Re: [TMIC] Neurologist visit
typo - should have typed took Alton On Sep 8, 2010, at 6:53 PM, Barbara Alma wrote: Alton, I'm curious why you take gabapentin, yet you find it ineffective. Perhaps you need a stronger dosage? Or another drug that may help with symptoms? Just wondering, as I personally wouldn't take something that doesn't work since there are others to try. Hugs, Barbara A in Auburn CA -Original Message- From: Alton Ryder a-ry...@comcast.net To: Rev. Craig Crossman revcross...@gmail.com Cc: tmic-list@eskimo.com Sent: Wed, Sep 8, 2010 4:20 pm Subject: Re: [TMIC] Neurologist visit I take gabapentin, but it was ineffective. Alton On Sep 8, 2010, at 3:29 PM, Rev. Craig Crossman wrote: he drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. =
[TMIC] Neurologist visit
Finally had my first appointment with new neurologist. The good news (according to her) is that while my TM will be with me the rest of my life, it will not get progressively worse because she says TM is not a degenerative disease. The TM can keep you from being as active as you should be so over time many people with TM lose a lot of strength and function. That has happened to me. The bad news is that I do have a type of neuropathy which will get progressively worse and there is really nothing to be done with it except control the symptoms. Bottom line according to her? I will probably not live until I am 90, and as time goes by I will have less and less neural control over my extremities. So my neurologist has started me on some meds she says I should have been on all along but I should also stay on the ones I am on currently. The mixture of all these different drugs might be interesting. Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. The drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. BTW, she said she was already aware of, and read up on, TM. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] Neurologist visit
I have been taking gabapentin 400mg for the last 2 years 3 times a day. some people say that they can take 1 and it knocks them out. i have never experienced that. perhaps because of the extreem pain. I also take hydrocodone,baclofen, and lorazepam. From: Rev. Craig Crossman revcross...@gmail.com To: tmic-list@eskimo.com Sent: Wed, September 8, 2010 4:29:01 PM Subject: [TMIC] Neurologist visit Finally had my first appointment with new neurologist. The good news (according to her) is that while my TM will be with me the rest of my life, it will not get progressively worse because she says TM is not a degenerative disease. The TM can keep you from being as active as you should be so over time many people with TM lose a lot of strength and function. That has happened to me. The bad news is that I do have a type of neuropathy which will get progressively worse and there is really nothing to be done with it except control the symptoms. Bottom line according to her? I will probably not live until I am 90, and as time goes by I will have less and less neural control over my extremities. So my neurologist has started me on some meds she says I should have been on all along but I should also stay on the ones I am on currently. The mixture of all these different drugs might be interesting. Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. The drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. BTW, she said she was already aware of, and read up on, TM. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] Neurologist visit
I take gabapentin, but it was ineffective. Alton On Sep 8, 2010, at 3:29 PM, Rev. Craig Crossman wrote: he drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it.
[TMIC] Neurologist visit
So glad you found a good neurologist!! **Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. **P.S. Is there any way we could know which Colby, KS?
[TMIC] Neurologist visit
EEK! Part of message was deleted by the computer or maybe the typist Question should have read: P.S.Is there any way we could know which Sunday to show up at the Baptist Church in Colby, KS So glad you found a good neurologist!! **Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. **P.S. Is there any way we could know which Colby, KS?
Re: [TMIC] Neurologist visit
Alton, I'm curious why you take gabapentin, yet you find it ineffective. Perhaps you need a stronger dosage? Or another drug that may help with symptoms? Just wondering, as I personally wouldn't take something that doesn't work since there are others to try. Hugs, Barbara A in Auburn CA -Original Message- From: Alton Ryder a-ry...@comcast.net To: Rev. Craig Crossman revcross...@gmail.com Cc: tmic-list@eskimo.com Sent: Wed, Sep 8, 2010 4:20 pm Subject: Re: [TMIC] Neurologist visit I take gabapentin, but it was ineffective. Alton On Sep 8, 2010, at 3:29 PM, Rev. Craig Crossman wrote: he drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. =
Re: [TMIC] Neurologist visit
No one since rehab has done anything useful for me. Other than approve the bits and pieces I've gleaned for myself from here. It is comforting to have care. I see my neuro on the 21st and am praying that i will last without my meds until then. When, as before she will just sit and talk to me fro twenty minutesor perhaps her staff will complain about all the forms I've had sent their way--- for the devices i think i need, that reuire certification that I'm paralyzed, none of which ( motomed,flexiciser,standers) do i have. --
Re: [TMIC] Neurologist visit
Rev Craig, so glad you had a productive visit with your new neurologist. You asked about your meds. Many TMers have used most of these meds at one time or another. However, that Ropinirole threw me for a loop as I've never heard of it, so I researched it. Did your doctor give you an entire pamphlet on the medication or did she just briefly tell you about it? I ask because I've really never seen a drug quite like this. All drugs have side effects, and this one has its fair share. But what really shocked me was the very long section called: What special precautions should I follow? You really do need to read ALL of this - please. It's very important. And you're right, you never know, you may just show up in the pulpit wearing a pink tutu and a glittery tiara! We'd like a picture of that please : ) Has anyone else here used this drug called Ropinirole or googled it? Please post if you have. Good luck to you Craig. You have a great attitude - and a great sense of humor to go along with it. Linda (Eagle, ID) - Original Message - From: Rev. Craig Crossmanmailto:revcross...@gmail.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, September 08, 2010 2:29 PM Subject: [TMIC] Neurologist visit Finally had my first appointment with new neurologist. The good news (according to her) is that while my TM will be with me the rest of my life, it will not get progressively worse because she says TM is not a degenerative disease. The TM can keep you from being as active as you should be so over time many people with TM lose a lot of strength and function. That has happened to me. The bad news is that I do have a type of neuropathy which will get progressively worse and there is really nothing to be done with it except control the symptoms. Bottom line according to her? I will probably not live until I am 90, and as time goes by I will have less and less neural control over my extremities. So my neurologist has started me on some meds she says I should have been on all along but I should also stay on the ones I am on currently. The mixture of all these different drugs might be interesting. Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. The drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. BTW, she said she was already aware of, and read up on, TM. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] Neurologist visit
I am on the gabapentin and have been since the onset.I feel it helps. Why did she say you will not probably live until you are 90? My neuro said my life should not be shortened by TM. Our activity/strength may not be what it once was, but we are still working our bodies as far as we can under the circumstances. Does that make any sense? Janice From: Rev. Craig Crossman Sent: Wednesday, September 08, 2010 3:29 PM To: tmic-list@eskimo.com Subject: [TMIC] Neurologist visit Finally had my first appointment with new neurologist. The good news (according to her) is that while my TM will be with me the rest of my life, it will not get progressively worse because she says TM is not a degenerative disease. The TM can keep you from being as active as you should be so over time many people with TM lose a lot of strength and function. That has happened to me. The bad news is that I do have a type of neuropathy which will get progressively worse and there is really nothing to be done with it except control the symptoms. Bottom line according to her? I will probably not live until I am 90, and as time goes by I will have less and less neural control over my extremities. So my neurologist has started me on some meds she says I should have been on all along but I should also stay on the ones I am on currently. The mixture of all these different drugs might be interesting. Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. The drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. BTW, she said she was already aware of, and read up on, TM. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
[TMIC] Neurologist visit.
6:30 am now. I crashed when I got home from the neurologist last night. No dx for my hands yet, didn't expect one. As expected, he wants me to get an MRI of the neck and an EMG of the arms. He also mentioned a nerve biopsy, but he wants me to get it in NYC because he doesn't like how they are interpreted in my state, (CT). I haven't agreed to the nerve biopsy yet. At least he didn't disagree with my dx of TM. He mentioned a number of possible ailments that could be causing my hand/arm problems. Everytime I asked him if there was a treatment for any of them he just said 'no'. I liked him as a doctor, but overall I am disappointed. I will be getting some PT for my hands. Thank you to everyone who sent replies about TM and reflexes. Doctor said that hyper or hypo-reflexia, (sp?), do not preclude a dx of TM. At least that was my understanding of what he said. Kevin
Re: [TMIC] Neurologist visit.
Pam He isn't telling me to have a nerve biopsy before the other tests. He just recommends having one in general. I told him I'll think about it, but I'm not thrilled about the fact that a nerve biopsy can cause numbness when I already have enough of that. I am already scheduled for the MRI and EMG over the next few weeks. Thanks for your thoughts. Kevin [EMAIL PROTECTED] wrote: Kevin he is right about reflexes not all the time pretaining to tm. In my case i have seen many doctors they all agree my reflexes or do to Tm. As for as a nerve biopsy i do not know why you would need that until the other tests or in. I would suggest a nerve conductor test first. That would be my last resort a nerve biopsy. Just my op[onion. TIAD PAM Get a sneak peek of the all-new AOL.com http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982.
Re: [TMIC] Neurologist visit.
Hi Sandy, I had the EP test over 10 years ago, before I was dx'd with TM. When the MRI was being scheduled yesterday, they said they are doing it with and without contrast dye. I have had TM since 1988. My hand problems began about 3 years ago, after I took a very bad fall onto my hands on a garage floor. I was told that I had carpal tunnel syndrome around the same time. My left shoulder has also been feeling 'locked up' and painful lately. Thanks for your thoughts. Take care, Kevin Sandy Heidel wrote: Kevin, I have a lot of numbness and tingling in my hands along with chronic pain. I had a test called Evoked Potentials at the onset of my TM. They glue sensors on your head and all over your body. They test for nerve transmission. It can show areas where there is a break in transmission and also a slowing. They do visual and hearing tests at the same time using these same sensors to see if there is nerve damage there. But the others sent a small electrical charge from my hands up and from my feet up and then the computer measured the time and all that jazz. What it pinpointed was that there was a slowing of the transmission of nerve signals at neck that also confirmed what the MRI showed as the area of my first TM lesion C 4 - C 5. The MRI showed the location of the lesion and the size. The EP test showed the effect the lesion was having. My hands have not cleared up over time and in fact whenever I am having a flare up my hands tell me first. I have a friend who has the same symptoms but hers is from a pinched nerve from a bulging disk in her neck. I also know that the numb and tingling hands can sometimes be from diabetes. Both of those have been ruled out for me. If you have lesions in the cervical area they may be the cause for you. Are the hand problems new for you?? The reason I ask is that they may be new lesions if you did not have them in the cervical area before. And if so, when you have your MRI you might want to consider having the contrast dye. When my disease is active and I have an MRI my lesions light up like little light bulbs and say look at me! Just my thoughts, Sandy - Original Message - From: Kevin Wolfthal [EMAIL PROTECTED] To: Tmic-list@eskimo.com Sent: Friday, July 20, 2007 5:43 AM Subject: [TMIC] Neurologist visit. 6:30 am now. I crashed when I got home from the neurologist last night. No dx for my hands yet, didn't expect one. As expected, he wants me to get an MRI of the neck and an EMG of the arms. He also mentioned a nerve biopsy, but he wants me to get it in NYC because he doesn't like how they are interpreted in my state, (CT). I haven't agreed to the nerve biopsy yet. At least he didn't disagree with my dx of TM. He mentioned a number of possible ailments that could be causing my hand/arm problems. Everytime I asked him if there was a treatment for any of them he just said 'no'. I liked him as a doctor, but overall I am disappointed. I will be getting some PT for my hands. Thank you to everyone who sent replies about TM and reflexes. Doctor said that hyper or hypo-reflexia, (sp?), do not preclude a dx of TM. At least that was my understanding of what he said. Kevin
