RE: [TMIC] queston
I just went for an MRI today...the first one in more than 10 years. I also went and had bloodwork done on Saturday. The reason for this is that I have not been feeling good for a while now and for the first time I am having burning/freezing in my good leg. It is hard after 10 years to deal with new problems! Hopefully the test will ind something treatable. Rob in New Jersey From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, April 04, 2008 6:48 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] queston I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing has changed. Linda in Pa Planning your summer road trip? Check out AOL Travel Guides http://travel.aol.com/travel-guide/united-states?ncid=aoltrv0003000 016 .
Re: [TMIC] queston
Hi Diane, It is such a strange thing. I know the price of overdoing it. Usually 2-3 days of complete rest. It is not easy when you are a single Mom of a 13 year old. I have 4 acres, a horse, dog, and cat. I also work part time. I am not complaining. I love my life. But before TM I would be able to go nonstop and even after 5 years, I still want to do it all. It is just so scary when you have those bad days because you think, IS THIS IT. Linda in Pa **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] queston
Wow, I'm impressed with you, Linda! The main thing is to never stop wanting to do it all!! Something to remember (always on the positive side) is that even without the TM, we could still be having these aches and pains but since we do have this it is always a good idea to mention them to your provider especially so they can have it in your record. Jeanne ---Original Message--- From: [EMAIL PROTECTED] Date: 4/5/2008 7:05:56 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] queston Hi Diane, It is such a strange thing. I know the price of overdoing it. Usually 2-3 days of complete rest. It is not easy when you are a single Mom of a 13 year old. I have 4 acres, a horse, dog, and cat. I also work part time. I am not complaining. I love my life. But before TM I would be able to go nonstop and even after 5 years, I still want to do it all. It is just so scary when you have those bad days because you think, IS THIS IT. Linda in Pa Planning your summer road trip? Check out AOL Travel Guides.
Re: [TMIC] queston
Jeanne in Dayton, Congratulations on filling warmth on your butt! We'll take progress whereever we can find it. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] queston
Thank you, Naomi! You are so right in that we get pretty excited whenever there is a positive change even if it is on one's butt!!! I have fallen so many times sitting somewhere because I can't tell if I'm sitting squarely on the seat. We just laugh about it and go on! When I ride the mower I have to feel off and on to make sure I'm even in the center!! And I am sure not complaining because now I can move! But I do want to know how you are! I truly do!! Jeanne ---Original Message--- From: [EMAIL PROTECTED] Date: 4/4/2008 2:16:27 PM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] queston Jeanne in Dayton, Congratulations on filling warmth on your butt! We'll take progress whereever we can find it. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Planning your summer road trip? Check out AOL Travel Guides. BackGrnd.jpg
Re: [TMIC] queston
I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing has changed. Linda in Pa **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] queston
Me too Linda. Guess that nerve network has a mind of its own. There are times though that I do find an answer if I take my emotional temperature or remind myself that I did a bit more than usual yesterday. There always seems to be a price to pay for anything I do. Most annoying - like TODAY !! Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Friday, April 04, 2008 6:48 PM Subject: Re: [TMIC] queston I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing has changed. Linda in Pa -- Planning your summer road trip? Check out AOL Travel Guides.
Re: [TMIC] queston
Wow Linda, I wish there were days when I didn't feel the burning and tingling. It has never gone away even with meds. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Friday, April 04, 2008 4:48 PM Subject: Re: [TMIC] queston I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing has changed. Linda in Pa -- Planning your summer road trip? Check out AOL Travel Guides. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1359 - Release Date: 4/4/2008 8:23 AM
RE: [TMIC] queston
Funny how one persons good news is another prsons bad. Whereas Jeanne is excited (rightfully so) that she can feel temperature...I am upset that my left leg that has never in 10 years felt temperature is now freezing or burning...I am not sure how to describe it other than lousy! Rob in New Jersey -Original Message- From: Akua [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 02, 2008 1:40 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] queston Good news!!! I've been noticing a change where I can feel temperature on my skin on the left side which is the one that has never been able to feel temps! I felt a cool sensation when I was taking off my clothes and then felt the warmth of the shower! I could even feel it on my old butt and thigh!! It still feels numb inside but this is a REAL change! I would do cartwheels if I could!! Jeanne in Dayton Jeanne, This made me cry with joy for you! Thank you for sharing this as it gives me hope! YAY Akua -- http://www.akuadesigns.etsy.com http://www.artfarm.com http://www.absolutearts.com/portfolios/a/akualezli/
Re: [TMIC] queston
I ditto your sentiments Rob. Same Same for me. Heather in Calgary - Original Message - From: Robert Pall [EMAIL PROTECTED] To: Akua [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Wednesday, April 02, 2008 11:45 AM Subject: RE: [TMIC] queston Funny how one persons good news is another prsons bad. Whereas Jeanne is excited (rightfully so) that she can feel temperature...I am upset that my left leg that has never in 10 years felt temperature is now freezing or burning...I am not sure how to describe it other than lousy! Rob in New Jersey -Original Message- From: Akua [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 02, 2008 1:40 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] queston Good news!!! I've been noticing a change where I can feel temperature on my skin on the left side which is the one that has never been able to feel temps! I felt a cool sensation when I was taking off my clothes and then felt the warmth of the shower! I could even feel it on my old butt and thigh!! It still feels numb inside but this is a REAL change! I would do cartwheels if I could!! Jeanne in Dayton Jeanne, This made me cry with joy for you! Thank you for sharing this as it gives me hope! YAY Akua -- http://www.akuadesigns.etsy.com http://www.artfarm.com http://www.absolutearts.com/portfolios/a/akualezli/ -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.4/1355 - Release Date: 4/1/2008 5:37 PM
Re: [TMIC] queston
Rob, I had an incident starting in January of this year. My legs started tingling and burning, then my arms started, which I never had before. Very Scary! I went for 2 MRI's, one of the brain and one cervical. Nothing new in the scans. But I did show very bad sinus problems. I was on an antibiotic and about 1 week after the symptoms started to go away. My whole body felt inflamed for almost 2 months. Then day by day I started feeling better. I am starting again with the sinus problem and starting to tingle in my back. I have an appointment with my doctor on 4/7. I had sinus infection in the beginning. Have you been sick lately or completely run down. Those are the 2 things that make me worse. Linda in Pa **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
[TMIC] queston
Need a little help! After more than 10 years I started having new symptoms in my left (the good one) leg. My left leg has always had pins needles...but this weekend I had the burning (freezing) sensation and although it has not gotten worse..it has not gone back to what I call normal. I have e mailed Dr. Kerr and hopefully he will supply some in sight. I also want to thank members on the list who have given me names of Nerros in New Jersey that they use and are happy with...I will contact at least one of them. In all honesty I am somewhat afraid! I thought I have been dealing with TM in as positive way as is possible. I just don't know if I could handle another episode especially if It requires hospitalization. I know all of us do not have one day that is exactly the same as the previous one...but have any of you experienced new feelings (good or bad) that was not a result of a relapse? If this continues I doubt if I can continue working as the discomfort does not allow me to concentrate on my work. I can only focus on the new feeling of burning! Thank you for any insight you can provide. Rob in New Jersey
Re: [TMIC] queston
Rob, I was afflicted with TM in 2000. Recently I began having new symptoms and increased pain during the Medication Valleys. I went for an MRI which showed a cinching in at the level of my lesion (C5). The demyelination was followed by scarring, and the scarring contracted causing the indentation around the spinal cord. This took eight years to occure as the previous yearly MRI's didn't shown any cinching. Now the question is does someone operate?? I think Not!! F JOKE: Descartes was having coffee at a cafe in Paris. The waiter asked if Descartes would like another refill. I think not. And with that Descartes disappeared !!
Re: [TMIC] queston
In a message dated 3/31/2008 9:13:03 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I know all of us do not have one day that is exactly the same as the previous one…but have any of you experienced new feelings (good or bad) that was not a result of a relapse? Yes, Rob, I have experienced strange sensations and feelings and feared a relapse or second episode, but it ended up just being some weird thing. Sometimes it would just be for a day, sometimes it would last for months and then fade away. You're doing well to get it checked out, and I hope that's all it will be for you, just some strange nerve signal that will resolve in time. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
Re: [TMIC] queston
Rob, I know I've only had this 3 years and have different symptoms here and there quite often but the rest doesn't seem to change. I always have the burning/freezing plus the pins and needles, worse on the left but have had it from the start. I just keep on with my water therapy and soon a walking regime. Whenever things got really bad compared to the everyday symptoms I too was afraid that it was a relapse but realized it was usually following working out too hard, traveling where I sat too long, or let myself get too tired. I think your idea of asking Dr. Kerr is a good one. Good news!!! I've been noticing a change where I can feel temperature on my skin on the left side which is the one that has never been able to feel temps! I felt a cool sensation when I was taking off my clothes and then felt the warmth of the shower! I could even feel it on my old butt and thigh!! It still feels numb inside but this is a REAL change! I would do cartwheels if I could!! Jeanne in Dayton ---Original Message--- From: Robert Pall Date: 3/31/2008 8:10:08 AM To: tmic-list@eskimo.com Subject: [TMIC] queston Need a little help! After more than 10 years I started having new symptoms in my left (the good one) leg. My left leg has always had pins needles but this weekend I had the burning (freezing) sensation and although it has not gotten worse..it has not gone back to what I call normal. I have e mailed Dr. Kerr and hopefully he will supply some in sight. I also want to thank members on the list who have given me names of Nerros in New Jersey that they use and are happy with I will contact at least one of them. In all honesty I am somewhat afraid! I thought I have been dealing with TM in as positive way as is possible. I just don't know if I could handle another episode especially if It requires hospitalization. I know all of us do not have one day that is exactly the same as the previous one but have any of you experienced new feelings (good or bad) that was not a result of a relapse? If this continues I doubt if I can continue working as the discomfort does not allow me to concentrate on my work. I can only focus on the new feeling of burning! Thank you for any insight you can provide. Rob in New Jersey
Re: [TMIC] queston
Your e-mails always make me laugh, Frank!! These are some things to ask Dr. Kerr in Seattle. Your 'cinching' situation is interesting. I wonder 'why now' and what are your new symptoms? Jeanne ---Original Message--- From: [EMAIL PROTECTED] Date: 3/31/2008 8:59:09 AM To: Robert Pall; tmic-list@eskimo.com Subject: Re: [TMIC] queston Rob, I was afflicted with TM in 2000. Recently I began having new symptoms and increased pain during the Medication Valleys. I went for an MRI which showed a cinching in at the level of my lesion (C5). The demyelination was followed by scarring, and the scarring contracted causing the indentation around the spinal cord. This took eight years to occure as the previous yearly MRI's didn't shown any cinching. Now the question is does someone operate?? I think Not!! F JOKE: Descartes was having coffee at a cafe in Paris. The waiter asked if Descartes would like another refill. I think not. And with that Descartes disappeared !! BackGrnd.jpg
Re: [TMIC] queston
Rob, Get it checked out. I know you are scared. All of us that have had relapses were scared too. But the sooner you see the Dr. the better. Let us know how you are doing, ok! And just so you know I have had times where my symptoms increased and it was a relapses and times when it wasn't. So it is really hard to tell. Jenna - Original Message From: Robert Pall [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Monday, March 31, 2008 9:00:31 AM Subject: [TMIC] queston Need a little help! After more than 10 years I started having new symptoms in my left (the good one) leg. My left leg has always had pins needles…but this weekend I had the burning (freezing) sensation and although it has not gotten worse..it has not gone back to what I call normal. I have e mailed Dr. Kerr and hopefully he will supply some in sight. I also want to thank members on the list who have given me names of Nerros in New Jersey that they use and are happy with…I will contact at least one of them. In all honesty I am somewhat afraid! I thought I have been dealing with TM in as positive way as is possible. I just don't know if I could handle another episode especially if It requires hospitalization. I know all of us do not have one day that is exactly the same as the previous one…but have any of you experienced new feelings (good or bad) that was not a result of a relapse? If this continues I doubt if I can continue working as the discomfort does not allow me to concentrate on my work. I can only focus on the new feeling of burning! Thank you for any insight you can provide. Rob in New Jersey Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. http://tc.deals.yahoo.com/tc/blockbuster/text4.com
