Re: [TMIC] Pain management doctor
I don't have any pain of spinal origin; my only significant pain is from a torn shoulder. I need the Baclofen to alleviate spasticity in my legs, mostly the left leg. Alton - Original Message - From: heyjude48...@aol.com To: a-ry...@comcast.net, pjv1...@chartermi.net Cc: tmic-list@eskimo.com Sent: Sun, 20 Jan 2013 17:56:10 - (UTC) Subject: Re: [TMIC] Pain management doctor Alton, Don't you have pain? What does the Baclofen do for you? I believe I take it for spasms. Are you taking it for the same thing? If I don't take it my right leg flies out of the bed and if we go out, we have to strap my legs into my chair because my feet won't stay on the foot pedals. Love you,JudeMichigan In a message dated 1/20/2013 9:29:18 A.M. Eastern Standard Time, a-ry...@comcast.net writes:I get my intrathecal Baclofen pump refilled by Dr Hyatt at the Pain Clinic at CMC in Manchester, NH. I do not get treated for pain. Alton - Original Message - From: Pat Voorheis pjv1...@chartermi.net To: tmic tmic-list@eskimo.com Sent: Sat, 19 Jan 2013 01:21:21 - (UTC) Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
My intrathecal pump is by Medtronics; the first [battery] lasted eight years. It pumps Baclofen for spaticity, not the usual morphine. I get it refilled at a pain clinic where they are used to filling pumps. Alton - Original Message - From: heyjude48...@aol.com To: pjv1...@chartermi.net Cc: tmic-list@eskimo.com Sent: Sat, 19 Jan 2013 03:56:13 - (UTC) Subject: Re: [TMIC] Pain management doctor What do you mean? I am going to have a pain pump put in. My family Dr. didn't want to be responsible for my pills anymore, so she referred me to a pain clinic and the Dr. there recommended the Matrix pain pump. First they will do a trial somehow and then if it works a permanent pump will be implanted. Love, Jude In a message dated 1/18/2013 8:21:26 P.M. Eastern Standard Time, pjv1...@chartermi.net writes:Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
I get my intrathecal Baclofen pump refilled by Dr Hyatt at the Pain Clinic at CMC in Manchester, NH. I do not get treated for pain. Alton - Original Message - From: Pat Voorheis pjv1...@chartermi.net To: tmic tmic-list@eskimo.com Sent: Sat, 19 Jan 2013 01:21:21 - (UTC) Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management
I have been prescribed 2 oz of pot per month ...the problem is that the legal pot is $450 per oz. But I do agree that pot truly helps!!! Rob in NJ Sativex is sprayed under my tongue. I use it two or three times a day, with little euphoria. It's a legal prescription drug, in Canada and soon to be here in the U.S.Take Care F.
Re: [TMIC] Pain management
thats hard to swollow Rob. back in the 70's was the last time i purchased an OZ and it was 40 bucks an oz for the good stuff. From: fr...@franksheldon.com fr...@franksheldon.com To: Robert Pall robthe...@aol.com; tmic-list@eskimo.com Sent: Sunday, January 20, 2013 10:05 AM Subject: Re: [TMIC] Pain management I have been prescribed 2 oz of pot per month ...the problem is that the legal pot is $450 per oz. But I do agree that pot truly helps!!! Rob in NJ Sativex is sprayed under my tongue. I use it two or three times a day, with little euphoria. It's a legal prescription drug, in Canada and soon to be here in the U.S. Take Care F.
Re: [TMIC] Pain management
Frank, So you don't have the euphoria with the prescription form? I wouldn't mind trying it if that was the case. Jude In a message dated 1/20/2013 11:43:03 A.M. Eastern Standard Time, jcs...@yahoo.com writes: thats hard to swollow Rob. back in the 70's was the last time i purchased an OZ and it was 40 bucks an oz for the good stuff. From: fr...@franksheldon.com fr...@franksheldon.com To: Robert Pall robthe...@aol.com; tmic-list@eskimo.com Sent: Sunday, January 20, 2013 10:05 AM Subject: Re: [TMIC] Pain management I have been prescribed 2 oz of pot per month ...the problem is that the legal pot is $450 per oz. But I do agree that pot truly helps!!! Rob in NJ Sativex is sprayed under my tongue. I use it two or three times a day, with little euphoria. It's a legal prescription drug, in Canada and soon to be here in the U.S. Take Care F.
Re: [TMIC] Pain management doctor
Alton, Don't you have pain? What does the Baclofen do for you? I believe I take it for spasms. Are you taking it for the same thing? If I don't take it my right leg flies out of the bed and if we go out, we have to strap my legs into my chair because my feet won't stay on the foot pedals. Love you, Jude Michigan In a message dated 1/20/2013 9:29:18 A.M. Eastern Standard Time, a-ry...@comcast.net writes: I get my intrathecal Baclofen pump refilled by Dr Hyatt at the Pain Clinic at CMC in Manchester, NH. I do not get treated for pain. Alton - Original Message - From: Pat Voorheis pjv1...@chartermi.net To: tmic tmic-list@eskimo.com Sent: Sat, 19 Jan 2013 01:21:21 - (UTC) Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
same for me with the baclofen. From: heyjude48...@aol.com heyjude48...@aol.com To: a-ry...@comcast.net; pjv1...@chartermi.net Cc: tmic-list@eskimo.com Sent: Sunday, January 20, 2013 12:56 PM Subject: Re: [TMIC] Pain management doctor Alton, Don't you have pain? What does the Baclofen do for you? I believe I take it for spasms. Are you taking it for the same thing? If I don't take it my right leg flies out of the bed and if we go out, we have to strap my legs into my chair because my feet won't stay on the foot pedals. Love you, Jude Michigan In a message dated 1/20/2013 9:29:18 A.M. Eastern Standard Time, a-ry...@comcast.net writes: I get my intrathecal Baclofen pump refilled by Dr Hyatt at the Pain Clinic at CMC in Manchester, NH. I do not get treated for pain. Alton - Original Message - From: Pat Voorheis pjv1...@chartermi.net To: tmic tmic-list@eskimo.com Sent: Sat, 19 Jan 2013 01:21:21 - (UTC) Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
Janice, I didn't know that you have an implant for pain. How do the magnets differ from the pain medication pump. You say it is effective for you. That's great! What made you make the choice between the two different types of implants? Love, Jude In a message dated 1/18/2013 11:48:47 P.M. Eastern Standard Time, jan...@centurytel.net writes: Pat, I have been going to a pain management doc for 4 years and they have helped me tremendously with pain.I have an implant in my hip/back area that is connected to my spine. I turn on the implant with a magnet that I touch where my implant is.It uses several - my choice - sensations to cover nerve pain from my back down to my ankles. It also gives my legs more strength to keep walking and they feel stronger too. I would not be walking nearly as much as I do without it. Janice -Original Message- From: Pat Voorheis Sent: Friday, January 18, 2013 7:21 PM To: tmic Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
Janice, I didn't realize that you have an implant for pain. Did we discuss it? I don't remember. Anyway, why did you decide to have the magnets for pain management vs. the medication delivery from the pump? I wonder what the benefits are in having one over the other. When I brought it up to my Dr. she didn't even mention the magnets vs. the medication. Did you have a choice in the matter? Did you research the two before you had it done? Thanks, Jude, Michigan In a message dated 1/18/2013 11:48:47 P.M. Eastern Standard Time, jan...@centurytel.net writes: Pat, I have been going to a pain management doc for 4 years and they have helped me tremendously with pain.I have an implant in my hip/back area that is connected to my spine. I turn on the implant with a magnet that I touch where my implant is.It uses several - my choice - sensations to cover nerve pain from my back down to my ankles. It also gives my legs more strength to keep walking and they feel stronger too. I would not be walking nearly as much as I do without it. Janice -Original Message- From: Pat Voorheis Sent: Friday, January 18, 2013 7:21 PM To: tmic Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
Jude – and all TM’ers When I was referred to a pain management doc by another doc that told me he had exhausted all his “tricks” for pain, my new doc started doing injections in my back to relieve pain from both arthritis and TM – they just irritated each other at my expense. The injections only lasted about 3 months, then another was needed-badly. After awhile, he suggested that I try the implant from the outside of my body before he implanted the implant, trying as close as possible to find if this would help me before implantation.I did have help from it, so we decided to go all the way with it. This is how it is done: I was put to sleep for the procedure.A small needle-like thing with “legs” was attached to my spine. Then, attached to the legs of the needle-like thing, was the implant which was placed a little under the skin of the back/hip area. It is about 1” big and cannot be seen outside of the skin.There is a slight bump where it is located. On that bump is where I touch with the magnet to “turn myself on or off”. It creates different sensations from a fuzzy feeling to a strong bumping feeling to help cover nerve pain.I control what sensation I want and how strong I want it with another small hand-held appliance.When I sit or lay down, I always turn it off - it is just more comfortable that way. I would not be walking nearly as much without it and would have much more pain. Our insurance covered almost all of it.I do know a lady with TM that tried it and it did not work for her, but most do get relief. Any more questions - just ask me. Janice From: heyjude48...@aol.com Sent: Saturday, January 19, 2013 11:17 AM To: jan...@centurytel.net Cc: tmic-list@eskimo.com ; pv...@chartermi.net Subject: Re: [TMIC] Pain management doctor Janice, I didn't know that you have an implant for pain. How do the magnets differ from the pain medication pump. You say it is effective for you. That's great! What made you make the choice between the two different types of implants? Love, Jude In a message dated 1/18/2013 11:48:47 P.M. Eastern Standard Time, jan...@centurytel.net writes: Pat, I have been going to a pain management doc for 4 years and they have helped me tremendously with pain.I have an implant in my hip/back area that is connected to my spine. I turn on the implant with a magnet that I touch where my implant is.It uses several - my choice - sensations to cover nerve pain from my back down to my ankles. It also gives my legs more strength to keep walking and they feel stronger too. I would not be walking nearly as much as I do without it. Janice -Original Message- From: Pat Voorheis Sent: Friday, January 18, 2013 7:21 PM To: tmic Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management
Hey, Pumps don't allways work. Don't let them talk you out of pain. Consider Cannabis, or Sativex if you live in Canabis Try things Frank Who takes Nortriptolin, Dextromethorphin, Phenobarbitol,Sativex; uses self hypnosis/meditation.
Re: [TMIC] Pain management doctor
Thanks Janice, That certainly explains everything. In a message dated 1/19/2013 1:27:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: Jude – and all TM’ers When I was referred to a pain management doc by another doc that told me he had exhausted all his “tricks” for pain, my new doc started doing injections in my back to relieve pain from both arthritis and TM – they just irritated each other at my expense. The injections only lasted about 3 months, then another was needed-badly. After awhile, he suggested that I try the implant from the outside of my body before he implanted the implant, trying as close as possible to find if this would help me before implantation. I did have help from it, so we decided to go all the way with it. This is how it is done: I was put to sleep for the procedure.A small needle-like thing with “ legs” was attached to my spine.Then, attached to the legs of the needle-like thing, was the implant which was placed a little under the skin of the back/hip area. It is about 1” big and cannot be seen outside of the skin. There is a slight bump where it is located. On that bump is where I touch with the magnet to “turn myself on or off”. It creates different sensations from a fuzzy feeling to a strong bumping feeling to help cover nerve pain.I control what sensation I want and how strong I want it with another small hand-held appliance.When I sit or lay down, I always turn it off - it is just more comfortable that way. I would not be walking nearly as much without it and would have much more pain. Our insurance covered almost all of it.I do know a lady with TM that tried it and it did not work for her, but most do get relief. Any more questions - just ask me. Janice From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) Sent: Saturday, January 19, 2013 11:17 AM To: _jannic@centurytel.net_ (mailto:jan...@centurytel.net) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) ; _pv123@chartermi.net_ (mailto:pv...@chartermi.net) Subject: Re: [TMIC] Pain management doctor Janice, I didn't know that you have an implant for pain. How do the magnets differ from the pain medication pump. You say it is effective for you. That's great! What made you make the choice between the two different types of implants? Love, Jude In a message dated 1/18/2013 11:48:47 P.M. Eastern Standard Time, jan...@centurytel.net writes: Pat, I have been going to a pain management doc for 4 years and they have helped me tremendously with pain.I have an implant in my hip/back area that is connected to my spine. I turn on the implant with a magnet that I touch where my implant is. It uses several - my choice - sensations to cover nerve pain from my back down to my ankles. It also gives my legs more strength to keep walking and they feel stronger too. I would not be walking nearly as much as I do without it. Janice -Original Message- From: Pat Voorheis Sent: Friday, January 18, 2013 7:21 PM To: tmic Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
Janice, thank you, that explains it all. Love you. In a message dated 1/19/2013 1:27:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: Jude – and all TM’ers When I was referred to a pain management doc by another doc that told me he had exhausted all his “tricks” for pain, my new doc started doing injections in my back to relieve pain from both arthritis and TM – they just irritated each other at my expense. The injections only lasted about 3 months, then another was needed-badly. After awhile, he suggested that I try the implant from the outside of my body before he implanted the implant, trying as close as possible to find if this would help me before implantation. I did have help from it, so we decided to go all the way with it. This is how it is done: I was put to sleep for the procedure.A small needle-like thing with “ legs” was attached to my spine.Then, attached to the legs of the needle-like thing, was the implant which was placed a little under the skin of the back/hip area. It is about 1” big and cannot be seen outside of the skin. There is a slight bump where it is located. On that bump is where I touch with the magnet to “turn myself on or off”. It creates different sensations from a fuzzy feeling to a strong bumping feeling to help cover nerve pain.I control what sensation I want and how strong I want it with another small hand-held appliance.When I sit or lay down, I always turn it off - it is just more comfortable that way. I would not be walking nearly as much without it and would have much more pain. Our insurance covered almost all of it.I do know a lady with TM that tried it and it did not work for her, but most do get relief. Any more questions - just ask me. Janice From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) Sent: Saturday, January 19, 2013 11:17 AM To: _jannic@centurytel.net_ (mailto:jan...@centurytel.net) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) ; _pv123@chartermi.net_ (mailto:pv...@chartermi.net) Subject: Re: [TMIC] Pain management doctor Janice, I didn't know that you have an implant for pain. How do the magnets differ from the pain medication pump. You say it is effective for you. That's great! What made you make the choice between the two different types of implants? Love, Jude In a message dated 1/18/2013 11:48:47 P.M. Eastern Standard Time, jan...@centurytel.net writes: Pat, I have been going to a pain management doc for 4 years and they have helped me tremendously with pain.I have an implant in my hip/back area that is connected to my spine. I turn on the implant with a magnet that I touch where my implant is. It uses several - my choice - sensations to cover nerve pain from my back down to my ankles. It also gives my legs more strength to keep walking and they feel stronger too. I would not be walking nearly as much as I do without it. Janice -Original Message- From: Pat Voorheis Sent: Friday, January 18, 2013 7:21 PM To: tmic Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
Janice, Would you ask your Dr. if he would be willing to call Dr. Sabit in Lapeer, Michigan...810-667-7318 and tell him what he did for you? I'm not sure which would work better for me, the medication or the magnets. I have a feeling that the medicine is better for me. Love, Jude In a message dated 1/19/2013 1:34:59 P.M. Eastern Standard Time, jan...@centurytel.net writes: Yes, I research it.The doc explained to me that with the injections that I needed for pain relief that at some point it would quit working for me. Your body gets used to it. This way, I don’t take extra meds for pain relief, plus it makes my legs feel much stronger. My doc has been one of the forerunners with this procedure and has taught other doc’s in other places.Don’t know how wide spread it is. Janice From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) Sent: Saturday, January 19, 2013 11:23 AM To: _jannic@centurytel.net_ (mailto:jan...@centurytel.net) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Pain management doctor Janice, I didn't realize that you have an implant for pain. Did we discuss it? I don't remember. Anyway, why did you decide to have the magnets for pain management vs. the medication delivery from the pump? I wonder what the benefits are in having one over the other. When I brought it up to my Dr. she didn't even mention the magnets vs. the medication. Did you have a choice in the matter? Did you research the two before you had it done? Thanks, Jude, Michigan In a message dated 1/18/2013 11:48:47 P.M. Eastern Standard Time, jan...@centurytel.net writes: Pat, I have been going to a pain management doc for 4 years and they have helped me tremendously with pain.I have an implant in my hip/back area that is connected to my spine. I turn on the implant with a magnet that I touch where my implant is.It uses several - my choice - sensations to cover nerve pain from my back down to my ankles. It also gives my legs more strength to keep walking and they feel stronger too. I would not be walking nearly as much as I do without it. Janice -Original Message- From: Pat Voorheis Sent: Friday, January 18, 2013 7:21 PM To: tmic Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management
Frank, I wondered what had become of you. It's been years since we have talked. What have you been doing? What have you been up to? How have you been feeling? Not much pain I guess, 'cause you smoke cannabis. Are you on Facebook, with Bernie and Kevin? I don't see you post there. We are in Transverse Myelitis and Transverse Myelitis Folks (the one Kevin and Scott Pruitt started). Good to hear from you, Jude in Michigan Neurontin, Gabapentin, Oxycodone, MS Contin and several other things. In a message dated 1/19/2013 2:32:08 P.M. Eastern Standard Time, fr...@franksheldon.com writes: Hey, Pumps don't allways work. Don't let them talk you out of pain. Consider Cannabis, or Sativex if you live in Canabis Try things Frank Who takes Nortriptolin, Dextromethorphin, Phenobarbitol,Sativex; uses self hypnosis/meditation.
Re: [TMIC] Pain management doctor
Patti, Thank you. Yes, the Dr. I see is with McLaren. His name is Dr. Sabit, in Lapeer. His home office is in Southfield. His number is: 810-667-7318 if Dr. Hagenstein wants to talk to him, but I don't know if that's such a good idea. Dr Sabit is the pain management Dr. who is taking over my medications and giving me the pain pump. I wish I was seeing Dr. Hagenstein again. I liked him so much. Who is your primary physician? Love, Jude In a message dated 1/19/2013 3:01:57 P.M. Eastern Standard Time, pjv1...@chartermi.net writes: Judy, Where is the pain clinic. I suppose its part of McLaren? What doctor did you see? I think doctors have restrictions on how much pain med they can write rx for. It seems primaries in this area or those who belong to the McLaren group are being cautious. The primary that wouldn't renew my meds is with McLaren. That's why I had to see the new Neuro. I see Dr Hagenstein in February and will ask him if a pain clinic is advisable. Patti - Montrose Sent from my iPad On Jan 18, 2013, at 10:56 PM, _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) wrote: What do you mean? I am going to have a pain pump put in. My family Dr. didn't want to be responsible for my pills anymore, so she referred me to a pain clinic and the Dr. there recommended the Matrix pain pump. First they will do a trial somehow and then if it works a permanent pump will be implanted. Love, Jude In a message dated 1/18/2013 8:21:26 P.M. Eastern Standard Time, _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) writes: Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management
I have been prescribed 2 oz of pot per month ...the problem is that the legal pot is $450 per oz. But I do agree that pot truly helps!!! Rob in NJ -Original Message- From: frank fr...@franksheldon.com To: Heyjude48458 heyjude48...@aol.com; pjv1234 pjv1...@chartermi.net Cc: tmic-list tmic-list@eskimo.com Sent: Sat, Jan 19, 2013 2:32 pm Subject: Re: [TMIC] Pain management Hey, Pumps don't allways work. Don't let them talk you out of pain. Consider Cannabis, or Sativex if you live in Canabis Try things Frank Who takes Nortriptolin, Dextromethorphin, Phenobarbitol,Sativex; uses self hypnosis/meditation.
Re: [TMIC] Pain management
Wow, does your insurance pay for any of it? In a message dated 1/19/2013 7:42:27 P.M. Eastern Standard Time, robthe...@aol.com writes: I have been prescribed 2 oz of pot per month ...the problem is that the legal pot is $450 per oz. But I do agree that pot truly helps!!! Rob in NJ -Original Message- From: frank fr...@franksheldon.com To: Heyjude48458 heyjude48...@aol.com; pjv1234 pjv1...@chartermi.net Cc: tmic-list tmic-list@eskimo.com Sent: Sat, Jan 19, 2013 2:32 pm Subject: Re: [TMIC] Pain management Hey, Pumps don't allways work. Don't let them talk you out of pain. Consider Cannabis, or Sativex if you live in Canabis Try things Frank Who takes Nortriptolin, Dextromethorphin, Phenobarbitol,Sativex; uses self hypnosis/meditation.
Re: [TMIC] Pain management doctor
So, how did you hook up with a Physicians Assistant? I now have home nursing and wouldn't want to lose that. In a message dated 1/19/2013 6:59:51 P.M. Eastern Standard Time, pjv1...@chartermi.net writes: I have been to a Physicians Assistant twice. My primary moved, his replacement wouldn't renew my rx for Lyrica and Baclofen. I didn't like her at all. Dr Hagenstein suggested Dr Alton or his Nurse Practioner in Montrose, but neither were taking new patients when I called in November. Maybe because of all the health care changes. The PA is caring and I could be open with her. I would still like to see the Nurse Practioner in Montrose if she starts taking near patients someday. patti Sent from my iPad On Jan 19, 2013, at 5:46 PM, _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) wrote: Patti, Thank you. Yes, the Dr. I see is with McLaren. His name is Dr. Sabit, in Lapeer. His home office is in Southfield. His number is: 810-667-7318 if Dr. Hagenstein wants to talk to him, but I don't know if that's such a good idea. Dr Sabit is the pain management Dr. who is taking over my medications and giving me the pain pump. I wish I was seeing Dr. Hagenstein again. I liked him so much. Who is your primary physician? Love, Jude In a message dated 1/19/2013 3:01:57 P.M. Eastern Standard Time, _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) writes: Judy, Where is the pain clinic. I suppose its part of McLaren? What doctor did you see? I think doctors have restrictions on how much pain med they can write rx for. It seems primaries in this area or those who belong to the McLaren group are being cautious. The primary that wouldn't renew my meds is with McLaren. That's why I had to see the new Neuro. I see Dr Hagenstein in February and will ask him if a pain clinic is advisable. Patti - Montrose Sent from my iPad On Jan 18, 2013, at 10:56 PM, _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) wrote: What do you mean? I am going to have a pain pump put in. My family Dr. didn't want to be responsible for my pills anymore, so she referred me to a pain clinic and the Dr. there recommended the Matrix pain pump. First they will do a trial somehow and then if it works a permanent pump will be implanted. Love, Jude In a message dated 1/18/2013 8:21:26 P.M. Eastern Standard Time, _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) writes: Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management
a couple of years ago it didnt help me but it does nowodd From: Robert Pall robthe...@aol.com To: fr...@franksheldon.com; heyjude48...@aol.com; pjv1...@chartermi.net Cc: tmic-list@eskimo.com Sent: Saturday, January 19, 2013 7:42 PM Subject: Re: [TMIC] Pain management I have been prescribed 2 oz of pot per month ...the problem is that the legal pot is $450 per oz. But I do agree that pot truly helps!!! Rob in NJ -Original Message- From: frank fr...@franksheldon.com To: Heyjude48458 heyjude48...@aol.com; pjv1234 pjv1...@chartermi.net Cc: tmic-list tmic-list@eskimo.com Sent: Sat, Jan 19, 2013 2:32 pm Subject: Re: [TMIC] Pain management Hey, Pumps don't allways work. Don't let them talk you out of pain. Consider Cannabis, or Sativex if you live in Canabis Try things Frank Who takes Nortriptolin, Dextromethorphin, Phenobarbitol,Sativex; uses self hypnosis/meditation.
[TMIC] Pain management doctor
Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
What do you mean? I am going to have a pain pump put in. My family Dr. didn't want to be responsible for my pills anymore, so she referred me to a pain clinic and the Dr. there recommended the Matrix pain pump. First they will do a trial somehow and then if it works a permanent pump will be implanted. Love, Jude In a message dated 1/18/2013 8:21:26 P.M. Eastern Standard Time, pjv1...@chartermi.net writes: Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] Pain management doctor
Pat, I have been going to a pain management doc for 4 years and they have helped me tremendously with pain.I have an implant in my hip/back area that is connected to my spine. I turn on the implant with a magnet that I touch where my implant is.It uses several - my choice - sensations to cover nerve pain from my back down to my ankles. It also gives my legs more strength to keep walking and they feel stronger too. I would not be walking nearly as much as I do without it. Janice -Original Message- From: Pat Voorheis Sent: Friday, January 18, 2013 7:21 PM To: tmic Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad
Re: [TMIC] pain management ideas
Dennis, I don't think any of us are able to take enough meds to completely take the pain away, but many of us feel it is at least controlled. I use neurontin and baclofen. It takes a while to figure out how many of each to take and at what time of the day/nite to take them.I am fortunate that when the pain gets bad, I can quit whatever I am doing and just sit down for a while.Believe it or not, sometimes that really helps, along with a pain pill - I take vicotin.But, I keep the vicotin to a minimum. If your doctor isn't much help, your pharmacist may be the one to go to.Then, you can go back to your doc with whatever the pharmacist may suggest. They know their newest drugs better than the docs anyway. I wish you luck and keep us posted on your progress/frustrations. Janice From: Dennis Rabalais Sent: Saturday, August 14, 2010 6:52 PM To: tmic Subject: [TMIC] pain management ideas hi all. i wanted to ask what pain and nerve med's you all have taken that works. i am always in pain. i am out of options with med's i have taken. can anyone help? dennis/tx
Re: [TMIC] pain management ideas
Hi All, I'm not going to go over my pain meds ( Nortriptyline, Vitamin D, Dextromethorphan, Cannabinoids, Phenobarbital) again. My pain never really goes away unless I add a couple shots of Bourbon or other high test drinks. I am able to keep my pain at #2 or 3 with meds. What really helps is meditation (self hypnosis). I usually listen to quiet classical music, close my eyes and take myself away to some secluded beach in the Exuma chain of islands. My pain will get as low as #1. I am told that there are CD's in which guided imagery is used to take you into self hypnosis. I hope this helps. F
Re: [TMIC] pain management ideas
hypnosis sounds pretty cool as long as it doesn't take me back to the time i was a paperboy being chased by the crazy dog! --- On Sun, 8/15/10, fr...@franksheldon.com fr...@franksheldon.com wrote: From: fr...@franksheldon.com fr...@franksheldon.com Subject: Re: [TMIC] pain management ideas To: john snodgrass jcs...@yahoo.com, Dennis Rabalais drabala...@gt.rr.com Cc: transverse myelitis tmic-list@eskimo.com Date: Sunday, August 15, 2010, 9:45 AM Hi All, I'm not going to go over my pain meds ( Nortriptyline, Vitamin D, Dextromethorphan, Cannabinoids, Phenobarbital) again. My pain never really goes away unless I add a couple shots of Bourbon or other high test drinks. I am able to keep my pain at #2 or 3 with meds. What really helps is meditation (self hypnosis). I usually listen to quiet classical music, close my eyes and take myself away to some secluded beach in the Exuma chain of islands. My pain will get as low as #1. I am told that there are CD's in which guided imagery is used to take you into self hypnosis. I hope this helps. F
Re: [TMIC] pain management ideas
hi all. i wanted to ask what pain and nerve med's you all have taken that works. i am always in pain. i am out of options with med's i have taken. can anyone help? dennis/tx What have you taken that doesn't work? ( would save time in answering) --
Fwd: Re: [TMIC] pain management ideas
from john snodgrass Dennis, How long have you been struggling with TM? what combinations of meds have you tried? I have been fighting it for 2.5 years, but hydrocodone and Neuronton,Baclofin,and lorazepam seam to be helping me somewhat. doesn't make everything peachy but allows me to function.look at the archives in this group,there's a lot of options that you might take to your dr if you want to see if something other than what you have been doing might make a difference. --
Re: Fwd: [TMIC] pain management ideas
Brilliant Betty this is great! 10mg Baclofen (up to 3x/d),Lyrica,Xanax Embeda, Percocet, Tegretol Amantadine 100mg 2X/d, Cymbalta 60mg, Zanaflex 4mg,Tranxene 7.5mg, Darvacet Amatryptaline,Gabapentin,Synthroid,Loratadine,Miralax Amitriptyline (Elavil) 50mg, Tramadol, Lyrica, Wellbutrin Apitherapy Avonex, Betaseron, Copaxone, Lyrica 150mg/d, Cymbalta 60mg/d; Ambien a/n Baclofen Baclofen Baclofen Baclofen Baclofen Baclofen Baclofen 10mg 3x/d, Percocet, Fentanyl Patch, Cymbalta Baclofen 80 3x/d, Ditraphan 15 1x/d, Neurontin 1200/d, Oxyibutynin 5ml 3x/d Baclofen, Clonazapam, Lexapro, Aleve, Klonopin, Vicodin, Cymbalta, Flora Q Baclofen, Vicodin Betaseron Cellcept, Nortryptiline, Provigil, Baclofen Clonidine patch (4 heat) Cymbalta 60mg, Neurontin 300/300/800mg, Flexeril, Darvocet (or- Lortab) Lyrica @bedtime. [plus Tizanadine, Valium (diazepam), Flexeril (cyclobenzaprine), mirapex, Methocarbomal (robaxin) Reglan (metoclopramide)] Cymbalta 60mg, Nexium, Cipro 2x/w Cymbalta 60mg/d, Lyrica 400mg 2x/d, Fentanyl, Vicodin Cymbalta,Miripex,Klonipin,Zanaflex,Amanatidine,Probiotics Daypro Effexor Effexor, Lortab or Advil Elavil 50mg/at nite Elavil 50mg/at nite Fentynal patches 75 mcg, Gabapentin Gabapentin 300mg 2x/d Gabapentin 400mg 3x/d, Tramadol, Sevella(depression) Gabapentin 600mg 4x/d, Imuran, Mexiletine [banding] Gabapentin 900mg 3x/d, Oxycontin 40mg 3x/d Hydrocodone APAP 10/625 3x/d, Fentanyl 100mcg patch, 5mg Valium 4x/d, Flexeril 10mg 3x/d, Lyrica 200mg 3x/d, Tegretol 200mg 6x/d, Ativan 2mg/d Hydrocortisone, Lyrica, Zoloft Imuran, Gabapentin 300mg 3x/d, Zoloft, Ritalin sr Loripan, Percocet Lyrica 150 mg 2x/day, Nortripline 25 mg/(night) Lyrica 50mg 2x/day, Flexaril, Hydrocodone Lyrica 600mg/d, Lyrica 75mg 2x/d, Amantadine 100mg [a.m.p.m.] Lyrica 75mg 2x/d; Baclofen Lyrica 75mg 3x/d Lyrica 75mg 4x/d Lyrica, Baclofen, Oxycodone Lyrica, Prednazone, Celebrex Mestinon, 30 mg 2x/d Morphine, 600mg Gabepentin, Bacoflen 20mg 8x/d MS Contin (Morphine Sulphate), Ativan MS Contin, Lyrica Neur. 300 3x/d,Cymbalta,Tramadol,Flexeril,Rebif Neur., Bacoflen, Advil, Lyrica, Celebrex, Med Kempro Neurontin Neurontin Neurontin 300 4x/d, Provigil (Modafinil) 200mg/d Neurontin 300 5x/d, Copaxone Neurontin 400mg 4x/d, Lortab, Zanaflex, Paxil, Elevil, Prilosec, Dyazide, Evista Zyrtec Neurontin 600mg 4x/d, Norco 7.5-325 4x/d Neurontin 800 3x/d, Imuran (azathioprine) 50mg/d Neurontin 900 3x/d, Naltrexone, Detrol LA Neurontin 900 4x/d Neurontin, Bachlofen, Ambien, Sonata, Klonopin 0.5 mg Neurontin, Baclofen, Hydrocodone Neurontin, Cymbalta, Topamax, Baclofen 20 4x/d, Lasix, Zanaflex 4 4x/d, Detrol LA 4 1x/d, Synthroid, Copaxone, Trazadone, Meclizine (vertigo), Xanax, Mupirocin, Nexium, Restoril (sleep), Seroquel, Darvocet, Fluocinonide Cream, Doxycycline Hyclate (antibiotic); DHEA, Ampyra Neurontin, Ibuprofen Neurontin, Tandrilax, Doxylamine Succinate (insomnia) Norco -- Lyrica 600mg/d Nortriptyline, Phenobarbital, Marijuana spray, Dextromethorphan Nortriptyline, Tizanidine Olive Leaf Extract, Resveratrol NADH Percodan, Baclofen, MagnesiumCitrate Prednazone Prednisone 60mg, Lyrica 75mg/d Tegretol 200mg 2x/d Tegretol, Klonopin Tramadol HCL 50mg/4-8hrs, Tylenol Xstrength, Cymbalta, Tizanidine 4mg/3 xd, Zanaflex, Voltaren Gel Tramadol,Lexapro,Cymbalta,Xanax,Norco, Detrol LA,Flomax, Lyrica,Soma,Miralax Zanaflex 2x/d Zanaflex, Baclofen --
Re: Fwd: [TMIC] pain management ideas
that certainly covers a large amount of property ;) --- On Sun, 8/15/10, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: Re: Fwd: [TMIC] pain management ideas To: tmic-list@eskimo.com Date: Sunday, August 15, 2010, 8:47 PM Re: Fwd: [TMIC] pain management ideasBrilliant Betty this is great! 10mg Baclofen (up to 3x/d),Lyrica,Xanax Embeda, Percocet, Tegretol Amantadine 100mg 2X/d, Cymbalta 60mg, Zanaflex 4mg,Tranxene 7.5mg, Darvacet Amatryptaline,Gabapentin,Synthroid,Loratadine,Miralax Amitriptyline (Elavil) 50mg, Tramadol, Lyrica, Wellbutrin Apitherapy Avonex, Betaseron, Copaxone, Lyrica 150mg/d, Cymbalta 60mg/d; Ambien a/n Baclofen Baclofen Baclofen Baclofen Baclofen Baclofen Baclofen 10mg 3x/d, Percocet, Fentanyl Patch, Cymbalta Baclofen 80 3x/d, Ditraphan 15 1x/d, Neurontin 1200/d, Oxyibutynin 5ml 3x/d Baclofen, Clonazapam, Lexapro, Aleve, Klonopin, Vicodin, Cymbalta, Flora Q Baclofen, Vicodin Betaseron Cellcept, Nortryptiline, Provigil, Baclofen Clonidine patch (4 heat) Cymbalta 60mg, Neurontin 300/300/800mg, Flexeril, Darvocet (or- Lortab) Lyrica @bedtime. [plus Tizanadine, Valium (diazepam), Flexeril (cyclobenzaprine), mirapex, Methocarbomal (robaxin) Reglan (metoclopramide)] Cymbalta 60mg, Nexium, Cipro 2x/w Cymbalta 60mg/d, Lyrica 400mg 2x/d, Fentanyl, Vicodin Cymbalta,Miripex,Klonipin,Zanaflex,Amanatidine,Probiotics Daypro Effexor Effexor, Lortab or Advil Elavil 50mg/at nite Elavil 50mg/at nite Fentynal patches 75 mcg, Gabapentin Gabapentin 300mg 2x/d Gabapentin 400mg 3x/d, Tramadol, Sevella(depression) Gabapentin 600mg 4x/d, Imuran, Mexiletine [banding] Gabapentin 900mg 3x/d, Oxycontin 40mg 3x/d Hydrocodone APAP 10/625 3x/d, Fentanyl 100mcg patch, 5mg Valium 4x/d, Flexeril 10mg 3x/d, Lyrica 200mg 3x/d, Tegretol 200mg 6x/d, Ativan 2mg/d Hydrocortisone, Lyrica, Zoloft Imuran, Gabapentin 300mg 3x/d, Zoloft, Ritalin sr Loripan, Percocet Lyrica 150 mg 2x/day, Nortripline 25 mg/(night) Lyrica 50mg 2x/day, Flexaril, Hydrocodone Lyrica 600mg/d, Lyrica 75mg 2x/d, Amantadine 100mg [a.m.p.m.] Lyrica 75mg 2x/d; Baclofen Lyrica 75mg 3x/d Lyrica 75mg 4x/d Lyrica, Baclofen, Oxycodone Lyrica, Prednazone, Celebrex Mestinon, 30 mg 2x/d Morphine, 600mg Gabepentin, Bacoflen 20mg 8x/d MS Contin (Morphine Sulphate), Ativan MS Contin, Lyrica Neur. 300 3x/d,Cymbalta,Tramadol,Flexeril,Rebif Neur., Bacoflen, Advil, Lyrica, Celebrex, Med Kempro Neurontin Neurontin Neurontin 300 4x/d, Provigil (Modafinil) 200mg/d Neurontin 300 5x/d, Copaxone Neurontin 400mg 4x/d, Lortab, Zanaflex, Paxil, Elevil, Prilosec, Dyazide, Evista Zyrtec Neurontin 600mg 4x/d, Norco 7.5-325 4x/d Neurontin 800 3x/d, Imuran (azathioprine) 50mg/d Neurontin 900 3x/d, Naltrexone, Detrol LA Neurontin 900 4x/d Neurontin, Bachlofen, Ambien, Sonata, Klonopin 0.5 mg Neurontin, Baclofen, Hydrocodone Neurontin, Cymbalta, Topamax, Baclofen 20 4x/d, Lasix, Zanaflex 4 4x/d, Detrol LA 4 1x/d, Synthroid, Copaxone, Trazadone, Meclizine (vertigo), Xanax, Mupirocin, Nexium, Restoril (sleep), Seroquel, Darvocet, Fluocinonide Cream, Doxycycline Hyclate (antibiotic); DHEA, Ampyra Neurontin, Ibuprofen Neurontin, Tandrilax, Doxylamine Succinate (insomnia) Norco -- Lyrica 600mg/d Nortriptyline, Phenobarbital, Marijuana spray, Dextromethorphan Nortriptyline, Tizanidine Olive Leaf Extract, Resveratrol NADH Percodan, Baclofen, MagnesiumCitrate Prednazone Prednisone 60mg, Lyrica 75mg/d Tegretol 200mg 2x/d Tegretol, Klonopin Tramadol HCL 50mg/4-8hrs, Tylenol Xstrength, Cymbalta, Tizanidine 4mg/3 xd, Zanaflex, Voltaren Gel Tramadol,Lexapro,Cymbalta,Xanax,Norco, Detrol LA,Flomax, Lyrica,Soma,Miralax Zanaflex 2x/d Zanaflex, Baclofen --
Re: [TMIC] pain management ideas
The way things never go right for me, hypnosis scares the hell out of me! Janice From: john snodgrass Sent: Sunday, August 15, 2010 2:58 PM To: fr...@franksheldon.com Cc: transverse myelitis Subject: Re: [TMIC] pain management ideas hypnosis sounds pretty cool as long as it doesn't take me back to the time i was a paperboy being chased by the crazy dog! --- On Sun, 8/15/10, fr...@franksheldon.com fr...@franksheldon.com wrote: From: fr...@franksheldon.com fr...@franksheldon.com Subject: Re: [TMIC] pain management ideas To: john snodgrass jcs...@yahoo.com, Dennis Rabalais drabala...@gt.rr.com Cc: transverse myelitis tmic-list@eskimo.com Date: Sunday, August 15, 2010, 9:45 AM Hi All, I'm not going to go over my pain meds ( Nortriptyline, Vitamin D, Dextromethorphan, Cannabinoids, Phenobarbital) again. My pain never really goes away unless I add a couple shots of Bourbon or other high test drinks. I am able to keep my pain at #2 or 3 with meds. What really helps is meditation (self hypnosis). I usually listen to quiet classical music, close my eyes and take myself away to some secluded beach in the Exuma chain of islands. My pain will get as low as #1. I am told that there are CD's in which guided imagery is used to take you into self hypnosis. I hope this helps. F
Re: [TMIC] pain management ideas
i believe it is a mixture of things that is unique to each individual. baclofin,neurontin,hydrocodone,and lorazepam helps me to function. the pain is always there but it is worse than i can bear without the meds. and i do not believe that i have the meds just right yet. still many spasms and much grief. read all you can in the past posts. there have been some good reports that may help us,,but just like winning the lottery,,,ya gotta buy a ticket,,,so with the advice,,,ya gotta get a Dr to agree to try and help and play the game. main thing is to never never give up and think there's nothing out there because theres a scad of stuff to try even if its an old Indian cure. and always vent your frustrations in here because we all have suffered similar things as you are suffering. and even sometimes without swearing and pounding the bed ;) be sure to let us all know if you find something that makes a difference for you because that's encouraging. --- On Sat, 8/14/10, Dennis Rabalais drabala...@gt.rr.com wrote: From: Dennis Rabalais drabala...@gt.rr.com Subject: [TMIC] pain management ideas To: tmic tmic-list@eskimo.com Date: Saturday, August 14, 2010, 7:52 PM hi all. i wanted to ask what pain and nerve med's you all have taken that works. i am always in pain. i am out of options with med's i have taken. can anyone help? dennis/tx
[TMIC] Pain Management
Dennis, I was placed on Oxycontin, then Morphine when I left the hospital, neither one did anything for the neuropathic pain in my legs. I was prescribed Neurontin and have not had any pain in my legs other than the times I have tried to wean myself off of it and the pain started back each time. I can say that I had to start off taking 3600mg daily to stop the pain and now I am down to 1200mg. daily. Now I am on the Duragesic Patch 25mg which has been reduced from 125mg.. Neurontin for neuropathic pain and Adderall for the fatigue plus several other meds for various reasons. Bill in South GA
Re: [TMIC] pain management
Dennis, I'm on Neurontin/Gabapentin every day. I was on 3600 mg per day at one time but now take 1800 to 2400 mg per day. I take 600 mg either 3 or 4 times per day at either 5 or 6 hours apart. It eases the pain but certainly doesn't take it away. I don't know about Vicadin, it could already be stronger than what I take. Heather in Calgary - Original Message - From: dennis rabalais [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Thursday, February 09, 2006 5:14 PM Subject: [TMIC] pain management HI ALL, I SUFFER SEVER PAIN FROM LEGS TO BACK. MY QUESTION TO ANYONE IS - WHAT DO YOU USE FOR PAIN? I HAVE BEEN ON VICADIN 7/750 MGS FOR 3 YEARS, AND STILL GO THRU PAIN EVERYDAY. WHAT IS ANYONE'S SUGGUESTIONS? DENNIS BEAUMONT, TX __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.15.4/255 - Release Date: 2/9/2006
Re: [TMIC] pain management
I take 600mg of Neurontin 3 times daily, every 6 hours. I do not need to take it during the night. I am never free of pain, but the Neurontin makes it tolerable. Patti - Michigan --- dennis rabalais [EMAIL PROTECTED] wrote: HI ALL, I SUFFER SEVER PAIN FROM LEGS TO BACK. MY QUESTION TO ANYONE IS - WHAT DO YOU USE FOR PAIN? I HAVE BEEN ON VICADIN 7/750 MGS FOR 3 YEARS, AND STILL GO THRU PAIN EVERYDAY. WHAT IS ANYONE'S SUGGUESTIONS? DENNIS BEAUMONT, TX __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [TMIC] pain management
Heather, I am also on Neurontin/Gabapentin I was on 7200mg a day 6- 300mg pills 4 times a day. The Nueroligist lowered my prescription in January to 6000mg a day 5- 300mg pills 4 times a day. I also had a nuerostimulator implanted in Aug for the pain in my legs. I am having to keep it on at least 18-20 hours a day. If you need help with anything let me know
Re: [TMIC] pain management
I also take 1800-2400 mgs of neurontin each day. It really helps with the burning sensation that I get in my legs. Isn't it odd, that though my legs are totally numb I still feel neuropathic pain? It totally boggle my mind. I've actually spent hours, pricking myself with a pin to see if sensation was coming back and it's always, so far at least, nothing. Yet, I still get the sensation that my legs are on fire. Go figure. Grace
