Fw: Re: [TMIC] TM and MS + carecure.org problem

2009-08-14 Thread jrushton
Jim, could you help Laura get set up on here and the TMA site???  Thanks so
much!  Jeanne

---Original Message---
 
From: Laura Beaudin
Date: 8/14/2009 1:22:16 AM
To: jrushton
Subject: Re: [TMIC] TM and MS + carecure.org problem
 
Hi Jeanne,
 
I believe that this is the only email I received from you, but thanks.
I'm glad that you were able to recover...I keep hoping that something
will improve, but so far there is nothing. I have total paralysis
(movement-wise) south of T10 and limited feeling. Bladder and bowels
also went out the door with the TM. I was in hospital for 4 months,
much of that at a leading rehab hospital, but there is only so much
they can do unfortunately when the muscles refuse to react to any
stimulation.
 
Could you send me some links to TM sites? I am still unfamiliar with
most of them. I am also on facebook at the above address, would love
it if you added me.
 
Thanks
 
Laura
 
On Fri, Aug 14, 2009 at 8:36 PM, jrushtonjrush...@columbiaenergyllc.com
wrote:
  Hi, Laura,

 I think I just e-mailed you???

 When I was first stricken with TM in 2005, I was paralyzed from the chest
 down and with lots and lots of PT, I am able to walk actually pretty well.
 Much better at home than when I go somewhere.  Those times I sometimes use
 my wheelchair and when we travel, I use it quite often.  All of this is
from
 stubbornness and pure determination and never, ever giving up.  We have a
 hot tub and I do all of my PT in that and I think that has helped me more
 than anything else.  I really think water therapy is number one in getting
 you better.

 I still can't feel from the chest down like I could before but I so have
odd
 sensations but nothing really like normal.  I had to retrain myself to go
to
 the bathroom and still have urinary issues but nothing I can't handle. 
The
 bowel issue doesn't work without help of herbs but it also works.

 I hope this helps, Laurie.  The TMIC group is so wonderful and it is like
a
 big, caring family of friends.  Please join one the TM sites as there are
a
 few.  You can find one that 'fits' you the best.  I'm also on Facebook and
 there are a lot of us TMer's on that, also.  Please take care..Jeanne

 ---Original Message---

 From: Laura Beaudin
 Date: 8/13/2009 11:26:41 PM
 To: tmic-list@eskimo.com
 Subject: [TMIC] TM and MS + carecure.org problem

 Hi,

 I recently joined this list and am happy to have found it. I've had MS
 symptoms since I was 17 and was diagnosed with MS several years ago
 (I'm 31). I started getting severe back spasms in March, along with
 other relapse symptoms, so after emailing my neuro for his input,
 decided to go to the ER for pain management and steroids. I walked in
 and never walked since. TM is the cause and I'm wondering if many of
 you have MS and what kind of recovery you have had?

 I've had total paraparesis since with no recovery and am pass the
 three month mark, which kinda depresses me. I was discharged a month
 ago and am frustrated with life in a wheelchair, especially as a
 newly-single mother with two preschoolers.

 I also wanted to ask if someone has a connection with carecure.org
 (which is where I found out about this list, I believe). I've been
 trying to register and there's a problem with their captcha
 software...so I can't even contact them via email about it, since
 their contact form uses the same software. Could someone kindly
 contact an admin and ask them to contact me at my email?
 (laura.beau...@gmail.com). It looks like an awesome site, but I'd
 rather get the chance to participate.

 Cheers!

 Laura

 --

 Laura
 http://practical-homeschooling.org
 http://www.flickr.com/photos/khaleeka


 
 
 
--
Laura
http://practical-homeschooling.org
http://www.flickr.com/photos/khaleeka
 

Re: [TMIC] TM and MS + carecure.org problem

2009-08-14 Thread Janice

Laura,
I am glad you have joined this group - welcome!
There are several here who have had TM and then MS. I am sure they will 
weigh in and talk to you about

your questions.
Janice

- Original Message - 
From: Laura Beaudin laura.beau...@gmail.com

To: tmic-list@eskimo.com
Sent: Thursday, August 13, 2009 11:26 PM
Subject: [TMIC] TM and MS + carecure.org problem



Hi,

I recently joined this list and am happy to have found it. I've had MS
symptoms since I was 17 and was diagnosed with MS several years ago
(I'm 31). I started getting severe back spasms in March, along with
other relapse symptoms, so after emailing my neuro for his input,
decided to go to the ER for pain management and steroids. I walked in
and never walked since. TM is the cause and I'm wondering if many of
you have MS and what kind of recovery you have had?

I've had total paraparesis since with no recovery and am pass the
three month mark, which kinda depresses me. I was discharged a month
ago and am frustrated with life in a wheelchair, especially as a
newly-single mother with two preschoolers.

I also wanted to ask if someone has a connection with carecure.org
(which is where I found out about this list, I believe). I've been
trying to register and there's a problem with their captcha
software...so I can't even contact them via email about it, since
their contact form uses the same software. Could someone kindly
contact an admin and ask them to contact me at my email?
(laura.beau...@gmail.com). It looks like an awesome site, but I'd
rather get the chance to participate.

Cheers!

Laura

--

Laura
http://practical-homeschooling.org
http://www.flickr.com/photos/khaleeka







Re: [TMIC] TM and MS + carecure.org problem

2009-08-14 Thread L T CHERPESKI
Hi Laura and welcome!  As Janice said there are several people who have had TM 
 MS, and I'm sure they will help with any questions you may have.  Also, 
Jeanne had suggested that you get set up on the TMA site, click on Message 
Forum.  There is a wealth of information there about those who have TM/MS.  If 
you have any questions about how to post any questions, just let us know.  
We're happy to help.

Linda  
  - Original Message - 
  From: Janicemailto:jan...@centurytel.net 
  To: Laura Beaudinmailto:laura.beau...@gmail.com ; 
tmic-list@eskimo.commailto:tmic-list@eskimo.com 
  Sent: Friday, August 14, 2009 6:42 PM
  Subject: Re: [TMIC] TM and MS + carecure.org problem


  Laura,
  I am glad you have joined this group - welcome!
  There are several here who have had TM and then MS. I am sure they will 
  weigh in and talk to you about
  your questions.
  Janice

  - Original Message - 
  From: Laura Beaudin 
laura.beau...@gmail.commailto:laura.beau...@gmail.com
  To: tmic-list@eskimo.commailto:tmic-list@eskimo.com
  Sent: Thursday, August 13, 2009 11:26 PM
  Subject: [TMIC] TM and MS + carecure.org problem


   Hi,
  
   I recently joined this list and am happy to have found it. I've had MS
   symptoms since I was 17 and was diagnosed with MS several years ago
   (I'm 31). I started getting severe back spasms in March, along with
   other relapse symptoms, so after emailing my neuro for his input,
   decided to go to the ER for pain management and steroids. I walked in
   and never walked since. TM is the cause and I'm wondering if many of
   you have MS and what kind of recovery you have had?
  
   I've had total paraparesis since with no recovery and am pass the
   three month mark, which kinda depresses me. I was discharged a month
   ago and am frustrated with life in a wheelchair, especially as a
   newly-single mother with two preschoolers.
  
   I also wanted to ask if someone has a connection with carecure.org
   (which is where I found out about this list, I believe). I've been
   trying to register and there's a problem with their captcha
   software...so I can't even contact them via email about it, since
   their contact form uses the same software. Could someone kindly
   contact an admin and ask them to contact me at my email?
   (laura.beau...@gmail.commailto:laura.beau...@gmail.com). It looks like an 
awesome site, but I'd
   rather get the chance to participate.
  
   Cheers!
  
   Laura
  
   -- 
  
   Laura
   http://practical-homeschooling.orghttp://practical-homeschooling.org/
   http://www.flickr.com/photos/khaleekahttp://www.flickr.com/photos/khaleeka
  
   




[TMIC] TM and MS + carecure.org problem

2009-08-13 Thread Laura Beaudin
Hi,

I recently joined this list and am happy to have found it. I've had MS
symptoms since I was 17 and was diagnosed with MS several years ago
(I'm 31). I started getting severe back spasms in March, along with
other relapse symptoms, so after emailing my neuro for his input,
decided to go to the ER for pain management and steroids. I walked in
and never walked since. TM is the cause and I'm wondering if many of
you have MS and what kind of recovery you have had?

I've had total paraparesis since with no recovery and am pass the
three month mark, which kinda depresses me. I was discharged a month
ago and am frustrated with life in a wheelchair, especially as a
newly-single mother with two preschoolers.

I also wanted to ask if someone has a connection with carecure.org
(which is where I found out about this list, I believe). I've been
trying to register and there's a problem with their captcha
software...so I can't even contact them via email about it, since
their contact form uses the same software. Could someone kindly
contact an admin and ask them to contact me at my email?
(laura.beau...@gmail.com). It looks like an awesome site, but I'd
rather get the chance to participate.

Cheers!

Laura

-- 

Laura
http://practical-homeschooling.org
http://www.flickr.com/photos/khaleeka



[TMIC] TM or MS?

2007-08-22 Thread Regina Rummel
Grace,
  What is LETM's and what is MNO?


Re: [TMIC] TM or MS?

2007-08-22 Thread Grace M.
Hi Regina,

NMO is often referred to as Devic's Disease.  It is extremely rare, though
in the last years I have heard that the number of  documented cases has
climbed to around 1000-1500 here in the States.   LETM lesions are :  Long
extensive transverse myelitis, usually covering at least three segments of
cord, and often more.  At this time, NMO is incurable, and for a lot of
relapsing patients, like myself, the prognosis is poor.  We incur our damage
during the acute attack.  Our lesions are different in that they are often
necrotic (Tissue death.) with cavitations.  In our variety of optic
neuritis, there is also axon death in the optic nerve.  The Mayo Clinic was
the very first facility to devise a test for this disease, discovering that
unlike MS or Transverse Myelitis, the disease is antibody dependent.   The
sad thing is that neuros as a whole, are so unfamiliar with it and often
misdiagnose it as MS, meaning that the patient is deprived of the
appropriate treatment, often with catastrophic results.   Currently, I am
undergoing Rituxan infusions.  It has had some promising results in the
initial clinical trials for NMO, and the trials are still going on.
Whenever my oral drugs stopped working, my neuro decided that it was my best
shot at lengthening the amount of time between attacks and also making them
more manageable wheneverthey do occur.   Hope this helps.

Grace


[TMIC] TM and MS

2006-02-17 Thread neda fotouhie
Hi  My father's symptoms become worse and doctors say his TM may turn into MS. He has no lesions in his brain.They prescriped Betafron/Betaseron. It is a medicine for Ms. I want to know if any of you use this drug and do you think is it possible without having lesions in brain one have MS?
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RE: [TMIC] TM and MS

2006-02-17 Thread C E
I do not take this medication or any for TM except for my bowels that don't 
function properly.  But this is the info I have been given from my neuro 
regarding TM and MS.  He told me when I was diagnosed with TM that about 30% 
of the patients will go on to deveolp M/S.  He said he diagnosed a male with 
TM, no white spots in his brain at that time and 7 years later had M/S.


I was diagnosed June 2005 with TM and now due to developing problems, I am 
having a brain MRI next Fri to see if I have developed any more white spots 
and started me on 1000mg sterods for 5 days and decreasing to 250mg for the 
last 5 days.  Naturally, my sugar has sky rocketed and now injection during 
this use of steroids.   At the time of TM diagnois, I had only 2 white 
spots, which he assured me was good for a 55 year old person.  As I saw 
someone had already written a few days ago, he also told me to develop these 
spots is natuaral progression as we age.  Whatever!  I take it one day at a 
time.

Carol from Culver



From: neda fotouhie [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] TM and MS
Date: Fri, 17 Feb 2006 00:09:22 -0800 (PST)

Hi
  My father's symptoms become worse and doctors say his TM may turn into 
MS. He has no lesions in his brain.They prescriped Betafron/Betaseron. It 
is a medicine for Ms. I want to know if any of you use this drug and do you 
think is it possible without having lesions in brain one have MS?





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Re: [TMIC] TM and MS

2006-02-17 Thread Sandy Heidel



I used this for about two years beforeI 
made the switch to rebif another MS drug. Rebif was not yet approved 
in the US so I started on the betaseron until it was. But towards 
the end of my time on the betaseron they changed their formula so the drug no 
longer needed refrigeration. Once they did that I started having terrible sight 
reactions again. I had them at the beginning too but they tapered off. Once the 
new formula was in place they got very bad again. So I was happy to make 
the change to the rebif. 

The only difference is the rebif stings when you 
take it. The beta did not. But you can get a Rx for some cream that numbs 
the skin. I generally don't have any sensation at the shot sight but every once 
in a while I hit a "live nerve" and Yowww that sucker burns. 

Also the drug company will tell you to use an 
ice pack before and after the shot (either beta or rebif). But if you use 
a hot pack the sight reactions are smaller, the pain is less, and the drug is 
absorbed faster. This is what the drug company "experts" have learned from 
real live patients like us. So skip the ice and use a hot pack. I 
use a sock filled with rice in the micro for a minute or 
two.
Take care. Your Dad is lucky to have you looking 
out for him,
Sandy in Wisconsin where snow actually 
fell like it was promised but my husband still bought the wrong lottery 
tickets!


  - Original Message - 
  From: 
  neda 
  fotouhie 
  To: tmic-list@eskimo.com 
  Sent: Friday, February 17, 2006 2:09 
  AM
  Subject: [TMIC] TM and MS
  
  Hi
  My father's symptoms become worse and doctors say his TM may turn into 
  MS. He has no lesions in his brain.They prescriped Betafron/Betaseron. It is a 
  medicine for Ms. I want to know if any of you use this drug and do you think 
  is it possible without having lesions in brain one have MS?
  
  
  Yahoo! MailUse 
  Photomail to share photos without annoying 
attachments.


Re: [TMIC] TM and MS

2006-02-17 Thread jeff bernier
hi  i must have missed your original post,please give me a little history on your dad,(as far as symptoms and treatments).this topic has been going on for a couple of weeks and theres alotof lnteresting post on it.   jeff   central nyneda fotouhie [EMAIL PROTECTED] wrote:Hi !
  My
 father's symptoms become worse and doctors say his TM may turn into MS. He has no lesions in his brain.They prescriped Betafron/Betaseron. It is a medicine for Ms. I want to know if any of you use this drug and do you think is it possible without having lesions in brain one have MS?  Yahoo! MailUse Photomail to share photos without annoying attachments.DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US.
		Relax. Yahoo! Mail 
virus scanning helps detect nasty viruses!

Re: [TMIC] TM or MS

2006-02-15 Thread Sue Zieke
marie, your story certainly struck a chord with me. i was dx with tm in 
may 2000.  one lesion c2-c6. none in my brain. sept 2005 my neuro 
repeated brain mri, i have 10 plus lesions in my brain, she tells me 
absolutely i now have ms.  then 2 weeks later as we talk again she 
changes her tune after reviewing an mri i had in 2002 when i had 
pneumonia, which was not of good quality as i couldn't hold still 
because of the pain, because it too showed changes in the white matter 
of my brain, then they called them insignificant. she says because 
there hasn't been any other big symptoms it might not be ms. i did have 
an episode of not being able to initiate swallowing a year ago.  so she 
ran more tests, evoked potentials on eyes and brain stem, another 
lumbar punch, neuropsych testing. no more signs of demylenization so 
for now it's not ms.  the neuropsych testing did show marked decrease 
in memory which could be a sign of ms, but not without other symptoms  
she says that some people over 50, i'm 53, get these lesions in their 
brains, just a part of aging, i guess. i really felt yanked around 
emotionally. but am glad she changed her mind and didn't go ahead and 
put me on the ms drugs.  i have an appt in may to see dr kerr and am 
looking forward to getting another opinion on this.   sue



On Sunday, February 12, 2006, at 10:12  PM, [EMAIL PROTECTED] 
wrote:


Feb. 7th was my 4th year anniversary of having TM... I have come a 
long way from that night from hell when no-one could figure out 
exactly what was wrong with me... Finally, it was decided TM was the 
diagnosis. Johns Hopkins agreed with this diagnosis.I take 600mg of 
neurontin 4 times a day... tho am never without pain.. I now walk with 
a walker, have hand controls on my car and with my faith and family 
have adjusted to my new life style. Due to Medicare I had to switch 
all my doctors. A Neurologist was highly recommened as one of the best 
in the area. Long story short...after all new MRI's etc... etc.. he 
informed me that without a doubt I have Multiple Sclerosis. I am still 
in shock and not sure what is my next step. I have made an appointment 
with another top neurologist in the D.C area..  I have 5 lesions on  
my brain which supposedly indicate MS. I am 59 years old. Also my 
brother -55- was just diagnosed with underlying MS
Any thoughts, suggestions would be greatly, greatly accepted... Anyone 
of you with TM have lesions on the brain

Thanks so much!
Marie Arthur





Re: [TMIC] TM or MS

2006-02-15 Thread Heather Pieter

Hi Sue,

Please let us know what Dr. Kerr has to say about your history after you 
have seen him.  It will be very interesting to see his take on all this.


Heather in Calgary

- Original Message - 
From: Sue Zieke [EMAIL PROTECTED]

To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Sent: Wednesday, February 15, 2006 9:27 AM
Subject: Re: [TMIC] TM or MS


marie, your story certainly struck a chord with me. i was dx with tm in 
may 2000.  one lesion c2-c6. none in my brain. sept 2005 my neuro repeated 
brain mri, i have 10 plus lesions in my brain, she tells me absolutely i 
now have ms.  then 2 weeks later as we talk again she changes her tune 
after reviewing an mri i had in 2002 when i had pneumonia, which was not 
of good quality as i couldn't hold still because of the pain, because it 
too showed changes in the white matter of my brain, then they called them 
insignificant. she says because there hasn't been any other big symptoms 
it might not be ms. i did have an episode of not being able to initiate 
swallowing a year ago.  so she ran more tests, evoked potentials on eyes 
and brain stem, another lumbar punch, neuropsych testing. no more signs of 
demylenization so for now it's not ms.  the neuropsych testing did show 
marked decrease in memory which could be a sign of ms, but not without 
other symptoms  she says that some people over 50, i'm 53, get these 
lesions in their brains, just a part of aging, i guess. i really felt 
yanked around emotionally. but am glad she changed her mind and didn't go 
ahead and put me on the ms drugs.  i have an appt in may to see dr kerr 
and am looking forward to getting another opinion on this.   sue



On Sunday, February 12, 2006, at 10:12  PM, [EMAIL PROTECTED] 
wrote:


Feb. 7th was my 4th year anniversary of having TM... I have come a long 
way from that night from hell when no-one could figure out exactly what 
was wrong with me... Finally, it was decided TM was the diagnosis. Johns 
Hopkins agreed with this diagnosis.I take 600mg of neurontin 4 times a 
day... tho am never without pain.. I now walk with a walker, have hand 
controls on my car and with my faith and family have adjusted to my new 
life style. Due to Medicare I had to switch all my doctors. A Neurologist 
was highly recommened as one of the best in the area. Long story 
short...after all new MRI's etc... etc.. he informed me that without a 
doubt I have Multiple Sclerosis. I am still in shock and not sure what is 
my next step. I have made an appointment with another top neurologist 
in the D.C area..  I have 5 lesions on  my brain which supposedly 
indicate MS. I am 59 years old. Also my brother -55- was just diagnosed 
with underlying MS
Any thoughts, suggestions would be greatly, greatly accepted... Anyone of 
you with TM have lesions on the brain

Thanks so much!
Marie Arthur





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Re: [TMIC] TM or MS]

2006-02-14 Thread Jan Hargrove
During the diagnosis process they did MRIs of the spine and the brainI had lesions in bothbut the lesions on the brain were not MS, but rather I was diagnosed with Acute Tranvsverse Myelitis with Encephalytis (sp?)..when the Enceph abated, so did the lesions...as did the lesion on my spine..my most recent brain MRI only shows signs ofTIAs that I've had over theyears...the spine MRI shows t8 as the spot of my TM, but no lesion thereThis TM is weird, and each of us differs in how we present our maladies! janh Stillwater, OKGary and Becky Thomas [EMAIL PROTECTED] wrote:  Marie,I guess this is something new to me. I was under the impression that with TM the brain had no lesions, just the spinal cord. But if you had lesions on the brain while at Joh!
 ns
 Hopkins and they diagnosed you as TM, not MS, then someone can have lesions on the brain and NOT have MS (except NOW another Dr. says you HAVE MS!).I guess I'm confused about the brain lesions!Crystal wrote to me, and an MRI DID NOT show lesions on her brain but a Lumbar Puncture led to a diagnosis of Progressive MS.So, I guess one can have MS WITHOUT lesions, and according to your Johns Hopkins diagnosis, one can have brain lesions WITHOUT MS. ??Gary in Michigan- Original Message - From: <[EMAIL PROTECTED]>To: <TMIC-LIST@ESKIMO.COM>Sent: Sunday, February 12, 2006 11:50 PMSubject: [Re: [TMIC] TM or MS] From: [EMAIL PROTECTED] Date: Sun Feb 12 22:34:43 CST 2006 To: Deborah Nord Capen <[EMAIL PROTECTED]> Subject: Re: Re: [TMIC] TM or MS Yes, the lesions were there and I have had no real changes in four years??  Dr. Pa!
 rdo saw
 me four years ago and his diagnosis was TM. Thanks for your reply! MarieFrom: Deborah Nord Capen <[EMAIL PROTECTED]>Date: Sun Feb 12 22:30:11 CST 2006To: [EMAIL PROTECTED]Subject: Re: [TMIC] TM or MSDear Marie,Did you have these lesions on your brain four years ago when you went to Johns Hopkins?? Or are these new developments?? Johns Hopkins Transverse Myelopathy Center is the only center in the world that has the most knowledge and treats approximately 700 patients (more than any other doctor) with TM.? ?The brain lesions may be something that came on after your initial diagnosis.?Take care,Debbie? - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, February 12, 2006 8:12 PM Subject: [TMIC] TM or MSFeb. 7th was my 4th year
 anniversary of having TM... I have come a long way from that night from "hell" when no-one could figure out exactly what was wrong with me... Finally, it was decided TM was the diagnosis. Johns Hopkins agreed with this diagnosis.I take 600mg of neurontin 4 times a day... tho am never without pain.. I now walk with a walker, have hand controls on my car and with my faith and family have adjusted to my new life style. Due to Medicare I had to switch all my doctors. A Neurologist was highly recommened as one of the best in the area. Long story short...after all new MRI's etc... etc.. he informed me that without a doubt I have Multiple Sclerosis. I am still in shock and not sure what is my next step. I have made an appointment with another "top" neurologist in the D.C area..? I have 5 lesions on? my brain which supposedly indicate MS. I!
  am 59
 years old. Also my brother -55- was just diagnosed with underlying MSAny thoughts, suggestions would be greatly, greatly accepted... Anyone of you with TM have lesions on the brainThanks so much!Marie Arthur   

[Re: [TMIC] TM or MS]

2006-02-12 Thread marie_arthur
From: [EMAIL PROTECTED]
Date: Sun Feb 12 22:34:43 CST 2006
To: Deborah Nord Capen [EMAIL PROTECTED]
Subject: Re: Re: [TMIC] TM or MS

Yes, the lesions were there and I have had no real changes in four years?? Dr. 
Pardo saw me four years ago and his diagnosis was TM.
Thanks for your reply!
Marie


From: Deborah Nord Capen [EMAIL PROTECTED]
Date: Sun Feb 12 22:30:11 CST 2006
To: [EMAIL PROTECTED]
Subject: Re: [TMIC] TM or MS

Dear Marie,Did you have these lesions on your brain four years ago when you 
went to Johns Hopkins?? Or are these new developments?? Johns Hopkins 
Transverse Myelopathy Center is the only center in the world that has the most 
knowledge and treats approximately 700 patients (more than any other doctor) 
with TM.? ?The brain lesions may be something that came on after your initial 
diagnosis.?Take care,Debbie?  - Original Message -   From:  [EMAIL 
PROTECTED]   To: tmic-list@eskimo.com   Sent: Sunday, February 12, 2006 8:12   
PM  Subject: [TMIC] TM or MS  
Feb. 7th was my 4th year anniversary of having TM... I have   come a long way 
from that night from hell when no-one could figure out   exactly what was 
wrong with me... Finally, it was decided TM was the   diagnosis. Johns Hopkins 
agreed with this diagnosis.I take 600mg of neurontin   4 times a day... tho am 
never without pain.. I now walk with a walker, have   hand controls on my car 
and with my faith and family have adjusted to my new   life style. Due to 
Medicare I had to switch all my doctors. A Neurologist was   highly recommened 
as one of the best in the area. Long story short...after all   new MRI's 
etc... etc.. he informed me that without a doubt I have Multiple   Sclerosis. 
I am still in shock and not sure what is my next step. I have made   an 
appointment with another top neurologist in the D.C area..? I have 5   
lesions on? my brain which supposedly indicate MS. I am 59 years old.   Also 
my brother -55- was just diagnosed with underlying MS 
Any   thoughts, suggestions would be greatly, greatly accepted... Anyone of 
you with   TM have lesions on the brain
Thanks so much!
Marie Arthur



Re: [TMIC] TM and MS

2005-10-14 Thread [EMAIL PROTECTED]



 pHranqq,  you fergut chewin' gum. :):):)
 
 Bobberino.

I knew there was somptin I furgut.

thanks

F



Re: [TMIC] TM and MS

2005-10-14 Thread [EMAIL PROTECTED]

 the very first sentence always 
 said,TM is the most common form of MS. 

  Anne Shreve,

I would hazzard a quess that those were Old books.

I was struck down with TM in August 2000, and since then have read everything I 
could get my hands on about my disease.

I am re-evaluated every year by my local Neurologist and by Dr. Kerr at Johns 
Hopkins. I go with lissts of questions that I leave so they can answer them in 
detail, if not immediately, by e-mail.

I am in the process of getting an appointment with the stem cell therapy group 
in California (San Fransisco) to receive stem cell therapy as soon as it is 
available.  I hope to be one of the first.

You, take care- and have a nice day.

Frank




[TMIC] TM and MS

2005-10-13 Thread [EMAIL PROTECTED]
 I AM NOT SURE WHY ANYONE THAT HAS TM IS MORE SUSCEPTIBLE TO COMING DOWN WITH 
 MS, 
 
 I did not know that the chances of getting MS if you have TM are increased.

I just want to let everyone know that I wwas going to answer this yesterday.

TM is an auto-immune event. The damage is only done once.

MS is an auto-immune disorder (disease). The damage is done again and again.

TM is almost always just one event.  

MS is always two or more events. the auto-immune process continues to damage 
the CNS.

Imagine you have a nice new auto-mobile. Your horrible nephew borrows it and 
runs it off the road.  He brings it back. You fix the auto as best you can. but 
it is never the same.  You never let the nephew drive it again.  This is TM.

Imagine you have a nice new auto-mobile. Your horrible nephew talks you into 
giving it to him.  He has one accident after another ( each accident occurs 
three to six months apart).  He tries to fix itt himself, but eventually the 
duct tape and bondo can't hold it together.  It falls apart.  This is MS

I hope this helps.

F



Re: [TMIC] TM and MS

2005-10-13 Thread HeyJude48506




In a message dated 10/13/2005 12:47:28 PM Central Standard Time, 
[EMAIL PROTECTED] writes:
thanks 
  frank, i do sort of feel like i'm out of duct tape. 
sue

Hi Sue,

I have a brand new mega-roll of duct tape you can use 
until you replace yours. Let's stick together...

Peace,
Jude