed, cold, or tired. I have a corset feeling occasionally and practically every morning or after sitting, or in one position too long, my R leg likes to draw up to my chest. It is very weird because my R leg is my weakest leg (I call it the Princess because she likes to work when she wants to) but I do have spotty heat/cold sensation but not pain. In my L leg (the Prince) which is my strongest, I have no heat/cold nor pain feeling. I feel pressure under both my feet and in both legs but can't tell what the pressure is. I also have the sunburn sensation right above both knees. My L hand/arm tingles all the time and I have difficulty moving my fingers. Thank God for my R hand/arm which came back with all the sensations but both hands and arms do not have the strength that they had before TM. A gallon of milk feels like I'm lifting a 50# bag. I am also VERY cold intolerant causing very hard and violent spasms especially in my R leg. My neuro also said it was very unusual because most TMers are heat intolerant. Well, I guess we are the most special of the special ones. I think that being cold or heat intolerant depends on where in the region and depth the leison is on the spine. Prayers and thoughts for you and yours, Candy K. - Original Message - From: [EMAIL PROTECTED] To: tmic-list tmic-list@eskimo.com Sent: Saturday, March 8, 2008 3:25:28 PM (GMT-0600) America/Chicago Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I
Re: [TMIC] Another unidentified becomes identified!
Welcome to TMIC Rita. One thing I retained from the time of onset is what you described about your arm feeling cold but not to the touch, except I get it in my feet. There is pain when I touch my left arm. One thing nobody has been able to explain is the pain on my scalp ears. It takes me forever to find a comfortable position to sleep. I am thankful tho because I couldn't bear to be touched at all for about a year. Even my clothes hurt. Sure glad that improved - I've got 10 grandkids to hug. In answer to one of your questions, my TM onset followed a bad bout of flu. Diane in Ottawa, Canada (10 in. of snow so far today another 15 in the forecast. Yikes!) - Original Message - From: [EMAIL PROTECTED] To: tmic-list tmic-list@eskimo.com Sent: Saturday, March 08, 2008 4:25 PM Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
RE: [TMIC] Another unidentified becomes identified!
Welcome aboard Rita! As you will hear over over again, glad you found us but sorry you had too. This is a great group and feel free to ask anyone anything. This is a great group and we all know how you feel. Once again, welcome aboard! Larry in Oklahoma who is so thankful the snow missed us! Date: Sat, 8 Mar 2008 16:25:28 -0500 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
Re: [TMIC] Another unidentified becomes identified!
Welcome Rita, Thanks for sharing your story. I had also had the worse flu of my life about a week before the TM symptoms started. I'm sure you will get lots of responses to your questions. Just let us know how how we can help. We are all here for each other! Jenna - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: tmic-list tmic-list@eskimo.com Sent: Saturday, March 8, 2008 4:25:28 PM Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland) Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
