Re: [TMIC] Hey everybody,
Glad to hear from you. Hope you keep us up with how you are doing and good luck trying to improve your situation. Janice From: Robert Pall Sent: Sunday, January 25, 2015 3:13 PM To: jannic...@gmail.com ; malugss...@gmail.com Cc: skle...@cox.net ; mic...@hotmail.com ; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi everyone. It has been 17+ years for me and at the beginning you were my only support. As for me things have been lousy for almost 2 years (especially lousyit is always plain lousy) coincidentally this is the period I have had the Baclofen Pump. I am not saying that it has not helped my legs (banding) somewhathowever either the pump or the combo of it with m7y other meds have been making me feel lousy. I am lowering my dosage from the pump to see if that helps and if so I will have the pump removed and go on as I have for the previous 15 years. I am the support group leader for NJ and we try to get together 3 times a year. It is nice to see my old friends online again...I am either to old or to computer illiterate to use facebook. I am really glad the group here is getting together...I have missed it! Rob in NJ -Original Message- From: Janice Nichols jannic...@gmail.com To: Dalton Garis malugss...@gmail.com Cc: Susan Kleinz skle...@cox.net; amy shultz mic...@hotmail.com; Tmic tmic-list@eskimo.com Sent: Sun, Jan 25, 2015 3:21 pm Subject: Re: [TMIC] Hey everybody, Dalton, maybe TM later on in life? Janice From: Dalton Garis Sent: Friday, January 23, 2015 1:51 PM To: Janice Nichols Cc: Susan Kleinz ; amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Incredible story! I still remember Love Canal and all that. Behind our house and across the street was the rail yard and a great big pile of coal that was used for the trains, but I used it for play. It was great fun climbing up to the top of the pile then jump off as far as I could go, hit near the bottom of the pile and slide around in that slippery coal. My mother would throw me in the bath and there would be a black ring around it about 8” deep. Trouble is, that there is a lot of mercury in coal, which we also used to heat our home. We had a large room in the cellar with a window for trucks to send coal into it down a chute. I think all that play in the coal especially exposed me to too much mercury, and that it gave me all sorts of problems growing up, including reading difficulties, concentration, sleep, growth difficulties maybe, and now TM. d. Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 23, 2015, at 14:03, Janice Nichols jannic...@gmail.com wrote: WOW!!What a story. So glad you are doing so much better, but how long will you need to keep taking the treatments?Surely you are about through. So sorry you have had to go through this, but you were so smart to come up with this testing. Keep up with the good improvement. Janice From: Susan Kleinz Sent: Friday, January 23, 2015 9:30 AM To: Janice Nichols Cc: amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Hello ™ friends: This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5 years ago when I relapsed and spent my time in bed or the lazy boy outside (tacky, I know). After trying everything I could find to help me get better (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) I decided to have a food allergy test and toxic heavy metals test. I was only allergic to bananas, yogurt and whey. No big deal. However my heavy metals test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from MRI'S) After my first set of chelation, which is an IV solution that pulls the metals from your body, I felt bizarre results. I could do so much more! I can walk so much better, no longer in bed, worked for 7 months straight in my father's store, and basically feel like I have so much of my life back. I am now on my 31st treatment. Most people only needs 6. I have a heavy body burden of toxic metals. Our family home was built on the Motorola dumping ground. 20 years of toxic wastes dumped into the ground and into our water. Our whole neighborhood is sick with cancer, immune issues, ms…etc.) It is expensive to do this treatment… $155 per. My husband has wiped out our savings to help me get better. I feel that the reason I contracted ™ is because of this poisoning. I used to lay in bed and feel I was being poisoned. Every day I felt like this. I even dreamed that my husband was poisoning me… I passed these metals on to two of my three children who were able to detox with 6 treatments only. This treatment may be available soon under insurance, but mine does not cover NMD -Naturepaths (sp?). I even feel and look more like myself! I am always thinking about all of you. Susan On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote
Re: [TMIC] Hey everybody,
Dalton, maybe TM later on in life? Janice From: Dalton Garis Sent: Friday, January 23, 2015 1:51 PM To: Janice Nichols Cc: Susan Kleinz ; amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Incredible story! I still remember Love Canal and all that. Behind our house and across the street was the rail yard and a great big pile of coal that was used for the trains, but I used it for play. It was great fun climbing up to the top of the pile then jump off as far as I could go, hit near the bottom of the pile and slide around in that slippery coal. My mother would throw me in the bath and there would be a black ring around it about 8” deep. Trouble is, that there is a lot of mercury in coal, which we also used to heat our home. We had a large room in the cellar with a window for trucks to send coal into it down a chute. I think all that play in the coal especially exposed me to too much mercury, and that it gave me all sorts of problems growing up, including reading difficulties, concentration, sleep, growth difficulties maybe, and now TM. d. Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 23, 2015, at 14:03, Janice Nichols jannic...@gmail.com wrote: WOW!!What a story. So glad you are doing so much better, but how long will you need to keep taking the treatments?Surely you are about through. So sorry you have had to go through this, but you were so smart to come up with this testing. Keep up with the good improvement. Janice From: Susan Kleinz Sent: Friday, January 23, 2015 9:30 AM To: Janice Nichols Cc: amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Hello ™ friends: This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5 years ago when I relapsed and spent my time in bed or the lazy boy outside (tacky, I know). After trying everything I could find to help me get better (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) I decided to have a food allergy test and toxic heavy metals test. I was only allergic to bananas, yogurt and whey. No big deal. However my heavy metals test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from MRI'S) After my first set of chelation, which is an IV solution that pulls the metals from your body, I felt bizarre results. I could do so much more! I can walk so much better, no longer in bed, worked for 7 months straight in my father's store, and basically feel like I have so much of my life back. I am now on my 31st treatment. Most people only needs 6. I have a heavy body burden of toxic metals. Our family home was built on the Motorola dumping ground. 20 years of toxic wastes dumped into the ground and into our water. Our whole neighborhood is sick with cancer, immune issues, ms…etc.) It is expensive to do this treatment… $155 per. My husband has wiped out our savings to help me get better. I feel that the reason I contracted ™ is because of this poisoning. I used to lay in bed and feel I was being poisoned. Every day I felt like this. I even dreamed that my husband was poisoning me… I passed these metals on to two of my three children who were able to detox with 6 treatments only. This treatment may be available soon under insurance, but mine does not cover NMD -Naturepaths (sp?). I even feel and look more like myself! I am always thinking about all of you. Susan On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote: Amy Glad to hear you are doing much better. Is what you had similar to what I had in the hospital where I had a UTI infection, but, of course, I didn’t feel it. Then it went systemic and I nearly died too.No fun. Janice From: amy shultz Sent: Thursday, January 22, 2015 5:34 AM To: Tmic Subject: Fwd: [TMIC] Hey everybody, I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer up till Oct 31st when I almost died. The doctors said my body took a big hit. I had severe sepsis and septic shock. Since my hair is falling out really bad and nails are splitting and peeling and breaking. Real fragile. I even take 6000mcg of Biotin a day and have for a couple years. So IDK what's going on. Amy Shultz Ohio Sent from my Verizon Wireless 4G LTE smartphone Original message From: suerdlagpu...@gmail.com Date:01/21/2015 9:47 AM (GMT-05:00) To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21
Re: [TMIC] Hey everybody,
Hello Susan Thank you for sharing your interesting and really quite shocking story. It would be good to think this could not happen in these more enlightened times but the cynic in me doubts this, especially with building land at such a premium here in the UK. I'm so pleased you have made such an improvement and all down to your own persistence! Thank goodness you had those tests, for the sake of your children also. Very best wishes for the future. Iris UK Sent from my iPad On 23 Jan 2015, at 15:30, Susan Kleinz skle...@cox.net wrote: Hello ™ friends: This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5 years ago when I relapsed and spent my time in bed or the lazy boy outside (tacky, I know). After trying everything I could find to help me get better (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) I decided to have a food allergy test and toxic heavy metals test. I was only allergic to bananas, yogurt and whey. No big deal. However my heavy metals test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from MRI'S) After my first set of chelation, which is an IV solution that pulls the metals from your body, I felt bizarre results. I could do so much more! I can walk so much better, no longer in bed, worked for 7 months straight in my father's store, and basically feel like I have so much of my life back. I am now on my 31st treatment. Most people only needs 6. I have a heavy body burden of toxic metals. Our family home was built on the Motorola dumping ground. 20 years of toxic wastes dumped into the ground and into our water. Our whole neighborhood is sick with cancer, immune issues, ms…etc.) It is expensive to do this treatment… $155 per. My husband has wiped out our savings to help me get better. I feel that the reason I contracted ™ is because of this poisoning. I used to lay in bed and feel I was being poisoned. Every day I felt like this. I even dreamed that my husband was poisoning me… I passed these metals on to two of my three children who were able to detox with 6 treatments only. This treatment may be available soon under insurance, but mine does not cover NMD -Naturepaths (sp?). I even feel and look more like myself! I am always thinking about all of you. Susan On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote: Amy Glad to hear you are doing much better. Is what you had similar to what I had in the hospital where I had a UTI infection, but, of course, I didn’t feel it. Then it went systemic and I nearly died too.No fun. Janice From: amy shultz Sent: Thursday, January 22, 2015 5:34 AM To: Tmic Subject: Fwd: [TMIC] Hey everybody, I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer up till Oct 31st when I almost died. The doctors said my body took a big hit. I had severe sepsis and septic shock. Since my hair is falling out really bad and nails are splitting and peeling and breaking. Real fragile. I even take 6000mcg of Biotin a day and have for a couple years. So IDK what's going on. Amy Shultz Ohio Sent from my Verizon Wireless 4G LTE smartphone Original message From: suerdlagpu...@gmail.com Date:01/21/2015 9:47 AM (GMT-05:00) To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went to ER walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed nothing new had happened and I recovered fine. My doctors and I were stumped. In December 2014, I woke up one morning feeling my TM normal with the start of a cold. I went thru my routine of meds, reading, and coffee. I had difficulty standing up, my walking was bad and felt drunk when I started for another cup of coffee. I again wondered if I was having a TM relapse. I sat and compared the two relapses. I didn't want to go thru another 36 hour observation in ER. I felt and walked and talked as if drunk both times. I had the start of a cold both times. I had taken cough syrup both times, but the bottle was almost empty so it couldn't be that. I didn't have a relapse
Re: [TMIC] Hey everybody,
WOW!!What a story. So glad you are doing so much better, but how long will you need to keep taking the treatments?Surely you are about through. So sorry you have had to go through this, but you were so smart to come up with this testing. Keep up with the good improvement. Janice From: Susan Kleinz Sent: Friday, January 23, 2015 9:30 AM To: Janice Nichols Cc: amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Hello ™ friends: This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5 years ago when I relapsed and spent my time in bed or the lazy boy outside (tacky, I know). After trying everything I could find to help me get better (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) I decided to have a food allergy test and toxic heavy metals test. I was only allergic to bananas, yogurt and whey. No big deal. However my heavy metals test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from MRI'S) After my first set of chelation, which is an IV solution that pulls the metals from your body, I felt bizarre results. I could do so much more! I can walk so much better, no longer in bed, worked for 7 months straight in my father's store, and basically feel like I have so much of my life back. I am now on my 31st treatment. Most people only needs 6. I have a heavy body burden of toxic metals. Our family home was built on the Motorola dumping ground. 20 years of toxic wastes dumped into the ground and into our water. Our whole neighborhood is sick with cancer, immune issues, ms…etc.) It is expensive to do this treatment… $155 per. My husband has wiped out our savings to help me get better. I feel that the reason I contracted ™ is because of this poisoning. I used to lay in bed and feel I was being poisoned. Every day I felt like this. I even dreamed that my husband was poisoning me… I passed these metals on to two of my three children who were able to detox with 6 treatments only. This treatment may be available soon under insurance, but mine does not cover NMD -Naturepaths (sp?). I even feel and look more like myself! I am always thinking about all of you. Susan On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote: Amy Glad to hear you are doing much better. Is what you had similar to what I had in the hospital where I had a UTI infection, but, of course, I didn’t feel it. Then it went systemic and I nearly died too.No fun. Janice From: amy shultz Sent: Thursday, January 22, 2015 5:34 AM To: Tmic Subject: Fwd: [TMIC] Hey everybody, I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer up till Oct 31st when I almost died. The doctors said my body took a big hit. I had severe sepsis and septic shock. Since my hair is falling out really bad and nails are splitting and peeling and breaking. Real fragile. I even take 6000mcg of Biotin a day and have for a couple years. So IDK what's going on. Amy Shultz Ohio Sent from my Verizon Wireless 4G LTE smartphone Original message From: suerdlagpu...@gmail.com Date:01/21/2015 9:47 AM (GMT-05:00) To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went to ER walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed nothing new had happened and I recovered fine. My doctors and I were stumped. In December 2014, I woke up one morning feeling my TM normal with the start of a cold. I went thru my routine of meds, reading, and coffee. I had difficulty standing up, my walking was bad and felt drunk when I started for another cup of coffee. I again wondered if I was having a TM relapse. I sat and compared the two relapses. I didn't want to go thru another 36 hour observation in ER. I felt and walked and talked as if drunk both times. I had the start of a cold both times. I had taken cough syrup both times, but the bottle was almost empty so it couldn't be that. I didn't have a relapse at all. I had a reaction to taking a full dose of cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty stomach. What
Re: [TMIC] Hey everybody,
Incredible story! I still remember Love Canal and all that. Behind our house and across the street was the rail yard and a great big pile of coal that was used for the trains, but I used it for play. It was great fun climbing up to the top of the pile then jump off as far as I could go, hit near the bottom of the pile and slide around in that slippery coal. My mother would throw me in the bath and there would be a black ring around it about 8” deep. Trouble is, that there is a lot of mercury in coal, which we also used to heat our home. We had a large room in the cellar with a window for trucks to send coal into it down a chute. I think all that play in the coal especially exposed me to too much mercury, and that it gave me all sorts of problems growing up, including reading difficulties, concentration, sleep, growth difficulties maybe, and now TM. d. Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 23, 2015, at 14:03, Janice Nichols jannic...@gmail.com wrote: WOW!!What a story. So glad you are doing so much better, but how long will you need to keep taking the treatments?Surely you are about through. So sorry you have had to go through this, but you were so smart to come up with this testing. Keep up with the good improvement. Janice From: Susan Kleinz Sent: Friday, January 23, 2015 9:30 AM To: Janice Nichols Cc: amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Hello ™ friends: This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5 years ago when I relapsed and spent my time in bed or the lazy boy outside (tacky, I know). After trying everything I could find to help me get better (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) I decided to have a food allergy test and toxic heavy metals test. I was only allergic to bananas, yogurt and whey. No big deal. However my heavy metals test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from MRI'S) After my first set of chelation, which is an IV solution that pulls the metals from your body, I felt bizarre results. I could do so much more! I can walk so much better, no longer in bed, worked for 7 months straight in my father's store, and basically feel like I have so much of my life back. I am now on my 31st treatment. Most people only needs 6. I have a heavy body burden of toxic metals. Our family home was built on the Motorola dumping ground. 20 years of toxic wastes dumped into the ground and into our water. Our whole neighborhood is sick with cancer, immune issues, ms…etc.) It is expensive to do this treatment… $155 per. My husband has wiped out our savings to help me get better. I feel that the reason I contracted ™ is because of this poisoning. I used to lay in bed and feel I was being poisoned. Every day I felt like this. I even dreamed that my husband was poisoning me… I passed these metals on to two of my three children who were able to detox with 6 treatments only. This treatment may be available soon under insurance, but mine does not cover NMD -Naturepaths (sp?). I even feel and look more like myself! I am always thinking about all of you. Susan On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote: Amy Glad to hear you are doing much better. Is what you had similar to what I had in the hospital where I had a UTI infection, but, of course, I didn’t feel it. Then it went systemic and I nearly died too.No fun. Janice From: amy shultz Sent: Thursday, January 22, 2015 5:34 AM To: Tmic Subject: Fwd: [TMIC] Hey everybody, I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer up till Oct 31st when I almost died. The doctors said my body took a big hit. I had severe sepsis and septic shock. Since my hair is falling out really bad and nails are splitting and peeling and breaking. Real fragile. I even take 6000mcg of Biotin a day and have for a couple years. So IDK what's going on. Amy Shultz Ohio Sent from my Verizon Wireless 4G LTE smartphone Original message From: suerdlagpu...@gmail.com Date:01/21/2015 9:47 AM (GMT-05:00) To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have
Fwd: [TMIC] Hey everybody,
I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer up till Oct 31st when I almost died. The doctors said my body took a big hit. I had severe sepsis and septic shock. Since my hair is falling out really bad and nails are splitting and peeling and breaking. Real fragile. I even take 6000mcg of Biotin a day and have for a couple years. So IDK what's going on. Amy Shultz Ohio Sent from my Verizon Wireless 4G LTE smartphone Original message From: suerdlagpu...@gmail.com Date:01/21/2015 9:47 AM (GMT-05:00) To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went to ER walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed nothing new had happened and I recovered fine. My doctors and I were stumped. In December 2014, I woke up one morning feeling my TM normal with the start of a cold. I went thru my routine of meds, reading, and coffee. I had difficulty standing up, my walking was bad and felt drunk when I started for another cup of coffee. I again wondered if I was having a TM relapse. I sat and compared the two relapses. I didn't want to go thru another 36 hour observation in ER. I felt and walked and talked as if drunk both times. I had the start of a cold both times. I had taken cough syrup both times, but the bottle was almost empty so it couldn't be that. I didn't have a relapse at all. I had a reaction to taking a full dose of cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty stomach. What a relief! I saw my PCP yesterday for my RX renewals and I think she was as relieved as I was. That means no TM relapses in 11 years. Praise the Lord! Patti - Michigan. On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote: Me too. On a trip but will be responding. ! So glad someone is still out there in our tm group Sent from my iPhone On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote: I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get. I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments. It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone
Re: Fwd: [TMIC] Hey everybody,
Amy Glad to hear you are doing much better. Is what you had similar to what I had in the hospital where I had a UTI infection, but, of course, I didn’t feel it. Then it went systemic and I nearly died too.No fun. Janice From: amy shultz Sent: Thursday, January 22, 2015 5:34 AM To: Tmic Subject: Fwd: [TMIC] Hey everybody, I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer up till Oct 31st when I almost died. The doctors said my body took a big hit. I had severe sepsis and septic shock. Since my hair is falling out really bad and nails are splitting and peeling and breaking. Real fragile. I even take 6000mcg of Biotin a day and have for a couple years. So IDK what's going on. Amy Shultz Ohio Sent from my Verizon Wireless 4G LTE smartphone Original message From: suerdlagpu...@gmail.com Date:01/21/2015 9:47 AM (GMT-05:00) To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went to ER walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed nothing new had happened and I recovered fine. My doctors and I were stumped. In December 2014, I woke up one morning feeling my TM normal with the start of a cold. I went thru my routine of meds, reading, and coffee. I had difficulty standing up, my walking was bad and felt drunk when I started for another cup of coffee. I again wondered if I was having a TM relapse. I sat and compared the two relapses. I didn't want to go thru another 36 hour observation in ER. I felt and walked and talked as if drunk both times. I had the start of a cold both times. I had taken cough syrup both times, but the bottle was almost empty so it couldn't be that. I didn't have a relapse at all. I had a reaction to taking a full dose of cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty stomach. What a relief! I saw my PCP yesterday for my RX renewals and I think she was as relieved as I was. That means no TM relapses in 11 years. Praise the Lord! Patti - Michigan. On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote: Me too. On a trip but will be responding. ! So glad someone is still out there in our tm group Sent from my iPhone On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote: I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get. I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments. It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins
Re: [TMIC] Hey everybody,
Patti - you really had an eye opener!Sometimes it only takes 1 unsuspected drug to do the trick.I have had similar feelings - just chalk it up to good old TM!!! Janice -Original Message- From: Pat Sent: Wednesday, January 21, 2015 8:23 AM To: Susan Kleinz Cc: malugss...@gmail.com ; Janice Nichols ; Nikki Macleod ; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went to ER walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed nothing new had happened and I recovered fine. My doctors and I were stumped. In December 2014, I woke up one morning feeling my TM normal with the start of a cold. I went thru my routine of meds, reading, and coffee. I had difficulty standing up, my walking was bad and felt drunk when I started for another cup of coffee. I again wondered if I was having a TM relapse. I sat and compared the two relapses. I didn't want to go thru another 36 hour observation in ER. I felt and walked and talked as if drunk both times. I had the start of a cold both times. I had taken cough syrup both times, but the bottle was almost empty so it couldn't be that. I didn't have a relapse at all. I had a reaction to taking a full dose of cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty stomach. What a relief! I saw my PCP yesterday for my RX renewals and I think she was as relieved as I was. That means no TM relapses in 11 years. Praise the Lord! Patti - Michigan. On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote: Me too. On a trip but will be responding. ! So glad someone is still out there in our tm group Sent from my iPhone On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote: I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get. I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments. It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone else experienced anything like this? Nikki, Durham, UK. Sent from my iPad
Re: [TMIC] Hey everybody,
Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went to ER walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed nothing new had happened and I recovered fine. My doctors and I were stumped. In December 2014, I woke up one morning feeling my TM normal with the start of a cold. I went thru my routine of meds, reading, and coffee. I had difficulty standing up, my walking was bad and felt drunk when I started for another cup of coffee. I again wondered if I was having a TM relapse. I sat and compared the two relapses. I didn't want to go thru another 36 hour observation in ER. I felt and walked and talked as if drunk both times. I had the start of a cold both times. I had taken cough syrup both times, but the bottle was almost empty so it couldn't be that. I didn't have a relapse at all. I had a reaction to taking a full dose of cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty stomach. What a relief! I saw my PCP yesterday for my RX renewals and I think she was as relieved as I was. That means no TM relapses in 11 years. Praise the Lord! Patti - Michigan. On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote: Me too. On a trip but will be responding. ! So glad someone is still out there in our tm group Sent from my iPhone On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote: I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get. I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments. It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone else experienced anything like this? Nikki, Durham, UK. Sent from my iPad
Re: [TMIC] Hey everybody,
I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went to ER walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed nothing new had happened and I recovered fine. My doctors and I were stumped. In December 2014, I woke up one morning feeling my TM normal with the start of a cold. I went thru my routine of meds, reading, and coffee. I had difficulty standing up, my walking was bad and felt drunk when I started for another cup of coffee. I again wondered if I was having a TM relapse. I sat and compared the two relapses. I didn't want to go thru another 36 hour observation in ER. I felt and walked and talked as if drunk both times. I had the start of a cold both times. I had taken cough syrup both times, but the bottle was almost empty so it couldn't be that. I didn't have a relapse at all. I had a reaction to taking a full dose of cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an empty stomach. What a relief! I saw my PCP yesterday for my RX renewals and I think she was as relieved as I was. That means no TM relapses in 11 years. Praise the Lord! Patti - Michigan. On Jan 18, 2015, at 1:12 PM, Susan Kleinz skle...@cox.net wrote: Me too. On a trip but will be responding. ! So glad someone is still out there in our tm group Sent from my iPhone On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote: I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get. I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments. It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone else experienced anything like this? Nikki, Durham, UK. Sent from my iPad
Re: [TMIC] Hey everybody,
Me too. On a trip but will be responding. ! So glad someone is still out there in our tm group Sent from my iPhone On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote: I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get. I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments. It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone else experienced anything like this? Nikki, Durham, UK. Sent from my iPad
Re: [TMIC] Hey everybody,
It was good to see your email, Nikki. Almost like the olden days when I may have 5, 10, 15 or mail messages on email daily. It was good to hear from Janice and Dalton, also. It was over 10 years ago that I was hit with TM. Fortunately I do not have some of the worst lingering symptoms. I am glad that you are doing much better than in the past, Nikki. Again, I was so glad to hear from you. Gary Niles, MI - Original Message - From: Nikki Macleod nmacleo...@yahoo.co.uk To: tmic-list@eskimo.com Sent: Saturday, January 17, 2015 7:37 AM Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone else experienced anything like this? Nikki, Durham, UK. Sent from my iPad
[TMIC] Hey everybody,
Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone else experienced anything like this? Nikki, Durham, UK. Sent from my iPad
Re: [TMIC] Hey everybody,
Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc.I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get.I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments.It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone else experienced anything like this? Nikki, Durham, UK. Sent from my iPad
Re: [TMIC] Hey everybody,
I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a hile - and then to the usual, but I will take what I can get. I really wish doctor's would not give a time limit on improvement - we all go at different paces with different problems to deal with. You sound great and I am really proud of all your accomplishments. It couldn't have been easy for you. Keep in touch. Janice Missouri -Original Message- From: Nikki Macleod Sent: Saturday, January 17, 2015 6:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Hey everybody, Hi everyone, It's been a while since I've been in here and I was wondering how everyone was doing. Any improvement. The last time I posted I was really messed up mentally. Suicidal and really low, a horrible time in my life. My life has changed dramatically since then, me and my fiancé of nearly 10 years broke up and I never though I'd say this but it was for the best. I am much happier. I live in my little bungalow with my dog Finlay who I've had since before TM and have 24/7 care. My depression is much better, it is now stable and under control. I am getting out and about much more especially since I recently got my new powered wheelchair. I am starting to not only love life again but love myself again. I also have more positive news, I have recently been experiencing some weird sensations in my left hand and some of my fingers which I can only describe as what feels like pins and needles. I figured this is a good thing considering it is numb until I get these episodes. I've also had episodes of feeling as though the soles of feet are burning like they are on fire. TM struck me on 15/02/2011. Doctors told me after a certain period of time that would be the end of the improvement. I believe that you may continue to improve way after that (I have). Has anyone else experienced anything like this? Nikki, Durham, UK. Sent from my iPad