Re: [TMIC] AntiDepressant
Debi,
Antidepressants like elevil, cymbalta, desyrel and others are often prescribed
for pain relieving properties so they were not lying to you when they gave it
to you. These often have great results.
Lynne
--- On Fri, 6/19/09, bradebi brad...@gmail.com wrote:
From: bradebi brad...@gmail.com
Subject: Re: [TMIC] AntiDepressant
To: tmic-list@eskimo.com, Akua a...@artfarm.com
Date: Friday, June 19, 2009, 5:51 PM
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#yiv1347754280 v\:* {
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Way to go Akua !...when I got my DX of TM..I was put on elavil every night
before bed. I was told it was for the chronic pain... But I came to find out it
is a antidepressant. And that was it...I didn't get PT at that time because my
disability was un-diagnosed for several years...my spastic paraplegia was
treated with neurontin..and I had a sleep study because of spasms in the
night..and the results came back with I twitch kick and spasm every 20
seconds..and I have a very low breathing and have to have oxygen at
night.but because I have TM the Doctor said he couldn't tell if I had sleep
apnea or it is the TM causing it.
I too have to dress like a dork and I like the fact of being in the chair I can
hide if I am wet.
When I moved up here..I discovered there isn't many places that are handicap
accessible (up in the high Sierras!!)..so I have had to fight to get
everything!..and I am fixin to join or help people here that are disabled..and
are house bound...So I agree Akua someone needs to teach me how to live like a
paraplegic.
Debi
--
Re: [TMIC] AntiDepressant
I found going on Cymbalta very helpful even though I've remained walking wounded the entire time. I found it lifted my mood without interfering with my ability to address my life adjustment issues like the older generation of antidepressants would have done. This disease hit me hard even though I suffered less than most on this list because I tend to be terminally serious to begin with (my saving grace is I married a very comical person). Now a 1 3/4 years after starting cymbalta I feel ready to go off with my doctors blessing and over the last month I have gradually reduced the 30 mg dose down to 15mg. As I began writing this letter I thought it a good Idea to encourage you to try a depression test or 2 (google it and you'll find ton's) Then realized it would be a good thing to take my own advice as a measure of my weaning success and am happy to say that even at half the lowest available commercial dose I am not back sliding mood wise. If you take a few and find you are not depressed then tell your doctor, I'm sure he or she will be reassured by your findings. For me going an antidepressant has been a hand up to getting better and it's okay to ask for help! I no longer need that hand up but I acknowledge that having TM as an impairment I may need a hand up again when life throws me another curve ball. But now I know how to ask for it and how to get off of it as well! recovering Alcoholics in AA call trying to get sober by yourself white knuckle sobriety we TM survivors have enough pain in our lives, we don't need to white knuckle our mood on top of everything else we have to face. Mindy the Artist On Jun 19, 2009, at 4:12 PM, Akua wrote: One thing the neuro told me in ICU was that an antidepressant was very important because of having to go thru all of the issues of being paralyzed and the changes I would have to go thru with my life. When the Drs said that to me, I wanted to slap them. I wanted a laptop, not a pill. I felt like they were setting me up for further disability. Of course I was unhappy. Fearful even, but I wasn't depressed. I never approached depression til last year when i came home to ramps i couldn't use, no transport and an inaccessible shower--- after waiting over a year for the house rehab by an agency that paid an alleged expert to oversee the construction. This is about externalities blocking me. Too bad the money I don't spend on drugs is not available to me to do the other things I need done: another hour or two of an aide, paratransit, help weeding in the yard, an accessible front ramp, a lift to my second floor... little things that would make a HUGE difference in the quality of my life. Or even--- dare I say--- fixing the condition: a standing machine, an exerciser, water therapy, stem cell therapy... instead of all or any of these things, instead of addressing causes or even teaching me how to live as a paraplegic --- all or any of these --- fix or assist with them before you deem me depressed and prescribe a pill. --
Re: [TMIC] AntiDepressant
Way to go Akua !...when I got my DX of TM..I was put on elavil every night before bed. I was told it was for the chronic pain... But I came to find out it is a antidepressant. And that was it...I didn't get PT at that time because my disability was un-diagnosed for several years...my spastic paraplegia was treated with neurontin..and I had a sleep study because of spasms in the night..and the results came back with I twitch kick and spasm every 20 seconds..and I have a very low breathing and have to have oxygen at night.but because I have TM the Doctor said he couldn't tell if I had sleep apnea or it is the TM causing it. I too have to dress like a dork and I like the fact of being in the chair I can hide if I am wet. When I moved up here..I discovered there isn't many places that are handicap accessible (up in the high Sierras!!)..so I have had to fight to get everything!..and I am fixin to join or help people here that are disabled. and are house bound...So I agree Akua someone needs to teach me how to live like a paraplegic. Debi From: Akua Date: 6/19/2009 1:13:28 PM To: tmic-list@eskimo.com Subject: [TMIC] AntiDepressant One thing the neuro told me in ICU was that an antidepressant was very important because of having to go thru all of the issues of being paralyzed and the changes I would have to go thru with my life. When the Drs said that to me, I wanted to slap them. I wanted a laptop, not a pill. I felt like they were setting me up for further disability. Of course I was unhappy. Fearful even, but I wasn't depressed. I never approached depression til last year when i came home to ramps i couldn't use, no transport and an inaccessible shower--- after waiting over a year for the house rehab by an agency that paid an alleged expert to oversee the construction. This is about externalities blocking me. Too bad the money I don't spend on drugs is not available to me to do the other things I need done: another hour or two of an aide, paratransit, help weeding in the yard, an accessible front ramp, a lift to my second floor... little things that would make a HUGE difference in the quality of my life. Or even--- dare I say--- fixing the condition: a standing machine, an exerciser, water therapy, stem cell therapy... instead of all or any of these things, instead of addressing causes or even teaching me how to live as a paraplegic --- all or any of these --- fix or assist with them before you deem me depressed and prescribe a pill. -- Spiral_notebook.jpg
Re: [TMIC] AntiDepressant
so I have had to fight to get everything!..and I am fixin to join or help people here that are disabled..and are house bound... YAY Debi!!! I am starting Corning ParaTransit Services--- a paratransit nonprofit. There is next to no public transportation here and no public paratransit. House Bound is not solely a function of disability -- it's about the LACK OF TOOLS. A friend argued with me when i suggested that not everyone who gets Meals on Wheels may need it. She's in New York City with cabs, subways, buses, dial a ride, and deliveries. Up here, NO ONE DELIVERS unless its Drugs, Chinese Food or Pizza No Groceries and no buses to get groceries! 20.8% of my county is Disabled. Perhaps that's why I'm here and afflicted with TM. To make a change! Dare to Struggle! Dare to Win! Akua --
Re: [TMIC] AntiDepressant
We don't have a Para Transit here..but there is a organization here called OPEN and they will drive someone somewhere..like for example...I have Skin Cancer..there isn't a place for me to go to here, so I have to go to UC Davis in Sacramento..it is about 100 miles away from me...and I don't have a car, we have city busses but they don't go there...so OPEN is going to take me there on June 30th for free...they have a fund raiser once a year to get the money they need..they also do other things for the poor old or disabled ---Original Message--- From: Akua Date: 6/19/2009 3:54:43 PM To: bradebi; tmic-list@eskimo.com Subject: Re: [TMIC] AntiDepressant so I have had to fight to get everything!..and I am fixin to join or help people here that are disabled..and are house bound... YAY Debi!!! I am starting Corning ParaTransit Services--- a paratransit nonprofit. There is next to no public transportation here and no public paratransit. House Bound is not solely a function of disability -- it's about the LACK OF TOOLS. A friend argued with me when i suggested that not everyone who gets Meals on Wheels may need it. She's in New York City with cabs, subways, buses, dial a ride, and deliveries. Up here, NO ONE DELIVERS unless its Drugs, Chinese Food or Pizza No Groceries and no buses to get groceries! 20.8% of my county is Disabled. Perhaps that's why I'm here and afflicted with TM. To make a change! Dare to Struggle! Dare to Win! Akua --Spiral_notebook.jpg
