You all are awesome at giving out words of kindness and encouragement. Here
is what I am going through and if you have any suggestions, through them my
way.
June 2005, diagnosed TM. Hospitalized 5 weeks. One week IV steroids, 4
weeks aggressive rehab. Got strong enough to walk again.
Beginning of Feb 2006 I started growing weaker. My most affected leg
becoming more limp with tighter banding. Met with my neuro, who suggested
f/u MRI to look for any changes since June and a Visual Evoked Response
Test. The brain MRI showed no change. Which I guess is good since he was
looking for MS. But now he says it must must be a relapse of TM.This past
weekend, felt like my back was swollen, both legs got worse. I was on an
oral dose of
Methylprednisolone (Steroid) 250 mg 2 capsules twice daily for 5 days then
1 daily for 5 days, the neuro said that was equal to the IV I had in June.
Since I finished this dosage 2 days ago, I became worse. Today my neuro is
now putting me back on a steroid, but a different one and a lower dose.
Prednisone 60 mg for 4 days, then 40mg for 4 days, and then 20 mg for 4
days. I HATE the way I felt while I was on the Methylprednisolone. I was
depressed, food tasted like crap, and overall feeling of exhaustion. I am
also diabetic, controlled by Actos, diet and exercise. Naturally, taking
the steroids I had to use insulin injections to keep the blood sugar under
control. What I would like to do is crawl in a dark room and stay there for
the next 12 days. :( AND I have an interview for a new job on March 3rd,
cause I got fired from my last one cause I can't keep my thoughts straight
and not learning it fast enough. I have NEVER encountered this problem
before. Is there anything I can do? What else besides steroids are out
there for this monster, TM? How many relapses are probable? I was doing so
good and now back to using the walker. Could stress from the job have
brought on the relapse. Are there any finding of this sort that stress and
TM do not mix? How do I get through the next 12 days of steroids and and
interview? How did you all overcome the ill affects of steroids when you
were on them?
Recap: my concerns of relapse, feeling of sickness and depression and
overall feeling of cloudiness while taking the steroids.
Carol in Culver, IN
T10
- [TMIC] Relapse & Steoirds C E
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