Fw: Re: [TMIC] another wonderful night
neurontin 400 mg 3 times a day When I was on Neurontin, I was taking 1,200 mg 3 time a day. You're only taking 1,200 mg a day and I was taking that amount 3 times a day, a total of 3,600 mg a day. I had a problem missing my second dose, but when I started to feel pain, I knew that I had missed it. I know that this is the highest a doctor want you to go, but I have seen people on even higher doses. These doses can make you a zombie or foggy. I'm now on Lyrica 150 mg twice a day. It's a lot easier for my the remember to take my medication and I don't feel the foggy and/or a zombie. I don't take the other medications that you're on. And I may not have the same pain that you have, mine it most numbness than pain. I do feel both of my feet feel like there should be flames coming off my feet. lol Hope this helps, Todd in CC, TX --- On Wed, 9/15/10, john snodgrass jcs...@yahoo.com wrote: From: john snodgrass jcs...@yahoo.com Subject: Re: [TMIC] another wonderful night To: Janice Nichols jan...@centurytel.net Cc: transverse myelitis tmic-list@eskimo.com Date: Wednesday, September 15, 2010, 5:19 PM My doc at the clinic said that if i took anything stronger that i would not be able to keep my CDL,commercial drivers licesne.I can understand that. it was a strange thing,tuesday, monday i had a great day. a little pressure in my side. that evening it started hurting. i took my meds right. after 9 when it wasnt any better i took more hydrocodone and baclofen. at 12 when things were really stressed i laid there with my legs burning and calf feeling like it was going to bust and feet felt swoolen.i slept on and off for a couple of hours and i think that the lack of rest added to the stress and added to the pain. you know,,nerve things. so i didnt dare try and go out and use my legs,probably saved a family of 4 or something..arg! i take ativan .5 mg 2 times a day neurontin 400 mg 3 times a day baclofen 20 mg 4 times a day hydrocodone 5/500 2 or 3 times a day. i realize that you and those that have been in this thing for a few years have delt with different dosses of these things,do you see anything i could do differently and be safe on the road? serroiusly, i am asking. John - Original Message From: Janice Nichols jan...@centurytel.net To: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Sent: Wed, September 15, 2010 5:56:33 PM Subject: Re: [TMIC] another wonderful night John, Tell me/us your meds you take - for pain, spasms, etc. I hate that you would have a day/night like that. Your doc should be able to keep you fairly comfortable - not that we don't all have pain, but you should be able to take something strong enough that you do not have entire days/nights with no relief. Sorry to get on my soapbox, but that kind of constant pain needs to be addressed to your doc - like in his face. Janice -- From: john snodgrass jcs...@yahoo.com Sent: Tuesday, September 14, 2010 9:36 AM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] another wonderful night happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
Re: Re: [TMIC] another wonderful night
i have an appointment in October for the neuro. I am going to ask him about these meds, or I can even make an appointment with my family Dr and get stuff switched around. i definitely have to do something. thanks Todd! P.S. i understand the burning feet. my legs are starting to burn also. pluse the pain in my right thigh and right calf and right side. From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Thu, September 16, 2010 5:02:28 PM Subject: Fw: Re: [TMIC] another wonderful night neurontin 400 mg 3 times a day When I was on Neurontin, I was taking 1,200 mg 3 time a day. You're only taking 1,200 mg a day and I was taking that amount 3 times a day, a total of 3,600 mg a day. I had a problem missing my second dose, but when I started to feel pain, I knew that I had missed it. I know that this is the highest a doctor want you to go, but I have seen people on even higher doses. These doses can make you a zombie or foggy. I'm now on Lyrica 150 mg twice a day. It's a lot easier for my the remember to take my medication and I don't feel the foggy and/or a zombie. I don't take the other medications that you're on. And I may not have the same pain that you have, mine it most numbness than pain. I do feel both of my feet feel like there should be flames coming off my feet. lol Hope this helps, Todd in CC, TX --- On Wed, 9/15/10, john snodgrass jcs...@yahoo.com wrote: From: john snodgrass jcs...@yahoo.com Subject: Re: [TMIC] another wonderful night To: Janice Nichols jan...@centurytel.net Cc: transverse myelitis tmic-list@eskimo.com Date: Wednesday, September 15, 2010, 5:19 PM My doc at the clinic said that if i took anything stronger that i would not be able to keep my CDL,commercial drivers licesne.I can understand that. it was a strange thing,tuesday, monday i had a great day. a little pressure in my side. that evening it started hurting. i took my meds right. after 9 when it wasnt any better i took more hydrocodone and baclofen. at 12 when things were really stressed i laid there with my legs burning and calf feeling like it was going to bust and feet felt swoolen.i slept on and off for a couple of hours and i think that the lack of rest added to the stress and added to the pain. you know,,nerve things. so i didnt dare try and go out and use my legs,probably saved a family of 4 or something..arg! i take ativan .5 mg 2 times a day neurontin 400 mg 3 times a day baclofen 20 mg 4 times a day hydrocodone 5/500 2 or 3 times a day. i realize that you and those that have been in this thing for a few years have delt with different dosses of these things,do you see anything i could do differently and be safe on the road? serroiusly, i am asking. John - Original Message From: Janice Nichols jan...@centurytel.net To: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Sent: Wed, September 15, 2010 5:56:33 PM Subject: Re: [TMIC] another wonderful night John, Tell me/us your meds you take - for pain, spasms, etc. I hate that you would have a day/night like that. Your doc should be able to keep you fairly comfortable - not that we don't all have pain, but you should be able to take something strong enough that you do not have entire days/nights with no relief. Sorry to get on my soapbox, but that kind of constant pain needs to be addressed to your doc - like in his face. Janice -- From: john snodgrass jcs...@yahoo.com Sent: Tuesday, September 14, 2010 9:36 AM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] another wonderful night happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
Re: Re: [TMIC] another wonderful night
From: Janice Nichols jan...@centurytel.net To: Todd Tarno toddtm2...@sbcglobal.net; TMIC tmic-list@eskimo.com Sent: Thu, September 16, 2010 7:59:18 PM Subject: Re: Re: [TMIC] another wonderful night Todd, is that flames or the smell that are coming off your feet Janice From: Todd Tarno Sent: Thursday, September 16, 2010 4:02 PM To: TMIC Subject: Fw: Re: [TMIC] another wonderful night neurontin 400 mg 3 times a day When I was on Neurontin, I was taking 1,200 mg 3 time a day. You're only taking 1,200 mg a day and I was taking that amount 3 times a day, a total of 3,600 mg a day. I had a problem missing my second dose, but when I started to feel pain, I knew that I had missed it. I know that this is the highest a doctor want you to go, but I have seen people on even higher doses. These doses can make you a zombie or foggy. I'm now on Lyrica 150 mg twice a day. It's a lot easier for my the remember to take my medication and I don't feel the foggy and/or a zombie. I don't take the other medications that you're on. And I may not have the same pain that you have, mine it most numbness than pain. I do feel both of my feet feel like there should be flames coming off my feet. lol Hope this helps, Todd in CC, TX --- On Wed, 9/15/10, john snodgrass jcs...@yahoo.com wrote: From: john snodgrass jcs...@yahoo.com Subject: Re: [TMIC] another wonderful night To: Janice Nichols jan...@centurytel.net Cc: transverse myelitis tmic-list@eskimo.com Date: Wednesday, September 15, 2010, 5:19 PM My doc at the clinic said that if i took anything stronger that i would not be able to keep my CDL,commercial drivers licesne.I can understand that. it was a strange thing,tuesday, monday i had a great day. a little pressure in my side. that evening it started hurting. i took my meds right. after 9 when it wasnt any better i took more hydrocodone and baclofen. at 12 when things were really stressed i laid there with my legs burning and calf feeling like it was going to bust and feet felt swoolen.i slept on and off for a couple of hours and i think that the lack of rest added to the stress and added to the pain. you know,,nerve things. so i didnt dare try and go out and use my legs,probably saved a family of 4 or something..arg! i take ativan .5 mg 2 times a day neurontin 400 mg 3 times a day baclofen 20 mg 4 times a day hydrocodone 5/500 2 or 3 times a day. i realize that you and those that have been in this thing for a few years have delt with different dosses of these things,do you see anything i could do differently and be safe on the road? serroiusly, i am asking. John - Original Message From: Janice Nichols jan...@centurytel.net To: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Sent: Wed, September 15, 2010 5:56:33 PM Subject: Re: [TMIC] another wonderful night John, Tell me/us your meds you take - for pain, spasms, etc. I hate that you would have a day/night like that. Your doc should be able to keep you fairly comfortable - not that we don't all have pain, but you should be able to take something strong enough that you do not have entire days/nights with no relief. Sorry to get on my soapbox, but that kind of constant pain needs to be addressed to your doc - like in his face. Janice -- From: john snodgrass jcs...@yahoo.com Sent: Tuesday, September 14, 2010 9:36 AM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] another wonderful night happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
RE: Fw: Re: [TMIC] another wonderful night
My feet burn too, in fact, lately I cannot dry the bottoms of them with a towel as it causes a very uncomfortable feeling. I do know that since I have been taking 150mg of Lyrica 2x a day, the burning is not so bad. They are just cold all the time. Even when it is smokin hot outside, the feet, they stay cold! Janet From: Akua [mailto:a...@artfarm.com] Sent: September 16, 2010 5:45 PM To: tmic-list@eskimo.com Subject: Re: Fw: Re: [TMIC] another wonderful night . I do feel both of my feet feel like there should be flames coming off my feet. lol Hope this helps, Todd in CC, TX my feet BURN too! Akua in the southenr finger lakes, NY --
Re: Fw: Re: [TMIC] another wonderful night
Re: Fw: Re: [TMIC] another wonderful nightI have similar feelings too in my feet.A couple of weeks ago I spilt some juice on my foot and my neice grabbed a cloth and started washing it off. My foot really started spasming - scared us both. I hate it when I am walking and the bottom of my foot will start to spasm - it almost makes you fall. Janice From: Janet Dunn Sent: Thursday, September 16, 2010 9:52 PM To: 'Akua' ; tmic-list@eskimo.com Subject: RE: Fw: Re: [TMIC] another wonderful night My feet burn too, in fact, lately I cannot dry the bottoms of them with a towel as it causes a very uncomfortable feeling. I do know that since I have been taking 150mg of Lyrica 2x a day, the burning is not so bad. They are just cold all the time. Even when it is smokin hot outside, the feet, they stay cold! Janet From: Akua [mailto:a...@artfarm.com] Sent: September 16, 2010 5:45 PM To: tmic-list@eskimo.com Subject: Re: Fw: Re: [TMIC] another wonderful night . I do feel both of my feet feel like there should be flames coming off my feet. lol Hope this helps, Todd in CC, TX my feet BURN too! Akua in the southenr finger lakes, NY --
Re: [TMIC] another wonderful night
John, Tell me/us your meds you take - for pain, spasms, etc. I hate that you would have a day/night like that.Your doc should be able to keep you fairly comfortable - not that we don't all have pain, but you should be able to take something strong enough that you do not have entire days/nights with no relief. Sorry to get on my soapbox, but that kind of constant pain needs to be addressed to your doc - like in his face. Janice -- From: john snodgrass jcs...@yahoo.com Sent: Tuesday, September 14, 2010 9:36 AM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] another wonderful night happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
Re: [TMIC] another wonderful night
My doc at the clinic said that if i took anything stronger that i would not be able to keep my CDL,commercial drivers licesne.I can understand that. it was a strange thing,tuesday, monday i had a great day. a little pressure in my side. that evening it started hurting. i took my meds right. after 9 when it wasnt any better i took more hydrocodone and baclofen. at 12 when things were really stressed i laid there with my legs burning and calf feeling like it was going to bust and feet felt swoolen.i slept on and off for a couple of hours and i think that the lack of rest added to the stress and added to the pain. you know,,nerve things. so i didnt dare try and go out and use my legs,probably saved a family of 4 or something..arg! i take ativan .5 mg 2 times a day neurontin 400 mg 3 times a day baclofen 20 mg 4 times a day hydrocodone 5/500 2 or 3 times a day. i realize that you and those that have been in this thing for a few years have delt with different dosses of these things,do you see anything i could do differently and be safe on the road? serroiusly, i am asking. John - Original Message From: Janice Nichols jan...@centurytel.net To: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Sent: Wed, September 15, 2010 5:56:33 PM Subject: Re: [TMIC] another wonderful night John, Tell me/us your meds you take - for pain, spasms, etc. I hate that you would have a day/night like that. Your doc should be able to keep you fairly comfortable - not that we don't all have pain, but you should be able to take something strong enough that you do not have entire days/nights with no relief. Sorry to get on my soapbox, but that kind of constant pain needs to be addressed to your doc - like in his face. Janice -- From: john snodgrass jcs...@yahoo.com Sent: Tuesday, September 14, 2010 9:36 AM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] another wonderful night happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
Re: [TMIC] another wonderful night
my neurologist dont undersatand why im in so much pain with the meds i take. with what i am taking he also added lyrica. dont feel any better. my family dr said that if i had some kind of neuropothy,the meds i am on would be the same as what would be perscribed for that. i dont see any change in muscle tone like i had degenerating muscles, i just have the terrible pain. my son broke his hand and they gave him oxycodone,a step up from hydrocodone.. might try that and see if theres a difference. - Original Message From: Janice Nichols jan...@centurytel.net To: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Sent: Wed, September 15, 2010 5:56:33 PM Subject: Re: [TMIC] another wonderful night John, Tell me/us your meds you take - for pain, spasms, etc. I hate that you would have a day/night like that. Your doc should be able to keep you fairly comfortable - not that we don't all have pain, but you should be able to take something strong enough that you do not have entire days/nights with no relief. Sorry to get on my soapbox, but that kind of constant pain needs to be addressed to your doc - like in his face. Janice -- From: john snodgrass jcs...@yahoo.com Sent: Tuesday, September 14, 2010 9:36 AM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] another wonderful night happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
[TMIC] another wonderful night
happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
Re: [TMIC] another wonderful night
Ella's right on John. Most of us know all too well exactly how you felt. It's awful! I'm glad you didn't try to go to work. Your body needed the rest. Back to normal? The only thing I can say about that is that all of us seem to have a new normal ~ big sigh~ Remember we're all in this together. Hang in there and keep posting Linda - Original Message - From: john snodgrassmailto:jcs...@yahoo.com To: transverse myelitismailto:tmic-list@eskimo.com Sent: Tuesday, September 14, 2010 8:36 AM Subject: [TMIC] another wonderful night happened again! had a fairly nice day,only a little pressure in my side. thoughtthis is great,work all day literally pain free! then after work we had a safety meeting. it started! legs on fire,banding-pinching pain in side,balls on bottom of right foot,calf feels like it's going to burst,disoriented! went home and it go so bad that i was on my bed literally shouting why why why! up all night. hurting to bad to go to work. finally eased up a bit @ 10:00 am. back to normal pain. if there is such a thing! glad your here, the only people that know exactly what Im talking about.
