Re: [TMIC] Mr. Graves info?
Cora, I would say you are definatley a much needed and loved part of the group that has a demyelinating problem just like the rest of us no matter what the cause. Alan - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Sunday, May 07, 2006 9:00 AM Subject: Re: [TMIC] Mr. Graves info? Rosalie: The neurologist gave me a tm diagnosis, but also noted that I had a B-12 deficiency. When I went to the 2004 Symposium, Dr Kerr noted that a differential diagnosis (some other ailment that might look like tm that might be present, and if found to be true, would supercede the tm diagnosis) is B-12 deficiency. When I heard that, I asked him specifically about it--subsequently became his patient, went to him, and he confirmed that B-12 deficiency caused my spinal cord demyelination, at L5/S1. A classic case, he said. Doesn't change the fact that the damage I have causes the exact same symptoms, so I live with it like the rest of you- and I hang around this bunch because you all are the best thing since sliced bread! I love you all! Cora Of course so far I have no diagnosis. First thought it was Guilliane-Barre Syndrome, then TM, but my neurologist says it was a spinal cord stroke and is quite sure about it. In any case I have most of the symptons that most of you have but fortunately not alot of pain. Some nerve pain that is like sciatic pain but only in the evening. Also, the more I lie around the worse I feel. If I spend more time walking (with a walker of course and using mostly hands) then I dont get as stiff and ill feeling. I cant stand on my own yet but am working on it and thats because the muscles in my butt and my hamstrings are not working, Thanks, Rosalie
Re: [TMIC] Mr. Graves info?
Rosalie: The neurologist gave me a tm diagnosis, but also noted that I had a B-12 deficiency. When I went to the 2004 Symposium, Dr Kerr noted that a differential diagnosis (some other ailment that might look like tm that might be present, and if found to be true, would supercede the tm diagnosis) is B-12 deficiency. When I heard that, I asked him specifically about it--subsequently became his patient, went to him, and he confirmed that B-12 deficiency caused my spinal cord demyelination, at L5/S1. A classic case, he said. Doesn't change the fact that the damage I have causes the exact same symptoms, so I live with it like the rest of you- and I hang around this bunch because you all are the best thing since sliced bread! I love you all! Cora Of course so far I have no diagnosis. First thought it was Guilliane-Barre Syndrome, then TM, but my neurologist says it was a spinal cord stroke and is quite sure about it. In any case I have most of the symptons that most of you have but fortunately not alot of pain. Some nerve pain that is like sciatic pain but only in the evening. Also, the more I lie around the worse I feel. If I spend more time walking (with a walker of course and using mostly hands) then I dont get as stiff and ill feeling. I cant stand on my own yet but am working on it and thats because the muscles in my butt and my hamstrings are not working, Thanks, Rosalie
Re: [TMIC] Mr. Graves info?
actually B12 can help us anyway, it helps the nerves and nerve damge I was told...so I take a good multi with a fair amt of b12 in it...[EMAIL PROTECTED] wrote: Rosalie: The neurologist gave me a tm diagnosis, but also noted that Ihad a B-12 deficiency. When I went to the 2004 Symposium, Dr Kerr notedthat a differential diagnosis (some other ailment that might look like tmthat might be present, and if found to be true, would supercede the tmdiagnosis) is B-12 deficiency. When I heard that, I asked himspecifically about it--subsequently became his patient, went to him, andhe confirmed that B-12 deficiency caused my spinal cord demyelination, atL5/S1. A classic case, he said. Doesn't change the fact that the damageI have causes the exact same symptoms, so I live with it like the rest ofyou- and I hang around this bunch because you all are the best thingsince sliced bread! I love you all!Cora Of course so far I have no diagnosis. First thought it was Guilliane-Barre Syndrome, then TM, but my neurologist says it was a spinal cord stroke and is quite sure about it.In any case I have most of the symptons that most of you have but fortunately not alot of pain. Some nerve pain that is like sciatic pain but only in the evening.Also, the more I lie around the worse I feel. If I spend more time walking (with a walker of course and using mostly hands) then I dont get as stiff and ill feeling. I cant stand on my own yet but am working on it and thats because the muscles in my butt and my hamstrings are not working,Thanks, RosalieKrissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Blab-away for as little as 1ยข/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice.
[TMIC] Mr. Graves info?
Can anyone give me an address to contact this Mr. Graves that you are all talking about. I would like to know what the Miami project is. I stay in southern Florida for the winter and am thinking of going to the Cleveland Clinic which is near Miami. Maybe they can tell me what I have. Of course so far I have no diagnosis. First thought it was Guilliane-Barre Syndrome, then TM, but my neurologist says it was a spinal cord stroke and is quite sure about it. In any case I have most of the symptons that most of you have but fortunately not alot of pain. Some nerve pain that is like sciatic pain but only in the evening. Also, the more I lie around the worse I feel. If I spend more time walking (with a walker of course and using mostly hands) then I dont get as stiff and ill feeling. I cant stand on my own yet but am working on it and thats because the muscles in my butt and my hamstrings are not working, Thanks, Rosalie
