Re: [TMIC] Relapse Steoirds
YES, BUT SPECIFIC ANTI-BODIES = THE ONESATTACKING THEINFLAMMATION/INFECTION IN THE SPINAL CORD. THEY ARE ATTACKING AND ENGULFING/EATING THE INFECTIOUS INVADER WHICH PRODUCES A PROTEIN-LIKE SUBSTANCE THAT HAS SIMILAR MARKINGS/CHARECTERISTICS AS THE PROTEIN SHEATH THAT SURROUNDS THE AXONS/CONNECTIVE WIRING THAT CONNECTS ONE NERVE CELL TO ANOTHER FOR COMMUNICATION PURPOSES, AND THE ANTI-BODY ALSO EATS THAT SHEATHING THINKING IT IS THE INVADER. THINK OF THE ANTI-BODY AS THE 'PACKMAN' GAME AND IT IS RUNNING AROUND EATING EVERYTHING IN SIGHT, INCLUDING THE GOOD STUFF. This electronic message is confidential and is intended only for the use of the individual to whom it is addressed. The information may also be legally privileged. This transmission is sent in trust, for the sole purpose of delivery to the intended recipient. If you have received this transmission in error, you are hereby notified, that any use, dissemination, distribution or reproduction of this, transmission is strictly prohibited. If you are not the intended, recipient, please immediately notify me by reply electronic message and delete the message from your system. IRS Circular 230 Notice: Any advice contained in this message was not written and is not intended to be used, and cannot be used, by any taxpayer for the purpose of avoiding penalties with respect to taxes that may be imposed upon the taxpayer. - Original Message - From: To: [EMAIL PROTECTED];tmic-list@eskimo.com Sent: 3/1/2006 11:58:31 PM Subject: Re: [TMIC] Relapse Steoirds This may be a stupid question, but when you say 'excess anti-bodies from our system', is that the same as the anti-bodies in our blood? (i.e.: Bloodtype A+ with a positive anti-M anti-body) Sally-Original Message-From: ROBERT COOK [EMAIL PROTECTED]To: tmic-list@eskimo.comSent: Tue, 28 Feb 2006 08:00:29 -0600Subject: RE: [TMIC] Relapse Steoirds Most definitely, stress has been shown to play an important factor in TM for many. You might talk with your neuro about checking the level of protein in your CSF. Bad thing is it requires a spinal tap. This could assist in confirming a relapse or not. If a relapse is suspected, some have benefited from Plasmapharesis treatments to remove excess anti-bodies from our system, which are thought to be the cause of demyelination in many cases. Unfortunately, steroid treatment/therapy is the recommended course. I am not aware of anything to help control the side effects of confusion and associated general malaise feelings. Bob from Houston-Spring Tex Class of 1994 T-1 para BTW, YESTERDAY WAS MY 12 TH ANNIVERSARY WITH TM. YEA FOR ME !!! HIP HIP HURAY ! dANG, AN'T THIS STUFF FUN ? [Original Message] From: C E [EMAIL PROTECTED] To: tmic-list@eskimo.com Date: 2/27/2006 6:58:21 PM Subject: [TMIC] Relapse Steoirds You all are awesome at giving out words of kindness and encouragement. Here is what I am going through and if you have any suggestions, through them my way. June 2005, diagnosed TM. Hospitalized 5 weeks. One week IV steroids, 4 weeks aggressive rehab. Got strong enough to walk again. Beginning of Feb 2006 I started growing weaker. My most affected leg becoming more limp with tighter banding. Met with my neuro, who suggested f/u MRI to look for any changes since June and a Visual Evoked Response Test. The brain MRI showed no change. Which I guess is good since he was looking for MS. But now he says it must must be a relapse of TM.This past weekend, felt like my back was swollen, both legs got worse. I was on an oral dose of Methylprednisolone (Steroid) 250 mg 2 capsules twice daily for 5 days then 1 daily for 5 days, the neuro said that was equal to the IV I had in June. Since I finished this dosage 2 days ago, I became worse. Today my neuro is now putting me back on a steroid, but a different one and a lower dose. Prednisone 60 mg for 4 days, then 40mg for 4 days, and then 20 mg for 4 days. I HATE the way I felt while I was on the Methylprednisolone. I was depressed, food tasted like crap, and overall feeling of exhaustion. I am also diabetic, controlled by Actos, diet and exercise. Naturally, taking the steroids I had to use insulin injections to keep the blood sugar under control. What I would like to do is crawl in a dark room and stay there for the next 12 days. :( AND I have an interview for a new job on March 3rd, cause I got fired from my last one cause I can't keep my thoughts straight and not learning it fast enough. I have NEVER encountered this problem before. Is there anything I can do? What else besides steroids are out there for this monster, TM? How many relapses are probable? I was doing so good and now back to using the walker. Could stress from the job have brought on the relapse. Are there any finding of this sort that stress and TM do not mix? How do I get through the next 12 days of steroids
Re: [TMIC] Relapse Steoirds
This may be a stupid question, but when you say 'excess anti-bodies from our system', is that the same as the anti-bodies in our blood? (i.e.: Bloodtype A+ with a positive anti-M anti-body) Sally-Original Message-From: ROBERT COOK [EMAIL PROTECTED]To: tmic-list@eskimo.comSent: Tue, 28 Feb 2006 08:00:29 -0600Subject: RE: [TMIC] Relapse Steoirds Most definitely, stress has been shown to play an important factor in TM for many. You might talk with your neuro about checking the level of protein in your CSF. Bad thing is it requires a spinal tap. This could assist in confirming a relapse or not. If a relapse is suspected, some have benefited from Plasmapharesis treatments to remove excess anti-bodies from our system, which are thought to be the cause of demyelination in many cases. Unfortunately, steroid treatment/therapy is the recommended course. I am not aware of anything to help control the side effects of confusion and associated general malaise feelings. Bob from Houston-Spring Tex Class of 1994 T-1 para BTW, YESTERDAY WAS MY 12 TH ANNIVERSARY WITH TM. YEA FOR ME !!! HIP HIP HURAY ! dANG, AN'T THIS STUFF FUN ? [Original Message] From: C E [EMAIL PROTECTED] To: tmic-list@eskimo.com Date: 2/27/2006 6:58:21 PM Subject: [TMIC] Relapse Steoirds You all are awesome at giving out words of kindness and encouragement. Here is what I am going through and if you have any suggestions, through them my way. June 2005, diagnosed TM. Hospitalized 5 weeks. One week IV steroids, 4 weeks aggressive rehab. Got strong enough to walk again. Beginning of Feb 2006 I started growing weaker. My most affected leg becoming more limp with tighter banding. Met with my neuro, who suggested f/u MRI to look for any changes since June and a Visual Evoked Response Test. The brain MRI showed no change. Which I guess is good since he was looking for MS. But now he says it must must be a relapse of TM.This past weekend, felt like my back was swollen, both legs got worse. I was on an oral dose of Methylprednisolone (Steroid) 250 mg 2 capsules twice daily for 5 days then 1 daily for 5 days, the neuro said that was equal to the IV I had in June. Since I finished this dosage 2 days ago, I became worse. Today my neuro is now putting me back on a steroid, but a different one and a lower dose. Prednisone 60 mg for 4 days, then 40mg for 4 days, and then 20 mg for 4 days. I HATE the way I felt while I was on the Methylprednisolone. I was depressed, food tasted like crap, and overall feeling of exhaustion. I am also diabetic, controlled by Actos, diet and exercise. Naturally, taking the steroids I had to use insulin injections to keep the blood sugar under control. What I would like to do is crawl in a dark room and stay there for the next 12 days. :( AND I have an interview for a new job on March 3rd, cause I got fired from my last one cause I can't keep my thoughts straight and not learning it fast enough. I have NEVER encountered this problem before. Is there anything I can do? What else besides steroids are out there for this monster, TM? How many relapses are probable? I was doing so good and now back to using the walker. Could stress from the job have brought on the relapse. Are there any finding of this sort that stress and TM do not mix? How do I get through the next 12 days of steroids and and interview? How did you all overcome the ill affects of steroids when you were on them? Recap: my concerns of relapse, feeling of sickness and depression and overall feeling of cloudiness while taking the steroids. Carol in Culver, IN T10
Re: [TMIC] Relapse Steoirds
Carol, How the heckdo you WORK? Is it full-time? I was first hit last May, and am walking, etc. fairly well but have such limited endurance. I'm great some days, and others, it's all I can do to take care of myself, especially ifI have an appt. or have to take the bus to buy groceries. So I'm wonderingif your body doesn't just plain need more rest to heal completely? That's my UNprofessional opinion - I really don't know any answers, but that just seems logical. Sally -Original Message-From: C E [EMAIL PROTECTED]To: tmic-list@eskimo.comSent: Mon, 27 Feb 2006 19:57:37 -0500Subject: [TMIC] Relapse Steoirds You all are awesome at giving out words of kindness and encouragement. Here is what I am going through and if you have any suggestions, through them my way.June 2005, diagnosed TM. Hospitalized 5 weeks. One week IV steroids, 4 weeks aggressive rehab. Got strong enough to walk again.Beginning of Feb 2006 I started growing weaker. My most affected leg becoming more limp with tighter banding. Met with my neuro, who suggested f/u MRI to look for any changes since June and a Visual Evoked Response Test. The brain MRI showed no change. Which I guess is good since he was looking for MS. But now he says it must must be a relapse of TM.This past weekend, felt like my back was swollen, both legs got worse. I was on an oral dose ofMethylprednisolone (Steroid) 250 mg 2 capsules twice daily for 5 days then 1 daily for 5 days, the neuro said that was equal to ! the IV I had in June. Since I finished this dosage 2 days ago, I became worse. Today my neuro is now putting me back on a steroid, but a different one and a lower dose. Prednisone 60 mg for 4 days, then 40mg for 4 days, and then 20 mg for 4 days. I HATE the way I felt while I was on the Methylprednisolone. I was depressed, food tasted like crap, and overall feeling of exhaustion. I am also diabetic, controlled by Actos, diet and exercise. Naturally, taking the steroids I had to use insulin injections to keep the blood sugar under control. What I would like to do is crawl in a dark room and stay there for the next 12 days. :( AND I have an interview for a new job on March 3rd, cause I got fired from my last one cause I can't keep my thoughts straight and not learning it fast enough. I have NEVER encountered this problem before. Is there anything I can do? What else besides steroids are out there for this monster, TM? How many relapses are probable? I was doing so good and no! w back to using the walker. Could stress from the job have bro! ught on the relapse. Are there any finding of this sort that stress and TM do not mix? How do I get through the next 12 days of steroids and and interview? How did you all overcome the ill affects of steroids when you were on them?Recap: my concerns of relapse, feeling of sickness and depression and overall feeling of cloudiness while taking the steroids.Carol in Culver, INT10
RE: [TMIC] Relapse Steoirds
Most definitely, stress has been shown to play an important factor in TM for many. You might talk with your neuro about checking the level of protein in your CSF. Bad thing is it requires a spinal tap. This could assist in confirming a relapse or not. If a relapse is suspected, some have benefited from Plasmapharesis treatments to remove excess anti-bodies from our system, which are thought to be the cause of demyelination in many cases. Unfortunately, steroid treatment/therapy is the recommended course. I am not aware of anything to help control the side effects of confusion and associated general malaise feelings. Bob from Houston-Spring Tex Class of 1994 T-1 para BTW, YESTERDAY WAS MY 12 TH ANNIVERSARY WITH TM. YEA FOR ME !!! HIP HIP HURAY ! dANG, AN'T THIS STUFF FUN ? [Original Message] From: C E [EMAIL PROTECTED] To: tmic-list@eskimo.com Date: 2/27/2006 6:58:21 PM Subject: [TMIC] Relapse Steoirds You all are awesome at giving out words of kindness and encouragement. Here is what I am going through and if you have any suggestions, through them my way. June 2005, diagnosed TM. Hospitalized 5 weeks. One week IV steroids, 4 weeks aggressive rehab. Got strong enough to walk again. Beginning of Feb 2006 I started growing weaker. My most affected leg becoming more limp with tighter banding. Met with my neuro, who suggested f/u MRI to look for any changes since June and a Visual Evoked Response Test. The brain MRI showed no change. Which I guess is good since he was looking for MS. But now he says it must must be a relapse of TM.This past weekend, felt like my back was swollen, both legs got worse. I was on an oral dose of Methylprednisolone (Steroid) 250 mg 2 capsules twice daily for 5 days then 1 daily for 5 days, the neuro said that was equal to the IV I had in June. Since I finished this dosage 2 days ago, I became worse. Today my neuro is now putting me back on a steroid, but a different one and a lower dose. Prednisone 60 mg for 4 days, then 40mg for 4 days, and then 20 mg for 4 days. I HATE the way I felt while I was on the Methylprednisolone. I was depressed, food tasted like crap, and overall feeling of exhaustion. I am also diabetic, controlled by Actos, diet and exercise. Naturally, taking the steroids I had to use insulin injections to keep the blood sugar under control. What I would like to do is crawl in a dark room and stay there for the next 12 days. :( AND I have an interview for a new job on March 3rd, cause I got fired from my last one cause I can't keep my thoughts straight and not learning it fast enough. I have NEVER encountered this problem before. Is there anything I can do? What else besides steroids are out there for this monster, TM? How many relapses are probable? I was doing so good and now back to using the walker. Could stress from the job have brought on the relapse. Are there any finding of this sort that stress and TM do not mix? How do I get through the next 12 days of steroids and and interview? How did you all overcome the ill affects of steroids when you were on them? Recap: my concerns of relapse, feeling of sickness and depression and overall feeling of cloudiness while taking the steroids. Carol in Culver, IN T10
[TMIC] Relapse Steoirds
You all are awesome at giving out words of kindness and encouragement. Here is what I am going through and if you have any suggestions, through them my way. June 2005, diagnosed TM. Hospitalized 5 weeks. One week IV steroids, 4 weeks aggressive rehab. Got strong enough to walk again. Beginning of Feb 2006 I started growing weaker. My most affected leg becoming more limp with tighter banding. Met with my neuro, who suggested f/u MRI to look for any changes since June and a Visual Evoked Response Test. The brain MRI showed no change. Which I guess is good since he was looking for MS. But now he says it must must be a relapse of TM.This past weekend, felt like my back was swollen, both legs got worse. I was on an oral dose of Methylprednisolone (Steroid) 250 mg 2 capsules twice daily for 5 days then 1 daily for 5 days, the neuro said that was equal to the IV I had in June. Since I finished this dosage 2 days ago, I became worse. Today my neuro is now putting me back on a steroid, but a different one and a lower dose. Prednisone 60 mg for 4 days, then 40mg for 4 days, and then 20 mg for 4 days. I HATE the way I felt while I was on the Methylprednisolone. I was depressed, food tasted like crap, and overall feeling of exhaustion. I am also diabetic, controlled by Actos, diet and exercise. Naturally, taking the steroids I had to use insulin injections to keep the blood sugar under control. What I would like to do is crawl in a dark room and stay there for the next 12 days. :( AND I have an interview for a new job on March 3rd, cause I got fired from my last one cause I can't keep my thoughts straight and not learning it fast enough. I have NEVER encountered this problem before. Is there anything I can do? What else besides steroids are out there for this monster, TM? How many relapses are probable? I was doing so good and now back to using the walker. Could stress from the job have brought on the relapse. Are there any finding of this sort that stress and TM do not mix? How do I get through the next 12 days of steroids and and interview? How did you all overcome the ill affects of steroids when you were on them? Recap: my concerns of relapse, feeling of sickness and depression and overall feeling of cloudiness while taking the steroids. Carol in Culver, IN T10
